One of my teachers in nursing school had a colostomy. She did classes on the surgery and care etc but didn’t let anyone know she had a colostomy until the course was ending. No one ever guessed. She was an energetic, active woman who wanted to do and experience everything. I know that is what you want too, Malin!!
Malin, your strength is staggering...dealing with children, surgery, huge decisions and looking after your own body and recovery! Truly, a warrior.God bless xx🇬🇧🐻🌹
Have watched most of your videos but never commented. You both have the best attitudes. We all should be ashamed of complaining about the frivolous things in life. 🙏🏻🙏🏻
I had an Ileostomy 18 years ago and I can honestly say I wouldn't go back. I went travelling in a van for three months which I wouldn't have been able to do. It gives you back so much control over your life. It takes a while to adjust mentally but you will get there. Congratulations on making a good choice. Good luck with your next surgery.
Hi Marlin, I had rectal cancer at the age of 50 . I’ve had a permanent stoma for 17 years now and it has saved my life. Its life changing and devastating at first but there’s times now I don’t even realize I have one. My prayers and thoughts are with you and your family. Take care of yourself and rest...it is a major surgery. I wish you well.❤
Bravo for facing such a hard choice and doing so head on. As a cancer survivor myself, we share the knowledge that there is no way of coming out of this process unscathed and without a heavy cost - but come out of it we can and will. Sending much love and hugs xxx
I had a lower anterior resection (LAR) surgery when my colorectal cancer was found. I was fortunate that my cancer was found at stage 1. I’ve read a lot about people who had the radiation and LARS. Many of them have the same problems you mentioned- need a toilet nearby and hope they make it on time to the toilet. I think you made the right decision. I know if my cancer returns and I need additional surgeries, I will go for the bag.
I had the same 4 months ago and i have got used to having a bag now and its permanent im used to the bag now and tbf its been great no running to the toilet at all i could of had a reconnection but i have chose to keep the bag to avoid other complications and more hospital visits i still gotta go back for another massive operation to have rectum removed i really dont want too as im recovered now but i have to because of cancer just waiting on a date for the next surgery dreading it as i have heard its a lot worse recovery than the stoma surgery and i wont be able to sit down or move about properly etc but if it gives me more life than im all for it i wish you all the best god bless x
Malin, you look wonderful for recently having surgery. You are so strong and accepting of the changes in your life which is why your healing has been unremarkable. God bless and stay strong. Enjoy the sunny weather, soak up all the Vitamin D you can ❤ Gayle
Malin I so want to give you a big hug 🤗. Your resilience is amazing and also having to make major decisions about further surgery and making them based on factual information and managing your own emotions. It’s an incredible balancing act . To keep your mind In difficult circumstances is remarkable. I am cheering 📣 for you . I want you and your family in the future travelling in your finished van and enjoying your life . That’s your goal and you will smash 💥 it . Much love sending healing vibes ❤❤❤. Happy 30th birthday Tom a vital part of the team . 🎉
That’s a solid choice Malin. I wish you all the best for your big surgery and a speedy recovery! I have IBS, so I know how it sucks to need to be near toilets! And Tom, put a ring on that girls finger! She‘s a keeper!
You two are such beautiful people! I had the reconnection surgery and do use the restroom many, many times a day! I have had the tubes, ovaries, everything removed, but I am much older than you and it was fine with me. I didn't want to take any more chances. Once I eat, I have little time before I'm in the bathroom. You are making the right choice, never doubt that! Sorry you all got that stomach bug but thank goodness it is going away. Happy Birthday Tom!!! Enjoy the big 30!!
Hi, glad you are recovering. I'm a nurse. Many people live a normal life with a colostomy. Learn what stoma products work for you, there are several on the market. Put together a travel pouch or bag with all the needed supplies. That being the stoma bag, wafer ( the adhesive sticky item that holds the bag on), wet wipes, hand sanitizer, scissors to cut the wafer if you have the cut to fit kind, maybe paper towels. Keep this bag of items always supplied so you can grab it and go. You will get the hang of it and do well. Love and wellbeing and happiness to you both....
Thanks Linda! That’s great advice. The Swedish healthcare system is great, they provide all stoma patients with everything they need, including a travel bag (2 in Malin’s case, as she’s had 2 stoma operations). There’s so much to think about with a new colostomy, we’re grateful that a lot of the thinking was done for us.
Mainl my names Adrian I had a very low colorectal resection and most of my sigmoid removed 3 yrs ago and had a loop ileostomy which should have been reversed after 3 months but covid intervened and I had to wait 2 yrs so I was like a baby starting to learn to poo . I xwas going 40 times a day for 2 wks at the worst but I am down to 8 -10 a day which is as good as it will get I carry a urgent toilet card which no one has refused yet so that's my life now. I really wanted to keep my stoma but had such bad problems with really severe blockages which is always a worrie with stomas but I had no choice any way keep your head up and enjoy your life it has made me appreciate every thing more.
I’m so sorry to hear about your experience of the reverse surgery. I can only imagine what it feels like having it like that permanently, but I hope that you can make the most of it. Still enjoy life and dare to do what you want in life! Keep up the good fight🌸
Your endurance is amazing Malin. That decision had to be hard, but you and Tom will persevere thru this next trial. Don’t ever apologize for talking too much, I love your longer videos sharing with us your ups and downs. Continuous prayers to both of you, surgeons as well as all medical staff on your case Malin.
So glad you decided to get a permanent stoma. I had rectal cancer and had my ileostomy removed after 7 months. MISTAKE. I ended up with LARS which is lower anterior resection syndrome. I must be near a bathroom at all times 24/7. You lose spontaneity and with your age and lifestyle you need that. Good luck on your journey !
So sorry that happened to you. So do you have to stay home all the time? I hope you get to go out sometimes.Although not as bad as you are having problems, I have ibs and can get diarrhea suddenly and I've had to think about where the toilets are at all times.
So glad to see that you have recovered so well after surgery and that you could enjoy quality time with Tom and the children .May you enjoy your time to the utmost before your next surgery 💕🌺🙏
Malin, you are so incredibly resilient! I think you are wise with the choice you made because you've got your eyes on the prize which is a quality life with your kids and Tom. More fun and freedom are right around the corner for you! Best of luck with your upcoming surgery and Happy Birthday to you Tom. P.S. You are NOT old! Continued prayers for your family! Hugs to all of you! 💞
Hej Malin & Tom. Sending my best wishes that all will go well in your upcoming surgery Malin.Such a big "life decision" to make...but You. Got.This! Kramar till familjen! xx
Sending love I nursed l of 80 + who had a colostomy at 30 and she said it gave her her life back after a early adult life of pain so I’m m sure you’ll feel the same xx
Your going to do great! Once your body adjusts to everything your body will adjust and go back to normal …your body is so amazing and can do difficult crazy things! You will absolutely be able to live an active enjoyable life with no restrictions. I was amazed at how good I felt, and how I could still do everything. When I had my surgery I was so depressed. I never thought I would be able to adjust and it took a month and I realized that it was so doable and that I would rather have a life. Your going to do great! Just be patient with you body and have humor. There are loads of great people on UA-cam that will give great inspiration to you. That also really helped me.
Hi again, so happy to hear from you!!!. Malin you look amazing. No one would guess you were at the hospital with an intestinal obstruction just a couple of weeks ago! I think the decision is extremely difficult, but the right one without a doubt. Going to the toilet with urgency many times a day is just awful. Colostomy bags have improved dramatically, more and more people wear everyday. Try to enjoy the next few days with your kids and husband ( almost husband- hahaha) before your next surgery. We are here for both of you!!!!!
I still have you and your family in my prayers 🙏🕊️ . I'm praying for a full speedy recovery. I'm very happy you still have hair, my hair came out about 2 1/2 weeks after my Chemo started. I had a complete hysterectomy about 10 months ago. She is doing great I made Dinner the night I came home from the hospital no one could believe it. I think she is going to do great, because she wants to, that's where recovery comes from, how much you want to recover quickly. 👍🤗🌹❤️🌻
Malin you are so brave and have such a good attitude to what you need to have done. I wish I could be like you as I have to have my first surgery soon and I am literally making myself so ill with worry. Its so much better for those who are more positive for their outcome.
Hi both The stoma bag is there for a reason and without one would be poorly. I had my stoma around 12 yrs and is permanent due to too much skin in the abdomen. So I have to Put up with it until I Pass over. Malin is so positive which is great and Tom is supporting her well. Rock on you two. Much love and respect from across the pond in Uk x
Thank you for the update. Very brave decision Malin but it seems like a wise one! You are looking great but make sure you get plenty of rest. Sending love and hugs 💞💖xx
Sounds like you made the right choice...my sister m law died from sepis after reconnection so it can be a dangerous procedure.. Your stoma is a much safer way to go and gives you freedom to live life !. Best of luck with the surgery.
I adore you both. Praying that you remain so positive. Your attitudes just bless my ♡. Hang in there! Thankful and grateful! “Long May it continue” indeed. PS I agree, the stoma surgery already having taken place gives you a head start on the next. May cancer be forever gone from your body
Sounds a lot like Tiffany’s surgery from Tiffany thinks. They did make her wait quite awhile to have the surgery. She’s doing well now, also has the stoma. You are both so young for this!
Please get incontact with Tiffany thinks on UA-cam she had the operation you will be having due to cancer and the colon. It will prepare you for how to cope with the operation
Tänk positivt! Du gör rätt val👍hade samma problem som du så jag beslutade att göra en permanent colostomi. Efter några veckor fungerade livet som vanligt o jag har hunnit fylla 70 år nu. Det bästa är att man inte behöver rusa till en toalett. Allt kommer att gå bra. Tänker på dig o de dina. Stor kram
I had a temporary stoma after rectal cancer surgery. They reconnected me, and I have never had to use the toilet like that-it’s very normal. I had never heard of having to urgently use the toilet all the time after a reconnection. I was never even told that was a possibility. Maybe the area where they reconnect in different people affects each person’s need to go.
Nice to hear that it was successful for you, but of course it's very complicated how much needs to be removed and where and so on. There are thousands of types of cancer and where it's placed is critical.
Hi Malin, got diagnosed with colorectal cancer last year at age 35. Went through radiation, chemo, surgery with temporary ileostomy and got reversed 3 months ago. Life is exactly like your surgeon described. I’m chained at home as when I need to use the toilet I need it urgently. I think you’re making a smart decision. I haven’t been told how my life would be otherwise I would have gone for a permanent colostomy. I’m considering going back to one. Do you have an instagram? so I could contact you privately?
I’m so sorry to hear about your situation and that nobody told you about the risks before the surgery! Keep fighting and I hope that even if it doesn’t feel like it now that you feel more freedom in the future. Yes we got an Instagram: swenglish_adventure
I can see why you made that decision, though in your shoes it must be hard but ultimately life or death is an easy one aka moving as much of the tumor out....plus as yous have said better for quality of life. So good choice. Yous are a nice couple only been following yous for little while but all the hardships that yous face just shows of your strengths, plus it was nice to see some of your humour there between yous to when yous were joking around. Praying that all goes well for the surgery 🙏 ❤ Love from Scotland
Operation went very well I've had my bag removed on the 30.11.22. My Dr has put all of my plumbing back again she's going to be putting me back into hospital on the 15.6.23 so she going to See the work she did inside of Me to See if her work is looking very good I Hope that she's not going to find anything else. David from Milton NSW mate in Sydney Australia
30 isn’t old 😂 Just wait until you hit 40 or 50 and your knees predict the weather. Life gets even better even better after 30. The best is yet to come! Happy Birthday Tom!
I wanted to say one thing about the choice of a permanent stoma. It's not at all permanent IMO. Medical progress is amazing, especially now that AI is getting into the game. 10 or 20 years from now there may be artificial colons and good medicines to make it so you don't run to the toilet so many times a day. I think this is certainly the right decision now, being that it seems like such an easy one for you. But I would think of it as "permanent - for now." Best wishes.
Hi. I have no idea why UA-cam wants me to watch this kind of videos lately, but oh well. My question is why wouldn't you at least try reconnection surgery and see if it is really that bad? It might not be, but If it is, you can still get the stoma bag. One extra surgery means nothing, a month or two of extra recovery maybe, vs. living with your decision for the next 50+ years. I know your perception probably dramatically changes once you are in that kind of situation, but I, being extremely OCD about toilet stuff (even at 35), would NEVER agree to a stoma bag.
Hi! The reason that I’m not going for the reconnection surgery is because of the risks with the surgery and after (plus the fact that they basically say it’s not a chance it’s going to be good). It’s a high risk surgery to start with, and then it’s a 15% chance that the reconnection is going to break and then I will have massive complications from that and still end up with a stoma. If I try the reconnection surgery and then decide that I want a stoma it’s a much more complicated surgery (according to my doctor) and they don’t want to do that if they really don’t have to. So if I decide to not have a stoma and it’s not good I basically have to live with that decision and have 50+ years spent on a toilet or near one. So for me it’s a easy choice, I understand it’s not like that for everyone but I want a life back that I don’t spend worrying about having a toilet close by.
@@malinandtom Okay, I understand. I personally would love to try to do the van or car thing for a day or two sometimes, but the toilet availability is a total deal breaker for me. I watch a lot of van lifers to know that the occasional #2 in a bag is just an unavoidable part of van life. So if you look positively on all this nightmare, you are getting high-tech, medically graded solution for bag-in-a-bucket situations. :) Another question: Did you get used to it quickly and what is changing the bag like? I heard it's mostly fluid-y stuff. I also heard the smell is not as bad as one would expect. Can you feel "going" into a bag or does "the stuff" just flow little by little all the time?
Ovaries enhance health so much. Hormonally there’s no sudden menopause, the bones and muscles are protected more. It’s a great thing to retain ovaries.
Keeping the ovaries really enhances your life especially around menopause, and aids bone health amongst so many other things. It’s great that this is acknowledged in modern medicine
One of my teachers in nursing school had a colostomy. She did classes on the surgery and care etc but didn’t let anyone know she had a colostomy until the course was ending. No one ever guessed. She was an energetic, active woman who wanted to do and experience everything. I know that is what you want too, Malin!!
Malin, your strength is staggering...dealing with children, surgery, huge decisions and looking after your own body and recovery! Truly, a warrior.God bless xx🇬🇧🐻🌹
Have watched most of your videos but never commented. You both have the best attitudes. We all should be ashamed of complaining about the frivolous things in life. 🙏🏻🙏🏻
I had an Ileostomy 18 years ago and I can honestly say I wouldn't go back. I went travelling in a van for three months which I wouldn't have been able to do. It gives you back so much control over your life. It takes a while to adjust mentally but you will get there. Congratulations on making a good choice. Good luck with your next surgery.
Hi Marlin, I had rectal cancer at the age of 50 . I’ve had a permanent stoma for 17 years now and it has saved my life. Its life changing and devastating at first but there’s times now I don’t even realize I have one. My prayers and thoughts are with you and your family. Take care of yourself and rest...it is a major surgery. I wish you well.❤
Bravo for facing such a hard choice and doing so head on. As a cancer survivor myself, we share the knowledge that there is no way of coming out of this process unscathed and without a heavy cost - but come out of it we can and will. Sending much love and hugs xxx
I had a lower anterior resection (LAR) surgery when my colorectal cancer was found. I was fortunate that my cancer was found at stage 1. I’ve read a lot about people who had the radiation and LARS. Many of them have the same problems you mentioned- need a toilet nearby and hope they make it on time to the toilet. I think you made the right decision. I know if my cancer returns and I need additional surgeries, I will go for the bag.
I had the same 4 months ago and i have got used to having a bag now and its permanent im used to the bag now and tbf its been great no running to the toilet at all i could of had a reconnection but i have chose to keep the bag to avoid other complications and more hospital visits i still gotta go back for another massive operation to have rectum removed i really dont want too as im recovered now but i have to because of cancer just waiting on a date for the next surgery dreading it as i have heard its a lot worse recovery than the stoma surgery and i wont be able to sit down or move about properly etc but if it gives me more life than im all for it i wish you all the best god bless x
Malin, you look wonderful for recently having surgery. You are so strong and accepting of the changes in your life which is why your healing has been unremarkable. God bless and stay strong. Enjoy the sunny weather, soak up all the Vitamin D you can ❤ Gayle
Malin I so want to give you a big hug 🤗. Your resilience is amazing and also having to make major decisions about further surgery and making them based on factual information and managing your own emotions. It’s an incredible balancing act . To keep your mind In difficult circumstances is remarkable. I am cheering 📣 for you . I want you and your family in the future travelling in your finished van and enjoying your life . That’s your goal and you will smash 💥 it . Much love sending healing vibes ❤❤❤. Happy 30th birthday Tom a vital part of the team . 🎉
You are all amazing ❤❤
That’s a solid choice Malin. I wish you all the best for your big surgery and a speedy recovery! I have IBS, so I know how it sucks to need to be near toilets! And Tom, put a ring on that girls finger! She‘s a keeper!
I know it is a personal choice to marry but I agree with you Malin is a keeper !!
Don’t apologize for ‘a lot of talking in this one’, I love to listen to both of you talk!!
You two are such beautiful people! I had the reconnection surgery and do use the restroom many, many times a day! I have had the tubes, ovaries, everything removed, but I am much older than you and it was fine with me. I didn't want to take any more chances. Once I eat, I have little time before I'm in the bathroom. You are making the right choice, never doubt that! Sorry you all got that stomach bug but thank goodness it is going away. Happy Birthday Tom!!! Enjoy the big 30!!
GOD BLESS you Malin, and the DOCTORS. Praying it will be smooth and I love her and yours positive attitude. Kiss those babies for all of us. 💗💗
Best of luck for your surgery Malin,surrounding you with love,light & healing reiki energy...xxx🕯💜🕯💜🕯💜
Hi, glad you are recovering. I'm a nurse. Many people live a normal life with a colostomy. Learn what stoma products work for you, there are several on the market. Put together a travel pouch or bag with all the needed supplies. That being the stoma bag, wafer ( the adhesive sticky item that holds the bag on), wet wipes, hand sanitizer, scissors to cut the wafer if you have the cut to fit kind, maybe paper towels. Keep this bag of items always supplied so you can grab it and go. You will get the hang of it and do well. Love and wellbeing and happiness to you both....
Thanks Linda! That’s great advice. The Swedish healthcare system is great, they provide all stoma patients with everything they need, including a travel bag (2 in Malin’s case, as she’s had 2 stoma operations).
There’s so much to think about with a new colostomy, we’re grateful that a lot of the thinking was done for us.
Mainl my names Adrian I had a very low colorectal resection and most of my sigmoid removed 3 yrs ago and had a loop ileostomy which should have been reversed after 3 months but covid intervened and I had to wait 2 yrs so I was like a baby starting to learn to poo . I xwas going 40 times a day for 2 wks at the worst but I am down to 8 -10 a day which is as good as it will get I carry a urgent toilet card which no one has refused yet so that's my life now. I really wanted to keep my stoma but had such bad problems with really severe blockages which is always a worrie with stomas but I had no choice any way keep your head up and enjoy your life it has made me appreciate every thing more.
I’m so sorry to hear about your experience of the reverse surgery. I can only imagine what it feels like having it like that permanently, but I hope that you can make the most of it. Still enjoy life and dare to do what you want in life! Keep up the good fight🌸
Your endurance is amazing Malin. That decision had to be hard, but you and Tom will persevere thru this next trial. Don’t ever apologize for talking too much, I love your longer videos sharing with us your ups and downs. Continuous prayers to both of you, surgeons as well as all medical staff on your case Malin.
So glad you decided to get a permanent stoma. I had rectal cancer and had my ileostomy removed after 7 months. MISTAKE. I ended up with LARS which is lower anterior resection syndrome. I must be near a bathroom at all times 24/7. You lose spontaneity and with your age and lifestyle you need that. Good luck on your journey !
Wow that's not living.
Same here. I am planning to go back and have my bag back.
So sorry that happened to you. So do you have to stay home all the time? I hope you get to go out sometimes.Although not as bad as you are having problems, I have ibs and can get diarrhea suddenly and I've had to think about where the toilets are at all times.
@@QueenNoTeetha151, thanks God I dont have to stay at home all day long. I avoid to eat until noon and this way I can go out.
@@alinafelenca3090 Oh thats a good plan. So glad you can get out at all. x
Wishing you all the best in relation to the upcoming surgery and recovery Malin. Happy birthday Tom!
So glad to see that you have recovered so well after surgery and that you could enjoy quality time with Tom and the children .May you enjoy your time to the utmost before your next surgery
💕🌺🙏
Sending prayers for you all,and a speedy and safe recovery.
Malin, you are so incredibly resilient! I think you are wise with the choice you made because you've got your eyes on the prize which is a quality life with your kids and Tom. More fun and freedom are right around the corner for you! Best of luck with your upcoming surgery and Happy Birthday to you Tom. P.S. You are NOT old! Continued prayers for your family! Hugs to all of you! 💞
Hej Malin & Tom. Sending my best wishes that all will go well in your upcoming surgery Malin.Such a big "life decision" to make...but You. Got.This! Kramar till familjen! xx
Sending positive vibes always
Tycker att ni resonerar så bra! Är säker på att allt kommer att bli toppen och att ni snart kan åka runt igen ❤️
Sending love I nursed l of 80 + who had a colostomy at 30 and she said it gave her her life back after a early adult life of pain so I’m m sure you’ll feel the same xx
Your going to do great! Once your body adjusts to everything your body will adjust and go back to normal …your body is so amazing and can do difficult crazy things! You will absolutely be able to live an active enjoyable life with no restrictions. I was amazed at how good I felt, and how I could still do everything. When I had my surgery I was so depressed. I never thought I would be able to adjust and it took a month and I realized that it was so doable and that I would rather have a life. Your going to do great! Just be patient with you body and have humor. There are loads of great people on UA-cam that will give great inspiration to you. That also really helped me.
Prayers for a speedy recovery from your next surgery….quality of life is the best decision!! 👍❤️🤗🙏🤗👍❤️🙏🙏❤️❤️
Hi again, so happy to hear from you!!!. Malin you look amazing. No one would guess you were at the hospital with an intestinal obstruction just a couple of weeks ago!
I think the decision is extremely difficult, but the right one without a doubt. Going to the toilet with urgency many times a day is just awful. Colostomy bags have improved dramatically, more and more people wear everyday. Try to enjoy the next few days with your kids and husband ( almost husband- hahaha) before your next surgery. We are here for both of you!!!!!
I still have you and your family in my prayers 🙏🕊️ . I'm praying for a full speedy recovery. I'm very happy you still have hair, my hair came out about 2 1/2 weeks after my Chemo started. I had a complete hysterectomy about 10 months ago. She is doing great I made Dinner the night I came home from the hospital no one could believe it. I think she is going to do great, because she wants to, that's where recovery comes from, how much you want to recover quickly. 👍🤗🌹❤️🌻
Malin you are so brave and have such a good attitude to what you need to have done. I wish I could be like you as I have to have my first surgery soon and I am literally making myself so ill with worry. Its so much better for those who are more positive for their outcome.
You look wonderful, Malin! Your surgery will be a success~ prayers for you from the 🇺🇸
Hi both
The stoma bag is there for a reason and without one would be poorly. I had my stoma around 12 yrs and is permanent due to too much skin in the abdomen. So I have to
Put up with it until I
Pass over. Malin is so positive which is great and Tom is supporting her well. Rock on you two. Much love and respect from across the pond in Uk x
Bless you Malin. Fingers crossed the next surgery goes well for you.
Thank you for the update. Very brave decision Malin but it seems like a wise one! You are looking great but make sure you get plenty of rest. Sending love and hugs 💞💖xx
Malin is incredible and fierce and Tom is the bomb! You are both doing a crackin' job.
I'm so happy you're doing alright and that you're feeling well. Keep on going and pursuing your dreams, you're stronger than you think❤
You look great. Again thanks for the update. Thoughts with you for the big surgery. Take care.
I think you’re making the right decision 👍🏻 I am sending you love & good positive energy your way 🙏🏻
Sounds like you made the right choice...my sister m law died from sepis after reconnection so it can be a dangerous procedure..
Your stoma is a much safer way to go and gives you freedom to live life !. Best of luck with the surgery.
Amazing young woman, beautiful family wishing u well x
I adore you both. Praying that you remain so positive. Your attitudes just bless my ♡. Hang in there! Thankful and grateful! “Long May it continue” indeed.
PS I agree, the stoma surgery already having taken place gives you a head start on the next. May cancer be forever gone from your body
Brave, intelligent decision! 💚🍀
Keep positive you two , it’s a long road ahead, I wish lots of love and I hope the next operation goes well.
Sounds a lot like Tiffany’s surgery from Tiffany thinks. They did make her wait quite awhile to have the surgery. She’s doing well now, also has the stoma. You are both so young for this!
Please get incontact with Tiffany thinks on UA-cam she had the operation you will be having due to cancer and the colon. It will prepare you for how to cope with the operation
Shirley here, my mom had a bag and in six months she had it changed back.
Awww parents to the rescue. x
You don’t have to be married to love and care and be dedicated to each other. You guys are great!
You both have a great attitude, and l wish you all the very best for your upcoming surgery. ❤
Good Luck to you ! Meny huggs. ❤💐🌹✨
All the best for this next step 🙏🏻. And after that: no more bad luck. 🙏🏻
30 years young. I'm 48!!
Tänk positivt! Du gör rätt val👍hade samma problem som du så jag beslutade att göra en permanent colostomi. Efter några veckor fungerade livet som vanligt o jag har hunnit fylla 70 år nu. Det bästa är att man inte behöver rusa till en toalett. Allt kommer att gå bra. Tänker på dig o de dina. Stor kram
I had a temporary stoma after rectal cancer surgery. They reconnected me, and I have never had to use the toilet like that-it’s very normal. I had never heard of having to urgently use the toilet all the time after a reconnection. I was never even told that was a possibility. Maybe the area where they reconnect in different people affects each person’s need to go.
Nice to hear that it was successful for you, but of course it's very complicated how much needs to be removed and where and so on. There are thousands of types of cancer and where it's placed is critical.
I think it depends on where your tumour is. Mine is very “low” which means that it’ll be problems in the future according to the doctors.
Hi Malin, got diagnosed with colorectal cancer last year at age 35. Went through radiation, chemo, surgery with temporary ileostomy and got reversed 3 months ago. Life is exactly like your surgeon described. I’m chained at home as when I need to use the toilet I need it urgently. I think you’re making a smart decision. I haven’t been told how my life would be otherwise I would have gone for a permanent colostomy. I’m considering going back to one. Do you have an instagram? so I could contact you privately?
I’m so sorry to hear about your situation and that nobody told you about the risks before the surgery! Keep fighting and I hope that even if it doesn’t feel like it now that you feel more freedom in the future. Yes we got an Instagram: swenglish_adventure
@@malinandtom thank you, I’ve just sent you a message :)
I'm sending you all much love and healing prayers always 🙏 ❤️ xxx
Stay strong, you're amazing x
Wishing you well xxx
Look up Tiffany thinks hun she is in uk been through very much the same as you around ur age as well
I can see why you made that decision, though in your shoes it must be hard but ultimately life or death is an easy one aka moving as much of the tumor out....plus as yous have said better for quality of life. So good choice.
Yous are a nice couple only been following yous for little while but all the hardships that yous face just shows of your strengths, plus it was nice to see some of your humour there between yous to when yous were joking around.
Praying that all goes well for the surgery 🙏 ❤
Love from Scotland
your amazing both of you getting through this with positive attitude. ime sure you made right decision malin lots love and prayers x from uk x
Hello guys my operation went for 7hrs you're going to be okay I'm always thinking about you guys David r from Milton NSW mate in Sydney Australia Mate
Thanks David! How did your operation go, all ok?
Operation went very well I've had my bag removed on the 30.11.22. My Dr has put all of my plumbing back again she's going to be putting me back into hospital on the 15.6.23 so she going to See the work she did inside of Me to See if her work is looking very good I Hope that she's not going to find anything else. David from Milton NSW mate in Sydney Australia
Good to hear David, really glad everything went well mate! All the best.
@@malinandtom how's Malin going mate it's 1.50 am now okay guys time to go off to bed soon
Nervous before tomorrow’s operation but otherwise she’s doing great!
30 isn’t old 😂
Just wait until you hit 40 or 50 and your knees predict the weather.
Life gets even better even better after 30. The best is yet to come!
Happy Birthday Tom!
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I probably have crohns and know many people who have one. Tiffany thinks has a bag too.
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I wanted to say one thing about the choice of a permanent stoma. It's not at all permanent IMO. Medical progress is amazing, especially now that AI is getting into the game. 10 or 20 years from now there may be artificial colons and good medicines to make it so you don't run to the toilet so many times a day. I think this is certainly the right decision now, being that it seems like such an easy one for you. But I would think of it as "permanent - for now." Best wishes.
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Hi. I have no idea why UA-cam wants me to watch this kind of videos lately, but oh well. My question is why wouldn't you at least try reconnection surgery and see if it is really that bad? It might not be, but If it is, you can still get the stoma bag. One extra surgery means nothing, a month or two of extra recovery maybe, vs. living with your decision for the next 50+ years. I know your perception probably dramatically changes once you are in that kind of situation, but I, being extremely OCD about toilet stuff (even at 35), would NEVER agree to a stoma bag.
Hi! The reason that I’m not going for the reconnection surgery is because of the risks with the surgery and after (plus the fact that they basically say it’s not a chance it’s going to be good). It’s a high risk surgery to start with, and then it’s a 15% chance that the reconnection is going to break and then I will have massive complications from that and still end up with a stoma. If I try the reconnection surgery and then decide that I want a stoma it’s a much more complicated surgery (according to my doctor) and they don’t want to do that if they really don’t have to. So if I decide to not have a stoma and it’s not good I basically have to live with that decision and have 50+ years spent on a toilet or near one. So for me it’s a easy choice, I understand it’s not like that for everyone but I want a life back that I don’t spend worrying about having a toilet close by.
@@malinandtom Okay, I understand. I personally would love to try to do the van or car thing for a day or two sometimes, but the toilet availability is a total deal breaker for me. I watch a lot of van lifers to know that the occasional #2 in a bag is just an unavoidable part of van life. So if you look positively on all this nightmare, you are getting high-tech, medically graded solution for bag-in-a-bucket situations. :)
Another question: Did you get used to it quickly and what is changing the bag like? I heard it's mostly fluid-y stuff. I also heard the smell is not as bad as one would expect. Can you feel "going" into a bag or does "the stuff" just flow little by little all the time?
@@nts_nathaniel WTF? do some research and leave this great couple alone. They don't have time for your absurd questions. 🙄🙄
Would be grt with parmanent stoma...however after you surgery don't travel for a month..take rest as jerks in travelling interfere with stiches .
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I always thought you were married ha
Sending you guys hugs and great respect. 🫂🪻
I hope your tumor surgery goes smoothly
Blessed be
Praying for a healing for everyone try cannabis oil and thc for cancer and worm medicine for pigs or dogs to kill cancer amen
Why not go ahead and take out the ovaries? PS, marry that beautiful woman! Best wishes and prayers for a speedy recovery ❤
Ovaries enhance health so much. Hormonally there’s no sudden menopause, the bones and muscles are protected more. It’s a great thing to retain ovaries.
Can’t lift anything at all?
Not allowed to lift anything heavier than a pack of milk, so basically nothing.
Don’t be like that, marry her
Out of interest why are they not also removing your ovaries?
That hampers hormone functioning
Keeping the ovaries really enhances your life especially around menopause, and aids bone health amongst so many other things. It’s great that this is acknowledged in modern medicine
Interesting to know, thanks!