The Girl With No Bowel: Hermansky-Pudlak Syndrome | S09 E05 | Medical Documentary | All Documentary

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  • Опубліковано 29 жов 2024

КОМЕНТАРІ • 817

  • @MiniMeags
    @MiniMeags 5 років тому +418

    For those of you who wanted to know, I just Facebook searched Karen and she’s still with us another 11 years later! By the looks of things too she’s still not on oxygen! :)

    • @MiniMeags
      @MiniMeags 5 років тому +37

      And Holly got married! :)

    • @lisaabroad1192
      @lisaabroad1192 4 роки тому +19

      As of October 2019, she is on oxygen and is waiting for a lung transplant

    • @ismahan391
      @ismahan391 4 роки тому

      Lisa Abroad h how do you know this?

    • @lisaabroad1192
      @lisaabroad1192 4 роки тому +3

      @@ismahan391 From a UA-cam video she posted with an update.

    • @i.r.3016
      @i.r.3016 4 роки тому

      @@lisaabroad1192 oh! Do you remember the name of the video?

  • @littlereddevilrocs
    @littlereddevilrocs 5 років тому +1105

    I’ve noticed in these episodes that no one ever calls an ambulance. Why is that? In the U.K. our ambulance crews can get on site tremendously quickly and can give treatment which is quicker than driving yourself!

    • @2255gi
      @2255gi 5 років тому +86

      Ambulances arent that fast everywhere.

    • @WindowsXPFrog
      @WindowsXPFrog 5 років тому +203

      American health care is shit

    • @xPaulinhaKawaii
      @xPaulinhaKawaii 5 років тому +204

      The cheapest ambulance in the states is around 1000 dollars for a ride

    • @lightsinthesky4989
      @lightsinthesky4989 5 років тому +107

      It costs loads in the US. Also, in the UK, hospitals tend to be closer because we are a smaller place. Its often quicker just to drive in the US

    • @warrior8170
      @warrior8170 5 років тому +88

      @@xPaulinhaKawaii Oh what!? Our ambulances are free!!! (in Australia)

  • @kristelveske1637
    @kristelveske1637 4 роки тому +194

    The only Karen we like and support
    Hope she’s doing well

  • @cindyvillanueva5191
    @cindyvillanueva5191 5 років тому +317

    Her parents are amazing... She also has a very devoted husband and very beautiful daughter... She is indeed a blessed woman

    • @seratonin7004
      @seratonin7004 5 років тому +7

      She sure is! My partner left me when I got sick. It does make things a lot harder without the emotional support.

    • @morganismism
      @morganismism 5 років тому +2

      Saskia Grace aw :( stay strong I hope you feel better

    • @seratonin7004
      @seratonin7004 5 років тому +1

      @@morganismism thank you! 🌸🌸

    • @morganismism
      @morganismism 5 років тому +2

      Saskia Grace I hope you found/find a a new man or woman (if your into that) to take care of you :).

    • @seratonin7004
      @seratonin7004 5 років тому +3

      @@morganismism thank you 🌸 no I'm still alone. I think perhaps it's too hard for people to enter a relationship with really sick people and all that comes with it. It's a huge weight physically, emotionally and financially. Plus I don't really meet people as I'm home all the time. I do get very lonely and miss sharing the ups and downs with someone but also feel I can't ask that of anyone when I have so little to give. I've come to accept it over time but it still makes me a little sad.

  • @mvivid9755
    @mvivid9755 5 років тому +508

    those dramatic eyes clossing effect got me crazy... euuuug

    • @sandokan1956
      @sandokan1956 5 років тому +5

      Maybe because Albino people have trouble with the light that comes to their eyes….I don't think she does it on purpase, just a reaction to the light :)

    • @zizi6538
      @zizi6538 5 років тому +9

      @@sandokan1956 no it's not just her it's the editing they did the same thing with other people in a different video 😃

    • @maddiebristow
      @maddiebristow 5 років тому +3

      Omg yes it triggers me so much for some reason

    • @arianasike3443
      @arianasike3443 5 років тому +2

      M Vivid they do that in every single freakin video lol

    • @zahraabadran2663
      @zahraabadran2663 5 років тому

      @@sandokan1956 actually... it's not... the series makes the people dramatically blink... like a scene

  • @scorchflora
    @scorchflora 5 років тому +1394

    and I thought period cramps are bad

    • @littlemissyno1
      @littlemissyno1 5 років тому +13

      Queen Purple I feel like I need 4 units of blood after that and all

    • @viiperbiite
      @viiperbiite 5 років тому +46

      They can be for so many girls.
      I get abnormally painful cramps and I've nearly passed out because of them.

    • @hallwnby
      @hallwnby 5 років тому +2

      They are loo

    • @jamie3476
      @jamie3476 5 років тому +10

      I sometimes pass out my cramps are so painful but I'm used to it now

    • @kaylim4433
      @kaylim4433 5 років тому +2

      cut down ice and spicy food . the period pain will cure.

  • @alishamurray1065
    @alishamurray1065 5 років тому +501

    Watching this made my body feel weird

  • @LunaMaheswari
    @LunaMaheswari 5 років тому +1012

    after watching this show for a while, you get used to the dramatic blinking lol

    • @thatkid9970
      @thatkid9970 5 років тому +8

      No

    • @deadsi
      @deadsi 5 років тому +4

      Someone call Central Casting, we need more dramatic blinkers

    • @LunaMaheswari
      @LunaMaheswari 5 років тому +10

      @@deadsi *blink*
      was that dramatic enough?

    • @deadsi
      @deadsi 5 років тому +6

      @@LunaMaheswari YOU GOT THE JOB!

    • @prosperity3313
      @prosperity3313 5 років тому +1

      Shut up

  • @chix296
    @chix296 5 років тому +226

    Karen is so sweet. She’s wonderful.

    • @sportypawsltd9515
      @sportypawsltd9515 5 років тому +4

      My heart melted watching Karen go through so much it's so amazing she survived! She's so brave! I love her face when she's nine 😊

    • @mariemaier5630
      @mariemaier5630 2 роки тому

      I agree. I just thought she had the most kindest eyes. Die all the suffering she went through she has a special gift, she probably not even is aware of.

    • @vidusividusi
      @vidusividusi Рік тому

      @@sportypawsltd9515 😊

  • @tinydancer2544
    @tinydancer2544 5 років тому +42

    What a remarkable woman, Karen is. Even though she's had bad health most of her life, she is genuinely happy and has a loving caring family. Her dad is a diamond.

  • @Hannah-hx5sp
    @Hannah-hx5sp 5 років тому +177

    Karen is such a lovely soul

  • @AmberCatFan
    @AmberCatFan 5 років тому +825

    these people have DEBS
    Dramatic
    Eye
    Blinking
    Syndrome

  • @machimochiisintown
    @machimochiisintown 5 років тому +842

    Whats up with all the eye closing and opening lol

    • @sandokan1956
      @sandokan1956 5 років тому +24

      Maybe because Albino people have trouble with the light that comes to their eyes….I don't think she does it on purpase, just a reaction to the light :)

    • @charlottejeronimus5809
      @charlottejeronimus5809 5 років тому +2

      IKR

    • @name-bq6gw
      @name-bq6gw 5 років тому +3

      @@sandokan1956 you literally copy and pasted that text and just answer it to every one of this kinda comments😂

    • @machimochiisintown
      @machimochiisintown 5 років тому +22

      @@sandokan1956 I was not talking about that dude 😂😂😂 did you even watch the video? The amount of shots focusing on the eyes closing or opening, on every single person in the video, is nothing short of annoying and distracting

    • @sarahwass6249
      @sarahwass6249 5 років тому +10

      @@machimochiisintown every video they do the eye pausing in nearly every scene 👀😑😂

  • @tinydancer2544
    @tinydancer2544 5 років тому +57

    It's scary to think of the amount of things that can go wrong in the human body.

  • @jalieyg113
    @jalieyg113 5 років тому +120

    *She is sooo pretty inside and out!*

  • @Sera_diary
    @Sera_diary 5 років тому +101

    Please stop talking about the "dramatic blinking" and enjoy the video!!!🤦

  • @punkyduck28
    @punkyduck28 3 роки тому +25

    I feel for Karen. I also had my colon removed due to ulcerative colitis. I also have lung issues which aren’t related. It must be awful then discovering you have another disease after thinking you have Crones.HPS sounds serious and I hope she’s still going strong. She sound like an incrediblle person with a heart of gold.💛 and a loving family.

  • @langlenchanu2623
    @langlenchanu2623 5 років тому +287

    Please stop that eye closing drama that hurt my eyes

    • @sandokan1956
      @sandokan1956 5 років тому +1

      Maybe because Albino people have trouble with the light that comes to their eyes….I don't think she does it on purpase, just a reaction to the light :)

    • @machimochiisintown
      @machimochiisintown 5 років тому +6

      @@sandokan1956 a prev comment said that you are copy and pasting this on every comment that mentions the eye opening and closing thing and wow, they weren't lying

    • @lineakristensen1821
      @lineakristensen1821 5 років тому +2

      @@machimochiisintown pretty sad haha. Bored much?

    • @uselesscheese2883
      @uselesscheese2883 4 роки тому +2

      Saying that won't help now, this was filmed like 10 years ago!

    • @bxsxra.lxves.bxredom7362
      @bxsxra.lxves.bxredom7362 4 роки тому +1

      Ling 09 ikr

  • @lovemagicandroad
    @lovemagicandroad 8 місяців тому +2

    The Albino lady with HSP, what a beautiful soul and his wonderful husband who stands by her. My hat is off to you! Lovely people. Very touching and uplifting.

  • @ellerobyn
    @ellerobyn 3 роки тому +53

    Okay but Karen’s dad... I wanna hug him, like he seems like a great hugger

    • @jsophiamm
      @jsophiamm 3 роки тому +6

      I agree! They all seem such nice people. Just people that you know will never judge you.

  • @eilissmith8591
    @eilissmith8591 5 років тому +21

    Sweet couple. Bless them both such a wonderful example of a loving supportive relationship. May the Lord bless and comfort them, may the Lord lift His face to shine upon them and grant them peace.

  • @HelloSmileMore
    @HelloSmileMore 5 років тому +18

    I really find Karen very kind and I am very happy that she can still enjoy her life with her daughter and husband and she still staying strong.
    Also happy that Sam has got her diagnosis and still be able to live her life like she want to. Stay strong Sam.
    Thanks for sharing this video 😉

  • @jojozepofthejungle2655
    @jojozepofthejungle2655 4 роки тому +13

    What a beautiful woman inside and out, you triumphed, bless you Karen.

  • @lipglossandletdown7857
    @lipglossandletdown7857 5 років тому +77

    Poor Karen :( I hope she’s doing well

    • @lunalaver7342
      @lunalaver7342 5 років тому +13

      She is beating the odds and still alive to this day.

  • @sproutsrevil6508
    @sproutsrevil6508 5 років тому +56

    Such a lovely human. Good luck with everything Karen. You are quite wonderful. Xxxx

    • @bigboredthing
      @bigboredthing 3 роки тому +3

      She is doing great now, she got her new lungs March 2020, and is now out of hospital and doing well.

    • @sproutsrevil6508
      @sproutsrevil6508 3 роки тому +1

      @@bigboredthing Wonderful to hear. ❤️❤️❤️❤️

  • @pazobackenstein6473
    @pazobackenstein6473 5 років тому +41

    I read these comments about the blinking, and as a person who have watched many of these documents, I can promise you - one learns how to ignore it. I haven't even noticed the dramatic blinking.

    • @MiniMeags
      @MiniMeags 5 років тому

      I just read the comments when it happens 😂

    • @doaaadel3756
      @doaaadel3756 3 роки тому +1

      Yeah me too I didn't notice it until I came to the comments just ignore it and try to get as much information you can from the video

    • @planetshakersunite8915
      @planetshakersunite8915 3 роки тому +1

      I don't even want to know what they're on about and I don't want to know as its irrelevant and distracting as so many ppl so intelligent to comment on the perriferal of the video making than to comment sensibly about the story itself.
      If I could blink these ppl out I would.

  • @ohsillymelly
    @ohsillymelly 5 років тому +17

    I suffer from Crohn's and I'm so thankful these days there are more options for medicine.

  • @KMCDM
    @KMCDM 5 років тому +163

    Eyeclosing in 1..2...3...galore...

    • @aprilapril2
      @aprilapril2 5 років тому +3

      Kenneth what is this...why! I’ve just seen this recently.. plus the whooshing and thudding noises..

    • @KMCDM
      @KMCDM 5 років тому +2

      APRIL APRIL overdramatized! The editor really want it in his cut scenes or he gets fired... in all theire movies its embedded.

    • @mrz9605
      @mrz9605 3 роки тому

      3

  • @ReyOfLight
    @ReyOfLight 3 роки тому +7

    Karen is just such an amazing woman! Both she and her family are just such lovely people and I wish I knew them in real life! There’s just something about them, they’re so loving and genuine, the kind of people I could just sit and chat with for hours over some tea and home baked treats... I truly hope Karen is doing well today and that she and her family are staying safe through these crazy times!

  • @Felly1992
    @Felly1992 4 роки тому +20

    Why some people wait weeks to go to a doctor. An Ibuprofen doesn‘t make it better if you have the problem for weeks.... 🤦🏻‍♀️
    But on the other hand Karen should be an inspiration for everybody!

  • @itsmelivvo
    @itsmelivvo 5 років тому +119

    People commenting about how the channel name is spelled wrong... umm it's supposed to be like that... it's... it's word play.. like when you reel in fish.. except reeling the news... and its also real news

    • @blackrose584
      @blackrose584 5 років тому

      Is that France in the profile picture?

    • @itsmelivvo
      @itsmelivvo 5 років тому +1

      @@blackrose584 yupp

    • @peterbeadman9010
      @peterbeadman9010 5 років тому +3

      It's about the tapes they used to used to record I think. They were reels.

  • @darianchristie3260
    @darianchristie3260 Рік тому +6

    "I was very relieved to have a label".... This really resonates with me as my daughter (now 3) was born with a rare chromosome deletion including IGF1-R. She wasn't growing well "failure to thrive" and was below the 0.01th centile at 8 months old. She had so many tests in her first months of life. We finally got the diagnosis at 9 months and suddenly we knew what was wrong and what we could do to manage her condition. She is the only one diagnosed with this in my country so targeted healthcare is a little difficult to access. Luckily she had very few other symptoms of the deletion and is now doing well, in fact she is too big (just over 3rd centile) to get growth hormone funded.

  • @AdhiyogaSystem
    @AdhiyogaSystem 4 роки тому +8

    Pam's story is so inspiring! Thanks for sharing.

  • @toforgetisagem8145
    @toforgetisagem8145 5 років тому +17

    There is a myth that in the UK healthcare and ambulances are free. It is not so. In the UK employers and employees pay national insurance. The amount paid is in line with the amount earned. The more earned the more paid by both employer and employee. . That money is then shared out between everyone in need. No one is descriminated against on grounds of income. If you have millions or nothing in the bank you are treated the same way if you go to an NHS hospital with no favours.

  • @amyrivers9792
    @amyrivers9792 5 років тому +93

    I'm 40 now and I have had Crohns since I was 12. My sister had it as well since she was 7. I'm terminally ill because of complications. One complication is having clots but also life threatening bleeds. I can relate to this story. I only have 1 metre of bowel left.

    • @peterbeadman9010
      @peterbeadman9010 5 років тому +10

      I hope you're as well as you can be right now and are comfortable. Sending a virtual hug if that's OK? (. HUUUUUUUUUUG!!)

    • @apocalypsis605
      @apocalypsis605 5 років тому +3

      Omg I feel so bad for u. I hope you are ok and will get better soon 😘😘😁😁😁😁

    • @amyrivers9792
      @amyrivers9792 5 років тому +13

      @@apocalypsis605 thank you for your kind words. There are no further treatments for me and I've made the decision to put not to be resuscitated on my medical notes. I'm okay with it as I'm a Christian and I know a better life is waiting for me. I don't really have any quality of life and I'm deteriorating every day. I choose to be happy and positive, I like to focus on what I can do rather than what I can't. I don't see dying as a negative thing. I hope all is well with you. Xx

    • @amyrivers9792
      @amyrivers9792 5 років тому +5

      @@peterbeadman9010 thank you so much for that hug. I'm sending you one back. I don't get many hugs and I really feel so happy when I'm hugged. Your message meant a lot to me because you showed a lot of understanding that I'm not going to be getting better so you showed caring by saying that you hope I am as good as I can be right now. I really appreciate that. I hope that all is well with you and your family. Its a real talent to show empathy, real understanding and then being able to communicate that to a stranger so thank you for sharing that with me. You are a special person. Xx

    • @apocalypsis605
      @apocalypsis605 5 років тому +3

      Amy Rivers I hope they come up with a cure of some kind but I don’t really like my life too much because I always feel sick because I’m always worrying about stupid things but I’m sure it doesn’t compare to something like that 😁😁😘😘

  • @rosiilygaikwad1386
    @rosiilygaikwad1386 4 роки тому +7

    These documentaries make me very grateful for my organs🙏

  • @marksmithwas12
    @marksmithwas12 5 років тому +23

    Watching this while on the toilet made me uncomfortable

  • @randomlyboring8358
    @randomlyboring8358 5 років тому +26

    I loved now the dramatic blinking lol i even blink with them.

  • @mariacherylmondelo2218
    @mariacherylmondelo2218 2 роки тому +1

    Such a blessed woman for having such wonderful and supportive husband all throughout, and a wonderful daughter blessed their family.

  • @elishaelisha7911
    @elishaelisha7911 5 років тому +3

    wow! SHE IS BRAVE . She has always been ....I mean she was a brave girl eventhough her childhood was not good.I really hopes she lives her life to the fullest.

  • @roxydus3746
    @roxydus3746 2 роки тому +1

    What a brave girl, what a brave woman. When she is fighting the tears, I did too. What a great human being. I wish her the best! 🌸

  • @UsernamesForDummies
    @UsernamesForDummies 4 роки тому +7

    Karen’s husband, what a great guy! I have an ileostomy. I am so glad I had already been with my life partner for 4 years before it happened. He had already fallen in love. I don’t know how I would have had the courage to date. I’ve had a colostomy at the age of 15, which had been reversed a year later, and I vividly remember the insecurities and self-loathing as a teenager with a baggie during that period.

  • @MrsSim
    @MrsSim 5 років тому +132

    I ended up reading every single comment

  • @elaine9292
    @elaine9292 3 роки тому +3

    She is an angel among us , she gives love in exchange of all her pain

  • @kyliemaee3485
    @kyliemaee3485 4 роки тому +33

    I feel weird now my stomach hurts and my heart is heating up 😳

    • @jojozepofthejungle2655
      @jojozepofthejungle2655 4 роки тому +2

      Maybe you are an empath like myself.

    • @xumie_1752
      @xumie_1752 3 роки тому

      at least u don't black out or nearly black out everyday like me. i have low blood pressure well that's what the doctors said i have 🥴. runs in my family though cause my mum has low blood pressure but less worse than me.

    • @kyliemaee3485
      @kyliemaee3485 3 роки тому +1

      @@xumie_1752 actually i do i have iron definitely and i get super dizzy

  • @petpot1962
    @petpot1962 2 роки тому

    That first lady was so courageous in the face of her terrible condition and makes my odd aches and pain I endure seem so trivial.

  • @someone.F.e
    @someone.F.e 4 роки тому +16

    "it was awesome not to be sick"

  • @angeliccloud6097
    @angeliccloud6097 5 років тому +42

    The 1st story was so sad but I’m so happy she’s alive x dose anyone know anymore update on the folks?

    • @lunalaver7342
      @lunalaver7342 5 років тому +9

      Her father died in 2016 aged 90 and is lived on in his children, 8 grandchildren, 3 great grandchildren and 2 great-great step grandchildren. Karen is still alive to this day, thanking god for the blessing of beating the odds. I could not source any information on her mother though.

  • @emmimiax8337
    @emmimiax8337 5 років тому +33

    Why am I watching this while I have a stomach ache?

  • @jerneanecook6680
    @jerneanecook6680 5 років тому +40

    Karen has such a lovely golden blonde hair colour :)

    • @maddie9233
      @maddie9233 3 роки тому

      She probably dyes it but I agree it looks nice

  • @lucytheweirdo4256
    @lucytheweirdo4256 5 років тому +28

    I have had my first period today and was so scared it looked terrifying and now I'm having cramps😞. I don't know why I wanted to watch this video it's making me feel sick and my cramps feel more painful🤦

    • @beyondhelp666
      @beyondhelp666 5 років тому +5

      You'll be fine, the first period usually is the worst hun x

    • @lucytheweirdo4256
      @lucytheweirdo4256 5 років тому +3

      @@beyondhelp666 thank you Xx❤️

    • @sophieread2028
      @sophieread2028 5 років тому +4

      Hands up for late bloomers, I’m 16 and no period!!! I’m fine with it

    • @boringkantada5138
      @boringkantada5138 5 років тому

      @@sophieread2028 I wish I was too but it visited as earlly as 11. And mom was not around.... 😧
      Anyways about the cramps lay down and put your feets up and hot compress your lower belly. And avoid salty and acidic food before and during your period. That might help....

    • @from_thesoul129
      @from_thesoul129 4 роки тому +1

      @@sophieread2028 I'd suggest getting an abdominal screening just to double check

  • @bananabong8928
    @bananabong8928 4 роки тому +23

    Karen is not your typical Karen. She's a beautiful person

    • @anitadhm_
      @anitadhm_ 4 роки тому +2

      ikr😍😍

    • @mrz9605
      @mrz9605 3 роки тому


      Celebrating Leaders and Innovators in the Social Sector - 2021 Classy Awards

    • @ALPHADARKFANG
      @ALPHADARKFANG Рік тому

      right

  • @strongdan1
    @strongdan1 5 років тому +16

    Bring more of this series

  • @reemallicious
    @reemallicious 4 роки тому +7

    The cousin who called her is a hero

  • @dr.msaqib6738
    @dr.msaqib6738 4 роки тому +1

    I like medical documentries of this type keep it up you guys are doing great job

  • @nonacee5065
    @nonacee5065 5 років тому +6

    Each doctor will only diagnose under their own speciality and going to so many different ones will not get the whole picture. Frustrating to say the least.

  • @madeleinedriver7167
    @madeleinedriver7167 5 років тому +72

    This for house fans
    Well.........................
    It’s not lupus
    😂😂

  • @marialauria7307
    @marialauria7307 Рік тому

    What a beautiful story about Karen and her family. You feel blessed about your own shortcomings

  • @thinkebab6973
    @thinkebab6973 5 років тому +113

    Why are her glasses upside down

    • @venisek09
      @venisek09 5 років тому +13

      It was a style back then 😉

    • @tariinengite199
      @tariinengite199 5 років тому +2

      @@venisek09 are u serious ?!!! 😂😂😂

    • @justmegz5560
      @justmegz5560 4 роки тому

      Tari Inengite yeah

  • @raya8613
    @raya8613 5 років тому +9

    This is why we have to appreciate our life. Some people are so *ungrateful.*

  • @anjalijayaweera8650
    @anjalijayaweera8650 5 років тому +8

    May god bless you and your family stay blessed and happy

  • @tsunmaru2244
    @tsunmaru2244 5 років тому +3

    Here we go again with the DRAMATIC EYE BLINKING!

  • @gaminggirl4240
    @gaminggirl4240 5 років тому +8

    9:32 she cried.. I cried

  • @jasminesteele4201
    @jasminesteele4201 4 роки тому +8

    I love how her name is Karen though

  • @OffTheHeezayBoiiii
    @OffTheHeezayBoiiii 5 років тому +48

    Karen's dad looks like Tommy Pickles grandpa

    • @MiniMeags
      @MiniMeags 5 років тому +1

      😂😂😂

    • @mikkayo
      @mikkayo 4 роки тому

      And her last name is tickle lol

  • @carolynnicholson3113
    @carolynnicholson3113 5 років тому +5

    I didn't know Crohn's disease was that bad you poor woman I feel so sorry for you and going when you were only eight years old you poor little girl . And then to have an operation and then things got good for you and then finding out more bad news but you are strong woman and I think you will make it. and I hope you do get to see your first grandchild so good luck.😁😥😥😁

    • @mollyxxx5067
      @mollyxxx5067 5 років тому

      Carolyn Nicholson that’s kind but she never has crohns she had HPS

  • @cafe80sarigachu
    @cafe80sarigachu 5 років тому +2

    That’s so scary sad...Jesus Please Heal This Lady.

  • @kaymiller2441
    @kaymiller2441 5 років тому +4

    Praying for you all...

  • @yoyoyoyo4970
    @yoyoyoyo4970 5 років тому +7

    The camera man "when I start the video do a dramatic blink but at the end"

  • @emmajaydewilcox7548
    @emmajaydewilcox7548 5 років тому +12

    When your legally blind, they blink alot. Wish ppl would stop being so mean. Be grateful your healthy...

    • @JB-le9cd
      @JB-le9cd 5 років тому +11

      I think the comments are not about the blind woman specifically but because this channel uses blinking on many of its videos for dramatic effect. The same comments appear on other videos where no one is legally blind.

    • @danielledewitt1
      @danielledewitt1 5 років тому +1

      Emma Jayde Wilcox Do we? I’m registered blind despite having a small amount of vision in my left eye.

    • @danielledewitt1
      @danielledewitt1 5 років тому +2

      MollyXxx I do have some vision you know. Being registered blind doesn’t mean somebody is completely blind/can’t read.

  • @AdelbertderAllmann
    @AdelbertderAllmann 2 роки тому +2

    "...that I might have Lupus" me screaming at my screen: ITS NEVER LUPUS!

  • @briomem
    @briomem 4 роки тому +6

    Bless the woman who is albino, I know it sounds bad, but back when she was young it didn’t matter that her genetic problem diagnosis wasn’t identified earlier because it looks like she had the correct treatment anyway , & as they say there is no cure .💔

  • @Sivitzie
    @Sivitzie 5 років тому +16

    this made me feel weak

  • @ajpadeo5938
    @ajpadeo5938 2 роки тому +2

    My uncle suffered from disease where he also uses bag for his poo... He hates Travelling because pooing is unpredictable. It can happen anytime and he worries the people arround him would smell it.. He lived with it for 25 years.... he died may 27,2022.... My fathers birthday ( his brother)
    What is more painful than Losing a sibling. Not only that u lose them. But u lose them. On your birthday..... Celebtating his Birthday from now on would be challenging...

  • @carlar779
    @carlar779 5 років тому +11

    I have had Crohns since I was five, I'm thirteen now. I don't have much of my bowel left (around a metre). Also, battling stage four cancer. I'm okayy don't worry. Anyway, all luck will be very very appreciated :) #Cancerfighter xoxo Y'all are perfect. :D

    • @ShaunaAllen-qn6lt
      @ShaunaAllen-qn6lt 4 роки тому +1

      I am very sorry for your condition. All I can say is I hope you stay strong as you can. Surround yourself with things and people who make you feel happy.
      I wish you all the best.

  • @togahimiko7576
    @togahimiko7576 5 років тому +31

    Karens so cute💕💕💕

  • @spurts
    @spurts 4 роки тому +1

    What a lovely dad and what a lovely husband :-)

  • @kaylaxgames6297
    @kaylaxgames6297 5 років тому +18

    **Girl on cast sneezes** camera man: AH! Do that again! **fake sneezes** ANDDDDDD ACTION!

  • @tinabeauty4393
    @tinabeauty4393 4 роки тому +5

    My sister and brother had their large colon removed and they both have stoma bags

  • @seandonohue6793
    @seandonohue6793 5 років тому +2

    It’s crazy how people in American cannot go and see their doctor the moment these terrible symptoms arise without fear of cost or lost work time. In the UK, anyone sensible would have saw their doctor the same day that pain became unbearable.

  • @frozenprincess7376
    @frozenprincess7376 5 років тому +3

    after watching this I am feeling stomach pain

  • @l.hendriks93
    @l.hendriks93 4 роки тому +28

    Albinism yet still deep brown eyes, how unique!

    • @totukimou
      @totukimou 2 роки тому +4

      She has dark blue eyes!

  • @emmabeck5167
    @emmabeck5167 4 роки тому +3

    Karen is so sweet ❤️

  • @dreia2405
    @dreia2405 4 роки тому +1

    Karen is so brave, she is a great person

  • @francescaroat2076
    @francescaroat2076 6 місяців тому

    Karen is really a great and a very brave woman!😊

  • @Areyousayingidontknowmyname
    @Areyousayingidontknowmyname 2 роки тому

    Karen and her family. Life goals :) . She could get hit by a truck and still come out a winner with hitting the jackpot of people around her. Her personality certainly helps. I am always hearing and seeing people and their not so great lives. So many bad partnerships. Also should shout the second couple 👍

  • @alexwillis7093
    @alexwillis7093 4 роки тому +5

    "Just holding her hand would cause her pain"
    I think all my girlfriend's had lupus 🤔

  • @kylahplayzgachalife3792
    @kylahplayzgachalife3792 5 років тому +3

    Poor woman I’m so scared when I see the girl laying on the floor in the bathroom with blood😰😰😰

  • @Simplyy-m7z
    @Simplyy-m7z 5 років тому

    ...I hope shes OK :(...She still Was brave...Which i find is an very rare thing to have when you have a medical condition and she is now a role model of bravery to me.

  • @izabellemcgregor4989
    @izabellemcgregor4989 5 років тому +3

    I've had it before and I couldn't do anything about it.
    It happend in the middle of the class.
    I screamed because it hurt so much!
    😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭

    • @kakashiee
      @kakashiee 5 років тому

      Izabelle Mcgregor ohh noo that would be so embaressing 😦
      Are you okey now?

    • @osakihamtaro
      @osakihamtaro 4 роки тому

      Which condition are you talking about?

  • @strongdan1
    @strongdan1 5 років тому +4

    Thanks

  • @akk3344
    @akk3344 3 роки тому +1

    Yes I know the pain of rare genetic disorders as I suffered from one

  • @mattgreenwell72
    @mattgreenwell72 5 років тому +16

    What the f**k is with the pathetic sound effects in the background to raise the tension? I couldn't get half way through.

  • @kb2885
    @kb2885 4 роки тому +2

    My brother also had an oleo stint at a young age- such a hard thing to deal with.

    • @kb2885
      @kb2885 4 роки тому

      That autocorrected! Should say ileostomy.

  • @foxyfox7880
    @foxyfox7880 5 років тому +5

    Poor Karen:( im glade that she is ok

  • @boringkantada5138
    @boringkantada5138 5 років тому +15

    Ahh guys, enjoy the blinking its healthy for your eyes. 😂
    I wish that I help....😌😮😑😐😄😀😁😂

  • @TheDramacist
    @TheDramacist 3 роки тому +1

    The music gets me everytime. BABOOM DUM DA DUM DA BOOOOOOOOM

  • @Pianoprac
    @Pianoprac 4 роки тому +2

    Tommy is adorable!!

  • @joysyori7551
    @joysyori7551 5 років тому +5

    Should I watch this eyes close?

  • @dontcallmeup9543
    @dontcallmeup9543 5 років тому +54

    Like: to Karen stop having that syndrome and be alive for ever
    Comment: to pray for Karen

    • @gabyhall734
      @gabyhall734 5 років тому +1

      ....

    • @tinaphalange9621
      @tinaphalange9621 4 роки тому +4

      like a comment or a like is going to change anything. shut up

    • @daleensmith8949
      @daleensmith8949 4 роки тому +1

      @@tinaphalange9621 that's rude

    • @jay-xx5ei
      @jay-xx5ei 4 роки тому

      tina phalange That’s really rude mate.

    • @Max-ul4ir
      @Max-ul4ir 3 роки тому

      Like it will change anything