Thanks for this video. Especially the comments of people who have no idea about my illness, and dont ask eather, say stuff like:"take natural Vitamin C"/" stop eating dairy products, eggs and meat / their grandmother took homeopathic drops and she got 93/ and other blablabla. I think those people just give me this advise to comfort THEMSELVES in a sense of, if he or she was in my place, he or she would take Vitamin C/ .... and would be fine. This gives them a kind of security .
Thank you for sharing that with us! Also can I just say that you're looking ~especially beautiful in this video! I love the make-up/glasses/hair combo, it's v on point.
Thank you for being so brave and sharing. I suffer from an illness as well and just to hear that others think and feel the way I do is a gift. Thanks again :)
Thank you for being you, for using your voice and for being awesome. You're a really wonderful person as you, Annie, and I'm so sad that you are enduring this because I care about you and want so much for you to be well. Please always know that I'm here as your friend, I always want to know how you are and how I can help and I'm not just saying that because of what you said here, I mean it with all my heart. I feel for you and I care and if there is anything I can do to support you I'll do it in a heartbeat. Love you so much, my friend. Holding hope for you always.
I think it's awesome that you are so honest, and that you created the tag. It sucks being in pain and I so understand what you said about when people stop inviting you. It just sucks so much. *gentle hug if it's okay* I'm going to film this tag next week. I need to go to a couple of new doctors soon so it could help with trying to describe my pain since it has worsened allot since the last time I had to see a new doctor.
I just found your channel tonight. new subbie for sure! you spoke the same things I have said many times in the past. it feels good to know that there is actually someone who can relate! I like your style, you're very cute and thoughtful! keep up the wonderful work! gentle hugs to you from oklahoma 😊
the unsolicited advice thing is waaaaaayy too true. and for people who are still undiagnosed, having anyone with a mouth trying to diagnose you is apart of that too. like not even medical experts can do that right now, but a rando thinks that they know what youre going through enough to spout off their opinion
Holy crap! I had back pain and chronic pain at 11 and 12 and just pushed thru it and now I am literally fubarred. But people are like " but you are too young to have all this pain" makes me punch a wall mad.
Thanks for sharing! My Human (Niki) had a huge cry watching this video... everything you say is so spot on! xx thank you so much. My Human also experiences #ChronicPain and feels very alone. Xx It is strangely nice/comforting (?) to know there are other people in the world going through similar issues. But it still hurts huh. :( (PS : your hair is so rad!)
It's almost the year anniversary of this video! Listening to what you were expressing, so much of it "clicks" with me... I'm still able to walk around the house just fine most days, even though I have to sit a lot. Sometimes, when I'm feeling "good", I try to walk to my doctor's office or the nearest grocery store or the bus stop. I try to do what I'm still TECHNICALLY capable of but it's still fucking hard... I have EDS, too -- a vEDS mutation but mainly Hypermobile symptoms. I'm thinking of doing this tag during EDS Awareness Month in May. I've never filmed a video before! But I think it'll be a good start. :)
This has been really interesting, I'm going to have to think about my answers to this, especially what my pain feels like: it's much more of an internal bruise feel for me but the system of it always being there in minor is still similar to being grabbed by a hand.
I relate so much that it hurts my heart. I was in a wheelchair in July and it is so hard just to get through doors. I use a cane now but walking too much is excruciating. And people say they understand yet act like I'm lazy. My doctor also goes "lose weight" meanwhile I'm on meds that make it very hard. I am trying suppliments that get so expensive. And seeing so many doctors that go "uhh see another specialist" while I suffer. It's horrible to say, but if I had a cast I would be treated differently. They would see it, instead of " try harder " when I am doing what I can. This pain is excruciating and if someone lived it for a few hours maybe they would know how hard it is.
I truly love you! I don't know what it is but the way you look at life the explaining is so perfect. I truly admire all that you do. I hope that one day you WILL get answers. If there is anything I can do please don't hesitate to let me know. I am always an email away! Best Wishes Soraya
Hi! I've been following this channel for a couple months now I think, but I don't comment very often... I really liked this tag video! I don't have access to a computer to edit a tag video right now, but I was thinking of writing out my answers and getting other people to do the same. There's this Facebook support group for people with chronic illness (including mental illness) that I personally post in a lot, and I feel like they'd really like this tag! The Facebook group is chronicpain09 support if anyone is interested in checking it out, it's an open group. The community there is so nice :]
Have you ever Read the little mermaid? I mean the story is much darker than the movie but you might like it and even feel some connection to the story. Please tell me if you ever do
Hi, omg I'm right there with you, would you ever be able to talk? I don't have any friends that understand what I'm going through because they've never been through it and I don't have any hope for a cure in right now just trying to manage it and I pretty much stay in a flare 24/7 I am unable to bathe and do simple tasks if I can go to the bathroom and back that's a big deal
![How Hatred For Laziness Impacts Disabled People [CC]](http://i.ytimg.com/vi/BHeiITqKTA8/mqdefault.jpg)
![How Hatred For Laziness Impacts Disabled People [CC]](/img/tr.png)
I’m nobody you know but I care and I’m “checking in.” This hit me so close it hurts!! God bless you!
Sending you all the love! Thanks for making these videos make me feel less alone with chronic pain ❤️
Thanks for this video.
Especially the comments of people who have no idea about my illness, and dont ask eather, say stuff like:"take natural Vitamin C"/" stop eating dairy products, eggs and meat / their grandmother took homeopathic drops and she got 93/ and other blablabla. I think those people just give me this advise to comfort THEMSELVES in a sense of, if he or she was in my place, he or she would take Vitamin C/ .... and would be fine. This gives them a kind of security .
Thank you for sharing that with us! Also can I just say that you're looking ~especially beautiful in this video! I love the make-up/glasses/hair combo, it's v on point.
Thank you for being so brave and sharing. I suffer from an illness as well and just to hear that others think and feel the way I do is a gift. Thanks again :)
Man I totally cried watching this because I identify with it so much. living in fear of a flare. Thank you for sharing!
Thank you. I really get what you said about pain.
Very impressed. Shared and reposted on a number of sights. You are inspiring.
Thank you for being you, for using your voice and for being awesome. You're a really wonderful person as you, Annie, and I'm so sad that you are enduring this because I care about you and want so much for you to be well. Please always know that I'm here as your friend, I always want to know how you are and how I can help and I'm not just saying that because of what you said here, I mean it with all my heart. I feel for you and I care and if there is anything I can do to support you I'll do it in a heartbeat. Love you so much, my friend. Holding hope for you always.
I think it's awesome that you are so honest, and that you created the tag. It sucks being in pain and I so understand what you said about when people stop inviting you. It just sucks so much. *gentle hug if it's okay*
I'm going to film this tag next week. I need to go to a couple of new doctors soon so it could help with trying to describe my pain since it has worsened allot since the last time I had to see a new doctor.
I just found your channel tonight. new subbie for sure! you spoke the same things I have said many times in the past. it feels good to know that there is actually someone who can relate!
I like your style, you're very cute and thoughtful! keep up the wonderful work! gentle hugs to you from oklahoma 😊
the unsolicited advice thing is waaaaaayy too true. and for people who are still undiagnosed, having anyone with a mouth trying to diagnose you is apart of that too. like not even medical experts can do that right now, but a rando thinks that they know what youre going through enough to spout off their opinion
Holy crap! I had back pain and chronic pain at 11 and 12 and just pushed thru it and now I am literally fubarred. But people are like " but you are too young to have all this pain" makes me punch a wall mad.
Honestly I just wanna say you look absolutely amazing in this! You always do but today this is especially A Look ™
Thanks for sharing! My Human (Niki) had a huge cry watching this video... everything you say is so spot on! xx thank you so much. My Human also experiences #ChronicPain and feels very alone. Xx It is strangely nice/comforting (?) to know there are other people in the world going through similar issues. But it still hurts huh. :( (PS : your hair is so rad!)
It's almost the year anniversary of this video! Listening to what you were expressing, so much of it "clicks" with me... I'm still able to walk around the house just fine most days, even though I have to sit a lot. Sometimes, when I'm feeling "good", I try to walk to my doctor's office or the nearest grocery store or the bus stop. I try to do what I'm still TECHNICALLY capable of but it's still fucking hard... I have EDS, too -- a vEDS mutation but mainly Hypermobile symptoms. I'm thinking of doing this tag during EDS Awareness Month in May. I've never filmed a video before! But I think it'll be a good start. :)
I cannot wait to do this for VEDA! Thank you for creating this!
yay!!! I can't wait to see it!!
This has been really interesting, I'm going to have to think about my answers to this, especially what my pain feels like: it's much more of an internal bruise feel for me but the system of it always being there in minor is still similar to being grabbed by a hand.
My mom is struggling through something similar. Her docs diagnosed her with CRPS and she gets ketamine infusions for it
I'm gonna do this tag!
awesome! looking forward to checking it out!!
I relate so much that it hurts my heart. I was in a wheelchair in July and it is so hard just to get through doors. I use a cane now but walking too much is excruciating. And people say they understand yet act like I'm lazy. My doctor also goes "lose weight" meanwhile I'm on meds that make it very hard. I am trying suppliments that get so expensive. And seeing so many doctors that go "uhh see another specialist" while I suffer. It's horrible to say, but if I had a cast I would be treated differently. They would see it, instead of " try harder " when I am doing what I can. This pain is excruciating and if someone lived it for a few hours maybe they would know how hard it is.
Oh yeah forgot this when someone asks how your doing give the response are you asking to be nice or do you care?
I truly love you! I don't know what it is but the way you look at life the explaining is so perfect. I truly admire all that you do. I hope that one day you WILL get answers. If there is anything I can do please don't hesitate to let me know. I am always an email away!
Best Wishes
Soraya
Some of your description of your pain is so similar is so similar to mine 😢😢😢😢 hugs
These replies have been 6, 7 years ago! Are you ok? Are you still here?
Can I share this to my Facebook?
+Cyndy Bennett Sure! Here is the explanation: facebook.com/annesegarra/posts/1185364024809543
Hi! I've been following this channel for a couple months now I think, but I don't comment very often... I really liked this tag video! I don't have access to a computer to edit a tag video right now, but I was thinking of writing out my answers and getting other people to do the same. There's this Facebook support group for people with chronic illness (including mental illness) that I personally post in a lot, and I feel like they'd really like this tag!
The Facebook group is chronicpain09 support if anyone is interested in checking it out, it's an open group. The community there is so nice :]
Have you ever Read the little mermaid? I mean the story is much darker than the movie but you might like it and even feel some connection to the story.
Please tell me if you ever do
I have! It is really dark, very touching though! Was definitely upset by it when I was younger, haha!
Hi, omg I'm right there with you, would you ever be able to talk? I don't have any friends that understand what I'm going through because they've never been through it and I don't have any hope for a cure in right now just trying to manage it and I pretty much stay in a flare 24/7 I am unable to bathe and do simple tasks if I can go to the bathroom and back that's a big deal
Great Video. I've just subbed :) I did a different chronic illness tag over on my channel but I hope you don't mind me doing this one too xx
Chronic pain sucks butt, omg😰😰