The way you describe the differences in how autistic and non-autitistic people speak with groups/publicly/professionally vs more casual/socializing/personal really hit the nail on the head for me. I never had a way to articulate that before, thank you.
I would say no to this one...I just want the whole of modern society to be kinder, more honest, and more wholesome. And it's not, which is a kind of discrimination, I suppose, but not quite. X
I and both of my children "couldn't be autistic because we had large vocabularies/spoke too well". It's why I didn't get my dx till age 48, my oldest child till 29 and youngest till 15. So frustrating! Nevermind our spiky skillsets and social difficulties. 😖
My diagnosis story was similar initially -- I finally got diagnosed on a second opinion, after the first psychiatrist decided I wasn't autistic down to my ability to understand metaphors and that I once pranked my younger sister. That was in spite of passing ADOS, all the screening questionnaires and a separate childhood history interview. For most of the time, it felt like the psychiatrist was trying to catch me out for something, almost as if I was on trial for a crime of some sort. I don't think my story is unique. The second assessment was thankfully much better -- but I was so stressed from going through the first one, that all my masks had collapsed and I couldn't have acted neurotypical if I tried. The conclusion from that one was _"it's totally obvious you're autistic"_ -- big sigh of relief from me! The whole process took me over three years and wore me out -- I'm not surprised so many people don't go through with it. Out of all the clinical and psychiatric assessments, autism is the most anxiety inducing, difficult and prolonged one there is, and I'm sure it doesn't need to be that way.
Much of the communication among our ND family involves echolalia, shared references, and scripted language that helps facilitate understanding for us, but can be absolutely baffling and/or troubling to outside observers. Would love to see further treatment of echolalia, palilalia and scripting in autistic communication.
In Australia, a Clinical Psychologist is the prime way of being diagnosed. These are people with a doctorate and experience. There are plenty who claim they can make a diagnosis, usually with money, they have no validity. Unfortunately, people looking for a diagnosis are misdirected by many who want something else. I struggled for decades, it is an old story. Good video, as usual. It made me feel sad. Thank you
Loved the video, as always. Would be curious to have heard a bit more about expanded to situational or selective mutism. Growing up I learned the word "apoplectic" from reading Shakespeare and just thought that everyone's ability to speak was compromised by intense and overwhelming emotions and situations.
Thanks Ben. There will be more videos discussing elements of the verbal spectrum in more detail in coming weeks. This film is to serve as an introduction to the idea. Producing a video of this nature every week on top of a full time job necessitates keeping the length within manageable limits, so it's necessary to break things down into "chapters"
For a while now, I've been suspecting I'm autistic, but I can't relate with what you said about speaking to a group or camera. I'm as anxious with those as I am with small-talk. Although a one-on-one conversation about something that interests me will flow like water. At least until I forget the name of something (I'm very bad with names and dates), or my mouth trips up because the thoughts are too fast.
Quinn, I only discovered this channel in the past few months, but, as a fellow autist, I'm finding your way of describing and explaining our shared autistic experiences absolutely peerless. I'm 8 years on from my diagnosis now, but the videos I've watched of yours so far have helped me understand myself more than you will ever know. Thank you from the bottom of my heart. 🙏🥰
I never understood why I was so comfortable doing presentations or acting in front of a large crowd, but struggle with talking to people and come off as shy and awkward often. Of course it’s the autism 😂
9:44 These closing thoughts are very powerful. I can see your passion and the inspiration behind those words as you spoke them. This is the first video from your channel that I have watched and while I didn't get the answers I was looking for in this video, your conclusion made me subscribe to your channel regardless.
Hi Jess. Thanks for subscribing. The Verbal Spectrum is a big undertaking for the channel. There are so many facets to cover and many aspects of autistic life that impact on them. There's 9 videos in the series so far and many more to come. If there's a particular aspect of the subject you'd like to see discussed then let me know and if I can provide insight I'll gladly consider bumping it up the schedule.
@@Autistamatic Thank you for your thoughtful reply! I really didn't mean to come off as critical - instead I meant to emphasize how your closing remarks were so convincing that it didn't matter to me that I didn't find what I was looking for because it made me realize how great your videos are. I'm a person who has very recently realized that I'm definitely on the spectrum and I was looking to understand my own experience of how my communication goes from being more or less "typical" in all modes - face-to-face, on the phone, via short text (messaging, chat etc.), and via longer-form text (emails etc.) - but as I descend down into burnout/shutting down I progressively lose my communication in different modes, to differing degrees. I also become semi-verbal in high-stress situations but I mask this mostly. I was hoping to understand more about my experience of going from 100% capacity for handling emails to 50% capacity to 20% (for example) and if this experience is normal for many autistic people who struggle with communication at times. Thanks!
@@jessl1934 Don't worry about sounding critical Jess. Most autistic people are quite blunt and "to the point" so it's not a problem. Better to receive honest but constructive criticism than sophistry or spite 👍 By the sounds of it the next video in the Verbal Spectrum series which talks about selective/situational mutism should be of interest to you. Mutism isn't an all or nothing reaction and it can be specific to certain situations or people.
@@Autistamatic Well I'm subscribed and I've clicked the bell so I'll definitely be getting a notification when it comes out. I'm really looking forward to it! Thanks for your responses :)
@@jessl1934 it's already out Jess, along with the other Verbal Spectrum videos I mentioned. Go to the channel page and you'll find a playlist of all the Verbal Spectrum videos so far 👍 perhaps I should have said "second" rather than "next".
you are really good at this. thank you for sharing. i am not getting a diagnosis anytime soon, much has to do with what you said here in the video. thank you for perspective. good way, good day sir
Can you give me any advice my daughter is 7 and has non verbal asd I believe she is much more intelligent than her teachers and others think how can I connect with her , respect her independence and person hood and let her teachers know she needs to be challenged educationally
Where we live "special needs" education seems to be more baby sitting/ daycare then actually teaching and learning and I'm afraid her progress will be stunted by other peoples perceived limitations on her intelligence
@@heatheryllanes6925 Hi Heather. If you get in touch with me via email (see the "about" tab on the channel page) I'll try to put you in touch with some resources that might help you & your daughter.
I sometimes wonder if the reason I wasn't considered for an autism diagnosis as a child was because of my talent with language both spoken and written ( I tried to find a word for the verbal version of hyperlexia but failed). I remember a moment with a therapist when I was 9. I was trying to articulate to her that existence is pain and I want to return to the void, but she found it necessary to interrupt me to tell me how eloquent I was.
Can someone be hyperlexic if speach development and reading ability was delayed until 8-9 years old? There was no need to speak because one of sibilings was speaking for all. There was nothing to read until discovery of public library when 9y.o.
Speaking of spiky skillsets... I may not be that good at understanding subtext or recognizing faces, but I have refined my psychic communication skills over the years that most don't have. Such as communicating telepathically with animals or dead people, none of whom ever complain about "form errors". I am actually very social, just not with humans still alive because these get me overstimulated way too quickly. I can also see through someone else's eyes (for example, see a situation through their eyes and with their attitudes, including what they are feeling), or just feel the feelings of other beings. As an example, this brought me to understand that my fear "of" spiders has actually always been the fear of the spiders themselves. While these are all common skills for someone trained in spiritual healing according to the shamanic principle (i.e. communicating and traveling), and I was lucky to have been trained in using my natural skills for now more than 20 years, funny thing is that - I - am called the one with the communication deficits.... I love your channel, discovered it today and subscribed right away. Please keep up the excellent work!
Bang on buddy! I never heard the term hyperlexic, since I considered myself dyslexic. Can I be both?! Learned to read by 4, but wrote everything backwards in school. Thank goodness I had a progressive teacher with touchable felt letters and arrows. I have almost internalized left from right, but can still lose it when I have to do it in a hurry. I had trouble learning to read clocks with hands. Basically all dichotomy is not easily remembered by my brain. Even in my chosen professions. I have to write them down where I can refer to them easily. Google has been tremendously helpful at referencing that I know I should know. I don't mind talking, in fact I love it when I have a script and I get to share my knowledge or teach. That is one of my strengths. Everything else That whole bit about the gate keepers, makes me angry. Angry I feel any need to have them justify my experience of the world, or legitimize my use of the definitions they created for my experiences.
The way you describe the differences in how autistic and non-autitistic people speak with groups/publicly/professionally vs more casual/socializing/personal really hit the nail on the head for me. I never had a way to articulate that before, thank you.
I love your channel because I relate to you so much. Being autistic is not hard. Being discriminated is the hard part
I agree with both of you, Quinn and @Maggie Dento.
Yes
I would say no to this one...I just want the whole of modern society to be kinder, more honest, and more wholesome. And it's not, which is a kind of discrimination, I suppose, but not quite. X
I and both of my children "couldn't be autistic because we had large vocabularies/spoke too well". It's why I didn't get my dx till age 48, my oldest child till 29 and youngest till 15. So frustrating! Nevermind our spiky skillsets and social difficulties. 😖
We are so similar.
My diagnosis story was similar initially -- I finally got diagnosed on a second opinion, after the first psychiatrist decided I wasn't autistic down to my ability to understand metaphors and that I once pranked my younger sister. That was in spite of passing ADOS, all the screening questionnaires and a separate childhood history interview.
For most of the time, it felt like the psychiatrist was trying to catch me out for something, almost as if I was on trial for a crime of some sort.
I don't think my story is unique.
The second assessment was thankfully much better -- but I was so stressed from going through the first one, that all my masks had collapsed and I couldn't have acted neurotypical if I tried. The conclusion from that one was _"it's totally obvious you're autistic"_ -- big sigh of relief from me!
The whole process took me over three years and wore me out -- I'm not surprised so many people don't go through with it.
Out of all the clinical and psychiatric assessments, autism is the most anxiety inducing, difficult and prolonged one there is, and I'm sure it doesn't need to be that way.
Much of the communication among our ND family involves echolalia, shared references, and scripted language that helps facilitate understanding for us, but can be absolutely baffling and/or troubling to outside observers. Would love to see further treatment of echolalia, palilalia and scripting in autistic communication.
In Australia, a Clinical Psychologist is the prime way of being diagnosed. These are people with a doctorate and experience. There are plenty who claim they can make a diagnosis, usually with money, they have no validity. Unfortunately, people looking for a diagnosis are misdirected by many who want something else. I struggled for decades, it is an old story. Good video, as usual. It made me feel sad. Thank you
Loved the video, as always. Would be curious to have heard a bit more about expanded to situational or selective mutism. Growing up I learned the word "apoplectic" from reading Shakespeare and just thought that everyone's ability to speak was compromised by intense and overwhelming emotions and situations.
Thanks Ben. There will be more videos discussing elements of the verbal spectrum in more detail in coming weeks. This film is to serve as an introduction to the idea. Producing a video of this nature every week on top of a full time job necessitates keeping the length within manageable limits, so it's necessary to break things down into "chapters"
in a group of "normal" people I don't know what I can talk about ... i hate that situations xD
For a while now, I've been suspecting I'm autistic, but I can't relate with what you said about speaking to a group or camera. I'm as anxious with those as I am with small-talk. Although a one-on-one conversation about something that interests me will flow like water. At least until I forget the name of something (I'm very bad with names and dates), or my mouth trips up because the thoughts are too fast.
I feel this way too
Quinn, I only discovered this channel in the past few months, but, as a fellow autist, I'm finding your way of describing and explaining our shared autistic experiences absolutely peerless.
I'm 8 years on from my diagnosis now, but the videos I've watched of yours so far have helped me understand myself more than you will ever know.
Thank you from the bottom of my heart. 🙏🥰
Thankyou for this video
That is the only words I have to explain how much this informative video means to me.
As always, your videos are extremely informative and
well presented. Thank you.
This is incredible. I've literally never even considered this and I suspect myself to be at least on the autistic spectrum. Thank you
I never understood why I was so comfortable doing presentations or acting in front of a large crowd, but struggle with talking to people and come off as shy and awkward often. Of course it’s the autism 😂
9:44 These closing thoughts are very powerful. I can see your passion and the inspiration behind those words as you spoke them.
This is the first video from your channel that I have watched and while I didn't get the answers I was looking for in this video, your conclusion made me subscribe to your channel regardless.
Hi Jess. Thanks for subscribing. The Verbal Spectrum is a big undertaking for the channel. There are so many facets to cover and many aspects of autistic life that impact on them. There's 9 videos in the series so far and many more to come. If there's a particular aspect of the subject you'd like to see discussed then let me know and if I can provide insight I'll gladly consider bumping it up the schedule.
@@Autistamatic Thank you for your thoughtful reply!
I really didn't mean to come off as critical - instead I meant to emphasize how your closing remarks were so convincing that it didn't matter to me that I didn't find what I was looking for because it made me realize how great your videos are.
I'm a person who has very recently realized that I'm definitely on the spectrum and I was looking to understand my own experience of how my communication goes from being more or less "typical" in all modes - face-to-face, on the phone, via short text (messaging, chat etc.), and via longer-form text (emails etc.) - but as I descend down into burnout/shutting down I progressively lose my communication in different modes, to differing degrees.
I also become semi-verbal in high-stress situations but I mask this mostly.
I was hoping to understand more about my experience of going from 100% capacity for handling emails to 50% capacity to 20% (for example) and if this experience is normal for many autistic people who struggle with communication at times.
Thanks!
@@jessl1934 Don't worry about sounding critical Jess. Most autistic people are quite blunt and "to the point" so it's not a problem. Better to receive honest but constructive criticism than sophistry or spite 👍 By the sounds of it the next video in the Verbal Spectrum series which talks about selective/situational mutism should be of interest to you. Mutism isn't an all or nothing reaction and it can be specific to certain situations or people.
@@Autistamatic Well I'm subscribed and I've clicked the bell so I'll definitely be getting a notification when it comes out.
I'm really looking forward to it! Thanks for your responses :)
@@jessl1934 it's already out Jess, along with the other Verbal Spectrum videos I mentioned. Go to the channel page and you'll find a playlist of all the Verbal Spectrum videos so far 👍 perhaps I should have said "second" rather than "next".
Beautifully put!
Thank you for all your hard work on this channel it means a lot and has been very eye opening
you are really good at this. thank you for sharing. i am not getting a diagnosis anytime soon, much has to do with what you said here in the video. thank you for perspective. good way, good day sir
Excellent
Before anyone points it out...The duplication has been noted 😉
Can you give me any advice my daughter is 7 and has non verbal asd I believe she is much more intelligent than her teachers and others think how can I connect with her , respect her independence and person hood and let her teachers know she needs to be challenged educationally
Where we live "special needs" education seems to be more baby sitting/ daycare then actually teaching and learning and I'm afraid her progress will be stunted by other peoples perceived limitations on her intelligence
@@heatheryllanes6925 Hi Heather. If you get in touch with me via email (see the "about" tab on the channel page) I'll try to put you in touch with some resources that might help you & your daughter.
Thank you for articulating this peculiarity of the Autism testing situation. It's quite illogical.
Great video
Since this series is about relationships can you do a video on family ostracisation
Lovely
Thumbs up!
I sometimes wonder if the reason I wasn't considered for an autism diagnosis as a child was because of my talent with language both spoken and written ( I tried to find a word for the verbal version of hyperlexia but failed). I remember a moment with a therapist when I was 9. I was trying to articulate to her that existence is pain and I want to return to the void, but she found it necessary to interrupt me to tell me how eloquent I was.
Can someone be hyperlexic if speach development and reading ability was delayed until 8-9 years old? There was no need to speak because one of sibilings was speaking for all. There was nothing to read until discovery of public library when 9y.o.
Hi Mariusz. Yes one CAN be hyperlexic OR dyslexic in the absence of written words. It just may not become evident until later.
Speaking of spiky skillsets... I may not be that good at understanding subtext or recognizing faces, but I have refined my psychic communication skills over the years that most don't have. Such as communicating telepathically with animals or dead people, none of whom ever complain about "form errors". I am actually very social, just not with humans still alive because these get me overstimulated way too quickly. I can also see through someone else's eyes (for example, see a situation through their eyes and with their attitudes, including what they are feeling), or just feel the feelings of other beings. As an example, this brought me to understand that my fear "of" spiders has actually always been the fear of the spiders themselves. While these are all common skills for someone trained in spiritual healing according to the shamanic principle (i.e. communicating and traveling), and I was lucky to have been trained in using my natural skills for now more than 20 years, funny thing is that - I - am called the one with the communication deficits....
I love your channel, discovered it today and subscribed right away. Please keep up the excellent work!
💫🌟🖤🖤🖤🌟💫
Bang on buddy! I never heard the term hyperlexic, since I considered myself dyslexic. Can I be both?! Learned to read by 4, but wrote everything backwards in school. Thank goodness I had a progressive teacher with touchable felt letters and arrows. I have almost internalized left from right, but can still lose it when I have to do it in a hurry. I had trouble learning to read clocks with hands. Basically all dichotomy is not easily remembered by my brain. Even in my chosen professions. I have to write them down where I can refer to them easily. Google has been tremendously helpful at referencing that I know I should know. I don't mind talking, in fact I love it when I have a script and I get to share my knowledge or teach. That is one of my strengths.
Everything else
That whole bit about the gate keepers, makes me angry. Angry I feel any need to have them justify my experience of the world, or legitimize my use of the definitions they created for my experiences.