OCT / NOV 2020 - A Month In The Life Of M.E. - by Alice Ella
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- Опубліковано 15 вер 2024
- This month we have Halloween, Karl and Hazel move out and I get two new housemates!! Laughs, tears, breakdowns and naps! What more could you want 😂 This one started so well... god damn you ME CFS!!! What goes up must come down huh 😂 Typing this in December and I can confirm that yet again I am back to square one... at least there have been some good times along the way and I keep leaning what tips me over the 'pem' edge!
Join me as I try to show what it's like to live with a chronic invisible illness... but to still try to get shit done and follow my dreams.....yea...
Please like, comment and subscribe!! It’s YOU that can help me raise awareness of this and other chronic / invisible illnesses, and what living with it is like!
www.aliceella.com
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AND / chronically. .
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#chronicillness #invisibleillness #mecfs #myalgicencephalomyelitis #me #vlogger #honest #funny #vlog #videodiary
Dude these videos are so fun!!
Ah man! Thank you for supporting x means lots x
Sending you so much love Alice, thank you for posting these.
Something that’s really helped me is keeping an activity diary for 3 weeks or so! So writing in everyday day how I’ve spent each hour - it is super tedious, but then you can see “oh shit I spent 3 hours on my phone lol no wonder I’ve had a flare” you know? And you can see certain patterns appear that maybe you didn’t see before... I’ve colour coded mine as Red for high energy, orange for medium, yellow for neutral, green for medium rest, blue for high rest! When I first got advised to do it I was like 🙄🙄 but it’s surprisingly helped me pace and stop doing things that are super draining for so long. 😌
Hey Hun! Thank you so much for this message! Yes I have recently started timing everything and I found this app called timers which has been really really helpful and you’re exactly right! I sometimes say that I’ve been doing admin or scrawling on my phone or watching TV for hours when I thought I had done nothing! I have set myself some reasonable time limits and I’m hoping that this will help me stay within boundaries a little bit more! Thank you so much for all your support lots and lots of love x xx
I was thinking what a lovely homely family vibe this month's video has - and then your brother moves in! Sounds like a good choice for a new flatmate. 👍🦄
Ha ha! Yes it’s amazing to be living with him again after so long and I feel like I am being supported even more! I am a very lucky girl! Thank you for your support Graham it means a lot x
Keep up the good work showing people what it is like to have ME and keep the faith that it is worth while putting in the effort to feel better. Wishing you strength and love.
Thank you so much for your support it means a lot! Yes we shall keep going! Xx
Amazing video as always! Sending so much love and spoons! I think it was your destiny to raise awareness of this illness and help others. You have done so much for the M.E community 💕
Thank you Hatty! This means more than you can imagine and really gives me a boost! Sending lots and lots of love x x
as always thank you thank you xxx
Aw! THANK YOU!!!!! 😂💜💜
Great video! Thank you for using your spoons for the benefit of the whole community, it does not go unnoticed. Wishing you a Merry Christmas!
That is honestly such a sweet thing to say! Thank you so much! Sending you lots of love x x
🤗🤗🤗 hopefully we all get better at listening to ourselves and you feel a lil better
Hahaha hope so 😂😂🙈 lots of love gaz x x
Sending lots of love x
Ah straight back at ya!! X x
Amazing as always xx
At thank you Tom x lovely to see your name pop up. :) x
Well done lovely xx positive thoughts and prayers for the coming two months XXX
Thank you Charlotte you are such a sweetheart x x x
Hi hun, TOTALLY get where you are coming from. I also have M.E and it is shit!!!!! Anyway, sending you lots of love and healing. Xx
Isn’t it just the shittiest thing ever! Ha ha! Sending you lots of love and spoons and I hope that we manage to get through this soon xxx
Well done lovely - you're amazing xx
Lots of loves Rosie! X x x x
Let me get a mc pick 2
Hahaha that’s me 😂😂😂