I have uncontrollable crying. I'm just glad people know me well enough now to know I'm not crying because I'm upset. i have tears just watching this video 😂😂
Glad to learn about one more thing that I DON'T suffer from yet! A happy and kosher Pesach from the city of Lod, where I came to from Jerusalem, to join the Seder with the grandchildren!! 🍷🍷🍷🍷
It was my most problematic and humiliating symptom; I could no longer hold a job with co-workers, because the constant crying of a co-worker stresses everyone out, especially if they don't understand it. I was seen as manipulative. It was awful. Neudexta made it go away, almost immediately. If you're not on it yet, it's definitely worth a try.
I had the laughing and crying before.I knew I had MS and could take the proper drugs. I laughed a lot anyway but the crying that was strange. I wasn't depressed I swear 😂
@@ccollins2890I had the exact same issue! My supervisor thought I was being manipulative, but I couldn’t help the crying. I could cry at a leaf falling-it’s horrible. I didn’t know there was anything I could do!
Thanks so much for this important video Dr. Boster. These symptoms of MS can be so difficult and cause us to withdraw and isolate. I also want to say thank you for all of your videos and livestreams. I know how much time can go into managing a UA-cam channel and I really appreciate you. And nice plants!
Laughing and crying are very much the same in the brain. Very fine line. I was at a large funeral and we were all crying as you might expect, and something slightly funny, like a comment about one of the other guests shoes was made and it cracked us up into a rip roaring belly laugh that went on for several minutes, and it spread throughout the immediate family. It was quite embarrassing. The funeral home guy told us that he has seen that several times before.
So far I have the crying part of PBA. I’ve been taking Nuedexta for over a year now and it has really helped. Also I’m getting a benefit from it for my depression along with antidepressant I’ve been taking.
I had Alice in wonderland syndrome when ithis my MS first started. I thought my pool was moving all over my yard. But it was just really big and then really small. Got so sick with it. In a car I would feel like I was floating outside of my body. Felt wavy weird like and made me sick. Also I would feel and see a hill yet the ground was flat. Felt so weird for a year. Thankfully that calmed. My MS started with a bang. Had optic neuritis and nystagmus. Was sent to neurologist and he noticed my eyes jerked. Had MRI and spinal tap and diagnosed at the very beginning. I have systemic lupus for 20 years too. Had to go see a MS specialist at Vanderbilt to make sure it was ms and not my lupus attacking my brain. All that happened around age 33. But last couple years its been calm and its stressing me out. It started so strong and then calmed. I stress its building up for a big flare.
Uncontrollable crying, actual sobbing was the WORST symptom I had from MS. Once my Neurologist prescribed Neudexta it was almost completely resolved! I had years of this till diagnosed with PBA which is another of those rarer symptoms of MS. Only problem is the high cost, over $1800 aMONTH! The pharmaceutical company that makes this does NOT offer assistance or lower price for Medicare patients and I am terrified that I may have to stop it. This is a combination, like Dr Boorster says, of two older, cheap medications so the only reason it’s so high is Greed!
I get the rainbow 🌈 colors and it will last 1/2 an hour to 45 minutes. Happens when I'm hot. What really bothers me is eye spasms. I once had them for two days and it led to anxiety. Progressive MS is no joke!
Nuedexta is crazy expensive once on Medicare without the copay assist. I’ve scheduled an appointment with my neurologist to see what else she can find to help.
Bless you Dr. Boster for all of this very important information you provide. I've found so much comfort in your videos. I have a question that may or may not be related to this topic. Can people lose their ability to laugh? I just don't find much funny anymore even tho I know I would normally laugh. I'm on a mission to find my laugh but she's elusive🥸🤪🧡🧡🧡.
It was literally my most damaging, isolating, humiliating symptoms. No one wants to sob uncontrollably, and/or cackle inappropriately at work or at the grocery store. No one else likes being around it. Nuedexta was my miracle drug; gone the first day I started taking it. (I didn't notice it for a few days. My guy is the one who pointed out it had stopped.)
Hi Aaron, I have rrms, 11 lesions, 1 optic neuritis back in 2016... a couple new lesions since then, but no symptoms or at least that I believe are ms related. Past 2 mri's are stable. Not taking DMT's. So with all these rare symptoms and coming and going of them: how do I know if it's ms? Maybe I feel a bit more anxious for a week or so, then my left thigh cramps severely from time to time, etc... If I describe it to my wife or a friend they say they get that too... 2nd question: will all lesions have some sort of an effect, even if it's subtle?
PBA is not just frustrating. It's humiliating. I've had it since before 2000 and was disability-retired before it could be effectively treated. My coworkers saw me as manipulative and thin-skinned. It stressed everyone out, and most couldn't understand that I had zero control over it.
I don't know if I would call it hallucinations, but it happens to me that when I'm particullary tired or stressed, I would see, moving shadows, people that it's not there... It lasts only for a second. But it can be scary sometimes. I had a period of time that was pretty bad and I was having these kind of episodes serveral times a day. Thankfully, it got much better. Another thing that happens to me when I'm tired is that I don't get jokes. Whatever you tell me, I'm going to take it as face value. You can tell that you just come from having tea with a couple of aliens, and I'm going to ask you how did the aliens like their tea.😂
I've had moderate to severe tremors for many years now and it's easy to become frustrated over something that seems small. However, I sometimes go from 0-100 in the anger/rage department with very little external provocation. It's something I have no control over and it takes a while to get over. It feels very different from the kind of anger and frustration that result from my physical struggles. I haven't found any info about this but, if you are reading this, Dr. Boster or anyone else, is this a thing? Or am I just super maladjusted? (I mean, okay, I admit to being moderately maladjusted but come on...😁)
my most surprising symptom is 'no more MS', IT HAPPEND TWICE, WHILE I WAS TRYING TO WALK ON THE STEET, SUDDENLY ALL MS SUMPTOMS DISAPPEARED AND I WAS BQACK AT 100%, what a great feeling, it was like i was tied to heavy chains and suddenly they disappeared, sadly it only lasted for a few minutes in both times.
Wow! I've experienced that a handful of times too and it felt magical. Like you, it only lasted a few minutes. I thought I was the only one to experience that, so thank you for your comment!
Dr Aaron, please please can your next video be about how neurogenic bladder issues are diagnosed. I have had emptying issues but today had a scan of my kidneys, bladder and uterus - normal. However, I still have a problem with urinary retention. But they did not test if my bladder was emptying today. I feel like my family think I am making it all up at this point - but I feel it's neurological
I get auditory hallucinations quite often. Sometimes it's music other times it's voices. Many times it sounds like someone talking through an old transistor radio
2:38 I remember the Laughing fits I used to have way earlier in the disease course before I even knew I had MS. I mean me and my co-workers would be laughing about something and it was funny but not that funny and I will continue laughing pass the time of it being appropriate. Thank you Doctor Aaron for addressing this and happy Monday to you.
I haven’t been diagnosed but have been having trouble with vision and falling for at least the last 5 years. I’ve had dizziness and migraines for years but until I started falling and vision problems didn’t think anything of it. I live in Oklahoma and there are very few neurologists here. I’m going to have to probably go to another state. Wish I could see Dr Boster but not sure I can afford to go up there. Anyone have a good neurologist around OKLAHOMA?
I don’t have pseudobulbar affect. But I do avoid people like the plague. They don’t understand me and they never have. I believe that I’m on the autism spectrum but I can’t get testing from the VA. Add MS , Fibromyalgia and the fact that I just don’t think like other people, and I’m just weird. Ask anyone who knows me-I’m weird. Testing shows middle 90th percentile to 95th. I don’t think I’m really any smarter than anyone else. I’m just good at school.
♥️♥️♥️У больных MS более тонкая нервная система, которая порушена осложнением. И любые маленькие симптомы затрагивают нервную систему. Даже резко закрытая дверь. Мне помог ДопельГерц - магний + вит В.
Hi Doc. I have a question. I'm interested in trying Wellbutrin for depression, energy, and nerve pain as well as LDN for anti-inflammatory protection. Contrave, the weight loss pill, has both. Thoughts???
Hi, and thanks for the information. Do you ever have patients that randomly pass out? It takes a couple days to recover but my symptoms are often improved afterwards. Thanks you.
I had pseudobulbar when I was first diagnosed, when anyone would call me or visit me in rehab I would start crying uncontrollably, luckily there was a nurse who knew what it was and could explain to me and my visitors what was going on. I have also had visual hallucinations, once they really got me, I thought it was a hallucinations but was actually a mouse.
Social ques happens in alot of issues ... including personality disorders as these are also rare symptoms of ms lol read a few articles that state histrionics is the most comon one in rrms patents .... outside of that lol even with only having rrms me and my partner have to meta communicate before a conversation sometimes cuz inhave a hard time reading when someone is talking to vent and if someone is coming for advice/assistance is fixing..... never can tell the difference so they have to start there conversation with me by letting me knwo so i don't come off like I'm argumentative or not caring grate video
What about eyes watering like crazy? I don't feel like I'm crying but it's like I've had a bad allergic reaction but I'm not around my common allergens.
I have that as well. My Doctor said it was Sjogrens. I told Him I did not have dry eyes or dry mouth. He said that could still be dehydration. A year later, I was told by another Doctor that I didn't have Sjogrens. They are driving me crazy.
![[UA] Eternal Fire проти NAVI | EPL Season 20 Malta](http://i.ytimg.com/vi/chvlsDygrZM/mqdefault.jpg)
I have uncontrollable crying. I'm just glad people know me well enough now to know I'm not crying because I'm upset. i have tears just watching this video 😂😂
Glad to learn about one more thing that I DON'T suffer from yet! A happy and kosher Pesach from the city of Lod, where I came to from Jerusalem, to join the Seder with the grandchildren!! 🍷🍷🍷🍷
It was my most problematic and humiliating symptom; I could no longer hold a job with co-workers, because the constant crying of a co-worker stresses everyone out, especially if they don't understand it. I was seen as manipulative. It was awful. Neudexta made it go away, almost immediately. If you're not on it yet, it's definitely worth a try.
I had the laughing and crying before.I knew I had MS and could take the proper drugs. I laughed a lot anyway but the crying that was strange. I wasn't depressed I swear 😂
@@ccollins2890I had the exact same issue! My supervisor thought I was being manipulative, but I couldn’t help the crying. I could cry at a leaf falling-it’s horrible. I didn’t know there was anything I could do!
Попробуйте попить добвку Допель герц: магний+ витамины гр.В -1 месяц минимум. У меня прошло.
Thanks so much for this important video Dr. Boster. These symptoms of MS can be so difficult and cause us to withdraw and isolate. I also want to say thank you for all of your videos and livestreams. I know how much time can go into managing a UA-cam channel and I really appreciate you. And nice plants!
Laughing and crying are very much the same in the brain. Very fine line. I was at a large funeral and we were all crying as you might expect, and something slightly funny, like a comment about one of the other guests shoes was made and it cracked us up into a rip roaring belly laugh that went on for several minutes, and it spread throughout the immediate family. It was quite embarrassing. The funeral home guy told us that he has seen that several times before.
I had a young MS patient that had this & we put her on Nudexta and it significantly helped her!!!
Dr you are great,you explained things that we didn’t thing that they are normal for this In MS! Social cognition in my case 😊
THANK YOU DOCTOR BOSTER
So far I have the crying part of PBA. I’ve been taking Nuedexta for over a year now and it has really helped. Also I’m getting a benefit from it for my depression along with antidepressant I’ve been taking.
Great video, thanks Dr. Boster.
OMG, I am becoming the Joker.
Always appriciate your insight and explainations...thank you
I had Alice in wonderland syndrome when ithis my MS first started. I thought my pool was moving all over my yard. But it was just really big and then really small. Got so sick with it. In a car I would feel like I was floating outside of my body. Felt wavy weird like and made me sick. Also I would feel and see a hill yet the ground was flat. Felt so weird for a year. Thankfully that calmed. My MS started with a bang. Had optic neuritis and nystagmus. Was sent to neurologist and he noticed my eyes jerked. Had MRI and spinal tap and diagnosed at the very beginning. I have systemic lupus for 20 years too. Had to go see a MS specialist at Vanderbilt to make sure it was ms and not my lupus attacking my brain. All that happened around age 33. But last couple years its been calm and its stressing me out. It started so strong and then calmed. I stress its building up for a big flare.
Very interesting. I knew some but not all of these. Thanks for this. You always have great content.
Uncontrollable crying, actual sobbing was the WORST symptom I had from MS. Once my Neurologist prescribed Neudexta it was almost completely resolved! I had years of this till diagnosed with PBA which is another of those rarer symptoms of MS. Only problem is the high cost, over $1800 aMONTH! The pharmaceutical company that makes this does NOT offer assistance or lower price for Medicare patients and I am terrified that I may have to stop it. This is a combination, like Dr Boorster says, of two older, cheap medications so the only reason it’s so high is Greed!
Hi from Israel thanks for the information unpleasant symptoms good to know they can be treated happy Passover to all Jews in the world
*Glory to Israel!* 🇺🇸❤️🇮🇱
I get the rainbow 🌈 colors and it will last 1/2 an hour to 45 minutes. Happens when I'm hot. What really bothers me is eye spasms. I once had them for two days and it led to anxiety. Progressive MS is no joke!
Nuedexta is crazy expensive once on Medicare without the copay assist. I’ve scheduled an appointment with my neurologist to see what else she can find to help.
Bless you Dr. Boster for all of this very important information you provide. I've found so much comfort in your videos. I have a question that may or may not be related to this topic. Can people lose their ability to laugh? I just don't find much funny anymore even tho I know I would normally laugh. I'm on a mission to find my laugh but she's elusive🥸🤪🧡🧡🧡.
When I was first diagnosed, I experienced crying/laughing at the same time and couldn't understand.
It was literally my most damaging, isolating, humiliating symptoms. No one wants to sob uncontrollably, and/or cackle inappropriately at work or at the grocery store. No one else likes being around it. Nuedexta was my miracle drug; gone the first day I started taking it. (I didn't notice it for a few days. My guy is the one who pointed out it had stopped.)
Hi Aaron, I have rrms, 11 lesions, 1 optic neuritis back in 2016... a couple new lesions since then, but no symptoms or at least that I believe are ms related. Past 2 mri's are stable. Not taking DMT's.
So with all these rare symptoms and coming and going of them: how do I know if it's ms? Maybe I feel a bit more anxious for a week or so, then my left thigh cramps severely from time to time, etc...
If I describe it to my wife or a friend they say they get that too...
2nd question: will all lesions have some sort of an effect, even if it's subtle?
PBA is not just frustrating. It's humiliating. I've had it since before 2000 and was disability-retired before it could be effectively treated. My coworkers saw me as manipulative and thin-skinned. It stressed everyone out, and most couldn't understand that I had zero control over it.
I don't know if I would call it hallucinations, but it happens to me that when I'm particullary tired or stressed, I would see, moving shadows, people that it's not there... It lasts only for a second. But it can be scary sometimes. I had a period of time that was pretty bad and I was having these kind of episodes serveral times a day. Thankfully, it got much better.
Another thing that happens to me when I'm tired is that I don't get jokes. Whatever you tell me, I'm going to take it as face value. You can tell that you just come from having tea with a couple of aliens, and I'm going to ask you how did the aliens like their tea.😂
Medications can cause hallucinations too. Gabapentin is a big one
how do we get notified for your live sessions? I don't see a way to do this
I have hallucinations, at times I will cry for nothing to cry for
My Neurologist says it is not from MS
What about dreams? Can it effect dreams
Oh gosh, I laugh at the most inappropriate things. My poor grandkids
Oh the unconditional laughing😂 dumb crap makes me laugh like a kid
I've had moderate to severe tremors for many years now and it's easy to become frustrated over something that seems small. However, I sometimes go from 0-100 in the anger/rage department with very little external provocation. It's something I have no control over and it takes a while to get over. It feels very different from the kind of anger and frustration that result from my physical struggles. I haven't found any info about this but, if you are reading this, Dr. Boster or anyone else, is this a thing? Or am I just super maladjusted? (I mean, okay, I admit to being moderately maladjusted but come on...😁)
my most surprising symptom is 'no more MS', IT HAPPEND TWICE, WHILE I WAS TRYING TO WALK ON THE STEET, SUDDENLY ALL MS SUMPTOMS DISAPPEARED AND I WAS BQACK AT 100%, what a great feeling, it was like i was tied to heavy chains and suddenly they disappeared, sadly it only lasted for a few minutes in both times.
Wow! I've experienced that a handful of times too and it felt magical. Like you, it only lasted a few minutes. I thought I was the only one to experience that, so thank you for your comment!
It is such a beautiful feeling getting to feel like your old self again. Makes the hard times all worth it 🙏🏽
It's often in my dreams (not being sarcastic) but in my dreams I'm always walking long distances.
Same here!!! Lasted just for a couple of hours 😢
Dr Aaron, please please can your next video be about how neurogenic bladder issues are diagnosed. I have had emptying issues but today had a scan of my kidneys, bladder and uterus - normal. However, I still have a problem with urinary retention. But they did not test if my bladder was emptying today. I feel like my family think I am making it all up at this point - but I feel it's neurological
I get auditory hallucinations quite often. Sometimes it's music other times it's voices. Many times it sounds like someone talking through an old transistor radio
Great video... Social cognition is one of my biggest challenges with this disease.
Excellent and well timed video.
Thank you for touching on these psych symptoms that MS can possibly cause
Big hugs
2:38 I remember the Laughing fits I used to have way earlier in the disease course before I even knew I had MS. I mean me and my co-workers would be laughing about something and it was funny but not that funny and I will continue laughing pass the time of it being appropriate. Thank you Doctor Aaron for addressing this and happy Monday to you.
I haven’t been diagnosed but have been having trouble with vision and falling for at least the last 5 years. I’ve had dizziness and migraines for years but until I started falling and vision problems didn’t think anything of it. I live in Oklahoma and there are very few neurologists here. I’m going to have to probably go to another state. Wish I could see Dr Boster but not sure I can afford to go up there. Anyone have a good neurologist around OKLAHOMA?
I don’t have pseudobulbar affect. But I do avoid people like the plague. They don’t understand me and they never have. I believe that I’m on the autism spectrum but I can’t get testing from the VA. Add MS , Fibromyalgia and the fact that I just don’t think like other people, and I’m just weird. Ask anyone who knows me-I’m weird. Testing shows middle 90th percentile to 95th. I don’t think I’m really any smarter than anyone else. I’m just good at school.
How common are olfactory hallucinations - where you smell something that isn't there? I have it at least once a week and it drives me bonkers.
♥️♥️♥️У больных MS более тонкая нервная система, которая порушена осложнением. И любые маленькие симптомы затрагивают нервную систему. Даже резко закрытая дверь.
Мне помог ДопельГерц - магний + вит В.
Omg....this is a useful video THANK YOU SO MUCH!
Hi Doc. I have a question. I'm interested in trying Wellbutrin for depression, energy, and nerve pain as well as LDN for anti-inflammatory protection. Contrave, the weight loss pill, has both. Thoughts???
The missed social cues issue! Me!
Hi, and thanks for the information. Do you ever have patients that randomly pass out? It takes a couple days to recover but my symptoms are often improved afterwards. Thanks you.
My face doesn’t match my insides. Thank you.
What if you are feeling something that shouldn't be real, and no Doctors sees anything wrong?
I had pseudobulbar when I was first diagnosed, when anyone would call me or visit me in rehab I would start crying uncontrollably, luckily there was a nurse who knew what it was and could explain to me and my visitors what was going on. I have also had visual hallucinations, once they really got me, I thought it was a hallucinations but was actually a mouse.
Social ques happens in alot of issues ... including personality disorders as these are also rare symptoms of ms lol read a few articles that state histrionics is the most comon one in rrms patents .... outside of that lol even with only having rrms me and my partner have to meta communicate before a conversation sometimes cuz inhave a hard time reading when someone is talking to vent and if someone is coming for advice/assistance is fixing..... never can tell the difference so they have to start there conversation with me by letting me knwo so i don't come off like I'm argumentative or not caring grate video
Wow!!! Reach out to your doctor, ideally a specialized Dr
What about eyes watering like crazy? I don't feel like I'm crying but it's like I've had a bad allergic reaction but I'm not around my common allergens.
I have that as well. My Doctor said it was Sjogrens. I told Him I did not have dry eyes or dry mouth. He said that could still be dehydration.
A year later, I was told by another Doctor that I didn't have Sjogrens.
They are driving me crazy.
on occasion I have hallucinations even without mushrooms...kind of cool though to be honest