Ocrevus Infusion Day | living with Multiple Sclerosis

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  • Опубліковано 17 лис 2024

КОМЕНТАРІ • 17

  • @BreakfastCoffee
    @BreakfastCoffee 10 місяців тому

    fat and sassy woman is an icon.
    i don't know anything about ms, but i do appreciate hearing your experience. ❤

    • @jessiebarry279
      @jessiebarry279  10 місяців тому +1

      Yesss an absolute icon 😂👏🏻👏🏻
      Thank you so much 🥹🥰🩷

  • @wickedpepper1
    @wickedpepper1 10 місяців тому

    Love your vids, very informational. I get my first full one in May, last two halves I was extremely tired and had a fever. So hoping that will be less next time!

    • @jessiebarry279
      @jessiebarry279  10 місяців тому

      Thank you so much 🫶🏻
      Omg saaaame, except the fever. But never felt that level of exhaustion. Yes fingers crossed it’ll be easier for you next time round 🤞🏻 best of look with it 🩷

  • @helenphillips7709
    @helenphillips7709 9 місяців тому

    Praying for you from Florida. I have. Friend who has had MS fir several years.

    • @jessiebarry279
      @jessiebarry279  9 місяців тому +1

      Thank you so much! 🫶🏻 I hope your friend is managing okay 🩷

    • @helenphillips7709
      @helenphillips7709 9 місяців тому

      @@jessiebarry279 you are amazing and I rejoice that you are progressing and able to have a quality of life. My friend is not as fortunate. She had horses, worked in the outdoors & now not able to stand without walker & uses wheelchair.

  • @DopaMINe9
    @DopaMINe9 10 місяців тому

    I am due my next, first full infusion sometime in March or May (can;t remember lol) and my blood pressure was very low for both half infusions. I was wiped out and slept the entirety of the half doses.I have been watching you for a while now and you sharing your experience gives me little bit of hope. I was diagnosed at 13 years young and after a few treatments they gave me Lemtrada which kept me stable for 5/6/ years, however due to me catching latent TB they wouldn't give that to me again due to the possibility of reactivation of the TB. So, Ocrevus gang it is..haha
    I am glad to see that each infusion you get is getting easier for you to deal with. Stay strong.

    • @jessiebarry279
      @jessiebarry279  10 місяців тому +1

      I was the exact same with my first two half doses, soooo exhausted. Couldn’t stop sleeping. Can’t believe you were diagnosed at 13, that’s the youngest I’ve ever heard. Best of luck with your first full infusion. I’m so glad my videos give you hope 🥹🩷 thanks for sharing your story 🩷

    • @DopaMINe9
      @DopaMINe9 10 місяців тому

      @@jessiebarry279 You inspire me

    • @jessiebarry279
      @jessiebarry279  10 місяців тому

      @@DopaMINe9 aahh this comment 🥹🥹 so sweet! Thank you so much 😭🥹🥰 stay safe and look after yourself 🩷

  • @merlelybird2726
    @merlelybird2726 10 місяців тому

    So inspirational ❤ Thanks for sharing! 😊

  • @omoladeayinde2703
    @omoladeayinde2703 10 місяців тому

    Thank you ❤

  • @markyspyrotechnics351
    @markyspyrotechnics351 9 місяців тому

    Curious if you got your scan results? I was recently diagnosed with Ms and going to start Ocrevus soon. I had two scans 6 months apart with progression of lesions between the two.Hoping the Ocrevus stops the progression.

    • @jessiebarry279
      @jessiebarry279  9 місяців тому +1

      Hey, yeah I did. I just uploaded a video talking about these results.
      Totally understand. Ocrevus is a great treat for MS. For me, I feel like I have a great quality of life and I love that it’s only every 6 months. I have gotten lesions while on the drug but I haven’t gone into relapse or experienced any new symptoms. Although it’s not perfect, I’m still really happy on this treatment. Best of luck with it 🩷🩷