Visual Symptoms and Treatments for Ataxia
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- Опубліковано 30 чер 2024
- This webinar from November 14th, 2023 discusses visual symptoms associated with Ataxia. This includes double vision and other symptoms associated with eye movement abnormalities, which occur in Cerebellar Ataxia of any cause, as well as some discussion of retinal and optic nerve disease, which may occur in some specific genetic causes of Ataxia.
For more information on Ataxia, please visit our website: www.ataxia.org
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About the Speaker:
Ali G Hamedani, MD, MHS is an Assistant Professor of Neurology, Ophthalmology, and Epidemiology and director of the Penn Ataxia Clinic at the University of Pennsylvania. He obtained his B.S. in Biology from Yale University and his M.D. from the University of Maryland School of Medicine. He also holds a master's degree in epidemiology from the Johns Hopkins Bloomberg School of Public Health and conducts epidemiologic research related to visual impairment in aging and neurodegenerative disease. After completing his neurology residency and fellowships in neuro-ophthalmology and movement disorders at the University of Pennsylvania, Dr. Hamedani joined the faculty in 2018. In addition to directing the ataxia clinic, he maintains a neuro-ophthalmology clinic that is focused on patients with visual symptoms due to neurodegenerative disease, including retinal and optic nerve disease associated with certain spinocerebellar ataxias.
About the Series:
NAF is producing a series of monthly educational webinars that focus on one type of Ataxia at a time. Each month we will feature a different type. Clinical experts will join us to take a look at the causes and symptoms of the disease, the typical diagnostic journey for those affected, and what to expect for clinical care. Research experts will teach us how the disease is studied and give an overview of the current state of research and drug development.
Hi. My husband has ataxia. Cerebellar Ataxia as a result to bacterial meningitis after a brain tumour resection in 2016. It has been degenerative and he is basically bed ridden as of October 2023.
Thanks for the information ❤
Very informative
Thank you for this information! My neurologist thinks I may have Ataxia, and I am now having some vision problems, but my eye doctor says with my glasses I have 20/20 vision. My Neurologist also said he has seen mild nystagmus in me during his exam. I have several different balance issues also. But I’ve seen 2 neurologists and they don’t agree regarding Ataxia.
Ask them about dalfampridine.
A very good coverage of Ataxia symptoms (cerebella in my case) but in common with all the ‘specialists ‘ that I have come across both you and they all the symptoms I know only too well but offer no cure (apart from exercises which have little affect on a shrunk and damaged cerebellum caused I surmise by meningitis in childhood😂
Is there any chnces of medicine come for ataxia in near by future?
I have sca27b and dalfampridine works for me.
@@larrytornetta9764 can medicine for sca2?
Omavexolone is also one
@@Mazeisaspace is it works for sca2 patient?
I’m going through these eye problems right now, and am being tested for Ataxia. Driving is becoming a problem. I have atrophy in my cerebellum. I’m 74 years old. I’m assuming my driver’s license will need to be turned in soon. 😢
I am 73, and I can no longer drive. I HATED the loss of freedom at first, but I hated the idea of hurting someone else more. Now that I have not been driving for over 12 years, I have to admit it. I like not having to drive. I actually get to observe the environment, and it is a wonderful way to see my friends without the added distraction of the road. I mean, what is more important? What do you value? When you put things in perspective, loosing your driver's license is only one of the major obstacles I have faced. You will be okay, As the saying goes, "Call an Uber."
@@CarolCalfee yes, you’re correct. Update: I have stopped driving. At first I was crushed, but now it has been a blessing in disguise. There are neighbors who volunteer to drive people around, and I have been making so many new friends! I have lots of appointments and drivers have volunteered to take me.
Also, I was just diagnosed with Alzheimer’s Dementia which is mild right now. I’m 74, live alone, and my Dr has referred me to a social worker who can help me with services.
Anyway, I wish us all well.
Which test diagnose wdh accuracy that u have ataxia or not in near by future?
Get genetic testing with your neurologist.
I agree with the previous comment with one qualification. Genetoc testomg os gettomg better as mew gemes are odemtofoed. but you neurologist should also determine strong physical symptoms that may be form of non-identified ataxia. This is a complicated topic, and working with a neurologist who is familiar with ataxia is critical!
I have Atexia disease but I'm very poor please help me