@@TheBalancingActTV hallo. I have a question. My cousins son was born with those blisters on hands and like a wounds on feet they said thats eb , he is currently 2 weeks old. He have no blisters on other body parts, just hands feet and one litle on nose and mouth. In those two weeks he has not new blisters on body , just on hands some are new and on feet ist more like a burn skin . I just want some explanation cann we do something to help him and stop this disorder. Is there a cure . Im just so frightened by the thought of the eb
Hello, I watched your video and I think we both are suffering from the same disease. My name is [Ahmed sher Kandhro], I am 21 years old and I have Epidermolysis Bullosa (EB). Initially, my condition was severe, but now it has improved. I am from Kotdi, Talka Rohdi, District Sukkur, Sindh, Pakistan. I would like to discuss my experiences and knowledge about EB with you. Can we talk about it? Looking forward to hearing from you.
Amazing. Elongate x EB ❤️. Nice Team.
Great cause and what a revolutionary purpose
Amazing. Elongate & EB Research 💚💚
Thank you so much for sharing! My son has RDEB as well and he's almost 25 years old. Worst disorder ever.
We are here for you and families alike!
@@TheBalancingActTV hallo. I have a question. My cousins son was born with those blisters on hands and like a wounds on feet they said thats eb , he is currently 2 weeks old. He have no blisters on other body parts, just hands feet and one litle on nose and mouth. In those two weeks he has not new blisters on body , just on hands some are new and on feet ist more like a burn skin . I just want some explanation cann we do something to help him and stop this disorder. Is there a cure . Im just so frightened by the thought of the eb
Elongate X EB, simply amazing thank you!
Love the good work that Elongate is making possible!
Bradyyyyy ❤️❤️❤️❤️❤️
So important!!👏🏾👍🏻
Hello,
I watched your video and I think we both are suffering from the same disease. My name is
[Ahmed sher Kandhro],
I am 21 years old and I have Epidermolysis Bullosa (EB). Initially, my condition was severe, but now it has improved.
I am from Kotdi, Talka Rohdi, District Sukkur, Sindh, Pakistan. I would like to discuss my experiences and knowledge about EB with you. Can we talk about it?
Looking forward to hearing from you.
Elongate is helping to change the world ♥️