I tested AQP4 POSITIVE and have bad optic neuritis. The nausea is driving me nuts. I live in Uganda. Can anyone refer me to a hospital in Uganda or Kenya where I can see a neurologist that understands this?
Hi Athena, Dr. Abdu Kisekka Musubire is an expert in NMOSD, and he is located at the Mulago National Referral Hospital. If you are not able to see him, a neurologist who specializes in multiple sclerosis would best be able to handle your care.
I was just diagnosed with NMO. I really want to participate in the studies; let's learn more about this condition!
Hello, you can find studies and clinical trials here: wearesrna.org/shaping-the-future/research/clinical-studies-trials/
I tested AQP4 POSITIVE and have bad optic neuritis. The nausea is driving me nuts. I live in Uganda. Can anyone refer me to a hospital in Uganda or Kenya where I can see a neurologist that understands this?
Hi Athena, Dr. Abdu Kisekka Musubire is an expert in NMOSD, and he is located at the Mulago National Referral Hospital. If you are not able to see him, a neurologist who specializes in multiple sclerosis would best be able to handle your care.
Now they have medication called soliris
Hi Alex, yes, there are now 3 FDA-approved medications for NMOSD. You can learn more about them here: wearesrna.org/nmosd-drugs/.
Thx a lot for sharing! :)
chi riesce a tradurlo in italiano? ne avrei bisogno grazie