I was told I have CLL.....now they say they may have found LPL Lymphoma Waldenstrams as well and that sometimes in can occur with CLL (rare) they are sending my marrow somewhere across the united states (Im in CA) for further analysis to be sure. Can it present itself with CLL?
Doctor , there is no cure for this type of lymphoma ??? I WAS DIAGNOSED with this cancer today . I’m disappointed for not having any reply to my comment !!! Thanks for the information on the disease!!
also I was 44 female when diagnosed, had rynads syndrome at 33, and I was having middle back pain since i was 28. I also had fatty liver since I was at least 18yrs. which my old doctor thinking and I was starting to show signs when I was 33. my anemia I had since my late thirtys and I had 2 embolisms one in each lung in 2008, that's when the blood showed my IGm was high. my lungs are really scared from the Waldenstrom, and my asthma. mostly from the cancer. if I don't get my IGg up it goes low ever month I get sinusitis infection, I will get lung infection. also I have asked the lymphoma web site and the other but have not received any information of what else to try.
I need to know a good Dr in El Paso TX you can recommend. also my IGg is always low, 265 is the lowest, I have had to get IGg. my glasses and rituxan did nothing to get it to go up, even after a year and half. also tried imbruvica, but that did not make the IGg go up either. the imbruvica game me to many stomach issues. made my IGm go down but nothing has stopped the cancer from effecting my IGg. any thing to try please help.
I was diagnosed with Lymphoplasmacytic Lymphoma and Anemia. Is Lymphoplasmacytic Lymphoma the same thing as Waldenstrom Macroglobulinemia? Thank you for your time.
Hi there, our Helpline team can answer your lymphoma-related questions and provide individualized support. At your earliest convenience, please contact them at 800-500-9976 or helpline@lymphoma.org.
Why is music added? It competes with the spoken content.
My.daddy was diagnosed on Tuesday. He starts chemo next week. My prayers for all
Very helpful, but background music makes it difficult to listen to.
we just set up one support group for WMers in China. very useful materials.
Yao Roger enjoyed your info. Hated the background music
I was told I have CLL.....now they say they may have found LPL Lymphoma Waldenstrams as well and that sometimes in can occur with CLL (rare) they are sending my marrow somewhere across the united states (Im in CA) for further analysis to be sure. Can it present itself with CLL?
Doctor , there is no cure for this type of lymphoma ???
I WAS DIAGNOSED with this cancer today .
I’m disappointed for not having any reply to my comment !!!
Thanks for the information on the disease!!
also I was 44 female when diagnosed, had rynads syndrome at 33, and I was having middle back pain since i was 28. I also had fatty liver since I was at least 18yrs. which my old doctor thinking and I was starting to show signs when I was 33. my anemia I had since my late thirtys and I had 2 embolisms one in each lung in 2008, that's when the blood showed my IGm was high. my lungs are really scared from the Waldenstrom, and my asthma. mostly from the cancer. if I don't get my IGg up it goes low ever month I get sinusitis infection, I will get lung infection. also I have asked the lymphoma web site and the other but have not received any information of what else to try.
I need to know a good Dr in El Paso TX you can recommend.
also my IGg is always low, 265 is the lowest, I have had to get IGg. my glasses and rituxan did nothing to get it to go up, even after a year and half. also tried imbruvica, but that did not make the IGg go up either. the imbruvica game me to many stomach issues. made my IGm go down but nothing has stopped the cancer from effecting my IGg.
any thing to try please help.
What causes Waldenstoms? Could farm pesticides such as the spraying GLY-4 weed killers?
round up
I was diagnosed with Lymphoplasmacytic Lymphoma and Anemia. Is Lymphoplasmacytic Lymphoma the same thing as Waldenstrom Macroglobulinemia? Thank you for your time.
Hi there, our Helpline team can answer your lymphoma-related questions and provide individualized support. At your earliest convenience, please contact them at 800-500-9976 or helpline@lymphoma.org.
Yes it does.