Jamie has Retinitis Pigmentosa and lost her vision. A bionic eye has her smiling again.

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  • Опубліковано 7 січ 2025

КОМЕНТАРІ • 206

  • @jkvideos5161
    @jkvideos5161 4 роки тому +26

    Its been 10+ years since i was daignose with rp ny biggest fear is to get blind one day years ago my family told me to stop studying and working, but that is not purpose in life since then i been losing slowly my vision however i did my career in asisa and also my master i keep holding it and i hope theres a cure soon and whoever have rp can feel relate woth the uncertain of the future but you are not alone ❤🙏💪 lets keep going

    • @Kyriakos1206
      @Kyriakos1206 2 роки тому +2

      I'm 15 years old i was diagnosed with rp 3 years ago my vision is reducing fast and my life is getting destroyed by this disease I'm scared that by the age of 20 i will be blind the only think that keeps my hope is knowing that other people suffer from this like me

    • @aybeeyootv3291
      @aybeeyootv3291 2 роки тому +1

      I have rp too, its so frustrating and im scared to lost my sight 😭😭😭

    • @danielfck
      @danielfck Рік тому

      I was diagnosed with RP back in 2018 and ever since then i have been looking for solutions to recover from my impending blindness.
      early of this year, i finally found 2 methods of which both i have tried and it helps my eyes to recover from a light perception to counting fingers vision.
      i hope to continue to work on both methods to slowly and steadily recover my eyesights again❤

    • @Daddy_Huckles
      @Daddy_Huckles 8 місяців тому

      ⁠what are the methods 🙏

    • @VinodhK1992vk44
      @VinodhK1992vk44 6 місяців тому

      ​@@danielfck Please share those methods!🙏

  • @peterlhs18
    @peterlhs18 5 років тому +57

    I have RP. It's getting worst. I am very scared and alone .

    • @ichellexcel
      @ichellexcel 5 років тому +8

      peterlhs18 hang in there love! I’m with you as well but I believe there will be treatment soon!

    • @juniwilliams
      @juniwilliams 5 років тому +7

      You’re not alone, mate.

    • @StudioPlaystation
      @StudioPlaystation 5 років тому +12

      You are not alone mate... i have RP too...

    • @Ed-zb4ij
      @Ed-zb4ij 5 років тому +9

      I really dont know how rp is like but ik what to do. Find someone u like who is okay helping her as it takes over. Or live with family or friends. Have kids so they can take care of u as you get older. Just always know family friends and loved one are always there for you. I give you my condolences. Prays for you

    • @hjohnny89
      @hjohnny89 5 років тому +9

      No you’re not alone god is with you I’m going thru the same situation as you trust in our Heavenly Father

  • @colleenpine2187
    @colleenpine2187 Рік тому +4

    My dear friend and her son are losing vision to RP. I pray this is successful

  • @gauravchaurasia3811
    @gauravchaurasia3811 Рік тому +5

    I'm 23 now ,I'm facing rp since my childhood when I was 5 years old 😢 and it's very difficult to surviving with it

    • @User1jajdjffkssk
      @User1jajdjffkssk 6 днів тому +1

      I am also the same age as you and I have suffered from it since childhood. Unfortunately, there is no guaranteed treatment for it.But we must not lose hope.

  • @janetm2754
    @janetm2754 4 роки тому +13

    I have RP also and a hearing loss, I do too hope their is a CURE for this! I've had this sine I was in my teens when they finally found out what I had and I am now 65 yeards old and still waiting. Used to drive and do many things but now it is getting worse. I see birght green hues and red hues and very seldom see a clear good view of things. I sue a magnifier on my computer and have to read things a bit larger but darker in order for me to read.
    Have seen many doctors/specialist in my past, this is a good reason why I don't believe in "miracles"

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому +1

      That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому +1

      1 year ago I was diagnosed of RP and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including RP , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an RP herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from RP ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

    • @ebru8759
      @ebru8759 3 роки тому +1

      @@nancywalker-keay8361 is this real? Can you contact me for giving more information about it? I have RP too.

    • @nancywalker-keay8361
      @nancywalker-keay8361 3 роки тому

      @@ebru8759 kindly send me your whatsap number and email address so I can help you forward it to the doctor okay

    • @EazyDuz18
      @EazyDuz18 2 роки тому +1

      Look into stem cell therapy

  • @harrywalker2185
    @harrywalker2185 2 роки тому +3

    I have been diagnosed with rp I recently started smoking Marijuana to stop the growth of it this was told to me by a medical Marijuana doctor hopefully my eye pressure goes down on my next appointment if so I will continue to smoke

    • @danielfck
      @danielfck Рік тому +1

      I was diagnosed with RP back in 2018 and ever since then i have been looking for solutions to recover from my impending blindness.
      early of this year, i finally found 2 methods of which both i have tried and it helps my eyes to recover from a light perception to counting fingers vision.
      i hope to continue to work on both methods to slowly and steadily recover my eyesights again❤

    • @jackccrofootjr7228
      @jackccrofootjr7228 10 місяців тому

      MJ can sometimes help bring down the ocular pressure in Glaucoma. But, RP is a separate disease and MJ does nothing for the disease.

  • @janetm2754
    @janetm2754 2 роки тому +4

    I have herd of a injection they can put in the eyes etc, has anyone herd of this and if so where can we go to have this done, and will the insurance pay for it?

  • @knightofcmaelot858
    @knightofcmaelot858 5 років тому +11

    Lord forbid, please help us finding the cure for RP!

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      1 year ago I was diagnosed of RP and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including RP , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an RP herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 4 months of usage, I am now free from RP ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

  • @imafunnyman4196
    @imafunnyman4196 4 роки тому +6

    I have RP and it sucks im only 13 and I can't even see at night at all or in any sort of dim light area (What's the point of life if your eyesight limits all the things you like to do?)

    • @bookwriter4438
      @bookwriter4438 4 роки тому +3

      Hi, I have RP and nystagmus (my eyes shake). I cant see at night and have difficulty in the day. But trust me, life is worth living - it's just harder for ppl like us. Everything will be harder. But it will be okay. You will be okay and you are NOT alone.

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      @@bookwriter4438 That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      1 year ago I was diagnosed of RP and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including RP , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an RP herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 4 months of usage, I am now free from RP ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

    • @crazykatedits
      @crazykatedits 3 роки тому

      I'm also suffering from this disease. I lost my night vision since I was born. I don't know how normal people see in night time and how it feels to see sky with stars . I also want to see it. I want to see this world like normal people do. I want a cure 😣. I was 4 when I was diagnosed and now I'm 24. Gradually I'm losing my sight. There is a stem cell therapy by Jcyte for Retinits Pigmentosa and I'm waiting for it to get approved so that I can get that treatment.

    • @umeshagre3721
      @umeshagre3721 Місяць тому

      ​@@crazykateditshi please reply me I also diagnosed with same problem

  • @anishbeauty5285
    @anishbeauty5285 4 роки тому +3

    my brother is an RP patient. Please inform all the research results and if there any treatment for RP. I am
    from INDIA.

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      That's so sad to hear your brother are still suffering from this same disease. Am feeling for him right now, I know of a doctor who can help him get rid of this. He also help me from this same disease, He can also help cure his permanently

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      1 year ago I was diagnosed of RP and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including RP , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an RP herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 4 months of usage, I am now free from RP ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

    • @hennadesignsbyHimani
      @hennadesignsbyHimani 4 роки тому +1

      @@nancywalker-keay8361 could u ply tell me how...I'm also suffering from this

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      @@hennadesignsbyHimani that's so bad yeah i was also suffering from this one year ago so I was able to get rid of it permanently. So i used the herbal medicine for four months before i was cured now am okay

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      @@hennadesignsbyHimani kindly send me your whatsap number and email address so I can help forward it to the doctor okay

  • @StudioPlaystation
    @StudioPlaystation 5 років тому +12

    Hope theres a cure for RP.. i have RP to..

    • @lipsamohanty58
      @lipsamohanty58 5 років тому

      My Lil sister's daughter also suffering from RP. She is barely 2yr old. What are her chances😢😢

    • @tatiannam6055
      @tatiannam6055 5 років тому +2

      Yes I have it too. I feel lucky that I can still see. Things are a little blurred but I feel blessed to still see.🙏

    • @kaliasocute1621
      @kaliasocute1621 5 років тому

      @@tatiannam6055 same

    • @kanaguramaswamy4344
      @kanaguramaswamy4344 5 років тому

      Pls check this every one esighteyewear.com/esight3/

    • @kanaguramaswamy4344
      @kanaguramaswamy4344 5 років тому

      @@lipsamohanty58 I got a fwd in my watsapp...pls check esighteyewear.com/esight3/

  • @L390obn
    @L390obn 7 місяців тому

    My friend has this but there are many clinics around the world that can treat this R P

  • @aysenurhalc6407
    @aysenurhalc6407 4 роки тому +5

    I don't want to live anymore really I suffer from this I want to die now my right eye's vision is %10 left eye is %40 and I m 18 yr old until now my vision didn't decrease I guess I doesn't decrease in future otherwise I don't have strength to stay in life. Also I never believe doctors will be able to find a cure for this illness

    • @UniversityofColoradoHealth
      @UniversityofColoradoHealth  4 роки тому +1

      Hello Ayşenur, if you need someone to talk to, we encourage you to call the National Suicide Prevention Lifeline at 1-800-273-8255. There is also an online chat that can be found here. suicidepreventionlifeline.org/chat/. If you believe you or someone you know is in immediate danger, please call 911 immediately.

    • @bookwriter4438
      @bookwriter4438 4 роки тому

      Hello. Have you heard of the Colorado Center for the Blind? They teach people how to be blind, how to travel and read and do everything else.
      I have RP and nystagmus. I did not know there were other ppl with RP until I was almost 20 - so know that you are not alone. You know what's cool about being blind? Getting a guide dog!

    • @aysenurhalc6407
      @aysenurhalc6407 4 роки тому +1

      @@bookwriter4438 Hello. İ haven't heard Colorado. Actually I should say this I am not blind. Only I am suffering from night blindness. But of course there is deficiency in my eye. For example my left eye's seeing rate is %40 and right's %10. I m not blind yet. But my worrying is that may be I will be blind in the future.

    • @aysenurhalc6407
      @aysenurhalc6407 4 роки тому

      @@UniversityofColoradoHealth hello thanks for your suggestions. But I guess I can't get supporting because I am not citizen of USA. I m writing this from Turkey. There aren't any helping courses for us

    • @bookwriter4438
      @bookwriter4438 4 роки тому

      @@aysenurhalc6407 Hello again. I understand. Look up, 'Colorado Center for The Blind'. And also look up, 'National Federation For The Blind'. A lot of people with RP are not totally blind, some are totally blind and some are able to drive. Lots of different levels for people with RP.

  • @sushmabhoite4549
    @sushmabhoite4549 4 роки тому +3

    My daughter has RP. She has only 20%vision of left eye. Could you help me to save that vision or improve her vision.

    • @lanapatche1778
      @lanapatche1778 4 роки тому +1

      Hello sushma, how is your daughter doing? I know a doctor who can help get rid of RP she cured me of RP with herbs after suffering from it 2 years and the hospitals couldn't help I had to seek other alternative that was how I came across her

    • @saleemshahofficial8487
      @saleemshahofficial8487 3 роки тому

      @@lanapatche1778 i have RP can you help me plz?

    • @shaiksoniya4816
      @shaiksoniya4816 3 роки тому

      @@lanapatche1778 pls tell me abt the doctor ?

    • @lauraestes9304
      @lauraestes9304 Рік тому

      Google raw vegan diet for curing autoimmune disease....also Google Valasta...a high strength astaxanthin that people are using to cure all inflammatory diseases

    • @danielfck
      @danielfck Рік тому

      I was diagnosed with RP back in 2018 and ever since then i have been looking for solutions to recover from my impending blindness.
      early of this year, i finally found 2 methods of which both i have tried and it helps my eyes to recover from a light perception to counting fingers vision.
      i hope to continue to work on both methods to slowly and steadily recover my eyesights again😊❤

  • @mohammadharun7429
    @mohammadharun7429 3 роки тому +2

    Doctor do you have treatment of RP ?

    • @danielfck
      @danielfck Рік тому

      I was diagnosed with RP back in 2018 and ever since then i have been looking for solutions to recover from my impending blindness.
      early of this year, i finally found 2 methods of which both i have tried and it helps my eyes to recover from a light perception to counting fingers vision.
      i hope to continue to work on both methods to slowly and steadily recover my eyesights again❤

    • @FactFlowCircuit
      @FactFlowCircuit Рік тому

      @@danielfckwhat are the methods

    • @Samsungm-iv4li
      @Samsungm-iv4li Рік тому

      Please tell both methods , we pray and thankful to you

  • @anaofficial3219
    @anaofficial3219 3 роки тому +3

    Hi this is Anamika from India... My father is suffering from this problem Retinitis pigmentosa for the last 12-13 years n he lost his vision. Is there any proper treatment so that my father can see everything as before. Can you please let me know?

    • @shreeraam6586
      @shreeraam6586 2 роки тому

      Hi he doesnt see anything or he sees little bit

    • @rahulganji7674
      @rahulganji7674 Рік тому

      Oh wow that's a great improvement, pls tell what are those methods and where did you got your treatment

    • @Samsungm-iv4li
      @Samsungm-iv4li Рік тому

      Same situation my father also lost his vision from this disease retinaitis Pigmentosa. If any treatment please suggest

    • @anamikamondal1343
      @anamikamondal1343 Рік тому

      ​​@@shreeraam6586Hi! He doesn't see anything.

  • @aybeeyootv3291
    @aybeeyootv3291 2 роки тому +1

    Im also suffering with retinitis pigmentosa and im scared to lost my vision please help me 😭😭😭

    • @harrywalker2185
      @harrywalker2185 2 роки тому

      Me too mentally I was in a dark place thinking about it every day

    • @danielfck
      @danielfck Рік тому

      I was diagnosed with RP back in 2018 and ever since then i have been looking for solutions to recover from my impending blindness.
      early of this year, i finally found 2 methods of which both i have tried and it helps my eyes to recover from a light perception to counting fingers vision.
      i hope to continue to work on both methods to slowly and steadily recover my eyesights again❤

  • @kamalsial
    @kamalsial Рік тому

    Good news
    A team of scientists from the University of California, Irvine, believe they have discovered a special antibody which may lead to a treatment for Retinitis Pigmentosa, a condition that causes loss of central vision, as well as night and color vision.07-Sept-2023

  • @muhammadaziz332
    @muhammadaziz332 3 роки тому

    MAKE THEM HAPPY... THANK FOR ALL EXPERT THIS TECNOLOGY... YOU LIKE SUN BESIDE THE SUN... GOD BLESS...

  • @enpingqu1906
    @enpingqu1906 4 роки тому +5

    agtc has clinical trials for one type of RP. Positive results in phase I

  • @williammount6496
    @williammount6496 4 роки тому

    JAMIE - WE HAVE REVERSED STROKE DAMAGE AND RETURNED EYE SIGHT IN SO MANY PEOPLE AS WELL AS REVERSING CATARACS WITH IMMUSIST + SEA WEED + EDTA --- SO YOU THINK THIS WOULD HELP?

  • @darkriot594
    @darkriot594 4 роки тому

    My grandpa is 80 and this shit stopped his view...

  • @natashasaini9113
    @natashasaini9113 5 років тому +2

    ANYONE WHO CAN HELP ME?
    MY FATHER IS SUFFERING FROM RP.. I'M FROM INDIA AND THERE IS NO TREATMENT FOR RP.. I'M VERY MUCH IN WORRY PLZZ HELP ME 😭😭 HE DID NOT SAW ME A TIME😭😭 PLZ HELP PLZ..

    • @shubhamsingh7254
      @shubhamsingh7254 4 роки тому

      Stem cell therapy from last one year has come into existence it has slowed down the process and in fewer cases patients have gained some amount of vision back also .

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      @sou k 1 year ago I was diagnosed of RP and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including RP , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an RP herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 4 months of usage, I am now free from RP ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

  • @G2S_Tv
    @G2S_Tv 11 місяців тому

    Shane Cincinnati eye institute has gen therapy thats promising

  • @californiadoll6273
    @californiadoll6273 Рік тому +4

    I literally would rather die than become blind. I'm not even kidding.

    • @AmeliaHurst-xt5vs
      @AmeliaHurst-xt5vs Рік тому

      Ikr

    • @jackccrofootjr7228
      @jackccrofootjr7228 10 місяців тому

      You really need to seek professional help for your psyc stability. I am 72, raised in a family with many RP relatives. We grew up with it, accepted it, and learned coping mechanisms. Not one of us is or has been suicidal over this diagnosis. You go blind over many years and just gradually learn how to deal with it. Many RP pts never go completely blind. Get help!

  • @tadeuzhansoon4641
    @tadeuzhansoon4641 3 роки тому

    ❤️❤️❤️I also have RP❤️

    • @danielfck
      @danielfck Рік тому

      I was diagnosed with RP back in 2018 and ever since then i have been looking for solutions to recover from my impending blindness.
      early of this year, i finally found 2 methods of which both i have tried and it helps my eyes to recover from a light perception to counting fingers vision.
      i hope to continue to work on both methods to slowly and steadily recover my eyesights again❤

  • @user-hm4hx3vl5k
    @user-hm4hx3vl5k 2 роки тому +2

    Stem cells

  • @blorp3029
    @blorp3029 4 роки тому +2

    Oh I have that well I'm not blind at least......yet

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently

    • @nancywalker-keay8361
      @nancywalker-keay8361 4 роки тому

      1 year ago I was diagnosed of RP and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including RP , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an RP herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 4 months of usage, I am now free from RP ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

  • @yamanrana7531
    @yamanrana7531 3 роки тому

    Somebody could donate eyes to her and like such people❤️

    • @EazyDuz18
      @EazyDuz18 2 роки тому

      wut

    • @yamanrana7531
      @yamanrana7531 2 роки тому

      @@EazyDuz18 there are many people who donate organ before leaving this world. So people should help her and people who are alive and need it most

    • @EazyDuz18
      @EazyDuz18 2 роки тому +4

      @@yamanrana7531 you cant transplant an eye its scientifically impossible

    • @yamanrana7531
      @yamanrana7531 2 роки тому

      @@EazyDuz18 omg i didn't know. But person put eyes of other animals

    • @shannensaito9746
      @shannensaito9746 2 роки тому +3

      @@yamanrana7531 not the retina. can implant cornea