Glad to see his story. I had adult onset Ald at age 45 now 63. Had trouble walking now use a wheelchair. Found out about this a few Years ago. My son then age 28 told me I think I have what you have . He went to a neourogist and at first he said we had hsp. Then with a blood test they found we had Ald. My son now age 35 do3s well with a cane and still works. He uses a scooter to get around like walking with his son to the park. Would love to hear this guys story. I know it can be harder on men well tak3 care. I'm in Calif.
Glad to see his story. I had adult onset Ald at age 45 now 63. Had trouble walking now use a wheelchair. Found out about this a few Years ago. My son then age 28 told me I think I have what you have . He went to a neourogist and at first he said we had hsp. Then with a blood test they found we had Ald. My son now age 35 do3s well with a cane and still works. He uses a scooter to get around like walking with his son to the park. Would love to hear this guys story. I know it can be harder on men well tak3 care. I'm in Calif.
May Allah give him good health and resilience
Many thanks for the chat karen was nice to speak to you 😚
☺
God bless brother, May Allah make it easy for you. ✌
My brother also got diagnosed with same and he died ultimately
Sorry to hear that happened to your brother Wasim
Hmm. Carrier family is looked down kinda in here