Episode 4 - Joel : Living with onset adult ALD ( adrenoleukodystrophy )

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  • Опубліковано 5 вер 2024

КОМЕНТАРІ • 8

  • @rosemaryparker2567
    @rosemaryparker2567 3 роки тому +2

    Glad to see his story. I had adult onset Ald at age 45 now 63. Had trouble walking now use a wheelchair. Found out about this a few Years ago. My son then age 28 told me I think I have what you have . He went to a neourogist and at first he said we had hsp. Then with a blood test they found we had Ald. My son now age 35 do3s well with a cane and still works. He uses a scooter to get around like walking with his son to the park. Would love to hear this guys story. I know it can be harder on men well tak3 care. I'm in Calif.

  • @mrfasm1644
    @mrfasm1644 3 роки тому +2

    May Allah give him good health and resilience

  • @1likeJAY
    @1likeJAY 4 роки тому +5

    Many thanks for the chat karen was nice to speak to you 😚

    • @TheJohny589
      @TheJohny589 4 роки тому +1

    • @mrfasm1644
      @mrfasm1644 3 роки тому +1

      God bless brother, May Allah make it easy for you. ✌

  • @wasimmir5103
    @wasimmir5103 Рік тому

    My brother also got diagnosed with same and he died ultimately

    • @AlexTLC
      @AlexTLC  Рік тому

      Sorry to hear that happened to your brother Wasim

    • @wasimmir5103
      @wasimmir5103 Рік тому

      Hmm. Carrier family is looked down kinda in here