Getting a diagnosis was my key to learning to live with SS. Decided I could spend the rest of my life with a poor me attitude or deal with it and go on enjoying my life. I chose the latter. Keeping a positive attitude helps me deal with all the inconveniences of it and my other AI problems. I am 78 and was diagnosed over 30 years ago.
How do I get a diagnosis it’s annoying me Been since 19 10 years now Ssa ssb negative Ana speckled twice 1:160 told low and brushed off Lip biopsy negative Second one showed some inflammation may need another they said Eye test showed no tears Dry eyes extremely bad waking up and laying down crusted shut Dry green crust in nose Dry scalp and skin Rashes on face Heat cold issues Cold hands feet Sleep issues waking up all the time every 2 hours No answers making me paranoid
Contact lenses, both scleral and soft, are are a lifesaver. Improves symptoms 90%. I have both kinds, and like my corneal specialist said, they cover the sensitive nerve endings on the cornea.
My ANA came back positive but ENA did not so now I’m waiting for the only rheumatologist in the area to call me. This will be the third time I’ve been to a rheumatologist with no diagnosis of anything. Yet I have nearly every symptom of Sjogren’s. ☹️
I have Sjrogrens and I get brain fog I cant absorb what i read all the are collectively together I struggle to single out the line I'm reading. I'm always tired and I'm always drinking Fluids/water. But with that I'm going to the toilet a lot. I'm just wondering if this disease affects the bladder and also the anus which gets sore and itcy. Can you get crohns disease along with Sjrogrens Syndrome?
Thank you very much for these short and clear videos. A few hours ago, someone wrote that I have to follow natural treatments, because they cure Sjögren and all autoimmune deseases... (diets of course, and so on).
Getting a diagnosis was my key to learning to live with SS. Decided I could spend the rest of my life with a poor me attitude or deal with it and go on enjoying my life. I chose the latter. Keeping a positive attitude helps me deal with all the inconveniences of it and my other AI problems. I am 78 and was diagnosed over 30 years ago.
How do I get a diagnosis it’s annoying me
Been since 19
10 years now
Ssa ssb negative
Ana speckled twice 1:160 told low and brushed off
Lip biopsy negative
Second one showed some inflammation may need another they said
Eye test showed no tears
Dry eyes extremely bad waking up and laying down crusted shut
Dry green crust in nose
Dry scalp and skin
Rashes on face
Heat cold issues
Cold hands feet
Sleep issues waking up all the time every 2 hours
No answers making me paranoid
I'm sorry to hear that, I'm not sure...
Have you checked for other illnesses that might be related? For example thyroid conditions or others
Contact lenses, both scleral and soft, are are a lifesaver. Improves symptoms 90%. I have both kinds, and like my corneal specialist said, they cover the sensitive nerve endings on the cornea.
Sandy Lewis I would have thought that lenses would have made the eyes more dry
My ANA came back positive but ENA did not so now I’m waiting for the only rheumatologist in the area to call me. This will be the third time I’ve been to a rheumatologist with no diagnosis of anything. Yet I have nearly every symptom of Sjogren’s. ☹️
Sjogrens patients also have GI problems/ constipation Use magnesium supplements Biotin Supplement for hair loss
And pain medication
I am a new diagnosed patient with sjogrens and I am interested in finding the cure... it is very painful....
me too
I have Sjrogrens and I get brain fog I cant absorb what i read all the are collectively together I struggle to single out the line I'm reading. I'm always tired and I'm always drinking Fluids/water. But with that I'm going to the toilet a lot. I'm just wondering if this disease affects the bladder and also the anus which gets sore and itcy. Can you get crohns disease along with Sjrogrens Syndrome?
Coimbra protocol...is high level of vitamine D3..can help!
How do u handle the crazy water retention when diuretics fail to work after a while??
Thank you for being so helpful!
Thank you very much for these short and clear videos.
A few hours ago, someone wrote that I have to follow natural treatments, because they cure Sjögren and all autoimmune deseases... (diets of course, and so on).
Thank you so much
Thanks
Good information. Thankyou
I can't take them because I have fat liver now .
Use fluoride???? Nope!