My Experience in the Beginning With FOLFOX and FOLFIRI Chemo
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- Опубліковано 7 тра 2021
- What was it like when I started chemo?
Please note:
I mentioned Emend and how it stopped all nausea for me and then I started talking about how bad nausea got without explaining why.
I forgot to mention that at one point, I became severely allergic to Emend and could not use it anymore. That's when the nausea got bad.
Here, I address a lot of questions that friends ask me.
If you want me to answer questions, leave a comment and I'll do my best to get to them.
Thanks a million Jamie. Really well articulated. You have been a great help to me. I love your squeezey it is a great idea and knowing it's been made by someone who enjoys making them must be very comforting. I had my 4th session of 12 today. My body muscles are seizing up and any cold make any exposed body parts numb up. ie; my mouth and eyelids. My tongue also swells up with cold. I have also experienced not feeling my legs when I get up from sitting. Mostly it stops after a couple of days with the exception of the hands numbing and tingling which lasts about 7 to 9 days. I also feel sickly for about 5 days after chemotherapy.
I really hope you have recovered from your cancer or are at the very least in remission. Look after yourself you are a wonderful and remarkable young lady. Johnny K Dublin Ireland. 🤜🤛
That all sounds familiar! I hope that your remaining sessions are not much worse than now. I am living with cancer, but all has been stable for over a year. I'm currently on Tecentriq immunotherapy treatment every 3 weeks. They found this treatment for me via genomic testing from tumor. Stable is fine with me! I feel fine besides fatigue.
Very well done!! 🧡
love the way you speak ,, keep it up Jamie
Thank you for this!! I start Folfox next week and you’ve caked my nerves.
Just seeing this comment. Kinda new at using YT tools. How are you doing?
@@jvoetsch I’m doing great! Did 12 rounds of chemo, had my colostomy reversed and I am cancer free!! Your video really helped me so thank you!
@@tracyheberlie4831 I love this!!! WOOHOO! Congrats!!!
@@jvoetsch thank you so much!!!
I never feel the needle which is a blessing.
Hi Jamie,, that was a nice video, just i am about to start it and still seeing some videos, mostly how many days needed to be free from all these side effects and when also you be able to drive?
Just i need to know to arrange my work schedule
I was able to drive anytime I wanted, however my hands were numb from neuropathy, but functional. For me, it seemed like the first 2 days were fine as I was attached to the 5fu pump. Then the day after they disconnected the 5fu, I got really really sick. I work at home/self employed so I'm lucky in that way that I could rest when I needed to... I would recommend taking a whole week off, at least for your fist infusion. As you go along, you will learn how many days your body needs to rest.
@@jvoetsch btw,, what stage you have it and where ? And the chemo is adjuvant or treatment?
@@user-wh8ci8ff9e I was diagnosed at stage IV. First they thought it was ovarian cancer, so I had an open abdominal surgery. They knew it was appendix cancer after they opened me up.but had to proceed to save my life (I could not eat due to size of tumors). During time of healing, I had to do 8 rounds of chemotherapy. 4 rounds of folfox, 4 rounds of folfiri, in hopes that it would clear an organ (the mesentery). It did!work for me as found during laparoscopy. Then I had CRS and HIPEC. Then 2 more rounds of chemotherapy.
@@jvoetsch hopefully you are okay now ,, i can feel how much strong you are
@@user-wh8ci8ff9e I am doing great right now. Living life. I volunteer with PMP PALs and help new patients in the FB groups. I feel that is important to do and is my purpose. It is important to note that it is not possible to be positive through everything. And that is ok. However, it is also necessary to have faith in your survival and future. I focused on what I really wanted to do with my life and spoked about it alot during the tough times. Have something to look forward to. Cry when you need to, but keep going!
Body heat powered. Interesting.
There are quite a few different ones too!
@@jvoetschhello
@@jvoetschcan u plz cntct me