A Happy Kid who Doctors Recommended Terminating (Cornelia de Lange Syndrome)

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  • Опубліковано 19 чер 2024
  • Ezra is diagnosed with Cornelia de Lange syndrome, which causes a mutation in certain genes. Upon learning of his heart defects, professionals recommended that his parents terminate their pregnancy. Ezra is now a happy 3 year old kid who loves to play with his toys and is learning to walk and sign. Ezra's parents want others to know that he is the best thing to ever happen to them.
    Support SBSK at / sbsk
    Connect with this Family at / hotheadedsalvi

КОМЕНТАРІ • 1 тис.

  • @andravas
    @andravas 10 місяців тому +1861

    Thank you guys for doing this interview with us! I’d like to clear up a few things in the comments, cuz y’all are jumping to conclusions.
    I had hopeful doctors who were optimistic about his life, however, the 3 blatantly RUDE doctors really made this harder than it needed to be. We were aware of the facts & made a decision knowing things could go either way and were prepared for both. As you can see, we got extremely lucky with our choice and not only met our baby, but have raised a very happy go lucky almost 4 year old.
    ANOTHER THING; it was OUR CHOICE. This is OUR STORY. No where did SBSK or my family say that we are against abortions. I am pro-choice and believe abortions are healthcare and any pregnant person deserves access to safe, judgement free care no matter the reason.
    Thank you for all of you that are being kind. I’m so happy my boy is shining so bright all over the world 💜 be kind, it’s free!
    Edit to add; healthcare professionals are there to present information, education, and provide options. Not bully a young first time mom into a choice she didn’t want to make for herself.
    ALSO, doctors and medicine SAVE LIVES! Please stop the extremism.

    • @CJR-lx4el
      @CJR-lx4el 10 місяців тому +111

      You're wonderful parents and, Ezra is a joyous child.❤❤❤❤

    • @lovesallanimals9948
      @lovesallanimals9948 10 місяців тому +61

      Very well said!!!

    • @CJR-lx4el
      @CJR-lx4el 10 місяців тому +38

      @@janusdoe252 Great comment. Trolls are all over UA-cam. Best to never comment. Totally not worth it.

    • @monstersock980
      @monstersock980 10 місяців тому +18

      💯💯💯

    • @angiepangie989
      @angiepangie989 10 місяців тому +55

      Your family is beautiful. Your son is an adorable goofball, your man has the best demeanor and seems like the best dad ever. You're doing a great job, your boy is happy and by his definition healthy. You're so blessed ❤🎉 keep advocating for yourself and your family I wish we lived in a perfect world where you didn't have to. Sending lots of love ❤❤❤

  • @katie5940
    @katie5940 10 місяців тому +797

    “Even if he didn’t reach milestones, we would be ok.” I love that! Everyone is worthy, regardless of ability. What great parents!

    • @natalier4053
      @natalier4053 10 місяців тому +14

      No. There’s a difference between “becoming class president” milestones and “being able to have basic human functioning” milestones.

    • @Nan-1017
      @Nan-1017 10 місяців тому +38

      @@natalier4053what a jerk-thing to say. What’s your point? You should be embarrassed 🙄

    • @natalier4053
      @natalier4053 10 місяців тому +4

      @@janusdoe252 Your entire comment were your words, not mine. Stop projecting.

    • @natalier4053
      @natalier4053 10 місяців тому

      @@janusdoe252 No one is reading your rant lmao

    • @reunitingetal1327
      @reunitingetal1327 10 місяців тому +17

      @@natalier4053they never said specific milestones, simply that everyone is worthy, which is true. Existing is the only thing required

  • @victoria-yy3uo
    @victoria-yy3uo 10 місяців тому +366

    My brother was born with this syndrome! He’s now almost 40 years old. It’s so cool to see more people like him 🤍 much love to Ezra

    • @jujuoof174
      @jujuoof174 10 місяців тому +8

      Woaw, awesome!! ^^

    • @followhim.8543
      @followhim.8543 7 місяців тому

      If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven.
      The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved.
      JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16
      Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.'
      Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late.
      We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now...
      'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.
      🎉🎉

    • @ihatemickiegee
      @ihatemickiegee 6 місяців тому +2

      that’s heartwarming and very hopeful 🖤 happy for your family and brother :-)

    • @davidadams2395
      @davidadams2395 6 місяців тому +7

      Is he in a group home, or does he live with family?

  • @kitandsons173
    @kitandsons173 10 місяців тому +357

    He is a beautiful and a gift!! I was told to terminate at 8 months gestation because of as heart condition, cleft lip and palate and possible Downs. Well. I left that practice and went to another. They hooked me up with a Childrens hospital and my unborn baby and I were treated with compassion and love. My son was healthy and just needed surgery. No downs. Happiest baby like yours. He will be a senior this year. God bless your family!

    • @Dan_Capone
      @Dan_Capone 10 місяців тому +9

      Thanks for sharing!

    • @Nan-1017
      @Nan-1017 10 місяців тому +24

      Some doctors, a lot even, gaslight their patients today. It’s happened to me more than once. It’s incredibly hurtful and disappointing 😪

    • @Mandragara
      @Mandragara 10 місяців тому +27

      @@janusdoe252 It doesn't need an overhaul. Every decision is probabilistic. If there is a 90% chance you lose a bet and you take it and win, I'm happy for you! Doesn't change the fact that most people who take the bet lose.

    • @thesilvershining
      @thesilvershining 10 місяців тому +5

      @@MandragaraExactly

    • @joan1272
      @joan1272 10 місяців тому +6

      She is not a gift. She s an individual.

  • @cheapskatepanic
    @cheapskatepanic 10 місяців тому +266

    I adopted a baby with a heart like his (plus ASD, VSD, malformed mitral valve, transposition on the great arteries and coarctation of the aortic arch). He is almost 8 and doing amazing.

    • @followhim.8543
      @followhim.8543 7 місяців тому

      If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven.
      The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved.
      JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16
      Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.'
      Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late.
      We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now...
      'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.

    • @lucaswheatcroft
      @lucaswheatcroft 6 місяців тому +2

      We just had our lecture on Congenital Heart Defects in OB/Pediatrics! I can visualize the defects you listed in my mind. Yes, these are big words, but 1 in 110 births have a CHD, so they're fairly common. So glad that your son is doing well! Thanks for sharing!

  • @christinecaronnabeard1369
    @christinecaronnabeard1369 10 місяців тому +331

    You’re all special. Dad, so impressed with your attitude. Mom, you’re beautiful! You’ll both make Ezra proud!!

    • @followhim.8543
      @followhim.8543 7 місяців тому

      If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven.
      The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved.
      JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16
      Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.'
      Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late.
      We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now...
      'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.

  • @ImQuiteGay
    @ImQuiteGay 10 місяців тому +383

    It’s obvious they’re both great parents ❤ I’m glad Ezra got awesome parents and I’m glad they have Ezra.

    • @user-pf3lk5dm8q
      @user-pf3lk5dm8q 8 місяців тому +1

      Будут ли у этого ребёнка нормальные дети?? И станут ли эти родители бабушкой и дедушкой??? Или всю жизнь будут ухаживать только за этим ребёнком???

    • @Belti200
      @Belti200 8 місяців тому

      @@user-pf3lk5dm8qtheir life, not yours. Why do you care?

  • @colleenorrick5415
    @colleenorrick5415 10 місяців тому +95

    I had a little daughter who had Cornelia de Lange Syndrome. She brought us so much joy. You’re a very lucky family.

    • @followhim.8543
      @followhim.8543 7 місяців тому +2

      Am so sorry for the lost she is in heaven with the lord

    • @abhirupkundu2778
      @abhirupkundu2778 2 місяці тому

      cry with me, so you can lighten the load and share the burden with someone 😭

  • @WertyQ543
    @WertyQ543 10 місяців тому +109

    The person who owns this channel should get a noble Peace Award for how great you are

    • @ihatemickiegee
      @ihatemickiegee 6 місяців тому +4

      i know right? like he genuinely cares. and has gotten so many amazing and unheard stories out to people who’ve never known anything beyond the more common life and health issues people deal with, and brought more awareness bc of it. a truly great person / team

  • @Juanah92
    @Juanah92 10 місяців тому +157

    Aw man these parents are so amazing it made me cry

  • @ironic_water
    @ironic_water 10 місяців тому +681

    Recommending termination is a valid and complex decision between medical professionals and the parents. While you shouldn't fault parents for not terminating, the inverse is true - parents who go forward with termination are not any less valid. It's a very touchy subject, but it should be a subject between parents and doctors, no one else.

    • @andravas
      @andravas 10 місяців тому +141

      It was the manor in which they spoke to us. Terminating a pregnancy for any reason is a decision made out of love and self preservation and I respect all peoples choices!

    • @Jenvlogs404
      @Jenvlogs404 10 місяців тому +29

      Between the child too

    • @gymnasticsgirlie0647
      @gymnasticsgirlie0647 10 місяців тому

      Yes, but doctors recommend termination in WAY more cases than is actually necessary or would be best for the child. Crazy rare, painful, terminal diseases? Of course. But something like Down Syndrome or what the boy in this video has? That's just uneducated.

    • @kennynyc1555
      @kennynyc1555 10 місяців тому

      God Bless Yall@@andravas

    • @HopefulInterventions
      @HopefulInterventions 10 місяців тому +24

      Wow! Well said. I wanted to comment but didn’t know how to word it so I won’t be attacked!

  • @BrittanytheRedPanda
    @BrittanytheRedPanda 5 місяців тому +10

    I have a mild case if CDLS and I'm 31 turning 32 this year. I'm 4'7. I also have learning disabilities. I do love seeing little one with the same syndrome as me. Take care guys!

  • @Baba_Wawa
    @Baba_Wawa 10 місяців тому +81

    Life is a gift & I’m so happy Ezra’s parents advocated for him! No one is guaranteed tomorrow which makes every day precious!

    • @mitch5222
      @mitch5222 10 місяців тому +6

      It is a curse for some ppl. Please always look at both sides.

    • @vanlifebae
      @vanlifebae 19 днів тому

      Lol what world are you living on

  • @dulcecandy
    @dulcecandy 10 місяців тому +398

    Thank you, Lord for giving life to Ezra and blessing him with such great parents! ❤

  • @lb45878
    @lb45878 10 місяців тому +77

    Ezra has the best smile ever. What a precious little poppet. Mum and dad are amazing. Xx

  • @sherryd.3425
    @sherryd.3425 10 місяців тому +81

    Yes. Quality of life for every second you can provide it to him counts. Love counts. Joy counts. If you can see and hear him and he can know he is safe, no one has the right to tell you no. Ezra seems like a lovely boy. You seem like a beautiful family. This minute is what matters. This gift is what matters. Joy to you and yours.

    • @lilik6945
      @lilik6945 10 місяців тому +13

      often we forget that although people with disabilities have to live with compromises and hardships, they are often also the happiest people, even if they cannot express it in the way we expect!

    • @SpecialNeedsChamp999
      @SpecialNeedsChamp999 10 місяців тому +6

      ​@@lilik6945 yes that is fully correct coming from the disability community myself sometimes we're not always the happiest people but we love life and we want to enjoy it so why terminate little kids that are born with something at least give them a chance at life a chance to breathe the chance to see the Sun a chance to be out in the open and a chance to see the trees and eat ice cream travel the world yk I honestly hope that doctor gets fired because you should not straight up just say that that is like disrespectful thing you would ever say to a parent.

    • @susanstevenson3532
      @susanstevenson3532 10 місяців тому +19

      ⁠@@SpecialNeedsChamp999 Not every disability is compatible with life, or indeed a decent quality of life. It is a hard conversation to have with heartbroken parents but there are definitely times when terminating a wanted pregnancy is the kindest option. Doctors should give their medical opinion and recommendations without being fired or demonised.
      This child is obviously happy and well-cared for and the parents made the right choice for their family.
      But there are pregnancies that have little to no chance of this positive outcome. Let’s not demonise doctors and parents who make a heartbreaking decision to spare their child suffering.

    • @thesilvershining
      @thesilvershining 10 місяців тому

      @@susanstevenson3532Exactly, thank you

    • @sherryd.3425
      @sherryd.3425 10 місяців тому +1

      Doctors may give educated advice about scientific outcomes. Families make choices based on heart, soul, grace, and need. Information informs, but cannot dictate need. @@susanstevenson3532

  • @Tinytinytintiny
    @Tinytinytintiny 10 місяців тому +73

    What a lovely family. I can tell Ezra's parents love him very much. And I'm so proud of his milestones! I wish nothing but the best for them.

  • @priscillasaravia
    @priscillasaravia 10 місяців тому +30

    My baby has CDLS! So glad to see this. They are the sweetest children, the biggest gift.

  • @littlegirllost2654
    @littlegirllost2654 9 місяців тому +14

    Dad has an awesome attitude!!! I’m so glad dad is here! Most times the main care falls on the mom. Kudos to you, dad!!! Y’all are all special

  • @kaitlynmarie452
    @kaitlynmarie452 9 місяців тому +24

    I was born with an extra chromosome and they found it when i was still in the womb. The nurses also told my mom to terminate her pregnancy with me.But my disability is not as severe as other people who have a chromosome disorder i just have a intellectual disability but it isn’t as serious! I just am a slower learner and have to think about what i need to say. Also have ADHD and struggle with depression and anxiety

  • @leighanncolvin5431
    @leighanncolvin5431 10 місяців тому +52

    What a beautiful, loving family. This mom and dad seem like some of the easiest-going people, and also have the wisdom & strength to navigate the medical community & advocate for their son when needed. It’s clear that they know what’s best for Ezra, and it’s also clear that Ezra is a very happy boy. Both mom & dad let him meet his milestones in his own time, which is all that matters. Enjoy your happy, handsome son, Mom & Dad, you are both outstanding parents! ❤️

  • @meripederson8379
    @meripederson8379 10 місяців тому +80

    These are wonderful parents! ❤ So loving and caring and you can see Ezra responding to that.❤️

  • @thejony5
    @thejony5 10 місяців тому +208

    You can just see the hurt in the father’s face when she said they advised her to terminate the pregnancy.

    • @HopefulInterventions
      @HopefulInterventions 10 місяців тому +56

      But in many cases there’s a valid reason.

    • @PrincessRomi1
      @PrincessRomi1 10 місяців тому +32

      @@HopefulInterventions Well, yes, and no one is fighting that, it's just that in the end it should be up to the woman to decide and you really should not say it so straightforward and on the phone. That is just... a no no.

    • @thejony5
      @thejony5 10 місяців тому +27

      @@HopefulInterventions Yeah, because why give the baby a fighting chance right? F ing animals

    • @zac7790
      @zac7790 10 місяців тому +39

      @@thejony5Because a lot of parents don’t have the ability or access to things they need to care for a child with severe disabilities

    • @thejony5
      @thejony5 10 місяців тому +13

      @@zac7790 Give it up for adoption. How is that a valid excuse?

  • @lounakin
    @lounakin 9 місяців тому +67

    This may be controversial but I feel like doctors do have to push people in order for parents to understand the severity and potential life-long effects and that way, they are certain the parents are ready to make their own choices. Since it's usually impossible to predict quality of life, they cannot possibly tell parents that they should bring a child into the world because that child will be ok, because they don't know, and that could have worse consequences. While it seems heartless, I think it does help the parents to go into 'fighting mode' if they are ready to take on the responsibilities. And don't forget that some people in the medical field are exposed to so much hardship, they often have a different view on life than others people. I hope I'm not offending anyone with this statement.

    • @ihatemickiegee
      @ihatemickiegee 6 місяців тому +7

      i have to agree. maybe *not* in the way in which this doctor approached the subject, (as the mother described in a comment reply.) but in the sense that it still is important to sort of lay those options out there to see if they _are_ able to fight for the future child’s life. it is ok that not everyone is able to be this parent [although clearly this couple were meant to be!]
      i also agree that some doctors are sometimes just harsh because of the dark things they see everyday, especially in pediatric wards and so on. bedside manner is important. maybe he had prior experience with a patient with the same conditions and was worried for them, who knows. either way i wish they had gotten a different tone of conversation, but it looks like everything went down the way it did for a reason, and gratefully they have a beautiful son in a loving home.
      *_just hope that doctor presents options and likelihoods in a realistic but unbiased way in the future._* ♥

    • @user-cu9tq3qz2n
      @user-cu9tq3qz2n 5 місяців тому

      A lot of genetic testing is faulty. It is murder, doctors should not be pushing anyone toward anything.

    • @XluthiferX
      @XluthiferX 3 місяці тому +1

      Idk if ur controversial, but i do agree. It puts into perspective the hardships they could face, and I think it's up to an individual to decide and mentioning the fact they may not be compatible with life let's a family decide on the course, to wait it out and hope, or to terminate. Everyone has the choice at the end of the day on what they do with their bodies and their struggles

  • @DawnOldham
    @DawnOldham 10 місяців тому +14

    Ezra is so fortunate to have two loving parents. God bless you all.

  • @begentlebutdontallowshit2549
    @begentlebutdontallowshit2549 10 місяців тому +134

    To whoever is reading this keep going, you're doing fine! No matter how slow your progress, each new week is filled with tiny steps forward. Be proud of yourself you got this!

    • @Sunsetsnail99
      @Sunsetsnail99 10 місяців тому +5

      Thank you 😊

    • @garycooper9207
      @garycooper9207 10 місяців тому +4

      Thank you. I needed that. What a wonderful person you are 💖

    • @samanthasmith4038
      @samanthasmith4038 10 місяців тому +3

      Thank you! I needed that encouragement life is very hard. It’s nice to know their are people out there that are so compassionate and understanding like you

  • @Christopher-cu7yc
    @Christopher-cu7yc 10 місяців тому +8

    My beautiful son has CDLS and is 28 now ... Enjoy your blessing

  • @Contessa6363
    @Contessa6363 9 місяців тому +10

    He is a little boy with a huge personality! He is very happy and it shows! God bless you and your parents Ezra! 😃👍👍🙏🙏🙏♥️❤️

  • @DesiraeISilvers
    @DesiraeISilvers 10 місяців тому +17

    It just feels like he got exactly what he needed in parents. Keep it up! You guys are really doing great. What a lovely boy!

  • @sineriafrankenstein7316
    @sineriafrankenstein7316 10 місяців тому +112

    Every kid deserves a chance. Thank heavens they gave Ezra that chance at life!!❤❤❤

  • @marisolsilva1562
    @marisolsilva1562 10 місяців тому +19

    I keep thinking how brave this couple was to stick with their choice. I want to be like that and not be swayed by others. A beautiful example I'll never forget.

  • @anitronition
    @anitronition 10 місяців тому +35

    He is so adorable!! I've watched several videos by SBSK now and I just noticed that I keep smiling unconsciously. I am so glad that I have been introduced to all these amazing people.
    This was very insightful and educational. Everyone in SBSK are such inspirations!

    • @neowise6863
      @neowise6863 10 місяців тому +2

      Oh my word, me too ❤

  • @nancycrabtree6312
    @nancycrabtree6312 10 місяців тому +15

    What precious parents. Ezra is a joyful little fellow. So often love determines quality of life and this sure is one of those times.

  • @balaam_7087
    @balaam_7087 10 місяців тому +46

    Hi Ezra! I loved watching your video, and learning a little bit about you. Guess what? I’m learning to sign too! I interact with people with all sorts of disabilities, and learning sign language is really helpful. I bet you can sign better than me right now though 😂
    To Ezra’s parents: You are both beautiful, *exceptional* individuals. I’d take a bullet for either one of you. I wish there were more people like you. Your decision to give Ezra the best life he can possibly have at the moment has not gone unnoticed, and will not go unrewarded.

  • @chikensaku
    @chikensaku 10 місяців тому +14

    That little boy is the happiest little guy I've ever seen! He's absolutely adorable and obviously incredibly loved. ❤
    Mad respect for the parents!!!!

  • @krisb-travel
    @krisb-travel 10 місяців тому +13

    dad and mom is legit good people, you guys seriously inspired me to be a better person, its amazing how actions we take have global vibrations.

  • @sheepofthelord
    @sheepofthelord 10 місяців тому +11

    Ezra is THE COOLEST little kid. He just reminds me of those super chill basketball or sports players in high school that are always geeking and laughing 🤣😭 he’s got that general personality about him. He’s so adorable! He is such a smart, happy soul and that’ll never change!💗

    • @BimBop83
      @BimBop83 10 місяців тому +1

      Smart? In what way?

  • @SpiritoftheForest
    @SpiritoftheForest 10 місяців тому +11

    Seeing mom and dad express so much love and joy for Ezra is so beautiful. He’s one lucky kiddo to have such cool parents, and the world is a better place with the three of them here 💜

  • @alejandrawalker5045
    @alejandrawalker5045 10 місяців тому +10

    This precious baby is so lovable, adorable,and a blessing. The love his parents have for him is an example of what a family must be

  • @tracyfinch918
    @tracyfinch918 10 місяців тому +15

    I follow 2 families on UA-cam who have kids with CDLS. One is a little boy age 5 1/2 named Sebastian and a little girl age 4 1/2 named Freya.

  • @roxannemoser
    @roxannemoser 10 місяців тому +17

    Ezra has so much to offer this world, and his wonderful parents recognized that even before birth! Such a happy family. I love these people.

    • @BimBop83
      @BimBop83 10 місяців тому +6

      What does he have to offer the world? The sad reality is that he will never be able to live independently and will need round the clock care for the rest of his life. What will happen if his parents pass away before him?

    • @rir79
      @rir79 10 місяців тому

      @@BimBop83you are absolutely evil and you are the one who is not offering anything worth replicating, tbh.

    • @1commonplace519
      @1commonplace519 9 місяців тому +4

      @@BimBop83 These people thrive on optimism to let their ignorance continue. I'll say be careful otherwise you'll be labeled as a troll and "extremist" (Check the pinned comment).
      I don't understand how people are praising this couple to the moon. Ezra will have a difficult life and it is so unfair.

    • @talagoncharova-starlife-9269
      @talagoncharova-starlife-9269 6 місяців тому +2

      As I see now, he is more as living toy for his parents. It's not a life of a 3 year kid. If to be honest. Nothing to be glad of.

  • @adelheid9369
    @adelheid9369 10 місяців тому +7

    Ezra is a such a sweet boy. These parents are awesome...so loving and respectful of his needs.They celebrate Ezra's hard fought milestones. What a wonderful family! Thank you for sharing!

  • @blaithinlynch6189
    @blaithinlynch6189 10 місяців тому +7

    I love how you both are raising Ezra. He is such an engaged, communicative toddler who's love for both of you is clearly evident. Keep up the great work.

  • @lulumoon6942
    @lulumoon6942 10 місяців тому +8

    Such a sweet boy, so well loved by parents who understand him and appreciate his individuality! If only we all had that! Best to your family ❤️🙏💞

  • @maggiepanning356
    @maggiepanning356 10 місяців тому +13

    What a beautiful family you have. There is so much love flowing and it is families like yours and stories like yours that dispel the myth that people with disabilities are somehow less-than or that people with disabilities can’t live full, happy lives. Thank you for sharing your beautiful child with the SBSK community, Ezra is a little charmer!

  • @neverthesame7887
    @neverthesame7887 10 місяців тому +9

    Wow! I salute you both. What an incredible story...and how dare these doctors tell u over and over to terminate. You both followed your heart and Ezra is now here with all of us! This is HIS journey and yours as well. He's adorable, btw and thank you so much for sharing your story! 🌺🌺🦋🦋

  • @jivalucia3916
    @jivalucia3916 10 місяців тому +7

    So happy to see Ezra happy and smiling with his family! Keep up the awesome parenting Mom and Dad! Doctors are people too, they don't know everything and they make serious mistakes all the time, sadly. I'm glad the Mom followed her heart and is able to have such a strong bond with her child. I wish Ezra a life of love, fun, peace, and joy!

  • @Forgiven4
    @Forgiven4 10 місяців тому +6

    What a precious joy and beautiful blessing Ezra is. Watching this family is why I subscribe to this channel, my heart is warmed watching the most purest of love in all the world. Thank you for sharing such a sweet angel with us!!

  • @UchihaSasuke-jb1gc
    @UchihaSasuke-jb1gc 10 місяців тому +12

    Laugh is special medicine,hope he and his family always stay happy.

  • @user-eo1sv5kn4i
    @user-eo1sv5kn4i 10 місяців тому +11

    so touched by this family, the love and peace radiates through the screen. Ezra is such a happy & beautiful little guy.

  • @-chloe-8728
    @-chloe-8728 10 місяців тому +6

    Ezra is such a lovable kid with a sweet smile. His parents are great and it's obvious how much they love him. Beautiful family!

  • @littleogeechee223
    @littleogeechee223 10 місяців тому +7

    I follow a young woman called Stephanie George and her husband, Gio, here on You Tube. They also have an adorable little son called Sebastian who also has Cornelia de Lange syndrome. These boys are so very precious and perfect.

  • @marinin_
    @marinin_ 10 місяців тому +23

    OMGGGG EZRA MY LITTLE MAN!! CAN'T BELIEVE OUR LITTLE THREATENING TODDLER GOT SO FAR 🥺🥺🥺🥺🥺 haven't even watched the video yet but I'm already immensely proud of our little man!!!! Love him so much

    • @vickiegilbert3549
      @vickiegilbert3549 10 місяців тому +1

      What a beautiful family ❤

    • @vickiegilbert3549
      @vickiegilbert3549 10 місяців тому +1

      Such loving parents ❤️

    • @andravas
      @andravas 10 місяців тому +1

      He is still threatening as ever 🫶🏼 much love 💖💖💖

    • @marinin_
      @marinin_ 10 місяців тому +2

      @@andravas little menace 🥺🥺 gonna watch it as soon as I get home from work!

  • @rhondabenz3150
    @rhondabenz3150 10 місяців тому +6

    Ezra has two awesome parents and im sure he'll continue doing well because of their attitudes and expectations. I glad they thought for themselves after hearing from doctors. Look at rhat adorable little boy❤
    I know parents who saw theur kids become adults when they were told not to take them hone, they'd live a short time. We were so proud, as classroom staff,to hear that and tell parents that. Keep doing what youre doing!!!!

  • @victoriacheramie946
    @victoriacheramie946 10 місяців тому

    I cannot imagine getting news like that and having to make a decision. I am certain either way is so tough. But I love y'all's outlook. Don't seem to be rushing or stressing over anything just relishing in every moment and what a darn beautiful smile that boy has. ❤😊😊 He clearly has purpose to bring light to lives of many!

  • @karlar534
    @karlar534 4 місяці тому

    Im soooooo happy for your bundle of joy. Ezra is such a strong name and is perfect for your baby. Beautiful family ❤

  • @doloresparlato
    @doloresparlato 10 місяців тому +3

    I am so grateful that this couple had Ezra, he's beautiful; mom and dad, thank you for loving him, and thank you for giving this world the gift of his life.

  • @CarterKey6
    @CarterKey6 10 місяців тому +4

    All children can potentially develop at different stages for 3 he doesn’t seem all too far behind honestly. Thank you to the parents for sticking with him. Keep it up and be positive.

  • @user-zd1pt9tx2h
    @user-zd1pt9tx2h 10 місяців тому +1

    What a cutie! He has an infectious smile and is just such a happy guy. Bless you all in your challenges and much love to you.

  • @clappaclappa
    @clappaclappa 9 місяців тому +2

    You can tell that mom is a wealth of knowledge, I’m sure she’s reading anything and everything to give her any advantage to help. The Dad is the perfect speed he’s the kind of calm reassurance that makes everything better and Ezra is just a sweet and precious boy that will thrive with them and obviously already is. This family is the embodiment of love. Thank you for sharing that love, it truly makes the world a little sweeter.

  • @johnwinstondarby
    @johnwinstondarby 10 місяців тому +4

    What a bundle of joy! They are amazing and loving parents!

  • @bethflores3923
    @bethflores3923 10 місяців тому +26

    Dios permita a este chiquito vivir muchísimos años de vida con sus papás ,que lo cuide y les ayude a salir adelante y sean muy felices ❤

  • @coastsmom
    @coastsmom 3 місяці тому

    He is absolutely adorable and such a joyous little boy. Bless him and his parents!!

  • @romulus_
    @romulus_ 6 місяців тому

    He's got great, supportive parents and that makes all the difference. I don't think of myself as an emotional person, but watching this brought out a lot of feelings. All the best, Ezra and family.

  • @mauralova8798
    @mauralova8798 9 місяців тому +6

    You can feel the love these parents have!

  • @classicalroach
    @classicalroach 10 місяців тому +3

    Thank you for giving him a chance. He’s very sweet!

  • @kydeerhunter5
    @kydeerhunter5 10 місяців тому +1

    Ezra has a beautiful smile. He is a very happy little boy. Lots of love and hugs to this beautiful family. They are amazing family that will fight for their son to give him a wonderful life.

  • @mrbiscuits246
    @mrbiscuits246 4 місяці тому +1

    A beautiful blessing of a child. I'm glad to see you didn't listen to the "experts".

  • @amyrobles4780
    @amyrobles4780 10 місяців тому +3

    Ezra is so darn adorable!❤ They are so blessed to have him as their son. Thats unconditional love on both sides of that relationship. ❤

  • @charsuniverse8720
    @charsuniverse8720 10 місяців тому +7

    Ezra's so aware 🥺 I love these parents, stay strong and Ezra will be too ❤

  • @Theofficial_a.r.15
    @Theofficial_a.r.15 10 місяців тому +4

    I love you kid , you are a true definition of a warrior . You are amazing and I can very tell your parents treat you right full of life no matter how bad this world is light like you bake this world bright. ❤

  • @CharGC123
    @CharGC123 10 місяців тому +48

    Such awesome loving parents of a cute happy kid! It sucks how cold hearted the medical profession can be, so eager to just dispose of imperfect children and prejudging "quality of life". Parents do need to be made realistically aware of the diagnosis and challenges, but the outcome for every child is different and the choice of how to deal with it should always be the parent's!

    • @coffeebean2370
      @coffeebean2370 10 місяців тому +9

      But theyre just doing their job?

    • @batacumba
      @batacumba 10 місяців тому +3

      @@coffeebean2370 this is turning into a pro life channel I swear

    • @luchirimoya
      @luchirimoya 9 місяців тому

      ​@@batacumbafr

  • @lauralove6439
    @lauralove6439 10 місяців тому +5

    He’s such a doll, and mom and dad are wonderful!

  • @beholdheiscomingonthecloud5526
    @beholdheiscomingonthecloud5526 10 місяців тому +1

    Thank you for sharing your precious Ezra with us!! GOD'S continued blessings on all three of you!! Much love!!

  • @sarahy8508
    @sarahy8508 9 місяців тому +2

    What a lovely, gorgeous little boy! He looks so happy and his parents obviously adore him ❤

  • @carlasouthwell7422
    @carlasouthwell7422 10 місяців тому +10

    Your son is such a blessing, and you two are intrinsically supportive

    • @BimBop83
      @BimBop83 10 місяців тому +3

      How is having a disabled child with significant mental and physical health issues, who will need extensive round the clock care for the rest of his life, a blessing?

    • @nat22228
      @nat22228 6 місяців тому +2

      @@BimBop83exactly. Same as when they say it’s a gift from God. Any other gift that you receive that is defective you return so why pretend a profoundly disabled child is something that everyone wishes for. It’s just a huge cope.

    • @yolitzinmor8113
      @yolitzinmor8113 4 місяці тому

      ​@@nat22228así es, cada quien es libre de decidir, pero lo que no está bien, es que romanticen" este tipo de situaciones....

  • @yothatsmanny7383
    @yothatsmanny7383 10 місяців тому +6

    Thanks guys, these videos are great

  • @Gkom000
    @Gkom000 8 місяців тому

    Great Parents with a great little Boy! Thank you for your testimony of unconditional love ❤️

  • @muerte_cerebral
    @muerte_cerebral 10 місяців тому

    What a beautiful baby boy and his smile was absolutely heartwarming! I think he's absolutely adorable and I'm so so happy these parents gave him the opportunity to live life while he can ❤

  • @kathydelucia123
    @kathydelucia123 10 місяців тому +15

    Ezra is adorable. Bless his parents for not listening to the doctors, What a great family.

  • @jameshamilton9936
    @jameshamilton9936 10 місяців тому +5

    Thank you for sharing your story ezra's family!! He's such a lovely little guy!!

  • @wendywelton5256
    @wendywelton5256 4 місяці тому

    You are AWESOME PARENTS! He is so blessed having you!! God bless you all❤❤❤

  • @rebeccastratton4114
    @rebeccastratton4114 10 місяців тому +2

    What an outstanding set of parents. They love their son and that's their greatest accomplishment.

  • @StormyJP
    @StormyJP 10 місяців тому +3

    Ezra is precious! You two are wonderful parents!! ❤❤❤

  • @carlos66965
    @carlos66965 10 місяців тому +66

    Termination is a choice of course, but they don't need that person to have full on advocated for it. Thats messed up. Hope he does great now and proves them wrong.

    • @andravas
      @andravas 10 місяців тому +16

      The option would have been appreciated, but how they would badger us with it just hurt. I respect everybody’s right to chose the best option for them. 💜

    • @Jenvlogs404
      @Jenvlogs404 10 місяців тому +4

      Choice of the kid

    • @lilik6945
      @lilik6945 10 місяців тому +6

      ​@@andravaslike you said in the video, the doctor was so incredibly rude about it.. thats no way to talk about something like that to a mother! its so upsetting, and the fact they would say something like that over the phone instead of properly discussing the chances of risks with you makes me so angry. you are so strong, thank you for sharing your story with us ❤

    • @gion3250
      @gion3250 10 місяців тому +5

      ALL human beings always the deserve their chance at life and unborn children are as human as they get.

  • @seahunt6055
    @seahunt6055 10 місяців тому

    He is adorable, the cutest little thing and seems very happy. You made the right decision. He deserved a chance in life, no matter what. Im sure it's very hard but he didn't ask to be here. I hope he has a long, happy life as possible.

  • @lanapoulliot7682
    @lanapoulliot7682 9 місяців тому

    Awesome sauce, thanks Ezra and mom and dad for letting us meet your amazing boy ❤

  • @StlScarlett
    @StlScarlett 10 місяців тому +8

    TOP NOTCH INTERVIEW!
    These parents are fantastic!!🎉
    Ezra is a cutie patootie. Thank you for sharing your love with us!

  • @tg7112
    @tg7112 10 місяців тому +6

    First time mum here! My little baby is called Ezra.. he’s only a couple of months old and healthy I praise God. I also praise God for your Ezra! Clearly he has a purpose and He will fulfill it against all odds. He’s such a happy lovely baby and doesn’t look like he is in any amount of distress.
    God bless your family.

  • @ghents565
    @ghents565 10 місяців тому +1

    Adorible. My neice had this also. Was just learning to walk at 11 years old. Praying he keeps doing well. They sure are happy kidos. God bless you all.

  • @judyzeigler3980
    @judyzeigler3980 10 місяців тому

    Thank you for sharing your story. Bless you all, great parents, and a beautiful little boy. He seems so very happy. God Bless all three of you.❤

  • @kristalkristal2506
    @kristalkristal2506 10 місяців тому +3

    He's a really lucky baby to get so much love as he does. You two parents are beautiful together. I see so much caring and connection in your family. It touches my heart that there are such good families like you are out there. We should all be so lucky to have gotten as much love as you have to give when we were kids. Thank you for letting us get to know you. God bless
    💞

  • @miss.phyllisreneefoster9547
    @miss.phyllisreneefoster9547 10 місяців тому +8

    so sweet and cute little baby. so cute little family, that gives every baby, kid, child, and even adults seniors, and disabled adults, give us all a chance in the world and in life, amen

  • @alisamodin9032
    @alisamodin9032 10 місяців тому +1

    Omg he's so adorable and so happy, I want to hug him!!! Reminds me of my daughter so much, so easy going, so sweet and so happy!! They would get along so well!!! Also amazing parents ❤

  • @moneystopsmolesters6330
    @moneystopsmolesters6330 10 місяців тому +1

    What an amazing child and family! God bless you all he is absolutely a blessing with that smile and handsome hair. Awesome name you gave him as well. Thank you for sharing. 💙

  • @lilyof-the-valley7324
    @lilyof-the-valley7324 10 місяців тому +6

    Ezra is such a bright spark and so lucky to have such loving and caring parents ✨️ 😍. He's so happy and content. Just delightful.

  • @annalomonossoff640
    @annalomonossoff640 10 місяців тому +5

    Well done to his parents and to all the doctors and nurses that did such a good job allowing him to have made it this far and to be enjoying his time :)

  • @sarahgumball8597
    @sarahgumball8597 10 місяців тому

    Such a sweet family , so blessed to all have each other. He is such a sweet boy! God bless!

  • @jojozep7820
    @jojozep7820 10 місяців тому +1

    Oh my gosh, he is so adorable and has the cheekiest smile! How could you ever miss out on that love x

  • @ElizabethMB17
    @ElizabethMB17 10 місяців тому +5

    *Ezra has the most beautiful and precious personality! He is an absolutely wonderful gift!! ❤️ Being able to see this content put a huge bright smile on my face, just Like Ezra's! THANK YOU SO VERY MUCH!!!* 🥰