♡ Doctors Appointments + Crazy Storm! (19th-21st.07.19) | Amy's Life ♡
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- Опубліковано 2 жов 2024
- ♡ Doctors Appointments + Crazy Storm! (19th-21st.07.19) ♡
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Yay you got the package! And yes.. its a Fat, Fit, Fun box. But unfortunately, it's not what's in there. Some other cute goodies tgat I hope you enjoy!😄 Love the video Amy! And Happy AfterBirth Tom!
Actually I think it's the other way round as far as premature birth and eds are concerned. So it could be the eds itself that contributed to your premature birth. As you know eds is a genetic condition, meaning you already had it in the womb. It's not the genes that develop during gestation, but the fetus itself, based on information already defined by its genes!
I was 2 months premature and my mother was in labor for 96 hours.... and I have a rather severe case of EDS and also dysautonomia and gastroparesis requiring a feeding tube and a dual lumen mediport and get over 5 liters of fluid a week for the dysautonomia. (Currently have an NJ tube, but will be getting a surgical PEG-J tube at the end of August. And due to the fact that I had a spontaneous ruptured bowel and now have a colostomy, and have a ton of scar tissue and abdominal adhesions from the EDS, I will be getting the tube placed through an open laparotomy instead of a laparoscopic procedure. ) I also just wanted to thank you for going public with everything. I watch your videos all of the time and they help me a lot. You are incredibly brave and a wonderful person to put all of your struggles out. They help me cope so much because I have a lot of the same struggles. So thank you so much!
I was 2 weeks late and my sister was term, she’s only hypermobile (no pain or comorbidities, never dislocated anything or had any injuries) and my EDS is much more severe than hers. There’s no scientific connection between severity and when in the pregnancy you were born.
I was born a month early and was the first person in my family to be diagnosed with EDS. Everyone else at most has joints that pop a lot or knee caps that will occassionally dislocate. I deal with POTS, hernias, prolapses, daily vertebrae subluxations, asthma, migraines, congential heart and spinal deformities. I by far have the worst health in the family and am the only premie as far as I'm aware
My mom was 16 when she had me she didn’t know she was in labor, she thought she was hungry and drove herself to McDonald’s and almost gave birth to me in McDonald’s parking lot 😂 so she was only in labor for a couple hours.
LOVE that story!!! omg
I'm not sure how long my mom was in labor with me, but with both of my daughters I was in labor 4 hours.
I was super lucky!
I love how you put your makeup!
Take care hun!!
I wish Tom a big happy 24th birthday for Sunday. My mums labour with me was 8 hours. I came one week early and all my other siblings were at least 10 days late. I am the sickest with Hypermobility EDS but not as bad as you. I was in labour 18 hours with my daughter and needed an emergency caesarean. She was 15 days late and been healthier than I was at her age (18 years).
We miss you so much, Amy... Hope you're doing okay, Tom. Sending Tom and Family much love.
Hey Amy, I'm so glad you're feeling better, I just love all of your vlogs. You're so inspirational to so many people. Love you so much! 🙃♥️♥️
My mother was in labour for over 2 days, and I was a preme baby too. I’ve got hEDS with TERRIBLE chronic pain and really unstable joints, plus POTS, extremely sensitive skin (kinda like MCAS, but only with my skin), and gastroparesis seems to be getting really serious (just started heavy symptoms in April so we’re still not sure how bad everything is)
Brie Morgan since your not sure if you have MCAS make sure you are very cautious with tests that require contrast. I didn't know I had MCAS and they did a cat scan with iodine contrast and it made it to where I can only eat 2 foods now if I take Benedryl with each meal. I also have every MCAS symptom also now. Hope this info helps you. If they had just pre-medicated me I wouldn't be this sick.
Happy belated Birthday Tom
I have EDS and gastroparesis and probably some other undiagnosed things and I was born 2 weeks late
I sent you something and was not able to put a note in the Amazon package. I really hope you are able to enjoy it it helps keep you warm and help with your aches and pains and also keep you extra warm while it cold down Australia!!!
My labor was 2 hours with my 2 kids.
my mom first went into labor at five months but they managed to stop it. I was emergency C-sectioned at seven months. my twin didn't make it, but my EDS is pretty severe. my parents don't have it and neither do any of my siblings (we think the mutation originated with me).
Happy Birthday Tom! 🎉 hope you have both been doing okay 💜
We've had that rain once where my mum had to pull over cos she couldnt see at all.
5 days early, 48 hours labour. My brother has no eds and he was on time and a 6 hour labour. 🤔 Long labour for edsers? I kind of thought we might fall out like a liquid 😂
oh girl your thumb shook me
Awwww you got a Florida down pour lol
Just curious how early, or, what gestation you were born at? As an NICU nurse, I have never heard of gestation having anything to do with EDS....I can’t really make sense of how it would.....would be very curious to know how your docs explain it so I could understand it!
Did your blood clot in your arm subside?
Shortly put, as the baby develops in the womb or even in eggs for other animals, there are genes that are expressed on certain cues to develop the baby correctly so everything happens on time. For example, you know our fingers are webbed while we're very young fetuses, but then the tissue between the fingers die off to give you the finger structure. If that event were to happen too soon, your fingers probably will not form well. The opposite or the process not happening often enough, you get webbed digits like your toes.
Even shorter, your genes remain practically the same throughout your whole life starting from when you were just one cell. What changes is how your genes are read in certain ages at certain tissues. If you have a genetic disorder, it will occur when that specific gene/s are processed, if ever. However, it might be an interesting study if someone was to make a statistic of %EDS patients born premature, since some conditions do lead to premature births after all.
Speaking of which, my mom never went into labor for me. She was scheduled for a c-section due to advanced age and pretty big myomas that grew together with me, so her doctor didn't want to risk extra bleeding. They apparently tried to induce her before the operation but I was feeling lazy I guess :)
Happy Birthday, Tom!!! 😁
So glad to see you up and moving, Amy! ❤️
Re: birthdays...true story! I’m 37 and could totally do without even celebrating these days 😂
💜
My mom was in labor 24 hours with me. I was born 3 months premature. I was in labor with my son for a little over 24 hours. He was born 2 months early.
love your videos so much ❤️
I was full term and my mom had only 5 min of labor. 2 pushes and I was delivered in the passenger seat of my dad's new pickup truck. Same with my daughter... I had about 15 minutes between first pain and her delivery into my dad's hands again.I didn't even have to push and she was full term as well. My mom was 17 and I was15 years old. None of my brothers went full term and none have eds (there are 4 of them!) Neither does my only sister who also was a preemie. I've always been a sickly person. I typically would miss 2/3 of every school year due to illnesses and hospitalization. I was able to still keep my grades up due to homework being sent with neighbouring children and turned in whenever I got back to school. I also would be tested on my second or third day back, depending on the teacher.
No clue on me since I'm adopted but my girls where 12 hours and my oldest was 36 I believe
I'm a twin 3 months premature and my sister doesn't have EDS/dislocatios symptoms.
"Bits 'n Bobs"?????..........I just love when you you use this phrase..😍😍😍😍😍 .....is this English or Aussie?
“How long was your mum in labor for?”
“Ten days.”
I am DYING you guys are hilarious 😂
I was 2 weeks overdue and i have g-HSD that is what i'd guess is average severity for hsd/eds:ers. But yes eds affects your birth. One of the two parts of the placenta is actually genetically and biologically a part of the fetus (and the other a part of the bearer). So if the baby got eds then yes the placenta will be structurally weaker. And this goes doubly if the childbearer got it too (mine does not).
I have EDS and was born at 27 weeks (3 months early), but being preemie and having a genetic disorder have no bearing on each other. Looking back my dad likely had mild EDS. Mine is more obvious that his. I have no siblings so I can’t compare. My mom was in labour but they were able to delay my birth for 72 hrs, though she was having labour pains the whole time.
My brother was 35 hours of labor , he had a seizure and stroke the day he was born . I was 12 hours of labor and according to my mom was the perfect pregnancy
Monsoon?
Technically I was premature in definition terms because I was born at like 35 weeks but I was a massive baby (like 9 lbs) and was ready to come out so medically I was fine lol. But I just find it so fascinating how different everybody is!! Like a baby born at 35 weeks is 9lbs and then there are babies born late who are still tiny. Health and the human body is crazy!
When my mom gave birth to me it only took 2 hours from start to finish, it was insane (but nothing compared to a WHOPPING 52 hours...)😂😅 So i like to call myself speedy gonzales😎🏃🏻♂️💨 (not a fart emoji.. whatever Tom says!😂)
I don't have EDS but Ive got other inherited issues ( Hypthyroidism, Lyphmedema etc.) My mom was in labor for 16hrs with my older sister.....took her 15 mins to have me. Fun fact.....my dad told my mkm I was just gas 😂 Happy Birthday Tommmm! Mines Aug 1st and Ill be 36 (meh) lol Im taking myself out to lunch but no plans and ill be broke and my bf wont be able to visit. I don't get excited aboit it anymore either.....unless there's a cake lol
Did you switch sides of the bed? Love you guys!
heyyyyyyy i was born premature! i was 3 months premature and i don't have EDS, but i'm just hypermobile:) doctors said i was supposed to have a whole list of neurological and genetic disorders but i came out fine
Glad Tom had a nice birthday and was able to just relax! You're right- as we get older our birthdays get to be less and less eventful, but in my opinion more meaningful. Can't wait to see what goodies you've received in your PO box!!!
Being premature won’t impact your genes themselves but I do think it’s more likely that parents with eds have faster labours? I was 4 weeks premature and my brother was two. I have hEDS diagnosis and I’m symptomatic but my brother (hyper mobile) doesn’t have the same issues at all!
I was in labor and delivery for 52yrs. but he was totally fine if you don't count the doc was too tired to do a c-section. He had a very long head and bells palsy for a yr. Now daughter was a 5 hrs labor & delivery (thanks to the nurses learned how to help) my daughter was born in Alaska, it was awesome. Forgot why I wrote this but it has to do with something Amy wrote. Sorry if I got off topic, it's what I have gone through that had to do with Amy.
Premature babies can present with more health issues. All your tissues and organs develop in your mom’s womb. If you are born earlier, obv the bits and bobs do not have the time to develop. However, if your condition is genetic, even being born full-term does not mean anything about your symptoms :)
Would you mind sharing the program you use for editing? Or recommending a program for beginner youtubers???
Double jointed people such as myself can do that with their thumbs too. And not get stuck 😂
I was 3 or 4 weeks premature and I have EDS fairly severely. My daughter was 8 weeks premature. I was very ill while pregnant with her and she has fairly severe EDS also.
I am an identical twin, so they are normally born premature. My mom was sick, so they had to do an emergency c section and I was born 2 months and a week early. Because it was a c section, I guess technically she was not in "labor" so to speak, but the doctors told my mom that if we were born ten years before the year I was born (2006) they would not have had the technology to save all three of us. My mom didn't even get to see us until the day after we were born because we had stopped breathing when we were born. Every time I think about that it makes me think of how crazy that is and how lucky we are.
I have been around doctors hospitals and nurses my whole life. My moms a nurse. And yes being premature 100% causes a higher chance of illness and strong problems both then and later in life
Me and my siblings (I’m a triplet so we came all at the same time) were all premature by a month and our mum was in labour for 3 days but we somehow turned out mostly okay. I’ve got food allergies and my sister has asthma but other than that we’re mostly okay! ❤️
i was born a month early. my mom actually went into labor on halloween as she was taking my older brother (3 years old at the time) trick or treating. she leaned on trees in between houses and breathed through contractions while my brother got his candy bc she didn't want him to miss out lmao. i was born on november 2nd in the late evening, so she was in labor for a good 48 hours.... y*kes.
I was 9 weeks early! My mom was in labor over 24 hours and I have cerebral palsy. Spastic quad which is the most severe form
That's interesting to know because my kids were both preemies and my daughter has alot oa stomach problems I wonder is she might have EDS
All my siblings are hyper mobile in one joint or another and were all late ranging from 10 -14 days late where as I was 3 weeks early and have it the most severe so I don’t know maybe 😂
Thumbs up Amy! Love you too xo
I was born on my due date and I'm severely affected by EDS. My sister was also born around her due date (a couple of days late I think) but is mildly affected.
I was born 2 weeks early
I was born late and have moderate EDS/Gastroparesis/POTS. I'm currently tube fed and deal with daily dislocations and currently cannot work due to it all!
@Chloe cuellar I fell the need to point out that your are assuming the disability is purely the result of "physical" issues, but things such as narcolepsy, fatigue, insomnia, depression, and uncontrolled pain can make a person unable to reliably work any job, even online. How do you show up to work if you can't stay awake for a few days, or can't think straight because your in too much pain or lacking too much sleep. All the issues I mentioned can be related to or caused by her conditions. People too often assume that disabilities end at purely physical problems, but they rarely do.
kohlfrog I wasn’t assuming because of her or his disability I was saying that just in case she wanted to look for a job but I know she can’t because of her or his disability I also have a disability if you’re wondering
@Chloe Cuellar I understand. It's just something I personally feel obligated to point out. I've been disabled for years and am still fighting for disability(USA) because while I have various physical issues (too numerous to name arm) the majority of what actually keeps me from work less demanding jobs are less "physical" problems, such as inability to regulate my circadian rhythm, fatigue, and random bouts of illness. Having been on the receiving end of "there are jobs at ___ doing ___ that I bet you could do." More times than I could count, from people who honestly think they are helping, but are really just unknowingly rubbing salt in an already very sore wound. I know most of us that can't work wish we could. I miss it. I still get the news paper and always check the jobs to see if some job I could miraculously do appears, even though I know such a job doesn't exist as jobs require reliability, which I don't have. I've even gotten the "I have a friend with what you have that does so and so, I bet you could do that." ...from my social worker. So I'm a little sensitive about it. But more feel the need to make people aware that it's not just "physical"(although fatigue and such are physical, but you know what I mean) things that cause disability.
kohlfrog this is interesting would you like to become friends
@@kohlfrog I totally missed the earlier comment but you hit the nail on the head. I don't just have EDS/POTS/Gastroparesis, and my illnesses are currently pretty out of control. I can't be reliable as I have to spend a lot of my time laying down as my POTS seems to be progressing which could be to do with the malnutrition. I also have something neurological going on which affects my spine, legs, hands and arms so I can't even sit at a desk, and if I have to get up and down to do thing it irritates the nerves in my legs so I can't use them. Then the issue with my hands, I get spasms so again can't sit at a computer using my hands all day and anything more physical is ruled out for obvious reasons.
I'd absolutely love a job because it's mind numbing spending 23/24hrs a day laying down but at the moment nobody would hire me because I'm literally useless lol.
I was premature and although I don’t have eds, i do have a lot of other health issues and chronic illness.
I was induced due to my moms blood pressure. I never wondered if it has effected my Eds.
Was excited to see what u got in the mail lol forgot to
Film it ha
i was in labor 40 hrs i was only 6mth 3wk preg my mum was in labor over 3 days with me
Amy you know I love you 😘 and I am always about you and Tom keep doing such great videos your my hero 🦸♀️
My mom had to have an emergency seecetion because my hart rate was very low
Happy Birthday Tom ☕️🍧🎂❤️
I don’t have EDS, but I was technically premature. I was about a month early, but was mostly fine anyways. My mom was in labor for 22 hours I believe is what she said
What is your main channel??
What's your birthdate?
Happy Birthday Thomas
We get them kind of rain like that in the USA
Glac you had a good time with your friends. Your thumb dislocating made me cringe just a little. It looked like it hurt. Take care and I have been thinking about you with the surgery. Hopefully everything went as planned.
My mom had a grand total of 3 contractions and then I was born! Needless to say, I was a home birth 😂
Carrie Owens what the- that’s insane
Happy birthday Tom
How premature were you? 🌸
I don’t know how long my mom was in labor with me I was Born on Christmas Day I also was born with a disability called Williams syndrome
Lol focking fog
Happy Birthday Tom!!
I have not been diagnosed with EDS, but I know I'm very double jointed and numerous issues. It's a possibility. Anyways, my sister has very minimal things, she was born full term, etc. I was born very sick and premature. So that does make sense. I need to ask my mother how long labor was. My son I was in labor for over 3-days. Numerous medical things. I'm glad to see you doing well with your hip surgery. Seeing your story helps me greatly. I'm counting down for my own hip surgery, just over a month from now. I plan to ask more questions regarding being born premature and health conditions. :)
So I was 13 weeks premature and I have cerebral palsy! I had a brain bleed upon delivery which caused the CP along with hydrocephalus and strabismus. But my mom didn’t know she was in labor she thought she had the flu by the time she finally went to the ER she was 10 cm dilated so they ran her to an OR and put her under and out I came!
Happy Belated Birthday Tom!!!🎉🎂💕 You can still sleep with your broccoli Tom. 🥦 I like your glasses Amy & makeup...very cute!
I Love You Amy! * Happy Birthday Tom!! 🎈🎂🎉
..I WAS HOPING THAT YOU WERE GOING TO OPEN UP YOUR PACKAGES YOU GOT IN THE MAIL 📦💌📦 IN THIS VIDEO; BUT HOPEFULLY YOU'LL MAKE ANOTHER VIDEO WHERE YOU OPEN THEM UP ON CAMERA.*.XOXO.* HOPE YOU HAVE A BLESSED DAY/NIGHT!! 😘
I was a full-time baby, 16 hours of labor. As a mother, I've had 2 preemies. My first was able to be held off for a month before he was born 3 weeks early. My youngest, and most EDS symptomatic child, was born at 28 weeks' gestation. Happy Birthday Tom!
I don't *think* I was born premature, but I'm not 100% sure. My EDS is fairly serious but manageable. My youngest sister wasn't premature, but my mom had a very hard pregnancy and she was born very very tiny, and out of all my sisters her EDS is the most severe.
Hey
Amy, I recently found your channels and just love them. I have nothing but admiration for your stories and journey. You are such a strong person and deal with issues head on. I notice you live near Perth. I live near Los Angeles in America and have a strong connection to Australia. About 25 years ago we had an exchange student from Victoria and have made 8 trips to AU since then. On our visit a few years ago we spent a week in Perth and just loved it. 😍 Thanks for all you do. I know from reading the comments you've brought hope to so many people. 😍
I was full term but I had something called failure to thrive which basically meant I wasn't doing well in the womb.
So they induced mum and she was in labor for three days. apparently she was so bored she just wanted to leave but she couldn't.
I was born this Saturday 23 years ago. I have one kidney and I'm 4ft 2 at 23 years old.
Basically medical science isn't good enough to find what's wrong so I'm a bit of a mystery.
Apart from guys at the train station calling me a midget and random people stopping me at the shops to tell me I'm short I don't notice that much.
I was born at 25 weeks and my mom had a c-section and I was in the nicu for three months after I was born
The rain storm scare me. Once we had to stop bc it was hailing. And another time i was hydroplaning. That was extremely scary for me.
As for labor. I had four kids. I would say the longest was my third. I had to take weekly shots to stop the contractions. And my last one was born 34 weeks. I know some dont consider it early but he was so tiny and fragile. He stayed 2 weeks in hospital. He has had couple surgeries and has hearing issues.
My sister and I were premature with twin to twin transfusion syndrome and that has been linked to EDS
Rain like that is very common here in Oklahoma as well as Texas and Louisiana.
It’s the worst to drive in, on a busy highway, though!
I don’t know how long my mom was in labor with me, but I was in labor for 19 hours with my first born, and I never went into labor with my second born- I had some complications that required me to have a c-section a month early because my doctor didn’t want me to go into labor at all. He was a month early but he didn’t suffer any complications from it. He will be 9 this year and he’s a healthy boy (a healthy momma’s boy!🥰)!
I’ve been tentatively diagnosed with EDS and my sister was officially diagnosed, and neither of us were born premature
I love your videos. I make iv meds for patients at home. Your videis help me see how my patients feel and live. You're beautiful.
Honestly I don’t know how long my mother was in labor because I was a foster child when I was born
I was 3 weeks early, have Dyslexia and Dyspraxia. Mum was in labour with me for 3 days.
My mum had a placental ebruption with me so she had to have a c-section.i was born 9 weeks earlier and i have a brain problem called Arnold Chari Malformation Type 1 and Scoliosis and febuary last yr i had correcrive surgery.i have 19 screws and 2 rods down my back
a party making fun of homeless people....how hilarious....? :\
I was an only child. My mom was in labor for days and had hard labor even though I was a averagely small baby 6 lbs 7 oz, but born within days of my due date. I was bow legged when I was born and allergic to all formulas and diagnosed w/asthma as 2 and everything went down hill with gi and dislocating early teens. Diagnosed with HEDS, mast cell and POTS 2 months ago at age 41. I do also find all this info interesting as this is all info they ask at the genetic appts so I feel there is a connection definitely!!!! Love you and your content. You helped me find my diagnoses and you keep me positive to keep going and I thank you.