My Must-Have Products for Sjogren's Syndrome
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- Опубліковано 4 тра 2019
- These are some of my favorite products I use to deal with my Sjogren’s, an autoimmune disease that specifically attacks moisture producing glands and can lead to excessive dryness.
✧Blog posts mentioned:
Sjogren’s: balancedandblissful.com/sjogre...
CBD: balancedandblissful.com/a-quic...
Alive Market blog: alive-market.com/blogs/alive-...
✧Videos Mentioned:
○How I Was Diagnosed with Sjogren’s Syndrome: • How I Was Diagnosed Wi...
○A Week in my Life with Chronic Illness: • A Week in my Life with...
Products used in the video:
These are affiliate links.
○Thera Tears: amzn.to/2DL7f9X
○Heated eye compress: amzn.to/2VbkPhf
○Omega 3-6-9 supplement: amzn.to/2PHkcpK
○Chia seeds: amzn.to/2DMjMKf
○Rallye balm: bit.ly/rallyelipbalm
○Infuser water bottle: bit.ly/2LA3o5Z (code “mollym20” for 20% off)
○Lemon drops: amzn.to/2UWSre3
○Moisyn mouthwash: amzn.to/2VdXGej
○CBD: alive-market.com?aff=24 (code “blissful” for 10% off)
○Babo Botanicals sunscreen: bit.ly/bbsunscreen (code “ref15_dnny2m” for 15% off at Follain
Sign up for Thrive Market here: bit.ly/thrivemarketmolly
✧ Freebies:
Download your FREE Mini Mindfulness Manual here: mailchi.mp/09cad98328da/minim... - it’s a 15 page e-guide to kickstart your mindfulness practice, featuring the 3 key concepts of mindfulness, the benefits of mindfulness, and 6 simple mindfulness practices that you can incorporate into your life!
✧ Discount codes:
These are affiliate codes and links.
○ “MOLLY10” gets you 10% off on Dr. Brite natural oral care → bit.ly/drbrite
○ “BLISSFUL” gets you 10% off on Alive Market CBD products → bit.ly/alivemarket
○ “BALANCED10” gets you 10% off at Evolve Fitwear → bit.ly/evolvefitwear
“ref15_dnny2m” gets you 15% off on Follain clean beauty & skincare → bit.ly/follainbeauty
“MOLLYM20” gets you 20% off at Clean Skin Club → bit.ly/2H06uvB
○ “MOLLYYOGI” gets you 15% off at Altar Ego Apparel → bit.ly/altarego
○ “MOLLYYOGA20” gets you 20% off at Pura Vida Bracelets → bit.ly/puravidajewelry
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✧ P.O. Box:
Molly McCarthy
P.O. Box 541563
Waltham, MA 02453
✧ About me:
Hi! I’m Molly, a Boston based wellness blogger and RYT. My mission is to help others find bliss through a balance of mind, body, and soul wellness! This involves everything from yoga, to skincare, to self-care. I am a chronic illness and mental health advocate (having Sjogren’s Syndrome, a total thyroidectomy, and anxiety).
Thanks for supporting me and my little channel :)
Biotene, which I use, makes good products for us suffering from Sjogren's. They make a toothpaste that doesn't hurt my sensitive teeth, a nice mouth rinse to ward off dryness, and lozenges to pop in your mouth whenever you feel dry. Recommended to me by my daughter-in-law, who is a pharmacy manager.
I use them all too
I have had Sjogren's for 8-15 years or so. I was diagnosed in 2020 with a biopsy of the salivary gland. That was not great and if I had to do it all over again I would probably just assume I had Sjogren's and treat myself naturally anyway. I cannot take HCQ which is the most common prescription for Sjogrens as it made my palpitations worse. I also could not take the medication for dry mouth as it too made my mouth even more dry. The items that have helped me the most is Xylimelts especially during the night and Systane eye drops at night and sometimes during the day. I also use Spry mints, a humidifier, Doterra lemon drops in my water or real lemon slices. I use very clean lotions and cleansers and use oils as often as possible on my face and skin. I take cod liver oil, selenium and a few other supplements. I try to walk as often as possible-movement is so important. I also use a waterpik which I love and also a rotary toothbrush. Oral health is so important. I also floss daily before I go to bed. For sleep I use essential oils on my spine or on the bottom of my feet. In particular I use, Peace, Cedarwood, Lavender and others. I mix it up a bit. Essential oils help me immensely. For pain I use essential oils and occasionally have to switch to a prescription medication or ES Tylenol when I am in a flare. I worked with a Root Cause Clinic and they shared with me that many with Sjogren's can have opposite reactions to supplements/medications etc. They also can have opposite results with hyaluronic acid or collagen as we don't typically have the moisture within our bodies to make these effective. I find this to be true. Thanks for your video. I will check out your others.
You mentioned the omega fatty acids a number of times in the video. There is one in particular that you did not talk about wondering if maybe you just are not aware of it.
It is omega seven. Palmitolaeic acid. It supports the Mucosal membranes of the body. It’s found in sea buckthorn oil, extracts, and macadamia nutsprimarily
Inaddition to dry eyes and dry mouth, lips, I have dry nasal passages. I get a lot of relief from a product called Ayr. It's small tube of a saline gel that works pretty well. Actually, it works very well.
I’ve used Ayr for years. I use it at night before bed; sometimes in the morning. It’s better than store brand saline for sure.
@@christinekenney5186 I use Systane eye drops when I need it. My biggest problem is dry mouth. I'm back on Cevimeline 3x a day which helps. Had to battle with insurance to get it covered. They had switched me to another drug which was useless unless I wanted to pay a fortune out of pocket. My most difficult challenge is keeping my lips moist. I had surgery which has also left me with oral paresthesia. The best product is out of stock - B Kamins lip balm. Kiehls is a decent runner up. Paula's choice is just OK. The rest are useless. I have a collection of lip balms that were a waste of money.
Where can I buy it?
Hi Dale I have Sjogrens and will try it for my nasal passages. It is horrible at night.
Ayr was suggested to me by my brain injury therapists after the nasty car wreck I was in. I have a severe TBI from my head hitting the window of my car after it was T-boned. I use the nasal wash and the gel of that product line - they work wonders!! As far as dry mouth goes, I take lysine supplements and I use the Biotene mouthwash. I also keep OralB gel on hand to treat my gums if the need arises. For dry eyes, I use Similasan (because of my allergies to different medications & the ingredients in them).
Thanks for making this video molly!
Love this video! Excellent info, thanks for sharing. There is such limited info on this condition out there, some docs are clueless about it so thank you
This was super helpful!!! I was just diagnosed and I felt that people around me had no advice and I had no idea what to look up or what to ask. So thank you so much for this. I felt way more educated and helped. Thank you so much ❤️
Hi did your rheumatologist prescribe you medicine? And do they suppress your immune system?
@@suzzyy8669 yes
This is great. My Mom struggles so much with Sjogren's symptoms. I'm going to forward your video to her. Thanks
Cod liver oil for dry eyes… in capsules. xylimelts at night for dry mouth, the best ever.! Swiss Kriss for dry bowels. Broccoli sprouts. A little fresh black pepper on the tongue really gets the saliva moving too. If my sinuses are super dry, I shake the pepper shaker and inhale the super fine dust…gets both the sinuses and tears moving. Also I rub NOW vegetable glycerin on my eyelids and lashes…wow..does that ever help!
All 4 looks are so beautiful. I can't even choose a favorite! Love the greenery, lovely vessels and candles. Both paintings are very pretty too. Aria sounds like a very sweet little girl and it's so nice that she loves watching your channel!
Thank you for the information. I have had RA for over 15 years and last year I was diagnosed with sjorens too. I believe knowledge is power so this helps give me things to try.
love your personality, made me smile 💕
ExtraErika and thank you 😊😊
this was great thankyou so much for making this video 💞💞💞
thank you.. so very helpful.. i have Fibromyalgia, Lupus, severe chronic pain/ fatigue etc., now sgjorens which i suspected years ago but i kept getting thrown into the Fibromyalgia garbage can. Now i’m enduring $13,000 of dental repair.. not due to sugar because i don’t eat any form .. makes my 30+ years of suffering worse. Anemia, malnutrition and gastric problems cause so much more issues too and destroyed my teeth along with severe dry mouth and bruxism, grinding, clinching so hard from pain. But thank you for all of your help. I’m purchasing what i can now. ty 💚
I appreciate your tips!! Thank you!!
Love this video! I’m recently diagnosed w/ Sjögren’s (although probably had it for years). I really love all the natural product recommendations! Thank you - (a fellow) Molly :)
MollDoll29 hey fellow Molly! Sorry to hear about your diagnosis, but hopefully it comes as a relief and you’re able to put together a game plan for treating it. I’m super into natural products, so I use them whenever possible!!
I developed a severe allergy to hydrochlorquine, so I stick to supplements such as Omega 3,6 and 9. I use sugar fee drops and gum for the dry mouth. Restasis and halo gel for the eyes. Sunscreen is a must as I also have dermatomyocytis.
Thank you so much for this info. I recently learned I have Srogen’s.
Thank you for making this video! One product that I have found that really helps with overnight dryness of the mouth is Xylimelts. They adhere to the side of the mouth and slowly dissolve overnight. It is the only thing I have found helpful with mouth dryness overnight.
Where do you get them from?
New subscriber. thanks for the video and information. I also have a Sjogren’s and it is always nice to see what others are using that help :-)
This is beautiful, thank you! I can't say enough about Restasis for dry eyes. I was about to file for disability when my ophthalmologist prescribed it after punctal plugs failed to ease my suffering.
It changed my life!!! After being on it off and on for 3 years, my eyes went into a kind of remission. While I still have occasional dry eyes, it has not gotten bad again, and it's been nearly 15 years.
I highly recommend Xylitol gum for dry mouth. Xylitol is something our bodies make and not a synthetic drug. Xylitol sugar is the bomb! Tastes great, is all natural, and it helps to keep your mouth biome healthy.
Thank you so much for all your wonderfull information!
Such great information . Thank you so much! Will go to your blog and tks for your email as well
Facial steamers help. I have also put a little natural chapstick on the outer corners of my eye. I have done with castor oil too. Hall have a drop that is for dry mouth too.temu has a vaporizer for your eye. Feels so good. If you don’t have have presc. glasses get some with no prescription. It keeps wind out of eye.
Hello Molly - I've had sjogies for the past 28 years and discovered, about a year ago, that stinging nettle supplements and stinging nettle leaves make a world of difference. Also stopped drinking hot tea and coffee
Why did you stop drinking hot tea and coffee?
Did sojgren effect teeth?
@@ne5464 Sjogies is caused by inflammation which is heat so by drinking hot tea and coffee once actually makes the inflammation worse
@@noo8160 Yes the dryness causes tooth decay so one has to use a high fluoride prescription toothpaste
The tea leaves and tea make our mouths even drier. Two doctors have told me not to drink tea. I can drink chamomile tea though.
Thank you Molly, such good info! I'll be picking up lemon drops!☺
Very helpful, thank you!
thank you for this!!! so helpful 🖤🖤
ExtraErika I am so glad!!
It would stand to reason that it would effect both small and large intestines..I have lived with chronic constipation on top of dry eyes and mouth. Thank you for sharing.
Thank you for this!
such a great and informative video; im into the sjogrens club too😊 and wonder if you could tell about any certain type of exercise
While Xylitol products are great for dry mouth and sicca, if you have IBD/IBS, it can mess you up!
I also use an enamel repairing product, MI Paste, for tooth sensitivities.
I use an spf lip balm since I've already had a precancerous mole removed. And I AVOID petroleum and mineral oils, they dessicate my lips!
I also heard krill oil is good for sjogren's because it is an omega-3 oil which is a natural anti-inflammatory and it also helps with keeping eyes moist, plus it has astaxanthan in it which helps protect the skin from sun damage. A good overall product for sjogren's. Thank you for your advice.
Many people with Primary Sjogren's Syndrome have problems due to lack of saliva production and can not digest such oils.
I have dry eyes and dry mouth. SS-A antibody level is several folds higher than normal. My appointment with rheumatologist is next March.
Really appreciate the natural tips 🙏 the auto immune meds are so toxic 😢
For dry mouth with Sjogren's I use Spry mints during the day time and Xylimelts overnight. Both work great!
patchworkmermaid good tip - thanks! I’ve heard great things about xylimelts.
I use Xylimelts too. I have speak quite a bit for work, running training, so these are so helpful.
Hi There I have Sjogrens , I have had diagnosed 2008 but I think I had autoimmune problemsssince child thanks for your blog
I have had great full body success by taking Pure Himalayan Seabuckthorn Oil omega 7 complete softgels from a company called Seabuck Wonders. I was introduced to it by the tennis champion Venus Williams. Hope this helps you & others🙏🏻❣️
I find astaxanthin caps stop sunburn and can make your skin really nice.
Thanks little lady
Thank you
Hi first time watching your channel. There is only one thing you said, that I find some disagreement with. I am a very fair skinned, person living in Florida. I'd ALWAYS had to use a sun screen to avoid burning. However, after being on a "health journey" of my own because I had developed Type 2 Diabetes. I removed all grains, all processed foods, and all sugar of any kind. I now consume a very simple diet with one ingredient foods. What i've found is that it takes me 3x as long to begin to burn in the sun. I am a big believer in getting out into the sun for at least 30 mins per day for Vitamin D absorption. Sunscreen prevents the absorption of natural Vitamin D from Sunshine. I have spoken with many people who have given up sugar/grains/processed foods and they all have said they no longer need to wear sunscreen and do not burn like they used to. This would make for an interesting blog post/video that might be helpful for others. Thank you so much for your video - it was very helpful in many ways.
This is true for me too. Sun feels good now, but I hardly notice a difference in my skin color no matter how long I'm out. Seems strange to me!
Thank you 🙏 !
thank you so much!!
Do you have any suggestions for pain. I have had fibromyalgia for over thirty years and am just seeing a Neurologist and am being tested for Sjogrens as I have a lot of new symptoms over the past few years. I have small fiber neuropathy and the pain is very debilitating. I have sensitivities to most drugs. I have been on an opioid for some time, but would like to go on something else if possible. I have tried all the regular ones such as Gabapentin, Amytriptilene etc, but just can’t tolerate any of them. Looking for some alternatives. Thank you so much. Found your video very informative. Hugs
Hello I have this thanks for posting this information
Hi! Have you ever tried the AIP? I've been on this like 2 weeks and I'm seeing results in moisture, I even drool at nights haha
I’m having difficulty getting diagnosed. I’m applying to the sjogrens clinic at John Hopkins. I have crohn. I’m a nurse and find the physicians are not knowledgeable enough about sjogrens. I really struggle with chronic fatigue and dry hardening skin. I’m so happy to find your channel. You have given me renewed hope.
To make you feel better , either have a Swedish or Thai massage and it helps a lot and go ….green smoothies . God bless you 🙏❤️
My PA recently sent me to a rheumatologist in my city that tests for all autoimmune diseases. Maybe try asking your doc for a referral. Took my PA sending referral to 2 as the first did not test for CFS or other autoimmune. I never even heard of it until I got my results.
On month 3 of restasis. Oh how I would love for it to start working.
Great video
I take it at bedtime following which I lay down and keep eyes closed. The product doesn't escape that way. Hopefully this will help.
Use the heat pad referenced to loosen oils in eyelid glands. That is the real issue.
Never worked for me!
Thanks so very much. I was literally officially diagnosed an hour ago with Sjogrens and Fibromyalgia
Hi did your rheumatologist prescribe you medicine? And do they suppress your immune system?
@@suzzyy8669 yes, I take plaquenil 200 mg twice a day as I'm allergic to other meds i.e., anti-inflammatory, pain meds
@@ericamiller3585 ok thabks
Me to😉
@@ericamiller3585 me to plaquenil 200 and gencort hidrocortison
Molly, I have a favor to ask. Could you please turn up the volume of your recordings? I have my computer volume up all the way and am straining to hear you. I'd love to listen!
I am deaf and use the cc
please do turn up the volume. the cc is giving weird versions of what I believe you are saying.
I just saw on a medical sjogren's video that you shouldn't take little sips, that can make it worse. They saidtake a full drink of water, not as often.
Awesome, up until the cbd oil. I tried cbd oil and it makes the mouth about 10 times drier. It didn't help with anxiety, sleep, or pain. It just made me feel weird and I ended up overdosing on it, which landed me in the ER, as I was trapped between the sleeping and waking stage. The other things have definitely helped. I also take sea buckthorn oil for dry mouth, which has helped tremendously. It comes with omega 7 complete, the sea wonders brand.
CBD made me totally sick - it was recommended by a friend's hubby, a Physician, who used a fairly expensive brand to help pain from knee replacement therapy. It was just awful for the tummy, but it's great to share ideas, try things, and cull a basketful of what works for YOU.
Has your blog page been moved or renamed? Used your blog link but it won't take me there
Hi Molly, Just found your channel. Your God sent I was diagnosed a few years ago. For my dry eyes doctor has me on Xiidra. My dentist just recommended a special fluoride toothpaste. And Closys mouthwash. After many years i am somewhat hopeful i am headed in the right direction now. I wanted to ask can Sjogren cause really bad breathe(halitosis) i have experienced this for many years. I always chew sugar free gum. Brush 2 a day and floss. Breath still can catch a haystack on fire. I was recently diagnosed with oral thrush and ulcers😢 Not sure if either is contributing to nasty mouth odor. I will try the product you have recommended and see if they will help and i can get out of this depression i am currently going through. Thanks.
Bad breath is often from the digestive tract. Try taking enzymes and probiotics for a while. Get some advice from a holistic doc as to dosage and application if you are uncertain! Get tested for h-pylori a gut bacteria.
Is there anything for extreme dryness inside the nose, that closes the air ways? Thanks
How u doing now ? Is there any progress
What can you recommend for dry, static hair?
Sweetie you give a lot of Great information! But Please SLOW DOWN when you are talking. We OLD people can’t process the info as fast as you young-uns can! But keep up the good work, your doing Great! 🤗
Yes, Molly - please make sure you practice and enunciate and pause. Clearly you love what you do, and we all appreciate you. As a Vocal Coach, I'd recommend a month or two of speech coaching - it would make all the difference in your presentation and professionalism. Kindly hold up the bottles for at least 30 seconds so we can see what the label says. And for listeners - in the UA-cam settings you can select the replay speed, meaning you will be able to slow down the speech rate to suit your listening and absorption much better.
I actually listened to her on 1.5x.
Manuka honey drops and gel. Stings like crazy only lasts for a few minutes. Drops probably better for most
I am thinking I have this, I am getting a blood test to see. Last 2 weeks have been terrible for me. I think everything is coming to a head. I feel everything I have been to the GP about in the last 10 years have something to do with this, dry ears, salivery glands, dry eyes and mouth, dry skin and dry privates . Last few weeks feel so tired, loss of appetite, loss of taste, fever, aches, nausea. It all points to SS. Thanks so much for info
Did your results confirm Sjogrens?
@@CrabbyBeach3456 no, I had blood tests and my lymphocytes where high and then eventually my symptoms stopped. So gp didn't take it any further. Thanks for asking
@@SammyJaneD what exam did the doctor make? I would like to ask my doctor but I don't know how they can test this.
@@nancybartolino9134 they did blood tests but not sure what they tested for now after a year. I know one was to check my lymphocytes count , which were high. Apparently I am OK and had nothing wrong. A year on I do feel okay
Do u wake up in the middle of the night...dry and 🔥..joint pain
Molly tell as what kind of food you heat
Hi
Did you have a problem eating chocolate? Did it dry out your eyes?
Thanks for the suggestion for eye drops, Systane. It works fast, no burning and I even feel more focused.
Yes it is great .. but it is so expensive..My eye doctor gives me samples when I go and that helps..
I have that BUT it contains a preservative PLUS hydrochloric acid and/or sodium hydroxide. I'm gonna switch to a nonpreservative item I think.
Many of us cannot tolerate systane.
The 3 eye products you discussed did not work for me.
Chaque matin je me reveille avec les yeux colles ! Comment faire ??? Merci !
Nothing has helped me 14 years
Accutane induced sjorgens like issues
I’ve tried so much :(
I use life saver peppermint
I can't use sugar free any sugar free products inflame my osteoarthritis raising my pain levels.any artificial sweetness are not good for painful joints
My nose and throat’s becoming really try any suggestions
I’m Sorry,but did I Miss the Link to the Lip Balm?
how much mg of omega 3 do you take ?
Thank you XO
Helpful, just wish you had a microphone - very difficult to hear you.. thanks!
Thanks for sharing , is xiidra works for u ? Thanks
I use it. It works great! For me, I wanted to wear contacts and never could because of dryness. Restarts didn't work. Xiidra took a month or so, but now I can wear contact more than 10 hours at a time
@@vanessasmith2967 nicee i wish i can try it one day in my country we never have this stuff 😌
I've been diagnosed with sjogrens and I don't have any dry problems.
It may still come :(
I have slightly dry eyes; nothing major. Am having a little trouble with my contacts, so I might have to give them up. I’ve always had sensitive eyes; now I use Refresh. I’m older (66) and in good health (until this diagnoses!), I have bursitis in both hips, I’m a little stiff when I’ve been sitting a bit but I walk and do light weights for exercise. Keep moving and don’t let this diagnoses get you down! Stay positive.
How were you diagnosed? By biopsy? How does Sjogrens affect you?
I have join pain also... I am sjogrens patient.. How to overcome strees...
Thai massage can , really help out for the joint pain . rather than taking a lot of medications , that will harm your bodies . And read your Bible and helps a lot . God bless you 🙏❤️
Dont you hace any medication for dry mouth ? Salagen ?
I have the same syndrome and my mouth doesnt have saliva
I hear Salogen works well. I use cevemiline and have for years. I think it works great. I take it with food. Occasionally it makes me swear a bit but it has been well worth it for me
I use a zylimelt at night. It helps.
I have really bad chapped lips nothing works
I have been told that I have sjogrens but I have put off going to the rheumatologist because I am fearful of what type of medicines will be prescribed. Are all of you on steroids to treat the symptoms of sjogrens? What type of medicines are you on and what type of side effects are you experiencing?
Hi Angela, my rheumatologist prescribed me plaquenil which can cause blindness so I decided no to take it and I went on with my life ignoring my symptoms. But now my symptoms are getting worse and I m going back to the doctor to find out about new medications available but I still have concerns about taking medications. I heard that going on a vegan or Mediterranean diet can be very helpful because it is antiflamatory. Good luck and God bless.
@@islainecavalcante9953 thank you. I too was attempting to ignore my symptoms but they have become too intense. I made an appointment with the Rheumatologist for this month so....I put my faith in God and will become well informed.
No meds for me. I stretch in bed every morning with hip exercises; I walk and lift light weights also. I have bursitis and arthritis just diagnosed in the past 2 years. I’m 66 years old, try to eat healthy and I babysit my 4 and 1 yo grands. Keep positive and keep moving. Treat your symptoms and avoid meds like hydroxychloroquine as long as possible.
Can't agree more...am a retired paramedic seen too many Dr's throw drugs at pts terrible side affects and addiction
Most of those frugs have awful sx. Try diet, Retaine, xlitol etc! Heat on eyes and castor oil
Thank you! I have Sjogens and I feel like I’m losing my eye sight. I’m on hydrochlorquine in which helped immediately one diagnosed. I am using Refresh and it’s not working I will try Tears. Thanks
I have found for me Systane works best. Genteel also helps a lot. I buy both from Amazon. I have tried Tears but did not get long lasting relief. I use a couple different brands and rotate randomly, it seems to keep them all working.
@@pennyvecchio6239 I will order. Thanks and I’ll let you know. Have u gained weight? I am🥲
I do when I have a relapse of symptoms but my weight goes down when I stabilize a bit. I can tell when I am having major issues because I wake up unable to open my eyes. In fact that is how I found out I had It before I was verified with blood work. Very scary thing to happen.
@@pennyvecchio6239 I use genteal drops and gel for severe dry eyes. But it's not effective. Tried several drops.
What drops you are using for eyes now.
That is a possible side effect of taking that specific medication penny
How can I manage my cavities and tooth decy
Coconut oil leaching and frequent cleanings brush often and floss well
Closys...the toothpaste, mouthwash and sprays. All of it. Xylimelts at night. Good oral hygiene routine.
If there is anybody on here that sjrogrens affects dryness in the nose, I would love to know what you use.
i use neil med nasal gel...helps alot
I use a humidifier hot during the night it heph
I apply organic castor oil to nasal passages and eyelids at bedtime.
For lips was that red apple balm
I tried the red apple balm it didn’t help me nothing have
My rheumatologist tested me and said I'm negative but I have nearly EVERY symptom 😢 How can I get the right tests done?
Up to 65% of ss have no blood markers until organ damage is well underway. Join the foundation and read like crazy. Docs know very little about SS
It’s not easy to diagnose… How did your rheumatologist rule it out?
I've had symptoms for over 15 years before my ANA and other tests were positive.
En francais ??? (Commentaires) ! Merci !
How are you today?
All familiar and hate side effects some of the medication can cause. Anything natural is best. 👍🏼
My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on UA-cam and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus🎉.
I've had sojourn at least 30 years I've been experiencing terrible dizziness went to er they didn't know how to TX me going to my dr for follow up...now I have this info and hoping he'll listen, been diagnosed with fibro also
What is that last thing you mention
@@sarahupchurch5480 you should contact Dr madida to help you.
@@sarahupchurch5480 Click #DrMadida
biotene has a laxative effect
Go to dentist 2 times a year and have florid applied you your teeth each visit
It would be good if you actually used a microphone.........most of us are not very good at lip reading !
Do you feel like sugar triggers symptoms?
Joni I have never found that correlation! But doctors recommend sugar free candies bc dry mouth can already lead to dental issues, so why add sugar on top of that? Haha
I would agree with your question and the answer, let me just add my two cents. Whenever I consume a lot of sugar I feel overall kind of crappy, and I would get this weird tightness in my lower chest. My GP and Rheumy said to really watch my sugar intake because too much of it can inflame your body, and your body is kind of already inflamed bc its being mistakenly attacked by your immune system. After I started watching my sugar intake, the tightness went away and I didn't feel as crappy. Sorry for the long reply and hope it helps :)
You should stay away from sugar. I have had Sjogrens for 15 years, possibly longer than that.
If you have dry mouth, it destroys the salvia which is critical in coating and
Protecting your teeth.
Unfortunately, I know too much about this. I have spent year's at the dentist. I'm still dealing with my teeth breaking off. I've had root canals in almost every tooth.
I drink alkaline water and buy special toothpaste and everything I can find to help. Nothing is helping and I am now disabled and have no dental insurance.
Please be careful with sugar intake.
I hope this helps ☺️
Thanks so much for the advice. I thought I had tried every toothpaste and mouthwash, but I just got the Colgate mouthwash and I really like it. It doesn't burn.
It does for me. My main symptoms are peripheral nerve damage. I avoid sugar and gluten like the plague.
Si può tradurre in Italiano?
I miei prodotti indispensabili per la sindrome di Sjogren
Ehi, gente, sono Molly. Bentornato nel mio canale. Oggi voglio fare un video che mostra alcuni dei miei prodotti preferiti che uso per affrontare i diversi sintomi della mia sindrome di Sjogren. Quindi non parlerò tanto dello stile di vita e dei consigli per combattere la fatica. Se li vuoi, puoi dare un'occhiata al mio ultimo post sul blog, che è tutto su Sjogren: come gestisco tutti i sintomi, quindi dai un'occhiata; e se vuoi vedere come mi è stato diagnosticato lo Sjogren, ho un video a riguardo qui sotto, e anche un video di una settimana nella vita con Sjogren.
Oggi esaminerò tutti i miei prodotti fisici preferiti per diversi sintomi. Quindi inizierò con gli occhi asciutti. Lo Sjogren attacca specificamente le ghiandole che producono umidità, quindi provoca molta secchezza e gli occhi asciutti sono stati il primo sintomo di secchezza che ho avuto. La marca di colliri che scelgo di usare si chiama Thera Tears. Vengono in una bottiglietta come questa, oppure puoi ottenere piccoli pacchetti monouso e io uso solo le gocce normali, ma ne hanno anche uno che viene fornito in pacchetti monouso per l'uso notturno, quindi è un po' più spesso e lascia la tua vista un po' sfocata, ma può davvero aiutare durante la notte, perché a volte mi accorgevo che mi svegliavo nel cuore della notte con gli occhi asciutti e avevo bisogno di applicare un collirio quando ero mezzo addormentato. Quindi adoro davvero i colliri Thera Tears.
La cosa importante che vuoi fare è usare un collirio che non contenga conservanti e Thera Tears è probabilmente il più popolare di quel tipo. Poi, anche io di recente, o forse sei mesi fa, ho preso un collirio con prescrizione. Sono andato su Xiidra. Xiidra e Restasis sono i due che sono raccomandati, e quello arriva in questi piccoli pacchetti monouso che ne hanno circa cinque in ciascuno, e ne ha abbastanza in una fiala per fare una goccia in ciascun occhio al mattino e una goccia in ogni occhio la sera.
Un'altra cosa che uso per i miei occhi asciutti è una maschera riscaldata per gli occhi. Questo è pieno di quelli che sono un po' come fagioli, quasi. È una specie di termoforo. Lo metti nel microonde per un breve periodo di tempo, diciamo 30 secondi, e poi lo metti sugli occhi. Puoi anche metterlo intorno alla testa e attaccarlo con il velcro e sembrerai un po' un insetto. Quando lo togli, scoprirai che la tua vista è un po' offuscata perché il tuo occhio ha prodotto oli naturali, quindi è un'ottima cosa da fare, di nuovo, mattina o sera. Se lo fai di notte, potrebbe aiutarti a dormire, perché non ti sveglierai con gli occhi asciutti. E poi, se lo fai al mattino, si spera che aiuti a dare il via alla produzione di quegli oli da parte dei tuoi occhi.
L'altra cosa che faccio per gli occhi asciutti è che uso degli integratori. Quindi il marchio di cui parlavo prima, colliri Xiidra, è un ottimo integratore per gli occhi asciutti, che ho usato per un po', ma ora uso qualcosa chiamato Omega 3-6-9. È prodotto da Sundown Naturals. Collegherò questo e tutti i prodotti di seguito. Questo ha ingredienti molto simili al farmaco per gli occhi secchi Thera Tears, ma è un po' più economico perché non è commercializzato come quello. È fatto con oli di semi di lino, pesce e borragine e le vitamine Omega sono davvero, davvero ottime per gli occhi asciutti, quindi questa è una raccomandazione di qualcosa che sento mi ha aiutato.
Un'altra cosa che il mio oculista mi ha consigliato sono stati i semi di chia, quindi li ho presi al Thrive Market. Se non lo sai, Thrive Market è un ottimo mercato online dove puoi acquistare tutti i tipi di cibi sani e prodotti per la cura della pelle a prezzi più convenienti. Questo non è sponsorizzato, ma metterò un link per iscriverti in basso se sei interessato. Quindi questi sono i semi di chia del marchio Thrive. Di solito mi piace aggiungerli al mio frullato mattutino, quindi aggiungo solo un cucchiaio, e questi hanno anche gli Omega tre, che è ciò che aiuta con gli occhi asciutti.
Quindi, dopo, possiamo parlare di secchezza delle fauci. Non lo provo molto, ma ho spesso le labbra secche, quindi quello che uso per le labbra secche è questo balsamo per le labbra davvero incredibile. Viene da una società chiamata Red Apple Lipstick, che ha prodotti completamente naturali, e questo è il loro Rally Balm. Quindi, è un balsamo per le labbra trasparente che viene fornito in un tubetto di rossetto e lo metti semplicemente. Lo uso un paio di volte al giorno. È così importante. Vedo che in realtà è stato formulato specificamente per la secchezza da malattie autoimmuni, come Sjogren o Crohn, perché possono causare disidratazione, e poi celiachia, quindi è senza glutine. È privo di tossine ed è un balsamo per le labbra davvero molto nutriente.
Quindi, per la vera secchezza delle fauci, il consiglio più grande che posso dare è idratare. Bevi acqua durante il giorno. Bevilo a piccoli sorsi, in modo coerente, e un grande trucco di Sjogren è aggiungere il limone all'acqua perché l'acidità incoraggerà le ghiandole salivari a produrre più saliva.
Quindi, per la vera secchezza delle fauci, il consiglio più grande che posso dare è idratare. Bevi acqua durante il giorno. Bevilo a piccoli sorsi, in modo coerente, e un grande trucco di Sjogren è aggiungere il limone all'acqua perché l'acidità incoraggerà le ghiandole salivari a produrre più saliva.
Quindi, una cosa che amo fare è usare il mio flacone con infusore. È vuoto adesso, ma dentro questo tizio c'è un piccolo infusore, e puoi aggiungere frutta a questo, e poi lo metti nella bottiglia. Aggiungi acqua e la infonde con il frutto. Quindi, mi piace molto aggiungere il limone a questo e poi lo lascerò durante la notte nel mio frigorifero e quando mi sveglio prendo una bella limonata fredda. Questa bottiglia specifica è di Clean Skin Club. Lo linko in basso. Hai un codice sconto anche per quello.
Un'altra cosa che molte persone usano per la secchezza delle fauci sono le gocce di limone o altri tipi di caramelle dure. So che Act, che è un'azienda di collutori, produce gocce specifiche per la bocca secca, ma devo solo prendere queste gocce al limone. Sono il marchio CVS. Assicurati sempre di essere senza zucchero. Sjogren e secchezza delle fauci e tutto ciò può causare comunque carie e problemi dentali, quindi si vuole evitare qualsiasi ulteriore carie dentale. E solo l'acidità e l'atto di frusciare in bocca aiuta a incoraggiare le ghiandole salivari per più saliva.
L'ultima cosa è che molte persone che hanno la bocca secca usano collutori secchi. Io, personalmente, non ho ancora dovuto usarli, ma ho questo campione di Moisyn. L'ho ricevuto alla conferenza sulla sindrome di Sjogren a cui sono andata di recente. Ancora una volta, so che Act fa un collutorio per bocca secca, e anche Biotene è molto, molto popolare.
Quindi, un paio di altri prodotti vari di cui volevo parlare: il primo è il CBD, che è molto popolare. Probabilmente ne hai sentito parlare molto nel mondo del benessere. Ho un post sul blog tutto sul CBD. Lo collegherò di seguito e scrivo anche molto come freelance per una società di CBD chiamata Alive Market, quindi posterò il loro blog di seguito. Ci sono un sacco di informazioni davvero interessanti e ho un codice sconto per loro.
I due prodotti principali che uso da loro sono le loro capsule di CBD e il loro olio di CBD. Io uso l'uno o l'altro. Non li uso entrambi insieme, e in realtà ho iniziato a usarli per aiutare con la mia ansia, ma sono anche molto, molto utili per l'infiammazione, e quando hai una malattia autoimmune, fondamentalmente significa automaticamente che c'è un'infiammazione nel tuo corpo. Mi piace prendere una capsula ogni mattina con le mie vitamine, oppure prendo circa mezzo contagocce dell'olio.
L'ultima cosa è la crema solare. Sjogren e altre condizioni autoimmuni possono causare fotosensibilità o una maggiore sensibilità al sole. Ho già la pelle facilmente bruciabile, quindi indosso sempre la protezione solare. Penso che sia molto importante, ma una cosa che ho capito dopo che mi è stata diagnosticata la sindrome di Sjogren è stata che anche quando indossavo la protezione solare, mi prudeva davvero molto dopo essere stata al sole. Così, ho imparato che è molto importante usare una crema solare a base di ossido di zinco, e mi piacciono quelle più naturali, quindi mi piacciono Babo Botanicals, mi piace Badger, mi piace ThinkSport.
E poi, ho mentito, l'ultima cosa di cui parlerò è la prescrizione che ho, che è Plaquenil, o idrossiclorochina. È il farmaco più efficace e più sicuro per Sjogren. Devi essere attentamente monitorato da un oculista. Ci vado ogni sei mesi perché una percentuale molto, molto piccola di pazienti può avere problemi con la retina, quindi devi stare al passo con i tuoi test e assicurarti di prenderlo presto, se succede del tutto. E poi, dopo, ci sono un sacco di altri farmaci che potrebbero provare. Potrebbero provare il metotrexato, il Rituxan o anche più farmaci. . . continuano ad andare finché uno funziona. Quindi, sicuramente, consulta il tuo reumatologo per parlarne.
Quindi, questi sono i miei prodotti preferiti per la secchezza degli occhi, la secchezza delle fauci e per gli Sjogren in generale. Come ho detto, ho collegato un sacco di informazioni in basso. Ho parlato di queste cose sul mio blog e ho altri video di UA-cam a riguardo, e se hai domande o commenti, non esitare a commentare qui sotto o inviarmi un'e-mail. La mia email è Molly a balanced and blissful punto com. Sono su tutti i social media -- potete trovarli qui sotto, e spero che ne abbiate uno buono!
Questi sono alcuni dei miei prodotti preferiti che uso per trattare il mio Sjogren, una malattia autoimmune che attacca specificamente le ghiandole che producono umidità e può portare a un'eccessiva secchezza.
Hey, everyone, it's Molly. Welcome back to my channel. Today I want to make a video showcasing some of my favorite products that I use to deal with the different symptoms of my Sjogren's Syndrome. So I'm not going to talk as much about the lifestyle and fatigue fighting tips. If you want those, you can check out my latest blog post, which is all about Sjogren's -- how I handle all of the symptoms, so definitely check that out; and if you want to see how I was diagnosed with Sjogren's I have a video about that down below, and also a video of a week in the life with Sjogren's.
Today I'm going to be going over all of my favorite physical products for different symptoms. So I'll start with dry eyes. Sjogren's specifically attacks moisture-producing glands, so it causes a lot of dryness and dry eyes was the first dryness symptom that I got. The brand of eyedrops that I choose to use is called Thera Tears. They come in a little bottle like this, or you can get little single-use packets and I just use the regular drops, but they also have one that comes in single-use packets that's for nighttime use, so it's a bit thicker and it does leave your vision a little bit blurry, but it can really help overnight, because I used to sometimes find that I was waking up in the middle of the night with dry eyes and needing to apply eye drops when I was half asleep. So I really love the Thera Tears eyedrops.
The important thing you want to do is to use an eye drop that does not have preservatives, and Thera Tears is probably the most popular one of that type. Then, I also recently, or maybe six months ago, went on a prescription eye drop. I went on Xiidra. Xiidra and Restasis are the two that are recommended, and that one comes in these little single-use packets that have about five in each, and it has just about enough in a vial to do a drop in each eye in the morning and a drop in each eye in the evening.
Another thing that I use for my dry eyes is a heated eye mask. This is full of what are kind of like beans, almost. It's kind of like a heating pad. You microwave it for a short amount of time, say 30 seconds, and then you put it over your eyes. You can also strap it around your head and velcro-attach it and you look a bit like a bug. When you take it off, you'll find that your vision is somewhat blurred because your eye has produced natural oils, so that's a great thing to do, again, morning or night. If you do it at night time, it could help you sleep, because you won't be waking up with dry eyes. And then if you do it in the morning, it'll hopefully help kickstart your eyes' production of those oils.
The other thing I do for dry eyes is I do use some supplements. So the brand I was talking about earlier, Xiidra tears, it makes a great supplement for dry eyes, which I used for a while, but now I use something called Omega 3-6-9. It's made by Sundown Naturals. I'll link this and all the produts below. This has really similar ingredients to the Thera Tears dry eye medication, but it's a little bit cheaper because it's not marketed as that. It's made with flax, fish and borage seed oils, and the Omega vitamins are really, really great for dry eyes, so that is a recommendation of something that I feel has helped me.
Another thing that my eye doctor recommended was chia seeds, so I got these at Thrive Market. If you don't know, Thrive Market is a really great online marketplace where you can buy all kinds of healthy foods and skincare products at cheaper prices. This is not sponsored, but I will put a link to sign up down below if you're interested. So these are the Thrive brand chia seeds. I usually like to add them to my morning smoothie, so I just add a tablespoon, and these also have the Omega threes in them, which is what helps with the dry eyes.
So, next, we can talk about dry mouth. I don't experience this as much, but I do get dry lips often, so what I use for dry lips is this really amazing lip balm. It's from a company called Red Apple Lipstick, which has all-natural products, and this is their Rally Balm. So, it's a clear lip balm that comes in a lipstick tube, and you just put it on. I use it a few times a day. It's so important. I see that it was actually formulated specifically for dryness from autoimmune diseases, such as Sjogren's or Crohn's, because they can cause dehydration, and then Celiac's, so it's gluten-free. It's free of any toxins, and it's a really, really nourishing lip balm.
Then, for actual dry mouth, the biggest tip that I can give is to hydrate. Drink water throughout the day. Drink it in little sips, just consistently, and one huge Sjogren's trick is to add lemon to water because the acidity will encourage your salivary glands to produce more saliva.
So, one thing I love to do is to use my infuser bottle. It's empty right now, but inside of this guy there's a little infuser, and you can add fruit to this, and then you stick it in the bottle. You add water, and it infuses it with the fruit. So, I really like to add lemon to this and then I'll leave it overnight in my fridge and when I wake up I have some nice, cold lemonade. This specific bottle is from Clean Skin Club. I'll link it down below. You have a discount code for that as well.
Another thing that a lot of people use for dry mouth is lemon drops or other types of hard candy. I know that Act, which is a mouthwash company, makes specific dry mouth drops, but I just have to get these lemon drops. They're the CVS brand. Always make sure you get sugar-free. Sjogren's and dry mouth and all of that can cause cavities and dental problems anyway, so you want to avoid any extra dental decay. And just the acidity and the act of swishing around in your mouth helps encourage your salivary glands for more saliva.
The last thing is that a lot of people who have dry mouth use dry mouth washes. I, personally, have not had to use those yet, but I do have this sample of one called Moisyn. I got this at the Sjogren's Syndrome Conference that I went to recently. Again, I know that Act makes a dry mouth wash, and Biotene is a really, really popular one as well.
So, a couple of other miscellaneous products that I wanted to talk about -- the first one is CBD, which is super popular. You've probably been hearing about it a lot in the wellness world. I have a blog post all about CBD. I'll link that below, and I also do a lot of freelance writing for a CBD company called Alive Market, so I'll post their blog below. Lots of really cool information there, and I have a discount code for them.
The two main products that I use from them are their CBD capsules and their CBD oil. I use one or the other. I don't use them both together, and actually started using these to help with my anxiety, but they're also really, really helpful for inflammation, and when you have an autoimmune disease, it basically automatically means that there's inflammation in your body. I like to either take a capsule every morning with my vitamins, or I'll take about half a dropper of the oil.
The last thing is sunscreen. Sjogren's and other autoimmune conditions can cause photosensitivity or an extra sensitivity to the sun. I already have easily burnable skin, so I always wear sunscreen. I think it's super important, but one thing that I realized after I was diagnosed with Sjogren's was that even when I was wearing sunscreen, I was getting really, really itchy after I was out in the sun. So, I learned that it's really important to use a zinc-oxide-based sunscreen, and I like the more natural ones, so I like Babo Botanicals, I like Badger, I like ThinkSport.
And then, I lied, the actual last thing that I'm going to talk about is the prescription I'm on, which is Plaquenil, or hydroxychloroquine. It's the most effective, safest medication for Sjogren's. You do have to be closely monitored by an ophthalmologist. I go every six months because a very, very small percentage of patients can have issues with their retinas, so you have to stay on top of your testing and make sure you catch that early, if it happens at all. And then, after that, there are a bunch of other medications that they might try. They might try methotrexate, or Rituxan, or even more drugs . . . they just keep going until one works. So, definitely, see your rheumatologist to talk about that.
So, those are my favorite products for dry eyes, dry mouth, and then Sjogren's in general. As I said, I've linked a bunch of information down below. I talked about this stuff on my blog and I have some other UA-cam videos about it, and if you have any questions or comments, please feel free to comment below or email me. My email is Molly at balanced and blissful dot com. I'm on all the social medias -- you can find those down below, and I hope you guys have a good one!
These are some of my favorite products that I use to deal with my Sjogren’s, an autoimmune disease that specifically attacks moisture-producing glands and can lead to excessive dryness.
It would have been better if you slow down a bit . You are too in a hurry as if you are under time pressure
I have Primary Sjogren's Syndrome. I am at the most advanced stages of the disease. You are obviously very young and will only experience what I face every day in many years. I wish the only problems I have were the dry eyes and mouth but, you will experience it all in time so maybe in later videos you will cover all that. You should have covered the dry skin and vaginal dryness. Both of those is very importat. New medicine is now being tried for Sjogren's this spring so there is hope for us. CBD is worthless. Just saying.
What do you do for vaginal dryness? A med I took induced this and dry mouth eyes
I use estradiol inserts twice a week. It works for vaginal dryness.
Is the dryness painful or does it cause frequent yeast infections?
This may be very helpful information, BUT, the lady talks far too fast! Please consider that when you talk before a camera that you talk to people with problems of hearing and therefore slow down and pronounce your speach properly😮
Stomach issues? U seem hyper
Thank you
such a great and informative video; im into the sjogrens club too😊 and wonder if you could tell about any certain type of exercise