SO thankful for Dr Mayes, when I was diagnosed in 2015 I was told to find out what scleroderma is by going to the arthritis website, there was nothing for me there. So I went to youtube and Dr Mayes had her presentations and I took lots of notes. I was scared back then, but at least I was informed. Thank you Dr Mayes!
I think this is a disease that's not being diagnosed correctly nor at time. I've been struggling for years (10 years aprox) and doctors in my country the barely know it and rheumatologist don't know how ti diagnose it correctly.. I've been misdiagnosed with lupus. It's extremely sad to know that there's nothing to treat this disease directly.
neha verma I also have this and I'm 64 years old having a lot of pain at night i will cry my self to sleep i think it's hard on older people my name is Argine
![Lp. Сердце Вселенной #60 РОЖДЕНИЕ ЛОЛОЛОШКИ [Финал] • Майнкрафт](http://i.ytimg.com/vi/YoR0pAV9FVQ/mqdefault.jpg)
SO thankful for Dr Mayes, when I was diagnosed in 2015 I was told to find out what scleroderma is by going to the arthritis website, there was nothing for me there. So I went to youtube and Dr Mayes had her presentations and I took lots of notes. I was scared back then, but at least I was informed. Thank you Dr Mayes!
Calcinosis can go away on its own?
I think this is a disease that's not being diagnosed correctly nor at time.
I've been struggling for years (10 years aprox) and doctors in my country the barely know it and rheumatologist don't know how ti diagnose it correctly.. I've been misdiagnosed with lupus.
It's extremely sad to know that there's nothing to treat this disease directly.
I am suffering from linear morphea
neha verma I also have this and I'm 64 years old having a lot of pain at night i will cry my self to sleep i think it's hard on older people my name is Argine