Michael's Apert Syndrome Journey at Gillette Children's
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- Опубліковано 30 вер 2024
- Since infancy Michael has been treated for Apert Syndrome at Gillette Children's. Shortly after Michael’s birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies.
Learn more about Apert Syndrome: www.gillettechi....
Apert syndrome is a genetic disorder caused by a mutation on a single gene. Thanks to his surgeries and treatments at Gillette, Michael is developing normally. His parents say he's a bright, happy child, with a delightfully mischievous personality. And he’s always smiling.
In 2014, Michael was chosen by Children’s Miracle Network Hospitals as the 2014 Minnesota Champion child representing Gillette Children's Specialty Healthcare. The Children’s Miracle Network Hospitals Champions’ program recognizes children, like Michael, who have triumphed despite severe medical challenges and brings attention to the important work being done at Children’s Miracle Network hospitals such as Gillette.
My son was also born with aperts and to all the parents that have children with aperts God bless you because we want nothing but the best for are children and Michael you keep fighting and stay strong God doesn't make mistakes he makes beautiful things like you 🙏👍
I love this kid, he has a awesome personality.
My son is 10 weeks old with apert syndrome we just has his first skull surgery yesterday. Thank you Michael forgiven me Strength
what an amazing young man. I too have a son with apert now 5.5. i often wonder what the world will think of him and his future. we love and admire him and feel his pain with every operation and hospital stay. he starts school next year and we are both excited and anxious for him. What will the others say, think, will they play with him, will they be nice to him and the questions go on without answers. for now anyway. your video gave me some calm in the storm to come.
i know he will have challenges but what kid doesn't. i know we are all different. i know the world is basically kind.
i know we love him so much it hurts. i just want to protect him from the negative. but saying all this the world is HIS oyster and he truly is the pearl. i know it will all work out for him and if there is a stumble we will be there to catch him.
BUT TRULY ISN'T THAT SAME FOR ALL OUR KIDS.
Hi JH! I have a serious question... Does this syndrome in general allow normal brain function?
My kid has apert syndrome too. God bless!
@@aan8977 Yes. One thing necessary is to get the surgeries in a timely matter so that the brain has room to grow and none of the structure (of the brain), is compromised.
This kids smile can light up a room. He's a true blessing.
Michael rocks! He needs his own UA-cam channel!
Will love to hear more about Michael amazing story , he is am amazing child
My mother was born with Aperts. I know for a fact Michael can have a full and wonderful life. You are so beautiful ❤️
Thank you so much for sharing your story! Great job Micheal Whatvavtrooper! My name is gailen Reynolds. The mother of Joshua Perry. My son is 42 years old last montgand was also born with Aperts Yes you do know as the room suddenly goes silent , when your expecting cheers? Josh is just an All star! He’s a dad fferrnt sort of fellow. He is the second of my 3 sons. So blessed and honored to have been chosen to be his mother! He does have a website . He taught himself to crafts ftom the book we sir let’s fit Dummy’s! I would love to be able to bring the 2 together one day!!it blows me away how much Micheal reminds me of Joshua back . And that beautiful sweet nature. My heart ❤️ busts burst into one big smile when I watched him. I miss my little boy! He’s still a sweetheart. Considering the journey he’s survived so far!!contact us anytime. My the Lord bless and keep you all in His loving armz
Hello my name is Lydicia from South Africa, I am truly inspired and incouraged by ur word last year October I gave birth to a boy who has apert syndrome we had no idea what it was about and me and my husband were very confused but after hearing that your son is now in his 40's give us hope that our little Raphael will also pull through considering him not having started his surgical journey yet. Can u please share a link to ur sons website please
He is soooo cute!
i have aperts syndrome and i use to be ashamed of my face of the way i do things in every day life my mom and my son also have aperts syndrone you know what it hurt like hell thinking that you are cute not knowing that you are different i mean you do things as a any other person butvat the end of the day i am still the same person i can still do what every one else can do but it is a little bit different i can go all day and talk about what i am going through but i realized i have to live my life day by day
Nicole please don't be ashamed. Even though you were born with this look how far you have come and will go in life. You may have to do things a bit different but you are doing awesome
L
@@nicolesmith1001
You guys rock! As parents! KUDOS TO YOU ALL!
Michael sounds like a great kid!
beautiful people.... they deserve so much more...
Awww! He is adorable. I just love him.
What a cool kid!
I like his parents' attitude and how they helped him have a positive attitude too. E.g. how they explained the purpose of each surgery so he understood.
My lil sister has apert and she is without a doubt the happiest person in the world
He's so beautiful!!! He is so smart too. You rock Michael!!!
Amen God is good...thank you LORD for giving humanity to know how and the desire to good like they did for this child. I pray every disability disappears in the solution
Awww, bless his heart! What a smile he has!!!! He lights up the room!!!!I love how you explain his surgeries to him. He’s in such loving hand with such great parents.
Yep, he is different, but he’s just perfect that way! Thank you for your inspiration little buddy.❤️
I also have an Appert syndrome brother and he's amazing in his own special way. We try to go him for surgery but we can't afford. But he's doing well today and very healthy. God bless you, Michael!
hi marriane how"s your brother doing? my daughter was diagnosed with apert syndrome too..but we still dont do any surgery coz shes just 3months old .
@@chadrickramos9360 how's your daughter doing now??
Michael is a Brave little boy. He is adorable and very intelligent. I just love his personality, he’s an inspiration! 🥰❤️🙏🏼👍🏼
My daughter was born today with Apert syndrome. This is the first video I'm seeing about this condition.. idk what to say honestly
Smart kid ,great parents
red buzzer
Really an inspiration for the rest of the world for being humble and appreciative of the health,we often ignore or take it for granted
God bless this amazing little boy and his family. His struggles seem so huge . . . yet he is so positive and so happy! I credit all that to his amazing parents and to his crazy, forward-thinking doctor. Your family's story gives me great strength and a huge smile of love and positivity. Wow!
Believe me homie ypu can make it.
what an awesome and adorable kiddo...God bless him
I love this young sweet 👦 he's very cute God bless you and your family to
A wonderful family....
I wish you health and best regards.
Poor kid!! May Santa brings you health n happiness
What a beautiful boy
i cried :') he has a great heart
❤
You have a bright future ahead, Michael!
why u lying
Why do you have the constant background music (noise) going all the way through this video? Turn it off and I might consider watching it again.
Ok. I love Michael! I wish him all the best. His parents are doing a wonderful job.
I too have a Michael with Apert Syndrome! Loved your video . Are you connected with the Fb group ?
God bless this family especially Michael and above all the doctors! He's one of gods special angel!
This is a wonderful story, i pray that he will enjoy his life and that he can find a real woman who will see past this.
Stay strong. Hugs.
Kool kid! 😎
A Warrior 💪
I hate how people say hes cute and beautiful fucking liars god bless you little boy you have a great heart!🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
Because a personality can’t be cute and beautiful?! Michael may look different but he has an exceptional outlook, his confidence and hope shines through. I wish nothing but the best for him.
you sound evil.
🤗👍🏻💕🌻🙏🏻🙏🏻
ياريت ترجمه المقطع للغه العربيه
المختصر : طفل مايكل سوا عمليه لراسه وعمليه تفكيك الاصابع.
Great people and story. This video would be a lot better without the background music, which very soon became obtrusive and intolerable and caused me to discontinue the video at about 3 minutes. I am capable of generating emotional responses to content without a soundtrack.
"we want you to be better" just sounded kinda harsh