Hello i have just finished 15 session of radiation 20 More to go but i feel weak i have ulcers I can't poop properly , im only asking my good Lord to give me strength to finish this journey strong ❤
Praying for you Martha! Psalm 91 - ”If you say, “The Lord is my refuge,” and you make the Most High your dwelling, no harm will overtake you, no disaster will come near your tent.“ Psalms 91:9-10 NIV
Radiation Therapist here ( 20 years experience) and former breast cancer patient who also received radiation from my radiation friends. I agree with most of what Dr. Amy stated but would like to clarify about the ointments. Do not have any ointments, lotions or skin creams of any kind on your skin prior to getting your radiation treatment. This will make your skin reddening worse. A few more tips would be: Keep the area getting radiation exposure out of the sun. You do not want to get a sunburn and then get radiation. For breast patients getting radiation, do not wear deodorant under the arm you are getting treated. You can wear a natural, aluminum free deodorant if your doctor approves it. Metal tracings in the deodorant like aluminum, can interact with the radiation and cause your skin to breakdown. Part of our job as a therapist is to keep an eye on your skin and we will grab the doctor to look at it if needed or if there are concerns. Most places where you receive radiation you will see your radiation oncologist once a week to check in with you and see how you are doing. He/she will also check your skin at this time. Good luck to you all. ❤
That what all doctors from some of the best cancer centers in the world recommend! NOTHING, not even oily shower gels, no creams, especially no ANY oil, during radiations! After the last treatment you can use as much but nothing before the last one.
@@JGalegria Thanks for your opinion. As with any hospital facility and specialized department, each physician has their own way of treating and what they allow and don’t. Many radiation departments in the United States don’t allow any cream or lotion on the skin because it can interfere with the radiation and make skin irritation worse. I’ve been a radiation therapist for many years and even when I was a patient receiving radiation in 2022 at a different facility where I worked, they also didn’t allow any cream, lotions, or deodorant on your skin before receiving radiation. Certainly, Australia may have different protocols and creams they allow and that’s ok. I’m simply stating what’s “typical” here in the states. As a well seasoned radiation therapist, I am simply sharing my opinion on here of what I have learned and seen in the clinic.
Receiving 41 rounds of radiation no joke. Do not use any type of cream/ointment prior to and during treatment. My oncologists recommended using non-scented cream ~30 minutes after. I used cream they provided, later CeraVe moisturizing cream. Very important to keep area well lubricated. Drink loads of water, eat what you can and when. Do not get in sun and no pools. I was not able to eat, eventually could not drink water-very sick. Prepare yourself mentally and physically.
I was told by my radiation oncologist that you should not use any lotions prior to your radiation. I used lotion only after I had my radiation and then twice after that each day @@JGalegria
Thank you for a great video! I'm currently just finishing up 5 weeks of radiation (3 more sessions left) and would recommend that anyone going through radiation keep up with their exercise program. I work out (strength training and cardio) about 5 days a week and haven't experienced any fatigue. I read that this was a great way to limit the fatigue and I can attest to the fact that it WORKS!
@@Elaine-w2s I'm a radiation therapist and yes you can shower. Depending on how your marks are applied, for instance we use waterproof stickers to cover permanent marker and just ask pt not to scrub directly on their marks. Honestly being that you are likely being treated daily, if you do happen to lose a mark, I personally always tell pts not to stress too much about them. We can always touch them up and take images to ensure you are aligned correctly. You have enough to worry about! Each center obviously has their own way of doing things, and they will explain everything to you thoroughly on your first day. Try not to stress too much, I know it's easier said than done... You will get through it and before you know it, this will all be behind you. Sending you lots of positive vibes, strength and prayers!!
I had the 3 weeks of more intense radio therapy vs 5 weeks. I used the cream they gave me after treatment and before bed. 3 times on weekend days. My breast changed color but never had itching or pain. I feel it was do to being faithful with the cream . Also wearing a soft fabric sports bra helped. Felt tired once in a while. Eating properly also helped.
I had 35 treatments. And they were brutal. Lost over 50 lbs of weight. Could t swallow let alone eat. So i pushed through. I had nasopharyngeal cancer and spread to my lymph nodes. Skin falling off. But healed rather quickly. Its been 2 years since radiation and chemo. Have minor swallowing problems and my teeth have more cavities.
Wow that's awesome. I just found out the news today that I will need 30 treatments for 6 weeks. I had a malignant mass in my sinuses which is very rare.
Rectal cancer here. I'm about 6 months post ileostomy surgery. I had 7 biweekly sessions of FOLFOX, then proceeded to 28 (6 weeks) m-f session of IMRT. The worst part of radiation therapy was having to wear a clunky chemo pump m-f for 5FU. I guess I got really lucky. I didn't see any side effects from radiation until the last few days. I then developed a red rash in the areas they radiated. It wasn't even in time to address it with the Dr, and not bad enough worry about it now. I did get fatigue in the last couple weeks. I thought it was the chemo. The fatigue hit me any time I engaged in strenuous activity. I resumed wakeboarding and foil boarding about 3 1/2 months after surgery. In the last couple of weeks it became apparent that I would get exhausted after a short time. Now I just need to wait and see what other problems I may develop from the radiation. I'm dealing with mild neuropathy from the chemo. Hope that goes away. I figured I would share my story to give others hope that it is possible that radiation can be pretty easy in some cases. Hope I'm not speaking too soon.
I had a friend use emu oil during radiation. I had brachytherapy for my breast cancer and would recommend it for anyone that qualifies. One day for catheter insertion - I had 19. Then 8 fractions in 4 days. After the last treatment the doctor just pulled all of the catheters out at the same time. Lots of rest during the week.
❤Was diagnosed with lung Cancer in 2022 2023 33 Rounds of Radiation treatment. There was day's I couldn't get off the couch 😢I had a VERY hard time swallowing and still do. I was stable for a little over a year and now it's growing And I'm doing Chemotherapy every 21 days until December 2024 Until I see the Surgeon 😇🙏 And I thought I did all the Research. We can NEVER DO ENOUGH RESEARCH. NOW THAT MY RADIATION TREATMENT IS OVER. I wish I would have just went for the Surgery. Also from what I heard It makes Sergey harder for the Seegon 😢 The things I wish I knew 😢 * I'M NOT A DOCTOR OR NURSE OR HEALTH CARE PROVIDER JUST ME SHARING MY STORY AND EXPERIENCES 😊
My 30 day radiation for colorectal cancer went well until the final week. the burning became so painful and increased for the next few weeks. it was unbearable. now, 2 months later, I am experiencing radiation induced bone breaks. pelvis and tailbone. I'm in chemo now and the combination of chemo and the pain from the breaks has made me very discouraged and ready to call it quits. only 2 more chemos to go. oxaliplatin and then folfox in a pump for 48 hrs. my bloodwork says that I'm handling it well. I have a healthy appetite at least! I can barely walk even with a walker, take massive amounts of Tylenol and ibuprofen together but the pain is excruciating. until this happened I was continuing to work, walk my dog in the woods, garden, dance...you get it! now I feel like the oldest woman on the planet and really wonder if I'll ever get back at least some of my life. trying to stay positive and optimistic, but I don't like what these treatments have done to me.....but I like your videos and advice...
I finished 30 treatments (6 weeks) last week. It is no joke! There was no marking. It was all done with cameras/laser lights. It’s now peeling and sensitive ( hurts to wear a bra and hurts not to wear it) 😅. Some people don’t realize how exhausted you are.
Ikr im very exhausted i have finished 4 weeks radiation now 2 weeks are left I have lost my everything I have ulcer in my throat and i can't swallow food I also lost my eyelashes 😢 But i pray to God that nobody should get this disease it destroys your mental and physical health Sending love to all the warrior which are going through the treatment❤❤
@@Aniya.qewsydr your hair will grow back, even your eyelashes! Chk your blood tests to see if you are Vit D, Iron, or Magnesium deficient. Any of those will make you more tired or weaker. Hang in there-- it does get better!!!!
The radiothrapy department used marker covered by a small round, clear bandaid. Was urged to use a homemade green tea spray after treatments. ( At least 3 times ). Ladies. Not only a super soft bra. But take yarn and reduce the width of your bras side under your armpit. Your skin is super fragile & sensitive. Guard yourself from injury.
Radiation treatment in the uk. They do not hydrate you, or even mention you need to stay hydrated They do not recommend any moisturiser but do say to moisturise your skin after. They do not explain the Importance of diet or protein I was not sick during the treatment and my skin showed no sign I was having treatment but the week after it was finished ( I was in everyday for a month for treatment) the exhaustion hit me and I was totally wiped out for months after and needed to rest often during the day, and my skin around my nipple got a sun burnt look and breast got very sore.
one thing is not covered in this video. I had 28 rounds of radiation after a lumpectomy, and all the skin burned off of me from my arm pit, the right side of my breast, down to under my breast. It was like a 3rd degree burn. the pain was like nothing I've ever had. I had to put Silvadene cream for severe burns all over it, and then non stick large bandage pads. could not wear a bra for months until the skin came back. When I went for my follow up 3 months after finishing the 28 rounds for the stage one grade one Invasive ductal carcinoma, the new Radiation Oncologist told me, (the one I had retired right after my treatment) that there was no reason to do 28 rounds, and cause all that damage. That given how tiny the lump was, 5 very targeted sessions would have been sufficient. Turns out doing 28 rounds was "old school". Don't be afraid to ask questions, get second opinions and research. Prayers for every one going thru this, may you heal quickly and completely.
I brought up nutrition questions and hydration to my RO, was told it didn’t matter. On my own I researched a diet for healthy skin and focused on protein. These were test questions that he failed big time. I also asked for an idea of a lotion with no alcohol, he had none and staff refused to help find one. I was on my own but ended up with the healthiest radiated skin my PS worked with doing my own thing, including making my own organic salve. Was not well liked but had good results. Yes, my care was switched to someone else for many reasons.
Good on you for advocating for yourself and not just backing down when they couldnt give you answers. I wish more people would do this.. keep those buggers on their toes.
I just had targeted radiation to the Omentum for Ovarian cancer and it was so hard. It was 5 sessions every alternate day but it is much harder than chemo. I struggled to just get through my last session. I have a lot of nausea, fatigue and pain near my belly button where they did targeted radiation. 😞
Radiation was a booger! Sooo much more on my body than chemo! I had 10 rounds of whole brain treatment. Im almost 3 weeks out. I have no hair, lost more than during chemo, and NO TASTEBUDS!
Have your taste buts returned I lost 25 lbs and was already trying so I look horrible I feel good but I just want the dry mouth and tastebuds to return and they are I can taste again but the dry mouth and weird taste make it hard to enjoy food. Help!!!!
Radiation Therapist here. Radiation to the brain does not cause changes to your taste buds. Radiation can cause fatigue in all areas that we treat, although for the most part, radiation is site specific. Brain radiation can cause you to lose your hair, but it won’t cause changes in your mouth. Your taste bud issues are most likely from chemo as I had this as well.
@@amya9597I'm having taste loss and mouth sores. An area right below my clavicle is the area being treated. My skin is all brown and cracked mainly on the neck right side. I also have red spots that look like bug bites that's an over in my neck and back of neck. My radiologist says "that area isn't even being treated." I didn't have the issues until radiation though. Sorry TMI but I can relate to the no taste. (And so hard to swollow!)
I had chemo & about 3 rounds of radiation to my leg after the tumor was removed in 2016. Now, in 2024 I have lymphedema in my leg that the doctor says won’t go away.😢
@@lisbeth6911lymphedema can be treated. Call the Am. CancerSociety in your state or Google lymphatic massage therapists. Most Drs know nothing about lymphedema.
NOW I find you!! I am so sick, in so much pain, so weak and so exhausted that I am in shock. Add this to undertreated psoriatic arthritis and you have 1 big mess. (Oh! Add severe chemical sensitivity to the mix). I'm always so positive, I can do this but not this time. I am just sick. Thank heavens yesterday was my last session. I figure 3 more days to recover from last trip into medical facility (mcs issue) then maybe just the post tx recovery. I told my friends that I've put Pollyanna Linda in a medically induced coma to keep her away. Positive thinking is a good thing, but I believe it's limits have been tested..
Hello Dr. Amy please reply my question i am 22 yrs and i get only 1 ct scan of appendix and ct scan reports are normal but i am very stressed and worried about that ct scan cause cancer in future please tell me how do i detox my body and keep safe from ct scan side effects
OK so what about the damage that can be caused internally like how to help prevent damage to the heart and to prevent lung cancer? Why is that never talked about.
That's the part that has not been mentioned in few videos that I have watched. Radiotherapy is my mums next line of treatment @ 68 but the surgeon have reservation about that. Furnish me with any information please, we need to take an informed decision
Because they don't listen to patients so they've never had it and they don't tell you anything you notice they just tell you like a little bit and they always say oh none of my patience ever had any of these side effects but they only give you like one side effect meanwhile the list goes on and radiation just keeps on killing keeps on going for years and years and years. And then you know it's so funny I told him I had thyroid disease oh don't worry about don't worry about it until you left breast yet right let's breast and my lymph nodes in the auxiliary notes so after you know I had a lump of nodule so no they didn't want to check anything. They don't tell you crap I wish the hell I knew about these podcasts and everything else
I had a malignant mass in my sinuses, which is rare. I had an appointment today with the Oncologist and I will have 30 rounds of radiation for 6 weeks. I had my surgery 3 weeks ago, and Im doing well. My MRI didn’t show anything, however, they want to make sure they are killing the cancer cells.
What about later on? I mean years later, when the area that was "cooked" turns into another kind of cancer? What about the boils that burst and bleed, burst and bleed, burst and bleed? Until not even a thick, Kotex can contain it. What about when your whole chest looks like it has been scooped out by an ice cream scoop? But it spreads and spreads and keeps spreading?Finally, the angiosarcoma apreads to an organ, and you pass away 15 years later? This is what happened to my mom. Why don't we talk about that?
Oh sweet girl I am so sorry that happened and you had to watch that. God bless you. I hate cancer it has claimed 5 immediate family members from 2015-2020. And I now have throat or larynyx I caught it in a early stage 2. I'm praying and have already went through my radiation treatment. I wish they'd find a better treatment and a real cure. God has blessed me with a certain peace about it. But I'm 50 and have 5 kids that are very bonded to me my two youngest are 12 and 15. Too young to lose me. My three oldest kids have already lost their dad so they're terrified.
Im so sorry. my grams went thru something similar with stomach cancer radiation treatments. thankfully, cancer treatment has come a very long ways in the last 20 years.. much more targeted therapies that destroy less of the body along with the cancer. I feel for you.. my mother has lung cancer.. our first visit to her oncologist is next week. im terrified. hugs to you for what you went thru.
Hi Dr first of all thanks for the awesome video. I did radiation on my right breast 11 years ago for 32 days and believe or not I felt great, no tired and my skin was awesome. I applied only aloe Vera many times a day. One thing is that I believe most of people maybe do Not know is that the radiation makes your breast shrink and became smaller than before that is a good thing and now even the team stating that I do not need a radiation at this time on my left breast I have an appointment with the radiation Dr to see if I need a radiation or not. Good luck to everyone and have a great day.
What if you decide not to rub any sort of ointment, cream, anything at all, leaving the skin dry till the treatment is over, is it gonna be an issue?? Secondly, I thought if your daily sessions are short, it means you have minimal exposure and the side effects might likely not appear.
The hospital food is such small portions and dire. Ive been eating out good food around the city but its not easy to get good home food when I'm 3 hours from home.
Hello, thank you for this informative video. I just had my 3rd radiation and start to experience seeing flashes of light during treatment, has anyone also experienced this? Is this normal?
I was "lucky". NEW protocol for my kind of breast cancer: Only 5 days of radiation‼️ I finished a week and a half ago. VERY tired....I had Long Covid for 21 months - EXHAUSTION was a major symptom - and right now, I don't know if my exhaustion at this moment is from long Covid or from radiation???
Please doctor i have a a non hodgkin lymphoma and I just hade both Chemotherapy and radiotherapy for 5 to 6 months And from that time i clould not eat or drink at all Please i am begging 🙏 you I just need to know If there is a table for apatite that make me eat Because food tasting 😔 😟 really bad like salty or sour
Magnesium citrate is good for regulating the bowels and you must take a good probiotics! I market a very effective one! Lots more to know about nutrition as well!
Is it not good for someone who is going on therapy (colorectal) to have cough and colds but not because of sickness but because of being exposed to the cold breeze outside the house late? Hoping you could share your thoughts/feedback. Thanks!
my physiotherapist mentioned a film called mipetal and said it can be put on for the whole duration of the treatment and her breast cancer patients all have less burning using it. Do you recommend using it or 👂 of it?
@@adrianavaca2417 not sure about my heart ( already had issues ) but I’m not the same since . Hate wearing clothes I’m in such pain in that area through to my back
DR. AMY, MY DAUGHTER WHO IS 45, HAS DONE THE INFUSION/CHEMOTHERAPY SINCE LAST YEAR 2022 & 2023, FOR SARCOMA METASTATIC CANCER. AND NOW THIS YEAR 2023 HER FOUR STAGE CANCER HAS SPREAD TO HER LUNGS, ONE IS 10CM & 5CM IN SIZE, WILL THE RADIATION CURE IT?
I have a sarcoma called leiomyosarcoma in my left ankle. Radiation has been a nightmare. 6 to go,but my foot looks like it's been in a fire. Can't walk. Sarcoma are rare cancers,doesn't respond to radiation or chemo,so don't know why they use it,guess it's all they have then surgery. But I know survival rate is very low qirh these cancers,why I am thinking about not being sick anymore from tge treatments that won't help anyway. I think I am done. I may have cancer,but I felt fine until they started to poison me with radiation. They're using the highest dose on me,tho pet scan shows no tumors anywhere else right now,but that can change tomorrow, for it travels thru blood stream not lymphatic system. What few stories I found out there,even after doing everything, even surgery it comes back. I really didn't want to go thru this,my family told me I had to try. For what? Waste precious time I could be enjoying life instead of Dr's and treatments everyday. An it's just the beginning. Make memories while you can. You're gonna have to be strong so she can. Many prayers for you both.
Can those creams be used on the head? I had radiation on my left temporal lobe. I finished radiation Nov. 2022. Will the cream still help? I lost some of my hair.
Hello i have just finished 15 session of radiation 20 More to go but i feel weak i have ulcers I can't poop properly , im only asking my good Lord to give me strength to finish this journey strong ❤
Praying for you 🙏
I’m praying for you and with you. I’m having my breast cancer lumpectomy soon & am researching all after care.
Praying for you.
You got this 🙏
Praying for you.
Praying for you Martha! Psalm 91 - ”If you say, “The Lord is my refuge,” and you make the Most High your dwelling, no harm will overtake you, no disaster will come near your tent.“
Psalms 91:9-10 NIV
Radiation Therapist here ( 20 years experience) and former breast cancer patient who also received radiation from my radiation friends. I agree with most of what Dr. Amy stated but would like to clarify about the ointments. Do not have any ointments, lotions or skin creams of any kind on your skin prior to getting your radiation treatment. This will make your skin reddening worse. A few more tips would be: Keep the area getting radiation exposure out of the sun. You do not want to get a sunburn and then get radiation. For breast patients getting radiation, do not wear deodorant under the arm you are getting treated. You can wear a natural, aluminum free deodorant if your doctor approves it. Metal tracings in the deodorant like aluminum, can interact with the radiation and cause your skin to breakdown. Part of our job as a therapist is to keep an eye on your skin and we will grab the doctor to look at it if needed or if there are concerns. Most places where you receive radiation you will see your radiation oncologist once a week to check in with you and see how you are doing. He/she will also check your skin at this time. Good luck to you all. ❤
That what all doctors from some of the best cancer centers in the world recommend! NOTHING, not even oily shower gels, no creams, especially no ANY oil, during radiations! After the last treatment you can use as much but nothing before the last one.
@@JGalegria
Thanks for your opinion. As with any hospital facility and specialized department, each physician has their own way of treating and what they allow and don’t. Many radiation departments in the United States don’t allow any cream or lotion on the skin because it can interfere with the radiation and make skin irritation worse. I’ve been a radiation therapist for many years and even when I was a patient receiving radiation in 2022 at a different facility where I worked, they also didn’t allow any cream, lotions, or deodorant on your skin before receiving radiation. Certainly, Australia may have different protocols and creams they allow and that’s ok. I’m simply stating what’s “typical” here in the states. As a well seasoned radiation therapist, I am simply sharing my opinion on here of what I have learned and seen in the clinic.
Receiving 41 rounds of radiation no joke. Do not use any type of cream/ointment prior to and during treatment. My oncologists recommended using non-scented cream ~30 minutes after. I used cream they provided, later CeraVe moisturizing cream. Very important to keep area well lubricated. Drink loads of water, eat what you can and when. Do not get in sun and no pools. I was not able to eat, eventually could not drink water-very sick. Prepare yourself mentally and physically.
I was told by my radiation oncologist that you should not use any lotions prior to your radiation. I used lotion only after I had my radiation and then twice after that each day @@JGalegria
@amya9597 do you think I can use coconut oil or castor oil?
Thank you for a great video! I'm currently just finishing up 5 weeks of radiation (3 more sessions left) and would recommend that anyone going through radiation keep up with their exercise program. I work out (strength training and cardio) about 5 days a week and haven't experienced any fatigue. I read that this was a great way to limit the fatigue and I can attest to the fact that it WORKS!
Thank you
Can you plz share your workouts?
question: During radiation, are you able to shower after the radiation?
@@Elaine-w2s I'm a radiation therapist and yes you can shower. Depending on how your marks are applied, for instance we use waterproof stickers to cover permanent marker and just ask pt not to scrub directly on their marks. Honestly being that you are likely being treated daily, if you do happen to lose a mark, I personally always tell pts not to stress too much about them. We can always touch them up and take images to ensure you are aligned correctly. You have enough to worry about! Each center obviously has their own way of doing things, and they will explain everything to you thoroughly on your first day. Try not to stress too much, I know it's easier said than done... You will get through it and before you know it, this will all be behind you. Sending you lots of positive vibes, strength and prayers!!
@ thank you so so much for your kind words and prayers!! Your patients are so lucky to have you.❤️
I had the 3 weeks of more intense radio therapy vs 5 weeks. I used the cream they gave me after treatment and before bed. 3 times on weekend days. My breast changed color but never had itching or pain. I feel it was do to being faithful with the cream . Also wearing a soft fabric sports bra helped. Felt tired once in a while. Eating properly also helped.
Hope all is well now, can you share the name of the cream please.
I had 35 treatments. And they were brutal. Lost over 50 lbs of weight. Could t swallow let alone eat. So i pushed through. I had nasopharyngeal cancer and spread to my lymph nodes. Skin falling off. But healed rather quickly. Its been 2 years since radiation and chemo. Have minor swallowing problems and my teeth have more cavities.
Yes, work out during your treatments and stay hydrated. I had 33 treatments and never experienced fatigue.
Wow that's awesome. I just found out the news today that I will need 30 treatments for 6 weeks. I had a malignant mass in my sinuses which is very rare.
Any diet tips?
Rectal cancer here. I'm about 6 months post ileostomy surgery. I had 7 biweekly sessions of FOLFOX, then proceeded to 28 (6 weeks) m-f session of IMRT. The worst part of radiation therapy was having to wear a clunky chemo pump m-f for 5FU. I guess I got really lucky. I didn't see any side effects from radiation until the last few days. I then developed a red rash in the areas they radiated. It wasn't even in time to address it with the Dr, and not bad enough worry about it now.
I did get fatigue in the last couple weeks. I thought it was the chemo. The fatigue hit me any time I engaged in strenuous activity. I resumed wakeboarding and foil boarding about 3 1/2 months after surgery. In the last couple of weeks it became apparent that I would get exhausted after a short time. Now I just need to wait and see what other problems I may develop from the radiation. I'm dealing with mild neuropathy from the chemo. Hope that goes away.
I figured I would share my story to give others hope that it is possible that radiation can be pretty easy in some cases. Hope I'm not speaking too soon.
Thanks for sharing; Wishing you all the best in your treatments.
I had a friend use emu oil during radiation.
I had brachytherapy for my breast cancer and would recommend it for anyone that qualifies. One day for catheter insertion - I had 19. Then 8 fractions in 4 days. After the last treatment the doctor just pulled all of the catheters out at the same time. Lots of rest during the week.
❤Was diagnosed with lung Cancer in 2022
2023 33 Rounds of Radiation treatment.
There was day's I couldn't get off the couch 😢I had a VERY hard time swallowing and still do. I was stable for a little over a year and now it's growing
And I'm doing Chemotherapy every 21 days until December 2024
Until I see the Surgeon 😇🙏
And I thought I did all the Research.
We can NEVER DO ENOUGH RESEARCH. NOW THAT MY RADIATION TREATMENT IS OVER. I wish I would have just went for the Surgery. Also from what I heard It makes Sergey harder for the Seegon 😢
The things I wish I knew 😢
* I'M NOT A DOCTOR OR NURSE OR HEALTH CARE PROVIDER JUST ME SHARING MY STORY AND EXPERIENCES 😊
During treatment, i had eaten cucumber, honeydew and other cooling fruits to keep hydrated 🙏
I'm I guy possibly heading into prostate radiation soon, this video is very helpful. thank you.
I hope you recover soon ❤
brachytherapy? its rough on the women but I think maybe rougher on the men. hope alls well.
My 30 day radiation for colorectal cancer went well until the final week. the burning became so painful and increased for the next few weeks. it was unbearable. now, 2 months later, I am experiencing radiation induced bone breaks. pelvis and tailbone. I'm in chemo now and the combination of chemo and the pain from the breaks has made me very discouraged and ready to call it quits. only 2 more chemos to go. oxaliplatin and then folfox in a pump for 48 hrs. my bloodwork says that I'm handling it well. I have a healthy appetite at least! I can barely walk even with a walker, take massive amounts of Tylenol and ibuprofen together but the pain is excruciating. until this happened I was continuing to work, walk my dog in the woods, garden, dance...you get it! now I feel like the oldest woman on the planet and really wonder if I'll ever get back at least some of my life. trying to stay positive and optimistic, but I don't like what these treatments have done to me.....but I like your videos and advice...
I finished 30 treatments (6 weeks) last week. It is no joke! There was no marking. It was all done with cameras/laser lights. It’s now peeling and sensitive ( hurts to wear a bra and hurts not to wear it) 😅. Some people don’t realize how exhausted you are.
I'm getting it in like 4 to 5 weeks, still have to do the lumpectomy. I don't want to take off work but people keep telling me I better.
I hope you are both better now! 🙏🙏
@@sylver8494that's nothing compared to a double masectomy.
Ikr im very exhausted i have finished 4 weeks radiation now 2 weeks are left
I have lost my everything
I have ulcer in my throat and i can't swallow food
I also lost my eyelashes 😢
But i pray to God that nobody should get this disease it destroys your mental and physical health
Sending love to all the warrior which are going through the treatment❤❤
@@Aniya.qewsydr your hair will grow back, even your eyelashes! Chk your blood tests to see if you are Vit D, Iron, or Magnesium deficient. Any of those will make you more tired or weaker. Hang in there-- it does get better!!!!
The radiothrapy department used marker covered by a small round, clear bandaid.
Was urged to use a homemade green tea spray after treatments. ( At least 3 times ).
Ladies. Not only a super soft bra. But take yarn and reduce the width of your bras side under your armpit. Your skin is super fragile & sensitive. Guard yourself from injury.
Radiation treatment in the uk.
They do not hydrate you, or even mention you need to stay hydrated
They do not recommend any moisturiser but do say to moisturise your skin after.
They do not explain the Importance of diet or protein
I was not sick during the treatment and my skin showed no sign I was having treatment but the week after it was finished ( I was in everyday for a month for treatment) the exhaustion hit me and I was totally wiped out for months after and needed to rest often during the day, and my skin around my nipple got a sun burnt look and breast got very sore.
one thing is not covered in this video. I had 28 rounds of radiation after a lumpectomy, and all the skin burned off of me from my arm pit, the right side of my breast, down to under my breast. It was like a 3rd degree burn. the pain was like nothing I've ever had. I had to put Silvadene cream for severe burns all over it, and then non stick large bandage pads. could not wear a bra for months until the skin came back. When I went for my follow up 3 months after finishing the 28 rounds for the stage one grade one Invasive ductal carcinoma, the new Radiation Oncologist told me, (the one I had retired right after my treatment) that there was no reason to do 28 rounds, and cause all that damage. That given how tiny the lump was, 5 very targeted sessions would have been sufficient. Turns out doing 28 rounds was "old school". Don't be afraid to ask questions, get second opinions and research. Prayers for every one going thru this, may you heal quickly and completely.
I brought up nutrition questions and hydration to my RO, was told it didn’t matter. On my own I researched a diet for healthy skin and focused on protein. These were test questions that he failed big time. I also asked for an idea of a lotion with no alcohol, he had none and staff refused to help find one. I was on my own but ended up with the healthiest radiated skin my PS worked with doing my own thing, including making my own organic salve. Was not well liked but had good results. Yes, my care was switched to someone else for many reasons.
Good on you for advocating for yourself and not just backing down when they couldnt give you answers. I wish more people would do this.. keep those buggers on their toes.
can you share your tips please?
I used manukau honey cream, because my skin was angry and this really helped.
May I asked where did you purchase that? I'm starting radiation treatments in a couple of weeks
I just had targeted radiation to the Omentum for Ovarian cancer and it was so hard. It was 5 sessions every alternate day but it is much harder than chemo. I struggled to just get through my last session. I have a lot of nausea, fatigue and pain near my belly button where they did targeted radiation. 😞
I have side affects right away when I get treatment on my face and neck.
Radiation was a booger! Sooo much more on my body than chemo! I had 10 rounds of whole brain treatment. Im almost 3 weeks out. I have no hair, lost more than during chemo, and NO TASTEBUDS!
Hoffe es wird besser tag bei tag...tapfer bleiben...sonne I'm herzen...
Have your taste buts returned I lost 25 lbs and was already trying so I look horrible I feel good but I just want the dry mouth and tastebuds to return and they are I can taste again but the dry mouth and weird taste make it hard to enjoy food. Help!!!!
They grow back, mine did.
Radiation Therapist here. Radiation to the brain does not cause changes to your taste buds. Radiation can cause fatigue in all areas that we treat, although for the most part, radiation is site specific. Brain radiation can cause you to lose your hair, but it won’t cause changes in your mouth. Your taste bud issues are most likely from chemo as I had this as well.
@@amya9597I'm having taste loss and mouth sores. An area right below my clavicle is the area being treated. My skin is all brown and cracked mainly on the neck right side. I also have red spots that look like bug bites that's an over in my neck and back of neck. My radiologist says "that area isn't even being treated." I didn't have the issues until radiation though. Sorry TMI but I can relate to the no taste. (And so hard to swollow!)
Thank u so much 💕💕💕💕👌👌👌👌❤️❤️❤️❤️🥰🥰🥰🥰🥰
Why doesn’t anyone talk about the long term effects of
I had chemo & about 3 rounds of radiation to my leg after the tumor was removed in 2016. Now, in 2024 I have lymphedema in my leg that the doctor says won’t go away.😢
@@lisbeth6911 I have a chronic rib fracture and fibrosis
@@lisbeth6911lymphedema can be treated. Call the Am. CancerSociety in your state or Google lymphatic massage therapists. Most Drs know nothing about lymphedema.
You have to get it under control, do Not ignore it, serious problems can happen.
@@suzymoon2067I am so sorry, this is devastating.😢😢
Thank you Dr for letting us no about this after effect and the name of the creams. We must used ❤🙏
Hello I have question Can you tell if someone has thyroid cancer from taking blood work from the arm
How about coconut oil
NOW I find you!! I am so sick, in so much pain, so weak and so exhausted that I am in shock. Add this to undertreated psoriatic arthritis and you have 1 big mess. (Oh! Add severe chemical sensitivity to the mix). I'm always so positive, I can do this but not this time. I am just sick. Thank heavens yesterday was my last session. I figure 3 more days to recover from last trip into medical facility (mcs issue) then maybe just the post tx recovery. I told my friends that I've put Pollyanna Linda in a medically induced coma to keep her away. Positive thinking is a good thing, but I believe it's limits have been tested..
really hope you are doing better now.
Hello Dr. Amy please reply my question i am 22 yrs and i get only 1 ct scan of appendix and ct scan reports are normal but i am very stressed and worried about that ct scan cause cancer in future please tell me how do i detox my body and keep safe from ct scan side effects
I've had many CT scans & None caused my cancers.
Thank you
OK so what about the damage that can be caused internally like how to help prevent damage to the heart and to prevent lung cancer? Why is that never talked about.
That's the part that has not been mentioned in few videos that I have watched. Radiotherapy is my mums next line of treatment @ 68 but the surgeon have reservation about that. Furnish me with any information please, we need to take an informed decision
@@suzymoon2067 Thank you
Because they don't listen to patients so they've never had it and they don't tell you anything you notice they just tell you like a little bit and they always say oh none of my patience ever had any of these side effects but they only give you like one side effect meanwhile the list goes on and radiation just keeps on killing keeps on going for years and years and years.
And then you know it's so funny I told him I had thyroid disease oh don't worry about don't worry about it until you left breast yet right let's breast and my lymph nodes in the auxiliary notes so after you know I had a lump of nodule so no they didn't want to check anything.
They don't tell you crap I wish the hell I knew about these podcasts and everything else
I had a malignant mass in my sinuses, which is rare. I had an appointment today with the Oncologist and I will have 30 rounds of radiation for 6 weeks. I had my surgery 3 weeks ago, and Im doing well. My MRI didn’t show anything, however, they want to make sure they are killing the cancer cells.
What about later on? I mean years later, when the area that was "cooked" turns into another kind of cancer? What about the boils that burst and bleed, burst and bleed, burst and bleed? Until not even a thick, Kotex can contain it. What about when your whole chest looks like it has been scooped out by an ice cream scoop? But it spreads and spreads and keeps spreading?Finally, the angiosarcoma apreads to an organ, and you pass away 15 years later? This is what happened to my mom. Why don't we talk about that?
Oh sweet girl I am so sorry that happened and you had to watch that. God bless you. I hate cancer it has claimed 5 immediate family members from 2015-2020. And I now have throat or larynyx I caught it in a early stage 2. I'm praying and have already went through my radiation treatment. I wish they'd find a better treatment and a real cure. God has blessed me with a certain peace about it. But I'm 50 and have 5 kids that are very bonded to me my two youngest are 12 and 15. Too young to lose me. My three oldest kids have already lost their dad so they're terrified.
That sounds like it was not done properly. I'd talk to an attorney familiar with bad radiation treatments. So very sorry you've all gone thru this!
@@lorasamario5969hi how are you doing?
Pls! Must a very cancer patient go for radiation?
Im so sorry. my grams went thru something similar with stomach cancer radiation treatments. thankfully, cancer treatment has come a very long ways in the last 20 years.. much more targeted therapies that destroy less of the body along with the cancer. I feel for you.. my mother has lung cancer.. our first visit to her oncologist is next week. im terrified. hugs to you for what you went thru.
May I get the 15 recipes. I’m going to start 6 weeks of radiation
Hi Dr first of all thanks for the awesome video. I did radiation on my right breast 11 years ago for 32 days and believe or not I felt great, no tired and my skin was awesome. I applied only aloe Vera many times a day. One thing is that I believe most of people maybe do
Not know is that the radiation makes your breast shrink and became smaller than before that is a good thing and now even the team stating that I do not need a radiation at this time on my left breast I have an appointment with the radiation Dr to see if I need a radiation or not. Good luck to everyone and have a great day.
Thank You so much xo
What if you decide not to rub any sort of ointment, cream, anything at all, leaving the skin dry till the treatment is over, is it gonna be an issue??
Secondly, I thought if your daily sessions are short, it means you have minimal exposure and the side effects might likely not appear.
My mum going for radiation on the 8 January so,she's very week getting dizzy all the time how save is it
The hospital food is such small portions and dire. Ive been eating out good food around the city but its not easy to get good home food when I'm 3 hours from home.
Hello, thank you for this informative video. I just had my 3rd radiation and start to experience seeing flashes of light during treatment, has anyone also experienced this? Is this normal?
Yes, I’m on my 4th day of radiation
I was "lucky". NEW protocol for my kind of breast cancer: Only 5 days of radiation‼️ I finished a week and a half ago. VERY tired....I had Long Covid for 21 months - EXHAUSTION was a major symptom - and right now, I don't know if my exhaustion at this moment is from long Covid or from radiation???
What’s the protocol?
Very nice video.
where is the link please?
Made my sjrogens bad. Migraines. And migraine in my eye. Made my psoriasis on my head worse. Itching so bad. Dry eyes. Severe diarreah. Horrible
Please doctor i have a a non hodgkin lymphoma and I just hade both Chemotherapy and radiotherapy for 5 to 6 months
And from that time i clould not eat or drink at all
Please i am begging 🙏 you I just need to know
If there is a table for apatite that make me eat
Because food tasting 😔 😟 really bad like salty or sour
Magnesium citrate is good for regulating the bowels and you must take a good probiotics! I market a very effective one! Lots more to know about nutrition as well!
I m fixing to start radiation and chemo for throat cancer. I'm not ready for the outcome 😫
After one year of radiation lots of pain at night
Is it not good for someone who is going on therapy (colorectal) to have cough and colds but not because of sickness but because of being exposed to the cold breeze outside the house late? Hoping you could share your thoughts/feedback. Thanks!
my physiotherapist mentioned a film called mipetal and said it can be put on for the whole duration of the treatment and her breast cancer patients all have less burning using it. Do you recommend using it or 👂 of it?
It should be Mepitel
I was strictly told not to wash the radiated area for the six weeks of radiation and not to apply any creams , lotions or moisturizers.
you can’t shower?
Can sunscreen be used during the actual breast radiation treatment to prevent hyperpigmentation in darker skin tones ?
No don’t do that ♥️
Hello Dr was wondering had radiation 2 years ago can I have radiation again in the same area ? There suggesting it again?
I have terrible late side effects from it . Wish I’d never done it !
Can you please share if it is okay for you to share. I heard it can cause lung cancer and heart problems.
@@adrianavaca2417 not sure about my heart ( already had issues ) but I’m not the same since . Hate wearing clothes I’m in such pain in that area through to my back
What about metabolistic treatments
I have tattoo dots on my hips and stomach for radiation
DR. AMY, MY DAUGHTER WHO IS 45, HAS DONE THE INFUSION/CHEMOTHERAPY SINCE LAST YEAR 2022 & 2023, FOR SARCOMA METASTATIC CANCER. AND NOW THIS YEAR 2023 HER FOUR STAGE CANCER HAS SPREAD TO HER LUNGS, ONE IS 10CM & 5CM IN SIZE, WILL THE RADIATION CURE IT?
I have a sarcoma called leiomyosarcoma in my left ankle. Radiation has been a nightmare. 6 to go,but my foot looks like it's been in a fire. Can't walk. Sarcoma are rare cancers,doesn't respond to radiation or chemo,so don't know why they use it,guess it's all they have then surgery. But I know survival rate is very low qirh these cancers,why I am thinking about not being sick anymore from tge treatments that won't help anyway. I think I am done. I may have cancer,but I felt fine until they started to poison me with radiation. They're using the highest dose on me,tho pet scan shows no tumors anywhere else right now,but that can change tomorrow, for it travels thru blood stream not lymphatic system. What few stories I found out there,even after doing everything, even surgery it comes back. I really didn't want to go thru this,my family told me I had to try. For what? Waste precious time I could be enjoying life instead of Dr's and treatments everyday. An it's just the beginning. Make memories while you can. You're gonna have to be strong so she can. Many prayers for you both.
Start her on FenBen. Look up JoeTippensProtocol & read the Whole article. Watch any videos by him & Dr. Seyfried!! G'luck & God Bless you both!!!
Can you take Juven while doiny radiation?
Why would you?
Only use calendula!!!!
When you have radiation for rectal cancer will your skin inside not heal properly? I'm still dealing with drainage from the back end.
I just finished last Thursday. So it appears you are ahead of me.
I'm going to start in 2 weeks, How are you doing now?
Found out I need surgery for a fistula. Hopefully after that the drainage will stop.
Radiation of head & neck cancers is serious. Affects the teeth, mouth, and eating.
Really,but how the patient can it food
hello, can vanicream be used?
Could you use this same info for men?
How many times have you given yourself relation
What about unrefined extra virgin organic coconut oil? You did not mention that. Coconut oil helps with wound healing.
Can I use castor oil
Does l-lysine work?
I am radiographer which shampoo I used
Can those creams be used on the head? I had radiation on my left temporal lobe.
I finished radiation Nov. 2022. Will the cream still help?
I lost some of my hair.
How to heal my muscles from radiation for cancer treatments
What about radiation on the brain, what lotion can you use on your head? What about the hair that doesn’t grow where you get radiation?
Why do some doctor recommend this over chemo
Can I swim during radiotherapy
I also finished radiotherapy in january and now after 5 months my breast hurts and feels hot
Mine did too. It finally settled down.
@@Ranchladytmd did it take long? So scared for recurrence :(
I have numbness in my left breast.
Can I try red bull for energy
Red bull is extremely toxic and can cause cancer. If you are tired, drink coffee or if you dont like coffe, buy coffein pills in your drugstore
biafine cream...
makes you weak
Do what you can to not get cancer. We all are carrying plenty of cells of cancer but your body immunity isn't killing them off. Figure out why.
Good luck with that. It's just been reported that organic dark chocolate has lead and cadmium in it.
Mouth cancer and protein do go together. You’re soon sick of eggs and protein shakes 😢
I refuse permanent tattoos. You don’t have to have it done.
They are so small, they look like a small mole, bearley noticeable.
They're smaller than the tip of a pen. Would you rather have them miss target the right areas???
Mine are fluorescent and can't be seen unless under a UV light.
The fact you talk about women specifically speak of the kind of person you are.
That is my area of expertise. Would you like me to pretend I have a different speciality??