Wheelchair Friendly Home Tour! // Clonic Seizure in Wheelchair

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  • Опубліковано 6 лис 2024

КОМЕНТАРІ • 116

  • @terrydodge8247
    @terrydodge8247 2 роки тому +3

    Loved the "Many faces of Raelynn". Made my wife smile & chuckle at some of her funny faces. She is a blessing from God. Her mission in life is to make others smile. Thanks for sharing her with us. Your family feels like a part of our family.

  • @emi7912
    @emi7912 3 роки тому +7

    Aww, maybe Raelynn was just tired, I saw a big yawn. She’s so cute in her chair with all the stuffed animals. Oh, that was a big hiccup too. Beautiful job on the floor, and the double doors, and turning an office room into a big bathroom for Raelynn (with towel warmer! 😍👍) A stroke of luck with the master bedroom location. Beach curtains, yes! (it’s way below zero where I am! 🥶) Beautiful house tour, great set up for Raelynn and your family. And then all the little personal details are what really make it “home” such sweet pictures 🥰

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +3

      Yeah, I think she was just upset that I got her out of her comfy bed. 🤣 We definitely love our home! It's perfect for our needs!

    • @sweetlife031
      @sweetlife031 3 роки тому +1

      Ummm…..is it easy to put Raelynn in her chair?
      Does she cry when she’s sad?

  • @gracins4425
    @gracins4425 3 роки тому +5

    Raylen room is so cute I love the pandas

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +1

      So does she! I need to do a tour just of her room sometime.

  • @beckycooper9063
    @beckycooper9063 2 роки тому +1

    Good Morning Sunshine

  • @juliepoganski7159
    @juliepoganski7159 3 роки тому +2

    Oh sweet girl I wish there was a cure for seizures. But you are so full of life and joy, it's nice to see.

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +1

      Her VNS has helped. She used to have more. I definitely wish we could find a better treatment for her though.

  • @boniacuna8573
    @boniacuna8573 2 роки тому +2

    Hello lovely family your home is beautiful . Thank you for sharing your lovely home with us all. 🌻🌻🌻

  • @junelynn63
    @junelynn63 3 роки тому +2

    TheThe bedroom curtains look great with the light on great idea!!

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +1

      Thanks! I think there used to be sliding doors. We love the curtains!

  • @tammyhanes5806
    @tammyhanes5806 Рік тому +1

    😢❤😊🎉 that is Awsome your a awsome dad I love 💕 her shower

  • @TheJackMAN2014
    @TheJackMAN2014 3 роки тому +4

    Y’all got it going on with that house! We’ve been looking for something new with improvements in mind. Hope she’s well!

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +3

      Yeah, we were about ready to build a house because we couldn't find something in our town that would work for Raelynn, and then this house came on the market, and it was better than we were planning to build! Worked out perfectly, especially after we made the modifications. Hope you find a good place for your family when you need it!

    • @TheJackMAN2014
      @TheJackMAN2014 3 роки тому +2

      @@HopeAndSunshine Man, y’all did score! Yeah, we’re probably gonna downsize and save some scratch while we look. Not exciting, but necessary.

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +2

      Gotta do what you gotta do!

    • @TheJackMAN2014
      @TheJackMAN2014 3 роки тому +1

      @@HopeAndSunshine And I just noticed y’all almost at 1k subs! Good job, bro! In my opinion, it deserved to be there long ago!

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +2

      Thanks! You're really not far either, considering how fast your channel is growing. That's awesome!

  • @HighTen_Melanie
    @HighTen_Melanie Рік тому +1

    Such a beautiful home you have. Sending love to you all. ❤️🙏🐼

  • @hyunw00761
    @hyunw00761 3 роки тому +4

    Thank you for visiting your house. I saw Harry Potter a long time ago. I enjoyed watching the house video as if I did before visiting your house. Tired after her seizure. ^^

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +2

      My kids love Harry Potter! Get some rest.

    • @hyunw00761
      @hyunw00761 3 роки тому +1

      @@HopeAndSunshine oh good~

    • @azariahhouston74
      @azariahhouston74 Рік тому

      Hi I love Raelynn she’s a Beautiful Kid does she Attend School i know she’s 11

  • @dominiquezayas9574
    @dominiquezayas9574 3 роки тому +2

    GOOD morning sunshine💪💪💪💪💪💪💪 your so amazing sweetie sns your parents are my hero I got terrible news yesterday. Awww sweetie don't cry her cries hurt my heart but I love yo all.

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому

      Sorry to hear you got bad news yesterday. Praying it turns around for good. 🙏

  • @hannahlawrence7734
    @hannahlawrence7734 Рік тому +1

    Beautiful and very spacious too xx❤

  • @mistygriffin5940
    @mistygriffin5940 Рік тому +1

    Hi Raelynn

  • @sammidonaldson4999
    @sammidonaldson4999 8 місяців тому +1

    Does Raelynn help with laundry.? I mean from the dryer? You can put it on her lap and she can carry it for you guys. My twin brother Freddie used to do it all the time for us.

    • @HopeAndSunshine
      @HopeAndSunshine  8 місяців тому +1

      No, it would be difficult to get her wheelchair into the laundry room. But she does help carry other things occasionally

  • @afappiano7115
    @afappiano7115 3 роки тому +2

    Your house is so cute 😊

  • @miaanslow7213
    @miaanslow7213 2 роки тому +1

    Plus washing it gets in the pores and helps prevent them from getting clogged. 😊. We girls are picky 😊

  • @tess.horine
    @tess.horine 2 роки тому +3

    Your house looks nice! :)

  • @CherylBeatrice-j4x
    @CherylBeatrice-j4x Рік тому +2

    ❤❤❤❤❤

  • @anniewall2822
    @anniewall2822 3 роки тому +2

    What a beautiful house I love it

  • @tdunkley001
    @tdunkley001 2 роки тому +1

    I love this! Do you still live in this home?

  • @tammyhanes5806
    @tammyhanes5806 Рік тому +1

    ❤😢 😊 Awsome

  • @tammyhanes5806
    @tammyhanes5806 Рік тому +1

    Yeah I get to bluid my own house 🏡 it ducks our other one burned thank hod we are ok 👌

  • @rebeccasandlillysadorablebaby
    @rebeccasandlillysadorablebaby 2 роки тому +1

    Are you are you sweet work and are they available in Canada if you know that would be awesome for the infamt thank you

    • @HopeAndSunshine
      @HopeAndSunshine  2 роки тому

      I'm not sure what's available in Canada 🤷‍♂️

  • @alyssakrider3198
    @alyssakrider3198 2 роки тому +1

    I'm new to your amazing channel and I just love All of you guys keep up the great work.😁

  • @anniewall2822
    @anniewall2822 3 роки тому +2

    What a beautiful house I love your house it’s really nice

  • @theboguesandthensome3975
    @theboguesandthensome3975 3 роки тому +1

    Do you guys have to give her medicine when she has a seizure? Poor baby. We have meds if it happens but thank the Lord Alyssa hasn't had one since she was 6. She is 10 now. Love how you have everything set up.

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому +2

      Good question! No, we only give her rescue seizure meds when her seizure isn't slowing down after 5 minutes, or if she has several seizures within an hour.

  • @JulieCook2022
    @JulieCook2022 2 роки тому +1

    Love your house

  • @Travekagent
    @Travekagent Рік тому +1

    Ooh, you have instruments here, who plays them?

    • @HopeAndSunshine
      @HopeAndSunshine  Рік тому +1

      Amber plays the ukulele, and I play both (and a few others) 😁

  • @vikki259
    @vikki259 2 роки тому +1

    How she feeling today

  • @danessafayeacaasi
    @danessafayeacaasi 4 місяці тому

    WOW 🤩 😮😮😮

  • @miaanslow7213
    @miaanslow7213 2 роки тому +1

    Wash her face daddy. Neutrogen is mild and so good for skin. You are doing an amazing job

    • @HopeAndSunshine
      @HopeAndSunshine  2 роки тому +1

      We do, but she gets oily again very fast. Probably a side effect from a medication.

  • @CherylBeatrice-j4x
    @CherylBeatrice-j4x Рік тому +2

    😍😍😍😍😍😍😇😇😇😇😇😇😇🐼

  • @alicetawney2749
    @alicetawney2749 Рік тому +2

    Kii🎉😮😅😊😊

  • @vicros7065
    @vicros7065 3 роки тому

    Sweet little sweetheart. It is not easy for you at all. At least we're in a wheelchair only when she has seizures. I see that she has contractures of both arms, is there any other diagnosis besides epilepsy?

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому

      Lots of things. Cerebral palsy, quadriplegia, global developmental delay, and autonomic dysfunction off the top of my head.

    • @vicros7065
      @vicros7065 3 роки тому

      @@HopeAndSunshine Darling sweat smiled girl, I assumed there was quadriparesis. She is so beautiful. 🥰
      Hugs from us. 🤗
      Her smile always makes me smile too. 🙂❤
      Today, Victoria also had a 4-minute seizure at school.☹

  • @marcofausto9422
    @marcofausto9422 3 роки тому +1

    Amen

  • @Emily-lx8kk
    @Emily-lx8kk Рік тому +1

    when she hiccuped it gave me a fright

    • @HopeAndSunshine
      @HopeAndSunshine  Рік тому +1

      Everyone hiccups 🤷‍♂️

    • @Emily-lx8kk
      @Emily-lx8kk Рік тому +1

      @@HopeAndSunshine i know that but i never heard Raelynn hiccup that loud before

  • @Tetra3Ne56scur
    @Tetra3Ne56scur 3 роки тому

    1:55 where can I find these oil sheets?
    I have excess oil on my face

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому

      They work fairly well, especially for the price! You can find them here on amazon: amzn.to/3p7ngwB

  • @Samo-73
    @Samo-73 3 роки тому

    Gr8 house guyz. Sendin love & hugz. Ave had 2 grand mals 2day so far. Hope uz are ok?

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому

      Yes, we're doing fine! 😁

    • @Samo-73
      @Samo-73 3 роки тому

      @@HopeAndSunshine thats gud 2 hear. 😊

  • @tammyhanes5806
    @tammyhanes5806 Рік тому +1

    How olds. Raelynn now

  • @vannahgraceful4079
    @vannahgraceful4079 Місяць тому

    What kind of wheelchair does she have?

  • @kagomegrrl21
    @kagomegrrl21 2 роки тому +1

    does she like disney princess. i’m going to be volunteering for a non profit called the princess program foundation.

    • @HopeAndSunshine
      @HopeAndSunshine  2 роки тому +1

      She's never really seemed to like them, no 😂

  • @gracins4425
    @gracins4425 3 роки тому +1

    Goodmorning

  • @Juicybaby196
    @Juicybaby196 Рік тому +1

    Does she understand when you talk to her I hope this isn’t to personal

    • @HopeAndSunshine
      @HopeAndSunshine  Рік тому +1

      She definitely seems more aware at times. Sometimesshe doesn't seem to care at all about what we're saying, but other times she very much seems to know. It's hard to know for sure since she can't talk.

  • @shelleyrightmyer6421
    @shelleyrightmyer6421 3 роки тому +2

    Iloveyou somuch miss you

  • @vannahgraceful4079
    @vannahgraceful4079 Місяць тому

    She’s cute

  • @pikachuiskaden6884
    @pikachuiskaden6884 3 роки тому

    Raelynn likes pandas

  • @debracregeen338
    @debracregeen338 3 роки тому

    If you give her food through the mouth could she choke on it or would she chew it up can she talk or no

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому

      She can't talk. She would choke on solid food, but we can give her a taste of soft or liquid food from time to time.

  • @miaanslow7213
    @miaanslow7213 2 роки тому +1

    May I ask what happened to Raelynn that caused her to be quadriplegic? I use to work at a rehab place and there were many paraplegic and quadriplegic patients. One of my folks friends had a daughter that went there because she was thrown off a horse and unfortunately, her injuries caused her to be quadriplegic. They are coming a long way with electrical impulses

    • @HopeAndSunshine
      @HopeAndSunshine  2 роки тому

      She was born this way. They found a genetic mutation when they sequenced her DNA, which is probably the cause.

    • @miaanslow7213
      @miaanslow7213 2 роки тому

      Well God Bless to you and your family. I hope many blessings come your way

  • @livingwithcerebralpalsyand3253
    @livingwithcerebralpalsyand3253 3 роки тому

    Hey

  • @amandaarnet5088
    @amandaarnet5088 3 роки тому

    How many siblings does ralunyn have sorry I I spelt her name wrong

  • @marinakiell1069
    @marinakiell1069 3 роки тому

    Where do u think her extreme oiliness comes from?
    PS this channel has now been
    added to my repertoire

    • @HopeAndSunshine
      @HopeAndSunshine  3 роки тому

      It could be a side effect from one of her meds. 🤷‍♂️

    • @marinakiell1069
      @marinakiell1069 3 роки тому

      @@HopeAndSunshine I just Googled and it said oral contraceptive and hormone replacement medications. Must also be an effect of the estrogen patch

  • @danessafayeacaasi
    @danessafayeacaasi 4 місяці тому

    GIRL 👧