You're not alone (and this goes to all those who suffer from mild CP). One way or another, there will be some people who aren't understanding. To them, it's not enough that we are the way we are. That's ashame. We're in the 21 century and what have people accomplished in understanding one another? It's very sad, so sad. Every morning, we have to face our physical challenges, and physical pain. Muscle pain is a battle for me. I can get terrible attacks. I've even ended up in emerge several times. We don't want pity, we want understanding and compassion. On a much lighter note, Happy New year to all!!
I was born with mild cerebral palsy on right-side and living in between both worlds is exactly how I feel. You couldn't have explained it better. It's as if you have to have proof that you have a disability.
I really enjoyed your video, I'm 55, I was diagnosed with a mild case of CP when I was around 2, I mainly affected my balance and motor skill and caused me to have a erratic gait. As I got into my 30's and 40's I started having issues with osteoarthritis in my knees, lower back and in my hands and fingers, and also became an amputee on the right leg, first half the foot then 10 yrs later below the knee. I used a cane for short distances and a rollator around the house, when shopping I always use a grocery cart.
I am 53 with mild CP in both limbs. That's been a long road. Since I've got older I have more chronic pain like right now as I'm typing this I'm in severe sciatic back and leg pain. And the recent years I've got more inactive which is my fault and now I'm regretting it because now I'm on a walker. I hate it the crushes my self-esteem. This is happened couple years ago. Next week I'm supposed to go back to therapy. The last therapist I saw he said if you do your exercises like you're supposed to at home and come for therapy you will be off your walker in 3 months. So that is my goal by the end of summer. I'm glad I came on UA-cam and looked up other people that have mild cerebral palsy I never have done that. 💜🌹
No way you couldn’t of said it better I also have mild to moderate cerebral palsy for nearly 41 years mainly in both legs And scoliosis and kyphosis I am to normal to be disabled and too disabled to be normal Been the only person to apply for a apprenticeship and still got rejected despite having all the qualifications and more Can always find heaps of labouring jobs though Got told by the government agency that is supposed to help people with disabilities in Australia NDIA/NDIS i dont have a permanent disability The last specialist i seen said just because he is not very tall doesn’t mean he is disabled ???? There is definitely massive discrimination when it comes to mild disabilities Thanks heaps for letting me know there’s people like me out there ❤
I have CP on both my legs. I can walk, but feel ashamed since people always staring at me since i walk with bend knees. Life isnt fair but we gotta stay strong
I have left side “minor” hemiplegia cerebral palsy since birth and I’m 18 right now and I’ve been worried about job security when I get older because I work at a McDonald’s right now part time (because the strain on my left side is massive compared to the barely any strain on my right side) but I know I can’t stay there forever because eventually when I no longer have my parents that helps me out I’ll be left in a job that won’t pay the bills and I’ll be stuck in a situation that will be very scary. As you said in the video, interviewers will discriminate against you and make up an excuse. Also I’m scared of going into a competitive job market that pays well and that’ll have plenty of other candidates because they’ll just pick the next person without a disability and tell you an excuse. That’s all I wanted to say you did a great video and I hope you are doing well.
I am 68 years old left side of my body affected by the CP worked over 25 years in food and retail my gait is affected can t walk straight plus don t loke being stared at I use a cane and walker I live in bothworlds It is getting rough as I grow older but trying
This is true. When I go to the doctor and say I have mild CP and I need to get some muscle relaxers they look at me like I just want pills. It's like no you don't seem to get it!! 💯💯
I definitely understand this. I’m 43 and have mild CP. My left leg is the only part of my body affected. I have a sister that also has CP her legs are affected by it. She’s so awesome and she’s the smartest person I know. So I’ve seen first hand how I’m not disabled or “normal “ enough. Keep your head up and remember everything that happens is going to make you a stronger and compassionate person.
Exactlyy!! plus as a hemiplegia you get denied a lot of services or accommodations cause "your not disabled enough" I have had those experiences before... Example, I got denied with access ( A transportation service for pple with disabilities ) even though I need it because I am not in a wheelchair ... ugh pisses me off
Specialist doctors neurologist Even misdiagnosed with generalised primary epilepsy for 18 years over one seizure in my whole life despite eeg reading saying polyspikes at certain frequencies So photo sensitive epilepsy I believe just to mess with my license I believe and they were helping me And keeping society safe by misdiagnosing me ????????? The medical community has been the most discriminatory of any community/profession in society in my experience I haven’t had any really decent medical help since 1991 about 30 plus years Don’t get me wrong I realise how lucky i am Just had to do it myself It’s hard seeing people that are more able bodied than me get help for some silly reason No wonder people fake illnesses
Thank you for making a video on this, it’s something I’ve struggled with this my whole life. Trying to find a place where I belong, since I fall in between both worlds. As weird as it sounds, I’m glad I’m not alone because I’ve been ‘alone’ most of my life.
I totally agree I’m 50 with mild cp and I been rejected from jobs because of it! My left hand and leg is affected by cp rest is normal! I do feel same way when you want to do normal things but feel like not normal enough then doing special needs things isn’t enough too!
Huge hugs to you lovely. I never thought of mild CP as feeling like some have one foot in one world and one in another, but what I can tell you is those in the “normal” world are not even deserving of your presence if they can’t see your worth, because you are worthy more than most “normal ” people to what what ever job you want and do what ever sets your soul on fire. My 18 month old has just been diagnosed with Left Hemi CP
Thank you sister! We understand your feeling and difficulties facing every day with different people.. Please just stay strong and people can criticize or talk about any one any way weather one has best thing of the worse thing. God bless u. Love and keep strong and peace.
I was born with mild cp on my left side I am fortunate to be at a university that cares about disability services I can walk I even was a track athlete in high school and, through some of my college career so far I can be the life of the paty on a Saturday night but, I sometimes feel undesired in terms of love. I can get close to a woman but, I always get told that I'm a close friend and, the connection stops or stays at that point. I want to be a sweet man give her space I am not just looking for a quick fling I can go on a date do most things other guys can I just want someone who loves me for me I've really struggled trying to date with mild cp.
Hi my name is Jenna I have very mild cerebral palsy but I have it more in my arms and shoulders then my legs and I wish I knew what kind I have?? Just bc we are disabled we are still able
You're not alone (and this goes to all those who suffer from mild CP). One way or another, there will be some people who aren't understanding. To them, it's not enough that we are the way we are. That's ashame. We're in the 21 century and what have people accomplished in understanding one another? It's very sad, so sad. Every morning, we have to face our physical challenges, and physical pain. Muscle pain is a battle for me. I can get terrible attacks. I've even ended up in emerge several times. We don't want pity, we want understanding and compassion. On a much lighter note, Happy New year to all!!
I was born with mild cerebral palsy on right-side and living in between both worlds is exactly how I feel. You couldn't have explained it better. It's as if you have to have proof that you have a disability.
I really enjoyed your video, I'm 55, I was diagnosed with a mild case of CP when I was around 2, I mainly affected my balance and motor skill and caused me to have a erratic gait. As I got into my 30's and 40's I started having issues with osteoarthritis in my knees, lower back and in my hands and fingers, and also became an amputee on the right leg, first half the foot then 10 yrs later below the knee. I used a cane for short distances and a rollator around the house, when shopping I always use a grocery cart.
I am 53 with mild CP in both limbs. That's been a long road. Since I've got older I have more chronic pain like right now as I'm typing this I'm in severe sciatic back and leg pain. And the recent years I've got more inactive which is my fault and now I'm regretting it because now I'm on a walker. I hate it the crushes my self-esteem. This is happened couple years ago. Next week I'm supposed to go back to therapy. The last therapist I saw he said if you do your exercises like you're supposed to at home and come for therapy you will be off your walker in 3 months. So that is my goal by the end of summer. I'm glad I came on UA-cam and looked up other people that have mild cerebral palsy I never have done that. 💜🌹
My daughter was just diagnosed. I’m here learning about the difficulty she is going to face.
No way you couldn’t of said it better
I also have mild to moderate cerebral palsy for nearly 41 years mainly in both legs
And scoliosis and kyphosis
I am to normal to be disabled and too disabled to be normal
Been the only person to apply for a apprenticeship and still got rejected despite having all the qualifications and more
Can always find heaps of labouring jobs though
Got told by the government agency that is supposed to help people with disabilities in Australia NDIA/NDIS i dont have a permanent disability
The last specialist i seen said just because he is not very tall doesn’t mean he is disabled ????
There is definitely massive discrimination when it comes to mild disabilities
Thanks heaps for letting me know there’s people like me out there ❤
I have CP on both my legs. I can walk, but feel ashamed since people always staring at me since i walk with bend knees. Life isnt fair but we gotta stay strong
I have left side “minor” hemiplegia cerebral palsy since birth and I’m 18 right now and I’ve been worried about job security when I get older because I work at a McDonald’s right now part time (because the strain on my left side is massive compared to the barely any strain on my right side) but I know I can’t stay there forever because eventually when I no longer have my parents that helps me out I’ll be left in a job that won’t pay the bills and I’ll be stuck in a situation that will be very scary. As you said in the video, interviewers will discriminate against you and make up an excuse. Also I’m scared of going into a competitive job market that pays well and that’ll have plenty of other candidates because they’ll just pick the next person without a disability and tell you an excuse. That’s all I wanted to say you did a great video and I hope you are doing well.
I am 68 years old left side of my body affected by the CP worked over 25 years in food and retail my gait is affected can t walk straight plus don t loke being stared at I use a cane and walker I live in bothworlds It is getting rough as I grow older but trying
This is true. When I go to the doctor and say I have mild CP and I need to get some muscle relaxers they look at me like I just want pills. It's like no you don't seem to get it!! 💯💯
I agree 100% I have right hemi and being in between able bodied and disabled enough is a perfect description
I definitely understand this. I’m 43 and have mild CP. My left leg is the only part of my body affected. I have a sister that also has CP her legs are affected by it. She’s so awesome and she’s the smartest person I know. So I’ve seen first hand how I’m not disabled or “normal “ enough. Keep your head up and remember everything that happens is going to make you a stronger and compassionate person.
Thank you for your kind words!
Exactlyy!! plus as a hemiplegia you get denied a lot of services or accommodations cause "your not disabled enough" I have had those experiences before... Example, I got denied with access ( A transportation service for pple with disabilities ) even though I need it because I am not in a wheelchair ... ugh pisses me off
Specialist doctors neurologist Even misdiagnosed with generalised primary epilepsy for 18 years over one seizure in my whole life despite eeg reading saying polyspikes at certain frequencies
So photo sensitive epilepsy
I believe just to mess with my license I believe and they were helping me
And keeping society safe by misdiagnosing me ?????????
The medical community has been the most discriminatory of any community/profession in society in my experience
I haven’t had any really decent medical help since 1991 about 30 plus years
Don’t get me wrong I realise how lucky i am
Just had to do it myself
It’s hard seeing people that are more able bodied than me get help for some silly reason
No wonder people fake illnesses
Thank you for making a video on this, it’s something I’ve struggled with this my whole life. Trying to find a place where I belong, since I fall in between both worlds. As weird as it sounds, I’m glad I’m not alone because I’ve been ‘alone’ most of my life.
Halla Jones thank you for watching! You’re definitely not alone. There’s more of us out here than you may believe!
I totally agree I’m 50 with mild cp and I been rejected from jobs because of it! My left hand and leg is affected by cp rest is normal! I do feel same way when you want to do normal things but feel like not normal enough then doing special needs things isn’t enough too!
I'm so mild I'm almost 36 and just diagnosed myself! I've been copping it from everyone for decades and have only just worked out why!
Huge hugs to you lovely. I never thought of mild CP as feeling like some have one foot in one world and one in another, but what I can tell you is those in the “normal” world are not even deserving of your presence if they can’t see your worth, because you are worthy more than most “normal ” people to what what ever job you want and do what ever sets your soul on fire.
My 18 month old has just been diagnosed with Left Hemi CP
Awww, thank you so much for your kind words!
Thank you sister! We understand your feeling and difficulties facing every day with different people.. Please just stay strong and people can criticize or talk about any one any way weather one has best thing of the worse thing. God bless u. Love and keep strong and peace.
I get what u are saying I have mild cerebral palsy it like u don’t. In anywhere
I have a old school friend who has full cerebral palsy and she has a walking frame
I was born with mild cp on my left side I am fortunate to be at a university that cares about disability services I can walk I even was a track athlete in high school and, through some of my college career so far I can be the life of the paty on a Saturday night but, I sometimes feel undesired in terms of love. I can get close to a woman but, I always get told that I'm a close friend and, the connection stops or stays at that point. I want to be a sweet man give her space I am not just looking for a quick fling I can go on a date do most things other guys can I just want someone who loves me for me I've really struggled trying to date with mild cp.
I finally agree with you,!!
Nice that u made a video of how u feel as my daughter suffers same condition n by ur video I can make out how she feels
Hi my name is Jenna I have very mild cerebral palsy but I have it more in my arms and shoulders then my legs and I wish I knew what kind I have?? Just bc we are disabled we are still able
i have cp but i'm in a wheelchair