Louis Liu MD, PhD, FRCPC | Gastrointestinal Manifestations in Patients with Ehlers Danlos Syndrome

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  • Опубліковано 27 лис 2024

КОМЕНТАРІ • 29

  • @barbarahenninger6642
    @barbarahenninger6642 3 роки тому +11

    This is so much information and so well explained. If I had this condition I would consider myself very lucky to have this man for a physician.

    • @DanielleRadicanin
      @DanielleRadicanin 11 місяців тому

      Too bad I wasn't the recipient of his "expertise". Four years of gaslighting and now I am basically bedbound due to dysautonomia, fibro, Hashimoto's and spinal issues. Thanks for nothing, Doc. Virtual appointments for two years. 🤬 Still better than attending useless appointments with his trainees or "nurse".

  • @patriciawalker769
    @patriciawalker769 2 роки тому +5

    I have never heard anybody say, always feel like you have the flu..
    I have felt like that my whole life, and I am 61 now. Just not in my life hearing about EDS, mast cells, histamine intolerance.. omg. I almost see light at the end of the tunnel! Thank you Lord!

  • @rozwhitezidez5896
    @rozwhitezidez5896 2 роки тому +6

    This was very well put together. Informative and interesting with a bit of positive humor to break the ice. He’s an awesome Doctor!! Thank you so much

    • @theilcfoundation
      @theilcfoundation  2 роки тому

      Glad that you found Dr. Liu's presentation informative.

  • @melissafarrugia9531
    @melissafarrugia9531 7 місяців тому

    Thanks for this great presentation.
    I have a low lying caecum and I am extremely underweight, currently have my initial genetics appointment scheduled in May.
    The presentation has covered treatments and how they are advantageous for Ehlers Danlos patients who I am suspecting I am in that category. ❤

  • @sarahcarlson6109
    @sarahcarlson6109 Рік тому

    Excellent information. Very thorough. Thank you

  • @bearbait7405
    @bearbait7405 2 роки тому +1

    Thank you

  • @sherryobar5750
    @sherryobar5750 Рік тому

    Very informative, thank you!

  • @shannon0057
    @shannon0057 8 місяців тому

    disclosures!?!? was not even a full second on the screen! makes me Curious!

  • @lzeng78
    @lzeng78 2 місяці тому

    6

  • @theresageiger584
    @theresageiger584 2 роки тому

    Wth

  • @theresageiger584
    @theresageiger584 3 роки тому

    What is he talking about

    • @SpectrumOfChange
      @SpectrumOfChange 3 роки тому +6

      He's talking about Ehlers-Danlos Syndrome, which is a rare genetic condition where many of the body's functions don't work properly. So naturally, there can be many health complications that come with Ehlers-Danlos, including symptoms in the digestive systems. This is a quite in-depth discussion on the topic. This lecture seems to have irritated you in some way, does something about him bother you?

    • @kathydobbs9850
      @kathydobbs9850 3 роки тому +2

      When was the date of this video. On his learning objectives there's a date 2016. There's been a lot more learned with EDS and G.I. involvement since.

    • @karlaskitties
      @karlaskitties Рік тому

      Sorry, it’s not that rare, it’s just shockingly underdiagnosed. Personally, for many many years, it was lists all in your head “ (hypochondriac!), then Fibro, then finally, as my daughter was diagnosed in London, I got my own diagnosis

    • @DanielleRadicanin
      @DanielleRadicanin 11 місяців тому +1

      He was my gastroenterologist for a few years. He did nothing but scope. My GI symptoms worsened and as if this year, it seems my GI complaints are due to autonomic dysfunction. He never ordered further workups until I became too ill to attend testing. Definitely dysmotility and gastroparesis. Possible MCAS. So angry with this doctor who didn't even do digestive function tests instead of gaslighting me for about four years.

    • @maryr7593
      @maryr7593 4 місяці тому

      ​@@SpectrumOfChange This is not a rare disease...it is a rarely diagnosed disease because of dr inadequate education. It has been estimated that there are 1 in 100 ppl who have faulty connective tissues. Not just EDS but the ppl with Marfans and Hypermobile spectrum disorder (HSD).

  • @theresageiger584
    @theresageiger584 3 роки тому +1

    This man makes no sense at all

    • @audriannailski1811
      @audriannailski1811 3 роки тому +6

      I’m guessing you don’t know what eds is or it’s complications

  • @theresageiger584
    @theresageiger584 3 роки тому

    He makes no sense

    • @audriannailski1811
      @audriannailski1811 3 роки тому +4

      You don’t know about eds so it wouldn’t know

    • @audriannailski1811
      @audriannailski1811 3 роки тому +1

      You

    • @karlaskitties
      @karlaskitties Рік тому

      What’s wrong with you? Certainly not EDS

    • @liannemarie2504
      @liannemarie2504 4 місяці тому

      If you have a basic level of intelligence, you should be able to understand everything he says perfectly.

    • @maryr7593
      @maryr7593 4 місяці тому

      ​@@liannemarie2504 some ppl have a bias against the perceived nationality or perceived ethnic background of speaker.