What Can YOU Do About Parkinson's Disease? -- Episode 74
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- Опубліковано 30 чер 2024
- Did you know that April is Parkinson’s Awareness Month? Did you also know that over 10 million people worldwide are living with this neurodegenerative disease including celebrities such as actor Michael J. Fox, who was diagnosed at age 29; boxer Muhammad Ali; and singer Neil Diamond? In today’s show, I’ll talk about how Parkinson’s Disease works, how it’s diagnosed and treated, and how advocacy from YOU can raise awareness, research and support for people with this chronic brain disease. YOU can save lives!
@michaeljfoxfoundation @ParkinsonDotOrg @parkinsonsuk @PowerforParkinsons @apdaparkinsons @NIHAging @strokebreakthrough
0:00 Introduction
1:01 What is Parkinson's disease?
2:06 How is Parkinson's Disease diagnosed?
2:37 How is Parkinson's Disease treated?
2:56 Medications used to treat Parkinson's
4:36 Clip from University of Michigan--Harry undergoing DBS
6:47 How can YOU make a difference?
7:24 Joke of the Day
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NOTE: The content in this video should not replace medical advice from your doctor or other licensed healthcare professional. For questions about your personal health, please consult your physician.
I had DBS back in 2015, I was DX with PD in 2005. My DBS is a Medtronic device with 2 power packs. When I had my DBS everything got better. Before I was not sleeping at night and was bouncing off of walls. DBS is the greatest in helping control of the curse
Thank you so much for sharing. So glad to hear that DBS has worked for so many individuals. Good sleep is important, too!
Wow Thank You*****For all the great information.
Absolutely. Anytime!
Loved the closing humour.
Thank you!!!!
It's interesting seeing the differences in treatment, especially in DBS. The previous doctor I met was much more keen to do DBS much sooner after diagnosis and they do it asleep now and in cases can do everything in 1 surgery. My current doctor told me she rarely recommends anyone for DBS and not for many year into the diagnosis. So many different perspectives to this but it is known not to be a cookie cutter disease.
I appreciate your feedback. Thank you for sharing your experiences. You're absolutely right in that one diagnosis (e.g. Parkinson's Disease) can present very differently in different people. That's why as physicians, we need to treat the *patient*, not the illness.
I’m sorry to be so pessimistic but I don’t think we will find any cure in our lifetimes. We just don’t have brilliant people in science anymore and it’s too complex a problem to solve. Everything is touted as a game changer but none of them pan out.
I empathize with your frustration. The human brain is the most complex machine in the world. But I firmly believe in research and science. There are SO MANY bright mind working on so many diseases...and we need more
@@DrLipiRoy 8:04
❤❤
ua-cam.com/video/A3tY-OenUhE/v-deo.htmlsi=PcTpN1482bKYCD7n 1:57
The brilliant people go to Wall Street to get rich.
I had too brain surgeries at the U of M For a bleeding aneurysm 17hr each surgery back in 2000 October. 24 Years later I am Having tremors. I am 64years young. I am wondering if this is related to my surgeries. Cerebral aneurysm it was bleeding, Dr Thompson surgeon said I was very strong. I am Strong and fighting Parkinsons.
Thank you for sharing. Sounds like a LOT to deal with! One day at a time. Surround yourself with supportive friends and family
Aside from the mild speech and walking, I haven't had natural BMs since January. I have been turned away by three doctors. I'm presently able to purge myself with two liters of water over several hours followed by a bottle of Magnesium Citrate. It takes a couple of hours for it to work for me, with several trips to the bathroom. I do this every third day.
I'm sorry to hear this. Have you spoken to your primary care doctor or maybe a gastroenterologist?
I think Parkinson’s disease should be taken more serious more research more effort to prescribe a place for patients to exercise diet a Parkinson’s physality to help and encourage patients to slow down progression with physical therapy.
Thank you for your feedback. Parkinson's is certainly a challenging disease
I used to go walk one hour in the morning and one hour in evening without any support only feeling dizziness sometimes and sleepy always.
Walking is good exercise. But avoid if dizzy or sleepy
I am the peasent of Parknens last seven years Early my arms movement extra body, after this my i feel i can't walk properly and my both feet fold and I can not walk this time i can't walk with out take medicine l take Ronirole, 2mg , senement / senement extra, no Kemprodran, Pk maz Selgin but now I am not walk and do not reunion matter. Please advise me regarding my problem.
Thank you for sharing your story. I would talk to your doctor and ask for a referral to a neurologist, particularly one that specializes in movement disorders.
I have been diagnosed with Lewy Body Dementia and the hallucinations are awful. Nevertheless thank you for your information here.
Sorry to hear. Thank you for sharing. Hopefully medications or other treatment interventions can help.
Does intestinal obstruction have to do with parkinsons
GI complications not uncommon in PD including obstruction
What about "FUT" ? ( focused ultrasound treatment)
Yes, MRI-guided focused ultrasound can improve symptoms. Many other treatments that I didn't have time to discuss!
I had a very aggressive case of Parkinson's and bad tremors. I had Fus treatment and my Tremors were abolished within 2 hours and I was given my life back. Check out my documentary on UA-cam.. Tremor Documentary 2022. Absolutely amazing.
What about "focused sound wave treatment" ?
Why didn't mention it?
If you're referring to focused ultrasound, then yes, can be used to treat tremors. In my few minutes, I only covered a few treatments
I am Parkinson patient I am taking syndopa pluse tablet three times a day and Nearoban tablets and
Blood thinner once at night kindly suggest any other information or medicine is suitable for me
Thanks for reaching out. I would talk to your neurologist and your primary care doctor as they can review all your meds and labs and overall history
Most of the doctors don't check mercury toxicity in parkinson's patients... homeopathy is great option for treatment of parkinson's
My so-called PD has been with me over 20 years,
mostly without treatment or tests. Deficency of
Vitamin B-12 mimics PD symptoms. But not a single doctor tested my B-12 levels. I rarely see a doctor now, due to their lack of hearing me.
I'm sorry about your experiences. I hope you find a doctor (or NP or PA) who you trust and listens to you
Has Michael j fox tried this treatment? If not, why?
I'm not sure of his treatment regimen. You'd need to ask his team
What about the Davis Phinney Foundation?
Thank you for sharing. davisphinneyfoundation.org/