Jasper, my son is YOU after covid. I am so thankful and grateful for this video today. I feel like it was sent directly to me by a higher power. And I’m so sorry for your journey but glad for your returned health.
Thank you for the lovely comment, I'm glad the message has reached you :) I am grateful for this journey for the path it has led me down so far. Cheers, Jaspar
wow Jaspar, thank you so much... your video has profoundly impacted my current state of mind - and given me some much needed hope... I will be 4 years long covid, ME/CFS this spring... it has left me debilitated, unable to work... prior to this I was an active 61yo who had recently ran a 32 mile trail-run, hiked mountains and played hockey... some recent research showing mitochondrial dysfunction as well as vascular/tissue damage, has left me a tad depressed lately - especially after a week of having a stomach bug that kept me from getting getting out of the house for a week... your message is very wise and something I suspected but needed to hear...I especially like your take on being creative... and thank you for the Lipton and Huberman resources, I look forward to learning more from them, and yourself... cheers mate and thank you...
I’m glad you found Jaspar’s video helpful. His tip about creativity is great isn’t it. I have found making things helps give me a sense of achievement and improves my feelings of self worth.
Thank you for commenting mate, that sounds like a tough 4 years but I'm certain you will return to health, it sounds as though you are on the search and I'm sure you will get there :) please reach out if you need a chat and all the best with your recovery! I'll be rooting for you. Cheers, Jaspar
How long do your relapses typically last? I was recovering after 3 years with CFS when, oddly, I began recovering for the next two years. During that time, I was working full-time, traveling to many different places alone by plane, and going on hikes and walks. Suddenly, I was hit with appendicitis and COVID at the same time, causing me huge amounts of stress and 40 days of illness straight. I’ve relapsed from mild to severe; been bedbound and housebound for around ~3 1/2 months as of today, 4 1/2 months after my infection, which is scary for me, as just 5 months ago, I took a week's vacation to California. Now, I have terrible fatigue, PEM, and crash after any exertion, among cognitive symptoms. It all started with panic attacks and abdominal pain to begin. I had to quit work, and I can no longer hang out without paying for it. What’s your best advice, and do relapses get better? I’m starting to lose hope, as it’s been almost 4 months now, house/bedbound. Also what’s your opinion on hypersensitive nervous system.
I can’t speak for Jasper but in my experience relapses can get better but it does depend what caused them. For example, after months of pushing myself too hard because of work I relapsed from working full time to having to move back to live with my parents. It took months before I was well enough to start even being able to socialise again Several years later I went from moderate to severe when a functional medicine doctor got me to do a detox protocol. This has been much harder to recover from. I feel it has pushed me into a completely different phase of my illness with different symptoms. I think some people find Covid pushes their ME/CFS into a different phases and it’s kind of like relearning how to manage your illness with a new baseline and new symptoms
@@livingwithmecfs Thank you for the reply. Yeah, I guess what sucks is that I was told it could take 6 months to 2 years to return to my/your previous state. So, from your experience with other people, did some eventually return to a moderate/mild state from severe after worsening from an event or infection? And is it best to learn how to cope and control with my new baseline (severe)? I’ve been afraid to get out of bed and go places as Im worried it may lower my baseline. If you have any other tips I’d be grateful! Now that it’s been almost 6 months, I feel depressed and doomed I’ll never get to travel again or go for a walk in the park. This illness fluctuates so much of my 6 years having it. I’m still trying to hold onto hope like Jasper said.
@@nickh7724 Some people definitely do improve after a relapse so don’t loose hope. This is a detailed story of a lady who relapsed to bedbound but is now well enough to travel again livingwithmecfs.co.uk/2024/05/30/severe-cfs-recovery-story/ If you are in the US you could check out RTHM clinic. One of the Co-founders had ME/CFS and is now in remission. rthm.com
@@koutoubyavision4738 In terms of cognitive function I have improved but sadly physical function isn’t great…. I still need a wheelchair to move around my flat and am bedbound 80-90% of the time. I am hoping it’s not a life sentence! I would like to think things can improve
Jasper, my son is YOU after covid. I am so thankful and grateful for this video today. I feel like it was sent directly to me by a higher power. And I’m so sorry for your journey but glad for your returned health.
I’m glad you found the video helpful 😊
Thank you for the lovely comment, I'm glad the message has reached you :) I am grateful for this journey for the path it has led me down so far. Cheers, Jaspar
wow Jaspar, thank you so much... your video has profoundly impacted my current state of mind - and given me some much needed hope... I will be 4 years long covid, ME/CFS this spring... it has left me debilitated, unable to work... prior to this I was an active 61yo who had recently ran a 32 mile trail-run, hiked mountains and played hockey... some recent research showing mitochondrial dysfunction as well as vascular/tissue damage, has left me a tad depressed lately - especially after a week of having a stomach bug that kept me from getting getting out of the house for a week... your message is very wise and something I suspected but needed to hear...I especially like your take on being creative... and thank you for the Lipton and Huberman resources, I look forward to learning more from them, and yourself... cheers mate and thank you...
I’m glad you found Jaspar’s video helpful. His tip about creativity is great isn’t it. I have found making things helps give me a sense of achievement and improves my feelings of self worth.
Thank you for commenting mate, that sounds like a tough 4 years but I'm certain you will return to health, it sounds as though you are on the search and I'm sure you will get there :) please reach out if you need a chat and all the best with your recovery! I'll be rooting for you. Cheers, Jaspar
How long do your relapses typically last? I was recovering after 3 years with CFS when, oddly, I began recovering for the next two years. During that time, I was working full-time, traveling to many different places alone by plane, and going on hikes and walks.
Suddenly, I was hit with appendicitis and COVID at the same time, causing me huge amounts of stress and 40 days of illness straight. I’ve relapsed from mild to severe; been bedbound and housebound for around ~3 1/2 months as of today, 4 1/2 months after my infection, which is scary for me, as just 5 months ago, I took a week's vacation to California.
Now, I have terrible fatigue, PEM, and crash after any exertion, among cognitive symptoms. It all started with panic attacks and abdominal pain to begin. I had to quit work, and I can no longer hang out without paying for it.
What’s your best advice, and do relapses get better? I’m starting to lose hope, as it’s been almost 4 months now, house/bedbound.
Also what’s your opinion on hypersensitive nervous system.
I can’t speak for Jasper but in my experience relapses can get better but it does depend what caused them.
For example, after months of pushing myself too hard because of work I relapsed from working full time to having to move back to live with my parents. It took months before I was well enough to start even being able to socialise again
Several years later I went from moderate to severe when a functional medicine doctor got me to do a detox protocol. This has been much harder to recover from. I feel it has pushed me into a completely different phase of my illness with different symptoms.
I think some people find Covid pushes their ME/CFS into a different phases and it’s kind of like relearning how to manage your illness with a new baseline and new symptoms
@@livingwithmecfs Thank you for the reply. Yeah, I guess what sucks is that I was told it could take 6 months to 2 years to return to my/your previous state. So, from your experience with other people, did some eventually return to a moderate/mild state from severe after worsening from an event or infection? And is it best to learn how to cope and control with my new baseline (severe)? I’ve been afraid to get out of bed and go places as Im worried it may lower my baseline.
If you have any other tips I’d be grateful!
Now that it’s been almost 6 months, I feel depressed and doomed I’ll never get to travel again or go for a walk in the park. This illness fluctuates so much of my 6 years having it. I’m still trying to hold onto hope like Jasper said.
Did you get any better or was the detox protocol a life sentence? @@livingwithmecfs
@@nickh7724 Some people definitely do improve after a relapse so don’t loose hope. This is a detailed story of a lady who relapsed to bedbound but is now well enough to travel again livingwithmecfs.co.uk/2024/05/30/severe-cfs-recovery-story/
If you are in the US you could check out RTHM clinic. One of the Co-founders had ME/CFS and is now in remission. rthm.com
@@koutoubyavision4738 In terms of cognitive function I have improved but sadly physical function isn’t great…. I still need a wheelchair to move around my flat and am bedbound 80-90% of the time. I am hoping it’s not a life sentence! I would like to think things can improve
Do still jaspar taking medicines s