You're a bleeding genius...I'll be asking my GP and Specialists at the Wolfson Institute, Cambridge (UK) to take a look at this video. Thanks so much and hope to meet you at the next PPA Conference.
We would love to hear how this video and information helps you. Let us know if it helps your GP and specialist better understand your condition and treatment.
Wait... It's not normal for your lips and tongue to be stiff in the cold? I've had this since I was a kid. Antoine I get cold, it's very difficult to move my lips or tongue. I can hold a cold item for a MAX of 3 seconds before I'm in excruciating pain. I have hypoKPP.
Cold can be a trigger for many with PP. You can learn more about common triggers for PP on our website and in our other videos. You can also learn about how to manage your symptoms within those same resources. Our goal is to provide patients with information that can help them with diagnosis, treatment and management. Stay tuned, we have more to come.
Unfortunately the volume for the video didn't work for me but I'm thankful that you're still here, reaching out!!
We are not finding any audio issues on our end. Are you having the same issue with other videos from our channel or other channels?
Thank you Dr Cannon from the bottom of my heart for your continued work
You're a bleeding genius...I'll be asking my GP and Specialists at the Wolfson Institute, Cambridge (UK) to take a look at this video. Thanks so much and hope to meet you at the next PPA Conference.
We would love to hear how this video and information helps you. Let us know if it helps your GP and specialist better understand your condition and treatment.
Thank you so very much for this presentation! I appreciate the work you out in to educating us!:)
You are so welcome!
Wait... It's not normal for your lips and tongue to be stiff in the cold? I've had this since I was a kid. Antoine I get cold, it's very difficult to move my lips or tongue. I can hold a cold item for a MAX of 3 seconds before I'm in excruciating pain. I have hypoKPP.
Cold can be a trigger for many with PP. You can learn more about common triggers for PP on our website and in our other videos. You can also learn about how to manage your symptoms within those same resources. Our goal is to provide patients with information that can help them with diagnosis, treatment and management. Stay tuned, we have more to come.
Wonder what other minerals are measured (and what forms) and if urine mineral analysis to see what lossing (more than normal).
Please add captions.
At this time, we do not have the resources to add captions.
Audio is very bad..
You may want to try using a different device. The sound is playing loud from the actual media site.