congrats again on your endo diagnosis simsie! so many people with periods struggle to receive proper healthcare due to lack of research and understanding. it's infuriating that you had to fight for so long to get answers but it's so good to hear that you finally know what's going on with your body!
Yess, I’m not a endo patient, but I had to wait almost two years to receive a diagnosis for a “suspected” autoimmune disease that I’m still waiting for, unfortunately times are sooooo long and it’s not fair for people who suffer from this. Also, you can find amazing people that will tell you that your pain doesn’t exist and you’re being dramatic, so yeah, that’s fun.
She has endo?? Omg I just turned 18 yesterday and I’m so looking forward to hopefully getting tested soon. This might sound super weird but I’d be so relieved to finally be diagnosed with it because I’m so sure of it and it would finally explain my symptoms!
@@cat-pl7sj That is not weird at all, anyone who has never been through anything similar cannot relate, but finding THE NAME of what is bothering you is another level of relief.
Medical misogyny (as with medical racism) is sadly still very prevalent, and it's more than time the issue was taken seriously. Simsie's experience of double-sided anxiety is so, so common with female-presenting people suffering with chronic symptoms, and is often at it's height when dealing with "women's problems". It's getting better, but the more it's talked about, the more pressure is put on the medical community to do better. Bless Kayla, and everyone that is willing to share their experiences so openly, and honestly, it makes a difference.
That sucks about your doctors not taking you seriously. Back in 2017 I had pains in my stomach area and the doctor basically told me I was fat and to stop eating acidic foods and said it was heartburn. I was only 5 lbs overweight at the time and the pain turned out to be appendicitis. I had to have surgery that same day to get it removed. I'm glad that you kept fighting to get your diagnosis. You know your body better than anyone, you know what hurts you, doctors should have believed you.
i relate to that a lot, doctors barely ever seem to take me seriously. when i was 13 and got my first period, i was in so much pain that i couldn't physically walk, but no one took me seriously about the pain and said i was overreacting (i had a pe teacher who made me run extra laps because i complained about being in so much pain i could barely breath) until i was 15 and my obgyn on my first appointment heard about the pain i was in and INSTANTLY prescribed me meds for that and said that the other doctors should have listened cause not being able to walk was in fact, not normal
@@swirlychaos seriously though. I only found out like two weeks ago that most women don’t bleed so heavy they need a pad AND a tampon (and still bleed through)
@Astralixe Same! Except I was 10. I was lucky that I had the mother i do because she advocated for me fiercely. Now 8 yrs later I've been put on a newer med specifically made for Endo! It's called orlyssa but idk the right spelling for it, it's a medicine name they never make sense! 😂🩷 but for 8 yrs i couldn't walk during my period and has to take off of school...the school was not pleased but when I can't walk to the boss I ain't going to school 😂
@@ciara8860I recommend buying reuable inconsistent bed pads for when you sleep to help save your bed! Or even for a chair! I also wear period undies on top of it all. That worked for my heavy periods when I was still having a period
it's so validating to hear simsie complain about the swatches in the nursery kit 😂 I felt CRAZY trying to make a green nursery and half the items didn't have the pastel green swatch!
I'm 33 and I've spent 15 years in and out of hospitals being laughed at for "claiming" being in pain; the relief of finally being diagnosed and actually listened to is undescribable! So happy for you that you finally have answers ❤ Oh and the build is pretty friggin' cool too!
With invisible conditions like endo, chronic pain, fatigue etc are so so hard to make people believe you, it's wild how hard to can be to get health carers to believe you, it really shouldn't be. I'm glad you got your diagnosis!
This. I have been struggling for years and had no idea so many things were linked to chronic fatigue until I convinced my doctor to give me a referral - had to wait 11 months to talk to them but progress is progress.
@@racherutheneko7270 I hope you're able to keep pushing in the right direction for a diagnosis and support, progress is definitely progress, but the medical profession needs to make progress in its way of thinking towards these conditions
the most frustrating part as an endo patient is that it's VERY visible inside the body. they just love refusing to do the surgery no matter how much pain youre in. i was diagnosed at 15 bc of how bad it was. 3 years later, been on birth control for all that time. they keep telling me to come back if im still in pain, and yet they keep refusing to just give me the damn tissue removal surgery even though ive told them that several times
I appreciate you so much for being so real about sharing your health journey with us. I’m also so happy you got a much needed answer! Love your content!! Hope things continue to look up for you.
thank you simsie for talking about your diagnosis, we need more people talking about their experiences to make more people aware. I didn't even know my half-sister had endo until a few years ago, then one of my teachers, then by others such as yourself. When I brought up to my nurse at the pill appointment I had a few weeks ago, given I'd heard that endo can be partially genetic, she dismissed me with 'oh, you'd know if you had endo'. Bearing in mind that I went on the pill specifically because I had bad periods myself, and that I have been told that I could get keyhole surgery to double-check years ago but the doctor 'didn't want me to go under the knife so young'... I constantly think about whether I am/was over-reacting, or if I genuinely have a basis to be worried. Maybe one day I might get keyhole surgery, just to check, but for now, after being on the pill for almost 5 years (out of the 7 I've had periods), I just have to wait to see whether or not things get 'worse'.
i'm so sorry about your bad experiences i really hope in the future you find healthcare professionals that act more professionaly and take your concerns seriously!
@@sam-ky9sj thank you so much - what keeps me going is knowing that not all healthcare workers are against me. Hopefully I'll find someone who can help me out :)
I think your doctor was kind and honest. It's the only way to tell for sure and it's invasive. From someone who has had many surgeries they don't heal perfectly and carry quite high risks. Doctors are usually discouraged from telling you, but trying to have a child is usually the best option. The pill is really quite bad for you, and your first baby causes a lot of changes and 'finishes' your development. If you struggle to have children then this operation is an option. If you're happy to be on the pill why would they ever cut you open to give you what you're taking already? Doctors don't care enough about diagnosis to endanger you for it.
hi kayla! i have endo as well, i have a flare up almost all the time, and I have gone to 9+ doctors. your videos always make me so happy and distract me from my flare ups. Thank you for being so honest Kayla! i appreciate you opening up!
Do you avoid soya and oestrogen mimicking foods/pollutants? I believe it makes you very sensitive to those, so soy sauce, soy milk, tofu etc. Many people don't know soya is used as a treatment for low oestrogen and is medically significant.
These houses are a great representation of what I find beautiful to look at (the dark house) and what I would be more likely to live in (the pastel house). Elegant, dark interiors are so gorgeous but you won't catch me wiping the dust off those black walls and carpets every darn day.
I also have endometriosis and finally got diagnosed with it last year after 5 years of doctors saying it was my body adjusting to starting puberty at only 10 years old. I'm now 5 months post-op from laparoscopic surgery where my new finally good doctor found endometrial tissue completely covering my uterus, ovaries, fallopian tubes, and bladder. the problem is that because it went untreated for so long, my uterus is completely filled with it and is the route of my pain now. They can't surgically remove it from there so the only treatment is estrogen which I can't take, forced menopause, or a hysterectomy (both of which I couldn't get even if I wanted to until I'm 18). So basically I get it, and I'm so sorry that you have this pain and I'm so glad you got diagnosed! Ik you won't read this anyway, but your videos have helped me so much, so thank you!
i also got diagnosed at 15, but I'm about to turn 18 now and they won't give me the damn surgery despite how obviously severe it is. how'd you get them to listen??
@jestphoenix I'm really sorry that you're going through that. I got them to listen by getting a good doctor after a lot of either bad or unqualified ones. My current doctor is the head of the gynecology department, so she had the authority to say that I needed the surgery and performed it herself. In short, I recommend getting a second opinion. I wish you the best!
My friend suffered for over 22 years with an extreme type of endo and a few other conditions. She was gaslit by so many doctors. IMO they should all lose their licenses. Her issue was so bad it resulted in a total hysterectomy at 31. The healthcare system needs to do better by women.
Kayla I am so glad you finally got a diagnosis and I am also really glad you talk about endometriosis publicly! It‘s so important to raise awareness because it is still so underdiagnosed. I honestly teared up a little at that section of the video. Having been trying to get diagnosed for something else myself (that’s underdiagnosed, too) I know the feeling of „Am I just making it up?“ so I‘m really glad that you have the question answered now ❤
I cannot imagine how hard it must've been to not only deal with the pain of endometriosis but also the anxiety of not being taken seriously... I can't express how happy I am that you finally got your answers and hopefully that'll give you acess to better treatment ❤ Really great video as always. I also want to say how great it is for me that you take the effort of having a person do the close captions for your channel, it would be so easy to just use AutoCaptions but you always go the extra mile and that shows you do care about everyone that watches your videos, thank you from the bottom of my heart as a non-native English speaker. I hope you and your friend have so much fun at the concert!
I had a similar experience with doctors making the diagnosis process super difficult, but finally last week I saw a doctor who took me seriously and it is likely that I also have endometriosis! Knowing what is wrong is so relieving, im glad you were able to finally get an answer!
Regarding the use of many packs v few packs, these unlimited builds are so so so fun! I do also enjoy those randomized-pack challenges where you can only use 2 or 3. Both types of builds are interesting, just for different reasons ❤
I completely understand the struggle with taking so long to get diagnosed. I’m 36 and was just diagnosed PCOS and other issues. Have been going to doctors looks for answers for YEARS to just be told “it can’t be that bad” or “so you have bad periods, everyone does, get used to it” even worse “maybe your just exaggerating your problems”. Finally found a doctor who listened, she went through the same thing so she understands. I will admit I cried when I was finally given the answers. It just felt nice to be heard!! I’m so happy for you that you have finally been heard and recognized for what you’ve been going through and I’m sorry it took them this long.
i’m so glad you finally got that diagnosis! i got diagnosed with endometriosis and pcos earlier this year and it was such a relief!! it was so so hard to get to that point, i even got to the point of chronic pelvic pain and nobody would listen to me! i ended up getting diagnosed when i had an emergency appendectomy and there was endometriosis on the outside of my appendix. from one endo girly to another, i hope your diagnosis is helping you experience less pain 💕
I rarely leave comments but I just wanna to tell that I'm so glad you finally got diagnosed! For me it took 10 years, I totally understand the frustration and fear that it's "just in our heads". I wish you lots of courage for this new life as an endo warrior 💪🏼 ♥️ full support Simsie!
Giiiirl, I'm so happy for you! A diagnosis is such a relief. I also went through the same ordeal, doubting myself, thinking maybe this is normal and I'm overthinking it, where the original gyno told me I was fine, and the second opinion Doc found the issue immediately. Wishing you luck on your treatment journey! Thanks for all your amazing builds! Its really helped take my mind off things lately and start building again after a 3 year Sims 4 hiatus!
Having answers feels good, doesn’t it? I would say, be prepared for an overwhelming flood of different feelings over the coming weeks and months. Everything from relief to anger to frustration to sadness and even grief. I’ve spent my whole life fighting for a diagnosis for this or that… all your feelings you’ve been experiencing are 1000% valid. The Questioning yourself… the questioning them… all normal. Just remember, everyone feels pain differently & if the pain is significant enough to impact your daily life, it’s significant enough for your doctors to give a dang about. Also wanna say, I FECKING LOVE WHEN YOU BREAK OUT OF YOUR COMFORT ZONE! You are so much better at building than you give yourself credit for. When you relax and just enjoy the process, it’s an absolute pleasure to watch. Keep breaking out of the comfort zone, please! Maybe it’s time for some build series? Simsie tries different aesthetics in the Sims or Simsie tries different architectural styles in the Sims. Could do a little research about the history of each & then do a build (either a whole building or a room) focusing on that one specific aesthetic or style. I’d watch them all! Also, Batuu has some baller light fixtures (size them accordingly) and really great clutter items too. I have never once done the game play but that pack… it finds its way into nearly every build. 😅
It took me literally screaming like seriously screaming at my doctor to take him serious about my period pain, and then it still took two years to get diagnosed with endometriosis. I'm glad you could finally get some answers, and hopefully your dr will help you take some steps to feel better.
it is soooo validating to hear your experiences with endo and doctors, im so glad you were able to get diagnosed. the anxiety you felt is so relateable to me and i hope things go well for you simsie!!
I finally got a diagnosis around 2 months ago and I understand how relieving that can be. Learning I have narcolepsy explained so much, and having that answer opens up treatment options. It's been interesting telling friends and family and having them react like its such a bad thing when I was kinda excited lol, like yeah it sucks that I have narcolepsy, but it's sucked for literal years, I just know why now. All that to say, I'm really happy for you, Kayla. That anxiety you described is super valid, I know I went through something similar, but I hope having an answer has relieved some of that stress.
I have endo too, when I finally got diagnosed 10 years ago I cried because I had always suspected it and I knew then that I wasn’t crazy. It definitely sucks to have, but I find the endo community as a whole online is a great source of support x love this build btw
I'm so happy you finally got answers!! I've had some very similar experiences, so I definitely can relate to that nasty nagging part of your brain telling you "this is normal, you're just overreacting," and I'm so glad you've finally got validation that it *isn't* normal and your pain is real. I had endo as well, and never had a doctor even realize it until I had my hysterectomy last year because I was convinced that it was normal to experience that much pain during my period. To anyone who is dealing with *any* amount of consistent pain/fatigue/etc, please please please talk to a medical practitioner about it and continue advocating for yourself until you've been heard. It's frustrating we have to fight so hard to get the medical attention we need, but it makes such a huge difference once you find someone who will listen.
Congrats on your diagnosis! It’s weird to say congrats, but when it takes months or years to get a doctor to listen- I guess that’s a reason to celebrate. I got my Endo diagnosis this year too. A few years ago I told my obgyn that I thought my periods were kinda heavy and cramps were rough and I was getting older and didn’t think they should be getting worse, and basically after trying a few BC options, she said “I guess I’ll give you a prescription for extra strength ibuprofen, not sure what else to do.” Last September, I had crippling cramps at work and couldn’t drive myself home. Fast forward to this September, I had three endometriosis cysts removed from my ovaries. 😅
Thank you for talking about your endo diagnosis. I also have endometriosis, diagnosed at 16, and it’s hard to feel seen when you have an invisible condition, love ya simsie for bringing it to light
Medical anxiety is so real especially with female related medical conditions! I’m so happy you were able to get diagnosed! It took over 10 years for me to get my medical diagnosis which resulted in 2 emergency surgeries in 2021. We absolutely deserve better healthcare. Very glad you were finally able to get answers 💕
I dont know if you'll see this, but I hope you're able to prepare and evacuate for Hurricane Milton. I was really worried during Hurricane Helene because I remembered you'd mentioned you were near Orlando; my area in georgia was decimated because of Helene. The whole time I was out of power and internet, I was so scared I would get back online to watch your videos, which are the highlight of my week, to see you went through what I and millions of others had went through. You're such a kind soul, and I'd hate to see anything happen to my favorite youtuber ):
Hi Kayla thank you for opening up about your health journey! We should normalize talking about it! It helps so many people feel less alone. I don't have endometriosis but I have other health problems that have been a mystery and it sucks to not get a clear answer, especially by doctors who should be able to help. I also love your videos and your builds. When I'm feeling uninspired your videos remind me how much fun building is
we have a set of houses in my hometown that are EXACTLY like this! two houses, new construction, on the same lot, one black and one white. it's delightful and i'd honestly love to be able to see how their respective owners have decorated the inside!
thank you so much for sharing your health stories, as someone who struggles with chronic issues it means a lot that creators are able to create safe spaces to talk about that stuff!! ❤❤
I'm glad you finally got a diagnosis. I got diagnosed 10 years ago and I still feel like I must be exaggerating or making it up. I hope that your doctor's will be supportive of you and your journey going forward. Good luck 🤞 x Also I love these builds. I always love watching you do opposites, it is very inspiring 😊
10:35 health anxiety! Especially with things like endo it’s very common because it is such a hard thing to diagnose unfortunately because for so long it was just seen as women being dramatic or having a low pain tolerance. I’m glad you finally got answers!
It's amazing to finally get a diagnosis! I'm so glad you feel relieved now knowing for certain. Endo has been in my family for a while and I was lucky to be with doctors from the get go who understood I am likely to also end up in the same boat, and have helped me along that journey. But as someone with something as simple as chronic sinusitis, that didn't get diagnosed for 18 years after had been put on all these medications and steroids, and as it turns out the best thing for it is something non-medicated. I felt so relieved at finally having an answer and being able to review steps to help improve my quality of life, I'm so glad you finally got that answer too!
As someone whose doctors didn't take her seriously either for a long time? I get it and am glad you got your diagnosis! It feels oddly relieving when that weight is lifted off your shoulders. I have fibro and chronic fatigue and it's a struggle to get people (Especially doctors) to take you seriously. High five to both of us.
Congrats on finally getting an answer for your pain. As another chronic illness person, I understand completely how frustrating it is. I also grew up with a parent who is a dr, so medical gaslighting has always been a part of my life. I finally got diagnosed with my chronic illness this year, after complaining about pain as soon as I could talk. Turns out I'm not a wimpy princess, I'm a chronic pain prince 💪 Also, it's okay to cry. Sometimes, chronic pain can be defeating. We're here for you, and anyone else here who's suffering from chronic pain or anything like that. I hope those who don't have answers yet, will find their answers soon. Sometimes you just have to waltz into the drs office and dislocate a few joints in front of them to get a hEDS diagnosis 💀
That last line, oof. It really sucks how far we sometimes have to go for medical professionals to take us seriously. Congratz on finally getting your diagnosis!
@@blaireshoe8738 Thank you so much. It really sucks how I had to do all of the research by myself before waltzing in and dislocating a few joints. Not everyone has the time or energy to do research like that.
22:40 I am really excited about the new pack, BUT I am nervous. I feel like the Sims community's inital pack reaction is YIKES a lot of times. But this time, the general reaction seems really positive from what I have seen. So I am scared of EA releasing it and it being broken as so many packs are. It will be unsurprising if they do, but I think it will hit different considering how excited everyone seems.
Thankful you finally got a diagnosis. I just had surgery for endo (amongst other related issues) last year and it was such a relief to be heard and finally get real help. Here's hoping to continued understanding and healing for you in the future. ❤ And remember we're all okay with you taking breaks if necessary!!!
That feeling of "making it up" is so real. You feel like you are, but then you have a bad flare up and reminds you that you're not overreacting. I feel like its hugely a universal experience for these kind of issues so congrats on your diagnosis and for not giving up in order to get it.
Simsie, I had the exact same medical experience. Finally getting a hysterectomy at 36 after a lifetime of the runaround. I'm glad to hear yours has been caught and assessed! It's a comforting feeling, for sure.
Congrats on your diagnosis! My nurse hugged me when I finally got diagnosed with hashimotos and I just cried because I finally couldn’t be called crazy anymore. I have severe ocd so the anxiety of something being wrong and literally just being seen as insane, I was losing hope. I was offered a social worker before any sort of stress testing for my tachycardia. My symptoms started at 16 and I didn’t get diagnosed until I was 21. My sister had hashis and then thyroid cancer by 24 and they knew that and still didn’t check my thyroids antibodies, aka checking everything with a thyroid. I only started seeing an Endo bc of my PCOS and insulin resistance. I basically had to beg him to just feel my neck and sure enough I needed a sonogram and he ordered the tests. I do suffer from uterus issues as well, and while this isn’t uterus related, being a woman and being seen as hysterical/fat/hormonal, is no doubt why I had to suffer for so long. I bled for a month and a half recently and am still cramping painfully but with all of the disrespect I truly am so uncomfortable at doctors, I’m sos cared to ask for help. I’m so scared to be called crazy again. Now I’m scared of what could’ve been wrong this whole time, again. This cycle isn’t fair but winning my hashimotos diagnosis is really the least I could ask for. We are too too young to live in this pain. I’m only 22 and constantly hurting and exhausted. Thyroid meds changed my life but I am forever ill. At least I know why. Ik this is just a sims video but. I get it. So so many of us get it. Thank you for being brave enough to talk about it like that. I feel like I still get side eyes the way I describe the way being diagnosed felt, but it truly finally felt like I could have hope again.
And it blows my mind that as women, there will always be a reason we’re supposed to just hurt. You were told because of your small frame it is just worse, I’ve been told since I was as young as 14 that I hurt so bad and it’s so irregular because of my larger size and that all I can do is take birth control and eat better. As a smaller framed woman I can’t imagine what it would feel like to just be told that is it, you are to just hurt like that. The cause and affect attitude of pcos is INSANE. Until thyroid meds and metformin I bounced back and forth upwards 70 pounds. I only just had my ovaries actually checked. Of course internal ultrasounds aren’t recommended for children around the time of my diagnosis however 22 is WAYYYYY too late and even asking for it now, I was still told I don’t need it for my pcos diagnosis to be valid but he’ll do it for my comfort. And that’s my favorite doctor!! He still felt the need to say that instead of just saying hey good idea let’s get a numerical baseline on those ovary dimensions if you’re in pain like this. My body is falling apart and literally for years all but one doctor, refused to fully doctor. My gyno is truly the only good one and I was still scared to ask him for help this month. Now I’m scared to be judged for waiting so long. Like they do not realize how they can hurt people so deeply with their remarks and dismissal. Just the look in their eyes lol. Would ruin my day. My week. Every visit id leave and my family would take me less and less seriously because nothing was wrong. Being diagnosed let me start my life without fighting with everyone around me about the way I perceive my life
I got my endo diagnosis a few months ago after my laparoscopic surgery. I felt all the same feelings you had before I got my diagnosis. Its such a relief to finally know. Good luck with your endo journey, you are not alone! ❤
I know how horrible and serious endometriosis can be but I’ve been watching you for a long time and you've discussed the symptoms affecting you for so long. I’m so glad you have a diagnosis. As someone who’s chronically ill, I know how important that can be to have one
Bestie, I’m so glad you finally got a diagnosis ❤️ I know how hard it can be thinking you’re “over reacting” or something. I just got diagnosed with some thyroid issues earlier this year and I had been struggling to get a diagnosis for a little over a decade. It sucks, but I’m glad you finally have answers. Sending good vibes your way ❤
Thank you for sharing your diagnosis! I also have endo and those fears you mentioned are so very true, unfortunately. I always feared it was all in my head, especially when I had my first surgery to be diagnosed; it really does mess with you both physically and mentally, Even now, three years into my diagnosis, I question myself when the pain comes back BUT the key thing to remember is that you know your body and, as long as you have a good doctor, they will listen and work with you so you can get the help you need (took me a bit to find but it's worth searching for). Good luck to you and anyone else here with endo. Here's to us!
congrats on your diagnosis 💜 I don’t have endo but i had a polyp and it took me years to get someone to believe me and get it removed. fem people really gotta work hard to get people to listen and it’s so frustrating
I haven't played the Sims in a while because the bugs and long start-up times bothered me too much... But this layout especially is so inspiring to me, I might just give it a try again! I'm imagining something similar to this, but with the back-/sideyards touching in the middle. Could be a story about two single parents and their children that become friends, eventually joining their yards etc etc
Congrats on the diagnosis! I know I'm a stranger on the internet, but I am truly happy that you have some solid information about what's going on in your body. I hope it can help you mitigate the pain you experience and give you confidence about standing up for your needs in the future. (I don't actually know if (or need to know) that's an issue you deal with; it's just me and all of my anxious friends seem to struggle with.) thank you for all of the joy, kindness, inspiration, and information you pour into this community. you clearly put a lot of constant work into making this channel a good place to be. I know that must be a lot of work and I can't imagine how hard that is to do when your insides are not cooperating. clearly you've mastered it, but I think it's important to get recognition for the effort you've put in. ok, I'm gonna go back to not talking to you directly now. I'm always nervous about overstepping that per-social boundary, but I just thought you deserved some kind words. take care
I’ve had similar issues with my own health! I have a very rare tumor disease that affects my knee and it was a *fight* to get it properly diagnosed, and to get surgery for it. I’m actively trying to get a diagnosis for what’s very likely an autoimmune disease which causes me pretty bad pain every day. It’s so important for people, and especially people afab, to get proper medical care and to have doctors listen to them about their issues. I have crippling lower abdomen pain with no true cause, and I’m pretty sure it’s ovarian cysts. I know the pain, and I’m so glad you were able to get a diagnosis ❤
Thank you for being so open about your endo journey. I’m sorry it took you so long to get answers, but now you have a diagnosis I hope you get the support and treatment you deserve. 💜💜💜
I probably have Endo myself, and getting it diagnosed is a NIGHTMARE. Especially when you have other health issues that doctors also don't want to listen to patients about.
I don't have endometriosis but I went through something similar before being diagnosed as autistic. I was constantly wondering, knowing there's something different about me that others don't seem to struggle with and simultaneously convincing myself that I'm being dramatic and overreacting and I should just get over it and deal with it because it "doesn't affect me that much" (it does). It wasn't until I was diagnosed that everything really clicked. I have a diary entry from not long after where I wrote something akin to, "I'm not broken, I'm not inherently stupid or a failure, I'm _autistic._ There's a reason I struggle so much with certain things." Understanding where a problem stems from gives you a starting point to attack it from, whether that's physical pain or neurodivergency. People underestimate how impactful that knowledge can be.
Kayla talking about not feeling heard and asking herself if she's just making it up in her head is something I feel so heavily. I'm pretty certain I have endometriosis however, getting a doctor to listen and hear me out is the hardest part. Often times they chose not to examine me properly or blame it on stress and hormones. It's just not a fun time. I'm so glad you got a proper diagnosis Kayla, hopefully I'll have mine soon
Hi simsie, as someone with endo/adenomyosis who also isnt/wasnt taken seriously by doctors, thank you for sharing, its made me feel significantly less alone in this chaos ❤️
I feel you, I got diagnosed with endometriosis back in February after a year long dispute with my doctors. They forced me to go on birth control before they would do the surgery for endometriosis turns out it was really bad and they had to take out cysts caused by it for me. All that to say we are strong and came make it through this! ❤❤
Thank you for sharing your health updates. I’m so glad you got a conclusion!! I’ve felt those feeling of not being sure like you described and it’s really validating to not feel like you’re the only person in the world that feels that’s way. Wishing you all the best, always!!❤
Congrats on the diagnosis! I think endo is WAY more common than anyone realises. I've had incredibly painful periods my whole life and I was 38 before a doctor suggested I might have endo. Still no proper diagnosis, but I'm finally getting some relief from the pain at least (after suffering for 26 years lol).
I’m watching this video laying on a heating pad from terrible endometriosis pain. I am so sorry you were diagnosed because it’s so painful but I hope that it’s not too extreme and can be dealt with quickly and easily 💛
You apologized for using the Batuu pack, but those are my favourite planters in the game. It also has great items for industrial or desert builds, and until Lovestruck came out, it had the ONLY curved bar in the game. And I still like the walls from Batuu best for the outside of basement walls. I also love the CAS items for that pack, but I realize that not everyone would like the homespun look.
I suspected endo since I was a pre-teen, and only got the diagnosis a few years ago, and treatment recently. Along with being ignored for almost a decade about another suspected auto-immune disease, I was right about everything I suspected. I'm glad you finally got your diagnosis too! It's appalling how long it takes for women's health to he taken seriously
So glad you got answers! There's another UA-camr Payton, from The Payton's Corner, and she's a huge advocate and mentions it and where she is on her journey with it - been really insightful. I was diagnosed with it but then a specialist was super extensive and said that I seems like it have it..but there's no growth of it outside of the womb? Very odd...so I'm undergoing more tests, I don't want invasive surgery to see if there's any anywhere else... And for now I'm to just put it down to my Fibromyalgia... Anyway all things take forever to sort out! But atleast we get answers in the end!
so glad youve gotten a diagnosis. the thought of making things up in your head is so real things like that always feel so difficult to place. it a good thing youre happy and comforted (if that's the right word to use) by the diagnoses. sending all my love 🫶
kayla, i also have endo and it was the longest process of getting diagnosed and lots of negative experiences with doctors. talk to someone if you need to, i went to therapy for a year after i got my surgery and diagnoses. nobody believed me bc you can’t see endo on any scans. i’m so glad you were able to get diagnosed. it’s hard to live with, but being diagnosed makes it more bare able bc you know what the pain is.
There are far too many of us with endometriosis who share this diagnosis story. I was on the lucky end, and it still took me 8 years to get a diagnosis. The average is TEN. Thank you for talking about your experience. The best thing we can do is to keep making noise about it and standing in solidarity with each other. Congrats on your diagnosis!
I've been hoping Kayla will do an inside out house, where it's a garden and pool inside the house, and kitchen, bedroom, and bathroom stuff is outside (as much as Sims furniture will allow). I can imagine Stanley Humphries having to play in such a house; he's had to deal with worse in Rags to Riches challenges, tbh.
Thank you for opening up about your endo diagnosis! As an autoimmune disease girlie, I'm all too aware of the struggle to get taken seriously. Having the right doctors on your side makes all the difference. For anyone with chronic pain, look into central sensitization or fibromyalgia and see if that rings true even after your main diagnosis is under control.
So much love to all who deal with endo! 💛 The journey is different for all of us, but I see that all suffering with it have gone through such variety of negative experiences it can be hard to even understand it yourself. But we are all so much stronger for it. The diagnosis is the first step towards life with minimized pain and symptoms and so happy that you have an answer now.
Congrats on the diagnosis! I have PCOS and trying to get listened to is impossible. I got lucky and had a locum GP refer me and within 6 months I had my diagnosis, although they are not curable you can at least manage the symptoms and know how to deal with it all ❤
So sorry for your pain and doctor trouble🥴 Unfortunately there are so many people that are not being believed😤 And that breaks my heart😭 Hope you are getting the care and support you need🥰 Love you lots!❤️
i completely understand your frustration with your diagnosis. I took 10 years for me to be diagnosed with Lupus. I thought i was losing my mind. I hope now they take you seriously and you will began to get help and support with you condition.
If it makes you feel any better, I kinda like when you use a bunch of packs I don’t have because then, if I download it, it gives me an excuse to decorate it myself. I’m not great with shells, so sometimes I like to use houses off the gallery just for their shells tbh!
Wild that I just had an endometrial biopsy and am literally laying on my couch recovering while watching this video (I haven't been diagnosed with anything yet and honestly I don't think that's what my issues are) but congrats to Kayla! It's truly relieving to finally have a doctor believe what's going on with you and I can't even imagine how relieving it is to be told they know what's going on and how to help you moving forward
omg endo gang! so happy you got your diagnosis too! i just got mine in July and had the same problems you did with getting diagnosed, but i'm so glad you're talking about it 🥺
18:47 my goddd the greens! the best greens and purples aren’t properly matching, not enough natural wood tones like i adore this kit but it’s hard to use 😭
I've begun to suspect I might have endometriosis, I have all the symptoms, but Idk if it's worth it to go through everything to get diagnosed since I've found some ways to manage it (stinging nettle tea is a lifesaver for dealing with pain for me). Thanks for sharing! It's nice to know we're not alone in our struggles. Also I LOVE that purple nursery. 💜
Congrats on getting your diagnosis. I wouldn't worry about the rug or desk too much. If the sim is crafty she probably made it herself and it's supposed to look like that. I'm picturing it like Hazarial Ateliers oversized objects craft room.
Thank you for being so open about your experience with the healthcare system. I myself have not been believed by doctors throughout most of my life, and it turns out I have some pretty insane things wrong with me. It just feels so nice to be believed and validated that your pain is real. My entire life, I thought that everybody else felt the exact same way I did, and they could deal with it, so I must be doing something wrong if everyone else can handle the exact same thing better than I can. It turns out that people don’t feel the way that I do, and if someone just believe me, it would’ve saved me a lot of hurt.
As someone with pots and endometriosis, thank you for being so transparent and open. It makes such a big difference for many of us 💕 It's so unfortunate how much it's brushed off as so many people suffer with it
feels kinda weird to say "congrats on your potetionally crippling condition" but congrats on finally getting an answer! as someone who's chronically ill, I can relate to the medical gaslighting and the relief that you finally know what's wrong. I also understand the "AM I making this up??" which really says a lot about medical care, especially in America. I know Simsie may not see this, but to anyone who does: don't let the medical gaslighting dissuade you into giving up! You're not crazy or making it up, your problems are real and valid. Also, if you're able to, it could be a good idea to contact your old doctors who refused to help and send them your official diagnosis. The confirmation bias of never hearing anything, which to them means you're fine now, leads them to continue to do this to more people! Also, there's this girl on tiktok who has a medical binder with all her medical history/test results and the like so that you can better stand up for herself to doctors and reduce the time it takes for an answer. I'm looking into doing the same, and it's worth a look!!
I’m so glad you got your diagnosis. It took me 10 years to get my Endo diagnosis and I totally and absolutely get you. It’s such a relief for someone to finally acknowledge that your pain is real and no you’re not just being a baby ❤️ I wish you all the best and hope you find the right treatment for you. I absolutely love your videos and streams. Thank you for doing what you do. It really helps me unwind and makes me feel better when I feel down. Love from the UK xx
Love this! Unique idea! I thought at first you were going to do mirror images in dark and light colors. This was so much better! Good job! I too am more of a builder. I've been playing since the game began over 20 years ago. So I have had a lot of experience in building everything from elevated terrain to deep dungeons. We didn't have much to work in early version of the game, so we improvised to make FAUX decor. I am so thrilled the game has evolved now to include functionality for just about anything we can imagine. I enjoy watching other creators. I would really like to see more bridges and rivers, sunken living rooms, platforms under the bathtubs, unique twists to the stairs perhaps using platforms as well, outdoor garden tubs or spas, gazebos attached to the porch of the house. Hidden rooms, with hidden doors, underground passages that lead to other parts of the property, perhaps to exit in a hurry via the car in the garage. I have so many of these items in my builds. I am very detail oriented and love romantic decor using dark academia vibes. Fireplaces in many rooms, bookcases. (My real home reflects this) I am an artist, author and jewelry designer in real life and incorporate many of these in my builds. In the past year there have been so many new packs and kits (Crystal creations was right up my alley, as is the new artist studio and goth storybook kit). Would love to see more dark builds. (You have been doing a great job with those) Something perhaps two story with tower rooms, hidden passages, (a place where an Author would enjoy writing thrillers)with a mysterious underground vibe, lots of old world elegance decked out with antiques and portraits, books and perhaps even a hint of spooky Ocotober... :)
I am glad to hear that you finally got diagnosed so that any symptoms can be addressed. I love watching your build/speed builds as they always give me ideas. In regard to the tiles from Love Struck - I understand what you are experiencing. My work around has been to drop the tiles below the window and to the side and overlay them if necessary. They can appear glitchy at times but the end results are pretty worth it.
Dude you are so real for the anxiety thing I’m pregnant right now and I have been bedridden from morning sickness and it’s been so miserable and like none of the drs were taking me seriously and kept laughing it off like awe you’ll get used to it hang in there.. but like I recently got diagnosed with HG which is a literally life threatening form of morning sickness.. if this has taught me anything it’s that you know your body if something is wrong keep asking for help
Thank you for opening up about having endometriosis because I think it's not talked about enough. I luckily don't have it but a coworker that I love dearly has it and before she explained it to me I had no idea that it existed tbh. And just talking about it more makes people aware and hopefully helps others who experience horrible period pain figure things out! Even if its not endometriosis, it's better to get things checked out and maybe doctors find it faster when you already have an idea what it could be. At least that was the case with my coworker c:
Idk what it is, but the final layouts of both the houses are just so homey! Idk how to describe it really, but it just looks so realistic, and I can picture a family of sims all hanging out together, or having a party with friends over! I just really love how the layouts came out! Very random comment, but very true! I do wish I had more packs that have nice pastel swatches so I could download this, and still keep the vibes with the packs I have lol 🫠
congrats again on your endo diagnosis simsie! so many people with periods struggle to receive proper healthcare due to lack of research and understanding. it's infuriating that you had to fight for so long to get answers but it's so good to hear that you finally know what's going on with your body!
Yess, I’m not a endo patient, but I had to wait almost two years to receive a diagnosis for a “suspected” autoimmune disease that I’m still waiting for, unfortunately times are sooooo long and it’s not fair for people who suffer from this. Also, you can find amazing people that will tell you that your pain doesn’t exist and you’re being dramatic, so yeah, that’s fun.
@@gaiamorgosi7181❤
She has endo?? Omg I just turned 18 yesterday and I’m so looking forward to hopefully getting tested soon. This might sound super weird but I’d be so relieved to finally be diagnosed with it because I’m so sure of it and it would finally explain my symptoms!
@@cat-pl7sj That is not weird at all, anyone who has never been through anything similar cannot relate, but finding THE NAME of what is bothering you is another level of relief.
Yes.
Also Deligracy has the similar issue. You in the Sims community can totally support each other.
Medical misogyny (as with medical racism) is sadly still very prevalent, and it's more than time the issue was taken seriously. Simsie's experience of double-sided anxiety is so, so common with female-presenting people suffering with chronic symptoms, and is often at it's height when dealing with "women's problems". It's getting better, but the more it's talked about, the more pressure is put on the medical community to do better. Bless Kayla, and everyone that is willing to share their experiences so openly, and honestly, it makes a difference.
I initially read this as "medieval misogyny" and I didn't bat an eye 😭
Totally agree though saying trans and afab people would be more accurate re the medical misogyny
That sucks about your doctors not taking you seriously. Back in 2017 I had pains in my stomach area and the doctor basically told me I was fat and to stop eating acidic foods and said it was heartburn. I was only 5 lbs overweight at the time and the pain turned out to be appendicitis. I had to have surgery that same day to get it removed. I'm glad that you kept fighting to get your diagnosis. You know your body better than anyone, you know what hurts you, doctors should have believed you.
That is disgustingly incompetent medical care. Like genuinely frustrating to just read.
Like I’m really pissed off on your behalf that’s messed up
i relate to that a lot, doctors barely ever seem to take me seriously. when i was 13 and got my first period, i was in so much pain that i couldn't physically walk, but no one took me seriously about the pain and said i was overreacting (i had a pe teacher who made me run extra laps because i complained about being in so much pain i could barely breath) until i was 15 and my obgyn on my first appointment heard about the pain i was in and INSTANTLY prescribed me meds for that and said that the other doctors should have listened cause not being able to walk was in fact, not normal
@@swirlychaos seriously though. I only found out like two weeks ago that most women don’t bleed so heavy they need a pad AND a tampon (and still bleed through)
@Astralixe Same! Except I was 10. I was lucky that I had the mother i do because she advocated for me fiercely. Now 8 yrs later I've been put on a newer med specifically made for Endo! It's called orlyssa but idk the right spelling for it, it's a medicine name they never make sense! 😂🩷 but for 8 yrs i couldn't walk during my period and has to take off of school...the school was not pleased but when I can't walk to the boss I ain't going to school 😂
@@ciara8860I recommend buying reuable inconsistent bed pads for when you sleep to help save your bed! Or even for a chair! I also wear period undies on top of it all. That worked for my heavy periods when I was still having a period
it's so validating to hear simsie complain about the swatches in the nursery kit 😂 I felt CRAZY trying to make a green nursery and half the items didn't have the pastel green swatch!
If you watch Gonz's short on the kits he talks about that, and how it's infuriating that not all swatches are complete ksksk
I'm 33 and I've spent 15 years in and out of hospitals being laughed at for "claiming" being in pain; the relief of finally being diagnosed and actually listened to is undescribable! So happy for you that you finally have answers ❤
Oh and the build is pretty friggin' cool too!
With invisible conditions like endo, chronic pain, fatigue etc are so so hard to make people believe you, it's wild how hard to can be to get health carers to believe you, it really shouldn't be. I'm glad you got your diagnosis!
This. I have been struggling for years and had no idea so many things were linked to chronic fatigue until I convinced my doctor to give me a referral - had to wait 11 months to talk to them but progress is progress.
@@racherutheneko7270 I hope you're able to keep pushing in the right direction for a diagnosis and support, progress is definitely progress, but the medical profession needs to make progress in its way of thinking towards these conditions
the most frustrating part as an endo patient is that it's VERY visible inside the body. they just love refusing to do the surgery no matter how much pain youre in. i was diagnosed at 15 bc of how bad it was. 3 years later, been on birth control for all that time. they keep telling me to come back if im still in pain, and yet they keep refusing to just give me the damn tissue removal surgery even though ive told them that several times
I appreciate you so much for being so real about sharing your health journey with us. I’m also so happy you got a much needed answer! Love your content!! Hope things continue to look up for you.
thank you simsie for talking about your diagnosis, we need more people talking about their experiences to make more people aware.
I didn't even know my half-sister had endo until a few years ago, then one of my teachers, then by others such as yourself. When I brought up to my nurse at the pill appointment I had a few weeks ago, given I'd heard that endo can be partially genetic, she dismissed me with 'oh, you'd know if you had endo'. Bearing in mind that I went on the pill specifically because I had bad periods myself, and that I have been told that I could get keyhole surgery to double-check years ago but the doctor 'didn't want me to go under the knife so young'... I constantly think about whether I am/was over-reacting, or if I genuinely have a basis to be worried.
Maybe one day I might get keyhole surgery, just to check, but for now, after being on the pill for almost 5 years (out of the 7 I've had periods), I just have to wait to see whether or not things get 'worse'.
i'm so sorry about your bad experiences i really hope in the future you find healthcare professionals that act more professionaly and take your concerns seriously!
@@sam-ky9sj thank you so much - what keeps me going is knowing that not all healthcare workers are against me. Hopefully I'll find someone who can help me out :)
I think your doctor was kind and honest. It's the only way to tell for sure and it's invasive. From someone who has had many surgeries they don't heal perfectly and carry quite high risks.
Doctors are usually discouraged from telling you, but trying to have a child is usually the best option. The pill is really quite bad for you, and your first baby causes a lot of changes and 'finishes' your development. If you struggle to have children then this operation is an option.
If you're happy to be on the pill why would they ever cut you open to give you what you're taking already? Doctors don't care enough about diagnosis to endanger you for it.
hi kayla! i have endo as well, i have a flare up almost all the time, and I have gone to 9+ doctors. your videos always make me so happy and distract me from my flare ups. Thank you for being so honest Kayla! i appreciate you opening up!
Do you avoid soya and oestrogen mimicking foods/pollutants? I believe it makes you very sensitive to those, so soy sauce, soy milk, tofu etc. Many people don't know soya is used as a treatment for low oestrogen and is medically significant.
@@mandowarrior123 i dont really eat those things very often to be honest
These houses are a great representation of what I find beautiful to look at (the dark house) and what I would be more likely to live in (the pastel house). Elegant, dark interiors are so gorgeous but you won't catch me wiping the dust off those black walls and carpets every darn day.
I also have endometriosis and finally got diagnosed with it last year after 5 years of doctors saying it was my body adjusting to starting puberty at only 10 years old. I'm now 5 months post-op from laparoscopic surgery where my new finally good doctor found endometrial tissue completely covering my uterus, ovaries, fallopian tubes, and bladder. the problem is that because it went untreated for so long, my uterus is completely filled with it and is the route of my pain now. They can't surgically remove it from there so the only treatment is estrogen which I can't take, forced menopause, or a hysterectomy (both of which I couldn't get even if I wanted to until I'm 18). So basically I get it, and I'm so sorry that you have this pain and I'm so glad you got diagnosed! Ik you won't read this anyway, but your videos have helped me so much, so thank you!
❤
Best of luck to you and I'm sorry you have to go through all this stuff, especially being so young.
i also got diagnosed at 15, but I'm about to turn 18 now and they won't give me the damn surgery despite how obviously severe it is. how'd you get them to listen??
@jestphoenix I'm really sorry that you're going through that. I got them to listen by getting a good doctor after a lot of either bad or unqualified ones. My current doctor is the head of the gynecology department, so she had the authority to say that I needed the surgery and performed it herself. In short, I recommend getting a second opinion. I wish you the best!
My friend suffered for over 22 years with an extreme type of endo and a few other conditions. She was gaslit by so many doctors. IMO they should all lose their licenses. Her issue was so bad it resulted in a total hysterectomy at 31. The healthcare system needs to do better by women.
My sentiments to your friend.
Kayla I am so glad you finally got a diagnosis and I am also really glad you talk about endometriosis publicly! It‘s so important to raise awareness because it is still so underdiagnosed. I honestly teared up a little at that section of the video.
Having been trying to get diagnosed for something else myself (that’s underdiagnosed, too) I know the feeling of „Am I just making it up?“ so I‘m really glad that you have the question answered now ❤
I cannot imagine how hard it must've been to not only deal with the pain of endometriosis but also the anxiety of not being taken seriously... I can't express how happy I am that you finally got your answers and hopefully that'll give you acess to better treatment ❤ Really great video as always. I also want to say how great it is for me that you take the effort of having a person do the close captions for your channel, it would be so easy to just use AutoCaptions but you always go the extra mile and that shows you do care about everyone that watches your videos, thank you from the bottom of my heart as a non-native English speaker. I hope you and your friend have so much fun at the concert!
I had a similar experience with doctors making the diagnosis process super difficult, but finally last week I saw a doctor who took me seriously and it is likely that I also have endometriosis! Knowing what is wrong is so relieving, im glad you were able to finally get an answer!
Regarding the use of many packs v few packs, these unlimited builds are so so so fun! I do also enjoy those randomized-pack challenges where you can only use 2 or 3. Both types of builds are interesting, just for different reasons ❤
I completely understand the struggle with taking so long to get diagnosed. I’m 36 and was just diagnosed PCOS and other issues. Have been going to doctors looks for answers for YEARS to just be told “it can’t be that bad” or “so you have bad periods, everyone does, get used to it” even worse “maybe your just exaggerating your problems”. Finally found a doctor who listened, she went through the same thing so she understands. I will admit I cried when I was finally given the answers. It just felt nice to be heard!! I’m so happy for you that you have finally been heard and recognized for what you’ve been going through and I’m sorry it took them this long.
i’m so glad you finally got that diagnosis! i got diagnosed with endometriosis and pcos earlier this year and it was such a relief!! it was so so hard to get to that point, i even got to the point of chronic pelvic pain and nobody would listen to me! i ended up getting diagnosed when i had an emergency appendectomy and there was endometriosis on the outside of my appendix. from one endo girly to another, i hope your diagnosis is helping you experience less pain 💕
I rarely leave comments but I just wanna to tell that I'm so glad you finally got diagnosed! For me it took 10 years, I totally understand the frustration and fear that it's "just in our heads". I wish you lots of courage for this new life as an endo warrior 💪🏼 ♥️ full support Simsie!
Giiiirl, I'm so happy for you! A diagnosis is such a relief. I also went through the same ordeal, doubting myself, thinking maybe this is normal and I'm overthinking it, where the original gyno told me I was fine, and the second opinion Doc found the issue immediately. Wishing you luck on your treatment journey! Thanks for all your amazing builds! Its really helped take my mind off things lately and start building again after a 3 year Sims 4 hiatus!
Having answers feels good, doesn’t it? I would say, be prepared for an overwhelming flood of different feelings over the coming weeks and months. Everything from relief to anger to frustration to sadness and even grief. I’ve spent my whole life fighting for a diagnosis for this or that… all your feelings you’ve been experiencing are 1000% valid. The Questioning yourself… the questioning them… all normal. Just remember, everyone feels pain differently & if the pain is significant enough to impact your daily life, it’s significant enough for your doctors to give a dang about.
Also wanna say, I FECKING LOVE WHEN YOU BREAK OUT OF YOUR COMFORT ZONE! You are so much better at building than you give yourself credit for. When you relax and just enjoy the process, it’s an absolute pleasure to watch. Keep breaking out of the comfort zone, please! Maybe it’s time for some build series? Simsie tries different aesthetics in the Sims or Simsie tries different architectural styles in the Sims. Could do a little research about the history of each & then do a build (either a whole building or a room) focusing on that one specific aesthetic or style. I’d watch them all!
Also, Batuu has some baller light fixtures (size them accordingly) and really great clutter items too. I have never once done the game play but that pack… it finds its way into nearly every build. 😅
It took me literally screaming like seriously screaming at my doctor to take him serious about my period pain, and then it still took two years to get diagnosed with endometriosis. I'm glad you could finally get some answers, and hopefully your dr will help you take some steps to feel better.
it is soooo validating to hear your experiences with endo and doctors, im so glad you were able to get diagnosed. the anxiety you felt is so relateable to me and i hope things go well for you simsie!!
I finally got a diagnosis around 2 months ago and I understand how relieving that can be. Learning I have narcolepsy explained so much, and having that answer opens up treatment options. It's been interesting telling friends and family and having them react like its such a bad thing when I was kinda excited lol, like yeah it sucks that I have narcolepsy, but it's sucked for literal years, I just know why now. All that to say, I'm really happy for you, Kayla. That anxiety you described is super valid, I know I went through something similar, but I hope having an answer has relieved some of that stress.
gorg as usual
facts
I read this as “george as usual”
@@bao_bao_19 okay Charli XCX 🤪💚
As another invisable illness / chronic pain girly..
All those feelings are sooooooo valid!
I have a fun build idea , build with ♾️ budget , but build a 20k starter home! And build until you think you have reached starter home budget
I have endo too, when I finally got diagnosed 10 years ago I cried because I had always suspected it and I knew then that I wasn’t crazy. It definitely sucks to have, but I find the endo community as a whole online is a great source of support x love this build btw
I'm so happy you finally got answers!! I've had some very similar experiences, so I definitely can relate to that nasty nagging part of your brain telling you "this is normal, you're just overreacting," and I'm so glad you've finally got validation that it *isn't* normal and your pain is real. I had endo as well, and never had a doctor even realize it until I had my hysterectomy last year because I was convinced that it was normal to experience that much pain during my period.
To anyone who is dealing with *any* amount of consistent pain/fatigue/etc, please please please talk to a medical practitioner about it and continue advocating for yourself until you've been heard. It's frustrating we have to fight so hard to get the medical attention we need, but it makes such a huge difference once you find someone who will listen.
Thank you for being vulnerable and sharing your diagnosis and experience, it’s not an easy thing to do, I hope it helps others feel not so alone
absolutely OBSESSED both houses are so cute! You really have a way of making every aesthetic just simply beautiful!
Congrats on your diagnosis! It’s weird to say congrats, but when it takes months or years to get a doctor to listen- I guess that’s a reason to celebrate. I got my Endo diagnosis this year too.
A few years ago I told my obgyn that I thought my periods were kinda heavy and cramps were rough and I was getting older and didn’t think they should be getting worse, and basically after trying a few BC options, she said “I guess I’ll give you a prescription for extra strength ibuprofen, not sure what else to do.”
Last September, I had crippling cramps at work and couldn’t drive myself home. Fast forward to this September, I had three endometriosis cysts removed from my ovaries. 😅
Thank you for talking about your endo diagnosis. I also have endometriosis, diagnosed at 16, and it’s hard to feel seen when you have an invisible condition, love ya simsie for bringing it to light
Medical anxiety is so real especially with female related medical conditions! I’m so happy you were able to get diagnosed! It took over 10 years for me to get my medical diagnosis which resulted in 2 emergency surgeries in 2021. We absolutely deserve better healthcare. Very glad you were finally able to get answers 💕
Medical gaslighting is way too common especially for women cuz we’re “so emotional” glad you finally got an answer
💯💯💯💯💯
I dont know if you'll see this, but I hope you're able to prepare and evacuate for Hurricane Milton. I was really worried during Hurricane Helene because I remembered you'd mentioned you were near Orlando; my area in georgia was decimated because of Helene. The whole time I was out of power and internet, I was so scared I would get back online to watch your videos, which are the highlight of my week, to see you went through what I and millions of others had went through.
You're such a kind soul, and I'd hate to see anything happen to my favorite youtuber ):
So happy you were finally listened to about your pain and that you got a diagnosis! Wish you the best on your health journey 🙏🏼
Hi Kayla thank you for opening up about your health journey! We should normalize talking about it! It helps so many people feel less alone. I don't have endometriosis but I have other health problems that have been a mystery and it sucks to not get a clear answer, especially by doctors who should be able to help. I also love your videos and your builds. When I'm feeling uninspired your videos remind me how much fun building is
we have a set of houses in my hometown that are EXACTLY like this! two houses, new construction, on the same lot, one black and one white. it's delightful and i'd honestly love to be able to see how their respective owners have decorated the inside!
thank you so much for sharing your health stories, as someone who struggles with chronic issues it means a lot that creators are able to create safe spaces to talk about that stuff!! ❤❤
This is incredible timing Kayla, I was diagnosed last month and had the same anxiety! Hopefully both of us get the treatment we need!!
I'm glad you finally got a diagnosis. I got diagnosed 10 years ago and I still feel like I must be exaggerating or making it up. I hope that your doctor's will be supportive of you and your journey going forward. Good luck 🤞 x
Also I love these builds. I always love watching you do opposites, it is very inspiring 😊
10:35 health anxiety! Especially with things like endo it’s very common because it is such a hard thing to diagnose unfortunately because for so long it was just seen as women being dramatic or having a low pain tolerance. I’m glad you finally got answers!
It's amazing to finally get a diagnosis! I'm so glad you feel relieved now knowing for certain. Endo has been in my family for a while and I was lucky to be with doctors from the get go who understood I am likely to also end up in the same boat, and have helped me along that journey. But as someone with something as simple as chronic sinusitis, that didn't get diagnosed for 18 years after had been put on all these medications and steroids, and as it turns out the best thing for it is something non-medicated. I felt so relieved at finally having an answer and being able to review steps to help improve my quality of life, I'm so glad you finally got that answer too!
As someone whose doctors didn't take her seriously either for a long time? I get it and am glad you got your diagnosis! It feels oddly relieving when that weight is lifted off your shoulders. I have fibro and chronic fatigue and it's a struggle to get people (Especially doctors) to take you seriously. High five to both of us.
Congrats on your diagnosis! I’ve been working on getting an endo diagnosis for a few years now
Congrats on finally getting an answer for your pain. As another chronic illness person, I understand completely how frustrating it is. I also grew up with a parent who is a dr, so medical gaslighting has always been a part of my life. I finally got diagnosed with my chronic illness this year, after complaining about pain as soon as I could talk. Turns out I'm not a wimpy princess, I'm a chronic pain prince 💪
Also, it's okay to cry. Sometimes, chronic pain can be defeating. We're here for you, and anyone else here who's suffering from chronic pain or anything like that.
I hope those who don't have answers yet, will find their answers soon. Sometimes you just have to waltz into the drs office and dislocate a few joints in front of them to get a hEDS diagnosis 💀
That last line, oof. It really sucks how far we sometimes have to go for medical professionals to take us seriously. Congratz on finally getting your diagnosis!
@@blaireshoe8738 Thank you so much. It really sucks how I had to do all of the research by myself before waltzing in and dislocating a few joints. Not everyone has the time or energy to do research like that.
22:40 I am really excited about the new pack, BUT I am nervous. I feel like the Sims community's inital pack reaction is YIKES a lot of times. But this time, the general reaction seems really positive from what I have seen. So I am scared of EA releasing it and it being broken as so many packs are. It will be unsurprising if they do, but I think it will hit different considering how excited everyone seems.
Thankful you finally got a diagnosis. I just had surgery for endo (amongst other related issues) last year and it was such a relief to be heard and finally get real help. Here's hoping to continued understanding and healing for you in the future. ❤ And remember we're all okay with you taking breaks if necessary!!!
That feeling of "making it up" is so real. You feel like you are, but then you have a bad flare up and reminds you that you're not overreacting. I feel like its hugely a universal experience for these kind of issues so congrats on your diagnosis and for not giving up in order to get it.
Simsie, I had the exact same medical experience. Finally getting a hysterectomy at 36 after a lifetime of the runaround. I'm glad to hear yours has been caught and assessed! It's a comforting feeling, for sure.
Congrats on your diagnosis! My nurse hugged me when I finally got diagnosed with hashimotos and I just cried because I finally couldn’t be called crazy anymore. I have severe ocd so the anxiety of something being wrong and literally just being seen as insane, I was losing hope. I was offered a social worker before any sort of stress testing for my tachycardia. My symptoms started at 16 and I didn’t get diagnosed until I was 21. My sister had hashis and then thyroid cancer by 24 and they knew that and still didn’t check my thyroids antibodies, aka checking everything with a thyroid. I only started seeing an Endo bc of my PCOS and insulin resistance. I basically had to beg him to just feel my neck and sure enough I needed a sonogram and he ordered the tests. I do suffer from uterus issues as well, and while this isn’t uterus related, being a woman and being seen as hysterical/fat/hormonal, is no doubt why I had to suffer for so long. I bled for a month and a half recently and am still cramping painfully but with all of the disrespect I truly am so uncomfortable at doctors, I’m sos cared to ask for help. I’m so scared to be called crazy again. Now I’m scared of what could’ve been wrong this whole time, again. This cycle isn’t fair but winning my hashimotos diagnosis is really the least I could ask for. We are too too young to live in this pain. I’m only 22 and constantly hurting and exhausted. Thyroid meds changed my life but I am forever ill. At least I know why. Ik this is just a sims video but. I get it. So so many of us get it. Thank you for being brave enough to talk about it like that. I feel like I still get side eyes the way I describe the way being diagnosed felt, but it truly finally felt like I could have hope again.
And it blows my mind that as women, there will always be a reason we’re supposed to just hurt. You were told because of your small frame it is just worse, I’ve been told since I was as young as 14 that I hurt so bad and it’s so irregular because of my larger size and that all I can do is take birth control and eat better. As a smaller framed woman I can’t imagine what it would feel like to just be told that is it, you are to just hurt like that. The cause and affect attitude of pcos is INSANE. Until thyroid meds and metformin I bounced back and forth upwards 70 pounds. I only just had my ovaries actually checked. Of course internal ultrasounds aren’t recommended for children around the time of my diagnosis however 22 is WAYYYYY too late and even asking for it now, I was still told I don’t need it for my pcos diagnosis to be valid but he’ll do it for my comfort. And that’s my favorite doctor!! He still felt the need to say that instead of just saying hey good idea let’s get a numerical baseline on those ovary dimensions if you’re in pain like this. My body is falling apart and literally for years all but one doctor, refused to fully doctor. My gyno is truly the only good one and I was still scared to ask him for help this month. Now I’m scared to be judged for waiting so long. Like they do not realize how they can hurt people so deeply with their remarks and dismissal. Just the look in their eyes lol. Would ruin my day. My week. Every visit id leave and my family would take me less and less seriously because nothing was wrong. Being diagnosed let me start my life without fighting with everyone around me about the way I perceive my life
I got my endo diagnosis a few months ago after my laparoscopic surgery. I felt all the same feelings you had before I got my diagnosis. Its such a relief to finally know. Good luck with your endo journey, you are not alone! ❤
Same here, surgery in march.. i hope you are okay!
@@Truska26 I'm doing much better. Hope you are okay too!
I know how horrible and serious endometriosis can be but I’ve been watching you for a long time and you've discussed the symptoms affecting you for so long. I’m so glad you have a diagnosis. As someone who’s chronically ill, I know how important that can be to have one
Bestie, I’m so glad you finally got a diagnosis ❤️ I know how hard it can be thinking you’re “over reacting” or something. I just got diagnosed with some thyroid issues earlier this year and I had been struggling to get a diagnosis for a little over a decade. It sucks, but I’m glad you finally have answers. Sending good vibes your way ❤
i’m so glad you got a diagnosis kayla!!! i know you had super painful and brutal periods so im rlly glad you’re taking care of it now
Thank you for sharing your diagnosis! I also have endo and those fears you mentioned are so very true, unfortunately. I always feared it was all in my head, especially when I had my first surgery to be diagnosed; it really does mess with you both physically and mentally, Even now, three years into my diagnosis, I question myself when the pain comes back BUT the key thing to remember is that you know your body and, as long as you have a good doctor, they will listen and work with you so you can get the help you need (took me a bit to find but it's worth searching for). Good luck to you and anyone else here with endo. Here's to us!
congrats on your diagnosis 💜 I don’t have endo but i had a polyp and it took me years to get someone to believe me and get it removed. fem people really gotta work hard to get people to listen and it’s so frustrating
I haven't played the Sims in a while because the bugs and long start-up times bothered me too much... But this layout especially is so inspiring to me, I might just give it a try again! I'm imagining something similar to this, but with the back-/sideyards touching in the middle. Could be a story about two single parents and their children that become friends, eventually joining their yards etc etc
Congrats on the diagnosis! I know I'm a stranger on the internet, but I am truly happy that you have some solid information about what's going on in your body. I hope it can help you mitigate the pain you experience and give you confidence about standing up for your needs in the future. (I don't actually know if (or need to know) that's an issue you deal with; it's just me and all of my anxious friends seem to struggle with.) thank you for all of the joy, kindness, inspiration, and information you pour into this community. you clearly put a lot of constant work into making this channel a good place to be. I know that must be a lot of work and I can't imagine how hard that is to do when your insides are not cooperating. clearly you've mastered it, but I think it's important to get recognition for the effort you've put in.
ok, I'm gonna go back to not talking to you directly now. I'm always nervous about overstepping that per-social boundary, but I just thought you deserved some kind words. take care
I’ve had similar issues with my own health! I have a very rare tumor disease that affects my knee and it was a *fight* to get it properly diagnosed, and to get surgery for it. I’m actively trying to get a diagnosis for what’s very likely an autoimmune disease which causes me pretty bad pain every day.
It’s so important for people, and especially people afab, to get proper medical care and to have doctors listen to them about their issues. I have crippling lower abdomen pain with no true cause, and I’m pretty sure it’s ovarian cysts. I know the pain, and I’m so glad you were able to get a diagnosis ❤
Thank you for being so open about your endo journey. I’m sorry it took you so long to get answers, but now you have a diagnosis I hope you get the support and treatment you deserve. 💜💜💜
I probably have Endo myself, and getting it diagnosed is a NIGHTMARE. Especially when you have other health issues that doctors also don't want to listen to patients about.
I don't have endometriosis but I went through something similar before being diagnosed as autistic. I was constantly wondering, knowing there's something different about me that others don't seem to struggle with and simultaneously convincing myself that I'm being dramatic and overreacting and I should just get over it and deal with it because it "doesn't affect me that much" (it does).
It wasn't until I was diagnosed that everything really clicked. I have a diary entry from not long after where I wrote something akin to, "I'm not broken, I'm not inherently stupid or a failure, I'm _autistic._ There's a reason I struggle so much with certain things." Understanding where a problem stems from gives you a starting point to attack it from, whether that's physical pain or neurodivergency. People underestimate how impactful that knowledge can be.
Kayla talking about not feeling heard and asking herself if she's just making it up in her head is something I feel so heavily. I'm pretty certain I have endometriosis however, getting a doctor to listen and hear me out is the hardest part. Often times they chose not to examine me properly or blame it on stress and hormones. It's just not a fun time. I'm so glad you got a proper diagnosis Kayla, hopefully I'll have mine soon
Thank you for sharing about your medical journey! I hope you’re able to find relief to your pain. 🙏🏼
Hi simsie, as someone with endo/adenomyosis who also isnt/wasnt taken seriously by doctors, thank you for sharing, its made me feel significantly less alone in this chaos ❤️
I feel you, I got diagnosed with endometriosis back in February after a year long dispute with my doctors. They forced me to go on birth control before they would do the surgery for endometriosis turns out it was really bad and they had to take out cysts caused by it for me. All that to say we are strong and came make it through this! ❤❤
Thank you for sharing your health updates. I’m so glad you got a conclusion!! I’ve felt those feeling of not being sure like you described and it’s really validating to not feel like you’re the only person in the world that feels that’s way. Wishing you all the best, always!!❤
Congrats on the diagnosis! I think endo is WAY more common than anyone realises. I've had incredibly painful periods my whole life and I was 38 before a doctor suggested I might have endo. Still no proper diagnosis, but I'm finally getting some relief from the pain at least (after suffering for 26 years lol).
I’m watching this video laying on a heating pad from terrible endometriosis pain. I am so sorry you were diagnosed because it’s so painful but I hope that it’s not too extreme and can be dealt with quickly and easily 💛
You apologized for using the Batuu pack, but those are my favourite planters in the game. It also has great items for industrial or desert builds, and until Lovestruck came out, it had the ONLY curved bar in the game. And I still like the walls from Batuu best for the outside of basement walls.
I also love the CAS items for that pack, but I realize that not everyone would like the homespun look.
I suspected endo since I was a pre-teen, and only got the diagnosis a few years ago, and treatment recently. Along with being ignored for almost a decade about another suspected auto-immune disease, I was right about everything I suspected.
I'm glad you finally got your diagnosis too! It's appalling how long it takes for women's health to he taken seriously
So glad you got answers!
There's another UA-camr Payton, from The Payton's Corner, and she's a huge advocate and mentions it and where she is on her journey with it - been really insightful.
I was diagnosed with it but then a specialist was super extensive and said that I seems like it have it..but there's no growth of it outside of the womb? Very odd...so I'm undergoing more tests, I don't want invasive surgery to see if there's any anywhere else... And for now I'm to just put it down to my Fibromyalgia...
Anyway all things take forever to sort out! But atleast we get answers in the end!
so glad youve gotten a diagnosis. the thought of making things up in your head is so real things like that always feel so difficult to place. it a good thing youre happy and comforted (if that's the right word to use) by the diagnoses. sending all my love 🫶
kayla, i also have endo and it was the longest process of getting diagnosed and lots of negative experiences with doctors. talk to someone if you need to, i went to therapy for a year after i got my surgery and diagnoses. nobody believed me bc you can’t see endo on any scans. i’m so glad you were able to get diagnosed. it’s hard to live with, but being diagnosed makes it more bare able bc you know what the pain is.
There are far too many of us with endometriosis who share this diagnosis story. I was on the lucky end, and it still took me 8 years to get a diagnosis. The average is TEN. Thank you for talking about your experience. The best thing we can do is to keep making noise about it and standing in solidarity with each other. Congrats on your diagnosis!
I've been hoping Kayla will do an inside out house, where it's a garden and pool inside the house, and kitchen, bedroom, and bathroom stuff is outside (as much as Sims furniture will allow). I can imagine Stanley Humphries having to play in such a house; he's had to deal with worse in Rags to Riches challenges, tbh.
Thank you for opening up about your endo diagnosis! As an autoimmune disease girlie, I'm all too aware of the struggle to get taken seriously. Having the right doctors on your side makes all the difference. For anyone with chronic pain, look into central sensitization or fibromyalgia and see if that rings true even after your main diagnosis is under control.
So much love to all who deal with endo! 💛 The journey is different for all of us, but I see that all suffering with it have gone through such variety of negative experiences it can be hard to even understand it yourself. But we are all so much stronger for it. The diagnosis is the first step towards life with minimized pain and symptoms and so happy that you have an answer now.
Congrats on the diagnosis! I have PCOS and trying to get listened to is impossible. I got lucky and had a locum GP refer me and within 6 months I had my diagnosis, although they are not curable you can at least manage the symptoms and know how to deal with it all ❤
So sorry for your pain and doctor trouble🥴 Unfortunately there are so many people that are not being believed😤 And that breaks my heart😭 Hope you are getting the care and support you need🥰 Love you lots!❤️
i completely understand your frustration with your diagnosis. I took 10 years for me to be diagnosed with Lupus. I thought i was losing my mind. I hope now they take you seriously and you will began to get help and support with you condition.
If it makes you feel any better, I kinda like when you use a bunch of packs I don’t have because then, if I download it, it gives me an excuse to decorate it myself. I’m not great with shells, so sometimes I like to use houses off the gallery just for their shells tbh!
I love building shells & hate decorating we should team up lol
Wild that I just had an endometrial biopsy and am literally laying on my couch recovering while watching this video (I haven't been diagnosed with anything yet and honestly I don't think that's what my issues are) but congrats to Kayla! It's truly relieving to finally have a doctor believe what's going on with you and I can't even imagine how relieving it is to be told they know what's going on and how to help you moving forward
Congrats on the diagnosis! I just got diagnosed with 2 chronic illnesses myself in the past year, getting diagnoses are always so validating.
omg endo gang! so happy you got your diagnosis too! i just got mine in July and had the same problems you did with getting diagnosed, but i'm so glad you're talking about it 🥺
18:47 my goddd the greens! the best greens and purples aren’t properly matching, not enough natural wood tones like i adore this kit but it’s hard to use 😭
I've begun to suspect I might have endometriosis, I have all the symptoms, but Idk if it's worth it to go through everything to get diagnosed since I've found some ways to manage it (stinging nettle tea is a lifesaver for dealing with pain for me). Thanks for sharing! It's nice to know we're not alone in our struggles. Also I LOVE that purple nursery. 💜
Congrats on getting your diagnosis. I wouldn't worry about the rug or desk too much. If the sim is crafty she probably made it herself and it's supposed to look like that. I'm picturing it like Hazarial Ateliers oversized objects craft room.
Thank you for being so open about your experience with the healthcare system. I myself have not been believed by doctors throughout most of my life, and it turns out I have some pretty insane things wrong with me. It just feels so nice to be believed and validated that your pain is real.
My entire life, I thought that everybody else felt the exact same way I did, and they could deal with it, so I must be doing something wrong if everyone else can handle the exact same thing better than I can. It turns out that people don’t feel the way that I do, and if someone just believe me, it would’ve saved me a lot of hurt.
As someone with pots and endometriosis, thank you for being so transparent and open. It makes such a big difference for many of us 💕 It's so unfortunate how much it's brushed off as so many people suffer with it
feels kinda weird to say "congrats on your potetionally crippling condition" but congrats on finally getting an answer! as someone who's chronically ill, I can relate to the medical gaslighting and the relief that you finally know what's wrong. I also understand the "AM I making this up??" which really says a lot about medical care, especially in America. I know Simsie may not see this, but to anyone who does: don't let the medical gaslighting dissuade you into giving up! You're not crazy or making it up, your problems are real and valid. Also, if you're able to, it could be a good idea to contact your old doctors who refused to help and send them your official diagnosis. The confirmation bias of never hearing anything, which to them means you're fine now, leads them to continue to do this to more people! Also, there's this girl on tiktok who has a medical binder with all her medical history/test results and the like so that you can better stand up for herself to doctors and reduce the time it takes for an answer. I'm looking into doing the same, and it's worth a look!!
I’m so glad you got your diagnosis. It took me 10 years to get my Endo diagnosis and I totally and absolutely get you. It’s such a relief for someone to finally acknowledge that your pain is real and no you’re not just being a baby ❤️ I wish you all the best and hope you find the right treatment for you. I absolutely love your videos and streams. Thank you for doing what you do. It really helps me unwind and makes me feel better when I feel down. Love from the UK xx
Love this! Unique idea! I thought at first you were going to do mirror images in dark and light colors. This was so much better! Good job! I too am more of a builder. I've been playing since the game began over 20 years ago. So I have had a lot of experience in building everything from elevated terrain to deep dungeons. We didn't have much to work in early version of the game, so we improvised to make FAUX decor. I am so thrilled the game has evolved now to include functionality for just about anything we can imagine. I enjoy watching other creators. I would really like to see more bridges and rivers, sunken living rooms, platforms under the bathtubs, unique twists to the stairs perhaps using platforms as well, outdoor garden tubs or spas, gazebos attached to the porch of the house. Hidden rooms, with hidden doors, underground passages that lead to other parts of the property, perhaps to exit in a hurry via the car in the garage. I have so many of these items in my builds. I am very detail oriented and love romantic decor using dark academia vibes. Fireplaces in many rooms, bookcases. (My real home reflects this) I am an artist, author and jewelry designer in real life and incorporate many of these in my builds. In the past year there have been so many new packs and kits (Crystal creations was right up my alley, as is the new artist studio and goth storybook kit). Would love to see more dark builds. (You have been doing a great job with those) Something perhaps two story with tower rooms, hidden passages, (a place where an Author would enjoy writing thrillers)with a mysterious underground vibe, lots of old world elegance decked out with antiques and portraits, books and perhaps even a hint of spooky Ocotober... :)
The Simsie Momo house! I love the Momo house. it's honestly gorgeous
I am glad to hear that you finally got diagnosed so that any symptoms can be addressed. I love watching your build/speed builds as they always give me ideas. In regard to the tiles from Love Struck - I understand what you are experiencing. My work around has been to drop the tiles below the window and to the side and overlay them if necessary. They can appear glitchy at times but the end results are pretty worth it.
Dude you are so real for the anxiety thing I’m pregnant right now and I have been bedridden from morning sickness and it’s been so miserable and like none of the drs were taking me seriously and kept laughing it off like awe you’ll get used to it hang in there.. but like I recently got diagnosed with HG which is a literally life threatening form of morning sickness.. if this has taught me anything it’s that you know your body if something is wrong keep asking for help
Thank you for opening up about having endometriosis because I think it's not talked about enough. I luckily don't have it but a coworker that I love dearly has it and before she explained it to me I had no idea that it existed tbh. And just talking about it more makes people aware and hopefully helps others who experience horrible period pain figure things out! Even if its not endometriosis, it's better to get things checked out and maybe doctors find it faster when you already have an idea what it could be. At least that was the case with my coworker c:
Idk what it is, but the final layouts of both the houses are just so homey! Idk how to describe it really, but it just looks so realistic, and I can picture a family of sims all hanging out together, or having a party with friends over! I just really love how the layouts came out!
Very random comment, but very true!
I do wish I had more packs that have nice pastel swatches so I could download this, and still keep the vibes with the packs I have lol 🫠