Paraplegic Morning Routine//How I Poop
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- Опубліковано 28 лис 2021
- Well you guys asked for it and I aim to deliver: a whole video about how I poop. Creepos aside, I know there are many people that this video will be helpful for. Being able to see what someone else's bowel routine looked like would have been invaluable to me when I was first paralyzed. It would have given me an example to follow and the confidence to know that even though it was difficult at first it was going to get easier with time and practice.
What a paraplegic morning routine looks like is going to be different for every paraplegic but this is mine and I hope it's helpful!
#tmi #bowelroutine #digitalstimulation
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The Day I Found out How Paralyzed People Poop:
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You’re so amazing. I appreciate your openness and willingness to share. I have a nephew that I’ve been caring for since birth who has a(n) SCI and I share videos like this with him to help him better understand. He’s 13 and a stubborn teen LOL, but this video made him laugh and realize, it’s just normal to take care of your body. Thank you 💜💜
I was stubborn at 13 too lol. I let my mom do my bowel routine until I was 18!
@EmpoweredPara u have bowel obstruction problem ?
Cannot put into words how much I admire this woman.
awe thanks
I love your way of expressing things as being completely neutral.
This is the most honest i've seen anyone with a spinal cord injury be about the tribulations of everyday life. lots of channels like to gloss over these parts of living with paralysis and act as if its this easy breezy influencer life. Which i find really misleading. Thanks for your honesty, i know it cant be easy, but its very informative and realistic.
(edit to add: Zack Collie is also a great channel, who doesn't sugar coat anything and gives honest helpful rundowns about the less glamorous side of living with a spinal cord injury / immobility)
I'll check his channel out!
I wanted to be a source if real information that newly injured people could use and not just be inspiration porn.
Makes me really happy that you see my channel as one of few that are showing genuine parts of life with a SCI.
My dad was a complete quadriplegic and there was not this openly available then. I know you are such a support for so many. You’re so beautiful.
I didn't have any information like this either when I was first paralyzed. How might my life (and your father's) have been different had we had access to the amount of information there is today!? Was life difficulty for your father?
Thanks for being open about this, I’m sure it will help newly paralysed people understand that’s it’s just normal….even if it takes a little while to feel that way x
100%
Agree! I think all newly injured including myself were appalled at first. I was like "this is what I have to do for the rest of my life??" All good now. it doesn't take long to move on and just do what you got to do! Cheers!
@@paralifetv-youreverydaywhe8314 honestly the reactions to finding our how we have to poop should be recorded in secret. I think it would make for a comical montage of disgusted facial expressions lol. Maybe there would be some crying and swearing too lol
@@EmpoweredPara Absolutely!!!
Not even newly paralyzed but her videos help me get my courage. I have mobility issues so cleaning probably can be... problematic.
Watching her, I know I can "suck it up" and use the tools necessary to deal with it.
Your videos are always so helpful! As a new SCI I really appreciate hearing about your routines and how you get through the day! Everything takes so long and is so tiring (at this point), it’s so nice to see it gets easier, faster and/or just part if the day :) I’m sorry you didn’t have any resources at age 13, that must have been so tough! But you are making a huge difference for people now…thank you!!
This means so much to me!!!! Thank you 😊. I was really nervous about this video but I kept thinking if the people that it could help. I was so lost for so long and went to be there for people like me that just need support and someone to relate to.
Thank you for sharing a vulnerable but necessary part of your life. You’re such a strong lady 💛
I think what I never even considered was how much time going to the bathroom would take. Thank you so much for your candor. It is an incredible tool to help reduce stigma.
I love how open and honest you are! This video will help many people! 🥰
Thanks! I hope so!
Really appreciate your raw honesty about your routine. Great video!
thanks!
Your candor is downright amazing. You're an excellent teacher, and I appreciate your willingness to help others.
I can't put into words how much I admire what you're doing here. Thank you very much. You rock!
You’re a rock star for sharing this with everyone. Most people are curious about this subject and would never dare to ask us.
That is why I wanted to do the video. For everyone who is curious, to normalize the way we have to use the bathroom, and to help anyone that is newly paralyzed that is struggling to come to terms with it. Gosh knows it took me so long to accept!
Can you send that vitamin c and hydrate medicine to me
I had no idea how that worked. Informative. That wasn't tmi, it was just an informative video. I think everyone should know these things honestly. We never know when we'll need to use the information. It also gives us a better understanding for other people. Thank you for doing this even though you don't have to share such intimate details with the world.
She’s so self sufficient! 🙏🏽💜
You are amazing, such an honest approach with such helpful information for many people. I hid for many years that I had to empty my bowel ‘manually’, not realising my bowel and bladder were not functioning due to having Spina Bifida Aculta which was slowly effecting my bowel and bladder. Keep up the great work you do.
I was so afraid and ashamed for YEARS to tell anyone about my bowel and bladder and I never want anyone else to feel that shame. So much more empowering to be honest.
I thought i am the only guy who do all this...after seen ur video,reading other people comments i get to know it's common. And thanks for you for being so open ♥️🌸
You do all this with such class, while preserving your dignity. You are amazing and we are so blessed to learn from you. Ty for letting us into your world. 🙂
You're welcome!
Amazingly frank, direct and dignified. My deepest respect for your encouragement to all on one's need for awareness. Thank you.
Thanks for being so candid. This is very useful information.
I’ve watched several of your videos. Gotta say that you are an amazing person and an inspiration.🌹
Wow, thank you!
Hello, thank you for your honesty and openness to all of these very personal tasks and routines. I'm sure you are and have helped so many people that are disable and able-bodied. Sorry, if I didn't use the right discretion for the two groups I mentioned. I believe that you talking about what your daily life is or can be like helps to take the power away from having to deal with some many tasks that many of us take for grant. You are such a positive and caring sole, your husband is a very fortunate man to have you in his life. Keep up the hard work and I hope your channel and life is successful, as you would like it to be. Cheers
Thank you! Means a lot knowing people think my channel is valuable !
Your videos are awesome, Britney! This channel is priceless, and so are you! God bless you, sweetheart!
I confess I never considered all this before but the curiosity suddenly came over me. So much complexity for something that someone else might just take for granted, wow.
yeah it was devastating to learn at 13 lol
What an amazing woman I am truly impressed how your dealing with your condition. You are an inspiration to other physically challenged people. Keep up the good work. God Bless.
Thanks! I try lol!
You have a beautiful attitude about your situation.
I honestly never had any questions regarding this stuff, or about paralyzed life in general, but randomly got presented with a selection list by the UA-cam gods. Oddly, I'm glad I did.
Wishing you the best, young lady.
This is a complete revelation to me.I have wondered about this process for paraplegics and so admire the openness .It puts everything into perspective.What a lovely person.Her husband is very fortunate.
Happy to educate you!
Thanks for another great video, I’m newly paralyzed so it answered a bunch of questions I had. I love all the details that you give and also that you mention that it wasn’t always easy to do these day to day activities. It gives me hope 😊. I was wondering, did you ever do your bowel routine every other day?
I used to do every second day but my bowels stay more regular abd I feel better doing it every day. I have some friends that do it twice a day and don't use a suppository. They just hop on the toilet after breakfast and after supper and check what's there.
Thank you so much. My son has a spinal cord injury and this has given me some insight into what he is going through. Your attitude is amazing.
It's definitely a big change when you get paralyzed. Good luck to your son.
Thank you for this video. Great information. Can't wait for next one.
Thanks! Always weird filming a video while on the toilet and then sharing it with the world lol!
Great video. Exercise, diet and the help of a suppository (half of one) help me keep regular. It wasn't always like that. It progressively got easier and faster after time. Thank you for sharing!
Diet and exercise are so important! Thanks for chiming in!
I've been sick since age 15...am now 32...so 17 long ongoing years of horrific, life altering, 20 super rare complex incurable and intractable chronic pain diseases and health problems that span over a dozen fields of medicine and subspecialty fields for over half my life and I've seen literally 600 doctors,specialists, and actual scientists and whom are pioneers in their fields and had experimental testing done at the most famous top ranked hospitals in the States/world, literally North x South x East x West, and have gone to world famous hospitals like Mayo Clinic 3x and 2x and University of Miami Bascom Palmer Eye Institute 2x as well as John Hopkins Wilmer Eye Institute, University of Utah Moran Eye Institute, Northwestern University Hospital, the super brainy University of Chicago, Rush University Hospital all in the Chicago area as well as countless places in Northern Illinois and all over lower and Southeast Wisconsin, Froedtert Hospital (I practically live there and should move in), St. Luke's, University of Wisconsin....all to no avail. I have severe motility issues and an extremely slow transit colon. Since childhood, and part of this is heavily hereditary, I'd go poop once a week. Before I got sick at 15, I wasn't much better. Until my heart gave out, 1.5 hours of heavy weights and cardio 6 days a week, plus 60 min riding lessons 2x a week and 30 min hacking the other days on top of the gym with a total of 2-3 hours spent total at the stables, I was constantly hospitalized, ER room all the time, endless CT scans with and w/o contrast, xrays many many colonoscopies starting at age 15, etc...I now have gastroparesis. I went to Northeastern who was supposed to have a nationally renound motility specialist...he was useless. Consulted colorectal surgeons and they said with all my medical issues my chances were a meager 33%, even if this was my only issue it would only be 50% successful and cause 5+ other issues and aggravate my existing horrible health isues and recovery is over a year if even works and in my 20s and early 30s, I REFUSE to have a colostomy bag. Waa trying to get to a Neurogastroenterologist but they are so rare and specialized tgat only Stanford, Penn State, and maybe John Hopkins and Columbia University could maybe help and that's a huge maybe.
With my Gastroparesis and super slow transit motility, I literally don't eat breakfast, lunch, dinner or any snacks and yet it defies science and logic that I'm full of stool...somemlast week that were so large they were rock hard, dry literally tennis ball sized lumps of stool and there was like months worth in me despite eating a bowl of cereal 2-3x for dinner. I'm scared to eat and don't since 2019. I've fallen 3x and passed out from lack of nutrition at age 32.
I know all about saline and mineral oil enemas and every hospital grade enema, OTC and prescription colonoscopy preps, Miralax...which I took for a decade, milk of magnesia, mag citrate, all the heavy duty motility/constipation prescription drugs and injections and they either work for a couple days or weeks and then stop or don't work at all. I have boxes of gloves and lube as well as the enemasmand where I'm digging during majority of manual disimpactions of literally bone dry, rock hard pebbles or golf ball sized poops. I have special ingredient wipes and sprays and hemorrhoid creme and tonic. It's hell.
Exercise (nor water or my good diet) did NOTHING to help me go....see above what I all did and I just got worse and worse. It got to the point over the years that I REGULARLY wouldn't go for 10 days, then 14 days, then 3 weeks, then a month or more...and that was being in-patient overnight muktiple day hospitalizations and weekly ER visits on top of all these useless, idiot GI doc appointments.
I told my aunts on both sides of the family and my paternal grandmother that I'd rather go through cancer 3x than 17 omgoing years of my 24/7 unknown, untreatable hell that literally robbed me of my life: highschool, college, job, dating/relationship/marriage, more domestic and international travel, any exercise--gym, dance, weights, showjumping and dressage, or any sporty activity I used to do, hobbies and passions, photography...and they all thoroughly agreed.
new sub here … you re very intelligent which is helping you keep organized with it all …
I m impressed … it s a lot to deal with. thanks for sharing !
Thank you for being so informative xxx
You are so independent I like that about you, some people spend all day complaining about Thier disability but I have noticed that you just get on with your life and I admire your attitude you are helping others with similar complaints especially the people who have just recently been injured
I wasn't always like that! Took me years to move forward with a happy heart!
@@EmpoweredPara I'm pleased that you have excepted your disability and are getting on with life. I'm sure your family are relieved as well, they must have been worried about your mental wellbeing and happiness, enjoy your life and family, good luck 🌹
This was incredibly interesting. Thankyou so much for sharing this intimate part of your life.
You're welcome!
What an incredibly strong young woman you are. You have accepted a life changing disability, move on with your life and teach others about the challenges you face. I really admire you.
thanks!
Look forward to a nutrition bowel video. How to get consistency and how to adjust diet are areas I really need to learn.
Thank you so much for sharing this. Super helpful and informative.
I'm sorry for some of these comments - I think there may be a way you can filter the comments when they're posted with certain words, I'm not sure how but there may be that advice somewhere!
But again, thank you so much for sharing it's super helpful and good to see someone normalising this. :)
You're welcome! The comments don't bug me lol. Comes with the territory!
Guess what I was doing when I watched your video??? Yep, my morning routine. Love your channel. The straight talk is really appreciated.
Those who poop together stay together lol. Now we're bonded haha
Great channel.
I'm sure this video is helping a lot of people.
She is such an amazing, amazing women to be able to do what she does and to share it with all of us. Wish I could give her a BIG hug.....
🫂 🤗
You are so amazing ..now I have an understanding how paralyzed people do their routine so brave courage your so wonderful. God bless you .you are amazing.
Had a good laugh seeing your bed higher on your side, , for us that have SCI the extra memory foam toppers are a must.
We call it the mountain haha. I love that you noticed that!
I’ve been a paraplegic for 31 years and I’ve been doing the same routine since day 1 since my injury. Im a big wussy because I couldn’t do what your doing which is SOOOOO AMAZING!! You don’t even blush , me ? My wife still doesn’t know how I go. I’m so embarrassed that it kills me. Im just amazed by you. God bless you my god so honest and just a savage! Love your videos wow…
Please don’t be embarrassed!
Thank you for your honesty. 🙏🏼🙏🏼
Always!
Just want to comment on how pretty you are ❤️ like naturally so. And also so amazing to put this out there on the internet!!
Thanks! You guys sure give me a confidence boost!
Hey! This is super similar to the bowel routine that I did for years after my spinal cord injury (when I was 9 years old; I'm 36 now).
You may already know what I'm about to say, but it was revolutionary to me when someone told me about it, so I figured I'd share about it here in case it helps anyone.
At some point, I switched to using Fleet liquid glycerin suppositories. I just sit on the toilet, use the suppository, and I'm nearly always done after about 30 minutes. With the magic bullets, I had to dedicate nearly two hours to the routine. After using the liquid suppository for the first time, I never went back to the bullets, and I've hardly ever had to do any digital stimulation since them. Highly recommended.
Anyway, thanks for being vulnerable and making a video about this!
I tried those a few times and I wasn't a fan but I'd be willing to try again since it's been so many years! Is there a specific brand you use?
Thank you for your honesty let's face it everyone has to have a bowel movement if you don't you get sick it's a fact of life I hope that this helps people realize they shouldn't be embarrassed of taking care of their body
Yeah poop is universal lol
Your videos really make me appreciate the things I take for granted. Do you do this daily? I imagine you have no way of knowing when you need to go. I'd be inclined to come up with some kind of J shaped tube to wash myself afterward with water if not to give myself an enema to do the whole process. I can't believe I'm writing this !
I give you credits for making this video because there is so many negative comments.
I cannot believe I just watched a 24 minute video about poop...
Very informational.
There's a first for everything lol. Glad I captivated you for that long lol!
It's funny that you say your husband "still" loves you despite your poop routine. Look at all the love you're getting from the viewers whenever you post a vid about this topic!
That's what I have found to be true. The more honest your are the more people are ok with who you are!
man, the reaction I had to shit like that and self cathing originally vs now (barely 2.5 years later) is really absurd, haha. like going from "I could absolutely NEVER" to actually being a little annoyed when other people say that 😆 it seems really horrifying and daunting at first but you'll adapt, or you and your doctor will find another way, if it comes down to that. lol I ended up stumbling on this bc I was looking for advice/help on another thing and was like "oh I wonder if they poop like me" 😆😆😆
I appreciate you putting this out there! there's a ton of stuff that I absolutely was not told and did not properly learn bc the healthcare system where I live is so bad, so it's very cool and kind of you to make videos about this stuff. especially considering uhh, some of the comments I have seen lmao.
Thanks! I was so lost when I was first paralyzed! Just want to light the way for others!
@@EmpoweredPara yeah it's such a rough time haha, the "you probably won't ever walk again" is bad enough but "you gotta stick this hose up your pee hole to pee" is a frankly unexpected insult to injury. it's rly nice that you are normalizing this and making it kinda funny bc the less people who have to feel lost like you and I did or feel bad or gross about it, the better 😇🥰😇
haha look at me crying about a strangers video on sticking their finger up their butt IN FAIRNESS it's bc it made me feel so good about the prospects for other ppl with SCIs/nerve issues/MS whatever going forward, what a weird fucken thing tho lmao
@@elen5871 lol. Love being able to relate to someone over such weird stuff!
I was diagnosed with IBS (irritable bowel syndrome) around a few months back which started affecting my lifestyle and eventually my mental health because i felt why has it only happened to me and why cant i live a normal life like others as it is a chronic illness and cannot be cured but can only be managed with lifestyle and diet management . Anyways i was almost getting into depression because of it until i watched this video of you having to go through a bowel movement which is much much more complicated and troublesome as compared to mine and that too so gracefully and with much gratitude which actually helped me a lot and now you actually inspire me a lot . I really respect what you are putting out here on youtube . Much love from India. Cheers
Awe thanks! IBS is really tough so don't feel bad for feeling frustrated! A few book that I would suggest are Breaking the Viscous Cycle, The Bloated Belly Whisperer, and The Metabolism Plan. They all have really valuable information about healing your gut!
@@EmpoweredPara Deb has IBS, so thanks for the names of the 3 books!
@@westiepower2020 happy to help!
It’s almost like having an infant permanently attached to you that needs your attention….Thanks for sharing your journey with us❤️❤️
You are so brave. May God bless you in 2024 and onwards with good health, strength and prosperity.
Wow ! Quite interesting , thanks for making the video , gives me more insight , I'm a home health aide presently.
Good for you for learning about things! You'll be a better Healthcare aid because of it!
Very interesting and informative.
Your are Great!!! God bless you and your hubby!!! Joannie
Great content! Thank you 💟
You're welcome!
love you for the person you are. thank you for being brave and not afraid of judging. i noticed you use diffrent cousin. would you please make a video about?
So glad your husband just accepts everything, that's what you do when you love someone xxx
Yep it is!
You work so hard xxx
sometimes!
Man the things we take for granted. Going poop is so normal and natural and direct. This cute chic has to do a while routine. Man I would just probably poop on the bed 🙈
No you wouldn't poop the bed lol. Way more work to clean up!
THANK YOU FOR SHARING ! 😢
You know I honestly think sci is such a cruel thing to happen to a person and I am super impressed you share such information for people who are starting out ... when I worked with sci patients we used to give them gloves that were really long and covered a lot of the forearm ...I was wondering if u had tried them ?
regular gloves seem to work fine for me!
You are great for making this video! Cheers! Quad here.
thanks!
May God bless this woman🙏🌹
Wow what a beautiful woman you are helping so many people lucky husband keep up the videos
Hi !I discovered your Channel !You are so adorable ❤
Thanks!!!
Thank you and God bless!
I love you for this! I giggled along when you laughed about putting your finger in your butt lol. 😂😂😂. It’s great info as I would have loved to just look this up way back when I was learning how to do these things.
Thanks. I was really nervous about the video but kept thinking about myself when I was first paralyzed abd how confused I was! Fun to laugh about these things with other people that get it lol!
@@EmpoweredPara I needed this I'm setting here watching and trying to poop now
@@bubba283 we're pooping together then lol!
@@EmpoweredPara I'm in bathroom now, I'll be awhile, I didn't do anything this morning, it's been 5 days, I'm going good now finally
I told my boyfriend to go outside to go 😁 if he needs to
You are a very brave girl to do a video like this, most girls don't even talk about pooping
Lol. I'm way too open about my life haha. I was nervous about this video to be honest though! I have a 13 year old son that I have to worry about embarrassing!
@@EmpoweredPara He should never be embarrassed about anything you do.
@@catman58 he's pretty good about not being embarrassed but I bet he wouldn't want his friends to see the poop video lol
@@EmpoweredPara Never make fun of someone, because one day it could be them
@@catman58 truth!
I love your page you are my inspiration with my cerebral palsy. I have chronic pain and the only thing I use is my chest to get myself dressed. I can use my legs when I’m walking with peoples hands, but other than that I use my body for everything my mother was a drug addict, she did crack cocaine methamphetamine. I was born 22 weeks early with a brain bleed, and I have dog syndrome I was born feet first.
This is great! Thanks so much for sharing
Nurse here
You're welcome!
You’re 10000000000% right. They aren’t the right people. ❤
I know you have a lot of rude or creepy comments on this video, but I’d like to give a genuine thank you for this level of vulnerability in order to educate others. I have an autoimmune disorder and a connective tissue disorder that’s progressing as I age. The two together have started to cause Gastroparesis which makes it hard to function normally. I’m finally starting to feel less weird and gross about needing a bedside container for urine on days I can’t stand or walk myself to the bathroom. It’s nice to have this info for the future should I end up needing it too 🥺
Thank you. I know that making videos about poop and pee will invite interesting comments. But I also know that there are people like you that actually need the information so I do it anyway. All these great comments make up for the few weird ones!
Hey as always Great video, have you ever considered having a home care worker,or a trusted friend help you with cooking, shopping, laundry,,,ectra ?
Not as long as I am able to do it on my own! Someday perhaps! First thing to go will be the cleaning lol
@@EmpoweredPara legit Girl Power ❣️👍☕🎃 lol
Well done.... you're a brave girl.
And it made me 'smile' knowing we have similar tricks like flushing the glove
Funny because none of my friends do it lol. I think it's common sense! I guess we think alike!
I give you a lot of credit for doing this. All the best to you.
thanks!
Good video it's informative
If I ask which type of gel the rubricant do you use
Muko is the brand
@@EmpoweredPara ok thanks
Iam Indian people and my age 27 and iam also SCI patient in last 2.5 year and my most problem is bawel menajment
Your video really helpful for my next junry so thankyou so much and lots of love my elder sister
Nice cleaning routine. I have one too. Lots of wipes.
I take magnesium citrate together with vit. D - magnesium can help boost vit D levels and if it is citrate type it also loosen the stool.
Magnesium citrate is definitely good as an osmotic laxitive! Thanks for chiming in!
You’re moral and physical strength are a blessing. 🙏🏼🙏🏼
I am paralyzed due to advance multiple sclerosis. Best way for me to have a bowel movement is using a bidet with an enema feature. No finger stimulation, as the stream of water stimulates the rectal area nerves to have a bowel movement. Also, no need for a suppository. You need to get a bidet. You're using too much time and your energy to go to the bathroom. I only have the use of one arm, so as long as you're able to transfer on the toilet, the bidet with the enema feature will stimulate your nerves to have a bowel movement. It's also much more hygienic, as it washes you clean. No need for wipes, gloves, pads, suppositories, again, I am completely paralyzed in both of my legs and my right arm. I developed a lesion in my C2 c3 area on my spine. The bidet has been a lifesaver and Time saver. All I have to do is get to the toilet and I can normally have a bowel movement in under 10 minutes.
Hi! I just started watching your videos. I just really like your personality! I wanted to say, your bowel routine sounds like mine. I'm not paralyzed. I have been on 140 mg of methadone a day for 11 years. Due to getting addicted to opiate pain medication, and Then, Heroin due to a back injury. Anyway, The methadone constipates me terribly! So, every night, I take 4 laxatives. In the morning I use a suppository and enema. I have to if I want to go to the bathroom!! I just wanted to say thank you for letting me know I'm not alone! 😊
I think many of us have trained our bowels lol. My dad goes like clockwork! Sucks that your medication makes you that constipated but sounds like you've developed a good system to keep the poop moving!
@@EmpoweredPara
😁 yes, I really do enjoy your videos! Thank you, and Have a blessed Thanksgiving!! ❤
@@jewelhaines8842 That's me, though I'm not an addict and need prescription pain meds from pain doctors to literally live or I'd be dead. Now I'm on super heavy doses of Oxy for 2-4 years and Vicodin for 2 and Xanax for 18 years. Not every person who takes opioids is constipated and many go muktiple times a day or every day.
I've been sick since age 15...am now 32...so 17 long ongoing years of horrific, life altering, 20 super rare complex incurable and intractable chronic pain diseases and health problems that span over a dozen fields of medicine and subspecialty fields for over half my life and I've seen literally 600 doctors,specialists, and actual scientists and whom are pioneers in their fields and had experimental testing done at the most famous top ranked hospitals in the States/world, literally North x South x East x West, and have gone to world famous hospitals like Mayo Clinic 3x and 2x and University of Miami Bascom Palmer Eye Institute 2x as well as John Hopkins Wilmer Eye Institute, University of Utah Moran Eye Institute, Northwestern University Hospital, the super brainy University of Chicago, Rush University Hospital all in the Chicago area as well as countless places in Northern Illinois and all over lower and Southeast Wisconsin, Froedtert Hospital (I practically live there and should move in), St. Luke's, University of Wisconsin....all to no avail. I have severe motility issues and an extremely slow transit colon. Since childhood, and part of this is heavily hereditary, I'd go poop once a week. Before I got sick at 15, I wasn't much better. Until my heart gave out, 1.5 hours of heavy weights and cardio 6 days a week, plus 60 min riding lessons 2x a week and 30 min hacking the other days on top of the gym with a total of 2-3 hours spent total at the stables, I was constantly hospitalized, ER room all the time, endless CT scans with and w/o contrast, xrays many many colonoscopies starting at age 15, etc and 10-15 years prior to ever taking opioids...I now have gastroparesis. I went to Northwestern who was supposed to have a nationally renound motility specialist...he was useless. Consulted colorectal surgeons and they said with all my medical issues my chances were a meager 33%, even if this was my only issue it would only be 50% successful and cause 5+ other issues and aggravate my existing horrible health isues and recovery is over a year if even works and in my 20s and early 30s, I REFUSE to have a colostomy bag. Waa trying to get to a Neurogastroenterologist but they are so rare and specialized tgat only Stanford, Penn State, and maybe John Hopkins and Columbia University could maybe help and that's a huge maybe; low they are such a specialized uncommon field that just to get an initial appointment is 3-4 months wait and they refuse to do a preliminary virtual consult to even see based on your health, records and GI imaging and tests done if you are even a potential candidate to be helped before flying out there and spending money on flights, hotels, rental cars...plus prescreening helps eliminate the mental and emotional anguish, frustration and devastation when you are inevitably told they can't help which is what you heard for 17 years for all your other 20 horrific incurable and intractable chronic pain diseases and health problems.
With my Gastroparesis and super slow transit motility, I literally don't eat breakfast, lunch, dinner or any snacks and yet it defies science and logic that I'm full of stool...somemlast week that were so large they were rock hard, dry literally tennis ball sized lumps of stool and there was like months worth in me despite eating a bowl of cereal 2-3x for dinner. I'm scared to eat and don't since 2019. I've fallen 3x and passed out from lack of nutrition at age 32.
I know all about saline and mineral oil enemas and every hospital grade enema, OTC and prescription colonoscopy preps, Miralax...which I took for a decade, milk of magnesia, mag citrate, all the heavy duty motility/constipation prescription drugs and injections and they either work for a couple days or weeks and then stop or don't work at all. I have boxes of gloves and lube as well as the enemasmand where I'm digging during majority of manual disimpactions of literally bone dry, rock hard pebbles or golf ball sized poops. I have special ingredient wipes and sprays and hemorrhoid creme and tonic. It's hell.
Exercise (nor water or my good diet) did NOTHING to help me go---and this was 10-15 years before I ever even took legal opioids....see above what I all did and I just got worse and worse. It got to the point over the years that I REGULARLY wouldn't go for 10 days, then 14 days, then 3 weeks, then a month or more...and that was being in-patient overnight muktiple day hospitalizations and weekly ER visits on top of all these useless, idiot GI doc appointments.
I told my aunts on both sides of the family and my paternal grandmother that I'd rather go through cancer 3x than 17 omgoing years of my 24/7 unknown, untreatable hell that literally robbed me of my life: highschool, college, job, dating/relationship/marriage, more domestic and international travel, any exercise--gym, dance, weights, showjumping and dressage, or any sporty activity I used to do, hobbies and passions, photography...and they all thoroughly agreed.
@@kelseyk530
WOW! You've been thru it!! I hope you have a blessed weekend 💖
Thank you for answering my next question. Lol
I used to take care of a quad,he said that he never had a nar that made the digital so normal and respectful, he also said I was the best at bladder thumping ,even better then Most nurses in the hospital
Gotta love the people who help us out and don't make us feel weird about the gross things we need!
I keep meaning to ask you but I’ve been totally pre-occupied for the past couple of weeks with ordering and receiving those 4 sweatshirts from Empowered Para. I’m having “issues down there” and I think using wipes might help. If I might ask, how and where do you get bulk wipes? And can they get safely flushed down the toilet?
I just get baby wipes. The ones I use can't be flushed so throw them in the garbage and just make sure I empty it regularly. There are flushable wipes but I don't think they are very good for the sewage systems.
@@EmpoweredPara Thank you so much! I was worried about the sewer system and our residential plumbing so I will go the garbage can route in my private bathroom. I really do appreciate you answering my questions. And so prompt also!
@@westiepower2020 anytime!
Thank you. I'm new to my wheelchair.
Have you ever looked into the peristeen system? It uses warm water and a dig stym. It takes about an hour to completely empty your bowel. Ive used it for more than a year.
Yes! I have wanted yo try it for a while. Not covered by insurance here in Canada so cost has been the thing stopping me.
@@EmpoweredPara Ah, I'm a disabled veteran. So I got in on the whole Coloplast experiment with veterans affairs.
@@peterpresutti9012 yeah I have heard amazing things about peristeen!0
Just do what you have to do people understand and if you don't they don't but just do what you have to do
I will lol. There's really no alternative haha
So familiar, and it gets harder and longer for me through the years. But at least I read a lot of books 😂
Gotta find the positives!
Thank you so much,
You're welcome!
good beautiful strong person,proud of herself and very sure of who she is...wonderful...🌞🌞🌞
Not always completely self assured, but getting there!
You are one sweetheart girl. Your man is blessed to have you.
Thanks Marlin!
I like latex and nitrile gloves!