My Husband moved into a Nursing Home.
Вставка
- Опубліковано 22 гру 2024
- 🙏🏼 Our Go Fund Me: gofund.me/b0ad...
Thank you for your prayers and support!
Venmo Link: venmo.com/u/To...
🎬 Catch Up On Our Story:
• Story Time
💌 Send Us Mail
PO Box 71
Slidell, LA 70459
Thank you for being here today! We appreciate your love and support more than you know. ❤️❤️
❤
Prayers love and my heart just goes to your family and you wow you have been through so much I have been through some horrible health n insurance loops to and I hope things get better and maybe 🙏🏿 a miracle or the best he can be for his condition
❤ 🙏🏻
Thank you for sharing. Since I have fshd muscular dystrophy also it's been educational following yall.
I love his room and your sons hang out spot with dad. I know that boost Tony's will to keep going. With fshd and other autoimmune issues I have , hospital stays really feel lonely. So, you did an amazing job!!!!!
THis brings back memories. My husband was a bedridden "zebra" case for 5 years and bedridden. No less than 12 doctors of many specialties (multiple organ failures) in 2010 said to prepare for end of life. He wanted to keep fighting, despite being 98 lbs (down from 160) and extremely weak. I brought him home and did a multitude of alternative things (it was all we had left since they had given up on him) and slowly slowly slowly, I started noticing tiny signs he was getting better, one cell at a time. Doctors and some friends said I was cruel to keep him alive and should let go. He didn't want to go (I asked him every day) so I supported that. It took 4 years and life returned to him. He is now 120 lbs and very active, back to taking care of our farm and riding his tractor and making people in town smile again (he's very extroverted, lol). You just never know. Doctors never know for sure. Even hospice was not on our side... they wanted to drug him into a stupor which would've shut his heart down. We chased them all away and with the love and support of family and a few friends, and a LOT of doing things doctors rejected, he's still here.
I’m so happy for your husband and for you❤️
❤😊
@horsedesigns Good on you! Our bodies are stronger and more able to heal than most of us know. Only a rare few know about the power of natural healing methods, prayer, and complementary medicine. I have had similar experiences of witnessing and supporting "miraculous" healing in pets, wild animals, myself, family members, friends and neighbors.Most important is the ability to trust and follow your own intuition, instincts and inner knowledge! Your husband is a very lucky fellow to have you supporting!!
@jennifera4350 Are you one of the few that can heal every ailment
@@sarahann530 I didn’t heal anything. I just didn’t give up when the doctors did and lost a lot of sleep studying everything I could, most things that were over my head trying to figure out what his body may need. sometimes it works and sometimes it doesn’t but I just wanted to share so that people follow their instinct if they think there’s more that might be helpful than what they are being told.
Muscular dystrophy kills. My cousin had it. 70 years ago they said he wouldn’t live past 12. Then it was 18. Then it was 22. He had excellent personal care from his wife. He lived until he was 55! Fathered a child. Got to see her married. I hope you get a break. God bless.
Hopefully she gets genetic counselling if she wants a child.
@@nicolad8822 Good idea just in case because MD is inherited through the mother. But if H-E had it and fathered a daughter, the good thing is the daughter probably doesn't have the gene....if I understand it right. I had 2 brothers-in-laws with MD, both died in their 20's & 30's, neither married and neither had children...my MIL didn't know she had it to pass on.
Now that’s what I call a love of a wife for her husband.
My dad passed away at 86 several months ago. About a week after his passing I was having dinner with Mom. She had just gone through some grief counseling. She learned that the reason that dad was behaving the way he had during the last few weeks of his life was because his body was preparing to die. She told me that if she had known she would have done some things differently. Praying for you and your family.
I hope she knows that she did the absolute best with the information she had and that your dad was blessed to have her. Give her an extra hug from this stranger ❤
Informing your son's teacher was absolutely the right thing to do. Your older son's school should also be aware of the situation. Many schools can provide far more support than you may be aware of.
💯 they really will be prepared to be supportive if your children are having a bad day.
I was 26, and our daughter 3, when my husband was diagnosed with a fast-acting pancreatic cancer. WE had 3 weeks in which he was hospitalized before he died. Many years later, I became a hospice chaplain and witnessed how people can die relaxed and calm, surrounded by a team of caring, professional medical workers. AND I witnessed patients who appeared to get better and in fact were discharged for many months due to the unique care they received in hospice. I am glad you now have hospice to support you and your husband, as well as your child, and hope the transitioning issues will diminish as time goes forward. Your hospice team ---- be sure you get in touch with the chaplain and use that person as much as you can. You are very smart to use stuff from home to surround Tony with familiar items -- that helps, too. This may sound strange to say, but this time you have in the nursing home is so much more than we had, and I hope you do see it as such a gift. You may want to check how much hospice time your insurance will allow, and talk to the hospice people about doing some care while he's receiving therapy. Sending you blessings for maintaining your positive attitude, and for taking care of yourself when you can. Best wishes!
Thank you.
I was 66 and my hubby was 67 when he told me to take him to the ER Nov. 1st, 2020. He had x-rays which showed Metastasized Stage 4 Pancreatic cancer, He was given 3-6mos, but as a pastor, he was ready to go see Jesus and his mom. We arranged for hospice in the 3 days in the hospital we stayed there. The hospice nurse was wonderful getting his meds in order and all the medical stuff he may need. He was gone on Nov. 15th. It's been rough. We went through probate because we never finished the trust. We just got that resolved August 30th 2024, but we are trying to sell properties at the moment which will also be a nightmare. Luckily, for us, Medicare covered everything for the hospital and hospice. I put the cremation on our combo credit card under his name-I was the 2nd on the acct. I got the whole bill wiped since it was mainly his card.
@@nancyhinds3821 Pancreatic Cancer truly is a bastard. I lost my father to complications of it after battling Stage 4 for 2.75 years in late August, just shy of his 64th birthday. Condolences.
As a nurse, my most satisfying work was an in house Hospice, the care is truly holistic and very supportive of the family as well as the patient.
Jenny I have worked with caregivers for a number of years. First of all Tony is so lucky to have you as his advocate. You are a warrior. My thinking is that for caregivers it is important to plan for the worse.. Its already in the back of your mind, so making a plan actually helps alleviate some of that worry. I say to my caregivers.. think of all the what if scenerios - make a plan to deal with it- and let it go. On an other note. people think that hospice is giving up on our loved ones. However, that is not the case. Hospice gives the patient a coordination of care,- doctors, medications, social work, spiritual care etc. Always recognizing that a person may recover enough to move off of hospice- which happens. Hospice teams are incredible .. and they are a huge support for caregivers. Sending you hugs of support
❤❤
My step sister moved in and out of hospice twice and is well and thriving. Hospice was a godsend for us during her illness
When my husband was 3 weeks away from death, he wrote his kids a letter telling them what a wonder wife I had been. I kept the letter and framed it. That letter was truly a gift to me and has blessed me so much during my years of "widowhood".
Thinking of you from Texas.
What an awesome set up!!!! And that sounds like a really really unique, good nursing home...wow!!! I am so impressed ...and proud of the people contributing to all of his care...and you are an awesome wife and person!! Thank you for sharing part of your families story❤❤❤
I work in skilled nursing. It is not easy when you have to handle all of this on your own. Sounds like you have found a wonderful place! Some facilities are not as great! Give yourself some grace! Remember it is quality not quantity! I am glad that your family is there for you! Blessings to you and the entire family!
Teacher here- thank you for telling the teacher. It's really important she knows and can provide support. The school counselor also might be able to help. You're doing great and your kids are lucky to have your support!
My brother-law has muscular dystrophy with ongoing problems. My sister works FT.
They are in their 70’s now w/ grown kids. What you are doing for your husband and family is so, I do t know what
the right words is, but it’s wonderful! Praying for Tony and you now and your young son now.
You are a beautiful wife, mother, human. Thank you for sharing your story.
You are such a blessing.
Our family went mom, Dad, and 6 kids.
Our Mom had arthritis for several decades.
Mom lived in much pain in the closing
Days of her life. I have a diagnoses that
Hurts my memory. I will be praying for your
and your family. With love , Kay
Beautiful wife dumping him in nursing home
U just killed him
His body is sick he lacks help
The right foods and vits together with oils
My daughter had 5yr old and a 12 yr old boys when she passed from cancer. Nothing worked. I understand your concern for your little one and other children. And I have some understanding of all you’re going through. We never know how strong we are until we fall apart and have to find a different strength to carry on in an alternative way. My heart hugs you and all your kids.
I was with my baby sister as she was taking her last journey in life.
We made wonderful memories with the time she had left ,I did find myself greaving while I was looking after her and when the day came and she got her wings I did not cry I was so happy that she had a peaceful passing that she wanted her way
I can't believe that someone who has it so much harder than I do, actually raised my day and my spirits. Bless you.
I had to make the difficult decision to put my husband in a nursing home. We (doctors, nurses and myself and kids told him he was in rehab). February 2022 he had his right leg amputated above the knee due to complications from diabetes. He was exposed to Agent Orange in Vietnam. The symptoms didn’t start showing up until around 2008 with diabetes being the first. Then he started having heart problems and then dementia. Of all I think dementia was the worst. It caused him to not take his medications ie insulin and blood pressure medication like he should. I was his total caregiver for him for the last two years until it was just too much for me. He was 77 and I am 73. He was only in the nursing home (which the VA was paying for because he was 80% service connected in his disability). He developed a severe UTI before going to the nursing home. It was the. That I knew I couldn’t continue taking care of him. He didn’t want to be on machines and didn’t want to go to a nursing home. I felt so guilty placing him in the nursing home. He was there a week before the UTI got so bad. They also had determined he had had a minor stroke and more than likely prostate cancer and bladder cancer (which was also a symptom of his Agent Orange exposure. In the end the infection from the UTI went to his heart. He passed away in May. Knowing that he didn’t want to be on machines to keep him alive I agreed to just keeping him comfortable. I felt so guilty for making that decision even though I knew it was what he wanted. It’s been 5 months since he passed and I’m taking it one day at a time. We were married 51 1/2 years. What helped us through all of this was the VA. Yes I know I’ve heard the horror stories about the VA but for us they were amazing.
Sounds very much like what my dad went through. Just know that even the decision was hard, it was the most loving thing you could've done for your husband. Blessings to you!
God bless you, mam.❤
Honestly I do not believe it is ever easy for us to make these massive decisions for those we love. Sorry for your loss. I lost my mama in March. They had put her on a vent to help her breathing, so hot shot wanna be doctor kept demanding she be taken off. She had pneumonia and stage 4 COPD. They waited until I had to make an emergency run home to remove her from the vent. I walked in to seeing her struggle to breathe. She made the call then not to be on any more machines and kept comfortable. They kept asking me to talk to her. I stood the ground for her.
@@crisyoung4063😢😢😢❤
May God bless all of you and bring comfort. 💜🌷
This is my first time in your channel. I’m a registered nurse and I can tell that you’re an amazing wife and mom. May the Lord continue to strengthen and bless you ❤🙏🏾❤️
❤❤❤
Hi Jenny. There’s a great hospice nurse on UA-cam and her channel is called HOSPICE NURSE JULIE. She’s excellent for anyone with elderly or infirm family members. I care for my 90 yr old dad who has vascular dementia and I’ve gotten a lot of help from her channel. I wish your whole family the best. 🙏🏻👍
I love hospice nurse Julie! She’s a great resource 🩷
I followed Julie for 19 months while taking care of my Mother at home by myself under Hosparus care.
My husband also was diagnosed with vascular dementia ... I don't know what to expect ... Will he remember me in a year? I just don't know ... Anyhow, my prayers to you all ...
@@SibylleJohnson talk to his doctors. My dad is 90 years old and has all his marbles. His mobility is mostly affected and he’s on medication for that. He has mini strokes that he’s not affected by , and hes not in pain and is happy . That’s all I can wish for you and your husband.
I love Nurse Julie! She’s amazing!
Hi I lost my husband to cancer when our children were 10 & 13. It was only 6 weeks start to finish. 14 years on the pain is still there, but not as severe. Sending you prayers, love & light
Mercy is a gift from god. Bedsores, struggling to breath, etc etc is hard.suffering is not fair. Pray for mercy...the lord gives, and the lord takes away.we never die, only the body does. Prayers for you and your family on this journey, love will carry us all through.
You're the super hero!! What a wonderful wife and mother you are! Your husband is so fortunate to have you in his corner! May God Bless your kind heart!
my husband was sent home year and half ago with stage4 lung cancer and not being able to breath . we had 2 weeks left of his life . I brought him home and that night I called a ambulance and put him in hospise at our little hospital. It was the best answer I had because he was in so much pain. He died less than a week later, it was so sad but I had to let him go. And he was not in so much pain. Prayers for you
Big difference, huh?! My momma was sent to hospice care and she had cancer. Unfortunately she only made it through two days. Do people actually know the difference between hospice and therapy?!?! Big difference between them. Being offered a choice between therapy and hospice care is strange….
@@thesun-N-moon8885no, it’s what this country is coming to. If there is a reasonable assurance the person can get better and resume ADLs(activities of daily living) they will treat, if not, they cut you off. Dollars and cents.
Just found your channel, May the Lord bless you and your family!
I'm so sorry for your loss and I feel your pain i lost my dad to cancer and he passed away in May 31,2017
Hospice means you're breaking free from the traditional medical system and heading toward heaven. It's a great relief for patient and family.
Keep fighting for your husband.
You're a heroic woman. Seriously. This is the first time I've ever seen one of your videos, and I can see this to be truth. Women in this day and age are so self-indulgent, & wrapped up in what they believe they, "deserve", it's almost impossible to remember about all the incredibly good women out there, who understand what wedding vows still mean.
No man in this world, could ask for a better wife, if God told them they could "special order" one, just this once. This, I believe, is why you are finding avenues opening up for you, to help ease your burden, even if just a little. Because people like yourself? Are the reason the word, "DESERVE", exists.
God has his thought upon your family, even if only for brief moments, and I hope it allows you to continue working through this path your life has taken, to whatever ending God has in-store.
Your heart is true, and whether you know it or not, you're providing strength to others, even when you feel at your weakest.
God Speed to you and your family.
You are a very loving and thoughtful wife and mother. May God bless you with much fortitude and strength and bless your husband with improved health as deems best. Best wishes to the entire family. You and your family will continue to be in my prayers. Your words to your husband are very uplifting and encouraging. Blessings!
🙏🏼 lord please bless this family and give them strength to carry on 🕊️
Wow, I appreciated all that you shared. I'm new to your channel. I have a rare form of muscular dystrophy that mostly affects my ability to swallow, tongue weakness and dropping eyelids, but lately it's causing a lot of leg weakness and hip pain. I'll be praying for you Tony!!
I'm so sorry 😢
God decides and as long as Tony keeps fighting I say do not give up!It is not over till it is over.Stay strong and positive,whatever happens give it your all.God Bless your family 🎉
As a homecare nurse. I like to express what amazing women your are. I see you as advocate for your husband, a wonderful mother. One of the most important things is to take care of yourself. Gets as much support as you can, from daycare for your children, your church. One of the things l see is how burnout caregivers get. Wishing you and your family all the best in this difficult time. ❤
I'm tired of us being victimized by these insurance companies. Treatments and procedures should be covered and allowed until you've recovered, you don't want to or you're dead.
I hear you.
Some of the denial jerking around could come down to inadequate documentation. I had to get after resident doctors over and over again.
For example, I've had to send my 50+-year-old bedbound son who is functionally quadrapalegic now to the ER....I would not have wanted to be be a certain resident's shoes after I reported that he wrote in my son's assessment, "Steady gait.". It is stupid mistakes like that that hold's up insurance some times.
The American health system is a mystery to me 😶
How wonderful!!! You've done such an awesome job of making his "room" a "home"! What a blessing that a lot of the weight has been lifted off your shoulders. I am a retired hospice care provider. I learned so much from these angels. I took care of a woman for almost 2 years on hospice. Her R.N. said she would never take her off of hospice, because she would never improve. She was in her 80's, but, still it was a blessing. We had musicians come in from time to time to perform. Guitarist, harpist. It was amazing!!! God bless you and your family!!! Love all around. It's something we all can give/share!!!
As a former kinder teacher, thank you for sharing with your son's teacher. It is so important for you and the teacher to communicate for your son's well being and positive school experience. She will be a constant person in your son's life this school year, and that is great for him!! They will have a bond and he will know he can talk with her too should he feel he needs to!
This is the first time I watch you. .What a brave woman you are your husband is lucky to have you. I am so grateful full here in England we have free medical help..called the national health.service. Love from England ❤️
The care system in England is so progressive . My cousin was in hospice care, in a wonderful facility. My Mom was on hospice in 1990 at home. It was a terrible experience as they did not keep my mother comfortable. The nurses were very mean, and I felt I would never deal with them again. Life has its twists and my spouse had the navigator(early care) for dementia. Not 100% perfect experience, but parts of it were wonderful. It was difficult to navigate medicaid, Medicare, Passport help, hospice and family issues! I always say the only thing I would change is I would have left my job earlier!!! It was wonderful having him end his journey at home 🏡
Please know and feel all the sincere heart hugs coming to you and your family. And sincere prayers.
I wish you and your family all the blessings possible!
You are an amazing woman. Prayers for your family.
You go, girl!
I can tell that you have both mad skills and a lot of guts. I am VERY impressed!
I completely understand the decision for nursing home and hospice. My husband of 25 years was in the nursing home for 10 years with Huntington’s Chorea and passed from an infection. I married again and we were together for 8 years he passed during COVID on hospice after being there for a month due to liver failure and complications of congestive heart failure. I couldn’t be with him when he took his last breath due to the lockdown. I promised he wouldn’t be alone and I was unable to be there due to the lockdown. I begged to see him the day before but was denied. The next day he passed they allowed me to be with him for a couple of hours after he passed. It is heartbreaking to see them like this. I just hold on to they are in no pain and happy again. I know this is long but wanted to share this. I pray for your family. Make as many memories as you can that’s the best comfort you can have. Stay strong
That had to be the saddest part of that whole Covid mess. Our loved ones had to die alone!? 😢
I am sorry they were that cruel and heartless! I pray that he and you both will see each other again in Heaven with Jesus, as that is the only thing we can hang on to!
Monsters.
It’s so wrong that they kept you apart
You are not alone - my husband is a T-3 paraplegic, from a car accident 30 years ago. The first of this year he ended up hospitalized for 3 months after a pressure sore turned septic. He came home for 2 months, with home health - made another trip to the hospital for a week with two surgeries, then home again - but after two weeks the home health care discharged him "because he wasn't improving, and Medicare wouldn't cover home health any longer." They recommended hospice - which hurt, because we didn't feel his condition was terminal, so we declined and I've been doing the bedding changes, the bandage changes, etc. for the last couple of months. What makes it more difficult is that he lost so much muscle while he was hospitalized - he was very independent, and now he needs help to transfer to his chair, to get dressed, to do any of the things he used to be able to do . . . AND his hearing suddenly got bad, so that's another challenge. May God hear your prayers, and Jesus walk with you and your children through this journey!
I pray 🙏🙏 for y'all family, God Bless you Always
Hopefully when Kamala Harris becomes president, you will be able to benefit from new funding for home care services. God bless you.
Praying for you and your husband ❤
Please check more into hospice. One no longer need be considered terminal to receive hospice services. Many supplies and services are covered.
Hi Epona;
You might want to at least speak with Hospice. There are folks that have them and it doesn’t mean that death is imminent like before.
As you know the high risk of sepsis and his history is enough to qualify-and they can provide equipment, meds, and care assistants to help with the baths, bed changes, etc. Nurses to pack wounds. There is no requirement for improvement outcomes.
Sending love to your family.
I work in palliative care and hospice. It does seem like they were kind in talking to you. It’s often much more difficult with younger patients for not only you as the family but us as well. It’s not about us, but I just want you to know that if you’ve got a good team they do care ❤. They do want Tony to live and do well. We can always have hope. Some people do improve too with hospice because of the extra care. But if you had not prepared for the worst, and the worst happened, it’s much harder.
You are such a precious soul. I cried hearing you give encouraging words. I struggle with my mental health and your words helped me. Even with all you are going through, you are passing along comfort to others. I am in awe of you, sister in Christ! Thank you for sharing and being you. I hope to meet you in and Tony one day in Heaven
my husband Eddie had muscular dystrophy. and he ended up in nursing
home.. he passed away Feb 7 years ago.. he was the best partner and i miss him everyday
🙏💔🙏
I'm so sorry for you loss! I bet he's watching over you right now and free from any pain
Your video just popped up on my UA-cam. Jenny, you are such a strong person. It's clear to me that God's plan for you was to be Tony's wife and advocate and a great mom to Alex. You and your family will be in my prayers. So happy to know you are a believer🙏😊👍💐🙏
First time listener. Thank you so much for explaining this life story so well. You seem like an amazing person that is doing very well at keeping it 'all together' despite everything that is going on. May God bless you, encourage you and give you strength (to your whole family)!
Jenny, this is my first time to yours and Tony's channel and I just want to tell you that your message of hope and hanging on through turmoil is so needed right now in our world. You have a lot on your plate, but you understand that Tony does too. He is so blessed to have such a sweet wife who is there for him and to fight for him just to make everything comfortable for him and the rest of your family as well. Tony is so blessed also for such a great care team! May God bless you all and give you strength🙏 ❤Claire (Bobby's wife)
Prayers for you,Tony, Alex, Noelle and your extended family! GOD will give you what you need
Oh, that is very sad and I am sorry that your lovely hubby is unwell. Those hard conversations can be some of the most liberating, because the individuals needs and wants are being addressed in a constructive way, that ultimately helps them. Because no matter how much we are hurting or are in pain, because in the end, it is always about them. Be with him as much as you are able, love him, hold his hand. He needs you now, more than ever.
Jenny your a wonderful wife and advocate. I just saw your channel. My heart goes out to you and Tony and the family. Im going through alot of health challenges with myself and family.Its very sad.Prayers to Tony . I pray he is not in pain.The insurance challenges are terrible.Dont be afraid of crying . Its your right!!!!!
My heart goes out to your family. The constant stress takes a toll on all of you. It is not only your husband who needs care and love. One day at a time and realize your limits. Find a small beauty each day. A smile. A cloud. Favorite food. A blade of grass. A tree. Amid constant stress and worry, these small moments make a difference. Give thanks for one another. You are never alone and be blessed by even strangers who care.
My DIL had ALS and I know exactly what you are saying. The day she was diagnosed she was given 1 year. She had 6 children. She lived 4.5 years and they were hard years. Hugs to you. You are doing such a great job. Keeping the new normal for the kids is so important.
Father, we pray over Tony. Bless him with your healing miracle. Lord, give Tony peace & comfort. Lord, you have shown us healing miracles that seemed impossible. Father, by the prayers of many, move this mountain. In the name of Jesus Christ, Amen!
Amen
Amen in Jesus name❤
In Jesus name be healed Tony!
Amen! God is good! Praying for you from New Zealand
Amen❤
My mom had MS. Luckily she was never sick. I was her full-time caregiver and was able to work from her house since covid. She survived lung and breast cancer. She lived until 82. I'm still struggling with her loss 2 yrs ago. Sending prayers. Mom took care of my dad, then years later, me and my brother took care of my mom. I never had to deal with facilities. I was very fortunate to be able to work from home. Mom died from her MS affecting her lungs muscles in the end. She just couldn't get rid of co2. But she never suffered, just went to sleep in her bed. I totally understand. Moms dr put her on hospice but that was only 3 days. So sorry for you. Been through it twice with both parents.
So sorry for your loss
Praying for you all!
You make a plan so you can enjoy the time you have left. If they left you unaware his end of life could be much more painful. I did hospice for a long time and the worst cases I saw wee when the patients family couldn’t accept the diagnosis. They would refuse comfort meds and they’d want the patient doing uncomfortable things. And the patient would often not be peaceful because they were so worried about the family they are leaving. I think the worst part was the pain though. I really struggle to understand families who refuse pain and anxiety meds for their dying family. I’m glad you have a plan and are such a strong advocate for him. Love him and spend as much time with him as possible. God bless you
So well said. ❤ Thank you for sharing your knowledge.
Thank you for sharing x my husband has terminal cancer,is at home at the moment x
@@Julie-si3hi🙏✝️
I’m sending you a big hug. For those of you who have never gone through this you are very blessed. It is so extremely exhausting and stressful. ❤
I am so sorry. When we had to put a family member into a nursing home it gave me great guilt and sadness. Do not feel guilty a nursing home provides safety for you and him and will improve his and your quality of time together and is a good thing. So sorry hugs.
So sorry to hear! praying for you & your family!
You are an AMAZING women! What a blessing your existence is to this world.
Having gone through three years of my husband ‘s Illness and being his sole caretaker until his passing my heart goes out to you. It is so difficult to watch someone you love suffer and struggle.You are doing such an amazing job getting the best care possible and keeping his mental health intact by bringing some normalcy in his difficult journey.Tony is very Blessed that he has you by his side..Happy to know you got your parents nearby for support.🙏🏻 That Tony continues to improve 💞
Prayers for your family
As a retired Kindergarten teacher you did the right thing in communicating. I always appreciated when parents let me know any life events or concerns so we could together support the child.
I'd save those daily blogs/videos for your future and that of your son. Sending support and prayers 🕯🕯🕯🙏🙏🙏
What a lovely woman you are, carrying such a heavy load with such grace. God bless you and your family on this journey. You are doing such an amazing job, juggling so many balls at once; I am humbled. ❤ (I am old enough to remember when physicians were not controlled by insurance companies; they had the autonomy to treat their patients with the course of treatment, that was best for them! How is that, for dating myself 😂). I am happy to hear that you have a great support system.
Seeing my husband get weaker each day was the worst time of my life. My loving husband passed away December and I just cannot embrace the word 'widow". I miss him every minute of the day and I will look after him all over again😢
I’m trying to grasp her story but something in me does not understand…. Hospice and therapy are two HUG different things… I thought anyway.. sorry for your loss!!! I watched my momma pass and it was the most difficult thing…. I wish we had options of therapy or hospice for her… 😢
Oh my dear, I watched my husband slowly decline over the past 10 years due to Parkinson’s disease. But this last year was the hardest, inAug 2023 he had to go into a hospice home. I could not physically take care of him. They took very good care of him, we paid for this, insurance wouldn’t cover this.
My dear hubby of 57 years passed this June. I understand exactly how you feel about the word “ widow” either. I don’t know how to live without him.
@bakokat6982 so sorry to hear about your loss too. I am really struggling and people think a person must just 'shake it off' and carry on as if nothing happened.
Thank you for sharing your story! So glad to hear your husband is settling in. Hospice is misunderstood, but a huge benefit for the patient and their family. My mom was in hospice care at home for 2 years and we were so thankful to the amazing hospice care givers.
@@thesun-N-moon8885nurse here…hospice provides therapy to patients. Hospice is no longer just keeping patients comfortable until they die. Some people come off hospice.
I’m so sorry for the pain of your journey and Tony’s. You are amazing!
You are amazing, and I just wanted to tell you that. There are angels on earth, and you are one of those. ❤❤❤❤.
I know you mean this in a kind and positive way but I also lived this journey a few years ago and people told me the same thing. I never let on but I actually didn't like hearing that because I felt like we were just living life and doing what ever had to be done. And I think most people in that situation would do the same. Didn't mean to bring you down but just wanted to put that out there in case there are others who feel that way too.
Thank you for sharing the love you have for your husband. Sending prayers to Tony, your son and you.
As the mother with a daughter with a C5 spinal cord injury I can agree with you that Jesus will give you peace and joy and walk with you every day, life doesn't have to be perfect to be good.
'Life doesnt have to be perfect to be good'
I love that! ❤️
@elizabethtallman3280 Very well said.
Just found your video. My thoughts, prayers and strength are with you. My husband passed 3 years ago after me being being his care taker for 10 years. You are an “ Angel” getting him through this journey. Remember to take it a day at a time and “ breath”. 💕
Kudos for being so brave. You're going the only way possible. Forward. You are doing everything right. You're a super hero!
I think you are an absolute warrior of a wife and mother who has done amazingly well and with aplomb❤ You keep your time with your family and husband sacred to you and guard your time with them well ❤❤❤
Praying for you and your family. You are doing an incredible job with all the things you are dealing with. Stay strong.❤️🙏
I just happened upon this video. I can't thank you enough for sharing your story. Though my situation is not the same the basic premise is extremely similar. This has given me hope. ❤🙏
Hi Jenny, I hope you guys are doing well as far as possible...
Hospice is not giving up. Hospice is fighting for a good life while it lasts.
Of course is hard to face the hardship of a serious illness, but in hospice you will have a chance to be happy and get support. It can last years and you can reach a point where you are discharged, don't worry. It's not giving up. His life will be better with palliative care (yours and your family's too). Use all the resources and help they offer you, you deserve it.
We will keep praying for you! Please let us know of we can help you with anything, we are your village, we are here for you guys ❤
I'm so sorry to learn you tow are going through all this that resonates all to well with my family. Thank you for sharing.
My 51-year-old-son has Advanced Late Stage MS and my brain at 74 is so tired.
The sickness sucks and I can relate, I lost my daughter four years ago due to MS. She had it for 29 years and I also had to put her in care. Take it day by day you will get strenght trhough God
Keeping Tony, you, and your family in my prayers. ❤️🤗🙏
I am so sorry about your husband .. However I am glad he is receiving 100 days of skilled care... sounds like he is in a good hospice facility
I work in a long-term skilled facility and have been a CNA for over 20 yrs in different facilities.. I have seen so much that I truly despise health insurance companies.. No human should be treated the way these health insurance companies treat people.. It angers me more than words can say.
They do NOT care about the person or the situation they only care how much money is being spent ....Period!!
Praying for you, Tony and your family. You are a wonderful caregiver! God bless you! 🙏🏻🙏🏻🙏🏻
You just appeared i my feed and hour story brought me ack memories of what my husband and i went through. He had Parkinsons disease. He spent the last 2 years of his life in a nursing home, hospital forced. Since he passed i got sick and again, hospital forced am now in a nursing home. My prayers will be with you.
I am going through a similar journey as Tony in trying to get care for my multiple chronic illnesses. ❤ Thanks for sharing your journey 🙏🏼 and continued prayers.
First time watching your channel. I am impressed with the way you have worked to help Alex by creating his space in the room with daddy! That is so awesome! I feel for you. The decline and last days with my husband were no where near what you have dealt with. I am glad you find strength in God. God bless you and hold you in His arms. ❤❤❤
God blessed Tony with a suitable partner. May you be given strength for every day. 🤗
Glad the ladies could help you get the right insurance and put Tony in a good care facility.
Praying for you and your family!
I am so sorry that you have to go through this, along with your family. You are blessed to have good people working with you and supporting you and your husband through this tragic time. I will remember you in my prayers.
My fist time onto your channel. May your family be blessed through this difficult time. God is good and shows up in unexpected ways.
Listen you speak, I feel ❤ God is walking with you in this journey. He will not leave nor forsake you for his mercies are new every morning. God bless you and your family.
I'm just learning of your journey, and all I can say is you are doing everything right for your husband and your son. Please make sure you do something for you as well. I'll keep you all in my prayers.
Jenny you have done an amazing job taking care of your husband and children. You have also done a great job explaining all this to us too. God bless you, your husband, and your family🙏
My heart just shatters for your family going through this. Happy to hear that Tony is doing even a little bit better! Looking forward to his chats. Happy birthday, Alex 🎉
My prayers are with you both as you go through this new journey.
Please keep the videos coming. This can actually help with healing as well. Thank you so much for sharing your story. And yes you can find peace happiness and joy when life just doesn't look like we think it was gonna look. Thank you for the encouragement!
We went thru a condensed version of dealing with insurance companies and assisted living and rehab centers over a four month period with my MIL. It was terrible due to my emotional problems, difficulty communicating with her, constantly having to jump thru hoops, living with her for a couple months where we had no decent sleeping conditions, etc. Praise God she did pass away and no longer had to suffer agonizing pain. I have a hard time since then handling my and my husband's medical needs. Between our experience and covid, I would just as well never see another medical facility.
I just found your channel, what a beautiful person you are and how well you have shared the challenges of getting your husband the care he needs. I pray for smoother sailing in the days ahead for you and your family. God bless.
I understand it is sad to talk about the end of life, but as a caregiver it is what is needed in the event that they pass they would know what to do. Living wills are the best thing to have. I advocate for everyone to have one. This way your loved ones do not have to make the hard decisions.
You look about the same age as me and I'm going through a lesser ailment with my husband. I'm about at my wits end so I admire your strength. Just know you are doing the best you can with the information you have. It's a lonely road but you are a beautiful person.
May the Lord give you strength and courage to love and help your husband through your journey together.
Praying for your family. You and Tony are so strong. I am so glad to hear Tony is getting pain management and I love how you make his room just like home. Looking forward to seeing Tony. 🤗
Your video also just popped up in my feed. I’ve literally watched your channel grow in the last hour. It was in the 6,000 range and now it’s over 7,000. Everyone please subscribe and let’s help this precious family. ❤
Sending you love and lots of prayers for Tony and your entire family. I hope you know how special he truly is and that you are so extremely loved 🥰 by a lot of people. Your strength is so encouraging to me. ❤❤
You sound like a very determined and strong woman. I hope you and your husband are able to achieve what’s best for you both.