Thank you so much! I am a registered nurse in Georgia & palliative services are few & far between , especially outside of atlanta:( Even in 2024 I consider palliative care for many of my seriously ill patients, but the majority live well outside of the metro atlanta area, even though they are transferred here for acute crises. Thank goodness tele health is still being reimbursed by CMS!!🙏🏽
Thank you so much. I have been I'll for several years. I just wanted to say how much a physician who actually cares for, spends time with, listens to the one who's life you hold in your hands is the only hope for me and spo many others. P. Slaseman
I have yet even a palliative nurse describe to me what palliative care is. After watching just 15 minutes of this video, I have learned more about palliative care that I have receiving palliative care over a year. Now I know what to do to have a better quality of life. I don't even believe that nurses or nurse practitioners know what it all entails. Medical professionals and patients need to be taught what this is. This infuriates me that the medical professionals don't act like this, to care for people. The painting of "The Doctor" is not realized by many patients or doctors that I know. Patients need to learn what they need to do to communicate to their doctors properly. Patients do need to know, what to ask for and be taught what to ask for in their individual specific case.
The scary part and he did mention briefly, YOU BETTER BE SURE THE PATIENT is really terminally ill. Taking this service they NO LONGER TREAT THEM.(curative). As in no more doctors or emergency room service or medicine. Scarry if the doctors won't commit to a prognosis or there is confusion. And most of these services you can do yourself and most insurance companies will supply you with the same equipment and services you need, you would just coordinate it yourself instead of an agency. So if you have time to take care of the sick person you can do it and keep the curative coverage. Just wanted to offer an alternative to getting this type of care. May you find peace and love on this journey.
wonderful to hear. I'm in Texas and I was told no more curative care it was one or the other. But I know its different in places. Perhaps i used the wrong word also. But glad it exist together.
I think Hospice as an insurance benefit you are ONLY going to receive palliative care and not lifesaving care. However, he is saying we can get palliative care like another specialty alongside curative care.
Hi and thank you for letting me watch you. I am 56 and the past ten years have been kidney cancer (removed), blood disorder (polycythemia and anemia); several pneumonias once with congestive heart failure; more pneumonia; head and neck cancer and the left mandible removed and reconstructed with bone tissues and blood vessels from my left leg. Now I'm suffering again again waiting to tave GI scopes (the doctor's PA worried about pancreatic cancer) I've lost about 25-30 pounds because I just cannot eat and when I do I pay for it. Why is it so important to live as long as you can? I am exhausted and weak and can barely get around. I'm afraid of saying this to my doctor and I was in the hospital a couple weeks ago and felt like the doctor and nurse were just yelling at me to do what they just don't seem to understand.
I will pray for you for you have been through SOO SO much. The bible teaches us that we wont have a bigger burden CROSS put upon us than we can bare, that we must always have faith that God Will. help us and carry us throhgh, You must be a very strong person to be going through so much,Though I'm SURE WITH all you have gone and still going through it may seem difficult at times but through it all please keep your faith and keep talking to the lord and he will see and carry you through this. May God bless YOU. 🙏
Well we had a pallative care nurse tell us that pallative care was for people that don't want to go to the hospital anymore (CHF & COPD) and that they would just come around & give morphine shots (still wondering how long we'd have to wait for that) If we decided to go to ER would have to "drop out" first or be responsible for ER costs. We denied the pallative care, rescinded the DNR & now husband has new stent after a minor surgery & feeling much better.
Given the fact that homeless drug addicts are dropping in SF all of the time it is kind of sad to see how well they care for those who have the money to be cared for with palliative care.
As this video moves forward his personality and compassion come through more and more. I really like this guy's views and I can see why he is doing what he is doing!
I am full code want to be resuscitated, no palliative care or Hospice care, I have stage 4 cervical cancer, has spread to my lungs one tumor in my right lung, has spread to my lymph nodes, don't believe in euthanasia, My Oncologist Dr, Dr Cruz was so happy to tell me my cancer is on stand still and the tumors are shrinking I am doing better, I go for the rest of my life for my harmone cancer treatment injections 💉 in my 2 buttocks for the rest of my life, My Oncologist Dr, Dr Cruz told me not to drop out, if I do I wil not live long I will die, don't want that.
My 93 year old Mom has hf and ckf. She is being cared for at home. I am wondering now if I can do this right for her ie caring for her dying peacefully. I had to put on a patch on her and I told her it was for pain relief but didnt say its morphene. Ive told her shes had a uti and thats why shes felt ill but I think itsmore. But then I feel bad I think its more and I feel guilty. Its so busy doing the caring I dont always show compassion ie I have to talk loud at her for her to hear and say instructions or else shes confused. She saw visions with the uti and shes mainly sleeping now. One of her feet has turned a grey colour. She eats little but can drink now a bit. She was ill and I had to clear up the mess a lot .......... and not show I minded. I had to throw the nightee she was wearing away. No one is saying what we are thinking! When my Dad had cancer we sort of knew where we stood
I kind of understand what this doctor is saying but as a Stage IV cancer patient, I still see palliative care as a situation where you are not going to get possible life extending drugs anymore...you are being eased into preparing for death whatever way you cut it. I'd like to be wrong but I have seen evidence of this in every cancer patient I've known. A very sobering thought but unfortunately , reality. I wish it wasn't
Dear Laura- I'm sorry you have experienced palliative care that way. The evidence is clear that you can and should receive palliative care alongside any and all cancer treatments and that people with cancer who receive palliative care live at least as long as those who do not, and perhaps even longer. In fact, there has never been a study that showed that people who received palliative care lived less long and all of them show that palliative care helps you feel better. Not sure where you get your care, but I hope that you can get high quality palliative care there, too. And I wish you well.
Wonderful video presentation...do you happen to have a Palliative Care team in or around the Fresno Area? My wife's pain management doctor is quitting his practice and we are in desperate need of Palliative Care as Fresni in general is in desperate need of Palliative Care Physicians! Thank you
My friend have 20 years of experience as Palliative Nurse. Salary $57 per month. Now she seeking a better job as a Home Nurse🙁. Not for her career but for her children
I didn't know anything about this until today. My best friend is a pediatrician so only a small percent of patients would qualify. However, I wonder if some aspects would help families with children with severe developmental or lifelong illnesses like type 1 diabetes
My father was put in hospice. A week later, one evening, the nurse brought him a pink pill and told him it will make him feel better. My father took the pill. He died of heart failure. Right in front of my eyes.
Thank you so much! I am a registered nurse in Georgia & palliative services are few & far between , especially outside of atlanta:(
Even in 2024
I consider palliative care for many of my seriously ill patients, but the majority live well outside of the metro atlanta area, even though they are transferred here for acute crises.
Thank goodness tele health is still being reimbursed by CMS!!🙏🏽
Thank you so much. I have been I'll for several years. I just wanted to say how much a physician who actually cares for, spends time with, listens to the one who's life you hold in your hands is the only hope for me and spo many others. P. Slaseman
Thanks for insights .❤
I have yet even a palliative nurse describe to me what palliative care is. After watching just 15 minutes of this video, I have learned more about palliative care that I have receiving palliative care over a year. Now I know what to do to have a better quality of life. I don't even believe that nurses or nurse practitioners know what it all entails. Medical professionals and patients need to be taught what this is. This infuriates me that the medical professionals don't act like this, to care for people. The painting of "The Doctor" is not realized by many patients or doctors that I know. Patients need to learn what they need to do to communicate to their doctors properly. Patients do need to know, what to ask for and be taught what to ask for in their individual specific case.
Larry Hartshorn can we know schools that offer courses or training in palliative care?
I read an Internet article that stated the average palliative care patient lives about a month after going into palliative care.
Excellently stated reply!
The scary part and he did mention briefly, YOU BETTER BE SURE THE PATIENT is really terminally ill. Taking this service they NO LONGER TREAT THEM.(curative). As in no more doctors or emergency room service or medicine. Scarry if the doctors won't commit to a prognosis or there is confusion. And most of these services you can do yourself and most insurance companies will supply you with the same equipment and services you need, you would just coordinate it yourself instead of an agency. So if you have time to take care of the sick person you can do it and keep the curative coverage. Just wanted to offer an alternative to getting this type of care. May you find peace and love on this journey.
Actually, you can and should receive palliative care alongside curative care, and most people do. It can help you live better and maybe even longer
wonderful to hear. I'm in Texas and I was told no more curative care it was one or the other. But I know its different in places. Perhaps i used the wrong word also. But glad it exist together.
I think Hospice as an insurance benefit you are ONLY going to receive palliative care and not lifesaving care. However, he is saying we can get palliative care like another specialty alongside curative care.
Hi and thank you for letting me watch you. I am 56 and the past ten years have been kidney cancer (removed), blood disorder (polycythemia and anemia); several pneumonias once with congestive heart failure; more pneumonia; head and neck cancer and the left mandible removed and reconstructed with bone tissues and blood vessels from my left leg. Now I'm suffering again again waiting to tave GI scopes (the doctor's PA worried about pancreatic cancer) I've lost about 25-30 pounds because I just cannot eat and when I do I pay for it.
Why is it so important to live as long as you can? I am exhausted and weak and can barely get around. I'm afraid of saying this to my doctor and I was in the hospital a couple weeks ago and felt like the doctor and nurse were just yelling at me to do what they just don't seem to understand.
I will pray for you for you have been through SOO SO much. The bible teaches us that we wont have a bigger burden CROSS put upon us than we can bare, that we must always have faith that God Will. help us and carry us throhgh, You must be a very strong person to be going through so much,Though I'm SURE WITH all you have gone and still going through it may seem difficult at times but through it all please keep your faith and keep talking to the lord and he will see and carry you through this.
May God bless YOU. 🙏
Dr. Steve is a comfort....I love my Nurse Practitioner Alex Button Tulsa Oklahoma. These men are priceless.
I’m a nurse, thank you for this.
Well we had a pallative care nurse tell us that pallative care was for people that don't want to go to the hospital anymore (CHF & COPD) and that they would just come around & give morphine shots (still wondering how long we'd have to wait for that) If we decided to go to ER would have to "drop out" first or be responsible for ER costs. We denied the pallative care, rescinded the DNR & now husband has new stent after a minor surgery & feeling much better.
Given the fact that homeless drug addicts are dropping in SF all of the time it is kind of sad to see how well they care for those who have the money to be cared for with palliative care.
Very informative, thanks so much.
As this video moves forward his personality and compassion come through more and more. I really like this guy's views and I can see why he is doing what he is doing!
I am full code want to be resuscitated, no palliative care or Hospice care, I have stage 4 cervical cancer, has spread to my lungs one tumor in my right lung, has spread to my lymph nodes, don't believe in euthanasia, My Oncologist Dr, Dr Cruz was so happy to tell me my cancer is on stand still and the tumors are shrinking I am doing better, I go for the rest of my life for my harmone cancer treatment injections 💉 in my 2 buttocks for the rest of my life, My Oncologist Dr, Dr Cruz told me not to drop out, if I do I wil not live long I will die, don't want that.
GOD BLESS YOU , YOUR CARING , YOUR SHARING ❤
Hospice is NOT available inn Chester Ca. I took care of my Grandma at home. she passed away three months shy of 101.
.looking for someone to sponsor my palliative care specializing Program
My 93 year old Mom has hf and ckf. She is being cared for at home. I am wondering now if I can do this right for her ie caring for her dying peacefully. I had to put on a patch on her and I told her it was for pain relief but didnt say its morphene. Ive told her shes had a uti and thats why shes felt ill but I think itsmore. But then I feel bad I think its more and I feel guilty. Its so busy doing the caring I dont always show compassion ie I have to talk loud at her for her to hear and say instructions or else shes confused. She saw visions with the uti and shes mainly sleeping now. One of her feet has turned a grey colour. She eats little but can drink now a bit. She was ill and I had to clear up the mess a lot .......... and not show I minded. I had to throw the nightee she was wearing away. No one is saying what we are thinking! When my Dad had cancer we sort of knew where we stood
wonderful presentation.
I love what Woody Allen said, 'I don't mind the idea of death. I just don't want to be there when it happens. '
Great video!! Thank you for sharing very beneficial for everyone involved .God Bless xox
I kind of understand what this doctor is saying but as a Stage IV cancer patient, I still see palliative care as a situation where you are not going to get possible life extending drugs anymore...you are being eased into preparing for death whatever way you cut it. I'd like to be wrong but I have seen evidence of this in every cancer patient I've known. A very sobering thought but unfortunately , reality. I wish it wasn't
Dear Laura- I'm sorry you have experienced palliative care that way. The evidence is clear that you can and should receive palliative care alongside any and all cancer treatments and that people with cancer who receive palliative care live at least as long as those who do not, and perhaps even longer. In fact, there has never been a study that showed that people who received palliative care lived less long and all of them show that palliative care helps you feel better. Not sure where you get your care, but I hope that you can get high quality palliative care there, too. And I wish you well.
Wonderful video presentation...do you happen to have a Palliative Care team in or around the Fresno Area? My wife's pain management doctor is quitting his practice and we are in desperate need of Palliative Care as Fresni in general is in desperate need of Palliative Care Physicians! Thank you
My friend have 20 years of experience as Palliative Nurse.
Salary $57 per month.
Now she seeking a better job as a Home Nurse🙁. Not for her career but for her children
Amazing
Very informative! Thank you for sharing! :)
Do you work with Palative care at Mercy Hosp, cape Girardeau, Mo😊
I didn't know anything about this until today. My best friend is a pediatrician so only a small percent of patients would qualify. However, I wonder if some aspects would help families with children with severe developmental or lifelong illnesses like type 1 diabetes
Very helpful
Steve you are so inspirational and comical!
It's such an honour to be part of end of life care ❤
Love this video 🤗
100% Let’s wait ))
Could someone who is referred to hospice go in to palative care.
So what is palliative care?
What if the patient is not aware
I desire to get married before I die. 46 still single no kids no siblings
Coming home to an empty house? No fun.
Palliative care in its wholistic approach to me is wat I will call nursing itself
My father was put in hospice. A week later, one evening, the nurse brought him a pink pill and told him it will make him feel better. My father took the pill. He died of heart failure. Right in front of my eyes.
They literally put him to sleep
In other words murder
0:15