SUNDAY COFFEE TALK - Impromptu Ask Me Anything Multiple Sclerosis
Вставка
- Опубліковано 1 чер 2024
- Sign up for the Monthly "Boster Corner" Newsletter: bosterms.com/get-boster-news/
**********************************************************
The Boster Center for Multiple Sclerosis accepts accepts new consults and is actively enrolling several clinical trials. www.BosterMS.com or call 614-304-3444 to schedule!
**********************************************************
AMA Multiple Sclerosis: COMMENT with your thoughts and questions below! I look forward to reading and responding!
***********************************************************
FOLLOW on Twitter: / aaronbostermd
FRIEND on Facebook: / aaronbostermd
SUBSCRIBE on UA-cam: / aaronbostermd
VISIT us on the web: BosterMS.com/
***********************************************************
NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
Two days in a row! Thanks Dr. Boster!
Timestamps:
3:54 - Strategies for managing chronic pain
12:15 - NEDA
12:41 - Remission
15:27 - Smoking things and MS
16:07 - DMT suggestions for people experiencing PIRA
20:55 - MS Attack vs Pseudo Attack
25:12 - Ethnicities and disease presentations
27:16 - Dr. Boster thoughts on BTK Inhibitors
31:45 - Ocrevus cost and alternatives
32:46 - Pregnancy and breastfeeding on Kesimpta
35:04 - Kesimpta dosing schedule
36:00 - Dr Boster thoughts on Zeposia
38:15 - Supplement or medication suggestions for MS cognitive symptoms
42:12 - The Boster Corner
43:21 - How do MS, NMO, and MOG differ?
56:40 - Starting DMT for RIS
Thank you for doing this!
That is heart breaking on River. Just lost my dog at 16 years of age. Heartbreaking….
I am really really sorry for your loss. Please, cherish the beautiful life you offered your doggy. He was happy with you and this is all it matters. ❤
How great to get a double dose of the Doc!
Yesterday and today.
#Sharingiscaring
❤
Yes have had chronic pain
Rewatch! I have bunches of chronic pain!! I appreciate you Dr Boster!!
Darn missed you again! Thank you Dr Boster always great to see you. You’re awesome 😁🔥🔥❤️🔥🔥🔥
You rock!
Yes to chronic pain.
This one I can hear!! Thank you!!
I have severe chronic pain from scoliosis surgery as a kid. I have a metal rod in my back and it has caused collapsed joints, pinched nerves, bulging disks, degenerative disease. This started back in 08. I wasn’t diagnosed with MS til 2017. Lesions were discovered back in the late 99-2000’s. I’ve been on pain management since 08. The MS pain is different. When both issues act up, it can be excruciating.
Wow. Just read your Dr Boster comment. Yours is 1st I've EVER seen 😳 that mentions spinal fusion for scoliosis. Me too. I'm 72 in 🍊 County (Southern CA). Fusion 1965, body cast 1 year. MS likely there 1967, but not diagnosed until 1998. Hope your pain is well treated & progression is small. Are you on a DMT?
Thank you!! 🧡🧡🧡🧡🧡🧡🧡
You are so welcome!
Ms does absolutely cause pain
MS hugs hurt like hell
My shrink put me on Trileptal for anxiety...its an anticonvulsant. Worked awesome for the anxiety but completely relieved my M.S. hug. When I stopped the drug, the hug came back. It's an option to try.
Yes they do...Im 53yrs young..Just switched from Kesimpta once every 30days to Briumvi infusion twice a year -FDA approved ..Just finished my 1st infusion 2 weeks ago..
rewatch! I have hoorific chronic pain! My pain doctor has me on cannabis and it greatly helps!
Hi from Ottawa Ontario Canada! I can hear you but my volume turned all the way up
Hi Dr Boster from Janine in Sydney,Australia.
I have the worst pain with the MS hug.Unfortunately I was put on opioids and drugs like Gabapentin,Lyrica which haven’t helped.
I have an unusual form of this type of pain-it is a severe pain which until recently (after 24 years of almost) I have had constant pain .
Drs have diagnosed Shingles, Costcondritis, but my neuro finally diagnosed it as Chronic MS Hug!
Have had a nerve block which didn’t help.
I also have the stabbing pain usually experienced with MS Hug but only when I get too hot or stressed.
Good morning from Wisconsin!!!! ❤
Where in WI, we are moving in a few months by the dells
I guarantee it causes great unusual pain.
Can barley hear you with my volume on high Doc. Thank you for all you do
I live in Kansas. I can’t drive for hours like I once could. I wish I was closer so I could see Dr. Boster for my MS.
One day after a procedure using anesthesia I had this rib pain. Couldn’t cough with out through the roof pain!!
Yes MS causes chronic pain! I have multiple lesions on my spine and brain and get electric shocks in my back and legs. Also get quite a lot of pain that almost feels muscular, but there’s a buzzy element to my pain so know it’s MS
Thanks for another AMA Livestream❤️. My sound is still quiet compared to other UA-cam channels. I can hear you if I turn my volume all the way up.
Good to know!
Love the t-shirt idea! Tried to get some merch when I was there last week, but sadly none was available for sale!
Working on it!
yes
Good morning from Orland Park,IL!
Im in Joliet
Doctor Boster, thank you for this video. I watch all your content and find the information very beneficial. My knowledge of MS has increased from watching your videos and has actually helped me when I talk to family and friends about my MS, and I can explain better about what MS is.
Replay-Same as Liam!! I acheived this type of remission as well-absolutely amazing!!
Thank you for taking my question, Dr Boster❤
MS hugs aren’t pleasant to say the least. Chronic pain is real and only those with MS can understand what this feels like. It is mind blowing some days!
🙏 for the chat!
Missy from Indiana, I love watching your videos
Good morning from Pennsylvania!
I don't have any pain with my MS, I have in the past and was treated with steroids and it went away.
And also I didn't see your poll
I can hear you from Africa in Zimbabwe
Question: can you speak about FND (functional neurological disorder) in MS. How do you get diagnosed?
Yes, I experience chronic pain.
good morning from Trenton Michigan
I feel for MS patients worked I. Research a d practice l love your work. I❤❤
I can hear you fine
Sound is good Dr.
Hi from Sacramento California, Pam
My gp told me that’s everyone my age has something in their mri, I had some Bell’s palsy in April… mri showed this and mild foci of the t2flair in the proximinal area…. Is this normals as he said? Do I need to get a neurologist? I’ve had random pains causing shortness of breath and tightness in my chest, nothing was found…. Ice pick in back near shoulder blade. Random spasms, occasional vertigo….
It’s my opinion that when you go online early and you haven’t spoken much or you were trying not to wake your family, you were speaking just too softly.
Yesterday and today I have had to turn the volume on my phone up to max to hear you.
Normally, you are loud and boisterous and i can have my volume about half ❤️
Cannot find pole
Hello from chicago
Pam from Sacramento California
OK total cat lover ❤ and all of gods creatures. Hot my cat fix! You are the bomb. Carol NP and ski patrol!
UCSF - DR OOMMEN IS AN MS SPECIALIST IN SAN FRANCISCO.
❤
Larry from Hamilton Ohio
I do have chronic pain
JJ here. So Cal
❤❤❤❤❤
❤❤❤❤
❤❤❤❤❤❤
Replay- what is best track for returning to disease activity after prolonged remission from Lemtrada research study!!
Ryan from Winnipeg
Am (supposedly), being treated at UCSF, but I do not have a Dx yet. :-( At the present time, there is a "burning, stabbing, pain in my R. scapula, near my C-spine! - Chris
What is it called pseudo when it's real? I think it should be renamed.
can you talk about the prevalence of strokes with MS?
I'm sad I missed the live
Dang, I missed yesterday and today. If remission is possible, why aren't we all just giving Lemtrada or Mavenclad from dx? Why play around with all the other DMT's and waste time and let irreversible brain damage to occur?
Edited to say I'm so sorry to hear about the loss of your sweet dog River. I know how much she was loved and will be missed by you and your family. She will be missed by all of us on your channel too. Thank you for sharing her with us.
What are your thoughts on Briumvi ? PML risk? 1:40
Is numbness and tingling in the hands & feet a transient deficit?
Hear ya but soft
Hi Dr B im having a hard time standing for more than 5 min can i consider this a flair?
I can hear you but weak volume wide open
Hi Doc, I take vitamins b12 and d3 and taurine. What else should I take?
Also on Kesimpta
strokes and MS?
Is this live right now?
NMO used to be called Asian MS and the used pheresis and IVIG etc .is that MOG now? Name changes drive me crazy. HEARD THAT LECTURE LIVE FROM STANFORD NP IN PERSON. TRYIMG TO TEACH MASSIVE DMERGENCY WITH ASISN MS SHE AN ASIAN SAID
I get Ms hugs add leg cramps, MS hugs in my hands, feet
💞❤🩹❣
Unfortunately dysesthesia is not in fact a scrabble word
I can hear you fine
Ryan from Winnipeg