Prolotherapy Round 4 // My Neck Instability Is Now MILD & Continuing to Improve!
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- Опубліковано 17 тра 2022
- This was my 4th round of neck treatments (prolotherapy & PRP injections) at Caring Medical in Florida. ❤️️
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#Prolotherapy #CervicalInstability
Hey Rachael Elizabeth, It’s Gail Elizabeth, I m so happy for your improvement, I went to see Dr Hauser the end of March, I have neck instability in 3 places , and both shoulders have instability, no wander they hurt too, but the head pain eclipsed the shoulder pain. YOU are soooo lucky you have support, Dr Hauser doesn’t want to work on me until my husband is on board. My husband still thinks it’s all in my head, yeah, intercrainial hypertension caused by my jugular vein compression. And I know Dr Hauser is right about me needing him on board, because the STRESS of him not believing me makes my pain worse. I can’t even drive a car, I need help, sorry to unload on you, but I will get PROLOTHERAPY one way or another, divorce being one of them.
I am so sorry you have to go through this.
That is what is so difficult with these conditions, bad enough that GP's or joe bloggs cant see your pain but very hard when your family don't believe you. Tell him to walk in your shoes for a day an he be crying like a baby. Michelle x
That is the problem is the stigma associated with these conditions.
I have a triple concussion and documenting on UA-cam right now. Unfiltered. R rated.
I’m hopeful this will help people understand that it can happen to anyone and love is an action. If you are going through this nightmare the last thing you need are haters and doubters. My documentation starts with me holed up in my house warning everyone to stay away.
But yes if you want to watch someone in the depths of a massive concussion fight for their lives and willing to cut everyone off in order to survive check it out.
Anyone can say they love you
Love is a verb
I’m so sorry. Find someone else to help! Don’t delay your healing. Praying for you. I too am dealing with Instability…it’s very hard.
Can you get a neighbor or friend to support you and go with you or possibly 2 separate people to split it up? Part of helping and healing ourselves is recognizing toxic unsupportive people in our lives and cutting them out.
You also could find a provider close by you to do a digital motion xray and show that to your husband. You can also request a Flexion extension/rotation mri from a primary care Dr willing to work with you. Then upload that to one of those "review your mri" for free websites. That's all the proof you need. Don't give up!
I hear the joy in your voice and see it in your face and that is so wonderful! My 18-year-old is going to Caring Medical in 10 days for assessment of intracranial hypertension. Your videos have given me so much hope. I am praying for you in your road to recovery.
I am loving your videos and posts so much at the moment! What you've already achieved is amazing and brings me to tears almost every time I see what new things you've been able to do. You're such an inspiration and I WILL join you! 😊
Aww, thank you so much Rebecca!! You are so kind. Yes, can’t wait for you to join me!! ❤️ Always rooting for you!!
I just found your channel and just want to tell you, I can see Jesus shine in you! God bless you!
Quick question:
Do you still believe infections (Lyme or others) may have caused your tissue damage?
*I recommend listening to Dr. Amy Proal talking about infections impacting connective tissue (PolyBio Research Foundation). She’s incredibly intelligent and driven in this field; she discusses EDS a lot and CCI/AAI, Tethered Cord, etc.
Thank you for your post, I need a little hope right now. A Inspirational Bible verse that helps me get through is Isaiah 38 about Hezekiah’s illness. Hezekiah is going to die but he asks the Lord to let him live because he has always been faithful and God gives him 15 more years. This is a reminder for me that i have not done as much work for God as God has done for me.
DV you're right,in God there is healing and hope. LET US PRAY always and keep on fighting,together we will defeat our illnesses😭🙏🙏 I am happy that you are here to share my struggles too🥺😌😌
We praise You Lord for these miracles!
Aww 🙏🏻🙏🏻
😊🙏❤️ ! Praise the Lord!
🙏🏻🙏🏻
So happy for you❤️
So amazing! So proud for you! Blessings
You looks much better and more vibrant. Im also currently treating lyme as well as getting prolotherapy but sadly developed shingles this week but I keep pushing. There are always set backs but I will fight.
Lookin great Rachael. Are your prolo treatments with just Dextrose concentrate solution? Or are you doing prp, Stem cells? Great video btw
I know exactly what you’re talking about when you have those magical windows of time being pain-free. It feels like floating on clouds or like someone has turned down gravity to the exactly the level you need. You just want so badly for it to stay that way indefinitely. Thanks for the inspiring video :)
Your positive vibes are extremely helpful for myself and the rest of us all!! Might I ask what doctor would you recommend or say gave most care?
This made me tear up. I'm so glad you're doing so much better. I hope you get to 'live life' one more time, and it's ok to let yourself dream again. You've been held down for so long....you deserve to be happy. Enjoy everything you can. Thank you for sharing your journey.
Have you ever tried b12 injections? I just had one this week and I noticed it helped reduce my tremors and normalized my gag reflex when brushing my teeth. I did a ton yesterday physically after adding time release vit b12 pill to the mix. I just tested my pots in the am getting out of bed with a pulse oximeter and my heart rate went from 57- 85-87, which is a low pots number. Usually in the am my heart rate is mid 50s- 115-127. It stayed in the 70s. So that's a huge improvement!!
My b12 has always showed low normal on blood work too, but I clearly need it. This is the first time in 3 months that I had low pots heart rate and the only difference was the b12. I'm realizing I can't utilize or absorb it properly from food or regular vitamins on their own for some reason. I think others that do well on the carnivore diet probably have some sort of b12 malabsorption as well.
I've been looking into sibo and there is a link to dysautonomia and even ligament and tendon weakness with b12 issues. I wonder if your b12 levels are super high for you now from being on the carnivore diet for so many months?
I also remember going to one of those churascarias with all beef for dinner one night and having good energy the next day and feeling good, but it only lasted a day.
There's also a link to b12 deficiency and intracranial hypertension which I believe I have as well and youve discussed having in previous videos. Trying to get into Duke now for testing. It's all very interesting.
I have pots and sibo, but my b12 is extremely high. I am wondering also if I am not absorbing it properly.
Love this update ❤️ I relate so much to the zero pain experiences. It feels unreal and like rebirth, I will never take another day on this beautiful place for granted ever again. Disney is also on my bucket list for this year and I can’t wait for the day! I hope you have a great rest of your trip in FL ☀️
I am so glad to hear you can relate to that feeling ❤️ It’s the best! Fingers crossed you’ll make it to disney this year-you’ll have to let me know how it goes! 😊
Great stuff Rachael : ) Praise God !!! how much time did You wait for before the fourth treatment ? and how many more trips if any do You need to get of the Prolotherapy? Happy travels : ) Patrick
Thanks for the update. ❤️ I was wondering how this round of prolo would go. I didn’t imagine that he’d only did o one set of injections. Wow! 🥳🎉
Aww, thank you Leslie!! It was a happy surprise for us, too!!
I hope you keep posting your DNRS successes while I’m mirroring the same thing. I’ll subscribe and watch for updates :)
Glad you’re here! I’ll try to update as much as I can ❤️
So happy to see this, fellow spinal instability sufferer myself(lower and upper) getting my first prp treatment friday praying it helps this video makes me optimistic
Rooting for you Matt!! Keep the hope!
@@HealingWithRachael no one deserves to live with CCI! Can i ask did you suffer balance deficits? Asking cause you mentioned a wheelchair, i have coordination issues and feel like im walking on a trampoline a lot too, not sure if its neck or lower.
Update Matt?
@@TheBushRanger. far from 100% bit ot seems to be helping better then anything I've tried yet apparently it's not in full effect til weeks 4 to 6
@@matthaines8136 please keep us posted. Where did you get your treatment?
Hi Rachel,
Super happy to hear that you're making progress.
I'm considering Caring Medical as well, may I please DM you?
Hi Rachael, i have been following your truly amazing journey for years!. My 7 year old daughter has C1 stenosis and had gone through C1 Laminectomy when she was just 1.5 year old. Her neck instability symptom started and we would like to go through alternate therapies instead of any surgical ones. Would it be possible to setup time to talk to you over phone sometime? We are based in CA.
I absolutely love your videos, they are so informative and seeing your journey and experiences and what you are going through touched my heart..I just wanted to ask how is your pusitile tinnitus?..I suffer with it too, would be great if you could do a video on your experiences with it and how your treatment went...thankyou!...❤❤
I have that too. I think it's associated with intracranial hypertension
I've watched you for couple years. I am happy your doing better. Have you ever had therapy to strengthen your frame/spinal chord spine , neck , upper back...warm pool therapy and exercise...apple core...head neck spine strengthening.
I am a patient with a severe chiari malformation symptoms so I had decompression surgery 4 months ago but I was not healed as I was expecting though I observed a little improvement. Everyday is a battle for me but watching all your videos inspire me and push me to still fight. I am thinking positively that there is still healing for us despite of what we are going through right now. Please keep us updated and keep on inspiring us🥺🙏GOD WILL HEAL US ALL🙏
I remember you saying that you were troubled with barometric pain, for me it attacks all my problems and makes them way worse. Do you know if there is any type of treatment for severe barometric pain. Thank you. Michelle
Hey Rachel! Going into year 5 with craniocervical instability and going to be getting a consult for the C0-C2 fusion in the next month or so. I was curious if Dr Henderson noted your instability below C2 when he reviewed your MRI. And if so, is there any particular reason why you guys didn't fuse all the areas of instability from the get go? I have instability from C0-C4, so I'm really debating trying to have it all down from one surgery.
Thanks- Ethan
Hi Rachael, thanks for sharing! Were you at all sedated? Was it very painful? ):
You are doing great. Are you still on LDN? Great to see that you are improving day by day.
Thanks! Nope, no LDN!
@@HealingWithRachael thanks for your reply. Why did u stop?
So obviously doctor Hauser told you your instability was getting better but the big question is are your symptoms getting better which ones are improving and by how much
Thank you for sharing your story. I’m going to my consult on Monday for prolotherapy on my entire body of moving joints including my whole spine and every knuckle. I’m excited and terrified. How high on the pain scale are the injections during the appointment? I’m so happy and inspired by your story. Thanks again.
Good luck 🍀 hands are painful 😣
@@isajale660 good to know thanks!
Hi! Please tell me…I have only done alternative medicine, body work, meditation, DNRS, autoimmune paleo diet, because although I was bedridden and at one time in a wheelchair, at 3 times in my life unable to walk- I had no diagnosis’s, so all I had were the tools listed above.
I have just learned that I have Chiari (in addition to EDS,MCAS, POTS, small fiber neuropathy). My first knee jerk reaction to learning that I had Chiari was “definitely not surgery, no way!”, however the ringing in my head is so loud and quality of life at times so very poor, that I found myself dreaming that a decompression surgery might give me my life back.
On your journey, have you learned that surgery is not always needed to get the CSF flowing? Perhaps I could START with prolotherapy first? I’d love your honest answer.
SO GLAD to see you looking at peace and feeling hopeful. I’m so happy you share your faith with us as well. 😊🙏🏼
How is the brain retraining going has it helped you how many weeks have you been doing it as a changed your symptoms
I just finished my 2nd treatment .. are you taking the laughing gas? it helps me a bunch with injection pain.
I’m literally experiencing the same thing as you down to every letter , i’m thinking about going to see them also but I don’t know if I can afford it how much had it cost you so far? Please respond 🙏🏾
♥️Praise the Lord.
All things are possible. Thanks for sharing g your story. I have some instability, not what you’ve experienced. But no one knew what was going on with me. Atlas orthongal chiropractics has helped me so much. Prolotherapy may be in my future.
Did you consider Regennex instead of prolotherapy?
🙏🏼🙏🏼🙏🏼💯❤️
I just found you. I am considering going to Caring Medical for treatment. Lots of “stuff” going on. I live in NC. Would Iove to connect with you to ask more questions. I need to consider housing while there and whether or not to fly vs. drive and so many questions. Please reach out to me.
I am considering going too. I'm also in nc. Did you end up setting up an appointment?
Update: I just had a dmx and have a sizable C1-C2 overhang (worse on left side, which I guess means right side ligament is stretchier) , so I definitely have cervical instability. I cried a sigh of relief to finally see the mountain to start climbing. Now I just have to figure out where to get treatment. Did you find prolotherapy or prp to be more helpful? Do they happen at the same appointment or different ones?
Did you suffer from headaches
@@bhupendrasingharora6183 yes crazy pressure headaches. Do you have them too?
@@Sara-world yes suffering from almost 6 years
Did your neck produce crunching sound
Hey! I m from India. There is not much awareness of cervical instability here, as many doctors treat these symptoms mostly as derivatives of anxiety & depression especially when you are a youngster and some doctors diagnose it as cervical disc herniation somewhere below c4 level, because cervical instability especially at upper part becomes difficult to diagnose. I m actually suffering from all sort of symptoms that you have reported & also some other that usually CCI patients does experience.
What would be the accurate diagnosis for the CCI and what would be the correctice treatment for this? Does prolotherapy entirely resolves CCI? I would be thankful to u if u help me😌
From where comes neck instability? Did you have an accident?
can CCI heal on its own without surgery? especially less severe cci? I don't know much about it.
Yes it can. Prolotherapy often resolves instability but I know people that have healed it through brain retraining and diet changes.
Does anyone know what prolotherapy cost?
Come back I wanna know how you are doing Rachel
Do you think dnrs can work on its own? Or you need prolotheeapy
I have talked to a few people that have had success with just doing DNRS with instability. I certainly think its possible. I more see prolotherapy as a way to accelerate my healing. I think I would have eventually healed without it, though it may have taken longer.
😇🙏🌻
Wow. Amazing progress. Our 12 yr old has Os Odontoideum, Rachischisis, with significant CCJ instability, He's also Chiari 0. He got posterior PRP at Centeno in Colorado back in Sept. That did show some improvement, with his Upper Cervical adjustments holding better/longer (now adjusted twice weekly). he continues constant headaches and nausea. Our recent chat with Regenex about continued therapy has been paused, as they are concerned about his immature skeletal system. I'm intrigued by your successes.
Wow , you are doing so well, gives me hope. I am waiting on results to confirm Cervical instability and I already have Cervical Stenosis and Chiari . I have been waiting for 6 weeks for result of CT scan for CI. I am in Scotland and things very slow here. Keep updating us please as It gives us hope. Thank you. Michelle x
Hi Jelly! I am sorry hearing you having more diagnosis other than chiari, I am also a patient with severe symptoms of chiari malformation type 1, I undergone Decompression surgery 4 months ago but I have still the symptoms, severe headache is my main symptom,but still glad that I have atleast a little improvement. I am still hoping and praying for a recovery🙏.What does your Doctor suggest about your chiari,do you need surgery? I am praying for a healing for all of us because I know exactly how hard it is what we are going through🥺🥺🙏
@@sheinacristerbagiwa8518 Sorry to hear you still having trouble after operation, will they operate again?. I have the diagnosis and operations have been mentioned but so long between appointments and can't seem to access results of scans. The National Health Service in Scotland is not working at the moment. I live a half hour from a small hospital that can do scans and an hour an half from our main hospital yet they sent me 4 hour journey to Edinburgh for a 4 minute scan, and the 4 hour journey home was a nightmare, not ideal when your head thumping. Do you find travelling etc exacerbates your symptoms. My symptoms for all 3 conditions cross over so I suppose they will be wondering what to operate on first. Keep updating here and I will try look out for you, let me know what they do for you. Take care. Where in the world are you? Michelle
@@ilikejelly7890 oh sorry it seems that you are having hard and long time for you to have your final diagnosis,But same with me as I suffers for a long time before I got a final diagnosis, at 3 months prior to my surgery I was only diagnosed by my neurologist with hydrocephalus thru CT-SCAN and tried medication but there's no improvement and my symptoms gets worse so he ordered an MRI. The result came and ordered me immediately to go find a neurosurgeon, from then I was adviced for an immediate surgery because in my case I was very symptomatic. My final diagnosis are Chiari Malformation Type 1 and Obstructive Hydrocephalus.Chiari Decompression Surgery is invasive type and too expensive but I have no other option rather than to go with it. But despite of all I want to give you a little comfort, surgery might not give us our 100% expectation but will atleast provide 50%, for me despite of a very gradual recovery I have no regret having it. To explain you more precisely, prior to my surgery I have severe headache,dizziness,nausea and fatigue but now after my surgery I have mild- severe symptoms,For now my neurosurgeon does not suggest any 2nd surgery, he only prescribed me pain relievers and vitamins as he suspected I am still on the healing stage so I have still the symptoms,again I am still suffering but I still want you to be inspire and continue to fight, do and follow your doctors recommendations even how hard it is, I want you to know that you're not alone, yes! Please keep me updated on your next step. I am from the Philippines,how about you?Let us keep standing and have faith to God,he will heal us!🥺😌🙏🙏