Poignant …motivational…..inspirational……your strength and determination took you from a very dark place ….to one where you can shine the light for others and you truly do an amazing job of that 💜 Through your experience you are helping others to heal ……you have such heart and soul 🙏
I must say... this is so inspirational. My body just slaps. me. down. every time I try to do anything physical. It hurts so much for a couple of days, and has further negative results, such as my back sinking down so that I might fall ... backwards. So I have given up and only use what little strength I have for necessary chores. However after you describe, so well, what you had endured and where you are now, I am starting to hope... thank you.
I was told by my geneticist not to lift weights because we can harm ourselves so easily. I was just diagnosed last month and planning on making a video next week for my channel. Thank you so much for sharing your story. Keep pushing forward! 🦓✨
So when I talk about lifting weights we are talking small hand weights and it took years to build up my strength to get to this stage. Yes you have to be very careful x
Wonderful video Charlie and incredibly timely for me. I have been with you since you started and I have taken a lot of your advice along the way as I have had a spinal fusion and discectomy in my neck following a car accident in my mid 30s. I have just turned 40 and now have chronic arthritis in the facet joints throughout my c spine and I am crippled with pain. I feel I spend my life amongst specialists and pain meds. I am in the middle of finding a trainer to help me start strength training and I have overhauled my diet which has in itself already had a positive impact. I refuse to let this define me and stop me being strong for both myself l, my husband and my 2 children. You sharing this video reminded me that I'm not alone as I feel pain and injury at times can be a very lonely road and that the path I am on the right one. Thank you Charlie for building such a gorgeous and supportive community for women like us ❤
Oh Prue I am sorry, it’s so challenging I do totally understand. Do get in touch with Leigh she does one to one and is so knowledgeable and kind. She has changed so many people’s lives. Xxx
As a fellow EDS sufferer, this is wonderful, Charlie! Some very familiar stories in there. Thank you for talking about your journey and inspiring me to do more to make myself stronger! xx
Very interesting Charlie. Sorry to hear about all your suffering. Now at 70, I have a prolapse and am awaiting surgery. The list of exercises that I must not do is long, and includes the plank. However walking is highly recommended along with those Kegels of course.
Thank you for sharing your story, love how determined you are to live a beautiful life no matter the diagnoses. Take care.
Thank you we only have one life I want to enjoy it as much as possible xxx
Poignant …motivational…..inspirational……your strength and determination took you from a very dark place ….to one where you can shine the light for others and you truly do an amazing job of that 💜
Through your experience you are helping others to heal ……you have such heart and soul 🙏
Thank you so much Charlie, this was truly helpful and encouraging. xx
Glad it was helpful! Xx
I must say... this is so inspirational. My body just slaps. me. down. every time I try to do anything physical. It hurts so much for a couple of days, and has further negative results, such as my back sinking down so that I might fall ... backwards. So I have given up and only use what little strength I have for necessary chores. However after you describe, so well, what you had endured and where you are now, I am starting to hope... thank you.
There is always hope baby steps and it really does help xxx
I was told by my geneticist not to lift weights because we can harm ourselves so easily. I was just diagnosed last month and planning on making a video next week for my channel. Thank you so much for sharing your story. Keep pushing forward! 🦓✨
So when I talk about lifting weights we are talking small hand weights and it took years to build up my strength to get to this stage. Yes you have to be very careful x
@@ask.charlie Thank you so much for the clarification as I am learning as I go! Keep being awesome :D
I am in my twenties, just got diagnosed and you have me so much hope! Thank you xx
@@annikaa.3854 so pleased, I have made huge changes to manage it! Core strength is so very important xxx
Wonderful video Charlie and incredibly timely for me. I have been with you since you started and I have taken a lot of your advice along the way as I have had a spinal fusion and discectomy in my neck following a car accident in my mid 30s. I have just turned 40 and now have chronic arthritis in the facet joints throughout my c spine and I am crippled with pain. I feel I spend my life amongst specialists and pain meds. I am in the middle of finding a trainer to help me start strength training and I have overhauled my diet which has in itself already had a positive impact. I refuse to let this define me and stop me being strong for both myself l, my husband and my 2 children. You sharing this video reminded me that I'm not alone as I feel pain and injury at times can be a very lonely road and that the path I am on the right one. Thank you Charlie for building such a gorgeous and supportive community for women like us ❤
Oh Prue I am sorry, it’s so challenging I do totally understand. Do get in touch with Leigh she does one to one and is so knowledgeable and kind. She has changed so many people’s lives. Xxx
I have EDS too! One thing that has been amazing for my back pain has been Forme Science posture sets (the sports bra and the shorts).
As a fellow EDS sufferer, this is wonderful, Charlie! Some very familiar stories in there. Thank you for talking about your journey and inspiring me to do more to make myself stronger! xx
Charlie thank you so much for talking about your incredible story ! It is so so helpful and gives everyone hope! You truly are an inspiration 🥰xx
Thank you Laura there has to always be hope! It takes time and patience, but most importantly consistency xxx
Thank you Charlie, that was a very insightful video. xx
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Very interesting Charlie. Sorry to hear about all your suffering. Now at 70, I have a prolapse and am awaiting surgery. The list of exercises that I must not do is long, and includes the plank. However walking is highly recommended along with those Kegels of course.
So sorry you are going through this, so painful. Good luck with your surgery xxx
My wife also has EDS. Luckily she not having pain, but does have the excessive joint mobility.
Thank you for sharing, Charlie!
Thank you for sharing ❤
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