Good video! You got it 100%. I was diagnosed RR MS (male late 40’s) one year ago from cognitive problems, optic neuritis, poor balance, weak legs. Thought I was perfectly healthy then woke up one morning and could barely see or walk or think. Looking back I remember having an attack 30 years ago and have had about every symptom you mentioned off/on through the years. Was never anything I or docs were too concerned about since symptoms would mostly go away with time. It took a blowout to realize something was not right. My sister had severe secondary progressive MS and passed from complications a few years ago…so surprising I never recognized the symptoms. Your videos have been extremely helpful to me in my recovery the past year. Thank you!
My first symptom was really intense headaches that lasted for only a few seconds. It happened 2 or 3 times in about a week, I didn't realize it was MS only after thinking about it for a while, I began to finally realize that it was MS once I got diagnosed, the headaches were at the back of my head, they only lasted a few seconds.
I was diagnosed in the USN at age 22. I think my first symptom was at age 17. After working a very long day at my High School's band competition, I went home and got SEVERE chills with a very high fever when I went to bed. By the next day it was gone. After diagnosis I had that same symptom off and on for the next 40 years.
I was diagnosed with MS in March 2010 and was l watching the ACA Healthcare debates while in hospital My symptoms were tinnitus, double vision, imbalance, and body weakness. My MS episode started February 2010 after stopping antidepressants (cold turkey); withdrawals symptoms probably happened together
Also, a few months before I was diagnosed in the USN I failed my timed run on my physical fitness exam. I was only 20 years old. I was not a great runner, but that still should've been no problem to pass. I was diagnosed a year later.
My first symptom was optic neuritis. The neurologist deternined that I didn't have MS at that time. Six years later, it hit me hard. At that time I had RRMS. Twelve years after that, it was SPMS. 😞
Falling over invisible objects as a grown up (later found this was due to foot drop); Uthoff's Phenomenon & L'Hermitte's Syndrome. I am a scientist by training & suspected it was MS. Had to fight with my GP at the time to see a neurologist as she sad to me: "Don't worry it's not MS. No-body gets MS"... I have never experienced vision symptoms.
I had vision changes that I had to consult an ophthalmologist who could not know what it was. I also had vertigo and lack of sensation in my left side and coordination problems in my legs
My first symptom started in 2014(winter)I worked at night I used to park blocks away from work so when I got off in the morning my legs would feel so heavy trying to walk I walked really slow and when I would get to my car I would be so tired.Spring came and the symptoms went away .In 2015 same thing happened again and In 16 I was diagnosed
Thank you for sharing! I have clients who also experience more symptoms in the cold, and some who experience this in the heat. You're definitely not alone!
My first symptom was numbness and lack of feeling in my left latissimus. The 6-8 weeks following that first symptom I also experienced fatigue, brain fog, blurred vision, frontal headaches late in day associated with light sensitivity, nocturia and balance issues.
You're definitely not alone! There is a whole community that can relate & support you. And I hope that some of my content can help explain to those around you who may not understand. Please, feel free to share!🧡
Good video! You got it 100%. I was diagnosed RR MS (male late 40’s) one year ago from cognitive problems, optic neuritis, poor balance, weak legs. Thought I was perfectly healthy then woke up one morning and could barely see or walk or think. Looking back I remember having an attack 30 years ago and have had about every symptom you mentioned off/on through the years. Was never anything I or docs were too concerned about since symptoms would mostly go away with time. It took a blowout to realize something was not right. My sister had severe secondary progressive MS and passed from complications a few years ago…so surprising I never recognized the symptoms. Your videos have been extremely helpful to me in my recovery the past year. Thank you!
I'm so glad you enjoyed this video, and thank you for sharing some of your story with me!
My first symptom was really intense headaches that lasted for only a few seconds. It happened 2 or 3 times in about a week, I didn't realize it was MS only after thinking about it for a while, I began to finally realize that it was MS once I got diagnosed, the headaches were at the back of my head, they only lasted a few seconds.
Thank you so much for sharing this!
I was diagnosed in the USN at age 22. I think my first symptom was at age 17. After working a very long day at my High School's band competition, I went home and got SEVERE chills with a very high fever when I went to bed. By the next day it was gone. After diagnosis I had that same symptom off and on for the next 40 years.
thank you for your service .
I appreciate you sharing your experience!
My first symptom was “a hitch in my get along” in my left leg. I was diagnosed 18 months later.
Thank you for sharing! I'm happy you've found my page, and hope it can be resourceful & helpful to your journey☺️
I was diagnosed with MS in March 2010 and was l watching the ACA Healthcare debates while in hospital
My symptoms were tinnitus, double vision, imbalance, and body weakness. My MS episode started February 2010 after stopping antidepressants (cold turkey); withdrawals symptoms probably happened together
I appreciate you sharing your experience!
Also, a few months before I was diagnosed in the USN I failed my timed run on my physical fitness exam. I was only 20 years old. I was not a great runner, but that still should've been no problem to pass. I was diagnosed a year later.
Dx 2006 but had symptoms since 2000. I had random blurry vision in my left eye, random stiffness in my left leg and decreased feeling in my hands.
Thank you so much for sharing your experience!
My first symptom was optic neuritis. The neurologist deternined that I didn't have MS at that time. Six years later, it hit me hard. At that time I had RRMS. Twelve years after that, it was SPMS. 😞
Thank you for sharing! I appreciate your openness!
Falling over invisible objects as a grown up (later found this was due to foot drop); Uthoff's Phenomenon & L'Hermitte's Syndrome. I am a scientist by training & suspected it was MS. Had to fight with my GP at the time to see a neurologist as she sad to me: "Don't worry it's not MS. No-body gets MS"... I have never experienced vision symptoms.
Thank you for sharing! I'm sorry you had that experience!
I had vision changes that I had to consult an ophthalmologist who could not know what it was. I also had vertigo and lack of sensation in my left side and coordination problems in my legs
Thank you so much for sharing!
My first symptom started in 2014(winter)I worked at night I used to park blocks away from work so when I got off in the morning my legs would feel so heavy trying to walk I walked really slow and when I would get to my car I would be so tired.Spring came and the symptoms went away .In 2015 same thing happened again and In 16 I was diagnosed
Thank you for sharing! I have clients who also experience more symptoms in the cold, and some who experience this in the heat. You're definitely not alone!
When can we look out for the next call about misdiagnosing? Thx
My first symptom was numbness and lack of feeling in my left latissimus. The 6-8 weeks following that first symptom I also experienced fatigue, brain fog, blurred vision, frontal headaches late in day associated with light sensitivity, nocturia and balance issues.
Thank you so much for sharing your experience!
My first symptoms were painful shins when walking. About eight years later I was diagnosed with MS in 2020.
Thank you for sharing!
I hard trouble swallowing food at a child. My dad always thought I didn’t chew my food. I was diagnosed in 2012.
I appreciate you sharing your experience!
2000 could not feel pushing brake pedal and num on my left side
Can you have ms with elevated ana?
I’m not sure - this would be a great question for your neurologist.
First symptom was dysarthria
Thank you for sharing!
As if u r talking about my symptoms, which I could not describe to anyone
😢😢😢😢
You're definitely not alone! There is a whole community that can relate & support you. And I hope that some of my content can help explain to those around you who may not understand. Please, feel free to share!🧡