Vasculitis Treatment Allows Patient To Live A Normal Life
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- Опубліковано 22 гру 2011
- Twenty-two year old Michael Betts from Granville, Ohio was suddenly afflicted by a mysterious and severe abdominal condition. Weeks at a local hospital provided no answers, and he was transfered by emergency transport to Cleveland Clinic. He endured excruciating pain until Cleveland Clinic physicians found the answer - vasculitis.
Once diagnosed, he has prescribed the proper vasculitis treatment & medication. He is now living his normal, active life. His family appreciated every aspect of care he received at Cleveland Clinic.
You can learn more about Vasculitis at my.clevelandclinic.org/rheumat... - Наука та технологія
My heart, lungs, kidneys, left eye and brain, the vasculitis wegener took my body over, I am getting my treatment for 7 years now, I have my ups and downs, it's a very hard thing to go through, do never give up, love and blessings for all who are suffering the same ❤❤❤
I also have GPA c anca positive and my kidneys lungs brain eyes ears were involved now my all organs are fine except kidneys
@@archi9645 What treatments worked for you? And if you're OK sharing, what clinic did you go to?
@@kukui79 no treatment was working
I had to go for plasmaferesis after that RITUXIMAB worked in my body
I had a cerebral vasculitis which is similar to what you’ve been through! I’m in Canada and good luck to you!
Excellent Video clip! Forgive me for butting in, I would love your opinion. Have you heard about - Ganrayden Peerless Gratification (erm, check it on google should be there)? It is an awesome one off product for eradicating your urticaria without the hard work. Ive heard some interesting things about it and my close friend Aubrey after a lifetime of fighting got astronomical success with it.
Cheers for the Video! Forgive me for chiming in, I would love your thoughts. Have you heard about - Ganrayden Peerless Gratification (Have a quick look on google cant remember the place now)? It is a great exclusive product for eradicating your urticaria minus the headache. Ive heard some incredible things about it and my mate finally got astronomical success with it.
I am in canada living with vasculitis and lupus
@@elenakim4553 please tell me..... weather in Canada is harmful for vasculitis patients?
Absolutely truth ,I have this vesculities rash thing since 2016 same thing I had thoses things also still coming up unfortunately my country didn't have anything for this one so I wercked so much same story with more wores case according to my country health facilities not same as this facilities. So still suffering from this my self but its fine case It ment to happens for me so I took decision to be a Pearson who can be performe efficiency with those effect but its not easy , my congratulations to you case you got it finally then try to help more persons who like us . Good luck 👍and Be safe .
Thank u for this video
The Cleveland Clinic is not always this "personal"... I've gone countless times for difficult issues and at no point did any of the doctors gather together or consult with each other like this .
Nice PR video.
When I stretch I get really itchy I'm the muscles and my blood pressure is really high, 165/93 usually and for the past 3 months. I'm on 3 different blood pressure agents as of 45 days ago and have not seen a lasting drop in blood pressure, first week of medication I went down to about 140/85 for almost a week, and then it went right back up again. I'm wondering if I'm experiencing some form of this disease.
My husband cns vasculalits patient how i contact with doctors. He is now not well he cannot walking
I’m going though it been 2 months into it and now take 11 pills a day and had 4 rem treatments and just now able to walk around some rough stuff trying to stay positive
I feel your pain.
Did you get better? I got sick 10 months ago, and at first they assumed it was a neurological issue(I lost feeling on my skin), but after 2 months the symptoms changed. As of now I can only walk for a minute or so, talking is hard and hurts(it affected my trachea, I literally can't even yell), and I can't do much else than just sit and read. In Finland most doctors were clueless with this disease. I'm meeting a new rheumatologist in a few days though.
How i wish i can be treated like youh.all i know is how to survive my family with this pandemic.im a singlemom here
But how long can you take Prednisone Steroids before that creates more problems ? What do you take after Prednisone.. How do you get cured?
I’ve been taking prednisone for a year now and I’m also on azathioprine now but I’m having really bad side affects from the azathioprine so I don’t know what’s next but there’s multiple medication out there I hope I find the right one for me soon
@@poppawasarollinstoneboom9396 You have vasculitis as well? What type, if you don't mind me asking? Did it leave any permanent damage?
Prednisone can trigger problems instantly or it can take a while. I'm surprised you haven't had chemo infusions or Rituximab with the prednisone.
@@kuutti6777I have Granulomatosis with polyangiitis (GPA) Vasculitis. I suspect it started in 2021, but my then doctor refused to run the ANCA test. I suffered until this year before I was in the ER for worsening kidney problems. I'm now in stage 2 ckd, bad eye site, hearing and nasal issues.
they said preazone im pretty sure what semptems are you haveing
I was diagnosed with leukocytoclastic vasculitis early 2014 and I still have it till now. I have to wear comprehension stocking everyday of my life since then because I am a teacher. Steriods did not work for me.
Ivy Gauco i have the same thing I’ve been on azathioprine for a year now and completely symptom free
Ivy Gauco I was just diagnosed with leukocytoclastic vasculitis in June 2019. I have had sores all over my legs and on my chest for about ten years, but just diagnosed this year. I also wear compression stockings because it’s embarrassing, but also because if I didn’t, the sores hurt more. I actually just started taking Colcrys (colchicine) as of yesterday. Hoping that it will help. I am super sensitive to any steroid so I’m glad that I am trying this instead of a steroid. All my best to you!
I wonder if the Wim Hoff method would help.
Ivy Gauco did they ever figure out what’s causing it? I’ve had it for a year now and I’m taking dapsone for it
Are you taking any medication to reduce the swelling?
They are figuring out what I have too... And vasculitis seems most likely. I'm so happy it's treatable.
Sarah van den Broek what is the treatment
Sarah what is the treatment . please tell ne
I had vasculitis and this disease took my 3 fingers from me
my pain receptors are gone i can't feel pain anymore
it damaged me physically and mentally
And it took my childhood from me
Ser Kryndon :( I'm so sorry to hear that
Great video content! Excuse me for chiming in, I would appreciate your opinion. Have you tried - Taparton Casting Hives Takeover (probably on Google)? It is a great one of a kind product for Getting Rid of Hives minus the normal expense. Ive heard some interesting things about it and my best friend Jordan at last got astronomical results with it.
Gentlemen I am diagnosed with PAN and EGPA, the lack of treatment has led me to present a disability, I do not have any kind of support. I make a desperate call to your collaboration to save my life, in Colombia the health system does not work
Check out water fast my friend. I'm not sure if it can help but u can give it a try plz.
How are you now? Without proper treatment, the prognosis is very bad.
My mummy has been diagnosed with one of the rarest forms of vasculitis: ANCA associated vasculitis - focused on skin, eyes and lungs. She's just finished an intensive chemo treatment... but the aftercare is hazy. If anyone has suggestions or similar experiences, please reply 💕
My dad just diagnosed with P ANCA vasculitis last month they have started his induction treatment with steroids and chemo 😢
How has the aftercare been with you and the last commenter? Similar situation I'm in
It takes time to get into normal life..i think patients should practice yoga or exercise for regular basis
I was hospitalized this August, released in 4 days by the hospitalist. Within less than 36 hours I was back in the ER. The Dr in the ER treated me like a drug seeker and gave me nothing for the pain because I am allergic to morphine. Thank God one Dr fought to have me transferred to the University hospital where I was diagnosed with IGA Vasculitis after their Dermatology Department did a biopsy of the vascular spots on my legs. Like you I was given high doses of IV prednisone. I've been told it was caused by an allergic reaction to something I ate and may never know what caused it.
Didi it work?
From India same thing ... Are you okay now please tell me ...
@@harshitasinghnaruka6938 I have some lingering side effects. How about yourself?
@@irishpixierose it's been more than year but I was never on steroids just for the week to get my situation a bit down then after ... That I have changed doctors and treatments. And now it's like I have a set routine so if that breaks up ... I flare up bad ... I only eat home cooked meal .. trying to completely eliminate maida which is refined wheat flour (that helped a lot ) .. it's like try to eat as light as you can so your body's energy can concentrate on healing and not on digestion
@@harshitasinghnaruka6938 that's good. I'll have to look into the wheat. I'm glad you weren't on steroids for very long. After leaving the hospital I was on prednisone for 30 days. It was terrible.
My dad has been diagnosed with P ANCA vasculitis which damaged his lungs and heart, currently his in induction treatment with 60mg steroids daily and monthly one chemo injection 😢, due to steroids his hands are week , how to handle treatment side effects
What are you dealing with your heart ?
I suffer from strong abdominal pain, ascites, but without diagnosis. Israel.
Were you taking calcium supplements when you were diagnosed and have you been taking them since your treatment began?
Does calcium supplements have anything to do with the trigger of LCV vascuilitis?
@@suddat I'm not a doctor, but from what I understand, Wagener's is said to have a genetic component, but I'm suspicious of supplements of metals, such as calcium, because in my sister's case, it was, as I understand it, calcium crystals inside her cells, tearing them apart from the inside of the cell. And I know she was consuming large doses of calcium supplements on a daily basis. Just looking under rocks.
What is the best food for vasculitis pls hlp
Man can go to the moon but can't find cause of a disease ?
It explains it all ....
Thanks for the Video clip! Excuse me for chiming in, I would love your initial thoughts. Have you heard about - Ganrayden Peerless Gratification (probably on Google)? It is an awesome exclusive guide for eradicating your urticaria without the normal expense. Ive heard some great things about it and my old buddy Taylor after a lifetime of fighting got excellent results with it.
Cheers for the Video clip! Apologies for the intrusion, I am interested in your opinion. Have you heard about - Ganrayden Peerless Gratification (Have a quick look on google cant remember the place now)? It is a good one of a kind guide for eradicating your urticaria without the normal expense. Ive heard some decent things about it and my good mate called Gray at very last got amazing results with it.
I have polyarteritis nadosa vasculitis and I do t use thca recreational I don't like being g buzzed but at 10 years mark I had dvt that went to lungs and did other vein damage. I just got out of hospital and Had another flare up I did not go this time or to do toes were really bad swollen pan was flaring g up I used legal thca I hate smoking g it but my pan is going back in remission it has settled it down. I'm fixing to get ready to sway to type on but if any of You guys have emergency flare up Hemp this time kept heart rare down and has knocked inflammation down. I was about to have to go to the hospital I'm not now. In an emergency vasculitis flare up when pain is out of control I figured I would put that out there to settle Your vasculitis down without prednisone. PeaceGod bless to all vasculitis patients.
I've the similar disease which you've gone through.
I had livedoid vasculopathy when im 14 years old. I got treatment 7 years. no new wounds appeared within 4 years. but i have still paining on my legs when im walk too far or when im standing too much time. stress increasing my leg pain badly. there are continious minor numbless in several parts of my legs. im 23 years old now. i like to be a chef. is it ok to choose this career?. I am afraid that I works standing for a long time will get my disease again .chefs are working 16hours * 4 days a week. please be kind enough to reply my comment
There is hope for you. It will take a long time and you have to do what your doctors and nurses tell you, no excuses. Exercise as best you can and work your muscles daily. Don't let them atrophy. Take your medication as directed.
I had vasculitis. It damaged my kidneys. I went on dialysis and then a kidney transplant
I've vasculitis too, how can I get rid of kidney abnormalities? Any tips?
How are u now
@@sabdban77777You can't. Vasculitis will do what it wants to do. As long as you are in remission from treatments, just use common sense on what damages the kidneys.
How are you now?
I got vasculitis Damaged has been done to my lungs is severe.😢
Are all varieties of Vasculitis auto immune?
Every type that I have heard of. I am getting over Small Vessel Vasculitis in my feet and lower legs, and it gave me the worst pain that I've ever had. Thank God for Prednisone.
I am suffering from 2019 ..taking striods and calcium but my left leg has sansation problem ... How's ur life ur are stable now
My dad has been diagnosed with P ANCA vasculitis which has also damaged his lungs, heart, and nerve, currently his under high dose of steroids and chemo
@pavanaradhymath6954 how is he now?
Bro, can I have your insta or number? I may have it doctors are confused. Need some info. @amitawasthi
I don't understand why people are down on Prednisone, It literally saved my life when I was bed-ridden with Vasculitis.
It's the best worst drug. Short term it's incredible and useful in so many ways, but is also causes osteoporosis, muscle wastage, insulin resistance and a whole host of other nasty side effects. It's brilliant, but there's a reason doctors only want patients on it if absolutely necessary and for the shortest time possible
They gave me prednisone but it’s not effective and has a side effect.
You need more than just Prednisone. Chemo drugs or Rituximab depending on what type of vasculitis.
What did she say the diagnosis is? something P vasculitis?
HSP vasculitis, which refers to Henoch-Schönlein Purpura
What were you treated with please?
Treatment depends on the type of vasculitis, but high dose prednisone is one of the main drugs for all types. Aside from that, chemo drugs or Rituximab are also used in combination.
I m from Pakistan my brother of 30years have vasculitis how did we have your treatment for him guide me thanks
Sis I have this desease,how is your brother now. From where he is having treatment
@@neelambuttt7423 He passed away.
yar mujhe bohot dar lg rha hai. Allah ap ky Bhai ki magfirat kre. Mere liye dua krna main thek ho jaon
@@neelambuttt7423 how are you sister now? Meray Bhai ko b yahi bemari ha ap nay treatment Kahan se keeya
Bro apkay Bhai ki treatment kaisi thi or apkay Bhai ko Kya side effects thay. Mera Bhai Jo k 23 years ha osko doctor prednisolone or methotrexate de rahay hain.
Glad he was helped, but what a load of crap... this is an advertisement for CC... the treatment is never mentioned, steroids don’t work for everyone... plus they’re not a long term answer ... if he was on steroids, he would not look so slim in the face.... I call BS
MyEyesBled You are absolutely wrong!
Lisa Hunt he really isn’t I have this as of now and he’s spot on, this is just a prolonged ad
do you think this is man made diesease where as it come from also is there a diet for it for the symptoms thank you need help
martin evans Anti inflammation diet.
of course there is. That's how you get it in the first place. You can reverse it and heal from radically changing your diet. The drugs they give you only mask the symptoms but don't get to the root cause.
Yes from vaccines
GMOgottago you’re so very wrong about that! Study it again!
Buddlebot there are many different kinds of vasculitis and you are also wrong! That cannot cure everything! Sorry, not sorry!
i have this samething but since im only 14 they dont have a treament for me and i could die if i fer really sick so for everyone oit there just hold on
Trinity Sullivan Hey, try anti inflammation diet. Have ginger tea, blueberries, tomatoes. It has cleared up.
Are you still with us?
they gave me prednisone for my treatment
is it still working?
It has side effects
Did it work?
@@33commonsenseguy I'm pretty sure that I would be dead right now were it not for a team of doctors and nurses at Lancaster General Hospital. The Prednisone I was put on literally saved my life
I have Urticarial Vasculitis - it’s awful!
Appreciate Video! Sorry for chiming in, I would love your initial thoughts. Have you considered - Taparton Casting Hives Takeover (google it)? It is a good one off product for Getting Rid of Hives without the normal expense. Ive heard some incredible things about it and my buddy after many years got amazing success with it.
Excellent Video! Sorry for the intrusion, I would love your initial thoughts. Have you heard the talk about - Ganrayden Peerless Gratification (erm, check it on google should be there)? It is a great one off product for eradicating your urticaria without the hard work. Ive heard some pretty good things about it and my friend Sam after many years got amazing success with it.
It’s not going to work troll bots.... My immune system is fluffed and hates me! The only thing that gets rid of my hives is suppressing my immune system so it doesn’t destroy my kidneys!
@@ScottieBibble Hi, sorry you ha e this disease, my little sister also has the same diagnosis, she has been 1 year on methotrexate and cellcept and still won't get better. Could you tell me what treatment helps you?
@@mayerlingbarrios6428 sure - I’m on ciclosporin (immunotherapy), fexofenidine (antihistamine) and ranitidine (antihistamine but I have issues getting a hold of it so I’m on the other two)
Nice PR video Cleveland Clinic.. I am sure your doctors aren't like that in reality. All gathering around each other looking to solve a patients problem. Looking like they care. The medical system in this country is broken and plain robbery. I wonder how much this family had to pay after insurance?
He went all the way to Cleveland clinic for some prednisone?! Lmbo! What a joke.
GMOgottago EXACTLY my first thought. I’m on Plaquenil and occasional rounds of prednisone, but I still feel like bees are stinging me all over my arms and legs and some days I’m so achy and fatigued I feel like I’ve literally been unplugged. I’ve kinda given up on doctors, although I trusted and sought help from many of them for over 30 years. A biopsy of petechiae on my foot led to the diagnosis of lymphocytic vasculitis. The only treatment I’m offered is biological meds like Enbrel or Rituximab or old-school meds like Cytoxan and Methotrexate. The side effects I’ve read about from these drugs are as bad and often worse for people who end up taking them. Not sure what the best answer is.
Why is it a joke to you when this family who has a young Son had him in the Hospital and he wasn't getting better....some people are diagnosed fairly quickly, and others are not. If one of my Sons or my husband got sick like this man did, and good Doctor's just couldn't find anything....Vasculitis was mentioned and if they chose to go to Cleveland to get more help, and have a Doctor give him the best course of treatment after a definitive diagnosis then good for them. Why would you say this situation is a joke??? Or do you just not care about anyone all the time? You are so rude, and a jerk!!!!
Kathy Woodring
MyEyesBled We get diagnosed with vasculitis through a biopsy taken from the sores that appear on our body and studied by a pathologist, so it is a real thing! It’s just that a lot of people don’t ever find out what actually causes us to get the vasculitis. You should really do some studying on this disease before you judge us and put us down. You have so much to learn!
@@pearlnova8891 i fell ill into the hospital June 16 2022 wasn't diagnosed until a brain biopsy on 26 SEPTEMBER awaiting for Chemo CNCS Vasculitis