What causes myeloma bone pain? How can bone pain be managed?

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  • Опубліковано 26 лис 2024

КОМЕНТАРІ • 33

  • @EKNice
    @EKNice Рік тому +11

    I use cbd oil ointment on my skin, I've had Multiple myeloma since i was 45 years old. I am now 54, no more treatments for me, too tired.

    • @Tassy481
      @Tassy481 Місяць тому

      Hi, my hubby gets ankle pain. Do you think the cbd oil will help him as a topical rub

  • @paulr1784
    @paulr1784 Місяць тому +1

    I was diagnsed in 2015 after having a rib fracture doing yard work. Shortly after that xray confirmed, they showed me tons of litic leasions that looked the the terminator got shot with buck. I immediately went to treatment and the flood gates opened. I have two other rib fractures probably just from a sneeze and then two spinal compression fractures. After stem cell and long story short, I went from the fall of 2015 until last month 2024 the my revilimid treatment no longer works. Here we go with new drugs and radiation to hopefully help my pain in the ribs now. I guess I can call myself lucky as I was an ideal patient for the treatmen for almost 10 years.

    • @beastguy677
      @beastguy677 3 дні тому

      My mom is 79 and developed her MM in January last year, then diagnosed in September 2023. She had RevLimid for 7 cycles, then she has been recovered for 7 months. She was from sleeping beauty with 6 multifractures in her spine and lumbar, then being able to walk again was amazing, but I think she is developing in different areas now. Her jawline and teeth are very painful; the dentist didn't see anything wrong. I hope her pain will go away soon.

  • @timlittle1286
    @timlittle1286 2 роки тому +1

    Please let me know how effective treatment really is because my legs and ribs are killing me.

    • @HTUMyeloma
      @HTUMyeloma  2 роки тому +1

      Tim, if you have bone pain, you need to be seen by a MM specialist for treatment. Myeloma treatment WILL reduce the bone pain.

  • @DavidYoung-je8mf
    @DavidYoung-je8mf Місяць тому

    I had kidney failure. No drugs are available for pain management. We're screwed.

  • @stylebybbm6759
    @stylebybbm6759 3 роки тому +19

    What a horrible desease. I was diagnosed in 2019 when I turned 40. It's horrible

    • @JenikaVonLea
      @JenikaVonLea 3 роки тому +4

      I was also diagnosed at 40. I hate how myeloma is regarded as an "elderly" cancer.

    • @stylebybbm6759
      @stylebybbm6759 3 роки тому +4

      @@JenikaVonLea especially when I now hear that there are even children being diagnosed with it.

    • @nehamalviya2052
      @nehamalviya2052 3 роки тому +3

      Hii how are you now. ?

    • @nehamalviya2052
      @nehamalviya2052 3 роки тому +1

      You have bmt or not.

    • @Lifewiththeemartinarenee
      @Lifewiththeemartinarenee 3 роки тому +1

      Hello…what was some of your symptoms? I have been saying something else is wrong besides fibromyalgia. No meds help with this pain, but steroids calm it down Which is crazy. I recently had labs that said “Faint band in gamma region suspicious for monoclonal immunoglobulin.”

  • @ilikejelly7890
    @ilikejelly7890 7 місяців тому

    I have terrible pain along the lines of my bones. I have had diagnosis of psoriatic arthritis because my tendons are tight and sore. I was also diagnosed after 12 years with Cervical Stenosis(had op last year) and i have a Chiari Malformation(hoping to get op this year) I have problems with SI loint and L5 (facet) and they say it not Lumbar Stenosis. It doesnt matter where i press along a bone it hurts especially thighs and calfs and arms ribs , feet arms. I have never had a bone scan etc. I have loads of different symptoms because of many conditions but to me none of them explain the deep derp ache or sore when i press.

  • @julieverma1236
    @julieverma1236 2 роки тому +1

    Toe pain and my doctor refused to give me antibiotics

  • @roze9375
    @roze9375 3 роки тому +2

    Hi dear m also having bonepain sometimes..wat may be the cause??

    • @stylebybbm6759
      @stylebybbm6759 3 роки тому +6

      I think the only way for you to truly know it's to get tested. There's lots of diseases associated with bone pain, go to the hospital asap. In my opinion

  • @salvebriones1626
    @salvebriones1626 Рік тому +1

    I have TB bones what medicine I take

    • @HTUMyeloma
      @HTUMyeloma  Рік тому

      Any personal treatment questions should be discussed with your doctor.

  • @finabond8926
    @finabond8926 Рік тому +1

    Horrible and painful I do suffer from this.

  • @carlinebonney9948
    @carlinebonney9948 3 роки тому +4

    Thank you I just was diagnosed with Myeloma

    • @Kusumbaheti
      @Kusumbaheti 3 роки тому +3

      How you doing now?
      What treatment you are taking?
      I hope you recover well.
      Take care

    • @arpitjain8918
      @arpitjain8918 2 роки тому +2

      My father passed away in last month due to Multiple myeloma. He faced more pain in his Bone..😭

  • @julieverma1236
    @julieverma1236 2 роки тому +1

    I had ostomiltd

  • @tm5346
    @tm5346 Рік тому

    I have a pain dr he's nice but it hurts! Is it possible that Crohn's can causes as well