Hi I lost the use of my legs in march 2010 and spent weeks in hospital affected my bladder too. then i lost all the colour from my sight. after lots of steroids my sight returned to normal and i was able to move around aided. originally it was said I had encephalitis and then nmo was put on Azathioprine and other meds to help. in 2014 Azathioprine was stopped and within the year I had another optic neuritis I was tested and mog antibodies were positive, stayed on Azathioprine and was tested in 2018 and 2022 and both times it was negative everyone told me they had never seen a negative change to a positive so i was happy. kept on the Azathioprine as 2015 my eyesight went completely and we didn’t want to risk it. April 2023 started having eye pain and it all felt familiar, back to the hospital where i had mri and lots of tests including anti mog and it came back positive.. this appears to be very rare so full of steroids yet again (i know they are needed but i suffer from them) I didn’t think i’d lost any vision but after 3 days of steroids everything looked much clearer. so now waiting to see what happens. good luck to all of you with this Mogad
Thank you for your comment! Your original presentation sounds very similar to mine. I hope you are managing it okay and you managed to recover from the latest attack.
Hi Scott, i also take Vitamin D and Magnesium it help me alot my last 3 mog test have came back negative i pray for you and everyone who has Mogad keep it up champ ;))
@Filippo Maria Capitanio Hey Filippo, I take one magnesium tablet at night and with Vitamin D if your levels are low you can take around 3 tablets is 3000iu when you get your Vitamin D at good levels 1000iu daily with food is sustainable I hope this helps many thanks Chichoz...
Hi Scott. Thanks for another great update. After two years of prednisolone I had to come off in October due to bad side effects - though im still testing a low positive. I'd love to know more about the talk you had with the nutritionist. The aches pains and fatigue are still ongoing and I'd love an active way to try and get them under control!
Hi I lost the use of my legs in march 2010 and spent weeks in hospital affected my bladder too. then i lost all the colour from my sight. after lots of steroids my sight returned to normal and i was able to move around aided. originally it was said I had encephalitis and then nmo was put on Azathioprine and other meds to help. in 2014 Azathioprine was stopped and within the year I had another optic neuritis I was tested and mog antibodies were positive, stayed on Azathioprine and was tested in 2018 and 2022 and both times it was negative everyone told me they had never seen a negative change to a positive so i was happy. kept on the Azathioprine as 2015 my eyesight went completely and we didn’t want to risk it. April 2023 started having eye pain and it all felt familiar, back to the hospital where i had mri and lots of tests including anti mog and it came back positive.. this appears to be very rare so full of steroids yet again (i know they are needed but i suffer from them) I didn’t think i’d lost any vision but after 3 days of steroids everything looked much clearer. so now waiting to see what happens. good luck to all of you with this Mogad
Thank you for your comment! Your original presentation sounds very similar to mine. I hope you are managing it okay and you managed to recover from the latest attack.
Hi Scott, i also take Vitamin D and Magnesium it help me alot my last 3 mog test have came back negative i pray for you and everyone who has Mogad keep it up champ ;))
Thanks Chichoz, I hope this time the test will be negative too so I can stop taking Azathioprine
Hi Scott, how much Vitamin D and Magnesium do you take per day or week?
@Filippo Maria Capitanio Hey Filippo, I take one magnesium tablet at night and with Vitamin D if your levels are low you can take around 3 tablets is 3000iu when you get your Vitamin D at good levels 1000iu daily with food is sustainable I hope this helps many thanks Chichoz...
Hi Chichoz, thank you for the answer
@@MyMyelitis How much Vitamin D and Magnesium do you take per day or week? Thank you
Hi Scott. Thanks for another great update. After two years of prednisolone I had to come off in October due to bad side effects - though im still testing a low positive.
I'd love to know more about the talk you had with the nutritionist. The aches pains and fatigue are still ongoing and I'd love an active way to try and get them under control!
Hey Sophi. Sorry to hear about your symptoms and fatigue. I’ll add it to my list of videos and try to get it made soon!
U are what u eat 😋
It definitely seems that way although it would be nice to have more evidence on the diet’s impact on MOGAD
Thats true 👍 but .......god loves a tryer
Please bro help me
Contact me through my website or social media and I can try help :)