The Results are is in!! I have lupus. ☹️
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- Опубліковано 5 жов 2024
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Bless your heart Jen. You got an entire UA-cam army following you and will continue to support you. You’ll have tough days but you’ll have more days where you feel amazing. Take one day after another and know this can be treated with patience. We love you!
❤ We are here for you! You and Jacob are both loved. Keep us informed.
Jen, it's so frustrating when doctors don't hear you and/or don't believe you. People in general can be real a-holes. So glad Jacob has been encouraging and supportive. He's a gem 😁 It's got to be a huge relief to finally have doctors that aren't judging you and are actually helping you. Thank you for being so vulnerable and sharing. You deserve happiness 😁
I was diagnosed with Lupus when I was in my 33 years old I am now 67. I also have fibromyalgia. I understand ❤ never look at someone else you might not get all the symptoms. I still cancel things at the last minute. It is hard. I learned ways to travel and do things that don't effect everything. I am married with grown kids and grandchildren. You life can be good! I so understand disappointing people. They learn and understand. Remember you can have more good days than bad. Just make sure you are with people understand you. Doctors did not listen to me too. You sound like me. There is hope. Take care of you ❤
Do meds make u better?
They aren't your friend if they say things like that. You deserve better friends that have your back.
True!! That's very unkind and cruel to say to anyone who has health concerns or any sickness or disease. She's a sweet person she doesn't need that junk!!💗
I agree!! Jen you are the sweetest person and they were not your friend...we all are your friends 😊
IKR!!!
Amen 🙏🏼
I have mixed connective tissue disease and Raynaud's, as well as Fibromyalgia. All autoimmune. It took me 7 years to get a diagnosis. Your not alone in your autoimmune journey. I too struggled with thoughts that it was all just in my head, and people just not understanding. You and Jacob are meant for each other and just remember you are loved! ❤❤
I feel you. My body doesn’t work well. I haven’t found out what I have yet. My entire life has been affected by not being able to function properly. It’s so easy for others to think I’m lazy, but very few people like you knows how it feels to want to do something and the pain, weakness, or tiredness is just too much. I wish you all the best. You have such good vibes, glad you’re getting treatment, hope everything works well and you feel better soon. 😊
Misjudgment can certainly come from ignorance, but that doesn’t necessarily make it easier for you to deal with. Your openness helps all of us here, your friends, to understand what we need to do to support you. Many arms are around you right now; can you feel it? You are definitely a strong woman who now has answers for coping mechanisms. We all love you; please gain strength from our transmission of healing energy.
You have us and Jacob ! We will never leave you we will always stand by you. I hope you keep doing videos and let nothing stand in your way
We love you and God never gives you anything you can't handle. Saying prayers 🙏🏻♥️😇😁
I can't add anything more than what everyone else here is posting:
At least you now know what you're facing, and how to treat it. Who knows, with all the advances we are making in the medical field...this is totally treatable and livable!! (This is a life long type one diabetic talking here...)
Also, you have a STRONG support system standing right beside you. Literally and figuratively.
Jacob will always be there helping you...and with all the fans and friends you've accumulated HERE, your support is immeasurable. We are all going to be "fighting" this with you. And we will laugh and cry and enjoy ALL the adventures you will allows to. ❤❤❤
I feel your pain!!! I Have SLE LUPUS it has been a shitty ride I will not lie. My kidneys have failed, had the gi problems, the eye problems, the pain,my lord the infection,all the hospital stays, and everything else that goes alone with it!! But I have had it for 30 yrs. Please rest try not to stress and don’t listen to all the ppl that haven’t got a damn clue what the hell is going on!!! So glad You have some good supporters. We are pulling for You as well!! Don’t get discouraged about the weight I have problems as well all the steroids and the times I not able to get up and move like normal even though I watch my diet. You can’t do everything all at once. Take your time processing this information take a deep breath!! You got this!!! Just do your research. Keep a journal and track your symptoms. We love you and proud of you!!!
Do meds make u better?
I'm crying along with you Jenn. I'm so glad you have your diagnosis and Jacob. It's so frustrating when doctors don't seem to care, sounds like you have a good one now.Things are getting better! Take care, we love you💗
Jen so glad your doctors are finally helping u to enjoy your life ahead!!! Prayers your new med works!! You are a sweet person. Take care.😇🩷
Jenn! Im so glad you finally got a diagnosis. I can’t imagine how difficult it was not knowing what was going on. It’s awesome to hear how Jacob supports you. I’ve had a tough time with doctors not believing me and the anxiety and depression that comes with that. So proud of you 🖤💜🖤💜 We are not alone in this!
Thank you Jenn, for being so upbeat and positive in such times of personal adversity. You are a wonderful human being. I know a little of what you are going through. A year and a half ago, i was diagnosed with type 2 diabetes, high blood pressure, high cholesterol, congestive heart failure, and renal (kidney) cancer. it was tough, but now I am healthy, my heart is strong, I've lost 80 pounds, been downgraded to pre-diabetic, and I'm cancer free! You can do this!
P.S. Jacob's a keeper!
Aww yay! Good job! 😊
You are such a beautiful soul. I feel so bad seeing you upset. Now that you know what this is, you can tackle it head on and do what you need to do in order to help your health so you can get better. Your emotional health is just as important. Stress can also increase the illness on your body.
Hang in there Jen. We love you and Jacob. Sending prayers and Big Bear hugs your way. So glad you and Jacob found each other and he is encouraging you to take care of you..❤️
Yes!! ❤
Hi Jennifer 🙋🏽. I'm glad that you finally have a diagnosis. But I'm sad for you that it's lupus. But I'm also glad that you're feeling better. Just remember that you can do ALL THINGS THROUGH CHRIST WHO STRENGHTEN'S YOU ‼️ KEEP YOUR HEAD UP BABY GIRL. I BELIEVE IN MY HEART THAT YOU ARE GOING TO BE JUST FINE.ENJOY YOUR DAY 🙋🏽❤❤❤❤❤❤❤❤🌹👍🏽💯
It must be a relief to have some answers. Im saying a prayer for you. I thanked my Dr for listening. God is good and He is a healer❤
amen!!
We love you, and are here for you Jen ❤
Same!
facts!!
Sending hugs and prayers! You’ve been through so much torture, and it’s good that the doctors have finally found out how to help you. It’s so great that you have Jacob to help you through this! My son and I love watching you two all the time. It’s like we really know you and hope everything turns out well for you.❤️. Hoping for no more pain for you! Hugs!❤️
Love you two!❤️
So sorry you are going through with this Be strong think Positive you will get through this ❤👊
Sending light and love. Glad you have a diagnosis❤
Sending prayers to you. My granddaughter has lupus.
I completely understand and empathize with you. I’m currently in a health journey myself trying to get a diagnosis. I’ll tell you one thing that has helped me is castor oil packs on my knees. I went from barely able to walk with swollen knees to being able to at least get around with less knee pain. Look up castor oil packs. Might not work for everyone but it’s worth a shot. Hang in there, girl. It’s not easy but it sounds like you’re on the right path to getting your health under control. Love and prayers 💕
we’re always there for you Jenny. God bless you!
Oh, So just want to hug you and make this all better for you. I am so sorry for this diagnosis for you. I am so glad you have Jacob and his understanding of your health condition. Hang in there girl and I hope the doctors and medicine will help your days get better. I am praying for you 🙏
Oh Jenn...😢 I feel you, sweetie. I know exactly how you feel. I am considered "lazy" even tho I have health issues.
Matter of fact, it's gotten so bad that I have to rely on a rollator to even walk.
OMG, your story sounds so familiar to me. 🤗🤗🤗
I love you, sweetie. If you ever need to talk, I am always here.
Sending you love ❤️, hugs 🤗, and prayers. 🙏
YOU are not alone!
I know what you have been through to get a diagnosis. I was diagnosed in my 30s. I'm in my 60s now and doing much better. Better days are ahead for you. Blessings!
Hey Jen! Sorry to hear your diagnosis! I am so glad Jacob supports you! Praying your you and Jacob. Glad you like living in North Carolina. I think you will be better in North Carolina weather
I’m glad you finally got some answers, and are getting appropriate treatment. Better times are ahead! I hope you realize how much your channel helps others in not feeling so alone. Thank you!!
Jen, thank you for sharing your story! Your openness is inspiring! I too, had to move to WNC to finally get a diagnosis for myself. My fiancee (now wife) knew something was wrong with me, and relentlessly pursued the right combination of doctors that could help.
What a powerful message. You are so honest and so amazing. So glad to have you here in Western NC. Start your own support group and call it Jennys Pennies. Just came to mind because of those pennies Jacob does. ❤
That's a great idea!
God's blessings on you. Be patient and listen to your medical team. There are many holistic approaches to treatment that are not just another pill (with side-effects).
Be brave, You gave a great sense of humor and a wonderful laugh. Your mountain view (from the ledge) is beautiful.
You’re like the sweetest person in the whole world my son and I love watching you. I’m so sorry for what you’re going through.❤ this information is very informative. I think I may also have an auto immune disease. You’re in my prayers.❤🙏🏼xoxo
I totally understand. I have Rheumatoid arthritis. I have problems with infections , healing and bleeding too. I have osteoporosis too. There are so many co conditions that occur. I wasn't prepared for. But you just have to keep going . Persevere. Yes other people don't understand and they drift away. But that's ok. You need supportive people around you. You're on the right track. Persevere and patience !
We will be lifting you in our prayers.
I'm sorry about your health issues, Jen. I have a few autoimmune diseases myself for many years. I just read a really good book that I'm trying to follow called The Full-Body Fat Fix. The doctor who wrote it basically suggests we should be eating a wider variety of fruits, veggies, grains, beans and nuts so our microbiome becomes our superpower, which helps our bodies to fight some of these issues. I hope your symptoms go into remission soon so you and Jacob can have lots more fun times this summer! ❤
I can definitely relate to so much of this, and I'm so glad you've got medical providers that are actually listening, working toward diagnoses, and support plans. And thank you for being open and vulnerable with sharing your experiences. I have MS, lupus, raynauds, eczema, chronic fatigue and pain, fibro, scoliosis, depression, anxiety, adhd and probably more I'm forgetting (or haven't been diagnosed with yet, lol). Medical gaslighting is a thing, and it sucks. Also with dynamic disabilities and never knowing how you're going to feel - I'm so glad Jacob is trying to be understanding and accommodating, I know it's so tough for both of you. It makes such a huge difference to have an empathetic partner who believes you and wants the best for you. I've been there with previous partners who gaslight you and say you're "lazy" (you're not!). It's so hard to learn how to advocate for yourself too. Getting diagnoses can be so validating, even if it's also a huge mental adjustment. I've found it really helpful finding disability communities (like groups on FB, etc) and knowing you aren't alone in many of these struggles.
Also plaquenil has made a big difference for me in terms of inflammation and some of my extra pain. The potential eye effects are scary, and the extra sun sensitivity sucks, but overall the pros have outweighed the cons. I hope your new meds help you! Starting to use mobility aids (I use a cane, scooters, power wheelchair, and most recently a rollator), disabled parking spots, etc have also made a HUGE difference for me in terms of what I'm able to do (especially things like conventions and theme parks)! Learning my body and pacing, not pushing myself, like you said, is always a thing too though.
Sorry for the long rambling message, haha. You definitely aren't the only weirdo! 💓
It is difficult to manage when you don't know what's wrong. I'm glad you have a diagnosis finally, sometimes just knowing wth it is that is wrong can help so much. I hope you continue to get the good help you seem to be getting now. You are not alone in this, and we are all with you and behind you supporting you! I hope your road to better health continues!
you seem like such an adorable person to know be around. I am so glad Jacob found you and is helping you. That is what you have needed for a long time. God be with you and my prayers will be with you and continue your videos because there’s so many of us here that enjoy listening to you, I knew from the beginning when I met you with Jacob that you were good for him. I had no idea you had all these problems, but I am so glad things are looking up for you. It may take a while but you will get there. God bless you, Jen.
I’m going to start all the testing this year for this. Thank you for sharing everything … you don’t know how much you’ve helped me.
You inspire so many people. Thank you for sharing.
We're so proud of you Jen for being able to get the help you need,and now you can properly be treated!! This makes us so happy!! We love you!!
My heart is breaking for you! The struggle with this has got to be the worst.prayers for you!
Thanks. Hope you feel much better soon
Such A Positive Being Diagnosed! As I Said Previously You Have Surrounded Yourself With A GREAT Team & Are Being Proactive ❤️ More Answers As Apposed To Questions In Your FUTURE!! All The Best Stay Blessed.
Gentle Hugs to you. Watching your video was actually comforting to me because I no longer feel alone. Very similiar experiences for me as well.
Worst part is friends and family not understanding and the guilt I feel when I have to cancel plans and not accept invitations because I never know how I will feel on the day of the event. Because people can't "see" the auto immune condition(s) it's difficult for them to know how much pain I am in all the time and they think I'm just making excuses not to do things. Doctors also thinking my symptoms were in my head and basically blaming me for them not being able to establish a diagnosis as my body continues to decline. And it wears me down when I continuously try to advocate for myself so I just give up for a couple months and then try to advocate again. It sucks. I'm glad you now have a diagnosis. 💖
Oh sweet Jen my heart totally goes out to you may all the beautiful angels wrap their arms around you and heal you !!! You are an amazing and beautiful woman your future will only get better from here !!! I can relate in some situations I have bad knees back and a laundry list of things wrong with me pain is no joke etc . I feel the same way at times just gotta keep our heads up plus you have an amazing support system and Jacob loves you so much he truly brings out the best in everything I love you both keep on smiling 😃 ❤🎉😊
Sending you all the love Jen! Honestly it's just one day at a time for my daughter and I and our chronic illnesses. We celebrate our wins, and they look different than most people's, and that's okay. Don't listen to naysayers and negative people, and don't be surprised if sometimes the wonderful people in your support groups bring you down. We're all at different levels of illness, and hearing their struggles can affect us sometimes because we empathize so much. Sending best wishes for continued strength and perseverence, and love and comfort from Jacob and your community.💞
Your in my prayers... big hugs sweetheart , glad you found out what was making you ill .
Prayers and love to you, Jen! ❤
Wish you the best Jenn.
Hey Jenn! Just heard the news. First off super sorry! It’s not your fault it’s just a part of life. I’ve had lupus since I was 6 months old, diagnosed at 25 and I’m 42. Really sorry it took so long to get a lupus diagnosis for you that’s painful enough. One more person sharing lupus awareness is fantastic. It’s going to be ok Jenn, I promise!!
Jenn we are here for you ❤ I know that it's a hard time to accept illness but when you know it it all makes sense and the medications are right and now they can help you for real❤ stay strong and heads up ❤ and if you're feeling not good and you wanna stay home do that . Ppl have to accept is 😊
Love you Jen and you have one heck of a support system backing you and keep your head up you are an inspiration to all of us
I just finally watched the video just now and I wanted to thank you for sharing what you are struggling with physically. I had no idea that you are going through that especially with Lupus, I know what it is like being in my 40's and going through some physical issues like balancing issues as well as Cerebral Palsy and Degenerative disc disease. You are not alone with this, you have a wonderful support system like Jacob and his family and your family as well and especially your friends and his friends as well. I think that you are helping others by your content and the message that you are conveying towards us including me, I forgotten how wonderful it is to smile and to find the joy in everyday blessings and to feel the blessings everyday as well and it doesn't matter what you are going through just continue to find the joy in life and continue to help remind us to smile and find the joy in everything that we do in life. Keep being a blessing to Jacob and to everyone that you meet.
Well one way to look at it is that it is GREAT to have a diagnosis and to be able to start getting proper treatments! You'll now be able to attack it with your doctors. It is terrible when they can't figure out what you have. Always keep being a great advocate for yourself with the docs and the insurance companies and such. I've had the misfortune of having loved ones who suffered too long with no clear diagnosis(and the "stress" diagnosis rings a bell with one person close to me, it's so easy to blame). So this is a victory! You got this Jen!!!
Sorry you are going through that❤❤❤❤
I have Lupus too, but it isn’t as bad as it used to be. It was much worse in Colorado. When I moved to Midwest it went into remission. Good luck!
Prayers ❤️🙏🏼🦋🦋🦋
When I was growing up, I was abused, at the time I didn't know, I was very angry, lonely, I had no friends, it took the early 2000 before I had a diagnosis of trauma with CPTSD, while it's good to finally know that I am not go "crazy", I'm still learning to cope with it, it's a seconds, minutes, hours, day, week , month, yearly process, so I get it, it takes a lot to say, hey, I'll be ok, even when you're not, hugs to you
Jenn you will get through this! Now you know what it is the treatment is going to help you greatly. I have a similar auto immune disease and I have had sepsis and it’s been a pretty rough ride but I’ve had 30 years plus that I wouldn’t have had if I hadn’t fought. my suggestion is getting into a good support group, be your own advocate so if you have questions, you bug those doctors to death and you feel something is wrong. Follow your gut. You’re welcome to inbox me anytime you want.
Thanks for sharing, am happy that doctors are listening and working on your treatment. I understand about pain using up your energy. I really want your new meds to be really effective for you. I’m glad I’m not alone in appointment anxiety lol. I wish all good stuff for you :)
Beautiful lady, sending you so much love…I can totally relate to all of this, and I’m so glad you found some doctors that are actually listening and doing something to help. You got this 💝
So glad you've got this news and can put a name to your symptoms - and can now access the treatments you need. We're all here and pulling for you! Looking forward to seeing more happy Jen videos. 😊
Bless your heart Jenn! I'm happy you have a diagnosis. I still don't because they want expensive tests and biopsy. But I feel your pain. I work in extreme heat and it is absolutely brutal! Dehydration makes my pain worse and I drink so so many fluids but it doesn't help. Jacob is a lucky man to have such a sweet and honest person to come home too. We care about you. ❤
Jenn I'm so glad they figured out what was wrong .. Maybe you will have some peace now with yourself. Bg hugs and Love to you
Bless you Jen. We are all behind you with love and support. You have found a great guy in Jacob. He is a great support. As you are for him. Take care of each other.
Hey Jen. I found out I had Lupus after I had my Daughter. My muscles went into complete fatigue. I had issues talking, walking, and I couldn't hold my daughter without assist for first 3 months it sucked. My doctor tested me to see if I had a stroke and that came back good. So after two doctors and ANA test they found out I had dormant lupus my whole life and childbirth put my body into overload. I had cancer 2 years ago and bounceback was hard but what amazing bounceback it was. You are going to be fine chica. Just listen to your body, rest when needed, and know even when you are not feeling your best you are doing your best. Sending ton of hugs your way. ❤
Much love to you and Jacob, god bless you both! Hang in there hun.
I think something similar happened to Dorthy on episode of golden girls . Where she was really sick . But a bunch of doctors didn’t help her .
your amazing Jenn and don’t forget it! ❤🐿
Oh Jenny, you have my prayers as one who suffers from an accident years ago and it only gets worse as I age.
You look great tho.
Learn to know your limitations and know that is who you are and just do what you can.
I'm very lucky to have family and friends who support me 100%.
God bless you..
I’m so glad you finally got a diagnosis. It took me 10 years to get my myalgic encephalomyelitis diagnosis and there’s absolutely no treatments and doctors know very little about it so you’re on your own. The medical industry Is not functional especially when it comes to chronic illnesses.
Take care of you! Flares are the worst. Celebrate the glimmers and good days. Hibernate during the bad days and definitely plug in to the chronic illnesses communities. Thank you for sharing.
That’s fine if need to rest that’s ok I think speak for everyone we will be here when you get back . I’m always excited when you put a new vid
At least you have answers.
FYI
Yes, people with lupus may be eligible for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) if their condition prevents them from working. Lupus is listed as a disability condition by the Social Security Administration (SSA) if it meets certain requirements. These include:
Daily activities: Lupus limits daily activities
Organ systems: Lupus affects two or more major organs or organ systems
Employment: Lupus prevents someone from engaging in substantial gainful employment (SGA)
Duration: Lupus is expected to last for at least 12 months
Sorry to hear you have lupus prayers are going out to you
My heart and love are with you! I have a chronic disease called endometriosis (stage 3) and Autism. When people don't realize how exhausting living with an illness is, they assume. I have been told that I am flake and dramatic. People ha e ZERO clue how difficult it is. You are not alone my love! We are here for you ❤
Awe jen my heart breaks for you. I have a similar health condition that makes me "unreliable". At least you have answers now ❤
God bless your soul. At least you have a name to your illness. Too bad the other doctors didn't listen to you. Your geniune friends care,Jacob cares, and you are truly loved by your you-tube fans. I have a young friend at church who also has other autoimmune problems and was just diagnosed with Lupus. She has good days and bad days. She also has struggled for years without a diagnosis. Do what you can and what you can't do don't worry about it. God put you and Jacob together to give comfort and support to each other. May today be a peaceful happy day for you! Gentle Hugs! Chris and Dave
I was diagnosed with lupus by Carrier A and undiagnosed by Carrier B. 🙃 I have fibro, autoimmune issues as well. A private clinic found a genetic mutation,MTHFR, for fibro from both parents..so double whammy. They also found that I had no D, Potassium, or Iron in my system. They didn't know how I drove there. It really helps my energy to make sure I get my vitamins, but I can only tolerate taking them once or twice a week. I stay away from everything that causes inflammation too..caffeine, and anything that turns into sugar in my system, zero bread, pasta, potatoes, rice... I mostly stick to homemade lemon chicken soups, white fish, and salads with lemon and avocado, which is my only fat. I still have my ache/tired days despite it. MSG salt is a killer trigger, most salt is a no-no. Suggest you eliminate what inflames your body so you can get moving. Warm pools are an amazing relief to me, so I joined the YMCA. I can not be stimulated by light, sound or crowds; although, my brain is okay with Disneyland-it actually relaxes me to be there (maybe the music and sweet smells helps, I don't understand it). I live in socal, many I grew up in L.A. with have autoimmune issues as well. 🤷♀️ 💪
Jenn, sounds like you have a good team of specialists now that you have moved to NC. And Jacob by your side to help guide you to take action for your own health care. Sounds like you have a good support system. I appreciate this video, because it helps remind me to keep finding answers on my own path to getting treatment for my own health conditions. I can relate to the down days, when we can't function and people might not understand , and we can't participate in events or do basic things. I'm there. But then there are the good days. Thank you for sharing. And you look great and even though it's a tough journey, look like you have the answers and help you need to manage. Much ❤
🦋You got this, Jenn!! You have many people supporting you! And Jacob! ❤
Glad you finally got a positive result...only so you finally know that that's what it is. I'm 69 and in a lot of pain. I have Paget's disease in my right hip, bad arthritis in my back. Them Type 2 diabetes "gone wild", doctor is working on that and some other pains. So, I understand somewhat. Anyway, I wish you the best and I hope you have more "good" days than bad!
Lots of prayers and support to you Jen.
Oh Jen. Wishing you better health from now on in. Can only go up from here!!.
Best of luck from fans in New Zealand 🇳🇿
Im so glad you got a diagnosis. I think not knowing is worse. I am factor 5 and have meniers disease. I was so glad I wasnt crazy and had diagnosis. Best wish and love your videos!!
Jen I know the feeling! I have MS. I didn’t know because I blamed the symptoms on the stroke I had at 34 from a cyst I had that went septic and had a stroke. So I did not catch it until I thought I was having another stoke and went to the hospital. So I totally understand being exhausted and it hurts to move. I had a stent but in my brain that helped my headaches and double vision to do with a pseudo tumor, spinal fluid squishing my brain tricking it into thinking it has a cancerous tumor when it’s just being squished.
Your awesome!!!! And i know all about the good and bad days i heart issues. I just had a tripple bypass in march! Keep on going!!!❤
I know that's what you thought you already had, but I'm still sorry you're dealing with it. At least you have an answer now. Sending a lot of love to you. We all support you and are here for you. You're seriously amazing and inspiring. ❤ Also, beautiful location for your video.
Love your profile pic😻
@TheCatLady65 Aww thank you! He's my baby!❤ His name is Shinra and he's 3 1/2.
@@alliekuma4234 He looks like a real sweetie 🙂
Wow. Girl, you’re making me cry. So glad you moved for various reasons but especially because you have new doctors. You have answers now and can be treated accordingly. Don’t let people bring you down. A support group sounds like a good thing for you. Sending hugs and prayers to you.
Aww Jen my prayers are with you sweetie ❤you are strong and you have alot of support and love❤
I'm glad you found your answer.
I feel for you. I get it 100% I have fibromyalgia, was diagnosed when I was 40, I have had it for 20+ years I dealt with family and friends thinking I was making everything up. After a while I just didn't care what others thought, I no longer needed anyone's validation. It's nice to have it once in a while, but I don't expect it. My husband thought I wanted sympathy, I just want some empathy, emotional support, which I get now. I just decided what I had to do for me. You are not alone. I was tested 2 years ago for everything by my rheumatologist, I did not have lupus. I was sent to physical therapy which is very helpful. I also cannot be in cold or humid weather, those are major triggers for more pain. Now that you have a proper diagnosis, you can now find a treatment that works for you❤❤❤❤ Hugs😊
Jen....I am so sorry that you have lupus but I am glad you know what has been ailing you. It is so hard to have chronic illnesses. I just want to give you a big hug and tell you that I care about you.
I’m sure you have been given so much medical advice, here’s mine. Autoimmune diseases tend to cluster so don’t rule out other involvement. I have six of them including sjogrens and when you spoke about your eyes I immediately thought of that. It took me 40 years to be diagnosed properly and that was with a positive ANA. It made me feel crazy too, I’m getting proper treatment now but I can’t help but wonder if I had it from the start how much better I would be doing.
So glad you finally got a diagnosis. You are a strong lady. I'm sure this will help a lot of other people. Keep on keeping on. Love your channel
Hi Jen! I've never commented on your page (I come from Jacob's page) but I want you to know you're an amazing and strong person and I think you're wonderful. I'm so sorry you're having to go through this but super proud of you for advocating yourself and taking the hard steps. I agree with others, you're going to find what's best for you and continue to flourish. Do NOT feel bad when you can do something. It is NOT your fault when you feel ill. ❤ You've got this!!!
Sending you a massive hug Jenn! Here for you every step of the way