LUPUS VS FIBROMYALGIA | Can you have both?
Вставка
- Опубліковано 27 лют 2018
- What is your experience with Lupus, Fibromyalgia or both?
→ Shop Live Hope Lupus Merch (I appreciate your support)
www.livehopefitness.com/store
→ Show my favorite things on LTK
www.shopltk.com/explore/healw...
--------------------------
Follow me on Social Media:
↪ Instagram: @healwithsamantha
↪ Facebook: livehopelupus
↪ Website: www.healwithsamantha.com
--------------------------
BUSINESS INQUIRES ONLY:
healwithsamantha@gmail.com
--------------------------
My name is Samantha Wayne and I have been creating advocacy videos on UA-cam since 2009.
I created Live Hope Lupus in order to create a space where those with chronic illnesses could get information and support. Please subscribe to follow me along on this journey!
-
Follow me icons used under Creative Commons (Attribution-Share Alike 3.0 Unported) licence and were produced by Abhishek Pipalva.
Available for download at: www.iconfinder.com/iconsets/p...
![ПОЛНАЯ ИСТОРИЯ ЭКЗОРЦИЗМА [Топ Сикрет]](http://i.ytimg.com/vi/qBySr6Bt0B8/mqdefault.jpg)
Fibromyalgia is an extremely common secondary condition found with Autoimmune diseases. Apparently when tested for Lupus, Lupus itself can often not show up if you're not in a flare. Or so I've been told by Drs, etc. Like many others who comment, I have Sjogrens, Fibromyalgia, Fibroids, Raynaud's, Lupus, etc. A number of the medications I can't tolerate very well or due to cost. But, Prednisone X3, Baclofen X2 Pilocarpine X3(dry mouth), Lexapro X1, Gabapentin X2 and Tramadol X1 daily.
Also worried newest
DEA/FDA rule's will require pain specialist (Dr) instead of my Rheumatologist.... Blessings to all of those struggling with these diseases, especially those who struggle with family and friends who don't try or bother to understand, listen or even Google the how's and why's of the effects of Autoimmune diseases. Namaste 😘💜
Bluescarlet so are you saying that our rheumatologists will not be able to give us our pain medicine anymore will have to go to like pain management for our medication now? So you go get diagnosed and then everybody’s going to be regulated through pain management?Also does anybody have any tips for how to overcome the chronic fatigue I have figured out how to reduce the muscle aches and stiffness through Advil and Tylenol and bio freeze and hot and cold therapy i.e.
obviously you are so sick due to heavy meds use as one would be very sick from just tiny bit of what you are using
When I was diagnosed with lupus I jumped on the Internet searching for others who can explain what others go through and how they cope. UA-cam was such a comfort to connect to others stories so you feel like you are not alone in this.
Yea, as you said, lots of similarities between the two conditions and also as you said they could coexist, one big difference I find as a Fibromyalgia sufferer, I must add, the pain we experience during flares is very excruciating and in many cases disabling, to make matters worse, pain killers are not usually effective, also every patient has to be treated uniquely depending on his/her own sr of symptoms and yea, sadly in the outside we look okay, very normal people.
as far as fibro fog, it also can be very debilitating, in some instances, you can't even find the right words to talk. we become extremely forgetful and we totally lose the ability to concentrate on doing the most simple activities, mental or physical.
lots of Fibromyalgia patients also suffer from IBS which depending on the severity of it, it could confine you to stay in the privacy of your own house until the symptoms get better.
I am sad to hear you are a Lupus Patient at a very young age, I just hope you can get rid of that autoimmune condition so you can have a more normal life, thanks for sharing your experiences. God bless you.
Do you take any meds for this? I was diagnosed with fibromyalgia and honestly I hurt everywhere and feel burning . Sometimes I just want to go to sleep and never wake up as I am so young and the pain is just debilitating.
I have both Lupus and Fibromyalgia and RA and Sjogrens and Raynaud's and a whole list of other things but those are the big ones. Today was a really bad flare day with the rain in Texas this past week. Thank you for making these videos. You are helping tons of people who are needing good information. Sending love and gentle hugs to you sweet girl. ❤️
Sending love your way as well. Hope your flare gets better soon!
I have all of these aswell
Melonie Bailey, I have fibromyalgia and RA too, but what caught my attention was when you said you have Raynaud's because I have Raynaud's as well! What a coinkydink! Strange stuff! Hope you're feeling better now! You posted your comment a year ago!
I was told I had fibromyalgia until my Dr. did lupus tests! I knew I had lupus!! I was sick all my life, & my mom had Lupus
I just got back from the rheumatologist today where I learned I have both fibro and lupus plus a couple other fun things and another referral to a specialist. Thanks for being you and making videos and giving hope.
I have lupus and fibromyalgia. As well as Raynaud's. Just found your videos! Thank you for all the info you put in them.
I have both. I was diagnosed w/Fibromyalgia when I was 21yrs old. I’m now 41yrs old. I was one of the “lucky ones”’to get diagnosed w/Fibro when it wasn’t even heard of. So, again I got “lucky” to get diagnosed. & fighting both ever since.....💪🏽
Love your informational videos. Lets me know what to expect on my health journey. Sometimes you have to decompress.
I have fibro and I'm sensitive to literally everything, light, sound, touch, heat, cold, smells, flashing lights and anything else you could think of lol people look at me like I'm crazy
I am too. Twenty years ago, I was treated for mental illness because no one believed my symptoms.
@@loriacres2347 my "depression" is actually primary progressive multiple sclerosis and Lupus.
I’m the same Emma, all my friends and family think I’ve been making it up! Invisible diseases are cruel x
I have fibromyalgia and Raynaud’s syndrome and asthma, my husband thinks I have lupus as well but I don’t have a rash. But being on 12
different medications I don’t want anything else. I had 2 failed back surgeries within a year of each other. I walk with a cane or my wheelchair I’m 48 years old and have severe nerve pain in my left leg. I was fired from my job while on leave from my second surgery in 2020, everyday I have to find the strength to still be here.
I have both, and finally diagnosed in 2016, it took a few years to get a diagnosis.
I truly enjoy your videos.
I actually have both.. it's a terrible every day life. But I keep a smile and find a way to keep pushing on!
Hi I'm native American and I have lupus, rheumatoid arthritis and fibromyalgia too. I can relate with all these symptoms too.
I just wanted to say that I love your videos. I don't have lupus but I do have fibromyalgia. I got diagnosed at the age of 16. I just recently got diagnosed with costochondritis and the nerves in my neck have been inflamed. So yea living the dream. ( that was Sarcasm) but I just want to tell that your video are every inspiring and thank you.
Hope the costochondritis is better. I know it is terrible. Luckily, I haven't had any issues lately. Been using the BackPod and it seems to be helping tremendously.
I just got back my Results on my chest X-ray and my blood work they said everything came back normal. It's so frustrating when you're in so much pain and they say everything's normal. They want to send me to physical therapy. I did just buy the back pod And I can't wait to use it. I really hope it works.
@Jayden Silas There is NO cure for Fibro, there is treatment.
Fibro has more than 200 symptoms. It is treatable, not curable. If there was a cure don't you think all of us with FMS (Fibro)would be cured?! Many natural remedies can help treat some symptoms but not cure them. Being an active RN (25 yrs) who loved my work as a Nursing Supervisor & Independent Consultant (Assessment Coordinator, 6 yrs & Legal Nurse Consultant (3 yrs)had to stop working all 3 jobs all together. Currently an inactive RN since 2010 but I still know my stuff! I tried other areas of work (homecare, hospice, etc) but because of the chronic pain, migranes (never had a headache)
inflammation, swelling of my lower extremities, blurry vision, photo sensitivity, arthritis in most every joint, increased pain with certain activities (driving, being in 1 position more than 20 mins. & so much more.)I would much rather work than be on permanent disability! Big income loss, 2 years no income, who wants that? Thank God my husband could carry the bills!
I started with a chiropractic care 3x's/week, @ my 6 month naturalistic team meeting it was determined I was not responding to any treatment. My chiropractor diagnosed me with fibro, he wrote a list of tests & blood work he suggested. My PCP ordered everything. Turns out, he was correct. HLA B27 was (+). My MRI & CT's showed many abnormal things.
Was referred to rheumatologist & was diagnosed, +fibro. Went for a 2nd opinion, actually 3rd opinion & it was confirmed + again. I've had many PT, OT & aqua therapy sessions, too many to count. Not much improvement, continued home exercise, TENS Unit @home, cervical traction @ home. Maintained sumptoms but no improvement. I was prescribed many meds, some I refused.
I follow both medical & naturalist treatment but I continue to decline. Watch Fibromom11 on U tube. Esp. These 2 videos
2)
Hi everyone. New to Lupus but I see that like myself quite a few of you have both fibro/lupus along with Arthritis and raynaulds also costachondritis. I also have other problems too. At the moment I have a lack of information out lupus . Here in the UK it's a shock to find no real support groups or info. Aside from this, can I say having found this vlog I am glad Samantha explains in detail and is aware of the many aspects of chronic disease. I've had fibro for24 years and some of the other problem like Arthritis for 43 years. I try to find my own ways to control or at least get through a day. I find that how I choose to take meds and follow the rules doesn't do for everyone. So working on how I feel day by day etc helps me
As I adjust things. Of course alot of the time sticking to or changing doesnt help at all . ? Hope everyone gets relief today.
I had a positive ANA test in February so my GP made an appointment with a Rheumatologist for me in March. 10 days before that appointment I had to go to the ER for Asthma. At the ER they gave me 3 injections of a steroid and a script for Prednisone. I was only off the Prednisone for 2 days when I went to the Rheumatologist. My ANA was negative in March. I showed him a pic of me with a Malar rash that cleared up after 5 days on Prednisone but because of the negative ANA he said I did not have Lupus. I have had a Malar rash 3 more times this year. SO frustrating
I have Lupus and have negative ANA which is rare but does happen occasionally.
Please talk more about Juvenile Dermatomyositis!! It’s like the sister to Lupus that no one ever talks about. I have it.
Hi just came across your blog and this video just made me smile because I have Fybro and have been dealing with it since 2006 and today 7/3/18 I was diagnosed with lupus well they had brought it up before back in 2010 but it was mainly confirmed today and you hit it on the nose with me I'm going to start my plaquenil today along nortriptyline 10mg 😒
I have been diagnosed with fibromyalgia, BUT am on a medical journey for some other of immune disorder currently, since I have other symptoms that don’t fit the description of fibro. (Lupus obviously being one of the things discussed by my doctors). Another medication that I was prescribed for my fibro was Gabapentin, which was used as an anti-convulsant but also helps nerve pain and restless leg syndrome (sometimes for diabetes, too!)
Hello I enjoyed watching your video I was finally diagnosed with fibromyalgia about 5 years ago due to the fact that no one had any reason to why I was having really bad pains all over my body particularly in my neck and my head after seen many different types of doctors filing a pain doctor verified that I was having flare-ups and that there was nothing that they could do for me
great video!
i have both Fibro , Lupus, POTS, Raynauds, Sjogrens, RA, Avascular Necrosis. IBS with diverticulitis. E I E I O. Gentle hugs for you. I hope u have less pain soon
I have lupus sle but feel I’ve fibro as well will be asking my doctors . Thanks for sharing
Oo luv me hit the jackpot with ra lupus and fibromyalgia this is a living night mere i pray for everyone who is suffering from anything that causes pain and suffering
Thankyou for you informative videos,your a very mature young lady. I am 52 white English woman,just getting diagnosis,long process. At present looking like fybro,and lupus. Just on vit d,and amatryptoliyne... et moment,awaiting reuhmatologist appointments. Wish me luck.....it's only taken 7years so far!!!!!!!
Lesley Bailey I just came here and saw that we are both 52 yo caucasians with similar journeys. 😜
I have MS and fibro life is very difficult for me. Great information x
Fibromyalgia patient here. Now my new doc is testing me for RA and Lupus. I have severe sunlight reactions, need steroids a couple weeks along with Claritin all summer, long sleeves. I probably had fibro my entire life, but, after having major back surgery, my body seemed shocked. It was months of recovery, some nerves never healed, and many years still in pain. I have a great doc and team. Mine is mixed.
I have the epidural injections of steroids once my legs hurt too severely to walk, along with pain meds daily. So my bloodwork looks normal this time as well, yet the new doc, a GP, said we have to look at the rash, sun, etc to determine Lupus. Swollen sore joints, and the only symptom I missed was the butterfly face rash. I always assumed my northern heritage and light skin caused my problems, plus sports caused pains that just needed to heal. Never heard of any fibro or lupus before my operation, and physical therapy.
Im just getting out of a relapse. My hair was falling out, another Lupus symptom! It’ll grow back, but I am older now, so it frightened me. Not hormonal, or medicine related. So, I have no concrete diagnosis for lupus or RA. At least these drs don’t brush me off as some have through the years. No one wants to be sick. I had to retire early. Have brain fog. Joints ache every day. It is annoying. Thanks for the lists of comparisons. It really helps.
I hope you’re feeling better! Take care. Thanks for sharing.
Very similar to your symptoms. I was diagnosed with fibromyalgia a year ago and RA a few months later. I’ve worn a CPAP since 2015 and chalked up the red face rash as that. I swear I think I have Lupus as well. Humira for RA and cymbalta for the fibro pain and chronic depression aren’t really helping now that the epidural nerve blocks are wearing off. Please give updates on how your doing too…these videos and comments make me feel validated.
Love your videos I have sle lupus and fibromyalgia plus reactive air way disease , dry eye syndrome , mild kidney disease rheumatoid arthritis I am taking Methotrexate injections plus all the medications that you have to take for lupus.
I have Lupus sle plus Polymyalgia Rhurmatica which is a second form of Lupus. I have fibromyalgia , arthritis, osteoporosis, osteo arthritis, on top of two different kinds of Heart Failure. I have Thoracic Outlet Syndrone and had that surgery removing first rib and neck muscle, also Reflex Sympathy Destropy... Trust me life is very challenging at times, yes I take antidepressants, muscle relaxers and pain medication. Had cervical spine fusion three years ago so now we can add a spine cage and plate in my neck.... I do my best to stay positive but I do get down at times. It's becoming hard to tell just where the pain is coming from because there's just to much wrong. I enjoy every good day I have and don't waste it but have learned I can't do what I used to and have finally found acceptance with that. Just keep going never give up
I have both. Sensitivity to medications means I take pain killers and otherwise treat with lifestyle changes.
I have Lupus. My rheumatologist explained that when you have untreated inflammatory arthritis for an extended period of time then you can develop a pain amplification disorder. Which is like fibromyalgia but with a definite known cause
I have fibro, lupus, Sjogren's, anxiety, and interstitial cystitis. I have tried plaquinil (sp) and am allergic to it. I cannot take antidepressents and have tried so many. They worked for a while, but then created a bunch of other symptoms and when I quit taking them the symptoms stopped. Stress, weather, and change of seasons (especially from spring to summer) is the worst time of year. Riding in a car is very very hard and it takes 2-4 days at least to recover after a long car ride. I have fatigue, stomach issues, bladder issues, constipation, weight loss and weight gain, appetite problems, swelling of extremities, dry mouth, eyes, and skin, heart palpatations, etc. etc. etc. Bad days leave me doing nothing. It is very hard to make any plans at all because I cannot say yes and then have a bad day and not show because people always get upset. I was diagnosed with fibro in 2007 and lupus and the rest in 2011. I don't have a butterfly rash, but do have lupus lesions and they have been biopsied by my PCP and dermatologist. They came back as SLE. I struggle everyday and the worst is getting out of bed because that is when the pain, brain fog, heart palpatations are the worst. I take meds for my blood pressure and one for anxiety clonazepam, and hydrocodone. I have tried Lyrica, was on gabapentin for 2 years until it gave me tinnitus so bad the doc took me off and the tinnitus went away. I cannot take steroids because it causes me terrible anxiety. The anti-depressents cause a ton of heart palpatations as well. I currently take hydrocodone for the pain, and Benadryl for the interstitial cystitis. I also take plain old Tussin because I get short of breath and cannot take inhalers because they cause heart palpatations. I live pretty much day to day and never know what will come up next. Over stimulation ie: crowds with loud noises, fluorescent lights, long days of appts., and traveling really cause me to flare. It is not an easy life, but I go on each and every day. I do love the spoon theory and I hope you all know what that is. Anyway hope you have a pain free and great day.
You sound a lot like me. Have you tried muscle relaxants? I take Methocarbamol, but Skelaxin works too. My doctor also tried to RX Soma to see if it would work better.. but the insurance blocked it. I also take Zofran for nausea and Nadolol (beta-blocker) for my heart stuff.
Wow, thought it was just me who had all of these issues. People don’t believe on when you try to explain all of your issues. I too am allergic to almost all medications. I had to have surgery last year and I had a severe reaction to the antiseptic preparation. It went into my bloodstream and I had a severe infection from it. Just had eye surgery and felt almost all of the operation. It was so traumatic. They didn’t t give me enough anasthetic. Apparently people with Fibro need way more anasthetic than others due to our pain sensitivity.. I have recently been getting severe numbness in my hands and arms and difficulty walking. I do have a facial rash but have been told it is roscasia. I am extremely sensitive to the sun and lights. I am taking low dose Percocet, but my doctor wants me to go off it. I told her if she can come up with an alternative, I will, but I can’t tolerate anything else. I do t think ant if us with chronic pain are being treated properly by the doctors. They should be maki g us as comfortable as possible, no matter how much medication we need. I am 76 and have been struggling every minute of every day for the past 35 years with this debilitating illness. I just want to live out the rest of my life in as much comfort with as little pain as possible. Thank you for your post. Hope you are having a “tolerable” day. Hugs❤️🇨🇦
@pamelasmith2625 I'm in just about the same position. I totally hear you.
Please post videos of what medications you are currently taking for the Lupus. What medications worked and didnt work, please
My best understanding is that with fibromyalgia it is wise to retest bloods if symptoms warrant it. It is possible for other conditions to develop.
I personally think it is possible it has an autoimmune component, that does not show on current tests. It can mean months or years of persistence to see if there are other syndromes going on alongside.
Good video honey. X
They have found Substance P in the CSF of fibro patients.
I was diagnosed with Fibro about 10 years ago. However, I have had positive ANA for approximately 20 years now, along with
Sjogren’s and differentials between Lupus and MS. I’ve also tested positive for Lyme and Epstein-Barr as well so I am definitely an autoimmune mess. Then, my first signs of arthritis was at age 12 and Bone Marrow Biopsy confirmed Idiopathic Thrombocytopenia at 28. That was following my 2nd child and now here at 52 yrs old, I still cannot get a more specific diagnosis than the Fibro and IBS, so as each flare up arrives, more fear of more severe organ damage since they only treat my symptoms vs treating the diseases. God bless everyone else who suffers from autoimmune hell.
Hey! I love your video! Heres a personal experience from fibro. I was just diagnosed with fibro, and now being tested for lupus. The reason why I actually went to the doctors is because of massive hair loss (only one side of my head) I'm going to look like Skrillex by summer. But with Fibro and pain (especially waking up) it feels like your body is like an old grandfather clock.
Bear with me; I don't know if feels the same for everyone with fibro. But it feels like old gears are struggling to start the clock; except I feel all the gears struggling bone-deep and my body goes into a shock from my nerves hearing it. Or think of Thomas the Tank Engine ( just not as fun). That's the best way to describe the pain I feel. Don't know if everyone feels like this with fibro.
I have both and that is they way I would describe it! I have been dealing with this since I was in my mid 30's its truly life altering the older I get I have declined with my motility I am now 50 and I go through ebb's and flows I have been hospitalized so many times, I have not been in almost 4 years now I used to be on so many medications but it went down a bad path from the unrelenting pain. Now the strongest thing I will take is T3 or a muscle relaxer from time to time, I have gotten use to living with the pain, the fatigue I just have learned to deal with it. I understand this is my life, I look at my self sort of like a rechargeable battery and if my body says STOP I do, and get rest no matter how much that looks like, but its not a perfect functioning researchable battery more like one wit a dead cell, and the heating pad on my kidney pain. I was hospitalized last time with Lupus induced Kidney nephritis and my kidney's hurt a lot! My bp is up and down mostly up, I am hot ALL the time! Like my thermostat is broken and its not hot flashes cause I am 50 I had to have a complete hysterotomy after loosing my last child. I did have 4 thank the Lord a! It was after the birth of my last living child that these symptoms went NUTS!!! Like it set it off almost! I had had some odd mild symptoms on and off like the butterfly rash I looked back and noticed it, for some reason pregnancy can put you in a type of remission but when its over OH MY !!!!
I have both Lupus and Fibro the thing I notice the most is lupus pain is like flu pain with swelling sometimes. Fibro is like my muscles are in a knot except when you touch certain spots (probably trigger) then it is a sharp pain even the softest touch is a sharp pain. Just in my experience,of course, everyone’s symptoms are different.
I have PPMS and Lupus...so I've been told. We do know much more than many doctors that I have seen over the years. Diagnosed with MS 4/19 and Lupus 2 months ago.
I've been sick for over 10 years.
My new neurologist saw something in me probably the rash on my face
I have fibro, it can be achy/like flu symptoms. Fibro can be sensitive to touch, bright & all senses. Fibro has overactive nerves. Migranes, fatigue, malaise, stiffness. Ther don't usually use trigger points anymore. Fibro is an an autoimmune disease also. Muscle spasms, muscular skeletal, autoimmune syndrome.
Evi Guarini-Moreland how is fibro an autoimmune disease? It's not attacking your immune system
Evi Guarini-Moreland fibro is not an autoimmune disease.
Fybro is not an autoimmune disease
Thanks for sharing this info. I did not know they don't use the trigger points anymore (at least as much). I did know it's a nerve based disease.
Live Hope Lupus They do use trigger points, it's just that they've realized that not everyone has that classic presentation.. so they've expanded their guidelines. You don't have to meet the trigger point criteria anymore.. but if you do, then it's an automatic diagnosis.
Diagnosed with Lupus. Doc said I may have Fibro as well. Going to discuss it next visit.
Are you feeling okay? I try to follow you just to make sure you are good. Prayers up for you.
I have been feeling pretty good this year. Still have the usual symptoms but nothing worth complaining about. Thanks for asking!
I haven’t been diagnosed with either but I’ve had nerve pain for 5+ years and I’m on plaquenil for it. It’s the only medication that has worked for me, pain relievers don’t work either. I have Raynaud’s though.
Fibro on a muscle relaxant works great for sleep at night especially because I had pain that would keep me up at night.
Yes, those muscle relaxants can be very helpful.
I have Lyme Disease, which I've tested positive for three times. No doctors want to admit it's a real illness here in Texas. So they sent me to a rheumatologist to get tested for lupus anyway, it came back negative. Joint pain, numbness, migraines, stiffness, frequent secondary infections because your immune system is exhausted, FATIGUE (which the burden that it causes is so underrated), attacking nerves and any random organ that the bacteria wants to hang out in (right now my pancreas is failing, so I take Creon). I think people getting the batches and batches of tests for an autoimmune disease should go ahead and get a Western Blot an ELISA for Lyme disease. It's more widespread than the CDC wants to admit, and suppressing your immune system when you actually have Lyme will be horrible since Lyme is a very clever, evil, hard to treat bacterial infection. This bacteria loves to make itself very cozy in your tissues and can show up in any organ. It mostly likes your skin, heart, joints, then nerves, follows a timeline, and has more neurological symptoms that are often mistaken for psychiatric illnesses (mine was dismissed as treatment resistant depression for 15 years). I even got a Psych degree to try to understand myself better. Most people don't remember the tick bite, I thought it was the weirdest mosquito bite of my life, and the flu like symptoms were "cedar fever" since I was living in Austin where the pollen leaves thick yellow crust on everything for a month or two out of the year. It was Lyme the whole time. Getting treated early is better, before it burrows into all of your tissues, but no one likes giving out antibiotics anymore with all the scares of antibiotic resistance. I still think it's worth a check, I was so surprised that I had it, but three positive tests now don't lie.
I was diagnosed with fibro around 25 and I am now 58; seems when I FIRST noticed it was like my body just wanted to drop, like I had no control over it; they also ask about being bitten by a tick, lyme disease could bring fibro on, I was asked about if I ever had Mono. Anywho, my PCP gives me pain killers, I am on prozac, and I only take the prozac every other day or every two days, not sure but I do not like it, I will talk to him on my next visit, my pcp is a MD and a toxicologist. It seems when I do not eat a lot I FEEL BETTER, if that makes sense. I am constantly fatigued and in pain, especially, lately my knees. THANKS SO MUCH, GOD BLESS!
I have fibromyalgia and was diagnosed 4 years ago. I find duloxetine works fairly well to control my flares under normal stress levels but I still lose mobility when under extreme stress. Interestingly they put me on duloxetine because it helps people with seizures which I dont have but it also helps calm down my nerve flares. I once met abother person with fibromyalgia and she told me to consider taking low dose naltroxine if my meds stopped working for me.
It's an SNRI (serotonin-norepinephrine reuptake inhibitor) with some dopamine reuptake inhibition as well (which tends to be unknown by even psychiatrists). It has benefits to help neuropathic pain - that's why it's used for fibro. It does not have any seizure prevention. Whoever told you that was wrong. Most doctors have a poor understanding of psych meds because the psychiatric field is looked down upon by other MDs. The GABA meds Neurontin and Lyrica are the ones classed as anti-seizure (thou very weakly) and are used for neuropathic pain. You can actually use both Cymbalta (the brand name of your med) and one of the others I mentioned, at the same time. Lyrica tends to work better for pain.
There is no drug called naltroxine, it's naltrexone. That's the med they use to block opioid receptors for addicts. It does look like they've done a lot of research into using a low dose to block neuropathic pain. Thanks! I wasn't aware of that! I'm going to research it.. if you'd like, I can share what I find out with you.
Totally off topic but you have killer eyelashes!
Diagnosed with lupus when I was fifteen xx
I know that I struggle in the mornings the most but I am staff all day long but the morning I cannot hardly even walk or move my arms and my hands. And sometimes showering is excruciating to me because I also have had back surgery and I have rods and screws in my back and I think that lupus attacked my back and that’s why I had to have surgery on my back because I couldn’t figure out why I had so much time damage in my back and I said that I had so much damage in my back they usually see that much damage in the back that is caused by an automobile accident. But I believe that the lupus attacked my back is light blue two desks and severed all the nerves in my left leg
I have both
Thank You for this video. I have both plus rheumatoid arthritis. I actually take gabapentin 900mg or ibuprofen 600 to 800mg if I get a lot of pain or I take a very hot bath and ease my pain. This pain its torture all the time. I saw my rheumatologist i didn't know i had fibro but he pressed all points and i was so tender and hurt so bad he said that constant pain radiating in body 24/7 from one point to another in the body was fibromyalgia and from there Ive been taking the meds. I believe i will change it to cymbalta since im getting pain and depression at the same time. Im not sure yet but my family doctor does research and said fibromyalgia can cause depression in some patients. So my new worry its my RBC are low and my WBC are high and doctor referred me to a hematologist/oncologist. Hoping everything comes out well and hopefully overcome anything possible.
Cymbalta sounds like a good idea. You don't have to stop the gaba though.. neurontin is often prescribed as an adjunct to other psych meds - particularly antidepressants. Lyrica also has a reputation for being more effective for neuropathic pain too.
I'm on an MAOI for pre-existing depression, and Lyrica was added without any fuss or concerns.
I have Lyme Disease, which I've tested positive for three times now. No doctors want to admit it's a real illness here in Texas. So they sent me to a rheumatologist to get tested for lupus anyway, it came back negative. Joint pain (hint it may be Lyme, the pain moves because the bacteria move), numbness, migraines, stiffness, heat/cold intolerance, insomnia, mood swings, frequent secondary infections because your immune system is exhausted, FATIGUE (which the burden that it causes is soooo underrated), attacking nerves and any random organ that the bacteria wants to hang out in (right now my pancreas is failing, so I take Creon). Wherever the bacteria feel like living that week/month/year, you'll have the inflammation there. We also get more blood cancers because our immune system is exhausted (I already have pre-myeloma which is plasma cell cancer), but Lymies tend to get lymphomas. I think people getting the batches and batches of tests for an autoimmune disease should go ahead and get a Western Blot an ELISA for Lyme disease. I'm a difficult stick and at this point, what's a few more vials of blood, blood draws are such a part of life for those of us with chronic illnesses. It's more widespread than the CDC wants to admit, and suppressing your immune system (like you would with and autoimmune disease) when you actually have Lyme will be horrible since Lyme is a very clever, evil, hard to treat bacterial infection. You want your immune system built up to fight this bugger off for good this time! This bacteria loves to make itself very cozy in your tissues and can show up in any organ. It doesn't really like to hang out in your blood much, there's a lot of false negatives with the available blood tests. It mostly likes your skin, heart, joints, then nerves, follows a timeline, and has more neurological symptoms and cognitive deficits that are often mistaken for psychiatric illnesses or Multiple Sclerosis (mine was dismissed as treatment resistant depression and anxiety for 15 years, and I also have brain lesions like an MS patient that light up an MRI). I even got a Psych degree to try to understand myself better, that didn't work either. Most people don't remember the tick bite, I thought it was the weirdest mosquito bite of my life, and the flu like symptoms were "cedar fever" since I was living in Austin where the pollen leaves thick yellow crust on everything for a month or two out of the year. I also worked in a building with tons of black mold, but that wasn't it. It was Lyme the whole time. Getting treated early is better, before it burrows into all of your tissues, but no one likes giving out antibiotics anymore with all the horrors of antibiotic resistance. You won't find a doctor who will treat it unless you're rich, but at least you'll have an answer and a lot of what not to do's. I still think it's worth a check, I was so surprised that I had it, but three positive tests now don't lie. I've had to learn to live with this evil little friend, my borrelia burgdorferi, asking it what joint it's going to burrow into this week (it's my left thumb again). Best wishes to everyone dealing with similar ailments.
The medical profession has failed most chronically ill patients.
I am in England and have lupus, fibromyalgia and spinal osteoporosis as well as raynauds
I have ME/CFS and was diagnosed with Fibro yrs... like and the CFS is like the flu all the time!!! I have rash on legs! Sounds like that they are so similar...migraines, cramps in muscles...they both are awful to learn to live with 27yrs...later no better...but always hopeful
I have both, since 1992, it too for me to have a stroke for the doctors at the hospital to diagnose them, specially Lupus, I was having all the symptoms since I was 18 years old, 37 when I had the stroke.
Hi new friend here from Kentucky, diagnosed with fibromyalgia first about 5yrs ago and then just recently finally diagnosed with lupus back this past fall. I have good days and bad and the flare ups messes with my bowels and some days I feel like I have the flu. For the fibro I take cymbalta and for the lupus it’s mild and pretty new to me but the meds they wanted me to take for the lupus was Lyrica but I didn’t want to take it because it can be habit forming so for now I just use ibuprofen 800 for the pain but it’s getting worse on me each month it seems 😕
I do have both Fibromyalgia and Polymyalgia Rhurmatica and Lupus, it's always painful between the three there's never a break
Really informative video. A raw food lifestyle really helped with my symptoms with Lupus. I have now transitioned away from a Western diet and I eat a anti inflammatory highly alkaline diet. The reason why diet is so important is that most of our immune system is found in the gut. So you need to heal from your gut outwards. x
I have Lupus, Fibromyalgia, and Rheumatoid Arthritis. I got Diagnosed at the age 17 and I am 21
Omg so sorry
So so sorry sweetie! They have so much more information on these illnesses today much more than 27 years ago with my diagnosis...so U hold on to hope for a cure or at least better ways of dealing with all the Symptoms...these diseases cause keep strong in Hope ! I know not body for sure
PS....you also have beautiful eyebrows as well as your lashes. Curious if they are natural since they are pretty close to being perfect. 😊
I have fibro, but I'm ANA positive and I have Raynaud's... My Dr. says I don't have an autoimmune disease currently, but that I may be developing one.
i have both
The thing is I don't have Lupus and I am sensitive to touch but I'm also sensitive to light I've been sensitive to light forever
I chalked most of it up to my liver disease and last year I was told by a doc that's she is pretty sure I have lupus. But I have symptoms of both. I have extreme photosensitivity
I have fibro and i get the butterfly rash when im outside for over an hour under sunny conditions
I've had fibro since I was a child. I lived in FL, so heat from the sun was an issue.. my face would do the same thing.
I just have lupus and right now I'm only on Cellcept and plaquinel.
I was diagnosed with fibromyalgia when I was 14. And now I'm 39 and being diagnosed with Lupus.
Sarah R. Please what medication do you use
I have both.
I wish you would add a link for your chart comparing the two
I have had Fibromyalgia for 30 years, secondary to 'myalgic encephalomyelitis ' (cfs). My Mamma suffered rheumatoid arthritis, vasculitis, Sjogren's, and other afflictions. I do not have medical insurance and wonder whether or not I need to routinely be checked for autoimmune diseases.
Also, I would like to know whether or not you have heard of any Lupus patients who are able to refraim from treating it with any medication? Is it possible to be afflicted with R.A. or Lupus, and not take any medication?
Fibromyalgia also causes achy flu like symptoms. I was diagnosed with Fibro in 2004. From all I've experienced and researched and from comparing with my best friend who has Lupus... the symptoms mimic eachother however Fibro doesn't cause organ damage, nor inflammation of tissue. Where as Lupus does. Along with Fibro, I also have Nueropathy, chronic Migraines, and my spine is severely degenerating. Along with spinal osteoarthritis running thru my entire spine. They believe Fibro can be brought on my Trauma. Emotional and/or physical. I've had both. The spine issues stem from a car accident in 93. I'm also a DV Survivor. So while my Fibro doesn't cause inflammation.. my other health issues do so I deal with both. I take NSAIDs daily for that.
Hope it this finds you doing better!? My body going thru exact same as you wrote , so horrible. 💙🙏✨
I have lupus and fibromyalgia. I was diagnosed with fibromyalgia 1st then 2 months later they saw the rash on my face and chest and arms then did blood work and I had lupus also. Along with psoriatic arthritis.
Very interesting. When I was initially diagnosed with lupus was when they used to think I had fibro as well. Never really tried getting it diagnosed.
LiveHopeLupus we just know our own body and I knew something was wrong with me, I was just in so much pain. Then my husband noticed the redness on my face when I come in from the sun but that I totally I didn’t pay attention I just thought it was florida sun was so strong since I lived in NY all my life. Then the doctor asked all those questions and noticed it.
I have both Fibro at 2010 and lupus 2014
I have fibromyalgia and my sister has systemic lupus. I take gabapentin and try to control with yoga,meditation and diet. No white flour or potatoes. Iceberg lettuce and msg are also issues. Still trying to figure out the diet thing as it is a process. I just really don't want to take anything I don't have to especially pain killers. Narcotics scare me and I don't trust side effects of most pharmaceuticals.
I have lupus, fibromyalgia, RA, Sjögrens and Raynauds
Me too - truly sucks
I have been diagnosed with fibromyalgia and i am taking plaquenil and cymbalta. It has been very though for me dealing with the pain. My pain are mostly on my knees, elbows, and hands so I am not sure if that's what lupus is or fibromyalgia.
I have Fibromyalgia was diagnosed at age 19 I am now almost 30. My symptoms have progressed a lot over the last couple weeks. I feel very sickly and very helpless at times. I feel as if my body just shuts down. I'm waiting in test results for lupus rheumatoid arthritis Ms and a few others. I can definitely say the pain is unbearable at times and very frustrating. My headaches are unreal and can make my speech very slurred and at times cant even talk
I feel your pain, I also Have Fibro and suffer from severe pain, fibro fog, and fatigue !!
Headaches affecting your speech can also be epilepsy. They have a pretty easy test for that where they see if they can induce an episode while monitoring your brainwaves. Might be a good idea to rule it out. I've had two different ones done.. and honestly, I'm glad to know that it's not part of my problems.
I have both plus sjrogens and type 2 diabetes
Both, also arthritis
Lupus? Unknown... once it came positive and then it came negative. Have the symptoms of both and I gave up trying to figure it out. This year I a not being concern about the name of what I have...I am just managing the symptoms. Maybe in 2020 I will go back to figure out things.
Fibromyalgia does come with a rash, your chart said N/A. My fibro rash is on the backs of my shoulders.
Both
I suffer with fibro and I'm recently having such a bad flare up that I'm in the process of trying to rule out lupus w my medical team
I believe early that I may have a secondary fibromyalgia and then whatever that condition is for dry eyes and dry mouth/skin I don’t know if that’s Raynolds or sojens Not even sure if I spelled those two right LOLI do have circulatory problems and dry eyes mouth and skin issue so idk😐 on top of my SLE
I asked my Dr what fibro is! He just looked at me, so I said lemme tell you what it is!! It's when you have lupus like symptoms & they take a mish mash of symptoms, nothing shows up in bloodwork, so they say that's what you have!!
I think that most people that have lupus do have fiber myalgia that’s why I think it is so painful the stiffness the fever or the rash all that is lupus but I do believe that fiber myalgia makes you feel worse but I also think that lupus and fiber myalgia go hand in hand I know lupus does make you feel Steph in the mornings is definitely worse in the mornings but I can be all day long as well but a lot worse in the morning
I got diagnosed with fibromyalgia last year and have all of these symptoms, but I do have the butterfly rash, but I don’t have lupus...I have tested positive for the ANA but only once...
Corinna Peterson so it’s possible to go from positive to negative Ana?
I'm curious about this too. I went from negative to positive with SLE indications, but my doctor ignored it.
I have had the same thing happen to me!
I have both. It's fun...plus more AI illnesses. Once you get one...you tend to accumulate more...
I have both plus severe small fiber neuropathy. I had my knee so swollen once that they had to do a steroid shot in my knee. Ouch!!!!
I have all but one which is the but i was dianoisge with fibro back in 05
I feel like I got both, now there is a Malar rash that appears on my face, and other places as well. So it's hard to figure out.
I was diagnosed lupus about 5 years ago. Then about 2 years later fibromyalgia came along. Rashes, joint pain, swelling, migraines...suffering with it all. Now to add fuel to the fire...rheumatoid arthritis.
Seems the new diagnoses never end.
So true but we keep the faith and stay positive and keep fighting. 💜
Both (plus other things).
I have Lupus, fibromyalgia, chronic fatigue syndrome, and I hurt all over even my skin even hurts wow tired all the time can't do much of nothing and if I push myself I will pay bad for weeks its horrible!!
I have lupus.
My mom had lupus.
At age 78 she couldn't move anymore and her memory be came week.
Doctors was saying she got alzheimers.
But I think it was because of lupus. I am not sure.
That's why I am so worry if I am going to be like my mom.
Also I have bad depression. Can be because I have lupus.
I am on antidepressants at moment.
My depression gets better.
I have both lupus and fibro
Fibromyalgia but lab results differ from diferent one is weakly positive dsdna via elisa test ana on 2 diferent occasions positive..what to do..