COUGHING UP BLOOD | HEMOPTYSIS 😷
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- Опубліковано 9 жов 2020
- Vlog 10.8.20 → My lungs are bleeding again...
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Welcome to The Frey Life daily vlogs! We are Peter & Mary, a married couple in our early 30's, showing the ups and downs of everyday life with #CysticFibrosis, a life-threatening lung disease that Mary was born with. We have an adorable standard poodle, Oliver, and a hairless sphynx cat, Harry. It's our hope that these videos can be an encouragement to to celebrate the little things in life and find joy amidst a world full of hard realities!
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Keep on pushing on, friends! We got this!
Hope your feeling better mary
Love you hope you feel better
@@FREAKOUT123ism nice copy and paste but that would be for the average person.. not a CF patient who's had lung bleeds all of her life and a cat less than a year. I'm a vet tech.. Harry has been to the vet many times. They would know if he has anything that could make Mary worse.
Prayers for ,you Mary
Mary, your cheeks are pinkish red, take it easy.
it's always managing! Sometimes it is hard for me to accept, "I'm not normal and I'm going to be managing this, never curing this!" But it is ups and downs... prayers for UPS UPS UPS from now on!
I can relate to you girl😥. I got hemolysis 2 months into taking Tricafta in April Easter weekend (what a terrible time to get it☹) and had to go to the ER and be hospitalized for it because this was out of the blue and abnormal for me. I have had it once before that in January '19 when I suffered the worst time ever in my CF life (and teen/young adult life) by being in and out of the hospital 3 times in one month with first CF exacerbation,then the flu 5 days after going home,then pneumonia 2 1/2 days after going home. But also what caused it when I was hospitalized the third time with pneumonia was that I had gotten a blood clot in my right arm after a stupid nurse pulled my PIC line incorrectly during my last stay with the flu. So after much struggles and set backs,I finally went home after 2 weeks in the hospital with pneumonia with a new PIC line in my left arm (that's another story for another time). But long story short first time I was on Orkambi and the second time just starting out on Tricafta. And now I'm doing well and hope to stay that way for a good long time. Hope you feel better Mary.
Hi r u feeling better, have u recovered ?
The grass looks beautiful Mary! Peter did a great job on it.
So sorry you are having a rough time right now Mary. May you heal at God speed and be back to your normal soon. Bless x
Thank you for sharing your smoking story. I always enjoy hearing about your experiences Peter.
The grass looks amazing!! Peter has worked so hard in the back yard!!
Hope everything is okay Mary! And Peter the grass is amazing!!
Amazing Harry sticks around outside.
Wow Peter you done a darn fantastic job with the grass. You must be very proud of yourself!👍🏾☺️🙌🏾🇬🇧
Keeping you in my thoughts and prayers Mary. Please take care and hope that those side effects subside very soon. I know all too well what it's like to have clots throughout my body and in my lungs due to my clotting disorder. Praying you never have any clotting issues. Feel better my friend!
Aw your green grass is so sumptuously beautiful ! Good work ❤️
Wow the yard looks like a golf course! Sure hope your bleeding stops quick Mary. Y’all have a good weekend.
Mary that's so terrible that you have this coughing up blood. I hope the bleeding stops on its own again. I'm glad you can stay at home. Sending prayers your way. Hopefully it goes away quick. Hope you recover quick.
Mary, I just got back from Aldi and I tried those thin coconut cookies you liked. Delicious! Thanks for the tasty recommendation!
Wow grass looks amazing I remember when it was mostly pine needles! Mary hope the bleeding stops! Poor lungs!
Thanks so much for this video, I’ve just had my first bleed since starting kaftrio in 2020 and needing IVS. Glad to know I’m not alone as I instantly was worried I’m getting sick again. Thankfully my o2 levels are fine and it’s stopped quickly. Hope you’re well ❤
Loving the vlogs keep it up Mary and Peter
Hope you are doing ok now. The grass does look great! Harry is a cool cat for sure. We now have three indoor kitties and feed others outside.
Saying a little prayer for all that is Good. Amen! 🥰🙏🏽
Hope you feel better soon, Mary!😇
That Grass looks fabulous. Absolutely fantastic work Peter. It looks so soft. Almost like a green carpet..... ☮️⚛️🌏
Wow, your yard looks amazing!
Wishing you well Mary may the bleeding stop on its own 💗
Peter you're adorable " brisket is life changing" lol :) Sad to hear Mary, may God be with you during this horrible illness. God Bless you Both!
Glad the bleeding stops and hope it stays that way. Peter, you make me hungry talking about those smoked meats. 😁👋💖
I LOVE pulled pork sandwiches but I know that the pulled pork that I have tasted would pale in comparison to your smoker pulled pork, Peter! Glad that you both are enjoying the smoker! This is Thanksgiving weekend in Canada....so many blessings to thank God for. I pray that the bleeding from your lungs stops on its own and that you do not need intervention, Mary. God bless and enjoy the rest of your weekend! 🤗❤️❤️🙏🏼😘🐕🐱
You had this before I remember just lay low rest let your body heal.
Praying for Mary! ❤
Peter, give up the pulled pork. Cook it to about 200-205 degrees, let it rest and then SLICE it. That’s how we’ve eaten it for years and it’s so much better. Be sure to slice across the grain, just like with the brisket. You’ve inspired me to get a pork roast and brisket out of the freezer and smoke them this week!! So many good meals 😊 to come. Harry is precious but Ollie makes me smile every time I see him. I’m a poodle mom, too. God bless you all.
I've seein you at your ex Boston Hospital, where I also work, a couple of times but never approached you. I didn't want to add more headache to your busy schedule but mostly i also have someone with CF in my life and would never want to risk spreading something either way. It sucks that you have crappy days but im happy to see your quality of like improve so much thanks to the new CF drug.
The yard looks so pretty!!!🤩
Grass looks amazing Peter
Hi guys, ill pray you never need surgery to stop the bleeding coz im assuming not needing surgery for this long shows your healing process in that area is fairly healthy/ier 🙏 and good tips for brisket.
Hey Peter NC barely has a winter, you could of just kept the tires. 🙂
Would love to see more of Ollie. I miss him. Do you still spend time with him? Hope you feel better soon. I know its a dailey challenge but you do encourage others with the positive way you handle it! Thanks!
Prayers for you Mary
Thinking of you all and hoping the blood lose will stop on it on. Take a break and allow your body to heal, okay.
You’re wrong Peter-people do care about your smoking. You need to put your recipes up! It all looks so good.
Yes 👍
Yes! I completely agree. Please do it! Or maybe you guys could put together a recipe book.
We love your smoker shares!! I can almost smell it from here....so good :) Thanks Peter for sharing!
I'm so sorry you're having problems with bleeding. It can be kind of scary. There were times in the ICU where I worked that people had pulled out all their IVs or were having a bleeding episode and they were so scared, we reassured them that the amount of blood that occurred was relatively small and we would take care of everything and we tried to clean up things as fast as we could.
Hope you feel better Mary!
I hope you're feeling better Mary. I my self have experienced hemtoises because my blood doesn't clot well. I really have to be careful of nose bleeds. Feel better and enjoy the good brisket. Thanks for sharing you're day and as all ways I will see you tomorrow god bless.
Mary your in my prayers and I hope you feel better soon.
I love hearing about the smoker adventures. It makes me want one when I get my own place!
Feel better Mary!
I’m praying for you both in Jesus name your bleeding will stop and you will be healed you are so strong girl ! An inspiration keep pushing you’re helping us who have other health issues pull through too 🙏🏻
Me too, Mary :( Mine started this morning, as well. I've had a lot lately. I'm going to have to give up on the hypertonic saline. Praying for your healing in Jesus' name
Sending positive vibes your way!
Prayers for you and the rest of the family (two footed and four footed.)
Sounds like the brisket turned out really well and getting new tires is amazing! Are you going to get snow tires for the winter? God bless Mary and Peter and your furry and non-furry friends.😇
Big love to you guys!🤍
Lovely yard all the Green so healthy🙌
When Harry is under the blanket with his head poking out, he kind of looks like a Siamese. ♥️
Sphynx have Siamese in them from the breeding
Thinking of you today Mary! I'm cooking a nice homemade chicken noodle soup for my hubby who has a cold. Hope you feel better soon!
Praying for you
Peter, I always want a brisket update. My husband loves to try his hand at smoking the perfect brisket. I love eating his successes. (;
Mary sending prayers
When we got our Coroline (black cat) last year , I was reluctant to let her roam around. Basically, cats have their own territories and won't wonder too far away. It's good for a cat to have that freedom. Our cat usually comes home when she's called. I know it's scary, because perhaps one day she won't come home. Freedom is a wonderful thing. Saying that, your Harry, is Hairless , so maybe that would make him more of a target. Thanks for sharing your life with us. Hugs from Northern Canada.
Praying for You Mary the grass looks great You guys are all so cute God Bless
Hope your feeling better Mary. Yes, Peter, we care about your smoking. I don't have a smoker but recipes and cooking, baking is always fun. Peter's lawn looks good. How about some diagonal pattern next? Harry needs a harness and leash then he can join you outside without worrying. Cause he can be fast.
I have non-CF bronchiectasis and have had hemoptysis many times. It looks like clots. Sometimes a lot, which is scary. I got a vest a few months ago and thought it would mean less hemoptysis, but not so. Now that I see you have them, I feel better. Take care.
It makes me nervous when Peter drives with no hands! :)
my husband drives with his knees and freaks out when I take my hands off the wheel for the slightest bit 🙄
Oh No ☹️😔 hug's.
Love you guy's. Keep being positive Mrs. Mary
Love you guys.. when your Port isn't accessed, does your Port ever ache? You guys help me to stay positive as much as possible. You're in my prayers everyday 💗
God bless you both guys
Hope you feel better soon.
God bless brave girl🙏
i love your dog, is it possible you could give me information on where/which breeder you got him and for how much? thank you!
Just WOW, the grass look gorgeous! Peter, after all that work you have done in the past to now...Wasn’t it all worth it! Not a question, coz I know it sure was.
Ok, something I have been wondering..Mary, have you Done a video and talked about the switch from your back home doctor’s and surgeon’s to the Dr’s you have now? The differences, and stuff. Just curious 🧐
You taught me a new word, so thanks for that
Love you guys
Oh man! Now I want some brisket!
Feel better soon and Post notifications and always and cute couple
Hope you feel better soon
Love and prayers ❤️
How do you feel in between airway clearance when you skip a session? Doesn't the mucus build up more? Hope you feel better soon.
Relax, maybe some painting might be good. Take care. 🙏 The grass looks great!
You guys got this
I've recently bought some collars on sale from in the company of dogs and the buckle has a gps.maybe you should consider that for harry . It was on sale for 12.00. --feel better girl!
Praying
Mary I could tell by taking 1 look at you you were not feeling the best today. I will pray for you tonight.
Oh Mary, I’m so sorry. I prayed for you when I lit the Yomtov candles for Rejoicing with the Torah earlier this evening. I really hope and pray that it helps you xxxxxxxxxxxxxxxx
Peter I think you may well be on your way to a smoker cook book 😊
have you tried hydrogren peroxide 1 drop in water and progress to more drops?
"Food,food,food" lol
Have had that procedure last year. It is called a pulmonary embolization. They use the femoral artery to access your lungs.
I have CF! I know what it is for exAMPLE LIVING IN FRICKIN LUNG FUNCTION ROOMS, HOSPITAL VISITS AND ALL THE TRIALS YA KNOW. SO MANY THINGS FOR A CF HUMAN
I feel like you guys are in Ireland so pretty and green out there I’m jealous LOL just
Peter...you do need to share your recipes. We have Traeger also.
Hi Mary and Peter sorry Mary not doing good
Prayers for mary, grass looks great hi Ollie and Harry enjoy your Saturday
You should try Harry on a harness and lead. We used to put out cat on one and she never minded it.
they have in past vlogs
Adorable Harry. And. Ollie
May I ask for prayers for my sister. On Wed. she had an angiogram and had to have a stent placed. She had complications during the procedure and was in the hospital until Friday. She has been diagnosed with severe sleep apnea and low oxygen. She is currently on 24/7 oxygen. Her sedentary lifestyle has caused her lungs to shrink. She is also a diabetic. It has been an overwhelming few days. She lives with my husband and me. Hopefully she can turn things around to improve her quality of life. 🙏🏻💗. Thank you
Prayers for your sister. 🙏
Felix Cat thank you so much.
Prayers for your sister. Hopefully the oxygen will give her some energy to get up and walk or do something for exercise. It's the best thing for me when I need oxygen. I have an exercise bike now, but I used to strap on a backpack with a small tank and go for a walk. :)
Rhonda Torres thank you so much. She has a treadmill. Yesterday she walked for 5 min twice on the treadmill. You have to start somewhere. I am hoping with time she may be able to regain her lung capacity. It makes me very sad to see her decline and struggles. I so appreciate your encouragement 😊
Can you do Feel Good Friday videos featuring viewer-requested positive and uplifting and inspiring and heartwarming good news stories and random acts of kindness stories of human interest during the COVID-19 pandemic and these tough times?
Peter! At least one hand on wheel when in motion. Please. Mary and the world need ya! 💗💗💗 Prayers Mary. 💞💗💞
I COMPLETELY UNDERSTAND THE WEEKEND plan
We MUST GET HELP BEFORE THAT! We don't LIKE ER VISITS.🥺
Rest and more rest.
Have you thought about getting a leash for Harry
Cats love fireplaces👍