INTERVIEW: What is Stiff Person Syndrome?
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- Опубліковано 27 лип 2024
- Dr. Duarte Machado from the Chase Family Movement Disorders Center with Hartford HealthCare talks about Stiff Person Syndrome, a rare neurological disorder.
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I was diagnosed in 2018, as well, with, a myriad of other back problems including my vertebrae sitting on my lumbar. My life has been in bed for years. This video doesn't even depict what I go through. Unfortunately, my neurologist moved away, and I can't find anyone that understands or that will help me. It's so hard for me to even get dressed, or walk...
Good questions from the interviewer that enable the physician to answer any questions I had after seeing this news. Other sources report she is effected and leave it at that, this is very comprehensive coverage. Thank you
Bad answer though. Not really helpful, only used one word to describe symptoms, which is less specific than Celine. I got more information from Celine's message regarding symptoms and treatment.
I’ve been living with this syndrome for many years. I’m 43 now and was diagnosed at around 30 years old after years of misdiagnosis and just told that I had to stop my landscaping job. Now I’m unable to work at all. I feel for Celine. Is there anyone here from the uk? I feel very alone. Take care all of you fellow sufferers, and the people who are caring for you 💙
My girlfriend was diagnosed with this 2 years ago. She constantly has seizures daily. She has done most of the treatments you have recommended, and they have not really helped except the diazapan. She is going to try a new treatment that involves chemotherapy. If I could get your opinion on this new treatment, I would appreciate it. It sounds risky, but she is willing to try anything because she doesn't want to live like this. Any advice would be greatly appreciated.
has she tried IVIG ? I would not recamend chemo ,I don't understand how any doctor would recamend that ,its poison and will not help ...my husband has stiff person syndrome only thing that seamed to help him was ivig and muscle relaxers..but we are on medicare and they wont cover ivig as its expensive..:(
My mom has it. Diagnosed over 20 years ago.
My mom is diabetic...has thyroid issues, vitiligo...etc..20 years ago. She was diagnosed. Stiffness...falling...etc. 20 years ago, so, not from the shot. We will want to see this doctor, we are with Lahey. Mom takes 6 DIAZEPAM a day. The IVIG DOES NOT WORK over the long term.
Doctor advertising his own service
My calves spasm non stop.
So we have no idea where the condition comes from?
We all know they just refuse to say so
It’s actually listed on Pfizer’s documents.. page 8 of the adverse reactions
@@lady4191 so what is it?
The doctor never answered the questions on symptoms
SPP is related to the vaccine, same as Ramsey Hunt Syndrome, which is what Justin Bieber has.
My mother got diagnosed with this 20 years ago. It's autoimmune. Possible that Celine had the gene and something triggered it but no my mother didn't take a vaccine that caused her to get sps
Mrna gene therapy has consequences
Amen. Same as Justin Bieber. When will ppl wake up???
Such a stupid name for this serious disease....I mean like sick person disease or migraines being called hurt heading hurting disease..or knee trouble being called knees wobble disease Jeez
Why the doctor is smiling??
I believe because the disorder doesn't necessarily kill a person and is treatable, it's not like talking about a cancer or something
@@peto1986 he still shouldn't be smiling
He is a fan of Celine Dion, therefore, he's happy that he can help educate people of her diagnosis.
@@peto1986 Meh, malfunctioning subsystems of the body generally increase epigenetic mutation & degrades, which increase "cancer" cell line production cofactors.
Could be inherited, but most likely due to pollution.
@ syed salman shah: he smiles to reflect as friendly. It invites the other party to open up to improve quality of communication.
I think she needs another opinion.....this just doesnt add up from all I have read.....jmo
Covid vaccines and boosters
I'm afraid we'll see a whole lot more of this now for that very reason.
I’m sure COVID could worsen this, but it’s been around pre- COVID!
The majority of the people are so brainwashed with these vaccines that they will continue getting them thinking they are going to be safe and in reality people are getting more sick now than ever. New viruses are developing and weird illnesses are happening.
CHEDXXINES SIDE FX....
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