Am I still invisibly disabled as an ambulatory wheelchair user?

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  • Опубліковано 31 сер 2021
  • Hello! My name is Isa and I'm a disabled graduate student, writer, and advocate. In today's video I explore disability visibility and disclosure. What do you think? Leave a comment below!
    linktr.ee/EucalyptusGirl

КОМЕНТАРІ • 21

  • @ericaaubie860
    @ericaaubie860 6 місяців тому +4

    Some people can walk short distances. But, it does not mean they don't have a disability. You can have a mild, medium, or severe disability. But, it does not mean your disability is any less because you can walk short distances.

  • @artemisb.5853
    @artemisb.5853 Рік тому +5

    This is a year old, and my first video I'm seeing from you, but I'm touched. You're a very eloquent, clear speaker. I am disabled and getting my first wheelchair tomorrow, but I am ambulatory too. Chronic pain, severe fatigue, and undiagnosed heart issues have brought me to finally try a chair to manage these symptoms. This whole topic is so important to me. Thank you for speaking about it.

  • @nicokelly6453
    @nicokelly6453 Рік тому +4

    Absolutely loved this discussion and the inclusion of intersectionality. Definitely this will never be a simple issue, it's complicated by so many other factors. I don't have much access to healthcare because of income, currently I mostly use a cheap cane and sometimes I'm able to borrow wheelchairs when I go to long events. But there's lots of things on top of that which also complicate it--I'm thin, young, white, and queer, which changes how people interpret my behavior and my health. Navigating society is a mess. I really enjoyed listening to your perspective, and I'm glad UA-cam suggested this to me haha. I definitely think invisible disability is a spectrum and never exists independantly of other factors.

  • @KernowFishy
    @KernowFishy 2 місяці тому

    This really rings true. I'm using a chair now as walking is severe!y painful due to AS. So much of what you say is true .

  • @evinfuilt
    @evinfuilt Рік тому +5

    Wife and I are watching this, I’m understanding a lot more of what she goes through right now. She’s an ambulatory wheelchair user, and when I got her the real nice custom chair, she did feel guilty. Our privilege shows, and we work so hard getting her walking more and more. Your story as a child at Disney wanted to make me cry. Thank you so much for sharing.

    • @disabledconstellation
      @disabledconstellation  Рік тому +1

      I’m so glad that you guys are finding something helpful from this video! ❤️

  • @leenb.7936
    @leenb.7936 Рік тому +2

    Abled vs disabled and the connection to racism is so spot on. I will keep on hoping that less and less people will feel the need to judge.
    That being said, I just bought a disabled sticker to put on the back of my car (after 12-14 years of driving without any form of announcement of being every bit disabled as the last 2-3 years when I finally got my disability parking card (due to some hacked up laws in my country I was ignored by the state as soon as I was “able to” get married, lost my disability according to the state, not just the financial aid itself or any bonuses or allowance or whatever but being disabled itself 🤷‍♀️). Of course I never parked in any of those spots until I got this disabled parking card but still… it’s like you wish for death stares to happen if you don’t have any announcements or disclaimers on your car, wheelchair or heck, even on our own bodies! So I figured I’d stick a “disclaimer” on the back of my car. In all honesty, I primarily did it because I am struggling so hard to get my scooter in and out and maybe am eligible for a lift since they have messed up when they wrongly calculated that the ramp I am currently using would be a perfect fit (my car has lot’s of damage and I even got another -bigger- car with a lower loading threshold just so I could use the method they said was easy peasy).
    My marriage fell apart a year ago and now I have to do it all myself. If only my husband hadn’t taken on the loading in an out (yes I previously was bound to have him along for the ride to be able to use that scooter. Needless to say I didn’t get out much lol), I would have been able to give the ramp back and ask for a better fit. But now there’s too much damage so I do hope that the lift is a possibility for me, now that I’m on my own for it all. If not, it is trail and error so that ramp and my trunk shouldn’t be getting too much ongoing damage but the technique I need to use to just be able to get that scooter up and down that ramp relies on quite a lot of strength of myself as I need to lift that scooter myself in order to get beyond that too sharp corner on each end of that ramp. Honestly that guy from the disability center messed up big time but my husband made it that I now rely on a new enquiry instead of merely altering the incorrect option they provided.

    • @disabledconstellation
      @disabledconstellation  Рік тому +1

      I'm so sorry you're going through all this extra stress. There's so much to consider while disabled. I also have a disability sticker on the back of my car. I put it there so if I forgot my placard people would hopefully know I just forgot it (not to get out of a ticket). I also put it there because I have this fear that people will think I'm using someone else's placard if I decide not to use my chair when going into a store or something. So much time and energy goes into stigma management and it's exhausting.

  • @fishfish7985
    @fishfish7985 Рік тому +1

    Cool yup I get glares from old lady's when I use my scooter it's quite a snazzy one and I have been using it around my town for a couple years so I don't get glared at as much , but it sucked I was also feeling wired as I get glared at when I use disabled loos when I don't have my mobolity aid or I use my stick because they think it's a seat I carry around with me it is but it's also a mobility aid that I use , but I don't get glared at anymore in my scooter or rollater

  • @monicalee2462
    @monicalee2462 Рік тому +1

    I love your videos

  • @leighmagrum4434
    @leighmagrum4434 Рік тому +2

    I walk and use a wheelchair and no one has yet to say anything to me. I’m recovering from back surgery. I also had neck surgery also.

    • @disabledconstellation
      @disabledconstellation  Рік тому

      I'm really glad that no one has said anything to you :) Unfortunately, that has not been my experience.

    • @leighmagrum4434
      @leighmagrum4434 Рік тому +2

      @@disabledconstellation mostly I gets death stares but I’m not a very good driver yet. Then when I stand up I wanna say oh lookie I am cared then slamp back in my chair and say just kidding. Lol

    • @disabledconstellation
      @disabledconstellation  Рік тому

      @@leighmagrum4434 Yeah, I get a lot of those.

  • @arsolblanes5058
    @arsolblanes5058 2 роки тому +2

    👏👏👏👏👏👌

  • @pjaypender1009
    @pjaypender1009 Рік тому +2

    It's not true that people don't questions people in wheelchairs, though.

    • @disabledconstellation
      @disabledconstellation  Рік тому +2

      Yes. I'm sorry if that's what got across. In my experience, the questions are different and less accusatory when I'm being perceived as visibly disabled. It doesn't mean that there aren't accusatory questions. Just in comparison.