I have pancreatic stage 3 had all those surgeries the chemo the radiations the chemo positive positive attitude knowing that God's got you and just push through every day knowing that God's got your day planned for you and you will make it through be strong in your faith and let family love you through it
Thank you Dr. Hussain for sharing your experience. It is invaluable for us that are at the start of pancreas cancer treatment. Your experience helps provide some impression about what treatment and recovery will be like.
I’ve been on max dose of enzymes since I started chemo.. That dose was based on my stool makeup as I wasn’t losing a lot of weight. Only recently did I question it so have pulled back my dosing. Interesting to hear that Dr. Hussein determines his dosing based on fat load of his meals. My stools are still problematic but now will increase/ decrease based on how much fat I determine to be in my meals. Looks like a lifelong challenge to get it right as annoying and uncomfortable stool makeup can be.
Is there anyone out there that has neuroendocrine pancreatic surgery that has metastasised and been offered Temcap pills? I’m in nz and can’t find anyone to share my fears with
@ Unfortunately my cancer had spread before I got a correct diagnosis after 7 months of tests.so I’m not eligible now for surgery . I had symptoms over 2 years ago with sudden pre diabetes showing in my bloods but my gp did nothing other than repeat blood samples every 6 months. Had I known myself it was a precursor to Pancreatic cancer I would have insisted on pet scans etc,Just palliative chemo pillsnow . It was another GP I saw who triaged m for tests. Not much faith now with my Dr. I wish you all the best with your surgery . Stay strong and fight.
I have pancreatic stage 3 had all those surgeries the chemo the radiations the chemo positive positive attitude knowing that God's got you and just push through every day knowing that God's got your day planned for you and you will make it through be strong in your faith and let family love you through it
Thank you Dr. Hussain for sharing your experience. It is invaluable for us that are at the start of pancreas cancer treatment. Your experience helps provide some impression about what treatment and recovery will be like.
Thank you Dr you are inspiring and have high mental health. You're definitely a survivor
I’ve been on max dose of enzymes since I started chemo.. That dose was based on my stool makeup as I wasn’t losing a lot of weight. Only recently did I question it so have pulled back my dosing. Interesting to hear that Dr. Hussein determines his dosing based on fat load of his meals. My stools are still problematic but now will increase/ decrease based on how much fat I determine to be in my meals. Looks like a lifelong challenge to get it right as annoying and uncomfortable stool makeup can be.
How did maintain your weight??
Is there anyone out there that has neuroendocrine pancreatic surgery that has metastasised and been offered Temcap pills? I’m in nz and can’t find anyone to share my fears with
I'm in NZ Auckland with NET also. They will operate soon WİPPLE surgery. How is your treatment going? What stage are you at?
@ Unfortunately my cancer had spread before I got a correct diagnosis after 7 months of tests.so I’m not eligible now for surgery . I had symptoms over 2 years ago with sudden pre diabetes showing in my bloods but my gp did nothing other than repeat blood samples every 6 months. Had I known myself it was a precursor to Pancreatic cancer I would have insisted on pet scans etc,Just palliative chemo pillsnow . It was another GP I saw who triaged m for tests. Not much faith now with my Dr. I wish you all the best with your surgery . Stay strong and fight.