I am Brazilian and have for years the same symptoms. I'm so tired of doctors sending me to psychiatrists, even though I've had 5 heart attack principle because of the speed that reaches my heart. All electrocardiograms indicate sinus tachycardia, but no doctor can figure out what starts this tachycardia. So, even though I'm tired, I'll go back to the doctors and ask about the possibility of Inappropriate Sinus Tachycardia. Thank you so much for this video!
Hey man I’ve been dealing with this since 2011 after blunt chest trauma to my chest by a baseball. It actually went away from 2014-2019 and has recently returned. No one seems to know why it’s happening but it’s something that I’ve had to learn how to live with. I hope you find a system that works for you and you can get on with normal daily activities even if moderate. 🙏🏽 I’m working on finding my balance as well.
I've been having these same symptoms for 3 months. It'a terrifying and so hard no to be able to exercise like I used to or simply walk to the store or cook food. They're still doing tests for me and have yet to give me medication. It's really psychologically tough, sitting in the house when I'm used to being so active, at 31 years old. Depressing really. This started suddenly for me too after I felt sick for a few days back in may. Heart rate shoots up to as high as 195 at rest, and up to 180 while standing up and walking around. 170 just slowly going up stairs. Terrible. Have no idea how to live this way, and seriously afraid my heart will stop or a heart attack. Anyway, thanks for posting this to know someone is going through something similar.
@@chrisparkinson7533 I've had so many tests. Holter monitors, ECGS, non-contrast MRI of brain, contrast MRI of heart, echo, tilt-table test, autonomic testing, and endocrinology blood tests & abdominal MRI to look for pheocrhomocytoma, and blood tests in ED, 24 urine test to check methanephrines and catcholamines. All have come back normal, except the positive tilt-table and have yet to get autonomic test results back as well as methaneprhines. After countless useless trips to ED, I'm currently seeing a cardiologist plus an endocrinologist, and an autonomic specialist. They're all basically saying the same thing, IST and POTS. Blood pressure seems to shoot up too according to tests. Autonomic specialist and cardiologist say it is most likely "post viral autonomic dysfunction in the form of IST and POTS". Crazy because I wasn't that sick in May, I just didn't feel to good and it progressed into this. I felt vertigo at first too, with dizziness. 3 months later I still have no meds, and it changes from hour to hour, and day to day. HR today was randomly in the 40s and 50s at rest (my normal before all this was 65 bpm at rest). Then today in was also in the 130s are rest just an hour later. They're thinking of putting me on propranolol first and see how I do, and then maybe try Iverbadine. Same with you they told me anxiety at first and but me on anxiety meds which just made it all worse. It's a completely surreal experience. Feel like I'm never gonna get back in the gym, or run again. BRUTAL. Trying to stay mentally sane through all this and believe there's hope for the future but I don't know. All this started right in the middle of my Phd draft submission so its been very stressful. I still have my oral examination viva to complete in 2 weeks with all this going on, no concrete diagnosis or meds, so its a lot. Anyway, how are you finding the Iverbadine? Have any doctors told you that this may stop one day, or if it's for life? I hoping there's hope one day I'll be back to normal and not need meds for the rest of my life.
@@012roro that’s so strange, I had all the same tests too. Pheochromocytoma, metanephrines, brain MRI. It’s horrible but it is comforting knowing someone else is going through something similar? Sorry we are both in this position. Yeah I don’t remember having a virus before this but hey, here we are. Yeah no concrete diagnosis either, just a diagnosis of exclusion. Ivebradine I started yesterday and so far so good. Much better sleep as well, I used to wake up all night and never feel rested. I’m lucky my uni work is online, but I have had this time off of my job as well.
@@chrisparkinson7533 I started Ivabradine today as the beta blockers didn't work. Im starting with half of 2.5mg just because im afraid of the side effects. Have you had any adverse or frightening side effects so far? Anyway, I hope you're improving. My symptoms have gotten worse, with HR 195+ both standing and at rest with many episodes in one hour. So yeah, I really hope ivabradine is safe and it works so I can get at least some of my life back.
@@KiKi-ye1to hi! Sorry to hear you are struggling. I take 2.5mg twice daily. Only side effects were a bit tired/lightheaded but that has gone over a week, just getting used to the medication. Has helped me a lot with HR.
Everything you have described in this video fits me to a tee, I’ve had a couple emergency room visits and everything always comes back normal (obviously aside from the ridiculously high heart rate) and keep in mind I’m 23 myself, so they always brush me off as anxiety riddled and what not when I’m not an anxious person myself. I’ve done ECG’s, EKG and a stress test and when I heard the cardiologist talking to a nurse or whom ever while checking my test I heard him saying stuff about sinus tachycardia which I already knew I had for a long while. My doctor has brushed me off for a long time too until he finally saw the results of my stress test and had put me on buspirone which I don’t take at all because it makes me feel like shit and like I said I’m not a very anxious guy and he has also put me on metoprolol which I’ve found helps some days and some days it’s chaotic. I just recorded a video today with my Apple Watch on and I was laying in bed relaxing and my heart rate was at a steady 90-95 and then in the video I decided to stand up just so I can show my doctor that it jumps to 130 almost as soon as I stand up. Sorry for this very long message but I figure this video sounds exactly like me I would share my story and what I been going through. Hope you’re doing much better tho mate
I have the same exact problem, often my tachycardia comes out of no where and its really frustrating because it makes me feel a little weak and kind of light headed. Every time i went to the ER they told me I had sinus tachycardia and nothing was done other than suggesting I take beta blockers. I don't want to be on medicine I'm only 22 (i'll be 23 soon). It scares me at times because I don't know the root cause of it. But I can say that every time i get tachycardia, when I lay down it helps get my heart back to normal. I think it's adrenaline rushing through my veins even though I don't feel stressed at all. Also, along with that I've been having trouble just staying asleep, I'd go to bed at 10, and wake up at 2, and i couldn't fall back asleep until 9 or 10am the next morning.
Everything you just said is me. Although my resting heart rate will be in the 80s to 90s and when I get up itll go up 115 to 120. I’ve also had a few E R visits this year because My heart rate would be at 157. I wore a heart monitor for a week and all the doctors I’ve seen have been “nothing wrong, just take it easy” it’s very frustrating! And I keep paying so much money for them to tell me. There’s nothing wrong
Hi I’ve been dealing with this for ten years since I was 25 myself,I was a gym goer daily for 8 years before hand then bam out the blue this started,heart jumps just moving around or moving in bed from 80-150 just like that,I’ve seen over 12 cardiologists Over the years every test they just say episode of tachycardia which they have seen jump when having tests,used to get ectopics and superventrical ectopics but I also get a lot of pains ect but they say it’s noting as they do,I’ve tried different drugs propanolol ect over the years and I tried ibravadine over Christmas just gone,seemed to help resting heart rate and the jumping but not discomfort,just beginning to think I just have to live with it,it’s made life so hard the last ten years with work as I’m a tradesman,keep going it’s just a knew way of trying to live your life and deal with it at the same time and also getting people to understand👍🏻
Omg i feel so bad for you because i feel your pain. I’ve gone to the ER and seen my doctors, had a heart monitor for a week and according to all doctors there’s nothing wrong but I don’t feel good at all. I’m 34 and I really don’t want to keep feeling this way. It’s frustrating, it angers me and it depresses me. I get what you get too. While I’m laying down steady my hear rate is in the 80s to 90s and when I move it’ll jump to 110 or 120. Even just getting up to pee raises my heart rate.
😭 sorry for you , I also suffer from IST , but my heart rate is over the roof , sometimes my resting heart rate 180 -200 , I tried on Ivabradine for sometime , but I have hallucinations most times so I stoped , I feel fatigued all the time and my metabolism rate is very high too , I'm not taking any medication now , I do tai chi , yoga and some breathing pattern treatments , still it's very hard 👍🏽 hope you all have the endurance to handle the pain
Chris I understand perfectly what you are going through , It could be scary when you find out and makes you think something is wrong with your heart but it is not, just a rythm issue that will let you live your life normal. Once you get your meds you will even forget you have it, sometimes I forget to take my propanolol or I take coffee and it raises but once you get the correct measure of the medicine your doctor prescribes you will be awesome. Probably next year you will be living and travelling a lot. Send you a big hug.
@@chrisparkinson7533 Sorry to hear that . Cardiologist just started me on Metoprolol for high heart rate . Had none of this until I caught Covid back in December . Covid has left me with high heart rate . Since taking Metoprolol I noticed I was very depressed yesterday and extremely tired . Only 3 days on it now so still eye balling whatever side effects .
I’ve been going through this for the past month every test comes back normal. Now I’m waiting on my Holter monitor results but they do think its IST. I’ve passed out briefly twice. It’s very scary not to be able to take a walk and do normal every things. Right now I take propranolol 5mg 3 times a day. I pray that I can get back to being active again. I am grateful that my heart is technically “normal” but it’s frustrating. I was sick a week prior to all of this and got better a few days prior. Praying for all of you
going through very similar stuff, but I'm elderly. Have been hospitalized and tested for all kinds of stuff, got same diagnosis sinus tachycardia, BP goes from very low to very high. since looking online for information there are a lot of people having vertigo - dizzy spells and no one has gotten help that I've spoken to. No one. Syncope comes on fest, drop to floor or ground, back to normal within 6 minutes. Bizarre. Good luck to you, great presentation.
Your video came up because I’ve been having similar symptoms. I’m 34 and my heart rate usually goes up to 110 sometimes 120 just getting out of bed to pee or brush teeth. It’s not as extreme as yours but more often than not it’s over 100. When I resting it’ll drop to 70s to 90s then when I turn over it’ll go up over 100. I sometimes feel lightheaded and too much walking is a no no. I get winded too quickly. I’m scared because that’s your heart we’re taking about. I’m going to see my doctor next week and we will see
Thank you for this video. I have had something wrong with me for 14 years and it was dismissed as mental health even though it took me a long time to start believing maybe they were right. That's when I gave up and just believed it was all in my head. Looking back over my Fitbit heart graphs made me realise something was really wrong and my symptoms are not in my head. Thankfully, a new younger dr started at the surgery and I was able to see him and show him my graphs and he took me seriously. I now have an urgent referral to see a cardiologist which I think is sadly funny because it was never urgent before. I am so mad to have been gaslit all these years and I eventually just started to believe that it must be in my head because no one would believe me. This video was really helpful. I wish more people talked about this condition on UA-cam. It's one that my dr said I could have. I may also have POTS. I just don't want to suffer anymore with all of this. I need answers and I want all those years back :(
Was just diagnosed with this as well. Been struggling for near a year - Before I had been sick and I'm not sure if it was that or the antibiotics that caused it or if it's all just coincidence. Either way, it's felt like my entire life has been put into upheaval. Massively depressing. Hope the medication is causing some degree of reprieve for you. Thanks for sharing your experience.
Hey Daniel. Sorry youve been struggling with this too. What are your symptoms? I was ok for a few days last week but now i am struggling hard. Feel so weak all the time and really fatigued. Hr when waking up goes from 70 to 110/115 when i get out of bed, but then quickly settles down to 80ish. Maybe i need to up the dose of Ivabradine. Seeing my cardiologist on the 20th. I hate that there is so little information on this. We should make a chat group? Maybe able to help eachother
@@chrisparkinson7533 Yeah - about the same. I'll sometimes have a good morning and then it'll hit sometime early afternoon out of nowhere - like a panic attack but with no panic or anything. Just heartrate shoots up and feeling pretty winded. And then it goes on the whole day generally. Even if I lay down and try and zen-out for hours ill still be in the 80s-90s. Makes sleeping a nightmare. The medicines as well as sleepaids will make me feel sluggish, but everything else persists anyways. Really taking a toll on relationships and work - it gets hard to focus or get things done. Cardiologist suggested trying to up my exercise (was previously very active) which I've been doing, but at a fraction of what I was doing before. I'll get overwhelmed just doing some light weightlifting. Sometimes I can push through the spikes, but when the breathlessness gets super bad I've got to park it. A few occasions I've felt faint, so trying to stay cool. Get some good sleep every 3 days or so after rough nights and I find those are the mornings I feel best, so it sort of feels like a bit of a catch-22 where the symptoms themselves are making the condition worse. Definitely takes a toll on the mental health between the exhaustion and the life changes. Anyway! Yeah a group chat sounds great - would be nice to hear what's working for others.
I'm suffering from the same problem, off work, can't even walk. Hope yours is resolved and would love to listen to your recovery experience and apply the same.
20 y/o - been dealing with ist that started after i caught covid back in 2020 , been on metoprolol for 2 years , scared to workout , work, go anywhere really & especially scared to catch covid again. i still get heart palpitations a few times a month & the only way for me to get rid of them is to sleep. any time i do anything like move around the house or something my heart rate starts zooming & more often than not i get a feeling in my chest like my heart flipped over or something. obviously sitting around all the time will cause even more complications but i feel like i don't really have a choice (mainly because i'm scared that my heart is just gonna suddenly explode)
I am having same symptoms.... everybody telling me i am anxious person that's why this happening with me.but i know m not that much anxious. I am unable to walk for long time, or doing any physical activity for long time. Today i am lying with same dizziness. Doctor has given me ciplar la 20 and beta anxit 20 and it has been 2 months now and m still not good
I just went to the hospital a couple days ago with the same symptoms and it was very scary especially when your a 15 year old that's healthy one day and and the next you feel like your hearts gonna jump out your chest or your gonna have a heart attack. Its depressing cause i wanna see my friends but i'm to tired and light headed to hang out with them. hope your doing better tho.
What is the difference between IST and POTS? My cardiologists diagnosed me with POTS. I have all the same symptoms, except my resting will be between 65-80 bpm. On a bad day the resting will be 125 bpm or lower. On a really bad day my heart rate will go to 200’s just sitting. You sound exactly like me! This has been going on since August 2020. I got Covid in March 2020. Beta blockers didn’t help me. Ivabradine had been great. I’m on 5 mg 2X daily. I may actually go up to 7.5 mg. It really helps the shortness of breath and lowering the heart rate. My muscle fatigue and brain fog are better. I’m also being treated for MCAS. High dose antihistamines, Singulair and Xolair injections also brought my heart rate way down. The Ivabradine was started after the allergy meds to help lower it even more. I still get random spikes, but so far it’s not all day long. Good luck and keep us posted!!!
IST symptoms are not relieved by sitting or laying down, where as people with POTS generally feel better sitting or laying, rather than standing. I hope you get some answers and keep getting better!
I have this for 15 months. It has been so hard and challenging. I've had to fight for help they keep telling me go look after your physical aspect of your high heart rate so I got a second opinion and they sent me to London for more autonomic testing. They keep saying the importance of exercise bit its hard . Hope you find a way too live better . I definitely hate the vertigo x
Thank you for your comment. Yeah me too, it's been a huge struggle. I have been diagnosed with HyperPOTS in Dec, and since being on Propranolol I've been feeling a little better. How are you going?
@@chrisparkinson7533 I think I commented on 1 of you're videos that you might have hyper pots 🙈 that's hard too . What part of the world are you in. Do you get enough help??
@@chrisparkinson7533 I'm from ireland which are absolutely useless for this condition... I've started swimming and doing physio but it's still hard . How are you doing now
@@siobhancunningham2923 oh nice. Yeah I've been ok lately. Better than before at least. We have a group chat here If you want to join discord.gg/ZghhNqrg
Hello I just saw your video last night and I stumbled upon this video because I was diagnosed yesterday with Inappropriate Sinust tachycardia And it made me feel some comfort to come across your video because I have always been a very active person and this is so debilitating that oh debilitating that right now I feel as if my heart is working against me against me. It it is like my heart is over working over everything and and even little Simple things that should be relaxing are not and this is certainly not a quality of life right now right now and I was hoping that my doctor would give me a solution but there's a process to go through so I'm on a pill called metoprolol And they had me wear a 3 day heart monitor at 1st and I had to Be persistent because the 3 day heart monitor didn't pick up anything so they gave me a 30 day heart monitor and when I spoke to my doctor yesterday for yesterday he was talking about the "on" events that were captured and I asked them how many there were and he said that there were so many that he couldn't even count them. This is very devastating
I'm 19 with ist. I hate how inconsistent it can be between people. For me even having my hr over 100 was terrible. It was even more excruciating when it hovered in the 120s through 180. Whats interesting to me was that your hr was generally high even when you were sleeping. My hr only goes high up when I'm waking up. I wanted to try ivabradine but like I said hr does get lower when I sleep. 50mg of metoporol succinate works ok though. I wish we could collect more data on this. Like this is something people can outgrow but I don't hear enough data about that. Or even any data about people having this condition for years
Same for me my age is 20 I have done ECG, Echo , thyroid test but all are normal.But my heart rate majority time above 100. If I walk little it will go up to 130-140.
I have been diagnosed with IST and possible pots a couple of months ago. Am having a 5 day monitor on Friday to rule out anything more sinister. Everything you say I can relate to, I'm only 30 myself and it not only physically but mentally has had an impact due to not being able to do what "normal" people my age can do.....and you can feel quite alone due to people not understanding how anything to do with your heart can physically make you feel so crap
Im sorry to hear you have been diagnosed too. It really is rubbish. Feeling like your body is letting you down. Also i hate cancelling on friends and family etc. Its definitely hard mentally & physically.
Im dealing with the same. Have another 7 day holter coming up. Been on Ivabradine for two weeks now. I was a active person working out 6 days a week only 4 months ago, now I can barely move with whatever is happening. Its so difficult. Beyond difficult its surreal.
I have been diagnosed with IST by electrophysiologist and he proposed me to go for RFA - catheter ablation. I got this since the first day of my 2nd dose cov vacc (coincident i guess) and its been 2 /12 months now. Before, i went to cardiologist they have done blood test, ECG, Echo & 24hr holter monitor but all went well, and then diagnosed me with anxiety which i dont think it was an anxiety at all. I was on Verapamil 80mg x 3 times a day (i have High BP and Asthma) and now on Ivabradine while waiting for next appointment for second opinion from another Electrophysiologist. I really feel so unfit now and it does effect my quality if life... and hoping that i dont need to go for Catheter Ablation.
@@user-iz1lh6ji6z Well more and more people are reporting this but they try to hide everything. It totally disrupt life and we don't even know how long it will last? If you work you can lose your job... I was never anti vaccine or anything like this...i had numerous previous vaccines without problem and now i have this pots...
I’m 32 and mine started in Dec 2019, I was pregnant and got a virus and then everything just went downhill. I’ve been on Propranolol for almost a year but it’s not helping a ton. I’m the same just a light walk not fast at all will make my heart rate jump to 120-140. I also get pretty dizzy, light headed and I hardly go out and do anything anymore.
Mine started with covid too by the end of 2020 and symptoms comes and goes since then, I’m feeling very miserable right now, had to quit my job due to being lightheaded and chest pain with fast heartbeat just by simple activities that I used to normally do for hours in the past 🥺 also got Peripheral artery disease in my legs while having covid 🥺🥺🥺I’m 28
oh, I am sorry to hear that. I hope you are getting well. Do you know what causes this? Is it because you have been working in ED, which is a stressful job?
Thank you! Yeah it’s a bit rough and has slowed me down a lot. I’m unsure, there is a lot of speculation as to what causes IST. Some people get it after getting Sick, other doctors believe it is a potential genetic condition or some Sinus Node abnormality ? It’s quite odd.
I am 18 and I have this problem IST, I have been dealing with it for over 10 months. Sometimes it feels like your heart is stoping for 1 second along breathing out like a gap in heart rate and starts again .it's really hard to live with it. No one seems to know about it, I have had all tests from CBC to ECG, all normal just with high rate like 120bpm. I think we have to live with it.
Thankfully I had an aggressive female cardiologist that once nothing was seen on an ekg, she slapped a 2 week holter monitor on me. Diagnosed right away with IST. My heart while asleep would go to 140 to 160. I woke wake up petrified. My iron was incredibly low as well, after 2 infusions of iron things slowed down a bit. I have metroprolol but i only take it on an as needed basis as I wanted my heart to try to regulate itself. I rarely take it. Now that I have been exercising more I notice its gets higher again so I have to figure that part of it out. I wonder the etiology of this. Damage? Infection perhaps? I also had vertigo and am sensitive to caffeine so I avoid it. It's annoying and I hope one day it heals for us all
Facing same issue... Doctors are not ready to put me on medicine as they pinpoint anxiety....bad left arm pain and seeing my dress move for the rhythm of my heart... Uff scary ☹ doctors are pointing it as postpartum, anxiety.. How do I tell them I am neither anxious nor I have postpartum difficulties 😒 everyday is nightmare
I am sorry you are dealing with this too. You must be stern with them. I have had to explain i am not anxious, however the symptoms can cause me anxiety. I hope you find some relief and are able to get some help
@@chrisparkinson7533 symptoms do cause me anxiety... The moment I check my pulse it will go to 140 😣 meeting another cardio today... Hope will get some help this time 🙁
@@gayathrivethakkan7870 good luck. I am seeing my cardiologist Wednesday. I may have some other issues. My blood pressure rises a lot on standing. 130/80 sitting to 160/105 standing. Very scary.
Thanks for this vid. It's incredible how much I can relate to this, exactly the same symptoms, visits to the hospital, bad reaction to meds, etc. The only difference is that I didn't want to accept it, so I didn't took the Ivabradine the doctor told me to take. It's been 3 years now since my first symptoms started and they have only got worse. So if there's a way to let me know how are you doing with the Ivabradine please let me know! Hope you are doing much better dude
That is crazy, same thing thats happening to me. The highest heart rate was 160 from just walking 4 min. And on stress test my hear rate went up to 183 and stopped at 6:30 minutes in to it. Ecg, echo and blood work normal. If i walk to the toilet HR shoots up to 130. Went to see psychologist and she flat out said "she doesn't believe it anxity". Cardiologist and doc seem to dismiss me at this point.
I have inappropriate sinus tachycardia. Been taken beta blockers Bisoprolol for 6 years but its not working anymore tk control the tachycardia and I can only tolerate low dose due to already low BP. I started ivabradine meds 5 days ago and I'm struggling with it. Causing me chest pains but worse than that my hearts doing weird beats then I'm getting a dropping sensation as if my hearts suddenly flipped and dropped to my upper abdomim it happens again and again. Felt breathless on them too. Has anyone else had these side effects. It's so scary but so is the tachycardia it's so worrying as to what to do for the best. My sudden fast hear rate ruining my life ibhave panic attacks all the time now from fear of my heartbrate just spiking out of no where suddenly I'm scared everyday my heartbgojjg to explode or ill pass out everyday I feel like I'm going to die. I'm frightened to be on my own now
@@chrisparkinson7533 5mg twice a say and still taking 1.25mg Bisoprolol. Can't work anymore as I'm constantly in panic mode waiting for the tachycardia to happen any minute. I don't go anywhere anymore by myself because I'm afraid I'm going to have a bad tachycardia episode and die. I've had to rely on so many family members tk help me look after my daughter and me so I'm never alone. I have no quality of life just waiting always for next bad tachy tht I think is going to kill me irs should destroying.
@@chrisparkinson7533 I've had to stop the ivabradine ended up in a n e last night from severe chest pain. What are you taking now to control yours ? I'm at a loss of what to do I feel hopeless about it ever being under control enough to have any kind of life 😕
I am 26 years old, i was very athletic person with no heart problem, but i started using minoxidil for hair fall and it gave me permanent heart damage and hypertension problem, minoxidil ruined my life.
I just came out of hospital today for this exact thing. Been dealing with for months since I have had COVID Diagnosis: inappropriate sinus tachycardia. Put on metoprolol 50 mg twice daily. And referred to specialty hospital. Gonna be a slow long road. I’m 53 years old. I may have to ask about the med that you are on. Can’t get into specialty hospital until mid June though. I feel for you so much.
@@komodrabo1284 you're legend 💕 i have this problem too im only 18 and my doctor says that i need to stop playing football for 3 monthsIST is most common in women in their 30s. Symptoms can last for months or years.Feb 4, 2022 idk what's is that f*ck😭
I’m 22 years old and have frequent episodes of SVT. Whenever I eat food my heart rate goes up 95-100+ even at rest and 110-120 when I walk. Had countless ER visits with clean EKGs, blood work and scans.. idk what to do anymore :(
Look up pots, postural orthostatic tachycardia syndrome. I know people with this have heart rate jumping after eating. And all their tests come back normal. You need a tilt table test for this.
I have been having issues with the heart rate as well. Two times I went to ER and was given Adenosine to ‘restart’ the heart rate. Very scary. Cardiologist said it was PSVT. I have been on verapamil for the past 9 months. Mine started a few months after second dose of COVID vaccine. Three weeks after my third vaccine, I was in the ER again. Not sure whether it’s related to vaccine or not 🙁
I do have same problems since 14 yrs ... My resting HR is 112 BPM..BP around 150/110.i don't have much symptoms except pounding heart and some shortness on exertion...tried metoprolol 25 mg and losartan 50 mg..but it's not improving my HR and BP...don't know what to do ..it's so depressing..have my heart checked but no diagnosis made.. doctor said it's due to anxiety..but it's not..don't know what to do...I know how u feel..
I tried but wasn't helpful...as my BP is also high..so I m under metoprolol 25 mg n losartan 50 mg ..but it still not working..it's very difficult to work with such conditions..
40 mg propranolol not helpful... So switched to metoprolol and losartan still my resting HR is 110 BP 150/110..Any ideas what to do next I m anxious to go for check up as my HR and BP would increase seeing physician..
I was diagnosed with IST around June Had symptoms since 2020 of September but no doctors would believe me lol I’m currently on metoprolol 12.5 mg Cause 25 mg drops my bp too much My resting is usually between 70-90 with 12.5 mg :)) Is it normal to also get stomach problems along with ur heart problems? My Gerd happened at the same time as IST
@@syedaislam941 POTS isnt diagnosed via a drop in blood pressure. Infact there should be no change in blood pressure. It is diagnosed via an increase of 30bpm upon standing, and potential symptoms e.g palpitations, fatigue, dizziness, orthostatic intolerance
Pray your doing well. I have IST heart arrhythmia that developed after I had covid pneumonia and has not gotten better in over a year. Weve tried all the beta blockers and midodrine and finally my Dr sent over ivabradine, but it is in process of getting approval from my insurance company... Dr will have to fill out preauthorization. I am planning on filling appeal if they dont approve it. Was it hard for you to get insurance coverage for this medicine? My Dr told me they dont like to approve it if you don't have heart failure..As well has it helped with your symptoms and what do you think about side effects... thanks so much. New subscriber.😊
Thank you, i am sorry you are going through this. Here in Australia we dont need insurance approval etc we just get a script & then go to the chemist and collect it. Are you in America? Ivabradine has helped quite a bit.
@@chrisparkinson7533 Thank you, Yes I am in America. My doctor told me the insurance companies here dont like to approve it so I'm hoping with my doctors help they will. That's really awesome you can just get medicine like that in Australia. I wish it were more like that here! I've heard such good things about this medication so definitely hoping to get it! We call it a pharmacy here, I like the word Chemist.
@@amylouava5134 fingers crossed you can get it! They are called pharmacy here too, but my dad is english so I must have picked up his slang. You could possibly have POTS as well, I have heard a lot of people can develop that after COVID.
@@chrisparkinson7533 oh okay I like it called chemist! Yes my Dr gave me meds for pots but it caused my BP to go too high. I've been through so many tests and going to do a MRI imaging test to see if there's any damage to the heart. Thank you for the advice and concern! Alot of people in America dont realize it's causing things like this to happen and just think it's a common cold still.
Same problem started happening with me in last 7days....have visited top 10 cardiologist doctor they are all saying anxiety and depression.... Butthere no any axiety...
How are you getting on now? Have you had any more episodes of the eptopics? I've been having episodes where they come in runs, don't know whether it's related to my IST or something else
Eh i seem to have good and bad days. Frustrating actually. I was able to go to work and be with patients on my feet for two days last week but since then ive been feeling rubbish. Anxiety, caffeine etc all cause ectopics for me. Have you cut out caffeine? Are you on any medications?
Have your check your thyroid? Any immunological disease? I have grave’s decease I was trying to found out for 1 year what’s it’s causing my palpitations that was the reason why probably is not your case just want to yo let you know
After covid mybhearts started fluttering or sensation of skipping beats then thump, what felt like a louder beat or thump to catch up. It happens all the time and when it happens it feels for one second I can’t breathe, these fluttering or skip beats happen all the time. I’m also super dizzy and foggy with headache. Then out of the blue I had vertigo one day for first time where whole room started spinning (nausea happened same time) I always felt dizzy but never had vertigo. I got holter monitor and found St T Wave abnormality And 24 hr holter monitor now found I have Sinus Tachycardia 120bpm. This was with rest. I rested in bed whole time of test. My heart did s9me skipping but not as bad as it was once came off( I hate that it never shows up when needed) Now I’m exhausted when I walk, or can’t climb stairs, I’m so breathless. Hang in there mate,
@@codiannsmith Unfortunately, I have IgG4 Related Disease and c-anca positive so maybe vasculitis. Not long to live I suppose. Hope you have better luck and better health.
I'm dealing with this after the covid vaccine. It's like i got covid and suffering the long term effects... Looks bad to talk about any side effects with these vaccines as it's like being an anti vaxxer or a nut.
@@chrisparkinson7533 Yes before this problem i was exercising a lot...now i can't and need to take medications to try to block this high heart rate. A doctor told me he had some patients too who developped Pots or chronic fatigue syndrome after the vaccine. My opinion is to tell anybody who has pots,ist or chronic fatigue syndrome to not do the vaccine...unless you have others health conditions putting you at risk for covid,don't do the vaccine if you can avoid it...this vaccine can make your condition way worst.
@@user-iz1lh6ji6z Yes thank you...actually let's bring some optmism beause normally it will settle this problem..for some it's quick...for others many months. What my cardiologist explained to me..the right path is to do gentle exercise like walking...if starting too fast..too harsh..the condition will not improve. Some supplements also exist to try to get back faster like vitamin d..b1..b9..c..magnesium. In my case i learned i got covid not long before the vaccine without real symptoms. Doing the antibodies test showed this. So taking the vaccine just after having covid will mess even more the immune system and you end up with pots for sure. They still push people to get vaccinated even if you have already natural immunity...very very bad.
@@user-iz1lh6ji6z Thanks i will check it..how is it going for you now after the vaccine? Long covid is recognized but people who get sick after the vaccine it's very hard to make it official. I continue to progress..it's a slow road..i can walk longer..still tired,hard to eat normally without the nausea.
I've been on Ivabradine for 2 weeks now and starting to feel better effects now. Had to up dosage to 2.5 plus 1/2 of a pill twice a day. I'm still having spikes though. The first week was really tough and was in ED many times cuz still having high spikes on it. Also it seems to wear off before its time to take the other dose. So around 10 or 11 hours instead of twelve. How long after your first dose do you take your second? Plus I have a big problem with waking up to heart rates up to 190. I can't seem to control that cuz meds wear off by the time I wake. Don't know if you're having any similar problems on it. Hope you're doing well
I am taking 3.25mg morning and 2.5mg night. Definitely wears off early, so if i take my morning around 0800, i make sure to take my night around 1700/1800. So far so good but still fatigue etc
@@chrisparkinson7533 okay. I just came from ED again. Have you had any heart rate spikes on it.? My hr went up to 180 again on it while trying to do yoga and then stayed up high for an hour then spiked again. I don’t know if this means the meds aren’t working or they just don’t stop Hr rate spikes. I’ve been taking them 12 hours apart but I might need to take them sooner. Usually take fort dose at 7 and second at 7Pm but it gets bad around 6 and sometimes 5. But the above happened today only 4 hours after I took it, so thats bery troubling to me. Very worried
@@012roro How much are you taking in mg? You may need to speak to your cardiologist and up the dosage depending on your resting heart rate. How do you measure your heart rate at these times it spikes? Your heart rate should increase with exercise.
@@chrisparkinson7533 right now im taking 2.5 mg plus 1/2 of 2.5mg twice a day. I'm currently doing another holtor monitor because of high heart rate spikes still happening on meds lasting 20 minutes and resting heart rate still high on meds most of the time. After the holter he might either up the dose by 1/2 so that im taking 5mg twice a day, or he wants to start me on clonidine but they affects blood pressure so I don't know. I don't know how ivabradine isn't keeping my heart rate low, even after increasing the dose. So I don't know... It's pretty scary. Woke. up in middle of night last night with heart rate at 170 and it took 20 minutes for it slowly to go down to 110 at rest. I had taken the second does like at around 7pm. In A&E again but of course they offer nothing.
I have pots as well. My heart rate shoots up when I stand. My blood pressure goes up as well. I have corlanor aka ivabradine. But I haven’t took it yet. Does it really help the standing heart rate?
@@individua6603 what’s your standing heart rate on propanol and how many milligrams a day? Also are you only taking propranolol or that added with another medication
I was just diagnosed with this and the propranolol makes me feel super crappy too. I need to ask about the other medication and the sinus node sparing hybrid ablation. They put me on 20 mg three times a day but I feel like that is way too much and why I feel so bad now even when the HR is under control. Prior to medication resting HR around 100, always around 120 walking and could randomly hit 160s-180s even while lying in bed falling asleep, which then became impossible until it calmed back down. In the hospital nurses found it in the 140s while I was sound asleep. It’s been pretty rough. I hope to manage it better soon now that it’s diagnosed. It took three hospital visits including 2 admissions before they got an electrophysiologist involved to finally get the answer. Advice I found is more hydration, higher sodium, compression socks and smaller, more frequent meals. Anyone have any other tips?
Hey! Ivabradine made me feel horrible. Turns out I have HyperPOTS (Similar but with BP rising dramatically on standing). Propranolol has helped me immensely, but I'm on a low dose (10mg 2 x daily). Yeah I drink lots of electrolytes (2 x LMNT Daily), so 2L electrolytes, 1L water. Eat small meals frequently (around 2-3hourly) with less carbs, which has helped too
Took three years to get my diagnosis- on after I flipped out I was referred to a md who specializes in it and has IST to been on propanol and Zoloft (as I have depression)it works kind of the fatigue is so bad and I’m over the sweating only way to describe it is intense fight or flight mode
@@chrisparkinson7533 no, right after my miscarriage with a d&c in 2018 I started having these tachycardia issues. I believe it's all connected but my doctors can't seem to find out why I'm having these issues. I'm scared and feel as if I'm not getting any help. Kind of makes me feel like what are doctors here for if they can't figure out why I'm having this issue. I'm just frustrated surely i know we need doctors but this condition frightens me.
@@keylimepie8426 Absolutely. On top of the IST, I have been struggling with my balance and dysequilibrium for 6 months with no answers yet. I have had to stop working and it's definitely impacting my life.
@@chrisparkinson7533 upon standing (sometimes) not all the time, I get dizzy and feel like I will pass out if I don't stand in place for a few seconds. Quite scary!
Sorry you are going through this, i dont know what to say. I had a question why it didnt get picked up the first time you had tests done on your heart? Sorry for the stupid question
Thanks Renee. I appreciate it. No stupid questions, only stupid answers :). IST is a bit strange because on an ECG it shows up as normal sinus rhythm just fast (tachycardia). So my heart is in the correct rhythm & the chambers are pumping at the correct time, just too fast & too much in response to small things.
@@chrisparkinson7533 Haha - Oh i think i understand, i thought it would still show up with the chambers ( im not in medical lol ) - is this a common thing? Because it slightly reminds me of what/how they found i had a hole in the heart ( pretty sure its totally different to IST though but idk! lol )
@@reneeo Yeah sort of. So an ECG measures the electrical activity in your heart. So my heart pumps with a normal rhythm, but it is way too fast & gets too fast from small things. What happened with the hole in your heart? Are you ok now?
Bro i really feel what you mean i have the same exact symptoms and my heart rate goes crazy with any little movement or exercise and I’m only 22 years old at the beginning it was really scary and the doctors keep telling me that everything is okay (which I feel is not) and ecg shows that i got sinus arrhythmia + sinus tachycardia I just want to know how are you doing right now cause I’m still waiting for my holter monitor results and if the medication help? Hope you doing great good luck bro
Hey Waseem. Thanks for the comment. I really should make an update video. I have ceased the Ivabradine and am now on propranolol,.which has helped tremendously, however I have some residual symptoms still. Its really trial and error with medications. Keep me updated how you go!!
Low potassium causes tachycardia I had low potassium issue last year when i got 1st covid vaccine shot i got this condition now i am on 40 mg propranolol and i also have sleeping problem cause of this racing heart
The thing with the hr being high it at times elevates your b/p. But then the medication beta blockers can drop your b/p too low. I just can’t wait to be better. How are you doing now?
I need to make my bed, for 2 days I planned to, simple things I use to do without thinking twice I also have another medical issue, life is so difficult now
does your heart pound hard and feel like you need to sit down so your heart will calm down and so you can breathe better when you haven't taken your meds in a while i have IST also
Which specialist ultimately diagnosed with this? Same exact thing here, all the way up to the hands locking/looking like they were cramping up. Tingly feeling in extremities, starting to black out because of palpitations. I am going to see a cardiologist in a week for stress test, monitor and echo. I know you said you did the same but was cardiologist the one to dx: you? Thank you for the video
Hey! No worries. How did all this start for you? My inital cardiologist was not great, but my second carsiologist diagnosed me on the spot & helped change my medications.
@@chrisparkinson7533 I used to wake up with Adderoll for the morning chug energy drinks during the day, and I was driving on the highway and hands and feet started tingling then lost feeling and started dieting up, very scary on the side of the highway, alone. Felt like I was dying. I’m going for join discord.
Does it go away? I have a normal resting heart of 70 to 80 but 3 4 times a week my heart rate shoots up to 125 130 doing nothing. Doctor has said most likely ist after all tests are negative. Iv decided to try and handle the symptoms on my own. Does it worse?
All. Please read Brain Saver by Anthony William chapter 38, page 384 on POTS. Then try a few of the autoimmune disorders therapies/supplements in his other book Brain Saver Protocols. Honoring the light in you with the light in me.
I have suffered for 2.5 years thinking it's only sinus trachycardia now 5 months before I got to know its pots, after medication I m doing good, I also used same medicine
@@prathamrballal1229 great. Have you had any other medication? My blood pressure doesn’t drop, so can’t be pots. But do get vertigo etc sometimes & weakness, fatigue
In pots bp won't drop only hr will increase up to 30 beats from resting rate, that is the first sign, fatigue tremors nausea maigraine light sound sensitivity digestive issue shortness of breathe list will go on, every day symptoms will change and no cure for this disease, people end up with heart failure or kidney daialisys by the end.
@@prathamrballal1229 people with POTS usually develop hypotension with standing and cannot stand long. That is a main symptom. With POTS, Symptoms go away with sitting or standing. Mine do not so cannot have pots. Either way, not good.
I know ive left a comment i quit 5 day alachol binge no eating and experienced tgis for 6 days standing up the pulse goes up and down fast along side high blood pressure it is indeed frightening. 8 days aint touched alachol had to have 3 ecg tests and 3 blood tests they confirmed quit drinking it is absolutely toxic for the cardiac system
Hello I'm dealing with this crap to im struggling alot .. had halter and echo haven't heard back but when I did halter it was a day it didn't happen so guess that won't work
@@chrisparkinson7533 frustrated but I also no that the cause of this for me has a big likely hood from getting breast implants... they are getting removed in jan ... its called breast implant illness... sooo many women around there world are suffering immensely from tachycardia after implants..... along with a laundry list of problems ... I dont no how you deal with this ay ...my heart rate goes up 110 from 70 or 80 just by standing... I'm curios if its even safe to let it go up and get on with your day despite the struggle or should we seriously just stay seated all day 😔
@@evo2815 Its frustrating isnt it? Ive had this since early Febraury this year. Ive taken all this time off of work, with not much to show for it in the way of answers. My resting heart rate was 100ish until I started this medication. Its very hard to deal with. Sadenning is an understatement. It is affecting everything, my work, my relationship etc, as going out is not easy. It probably is safe, but the symptoms that acompany it arent pleasant.
@@chrisparkinson7533I'm really sorry your struggling this isn't the way of life 😔 do you go out at all do anything outside the house?? So far I haven't been gain enough to try ...have you tried to change your diet like gluten and dairy free to slow down bodies inflammation??
@@evo2815 Haha what havent I tried! I can go out most days, but seem to struggle with long days or being out for a long time. I have IBS as well so I alreadt eat gluten & dairy free, so not sure if thats helping or not so far. Lots of hydration seems to be good, and apparently exercise but that is super hard at the moment. How are you going with it all? What does a typical day look like for you?
Does ivabradine help lower Heart rate Better than beta blockers I was put on metroplolol and and bunch of other beta blockers all gives me terrible insomnia and btw did you get a week of holtor monitor test because I also live in Australia they only have one night of holtor monitor I’m asking around all medical centres none of them have holtor monitor test more than 24 hours
Hi, Yes both medications work to lower HR. Ivabradine generally has a stronger effect than most BBs, but it is also personal.. Yes I got one week, well 8 days, monitor. This was from a cardiologist
I have the same thing , at rest I’m okay but soon as I get up I get out of breath and chest pressure . Starting a new medication first one hopefully it gets better ..
@@StrongMommyBellz i tried atenolol, 25mg daily. It did lower my HR, and blood pressure, but only HR a little, and felt quite spaced out on it, even after a few weeks. I am on Ivabradine now.
Same here I am depressed bro I am covid positive in April .. sometimes I feel my heart is stop but my pulse is running normal ... I feel my heart rhythm is abnormal But I check my ECG report all report are same All doctors says this is sinus tachycardia I am exercise mild but my heart rate is very high like 200 😭 This problem is come from covid
Hey all! Ive created a group discord chat for everyone to discuss their symptoms or just to chat
discord.gg/VFJpDRXt
It says the link is expired
@@dy939 Try This
discord.gg/YcqQeDwpFW
@@chrisparkinson7533 Thx!
What’s the new link?
@@juansoto2879 discord.gg/YcqQeDwpFW
I am Brazilian and have for years the same symptoms. I'm so tired of doctors sending me to psychiatrists, even though I've had 5 heart attack principle because of the speed that reaches my heart.
All electrocardiograms indicate sinus tachycardia, but no doctor can figure out what starts this tachycardia. So, even though I'm tired, I'll go back to the doctors and ask about the possibility of Inappropriate Sinus Tachycardia. Thank you so much for this video!
Hey man I’ve been dealing with this since 2011 after blunt chest trauma to my chest by a baseball. It actually went away from 2014-2019 and has recently returned. No one seems to know why it’s happening but it’s something that I’ve had to learn how to live with. I hope you find a system that works for you and you can get on with normal daily activities even if moderate. 🙏🏽 I’m working on finding my balance as well.
Hello sir , can you tell me how's your health now ?
I've been having these same symptoms for 3 months. It'a terrifying and so hard no to be able to exercise like I used to or simply walk to the store or cook food. They're still doing tests for me and have yet to give me medication. It's really psychologically tough, sitting in the house when I'm used to being so active, at 31 years old. Depressing really. This started suddenly for me too after I felt sick for a few days back in may. Heart rate shoots up to as high as 195 at rest, and up to 180 while standing up and walking around. 170 just slowly going up stairs. Terrible. Have no idea how to live this way, and seriously afraid my heart will stop or a heart attack. Anyway, thanks for posting this to know someone is going through something similar.
100% it is scary. And very hard psychologically not being able to do simple things. Have you had many tests done? Are you seeing a cardiologist?
@@chrisparkinson7533 I've had so many tests. Holter monitors, ECGS, non-contrast MRI of brain, contrast MRI of heart, echo, tilt-table test, autonomic testing, and endocrinology blood tests & abdominal MRI to look for pheocrhomocytoma, and blood tests in ED, 24 urine test to check methanephrines and catcholamines. All have come back normal, except the positive tilt-table and have yet to get autonomic test results back as well as methaneprhines. After countless useless trips to ED, I'm currently seeing a cardiologist plus an endocrinologist, and an autonomic specialist. They're all basically saying the same thing, IST and POTS. Blood pressure seems to shoot up too according to tests. Autonomic specialist and cardiologist say it is most likely "post viral autonomic dysfunction in the form of IST and POTS". Crazy because I wasn't that sick in May, I just didn't feel to good and it progressed into this. I felt vertigo at first too, with dizziness. 3 months later I still have no meds, and it changes from hour to hour, and day to day. HR today was randomly in the 40s and 50s at rest (my normal before all this was 65 bpm at rest). Then today in was also in the 130s are rest just an hour later. They're thinking of putting me on propranolol first and see how I do, and then maybe try Iverbadine. Same with you they told me anxiety at first and but me on anxiety meds which just made it all worse. It's a completely surreal experience. Feel like I'm never gonna get back in the gym, or run again. BRUTAL. Trying to stay mentally sane through all this and believe there's hope for the future but I don't know. All this started right in the middle of my Phd draft submission so its been very stressful. I still have my oral examination viva to complete in 2 weeks with all this going on, no concrete diagnosis or meds, so its a lot. Anyway, how are you finding the Iverbadine? Have any doctors told you that this may stop one day, or if it's for life? I hoping there's hope one day I'll be back to normal and not need meds for the rest of my life.
@@012roro that’s so strange, I had all the same tests too. Pheochromocytoma, metanephrines, brain MRI. It’s horrible but it is comforting knowing someone else is going through something similar? Sorry we are both in this position. Yeah I don’t remember having a virus before this but hey, here we are. Yeah no concrete diagnosis either, just a diagnosis of exclusion. Ivebradine I started yesterday and so far so good. Much better sleep as well, I used to wake up all night and never feel rested. I’m lucky my uni work is online, but I have had this time off of my job as well.
@@chrisparkinson7533 I started Ivabradine today as the beta blockers didn't work. Im starting with half of 2.5mg just because im afraid of the side effects. Have you had any adverse or frightening side effects so far? Anyway, I hope you're improving. My symptoms have gotten worse, with HR 195+ both standing and at rest with many episodes in one hour. So yeah, I really hope ivabradine is safe and it works so I can get at least some of my life back.
@@KiKi-ye1to hi! Sorry to hear you are struggling. I take 2.5mg twice daily. Only side effects were a bit tired/lightheaded but that has gone over a week, just getting used to the medication. Has helped me a lot with HR.
Everything you have described in this video fits me to a tee, I’ve had a couple emergency room visits and everything always comes back normal (obviously aside from the ridiculously high heart rate) and keep in mind I’m 23 myself, so they always brush me off as anxiety riddled and what not when I’m not an anxious person myself. I’ve done ECG’s, EKG and a stress test and when I heard the cardiologist talking to a nurse or whom ever while checking my test I heard him saying stuff about sinus tachycardia which I already knew I had for a long while. My doctor has brushed me off for a long time too until he finally saw the results of my stress test and had put me on buspirone which I don’t take at all because it makes me feel like shit and like I said I’m not a very anxious guy and he has also put me on metoprolol which I’ve found helps some days and some days it’s chaotic. I just recorded a video today with my Apple Watch on and I was laying in bed relaxing and my heart rate was at a steady 90-95 and then in the video I decided to stand up just so I can show my doctor that it jumps to 130 almost as soon as I stand up. Sorry for this very long message but I figure this video sounds exactly like me I would share my story and what I been going through. Hope you’re doing much better tho mate
I have the same exact problem, often my tachycardia comes out of no where and its really frustrating because it makes me feel a little weak and kind of light headed. Every time i went to the ER they told me I had sinus tachycardia and nothing was done other than suggesting I take beta blockers. I don't want to be on medicine I'm only 22 (i'll be 23 soon). It scares me at times because I don't know the root cause of it. But I can say that every time i get tachycardia, when I lay down it helps get my heart back to normal. I think it's adrenaline rushing through my veins even though I don't feel stressed at all. Also, along with that I've been having trouble just staying asleep, I'd go to bed at 10, and wake up at 2, and i couldn't fall back asleep until 9 or 10am the next morning.
Everything you just said is me. Although my resting heart rate will be in the 80s to 90s and when I get up itll go up 115 to 120. I’ve also had a few E R visits this year because My heart rate would be at 157. I wore a heart monitor for a week and all the doctors I’ve seen have been “nothing wrong, just take it easy” it’s very frustrating! And I keep paying so much money for them to tell me. There’s nothing wrong
Same problem I have aiden, almost identical. Does eating also increase your heart rate a lot?
@@ColdVsIce oh yeah certain foods I stay away from because they make my heart rate go way up and my anxiety levels for sure
@@trancefulI me too bud, I hope you feel better soon my friend.
Hi I’ve been dealing with this for ten years since I was 25 myself,I was a gym goer daily for 8 years before hand then bam out the blue this started,heart jumps just moving around or moving in bed from 80-150 just like that,I’ve seen over 12 cardiologists Over the years every test they just say episode of tachycardia which they have seen jump when having tests,used to get ectopics and superventrical ectopics but I also get a lot of pains ect but they say it’s noting as they do,I’ve tried different drugs propanolol ect over the years and I tried ibravadine over Christmas just gone,seemed to help resting heart rate and the jumping but not discomfort,just beginning to think I just have to live with it,it’s made life so hard the last ten years with work as I’m a tradesman,keep going it’s just a knew way of trying to live your life and deal with it at the same time and also getting people to understand👍🏻
Absolutely mate I agree. Really frustrating at times but I guess we need to learn to live with it
Did you try salt and fluids or fludrocortisone ?
Omg i feel so bad for you because i feel your pain. I’ve gone to the ER and seen my doctors, had a heart monitor for a week and according to all doctors there’s nothing wrong but I don’t feel good at all. I’m 34 and I really don’t want to keep feeling this way. It’s frustrating, it angers me and it depresses me. I get what you get too. While I’m laying down steady my hear rate is in the 80s to 90s and when I move it’ll jump to 110 or 120. Even just getting up to pee raises my heart rate.
@@reneem2954 I’ve noticed that when I drink Gatorade it helps a little
@@rodzalez3549 if heart rate goes from 80 at rest to 110 on standing , it may be POTS. Please search.
😭 sorry for you , I also suffer from IST , but my heart rate is over the roof , sometimes my resting heart rate 180 -200 , I tried on Ivabradine for sometime , but I have hallucinations most times so I stoped , I feel fatigued all the time and my metabolism rate is very high too , I'm not taking any medication now , I do tai chi , yoga and some breathing pattern treatments , still it's very hard 👍🏽 hope you all have the endurance to handle the pain
Did you checked your thyroid hormon?
Chris I understand perfectly what you are going through , It could be scary when you find out and makes you think something is wrong with your heart but it is not, just a rythm issue that will let you live your life normal. Once you get your meds you will even forget you have it, sometimes I forget to take my propanolol or I take coffee and it raises but once you get the correct measure of the medicine your doctor prescribes you will be awesome. Probably next year you will be living and travelling a lot. Send you a big hug.
Thank you so much! I hope so! Hope you are going okay as well!
Hi have you been feeling back to normal since on the medication ?
@@Myworldmymind908 not really
@@chrisparkinson7533 Sorry to hear that . Cardiologist just started me on Metoprolol for high heart rate . Had none of this until I caught Covid back in December . Covid has left me with high heart rate . Since taking Metoprolol I noticed I was very depressed yesterday and extremely tired . Only 3 days on it now so still eye balling whatever side effects .
@@Myworldmymind908 I’m sorry to hear that. Propranolol has helped me a lot. Maybe try that? Side effects can last 2-3 weeks from my understanding
I’ve been going through this for the past month every test comes back normal. Now I’m waiting on my Holter monitor results but they do think its IST. I’ve passed out briefly twice. It’s very scary not to be able to take a walk and do normal every things. Right now I take propranolol 5mg 3 times a day. I pray that I can get back to being active again. I am grateful that my heart is technically “normal” but it’s frustrating. I was sick a week prior to all of this and got better a few days prior. Praying for all of you
going through very similar stuff, but I'm elderly. Have been hospitalized and tested for all kinds of stuff, got same diagnosis sinus tachycardia, BP goes from very low to very high.
since looking online for information there are a lot of people having vertigo - dizzy spells and no one has gotten help that I've spoken to. No one. Syncope comes on fest, drop to floor or ground, back to normal within 6 minutes. Bizarre. Good luck to you, great presentation.
Your video came up because I’ve been having similar symptoms. I’m 34 and my heart rate usually goes up to 110 sometimes 120 just getting out of bed to pee or brush teeth. It’s not as extreme as yours but more often than not it’s over 100. When I resting it’ll drop to 70s to 90s then when I turn over it’ll go up over 100. I sometimes feel lightheaded and too much walking is a no no. I get winded too quickly. I’m scared because that’s your heart we’re taking about. I’m going to see my doctor next week and we will see
Goo Luck! Im sorry to hear youre going through this. I hope you get some answers..dont give up
Fo u have an update
This is exactly how my heart acts too. Same rates as yours.
@@codiannsmithsame here.
Thank you for this video. I have had something wrong with me for 14 years and it was dismissed as mental health even though it took me a long time to start believing maybe they were right. That's when I gave up and just believed it was all in my head. Looking back over my Fitbit heart graphs made me realise something was really wrong and my symptoms are not in my head. Thankfully, a new younger dr started at the surgery and I was able to see him and show him my graphs and he took me seriously. I now have an urgent referral to see a cardiologist which I think is sadly funny because it was never urgent before. I am so mad to have been gaslit all these years and I eventually just started to believe that it must be in my head because no one would believe me. This video was really helpful. I wish more people talked about this condition on UA-cam. It's one that my dr said I could have. I may also have POTS. I just don't want to suffer anymore with all of this. I need answers and I want all those years back :(
go for homeopathy treatment
Was just diagnosed with this as well. Been struggling for near a year - Before I had been sick and I'm not sure if it was that or the antibiotics that caused it or if it's all just coincidence. Either way, it's felt like my entire life has been put into upheaval. Massively depressing. Hope the medication is causing some degree of reprieve for you. Thanks for sharing your experience.
Hey Daniel. Sorry youve been struggling with this too. What are your symptoms? I was ok for a few days last week but now i am struggling hard. Feel so weak all the time and really fatigued. Hr when waking up goes from 70 to 110/115 when i get out of bed, but then quickly settles down to 80ish. Maybe i need to up the dose of Ivabradine. Seeing my cardiologist on the 20th. I hate that there is so little information on this. We should make a chat group? Maybe able to help eachother
@@chrisparkinson7533 Yeah - about the same. I'll sometimes have a good morning and then it'll hit sometime early afternoon out of nowhere - like a panic attack but with no panic or anything. Just heartrate shoots up and feeling pretty winded. And then it goes on the whole day generally. Even if I lay down and try and zen-out for hours ill still be in the 80s-90s. Makes sleeping a nightmare. The medicines as well as sleepaids will make me feel sluggish, but everything else persists anyways. Really taking a toll on relationships and work - it gets hard to focus or get things done. Cardiologist suggested trying to up my exercise (was previously very active) which I've been doing, but at a fraction of what I was doing before. I'll get overwhelmed just doing some light weightlifting. Sometimes I can push through the spikes, but when the breathlessness gets super bad I've got to park it. A few occasions I've felt faint, so trying to stay cool. Get some good sleep every 3 days or so after rough nights and I find those are the mornings I feel best, so it sort of feels like a bit of a catch-22 where the symptoms themselves are making the condition worse. Definitely takes a toll on the mental health between the exhaustion and the life changes.
Anyway! Yeah a group chat sounds great - would be nice to hear what's working for others.
@@danielfoerste Yeah absolutely. It's a rough time to go through alone. How would we organise it?
@@chrisparkinson7533 I'm not sure what people use now or what's the easiest leap from here. FB Groups?
Hi what type of antibiotics were you prescribed ?
I have IST too and ivabradine has been helping a lot!
I need to talk to my cardiologist about that
I'm suffering from the same problem, off work, can't even walk. Hope yours is resolved and would love to listen to your recovery experience and apply the same.
Please look up the medical medium. You’ll find all of your answers.
20 y/o - been dealing with ist that started after i caught covid back in 2020 , been on metoprolol for 2 years , scared to workout , work, go anywhere really & especially scared to catch covid again. i still get heart palpitations a few times a month & the only way for me to get rid of them is to sleep. any time i do anything like move around the house or something my heart rate starts zooming & more often than not i get a feeling in my chest like my heart flipped over or something. obviously sitting around all the time will cause even more complications but i feel like i don't really have a choice (mainly because i'm scared that my heart is just gonna suddenly explode)
Ask your doctor about fludrocortisone or midodrine along with metoprolol.
I am having same symptoms.... everybody telling me i am anxious person that's why this happening with me.but i know m not that much anxious. I am unable to walk for long time, or doing any physical activity for long time. Today i am lying with same dizziness. Doctor has given me ciplar la 20 and beta anxit 20 and it has been 2 months now and m still not good
@@samaira2289 take lots of salt and water with these meds if you don't have already high B. P.
@@reneem2954 okay... thanks for help
I just went to the hospital a couple days ago with the same symptoms and it was very scary especially when your a 15 year old that's healthy one day and and the next you feel like your hearts gonna jump out your chest or your gonna have a heart attack. Its depressing cause i wanna see my friends but i'm to tired and light headed to hang out with them. hope your doing better tho.
Thanks man. A little better but still debilitating. Hope you get some answers and help
@@chrisparkinson7533 thank you it's hard on me and my family so i hope i gets some answers and help to
What is the difference between IST and POTS? My cardiologists diagnosed me with POTS. I have all the same symptoms, except my resting will be between 65-80 bpm. On a bad day the resting will be 125 bpm or lower. On a really bad day my heart rate will go to 200’s just sitting. You sound exactly like me! This has been going on since August 2020. I got Covid in March 2020. Beta blockers didn’t help me. Ivabradine had been great. I’m on 5 mg 2X daily. I may actually go up to 7.5 mg. It really helps the shortness of breath and lowering the heart rate. My muscle fatigue and brain fog are better. I’m also being treated for MCAS. High dose antihistamines, Singulair and Xolair injections also brought my heart rate way down. The Ivabradine was started after the allergy meds to help lower it even more. I still get random spikes, but so far it’s not all day long. Good luck and keep us posted!!!
IST symptoms are not relieved by sitting or laying down, where as people with POTS generally feel better sitting or laying, rather than standing. I hope you get some answers and keep getting better!
@@chrisparkinson7533 thank you!
My case sounds similar to yours.
@@chrisparkinson7533 You could have IST and POTS. They commonly occur together
Sorry to hear that 😕😞 hope you get back to life 😭
Thank you!
I have this for 15 months. It has been so hard and challenging. I've had to fight for help they keep telling me go look after your physical aspect of your high heart rate so I got a second opinion and they sent me to London for more autonomic testing. They keep saying the importance of exercise bit its hard . Hope you find a way too live better . I definitely hate the vertigo x
Thank you for your comment. Yeah me too, it's been a huge struggle. I have been diagnosed with HyperPOTS in Dec, and since being on Propranolol I've been feeling a little better. How are you going?
@@chrisparkinson7533 I think I commented on 1 of you're videos that you might have hyper pots 🙈 that's hard too . What part of the world are you in. Do you get enough help??
@@siobhancunningham2923 No worries.. yeah you did! Have you been diagnosed ?
I'm in Australia, and you?
@@chrisparkinson7533 I'm from ireland which are absolutely useless for this condition... I've started swimming and doing physio but it's still hard . How are you doing now
@@siobhancunningham2923 oh nice. Yeah I've been ok lately. Better than before at least.
We have a group chat here If you want to join
discord.gg/ZghhNqrg
Hello I just saw your video last night and I stumbled upon this video because I was diagnosed yesterday with Inappropriate Sinust tachycardia And it made me feel some comfort to come across your video because I have always been a very active person and this is so debilitating that oh debilitating that right now I feel as if my heart is working against me against me. It it is like my heart is over working over everything and and even little Simple things that should be relaxing are not and this is certainly not a quality of life right now right now and I was hoping that my doctor would give me a solution but there's a process to go through so I'm on a pill called metoprolol And they had me wear a 3 day heart monitor at 1st and I had to Be persistent because the 3 day heart monitor didn't pick up anything so they gave me a 30 day heart monitor and when I spoke to my doctor yesterday for yesterday he was talking about the "on" events that were captured and I asked them how many there were and he said that there were so many that he couldn't even count them. This is very devastating
I'm 19 with ist. I hate how inconsistent it can be between people. For me even having my hr over 100 was terrible. It was even more excruciating when it hovered in the 120s through 180.
Whats interesting to me was that your hr was generally high even when you were sleeping. My hr only goes high up when I'm waking up.
I wanted to try ivabradine but like I said hr does get lower when I sleep. 50mg of metoporol succinate works ok though. I wish we could collect more data on this. Like this is something people can outgrow but I don't hear enough data about that. Or even any data about people having this condition for years
Same for me my age is 20 I have done ECG, Echo , thyroid test but all are normal.But my heart rate majority time above 100. If I walk little it will go up to 130-140.
I have been diagnosed with IST and possible pots a couple of months ago. Am having a 5 day monitor on Friday to rule out anything more sinister. Everything you say I can relate to, I'm only 30 myself and it not only physically but mentally has had an impact due to not being able to do what "normal" people my age can do.....and you can feel quite alone due to people not understanding how anything to do with your heart can physically make you feel so crap
Im sorry to hear you have been diagnosed too. It really is rubbish. Feeling like your body is letting you down. Also i hate cancelling on friends and family etc. Its definitely hard mentally & physically.
Im dealing with the same. Have another 7 day holter coming up. Been on Ivabradine for two weeks now. I was a active person working out 6 days a week only 4 months ago, now I can barely move with whatever is happening. Its so difficult. Beyond difficult its surreal.
@@012roro absolutely. Mentally and physically challenging. I was fit as well. Due to inactivity due to this i have put on weight. Not healthy
I have been diagnosed with IST by electrophysiologist and he proposed me to go for RFA - catheter ablation. I got this since the first day of my 2nd dose cov vacc (coincident i guess) and its been 2 /12 months now. Before, i went to cardiologist they have done blood test, ECG, Echo & 24hr holter monitor but all went well, and then diagnosed me with anxiety which i dont think it was an anxiety at all. I was on Verapamil 80mg x 3 times a day (i have High BP and Asthma) and now on Ivabradine while waiting for next appointment for second opinion from another Electrophysiologist. I really feel so unfit now and it does effect my quality if life... and hoping that i dont need to go for Catheter Ablation.
@@user-iz1lh6ji6z Well more and more people are reporting this but they try to hide everything.
It totally disrupt life and we don't even know how long it will last?
If you work you can lose your job...
I was never anti vaccine or anything like this...i had numerous previous vaccines without problem and now i have this pots...
I’m 32 and mine started in Dec 2019, I was pregnant and got a virus and then everything just went downhill. I’ve been on Propranolol for almost a year but it’s not helping a ton. I’m the same just a light walk not fast at all will make my heart rate jump to 120-140. I also get pretty dizzy, light headed and I hardly go out and do anything anymore.
I have the same symptoms from you, except mine started after Covid..
Me too! It all started with covid for me…it’s been since March of 2020😭
@@michellemorris6522 do you take anything for it? Propranolol helps me
Same mine started with covid also. I’m 22
Myself as well post Covid 10 days now IST
Mine started with covid too by the end of 2020 and symptoms comes and goes since then, I’m feeling very miserable right now, had to quit my job due to being lightheaded and chest pain with fast heartbeat just by simple activities that I used to normally do for hours in the past 🥺 also got Peripheral artery disease in my legs while having covid 🥺🥺🥺I’m 28
Same problem with me I walk my heart increase 180 doctor says this is sinus tachycardia
180 😔
oh, I am sorry to hear that. I hope you are getting well. Do you know what causes this? Is it because you have been working in ED, which is a stressful job?
Thank you! Yeah it’s a bit rough and has slowed me down a lot. I’m unsure, there is a lot of speculation as to what causes IST. Some people get it after getting Sick, other doctors believe it is a potential genetic condition or some Sinus Node abnormality ? It’s quite odd.
I am 18 and I have this problem IST, I have been dealing with it for over 10 months. Sometimes it feels like your heart is stoping for 1 second along breathing out like a gap in heart rate and starts again .it's really hard to live with it. No one seems to know about it, I have had all tests from CBC to ECG, all normal just with high rate like 120bpm. I think we have to live with it.
Same. I did echo, eps, halter, ecgs and even a ct angiogram. All normal. Doctors have suggested ist.
@@fifibridalstorebridalstore6483 hmm, I think it's something new in cardiology.
Same here
Thankfully I had an aggressive female cardiologist that once nothing was seen on an ekg, she slapped a 2 week holter monitor on me. Diagnosed right away with IST. My heart while asleep would go to 140 to 160. I woke wake up petrified. My iron was incredibly low as well, after 2 infusions of iron things slowed down a bit. I have metroprolol but i only take it on an as needed basis as I wanted my heart to try to regulate itself. I rarely take it. Now that I have been exercising more I notice its gets higher again so I have to figure that part of it out. I wonder the etiology of this. Damage? Infection perhaps? I also had vertigo and am sensitive to caffeine so I avoid it. It's annoying and I hope one day it heals for us all
Facing same issue... Doctors are not ready to put me on medicine as they pinpoint anxiety....bad left arm pain and seeing my dress move for the rhythm of my heart... Uff scary ☹ doctors are pointing it as postpartum, anxiety.. How do I tell them I am neither anxious nor I have postpartum difficulties 😒 everyday is nightmare
I am sorry you are dealing with this too. You must be stern with them. I have had to explain i am not anxious, however the symptoms can cause me anxiety. I hope you find some relief and are able to get some help
@@chrisparkinson7533 symptoms do cause me anxiety... The moment I check my pulse it will go to 140 😣 meeting another cardio today... Hope will get some help this time 🙁
@@gayathrivethakkan7870 Good luck. Let me know how you go
@@chrisparkinson7533 got everything done... Doctor prescribed me beta blocker n asked me to come back after 2 weeks 😷
@@gayathrivethakkan7870 good luck. I am seeing my cardiologist Wednesday. I may have some other issues. My blood pressure rises a lot on standing. 130/80 sitting to 160/105 standing. Very scary.
Thanks for this vid. It's incredible how much I can relate to this, exactly the same symptoms, visits to the hospital, bad reaction to meds, etc. The only difference is that I didn't want to accept it, so I didn't took the Ivabradine the doctor told me to take. It's been 3 years now since my first symptoms started and they have only got worse. So if there's a way to let me know how are you doing with the Ivabradine please let me know! Hope you are doing much better dude
Thanks man! I was taken off of Ivabradine and im now on Propranolol and has helped me very much
@@chrisparkinson7533 Glad to hear that! Thanks for the reply
That is crazy, same thing thats happening to me. The highest heart rate was 160 from just walking 4 min. And on stress test my hear rate went up to 183 and stopped at 6:30 minutes in to it. Ecg, echo and blood work normal. If i walk to the toilet HR shoots up to 130. Went to see psychologist and she flat out said "she doesn't believe it anxity". Cardiologist and doc seem to dismiss me at this point.
I have inappropriate sinus tachycardia. Been taken beta blockers Bisoprolol for 6 years but its not working anymore tk control the tachycardia and I can only tolerate low dose due to already low BP. I started ivabradine meds 5 days ago and I'm struggling with it. Causing me chest pains but worse than that my hearts doing weird beats then I'm getting a dropping sensation as if my hearts suddenly flipped and dropped to my upper abdomim it happens again and again. Felt breathless on them too. Has anyone else had these side effects. It's so scary but so is the tachycardia it's so worrying as to what to do for the best. My sudden fast hear rate ruining my life ibhave panic attacks all the time now from fear of my heartbrate just spiking out of no where suddenly I'm scared everyday my heartbgojjg to explode or ill pass out everyday I feel like I'm going to die. I'm frightened to be on my own now
Im sorry youre going through this. What dose Ivabradine are you on? Can you work? How has it affected your life?
@@chrisparkinson7533 5mg twice a say and still taking 1.25mg Bisoprolol. Can't work anymore as I'm constantly in panic mode waiting for the tachycardia to happen any minute. I don't go anywhere anymore by myself because I'm afraid I'm going to have a bad tachycardia episode and die. I've had to rely on so many family members tk help me look after my daughter and me so I'm never alone. I have no quality of life just waiting always for next bad tachy tht I think is going to kill me irs should destroying.
@@sorellefraser888 i cant work either. Day to day is quite hard. Very hard being 26 and used to be athletic etc to this. Takes away all your freedom
@@chrisparkinson7533 I've had to stop the ivabradine ended up in a n e last night from severe chest pain. What are you taking now to control yours ? I'm at a loss of what to do I feel hopeless about it ever being under control enough to have any kind of life 😕
@@sorellefraser888 im still taking ivabradine but im seeing if there is more i can do.
Anyone have feeling heart stops then pumps then stops. Only for sec or skips beat. Had for years
I am freshly diagnosed with IST. Similar symptoms as well. I'm actually following up with a cardiologist as I type this.
I am 26 years old, i was very athletic person with no heart problem, but i started using minoxidil for hair fall and it gave me permanent heart damage and hypertension problem, minoxidil ruined my life.
Are you doing ok? Thank you for this video. Big help!
Hey!
Yes a lot better now I am on Propranolol which has helped a lot. How are you?
@@chrisparkinson7533 very well, thank you! I was started on Corlanor on the 4th and it does help. Thank you for your video.
I just came out of hospital today for this exact thing. Been dealing with for months since I have had COVID Diagnosis: inappropriate sinus tachycardia. Put on metoprolol 50 mg twice daily. And referred to specialty hospital. Gonna be a slow long road. I’m 53 years old. I may have to ask about the med that you are on. Can’t get into specialty hospital until mid June though. I feel for you so much.
Going on a year with ist omg I cry everyday I want my life back. Covid ruined me
Everything will be alright soon.. Trust
@@komodrabo1284 you're legend 💕 i have this problem too im only 18 and my doctor says that i need to stop playing football for 3 monthsIST is most common in women in their 30s. Symptoms can last for months or years.Feb 4, 2022 idk what's is that f*ck😭
I’m 22 years old and have frequent episodes of SVT. Whenever I eat food my heart rate goes up 95-100+ even at rest and 110-120 when I walk. Had countless ER visits with clean EKGs, blood work and scans.. idk what to do anymore :(
Have you tried a whole food plant based diet
Or Irish sea moss?
@@jamberry1135 nope, I will try now tho. Thank you
Look up pots, postural orthostatic tachycardia syndrome. I know people with this have heart rate jumping after eating. And all their tests come back normal. You need a tilt table test for this.
I have been having issues with the heart rate as well. Two times I went to ER and was given Adenosine to ‘restart’ the heart rate. Very scary. Cardiologist said it was PSVT. I have been on verapamil for the past 9 months. Mine started a few months after second dose of COVID vaccine. Three weeks after my third vaccine, I was in the ER again. Not sure whether it’s related to vaccine or not 🙁
I do have same problems since 14 yrs ...
My resting HR is 112 BPM..BP around 150/110.i don't have much symptoms except pounding heart and some shortness on exertion...tried metoprolol 25 mg and losartan 50 mg..but it's not improving my HR and BP...don't know what to do ..it's so depressing..have my heart checked but no diagnosis made.. doctor said it's due to anxiety..but it's not..don't know what to do...I know how u feel..
Propranolol has helped me immensely
I tried but wasn't helpful...as my BP is also high..so I m under metoprolol 25 mg n losartan 50 mg ..but it still not working..it's very difficult to work with such conditions..
@@laxmangiri3062 yes it is. What dose Propranolol were you on? It is useful for BP and HR
40 mg propranolol not helpful...
So switched to metoprolol and losartan still my resting HR is 110 BP 150/110..Any ideas what to do next
I m anxious to go for check up as my HR and BP would increase seeing physician..
@@laxmangiri3062 Do you see a cardiologist or a specialist?
I was diagnosed with IST around June
Had symptoms since 2020 of September but no doctors would believe me lol
I’m currently on metoprolol 12.5 mg
Cause 25 mg drops my bp too much
My resting is usually between 70-90 with 12.5 mg :))
Is it normal to also get stomach problems along with ur heart problems?
My Gerd happened at the same time as IST
You could be misdiagnosed with IST. Could be dysautonomia or POTS.
Nah it’s not POTS
There’s no changes in my blood pressure
My resting prior to metoprolol would be 100-130
@@syedaislam941 POTS isnt diagnosed via a drop in blood pressure. Infact there should be no change in blood pressure. It is diagnosed via an increase of 30bpm upon standing, and potential symptoms e.g palpitations, fatigue, dizziness, orthostatic intolerance
Yes my heart rate has been messed up ever since my stomach issues. Stomach acid affects heart rate apparently
I too got the GERD n sinus tachy together post Covid. When I eat my tachy begins. Did you find any remedy?
Pray your doing well. I have IST heart arrhythmia that developed after I had covid pneumonia and has not gotten better in over a year. Weve tried all the beta blockers and midodrine and finally my Dr sent over ivabradine, but it is in process of getting approval from my insurance company... Dr will have to fill out preauthorization. I am planning on filling appeal if they dont approve it. Was it hard for you to get insurance coverage for this medicine? My Dr told me they dont like to approve it if you don't have heart failure..As well has it helped with your symptoms and what do you think about side effects... thanks so much. New subscriber.😊
Thank you, i am sorry you are going through this. Here in Australia we dont need insurance approval etc we just get a script & then go to the chemist and collect it. Are you in America? Ivabradine has helped quite a bit.
@@chrisparkinson7533 Thank you, Yes I am in America. My doctor told me the insurance companies here dont like to approve it so I'm hoping with my doctors help they will. That's really awesome you can just get medicine like that in Australia. I wish it were more like that here! I've heard such good things about this medication so definitely hoping to get it! We call it a pharmacy here, I like the word Chemist.
@@amylouava5134 fingers crossed you can get it! They are called pharmacy here too, but my dad is english so I must have picked up his slang. You could possibly have POTS as well, I have heard a lot of people can develop that after COVID.
@@chrisparkinson7533 oh okay I like it called chemist! Yes my Dr gave me meds for pots but it caused my BP to go too high. I've been through so many tests and going to do a MRI imaging test to see if there's any damage to the heart. Thank you for the advice and concern! Alot of people in America dont realize it's causing things like this to happen and just think it's a common cold still.
I have all of the symptoms that you have except for the vertigo. Have you found anything that helps since you posted this video?
I am on propranolol and that helps a lot
Same problem started happening with me in last 7days....have visited top 10 cardiologist doctor they are all saying anxiety and depression.... Butthere no any axiety...
How are you getting on now? Have you had any more episodes of the eptopics? I've been having episodes where they come in runs, don't know whether it's related to my IST or something else
Eh i seem to have good and bad days. Frustrating actually. I was able to go to work and be with patients on my feet for two days last week but since then ive been feeling rubbish. Anxiety, caffeine etc all cause ectopics for me. Have you cut out caffeine? Are you on any medications?
Have your check your thyroid? Any immunological disease? I have grave’s decease I was trying to found out for 1 year what’s it’s causing my palpitations that was the reason why probably is not your case just want to yo let you know
Oh wow. Yes my thyroid function is fine, and no auto disease. They believe it is innapropriate sinus tachycardia & POTS
After covid mybhearts started fluttering or sensation of skipping beats then thump, what felt like a louder beat or thump to catch up. It happens all the time and when it happens it feels for one second I can’t breathe, these fluttering or skip beats happen all the time. I’m also super dizzy and foggy with headache. Then out of the blue I had vertigo one day for first time where whole room started spinning (nausea happened same time) I always felt dizzy but never had vertigo.
I got holter monitor and found St T Wave abnormality
And 24 hr holter monitor now found I have Sinus Tachycardia 120bpm. This was with rest. I rested in bed whole time of test. My heart did s9me skipping but not as bad as it was once came off( I hate that it never shows up when needed)
Now I’m exhausted when I walk, or can’t climb stairs, I’m so breathless. Hang in there mate,
Finally, I have a diagnosis.. But I have weird flip flops with my heart. Very very scary and so many symptoms
I do too...pvcs
@@codiannsmith Unfortunately, I have IgG4 Related Disease and c-anca positive so maybe vasculitis. Not long to live I suppose. Hope you have better luck and better health.
@Sohailali1 Oh my goodness...I'm so sorry to hear this. Keeping you in my thoughts. 🙏🏼
I'm dealing with this after the covid vaccine.
It's like i got covid and suffering the long term effects...
Looks bad to talk about any side effects with these vaccines as it's like being an anti vaxxer or a nut.
Oh really? Ive had this months before i got my vaccine. I have heard a few people have exercise intolerance etc from it though
@@chrisparkinson7533 Yes before this problem i was exercising a lot...now i can't and need to take medications to try to block this high heart rate.
A doctor told me he had some patients too who developped Pots or chronic fatigue syndrome after the vaccine.
My opinion is to tell anybody who has pots,ist or chronic fatigue syndrome to not do the vaccine...unless you have others health conditions putting you at risk for covid,don't do the vaccine if you can avoid it...this vaccine can make your condition way worst.
@@mattalex8701 I have seen people at my hospital with similar symptoms. I have been vaccinated for work, but i have heard some stories.
@@user-iz1lh6ji6z Yes thank you...actually let's bring some optmism beause normally it will settle this problem..for some it's quick...for others many months.
What my cardiologist explained to me..the right path is to do gentle exercise like walking...if starting too fast..too harsh..the condition will not improve.
Some supplements also exist to try to get back faster like vitamin d..b1..b9..c..magnesium.
In my case i learned i got covid not long before the vaccine without real symptoms.
Doing the antibodies test showed this.
So taking the vaccine just after having covid will mess even more the immune system and you end up with pots for sure.
They still push people to get vaccinated even if you have already natural immunity...very very bad.
@@user-iz1lh6ji6z Thanks i will check it..how is it going for you now after the vaccine?
Long covid is recognized but people who get sick after the vaccine it's very hard to make it official.
I continue to progress..it's a slow road..i can walk longer..still tired,hard to eat normally without the nausea.
He is having breathing issues and also has swelling on face and weight gain. He taking deep breath while speaking.
Did you find it after seeing his video?. Is it a problem too?.
I've been on Ivabradine for 2 weeks now and starting to feel better effects now. Had to up dosage to 2.5 plus 1/2 of a pill twice a day. I'm still having spikes though. The first week was really tough and was in ED many times cuz still having high spikes on it. Also it seems to wear off before its time to take the other dose. So around 10 or 11 hours instead of twelve. How long after your first dose do you take your second? Plus I have a big problem with waking up to heart rates up to 190. I can't seem to control that cuz meds wear off by the time I wake. Don't know if you're having any similar problems on it. Hope you're doing well
I am taking 3.25mg morning and 2.5mg night. Definitely wears off early, so if i take my morning around 0800, i make sure to take my night around 1700/1800. So far so good but still fatigue etc
@@chrisparkinson7533 okay. I just came from ED again. Have you had any heart rate spikes on it.? My hr went up to 180 again on it while trying to do yoga and then stayed up high for an hour then spiked again. I don’t know if this means the meds aren’t working or they just don’t stop Hr rate spikes. I’ve been taking them 12 hours apart but I might need to take them sooner. Usually take fort dose at 7 and second at 7Pm but it gets bad around 6 and sometimes 5. But the above happened today only 4 hours after I took it, so thats bery troubling to me. Very worried
@@012roro How much are you taking in mg? You may need to speak to your cardiologist and up the dosage depending on your resting heart rate. How do you measure your heart rate at these times it spikes? Your heart rate should increase with exercise.
@@chrisparkinson7533 right now im taking 2.5 mg plus 1/2 of 2.5mg twice a day. I'm currently doing another holtor monitor because of high heart rate spikes still happening on meds lasting 20 minutes and resting heart rate still high on meds most of the time. After the holter he might either up the dose by 1/2 so that im taking 5mg twice a day, or he wants to start me on clonidine but they affects blood pressure so I don't know. I don't know how ivabradine isn't keeping my heart rate low, even after increasing the dose. So I don't know... It's pretty scary. Woke. up in middle of night last night with heart rate at 170 and it took 20 minutes for it slowly to go down to 110 at rest. I had taken the second does like at around 7pm. In A&E again but of course they offer nothing.
@@012roro How are you measuring your heart rate?
I have pots and IST. my IST... is non-paroxysmal, I'm always at +120 at rest... I have to take a beta-blocker and ivabradine. my case is weird...
How old are you? I’m 22 going through something similar
@@individua6603 also have pots and IST related to my digestion issues. How’s the beta blocker helping your case? Any major improvements at all?
I have pots as well. My heart rate shoots up when I stand. My blood pressure goes up as well. I have corlanor aka ivabradine. But I haven’t took it yet. Does it really help the standing heart rate?
@@RealTalk_Chris ufff yeaah game changer AF, you'll see! Let me know !
@@individua6603 what’s your standing heart rate on propanol and how many milligrams a day? Also are you only taking propranolol or that added with another medication
Chris, are you still on the medication for IST or any new development? Have you cured and came out of it?
Hi, I have made a newer video about this. I am on propranolol now and so far I am ok
I was just diagnosed with this and the propranolol makes me feel super crappy too. I need to ask about the other medication and the sinus node sparing hybrid ablation. They put me on 20 mg three times a day but I feel like that is way too much and why I feel so bad now even when the HR is under control.
Prior to medication resting HR around 100, always around 120 walking and could randomly hit 160s-180s even while lying in bed falling asleep, which then became impossible until it calmed back down. In the hospital nurses found it in the 140s while I was sound asleep. It’s been pretty rough.
I hope to manage it better soon now that it’s diagnosed. It took three hospital visits including 2 admissions before they got an electrophysiologist involved to finally get the answer.
Advice I found is more hydration, higher sodium, compression socks and smaller, more frequent meals. Anyone have any other tips?
Hey!
Ivabradine made me feel horrible. Turns out I have HyperPOTS (Similar but with BP rising dramatically on standing). Propranolol has helped me immensely, but I'm on a low dose (10mg 2 x daily).
Yeah I drink lots of electrolytes (2 x LMNT Daily), so 2L electrolytes, 1L water. Eat small meals frequently (around 2-3hourly) with less carbs, which has helped too
Took three years to get my diagnosis- on after I flipped out I was referred to a md who specializes in it and has IST to been on propanol and Zoloft (as I have depression)it works kind of the fatigue is so bad and I’m over the sweating only way to describe it is intense fight or flight mode
Do not take ivabradine, it will cause permanent damage to pace maker.
I'm in the E.R right now with IST 🥺🥺🥺🥺
Hope you are okay?! Is this your first time having it?
@@chrisparkinson7533 no, right after my miscarriage with a d&c in 2018 I started having these tachycardia issues. I believe it's all connected but my doctors can't seem to find out why I'm having these issues. I'm scared and feel as if I'm not getting any help. Kind of makes me feel like what are doctors here for if they can't figure out why I'm having this issue. I'm just frustrated surely i know we need doctors but this condition frightens me.
@@keylimepie8426 Absolutely. On top of the IST, I have been struggling with my balance and dysequilibrium for 6 months with no answers yet. I have had to stop working and it's definitely impacting my life.
@@chrisparkinson7533 upon standing (sometimes) not all the time, I get dizzy and feel like I will pass out if I don't stand in place for a few seconds. Quite scary!
@@chrisparkinson7533 I totally relate with you and hope we can update each other on information we find out. I won't stop until I get some answers.
Sorry you are going through this, i dont know what to say. I had a question why it didnt get picked up the first time you had tests done on your heart? Sorry for the stupid question
Thanks Renee. I appreciate it. No stupid questions, only stupid answers :). IST is a bit strange because on an ECG it shows up as normal sinus rhythm just fast (tachycardia). So my heart is in the correct rhythm & the chambers are pumping at the correct time, just too fast & too much in response to small things.
@@chrisparkinson7533 Haha - Oh i think i understand, i thought it would still show up with the chambers ( im not in medical lol ) - is this a common thing? Because it slightly reminds me of what/how they found i had a hole in the heart ( pretty sure its totally different to IST though but idk! lol )
@@reneeo Yeah sort of. So an ECG measures the electrical activity in your heart. So my heart pumps with a normal rhythm, but it is way too fast & gets too fast from small things. What happened with the hole in your heart? Are you ok now?
@@chrisparkinson7533 so is not arrythmetic?
Bro i really feel what you mean i have the same exact symptoms and my heart rate goes crazy with any little movement or exercise and I’m only 22 years old at the beginning it was really scary and the doctors keep telling me that everything is okay (which I feel is not) and ecg shows that i got sinus arrhythmia + sinus tachycardia I just want to know how are you doing right now cause I’m still waiting for my holter monitor results and if the medication help? Hope you doing great good luck bro
Hey Waseem.
Thanks for the comment.
I really should make an update video. I have ceased the Ivabradine and am now on propranolol,.which has helped tremendously, however I have some residual symptoms still. Its really trial and error with medications. Keep me updated how you go!!
@@chrisparkinson7533 So glad to hear you are somewhat doing better!!! xoxo
@@ceciliamac4283 Thanks Cecilia!
Low potassium causes tachycardia I had low potassium issue last year when i got 1st covid vaccine shot i got this condition now i am on 40 mg propranolol and i also have sleeping problem cause of this racing heart
Yes it can, but my electrolytes are perfect every time. Ive been diagnosed with POTS & IST
@@chrisparkinson7533 thats so unfortunate but do you have any sleeping problems from this condition
@@om-ni3dm yep, barely sleep well, always waking up tired
The thing with the hr being high it at times elevates your b/p. But then the medication beta blockers can drop your b/p too low. I just can’t wait to be better. How are you doing now?
Thanks for your comment Sue. I'm doing much better now. I trialed a lot of medications, but Low dose propranolol has helped.
I need to make my bed, for 2 days I planned to, simple things I use to do without thinking twice I also have another medical issue, life is so difficult now
Any update pls
does your heart pound hard and feel like you need to sit down so your heart will calm down and so you can breathe better when you haven't taken your meds in a while i have IST also
Yep 100%. Recently it started pounding hard when I stand up, but BP etc is normal. Very odd.
Have you tried a whole food plant based diet
Or Irish sea moss?
Hi Jam,
I was on a whole food vegan diet for 8 years, and during it this started.
Hey! How are you doing now? I am also dealing with IST since two years
Hey man if you don't mind me asking did you have trouble sleeping
Hey man,
Yep 100%. Haven't had a unbroken sleep since March last year. Always waking up every hour or two. Takes a toll.
@@chrisparkinson7533 yeah it does.... Thank you
Which specialist ultimately diagnosed with this? Same exact thing here, all the way up to the hands locking/looking like they were cramping up. Tingly feeling in extremities, starting to black out because of palpitations. I am going to see a cardiologist in a week for stress test, monitor and echo. I know you said you did the same but was cardiologist the one to dx: you? Thank you for the video
Hey! No worries. How did all this start for you?
My inital cardiologist was not great, but my second carsiologist diagnosed me on the spot & helped change my medications.
@@chrisparkinson7533 I used to wake up with Adderoll for the morning chug energy drinks during the day, and I was driving on the highway and hands and feet started tingling then lost feeling and started dieting up, very scary on the side of the highway, alone. Felt like I was dying. I’m going for join discord.
What is the underlying cause of your IST ?
Does it go away? I have a normal resting heart of 70 to 80 but 3 4 times a week my heart rate shoots up to 125 130 doing nothing. Doctor has said most likely ist after all tests are negative. Iv decided to try and handle the symptoms on my own. Does it worse?
All. Please read Brain Saver by Anthony William chapter 38, page 384 on POTS. Then try a few of the autoimmune disorders therapies/supplements in his other book Brain Saver Protocols. Honoring the light in you with the light in me.
I had same symptoms with pots
Have you got any relief? My heart symptoms seem to be improving on Ivabradine
I have suffered for 2.5 years thinking it's only sinus trachycardia now 5 months before I got to know its pots, after medication I m doing good, I also used same medicine
@@prathamrballal1229 great. Have you had any other medication? My blood pressure doesn’t drop, so can’t be pots. But do get vertigo etc sometimes & weakness, fatigue
In pots bp won't drop only hr will increase up to 30 beats from resting rate, that is the first sign, fatigue tremors nausea maigraine light sound sensitivity digestive issue shortness of breathe list will go on, every day symptoms will change and no cure for this disease, people end up with heart failure or kidney daialisys by the end.
@@prathamrballal1229 people with POTS usually develop hypotension with standing and cannot stand long. That is a main symptom. With POTS, Symptoms go away with sitting or standing. Mine do not so cannot have pots. Either way, not good.
I believe ablation is the way ahead
I know ive left a comment i quit 5 day alachol binge no eating and experienced tgis for 6 days standing up the pulse goes up and down fast along side high blood pressure it is indeed frightening. 8 days aint touched alachol had to have 3 ecg tests and 3 blood tests they confirmed quit drinking it is absolutely toxic for the cardiac system
So frustrating isn’t it man. Barely any answers and just expected to live like this
What did the doctor say? Will it get better or does this stick?
Dude ive read about this omg 😔 its horrible if you cannot even bring the pulse down
Got this after the covid vaccination
This happened to me after I donated blood.
What’s the name of that medication? And how is it working for you if you still taking it?
Im currently taking propranolol. Yes still working for me
Why it's happening what's the cause ??
Hello I'm dealing with this crap to im struggling alot .. had halter and echo haven't heard back but when I did halter it was a day it didn't happen so guess that won't work
Me too. Very frustrating. It takes a toll on your mental health as well. How are you feeling?
@@chrisparkinson7533 frustrated but I also no that the cause of this for me has a big likely hood from getting breast implants... they are getting removed in jan ... its called breast implant illness... sooo many women around there world are suffering immensely from tachycardia after implants..... along with a laundry list of problems ... I dont no how you deal with this ay ...my heart rate goes up 110 from 70 or 80 just by standing... I'm curios if its even safe to let it go up and get on with your day despite the struggle or should we seriously just stay seated all day 😔
@@evo2815 Its frustrating isnt it? Ive had this since early Febraury this year. Ive taken all this time off of work, with not much to show for it in the way of answers. My resting heart rate was 100ish until I started this medication. Its very hard to deal with. Sadenning is an understatement. It is affecting everything, my work, my relationship etc, as going out is not easy. It probably is safe, but the symptoms that acompany it arent pleasant.
@@chrisparkinson7533I'm really sorry your struggling this isn't the way of life 😔 do you go out at all do anything outside the house?? So far I haven't been gain enough to try ...have you tried to change your diet like gluten and dairy free to slow down bodies inflammation??
@@evo2815 Haha what havent I tried! I can go out most days, but seem to struggle with long days or being out for a long time. I have IBS as well so I alreadt eat gluten & dairy free, so not sure if thats helping or not so far. Lots of hydration seems to be good, and apparently exercise but that is super hard at the moment. How are you going with it all?
What does a typical day look like for you?
Does ivabradine help lower Heart rate Better than beta blockers I was put on metroplolol and and bunch of other beta blockers all gives me terrible insomnia and btw did you get a week of holtor monitor test because I also live in Australia they only have one night of holtor monitor I’m asking around all medical centres none of them have holtor monitor test more than 24 hours
Hi,
Yes both medications work to lower HR. Ivabradine generally has a stronger effect than most BBs, but it is also personal..
Yes I got one week, well 8 days, monitor. This was from a cardiologist
Since your on medication now does it help ? Are you able to do more ?
Sort of, i think i may need to try a few different medications. This one has helped a little but still trial and error, taking each day ar a time
I have the same thing , at rest I’m okay but soon as I get up I get out of breath and chest pressure . Starting a new medication first one hopefully it gets better ..
@@StrongMommyBellz I hope so. Do you get light-headed/spaced out randomly? I do. What are you starting on?
Sometimes I get lightheaded . Did your symptoms improve some with your medication ? They are trying atenolol
@@StrongMommyBellz i tried atenolol, 25mg daily. It did lower my HR, and blood pressure, but only HR a little, and felt quite spaced out on it, even after a few weeks. I am on Ivabradine now.
Do you think you had covid a whole back to trigger this?
I've never had covid.
Are u feel good now
Still struggling, unfortunately. How are you? Are you experiencing similar things?
Same here I am depressed bro I am covid positive in April .. sometimes I feel my heart is stop but my pulse is running normal ...
I feel my heart rhythm is abnormal
But I check my ECG report all report are same
All doctors says this is sinus tachycardia
I am exercise mild but my heart rate is very high like 200 😭
This problem is come from covid
@@chrisparkinson7533 my dream is join the Indian army but I am not physically able to run ......
My age is just 19 ....I am from India
@@dreamworld5858 sorry you are struggling as well. Definitely affects your mental health as well. Depression, frustration, anger, sadness.
Are you taking ivabradine or propranolol now? Does propranolol help your standing heart rate?
Only Propranolol. Yes helps a lot
@@chrisparkinson7533 what’s your standing heart rate now on the medicine? And how many milligrams are you taking a day
@@RealTalk_Chris between 85-90. I take 10mg morning and night
@@chrisparkinson7533 does it lower your blood pressure? Are you able to work out
@@RealTalk_Chris yes I can but not for too long usually 45 mins. Yes lowers it a bit
From which university you have your degree
Murdoch
@@chrisparkinson7533 would you recommend University of Canberra for nursing
@@anvekshaarora4847 i dont know anything about it sorry
Have you been jabbed.?
lmfao
could be pots
Long covid
Have not had covid
@@chrisparkinson7533 have u been vaxxed? And maybe an asymptomatic covid infection?
@@chrisparkinson7533 have you ?
@@carla8451 no
@@chrisparkinson7533 how are you doing?
Why did you stop Ivabradine?!
Didn't help me unfortunately. Propranolol has been a game changer for me