I will say that I personally appreciate a dr stating that the lived experience is valued more than the studied experience. I've had at least 2 specialists (in the US) tell me that their 20 and 40 years experience trumps my almost 15 years of lived experience because they were drs and knew better than me 😑 so thank you for that. This was incredibly informative and insightful, and it is helpful to be able to pass to those around me that don't quite understand what all PIC means and how it has changed my life
Hi Jerron, if you'd like to talk further with someone about your recent diagnosis or you would like any advice or support, please do get in touch at help@macularsociety.org
Sorry to hear this. If you are UK-based we have lots of support available. Please do reach out on 0300 3030 111. Otherwise, we have lots of helpful information in previous webinars that can help.
Thank you guys for this video. I am currently have visual problems again. Long eye history but this has been relatively inactive since 2008. I got Covid back in November and started seeing visual changes about 2 months post Covid. The frustration of finding a doctor that understands this disease is strong lol. Question I have, are you seeing that PIC is activated post Covid?
I will say that I personally appreciate a dr stating that the lived experience is valued more than the studied experience. I've had at least 2 specialists (in the US) tell me that their 20 and 40 years experience trumps my almost 15 years of lived experience because they were drs and knew better than me 😑 so thank you for that. This was incredibly informative and insightful, and it is helpful to be able to pass to those around me that don't quite understand what all PIC means and how it has changed my life
Thank you, it gives me finally a few Information about my pic syndrom. It helps to not lose hope.
29 year old male just diagnosed with pic. Thank you for the information everyone.
Hi Jerron, if you'd like to talk further with someone about your recent diagnosis or you would like any advice or support, please do get in touch at help@macularsociety.org
Thankyou for this.ive recently been diagnosed...feeling quite overwhelmed with it all....lots of useful info and some hope in there too..
Sorry to hear this. If you are UK-based we have lots of support available. Please do reach out on 0300 3030 111. Otherwise, we have lots of helpful information in previous webinars that can help.
Thank you guys for this video. I am currently have visual problems again. Long eye history but this has been relatively inactive since 2008. I got Covid back in November and started seeing visual changes about 2 months post Covid. The frustration of finding a doctor that understands this disease is strong lol. Question I have, are you seeing that PIC is activated post Covid?
How often does the scotomata leave scars? How much of one's lost vision can be expected to return to normal?
Hi . I have macular edema is there any eye drops can reduce this macular edema infection ...in state of injections...
The audio is bad