Episode III: The VM Strikes Back - Vestibular Migraine - 2023-Major Attack & Quick Recovery
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- Опубліковано 11 жов 2024
- This is the video I always knew I’d eventually need to make.
The bad news: I recently suffered a major VM attack - the first since 2019. In this video I discuss why and how it happened.
The good news: The initial attack did not lead to a fresh chronic phase of the illness. So, in this video I also explain why I was able to prevent this from happening.
Disclaimer: I am not a Doctor and cannot offer medical advice. If you require professional advice please consult with your Doctor.
Me too it’s bad!! Too much stress and not taking care of myself. Trying everything not to be on medication. Thank you and sorry it happened again for you. Feel better.
Dont be afraid of using meds if you have to do so. They helped me get better x
Been 3 months since I’ve had the first attack and have had numerous in that time until now and had all major tests done brain MRI, ECG, BLOODS , EEG and still no diagnosis and I’m almost certain this is what I have , I’d love to explain this to my GP so I can be diagnosed and get onto the road to recovery without being told is just anxiety
You have ultimately made me feel seen for the first time in 3 months ! I appreciate this information truly
Ah glad I could help, Sheldon. Maybe play the GP the video?
Your videos are so comforting to me. I was recently diagnose with VM's and I'm working on getting the right meds to help. I just want to say Thank you for making these videos, they're encouraging.
I am very glad they have helped. Good, now you have a diagnosis and are searching for the right meds, you will be on the road to recovery soon.
I got COVID two weeks ago and the next week all my symptoms were ramped up, the worst they've been since 2020 when I had my first attack. I'm thinking covid triggered it b/c of the inflammation going on in my body fighting the virus. And you are right, it's hard for people to understand how miserable VM is. They look at us and don't see anything wrong, so it's hard for them to accept we are suffering.
Sorry to hear that Dina, and I hope things are settling down after COVID. I think you are 100% correct about the inflammation. It's a bastard!
I definitely agree with you Matt on the overload thing also get the swallowing thing ,for me supermarkets are my nemesis always a guaranteed trigger with head pressure to follow, especially if I forget my glasses which I do of course. Another great video mate thanks again for supporting our community 🙂
I am glad (or maybe not glad as it is horrible) that it isnt just me with the swallowing thing. It's very unsettling when it happens. Yes, I dont like supermarkets either, although I can tolerate them I prefer to leave my sunglasses on. Cheers mate, I appreciate your kind comments.
Sorry about your blip but awesome that you came through it as well as you did. That's gotta be pretty empowering.
Thanks Sid. Yes, it felt good - not from a cocky perspective but having absolute proof now that once you are treated, any attack that comes can be kept at bay.
I have followed all of your videos and appreciate you sharing both the positive and negatives of this disease. It’s oddly comforting to hear others share their story as it makes me feel like I’m not alone!
Ah no worries, Rach and you are definitely NOT ALONE!
Thank you for this. I needed to hear this . I recently suffered an attack and was recently diagnosed with VM with aura and just the diagnosis alone had me feeling hopeless thinking there is never going to be no light at the end of this attack. But focusing on the positive and getting through an attack shows there can be hope after an attack happens. Listening to your story actually makes sense and also brings more hope after a attack.
Ah I am sorry you are suffering, Fran and really glad I have given you some hope. There is much to be hopeful for. I am proof of it and so are many other folks I know.
Hello, I started having sensitivity to lights, sound and extreme motion sickness and vertigo, ringing in ears, ear fullness feeling and also my glands in my neck by my ears would get a tight feeling. Almost like when you eat something sour but not eating anything sour.
When in cars, looking up and down etc. I went to ENT he cleaned out earwax and said my ears look great! But gave antibiotics due to sinus pressure and pain.
So I took a half of a 12.5 mg meclizine (over the counter medication for vertigo) and 45 minutes later EVERYTHING STOPPED!
I felt completely NORMAL again. Not even sensitive to light.
I am on my 2nd day of Augmentin but before I even took my first antibiotic I took meclizine and it took all that horrible vertigo, headache, light sensitivity away.
My mom had been telling me to just take a half of a meclizine for months. I was always telling her... No that wont help. OMG IT DOES!
It takes 45 mins to a hour to start working but it does and lasts the entire day.
I did have a CT scan of my sinuses and ear and inner ear. They just found that my (eustachian tube) in my inner ears are clogged.
Look up symptoms of that and ask for ct scan of yours! And take meclizine. IT WORKS!
I know how horrible and crippling this migraine vertigo is and wouldnt wish this on ANYONE.
But after discovering whats helping me. I want to help anyone I can.
God Bless and please just try it and ask for those tubes in your ears to be looked at. (eustachian tube)
The meclizine will work.
Im glad you are rebounding, I’m sorry for the attack. I hope your friends/family understand this is no joke! It’s so hard to deal with, so hard to explain. It’s hard for us to understand too, let alone non sufferers. I have that same type of attack where you have trouble with breathing, swallowing and balance. It’s scary man!! And you are trying to remain calm, help yourself and parse out if it could be something else ie not VM but a stroke. Thank you for sharing. I appreciate it! Happened recently after staying up too late playing video games. Smh
Thanks Julie. Yes, I am doing fine ta. They do understand better now than they once did, and you are right it is hard to explain. Ugh sorry about the attack after the video games. Defo get some gaming glasses or even better some FL 41 lenses!
@@thebluntyorkshireman5161 great idea about the glasses.
Glad to see videos like this, I've finally been referred to a ent specialist & he has been taking me through different meds, it's been rough, but I had been diagnosed meniere's disease, but he was more updated and explained to me I'm having vestibular migraines with no pain, but I'm having most of the symptoms you are having. Nobody else in my family has this🤦🏿♂️🤦🏿♂️.😢
Sorry to hear you are suffering, Tyrone. It’s great you have the diagnosis and good ent. That will really help you get on top of VM and manage the meniere’s 👌🏽
@thebluntyorkshireman5161 Yes I hope we can..tried 2 medicines really threw me off, so I've tried Topomax, it kinda worked, so now he wants me to try Emgality injection so I guess I'll see how that go..🙏🏿
Thanks so so much for this Matt! I was diagnosed with VM 8 years ago and although much better, still get acute episodes like the one you perfectly describe in this video. I’m having a bit of a relapse right now and Your videos always reassure me and you explain things so succinct and down to earth. I try and get my loved ones to listen to t
You too because like so many other illnesses nobody really understands unless they’ve been there! In fact I usually cry when I hear what you have to say, mostly because of relief that at last there is someone out there who gets it and lives with it and I have so much fear about it that it just helps to know I’m not alone. Keep churning them out and never under estimate the positive impact you have on your fellow sufferers like me ❤!!!! Xx
P.S I too have IBS. I guess these things go hand in hand.. (?) THANK YOU
Ah thank you so much for you kind words and support, Helen. Even if it helps one person somewhere around the world then it is worth while. Yes, defo play it to your loved ones, as it is a very tricky illness for others to understand unless they suffer from it. Ps yes on IBS - have a look at my video on it x
Hello, I started having sensitivity to lights, sound and extreme motion sickness and vertigo, ringing in ears, ear fullness feeling and also my glands in my neck by my ears would get a tight feeling. Almost like when you eat something sour but not eating anything sour.
When in cars, looking up and down etc. I went to ENT he cleaned out earwax and said my ears look great! But gave antibiotics due to sinus pressure and pain.
So I took a half of a 12.5 mg meclizine (over the counter medication for vertigo) and 45 minutes later EVERYTHING STOPPED!
I felt completely NORMAL again. Not even sensitive to light.
I am on my 2nd day of Augmentin but before I even took my first antibiotic I took meclizine and it took all that horrible vertigo, headache, light sensitivity away.
My mom had been telling me to just take a half of a meclizine for months. I was always telling her... No that wont help. OMG IT DOES!
It takes 45 mins to a hour to start working but it does and lasts the entire day.
I did have a CT scan of my sinuses and ear and inner ear. They just found that my (eustachian tube) in my inner ears are clogged.
Look up symptoms of that and ask for ct scan of yours! And take meclizine. IT WORKS!
I know how horrible and crippling this migraine vertigo is and wouldnt wish this on ANYONE.
But after discovering whats helping me. I want to help anyone I can.
God Bless and please just try it and ask for those tubes in your ears to be looked at. (eustachian tube)
The meclizine will work.
@russellmania4542 I was on meclizine, I just really felt sleepy!! I think I was missed diagnosed for years, & now I'm finally really feeling all the symptoms so I'm on a mission to get the help & treatment I need, like u said all test come back normal, it's just crazy..Thanks for sharing
Thanks Matt. I found an older video (about 3 yrs old) and gave a lengthy comment. You sound so much better. Acceptance despite the doubts of the severity of our illness from others makes a world 🌎 of difference. Knowing and understanding what they are and being able to mitigate them is key to maintaining a positive attitude about future episodes. If it wasn’t for my second severe attack and the hospitalization that followed and REAL medical records to back it up, I might’ve thought I was going crazy. The speed of my recovery after taking my medicine is proof that I now know that I can control the outcome and it makes all the difference.😊
Just read it, Julie - thanks. I am better ta. I am glad you can control the outcome now - well done! x
Hi Matt really good advice on your videos I love them. After two years now I have been sort of diagnosed with VM not definite though I’m convinced it is what I have. Some of my worst symptoms is ear pressure and tinnitus does anyone else have this it was one of my first symptoms two years ago. Went for a few months where I couldn’t leave the house but getting better. No treatment yet but starting next week. Thanks for making these videos they are so helpful 👍
Hi Anne. You are welcome and I am glad you are getting close to a diagnosis. Yes, people do get tinnitus with VM - I didnt - I was lucky, but you and others have suffered with it. I am really pleased they have been helpful!
Hello, I started having sensitivity to lights, sound and extreme motion sickness and vertigo, ringing in ears, ear fullness feeling and also my glands in my neck by my ears would get a tight feeling. Almost like when you eat something sour but not eating anything sour.
When in cars, looking up and down etc. I went to ENT he cleaned out earwax and said my ears look great! But gave antibiotics due to sinus pressure and pain.
So I took a half of a 12.5 mg meclizine (over the counter medication for vertigo) and 45 minutes later EVERYTHING STOPPED!
I felt completely NORMAL again. Not even sensitive to light.
I am on my 2nd day of Augmentin but before I even took my first antibiotic I took meclizine and it took all that horrible vertigo, headache, light sensitivity away.
My mom had been telling me to just take a half of a meclizine for months. I was always telling her... No that wont help. OMG IT DOES!
It takes 45 mins to a hour to start working but it does and lasts the entire day.
I did have a CT scan of my sinuses and ear and inner ear. They just found that my (eustachian tube) in my inner ears are clogged.
Look up symptoms of that and ask for ct scan of yours! And take meclizine. IT WORKS!
I know how horrible and crippling this migraine vertigo is and wouldnt wish this on ANYONE.
But after discovering whats helping me. I want to help anyone I can.
God Bless and please just try it and ask for those tubes in your ears to be looked at. (eustachian tube)
The meclizine will work.
@@russellmania4542 hi! Have the exact same symptoms as you & have for a month. My first symptoms were tinitius and ear pressures before the dehabilitating vertigo and dizziness and sickness daily. I tried mezcline for a week but didn't stop my swaying sensation and background dizziness but would agree it took the edge off it. I started taking it after a particularly bad attack. I've come off it now since I'm looking for something more permanent to work for my particular symptoms. Are you still taking it daily? Is it something you can take long term, I imagined not. I hope you are better!
Thank you for the videos. I just got diagnosed after 12 weeks of long suffering.
No worries, Ruby but now you are diagnosed you can start to get treatment and start to get better x
I am so greatful that you are informing the world and I have had this for 7 years, hoping for a diagnosis and a prescription on Thursday. Thank you so much for walking me through a few steps.
Ah no worries, Phia. I am glad you are taking the right steps! Every step counts. I am sorry you have suffered for so long.
Thanks for walking in front of me❤
Thank you❤❤❤❤
You are welcome x
Glad you got over your major attack Matt. I appreciate your videos. I’m still in the process of trying to find the correct medication/medications to prevent my migraines. I feel like it’s just a lucky dip, and I have to keep waiting until I pick the right one out. I have a few days where I think it’s getting better than then it just dips back down again. Been struggling on and off for 3 years now. Really hoping I can get rid of it so I can enjoy this summer as I’ve been extremely limited the past 2 summers due to the VM.
Thanks Lewis. Yes, I know what you mean about a lucky dip. It does feel very trial and error at times but you will get there. Yes, I hope you enjoy the summer too. Mine was terrible last year, due to my Mum's illness so lets hope we both have a better one.
You can get better! Honestly you can. Believe that!! Get the right help and an audiovestibular medical consultant you click with and the road to recovery is straight ahead! Xxx
@@helensims6792 thank you! I’ve spoke to neurologists and doctors but haven’t heard of an audiovestibular consultant before.
I had a recurrence of the dizzies when I was at a firework display, not a good idea with vestibular disorder and light sensitivity - silly girl!! And since November I’ve been having some dizziness and have had a full blown migraine last week but hopefully it is calming again… I’ve definitely had inflammation in my body it’s been shown in a blood test and had eczema and a virus so I know I was pushed over my limits. I’m glad you are healing quickly again and your brain is compensating quickly
Ah yes, of course, that makes sense. Well you'd probably have been OK in your sunglasses! Stupid inflammation - but good to know others think it is a cause too.
I literally have all these symptoms. Plus occasional tinnitus and stomach issues and heartburn just like you, I also struggle with bad anxiety everyday
Thanks for the video, I feel that i'm not alone watching your videos. I thought that I was cured after 2 years dealing with imbalance, floor shifting. Unfortunelly it came back, I had been already 1 month with the horrible symthomps again, I've tried a lot of medications and they just make me numbed, like I cannot function well, Is just so overwhelming.
Ah sorry you have relapsed but remember you beat it once so you will again. 👌🏽💪🏼
@dianagaleano6846 what meds are you on? For me it seems like nothing is working
Yep football matches would definitely be sensory overload! I have some kind of vertigo issues, but haven't had them looked at thoroughly yet.
Defo! And misery overload at times ;)
Hi, just wanted to say thank you for making these videos. I've been going through a tough time and these videos having been giving me some comfort. I started feeling all these dizzy symptoms since halfway through January of this year. It started when I literally just got out of bed to go get some food that I had ordered and when I got back to the apartment I started to feel really dizzy and this sense of dissociation. I had to lie down because I was just feeling really weird. The next day I went to my family doctor to see what the issue was and he had no idea. Two days after that I went to the emergency room and the doctor said that I probably just had BPPV (which didn't end up being the case). I tried waiting about a week, but my symptoms weren't getting better and I started to get this increase in anxiety. Just thinking about what was going on with me would send a shock up my nervous system. I would have panic attacks and it really made me nervous. I called up the doctor again and he gave me a referral for a vestibular PT, optometrist, ophthalmologist, neurologist and a CT scan. The vestibular PT didn't find any signs of vestibular dysfunction except with one test where I had to look left and right quickly which brought on the symptoms. He did notice that my heart rate was high though and that my blood pressure would go down when I stood up which surprised me because standing up doesn't really trigger the dizziness or uneasy feeling unless I'm jumping up really quickly, but that's more lightheadedness which is not really what I'm feeling. He thought it could be autonomic dysfunction so I went back to the doctor to tell him that, but he did some tests and didn't find anything that supported that idea. After that I went to see the eye doctors and they didn't find anything wrong with my eyes. I also got my blood work done and they didn't find anything wrong with my blood. I had an online meeting with a neurologist and they told me to reach back to them once I get the CT scan, but after calling the hospital they said that I would have to wait 5 months to get a scan. I've recently reached back to the neurologist to see what's going on and I'm talking to my family doctor later today because this experience has been frustrating. Last time I talked to my doctor he thought that it's probably vestibular neuritis. If it is then I'm glad that I will get better in the future. After watching your videos I do relate to some of the symptoms that you are talking about especially the disassociation feeling or feeling of uneasiness. I think you worded it well when you said that it's like feeling drunk without all the fun bits. I'm probably going to tell my doctor that next time I talk to him if I have the chance. After watching your videos as well as other videos on VM, I do have some symptoms that are relatable, but at the same time I have some that aren't. Here are my symptoms:
- Dizziness (not necessarily vertigo, but feels like I'm on a rocking boat as well as feeling like things are somewhat moving away from me)
- Uneasiness (possibly derealization/ 'having a drink without all the fun bits')
- Slight weakness
- Brain fog
- Anxiety
- Confusion
- Floaters in eyes
- Feeling of twitching eyes going up and down and side to side as well as pulsing (optometrist and ophthalmologist could not detect any nystagmus though)
- Headaches
- Pressure in different places of the head
The only things that I can think of that could have brought this on are 1) I had a cold that lasted throughout most of November of last year 2) I had the vaccine two weeks before I had these symptoms 3) getting up suddenly to go get the food that I had ordered. I know that you're not a doctor, but I did want to ask you some questions since you have gotten VM in the past. Do you think that it is possible to get vestibular neuritis without having Nystagmus and vertigo? Like I said I am feeling dizzy, but it feels more like I'm on a boat as well as this floating feeling as opposed to the room is rotating around me. Also, this has been going on for almost 2 months now so how long does it usually take for symptoms to settle? Once again thanks for posting these videos and for reading this and I hope to see your reply from this.
Hi Park. Thanks for sharing your story. It does sound very similar to mine - particularly how it came on out of the blue and then you gradually got more poorly in the week that followed. A lot of your symptoms common in VM sufferers as well, so there is certainly a good chance you could have it. From what I understand vestibular neuritis can cause the same symptoms and can cause/lead to VM. I think it can occur just from having a regular virus (although I am not a doctor, so dont quote me on that). So yes, it could have been the virus you had in November. Also it could have been the vaccine. Although I was OK, I know people who are relapsed or experienced VM for the first time after taking it. If you think about it, the vaccine does cause inflammation in your body - which I believe is at the source of VM and the odd symptoms it causes. You will get better, you just need to get a proper diagnosis and then treatment!
@@thebluntyorkshireman5161 I never had covid or the vaccine and I have all these symptoms. I've boiled down that the leading cause of this condition is likely related to sleep (circadian rhythm) and metabolism, diet, etc. In my case, I used to skip meals often and have erratic sleeping patterns. It all eventually resulted in the same symptoms you both are describing. Initially I had believed it was from low vitamin B12 but my levels are normal now. I'm actually currently in the midst of testing for sleeping disorders as well as cervical spine/neck instabilities. There's a doctor on UA-cam named Dr Hauser who talks a lot about vertigo and headaches being related to the spine and vagus nerve.
@@marketmagus Yeah, I used to skip meals - for example during uni as I was skint. It does not surprise me if it is a potential trigger.
@@thebluntyorkshireman5161Hey man, thanks for replying. I know this is a late reply, but I ended up getting diagnosed with vestibular neuritis by a neurologist. I’m still not 100% sure if it is though tbh, because she was very quick to diagnosis me over a zoom call after explaining my symptoms and I’m not experiencing vertigo which is a big symptom I’ve heard for other people. I’ll take the neurologists word for it though. If it is Vestibular Neuritis then it is a relief that I will get better from this and as you say ‘as I were, I’ll be again.’ It’s also a relief that I don’t have something worse. I got the CT scan and the scan came up normal so I’m really glad that I don’t have a brain tumour or anything like that. I’m doing a bit better since. I’ve been taking Vitamins, hydrating myself, getting back into exercising and slowly but surely recovering. I’d say I’m about 30-40% better right now. The symptoms are still definitely there, but I feel like I am getting better. The anxiety and brain fog are big symptoms for me, but I know that I’ll get through them :).
Thanks again for posting these videos as they have been giving me some comfort as I’ve been recovering. Cheers and keep up the good content 🥂 👍🏻 😎
2017 I had a devastating vertigo attack. I haf a cluster over several months but nothing as bad as thr first. On refection I continued to have hundred and hundreds of what I would call micro attacks tilting sensation visual disturbances nausea headaches. I normalised it over the years, and although I'd had an MRI scan the Drs weren't interested in persuing it. Fast forward to 20th April, shopping in a supermarket I had an even more devastating episode then 2017. Bed riddden spinnng, vomiting, headache for 4 days.
Lucckily I had a Neurologist appointment for something else on the 9 May.
My wife and I told the Neurologist. He thinks I have something called PPPD. It does all fit but apparently I now need more test but he did start me on Amytriptilline.
It's been 3 weeks since the initial episode and I still have a balance deficit, activity make me feel nauseous and triggers a headache. I try not to retire to bed but I haven't managed a full day out of bed yet. Still can't drive being a passenger is difficult.
I'm concerned about work as I have a job in a brightly lit laboratory with large white surfaces and won't be able to take time out for a couple of hours to clear my head. Early days yet but we'll see how it goes.
Ah yes. There are a few PPPD sufferers who watch my videos. Fortunately, I havent got that but it can be very awful. Check out the video I have done on it. Starting on amytriptiline will help (as I know a PPPD sufferer who has much improved on that med) you just have to give it time. There are things you can do to deal with the while light in your lab- look at my videos on FL 41 glasses - they have been absolutely fantastic for helping me.
@thebluntyorkshireman5161 Hi. Yes I now wear glasses with filters and am currently taking amytriptiline and propranolol. Everything has settled apart from the equilibrium. I feel additional movement moving to quickly (and that isn't very fast), changing direction, car accelerating, braking or cornering. I have to take an extra step or 2 sometimes. Also I find I'm losing words when talking and it takes me a few seconds to 'find' them
Just waiting for the brain and neck MRI to make sure nothing else is happening.
I'm back at work (I work part time)and driving short distances. Night driving is particularly stressful at the moment and I'm managing to avoid it.
I think it's going to be quite an adventure managing this thing. Luckily my wife and kids (grown up) are being great about it.
@@andrewbayram765 yeah I’ve had that exact same speach thing. As in it was an effort to get the words out. There are shoots of improvement in what you are saying there. More will come in time and you’ll be able to manage it properly like I do. 😊
Hey Matt another great well put postive video I’m so glad you remain symptom free even after a attack. I have had my best month yet I’ve started CGRP injections which has lowered my daily headaches and dizziness after only a month which is amazing. I’ve returned to the gym driving daily and pushing myself into busy environments like shopping centres and my goal to return to work. I’m still have anxiety regarding my symptoms as I work in hospitals and nightclubs which is probably the most triggering environments hahah. Have you any advice or know anyone similar with the condition that have also returned to busy environments or gone into remission/symptom free? Cheers Matt appreciate everything you do for the community💪🏻
Thanks Water. That is great news - you are recovering! Yes, I know loads of recovered people who can return to those environments, including myself.. Dont get me wrong, I'd rather be in a place with ambient light that blazing supermarket lights but I can cope in them now.
Hi, great to hear that the CGRP is working for you, that has cheered me up. Which one have you tried? I’m looking to try CGRP in the next couple of months but not sure which one. Have suffered VM for over 7 years, Nortriptylene used to works wonders but its benefits ceased unfortunately. Any advice is welcome, thanks 👍
@@jamesmarsh704 hey James I’m on emgality
Sorry for your recent attack but you seem to have diagnosed the lead up and triggers pretty well. I suffer from random vertigo attacks brought on by sudden hearing loss two years ago. I've had three episodes that were quite disabling. I've learned several triggers such as too much sodium and allergies. I have had blood work performed and early on I was deficient in vitamin D3, magnesium and zinc. I'm taking supplements now and my overall health has improved. Magnesium has shown to help with certain types of migraine attacks. You're a handsome man especially when you smile. I hope you find more to smile about in the future. Ron
Thanks Ron. I take very similar supplements to you too. 😊
Does sound like Meniere disease? Did they rule that out?
@@FJano12 Yes they did. You are right though, there are some similar symptoms.
Can you explain the medication you’re on and the mitigation measures you described in this video?
“You might be anxious about the crap football being played” …As a fellow VM sufferer and American who has recently started following a few Premier League teams (trying to settle on one eventually), I had a huge laugh at this lol!! 😂 Thank you for the smile 😊
Ha ha who are you following? Chelsea?
@@thebluntyorkshireman5161 Lol no, my current top 3 are Tottenham, Man United, and Arsenal. I’m most partial to the Spurs as I really love Kane, Son, and Richarlison after seeing them all play in the world cup, but I also love Rashford and Casemiro, and Saka ans Xhaka, so it’s tough to choose 😊
@@jen-k-1 You should try supporting Sheffield United then you would fully understand the pain football can bring to one's life ;)
@@thebluntyorkshireman5161 Haha! :). I will have to check them out!
@@thebluntyorkshireman5161 I was just checking to see what matches will be happening this coming week and I remembered this comment when I saw that Sheffield Utd will be playing Man City this Saturday in the FA Cup!! I will definitely be watching this!! 🎉. Hope you are doing well VM-wise 😊
The breathing trouble is the worst feeling, i had covid a few weeks ago and am going through a miserable flair up.
Yeah - there is nothing worse than feeling you can’t breathe. Panic inducing as well.
Hi, I’ve been experiencing balance problems the past two years after an attack of vertigo. My symptoms can occur several times a week where I will feel a strange numbness in the left side of my head with an ear pressure mostly on that side. Then I will feel a weakness in my legs and my balance goes right after. Do you experience any of these problems? I’m waiting on an MRI and have yet to see an ENT doctor. Now I worry about plane travel since I believe my problems started after a vacation where I had to take two planes there and two planes back. I would be interested to know if anyone else has experience problems travelling. I’m hanging in there but the anxiety this creates can sometimes be a bit much.
Thank you for sharing❤ i experience temporal pressure the minute I wake up. Vertigo and vision problems. And due to this condition I get anxiety attacks. The feeling is horrible 😢 could this be it? My doctors have no idea. Which meds help with vestibular migraine. Thank you❤
Yes, it sounds like youhave some of the key symptoms! And doctors often dont have any idea! Suggest it to them!
Hey, Question Matt. When you say you were in "remission" does that mean you were symptom free during that period? Just wondering what kind of "normal" lifestyle I should expect/hope for. I feel like I'm moving from the chronic phase to a more acute/episodic phase but even in between my acute "attacks" I have daily symptoms here and there...not all day, just periods during the day. On the positive side, at least I'm not feeling drunk, dizzy, crappy, all day long, every day.
Hi Hiker. Yes, I mean I was better, so I was symptom free bar, the odd pang of a symptom. You should hope for, expect, aim for a normal lifestyle. I am still better btw - the attack was kept at bay and I didnt get poorly as a result.
Hi! How long did it take you to recover from your chronic phase? I’m a year into my diagnosis and I still have 24/7 symptoms but I then have times where they get even worse which I assume are my attacks. How long does it take for the 24/7 symptoms to go?
It’s different for everyone. It took me a year and a bit.
Hi Kerry. It took about three-four months for the 24/7 chronic phase to end. Yes, I bet those worse parts are your attacks. Are you having any treatment?
@@thebluntyorkshireman5161 yes I’ve been on pizotifen since January 2022, vitamins and the migraine diet. I noticed some improvement and was about 70% better in the summer but since October/November my baseline got worse and then I became ill with the flu which set me back even further. I’m still not back at the 70% I was so not sure why I’m trending backwards rather than forwards! Thank you
@@kerrycoogan2337 Ah OK. Yes, the flu will have increased inflammation in your body and that will have caused a bit of a VM relapse. When I've had colds before, it can cause pangs of VM symptoms.
Can you write here which meds you are taking? It will take me long to look trough vids.
I have looked at cipralex, sarotex, zoloft etc. any experience with those?
I can - I am on Sertraline and Propanalol.
@@thebluntyorkshireman5161 is it sertaline or the other that hellps with floor sinking feeling etc? Trampoline walking.
Hi i was wondering where you got your diagnosis. Did you find someone near you? Thanks
Hi. Yes I did. I live in the north of England. If you do, google Mrs Susan Douglas who is an ENT specialist. She diagnosed my VM.
I really need some advice please Matt. I had problems years ago and was put on Amitriptyline which stopped it but a osteopath has bought it back on 8 weeks ago.
I have just paid a lot of money to see a private neurologist who has diagnosed me with anxiety!!. I used to get all this years ago before I was diagnosed. My doctors aren't even going to help me now as they will just fob me off with this. Didn't they say this to you in the beginning?. How did you get them to help in the end?. I wish I hadn't gone to him mow as its just made it 100 times worse.
Does anyone know if you can speak to Matt on here?.
Hi Sue. Yes, you can contact me on Instagram @cordeliassmile. Yes, I got fobbed off a bit at times - for example told it was anxiety. The trick is to see a specialist who knows about VM, for example, the lady I saw - Dr Susan Douglas. Sorry you have relapsed. Sounds like the meds did the trick though - so getting back on them would be good.
Hi Matt. I have sent a request. I don't use Instagram very often hence not that good on it so it might be showing under a different. I seem to have changed it somehow but not sure how 😅.
What treatment worked for you and how long were you taking it before it actually helped? I’m having more issues with photophobia, back of the head pain and the rocking sensation when I’m sitting still.
Have a look at my other videos, jewels but what worked for me is the right combo of meds and some other mitigations, such as FL-41 lenses in glasses. Yeah, back of the head pain I think could be one of the causes of VM. Defiinitely get that greated (physio, massage) and see if that makes a difference.
Thank you!
Hello, I started having sensitivity to lights, sound and extreme motion sickness and vertigo, ringing in ears, ear fullness feeling and also my glands in my neck by my ears would get a tight feeling. Almost like when you eat something sour but not eating anything sour.
When in cars, looking up and down etc. I went to ENT he cleaned out earwax and said my ears look great! But gave antibiotics due to sinus pressure and pain.
So I took a half of a 12.5 mg meclizine (over the counter medication for vertigo) and 45 minutes later EVERYTHING STOPPED!
I felt completely NORMAL again. Not even sensitive to light.
I am on my 2nd day of Augmentin but before I even took my first antibiotic I took meclizine and it took all that horrible vertigo, headache, light sensitivity away.
My mom had been telling me to just take a half of a meclizine for months. I was always telling her... No that wont help. OMG IT DOES!
It takes 45 mins to a hour to start working but it does and lasts the entire day.
I did have a CT scan of my sinuses and ear and inner ear. They just found that my (eustachian tube) in my inner ears are clogged.
Look up symptoms of that and ask for ct scan of yours! And take meclizine. IT WORKS!
I know how horrible and crippling this migraine vertigo is and wouldnt wish this on ANYONE.
But after discovering whats helping me. I want to help anyone I can.
God Bless and please just try it and ask for those tubes in your ears to be looked at. (eustachian tube)
The meclizine will work.
I got this after the covid vaccine looking online there are loads affected with the vaccine ,I'm in the middle of an attack now its horrible ..had sertraline last night first time its made it easier feel weird though .. did your vertigo ease off and have you had like spasms off dizziness like every couple of minutes ..its like waves of dizziness
Hi Tom. Yes, the sertraline did make me feel weird at first but you will get used to it. Yes, the sense off feeling off balance went away. Ps although the vax doesnt seem to have impacted me, I wouldnt risk taking another dose again in the future.
How do you do with busy stimulus? Like a busy shopping mall on a saturday? Those types of stimulus set me off and i can only handle a certain amount of time in a mall.
I am about to post a video on this! Look out for it at the weekend!
Just to add to your theory. The last 3 of my migraines happened about 30 minutes after an intense boxing class. I'm sure I can get migraines other ways.. but boxing will 100% give me a migraine.
Oh crikey. Yes, I think I can see why! How annoying if you love your boxing. I can't really do a lot of running tbh - certainly not long distance because of VM.
My only worry with my VM if turns into Meniere disease one point.. Some data suggests strong relation.
I guess we just have to hope that limiting attacks limits the chances of this happening 🍀
Hello, I started having sensitivity to lights, sound and extreme motion sickness and vertigo, ringing in ears, ear fullness feeling and also my glands in my neck by my ears would get a tight feeling. Almost like when you eat something sour but not eating anything sour.
When in cars, looking up and down etc. I went to ENT he cleaned out earwax and said my ears look great! But gave antibiotics due to sinus pressure and pain.
So I took a half of a 12.5 mg meclizine (over the counter medication for vertigo) and 45 minutes later EVERYTHING STOPPED!
I felt completely NORMAL again. Not even sensitive to light.
I am on my 2nd day of Augmentin but before I even took my first antibiotic I took meclizine and it took all that horrible vertigo, headache, light sensitivity away.
My mom had been telling me to just take a half of a meclizine for months. I was always telling her... No that wont help. OMG IT DOES!
It takes 45 mins to a hour to start working but it does and lasts the entire day.
I did have a CT scan of my sinuses and ear and inner ear. They just found that my (eustachian tube) in my inner ears are clogged.
Look up symptoms of that and ask for ct scan of yours! And take meclizine. IT WORKS!
I know how horrible and crippling this migraine vertigo is and wouldnt wish this on ANYONE.
But after discovering whats helping me. I want to help anyone I can.
God Bless and please just try it and ask for those tubes in your ears to be looked at. (eustachian tube)
The meclizine will work.
Hi
I had a massive attack June 2020
I was diagnosed it was vestibular neauritis
Since then it’s been a struggle
I think I’m about 80% recovery
But still get symptoms
Like anxiety
Balance issues
Headaches
Chest pains and tingling feelings in feet legs arms fingers
I also get these brain zolts that hit me random
Fatigue is bad too
Hi Brad. Sorry to hear about your attack. I am glad you are 80% recovered - and you will get to 100% eventually. The tingling thing also happened to me a bit. Particularly during an attack (in my fingers).
Hello, I started having sensitivity to lights, sound and extreme motion sickness and vertigo, ringing in ears, ear fullness feeling and also my glands in my neck by my ears would get a tight feeling. Almost like when you eat something sour but not eating anything sour.
When in cars, looking up and down etc. I went to ENT he cleaned out earwax and said my ears look great! But gave antibiotics due to sinus pressure and pain.
So I took a half of a 12.5 mg meclizine (over the counter medication for vertigo) and 45 minutes later EVERYTHING STOPPED!
I felt completely NORMAL again. Not even sensitive to light.
I am on my 2nd day of Augmentin but before I even took my first antibiotic I took meclizine and it took all that horrible vertigo, headache, light sensitivity away.
My mom had been telling me to just take a half of a meclizine for months. I was always telling her... No that wont help. OMG IT DOES!
It takes 45 mins to a hour to start working but it does and lasts the entire day.
I did have a CT scan of my sinuses and ear and inner ear. They just found that my (eustachian tube) in my inner ears are clogged.
Look up symptoms of that and ask for ct scan of yours! And take meclizine. IT WORKS!
I know how horrible and crippling this migraine vertigo is and wouldnt wish this on ANYONE.
But after discovering whats helping me. I want to help anyone I can.
God Bless and please just try it and ask for those tubes in your ears to be looked at. (eustachian tube)
The meclizine will work.
Did you have any negative effects when you took a flight? I’m due to take a ten hour flight and I’m nervous as hell about it but I don’t want to stop living my life
Actually not yet, Arty. it will be a real test for me as I hate flying as well. I will defo do a video on that when I do. Let me know how the flight goes and yes, you cant stop living!
@@thebluntyorkshireman5161 thank you and look forward (?) to hearing and hope you travel well and with not side effects 🙏
@@artysqueezy184 I will do - when I can finally afford to go on holiday!!
@@thebluntyorkshireman5161 😂😂 save hard!!
Although the budget is tomorrow so we shall see what damage that does…🤨🤨😞😞
Does caffeine make it worse because I'm sure it does for me.
Yep. I avoid it like the plague (where I can).
For me it didn't make any difference. I do have my morning and evening coffee tea everyday
@lochanbisne tea is fine for me, but 160mg caffeine in a pre workout sends my vm crazy.
@scotsman9755 what medication are you on?
@lochanbisne prochlorperazine, but it comes at the cost of feeling drowsy. I've also been taking ashwagandha ksm-66, which really helps with anxiety and healing as an adaptogen.
What treatment are you having?
Check out my other videos. I was treated via the right meds plus my own action such as tweaks to lifestyle. I talk about all these things in detail. :)
How do you reconcile these attack symptoms vs. Just anxiety?
Because they are physical and because I’m not suffering from anxiety 😊
@The Blunt Yorkshireman I totally get you but I have the same symptoms and here in the US the are calling it anxiety. Not that I buy into that.
@@amandaj7501 I’ve had Generalized Anxiety Disorder for years before my first attack in January and it’s very different. I got the dizziness first not caused by any emotional distress and then as the symptoms just continued I started to get scared and had panic attacks for days. Now that I’m diagnosed with VM as well I’m not having panic attacks over it and I can see clearly how the conditions are different. Emotionally I’m mostly sad it’s happening to me 😅
@Kamilah Jones we are on the same page. I was clarifying because, like I mentioned, many Dr's are trying to label them one and the same.
@@amandaj7501 yeah it’s a classic doctor fob off - because a lot of them know nothing about VM
bro most of this happened to me just recently been feeling horrendous for a month now. Im getting told its cervical vertigo how can i tell the difference between this and vestibular migrane
Hmm - I dont know the difference myself but it sounds like it could be VM. I dont know much about cervical vertigo though....
@@thebluntyorkshireman5161 yeah think it is. Last question haha...does VM therapy help in terms of balance exercises and stuff? I'm from UK but living in Thailand and thinking about flying back. I've just started taking effexor the side effects are pretty rough
@@abcdefg9163 Yeah it does help, although my vestibular physio thinks it only works properly for VM once you stop the migraine from firing with the right meds.
@@thebluntyorkshireman5161 thanks man! Appreciate the videos. So did the 24/7 feeling like your in a floaty dream watching from behind your eyes and head pressure eventually wear off?
Yes mate - all went away .@@abcdefg9163
Hi Matt, how do I find you on facebook or whatsapp? Thanks