My 10 Favorite Ostomy Accessories and Tips
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- Опубліковано 29 сер 2024
- Thanks for watching! Take them or leave them, these are some ostomy accessories, tips, and tricks that I actually use. Let me know if these were helpful, or not, or if you have any questions! Please consider liking the video and subscribing to my channel! :)
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Love your humor! Have an ostomy 12 years. Knew about most tips and have used a shower cap but your adaption of cutting the bottom is awesome. Never thought of that! I usually twisted it around and tied with a hair clip and often had a puddle in the bottom.This is so much better!
Your channel is awesome. I'm almost a year into having a colostomy and seeing other ostomates who are positive just living their lives, gives me hope.
Thank you for that comment! Yep, I’ve had my ileostomy for about 14 years and I’m just doing my best out here! This community is full of support, education, friends, and hope! You’ve got this😊
I have had an ileostomy bag since 2007. Videos like yours have been such a great help! You have taught me so much. I am a Veteran and will be sharing with other vets these videos.
Thank you! I'm glad there are so many helpful videos out these days. I wish there would have been more when I got my ostomy, so I'm happy to help!
Thank you for this video! Your humor and information helped me tonight. Got a colostomy bag one week ago.
Chicken bone!! Also I love the toilet paper hack because one time the backsplash got me and I was traumatized 😂
The chicken bone video is up now! And yes, I'm glad I figured that one out too. It had saved a lot of hassle and messes 😂 Hope it helps!
Just found you for my 92 year old Mama. Her colostomy is one week old today. We are learning so very much and appreciate your expertise & sense of humor. A million thank you hugs!
Thank you for the kind words and for watching my videos! I wish you knew how much your comment means to me. I'm not perfect, but I'm trying to do better with making this channel a real priority. Your mom is incredibly strong and amazing to take on a new life with an ostomy at her age. I wish her all the best! Let me know if there's anything specific you'd like me to talk about. Also, hopefully you've already found Maggie's channel "Let's Talk IBD". She is incredible and has been making videos for years!
I am so glad I found your channel! I am a relatively new ostomate, 2 1/2 years. My ostomy came with an infection in a joint replacement, and a lot of mobility challenges. I am so glad to find those of you with experience! Keep making great videos. BTW I am a retired music educator with a degree in keyboards. Tell the Chicken bone story, please!!
It sounds like you've been through a lot, but you're doing great! I've had my ileostomy for 14 years and still hadn't figured out my go-to supplies by 2 1/2 years. I'm always learning something new too. I'm happy you're here! I love that you were a music educator. My high school choir teacher was like a 2nd mom to me and she changed my life!
Yes, I want to hear the chicken bone story! 😂 Seriously, I loved the video! I’m a year into having and ileostomy and 99% of what I’ve learned has been through UA-cam videos - especially Maggie’s IBD channel. I’m new to yours and I loved it! My most significant takeaway from your video is the dog poop bags! I never even thought of that! They never give you enough trash bags with the ostomy bags and I’m always trying to figure out what to do. That was an amazing tip! I also love your presentation style and your humor! Keep it up! ❤
@@jean-marieharris4201 Thank you so much! You’re in luck, I just posted the chicken bone story. It’s the newest video on my channel😊 That’s great that UA-cam videos are helping you so much! And Maggie is amazing! Let me know if you ever want me to cover a specific topic. I’ve had my ileostomy since 2010, so hopefully I’ll continue to be of some help. I wish there were all these videos and stuff on the internet when I first got mine. Haha Good luck with the dog bags!
K@@natehadlock
I am just like you - learned everything from Maggie on UA-cam!
Hi Nate, I love the idea of the shower caps ! I actually use " press and seal" which does a good job. As far as odor the best spray is Mediaire. It also comes in travel size. The unscented is the best, the scented smells like mouthwash. Chicken bone 😊
Thank you! Do you use press and seal for every shower or just occasionally? I haven't heard of Mediaire; I'll look it up and give it a try!
I subbed ya! Wonderful attitude, clear presentation, experienced advice, humor. I've had my colo for 18 mos. and recently found a way to use a shower stool I had to sit in front of my commode, and using the dampening effect of some toilet paper, empty without squatting as I had been doing for more than a year. I wish I'd had my surgery 10 yrs ago. I feel better that I have in that long.
@@dyskover Thank you for subscribing! Yes, I’ll only talk from experience. The internet can be so harsh, so I don’t want to take a chance discussing things I don’t know much about 😅 That’s an interesting technique with the shower stool. Maybe someday I’ll invest in one. Good luck on your ostomy journey. There’s a lot of information on the internet these days! I’ve had mine for 14 years, so I taught myself most things.
Yes, you are awesome! Thank you for the bathroom chat! Love it! Oh yeah, chicken bone! Could always use more friends 🧡 not many of mine are understanding all this!! Thank you again ❤
Keep the bathroom chats coming... noted. haha thank you! It's a great feeling to find understanding friends!
Please make a video on how you use the stoma powder
Hi Nate! Thank you for your interesting tips n trics. Two piece I prefere too, with skin barrier wipes and sometimes a bit powder. At home for cleaning bio cotton pads, hot machine washable, saves Gaze pads. Blockages nooo thanks I'm guarding like an eagle! When it happened it had to do with some mind blockages too: I overheard what my belly feeling wanted to explain me :)) (lucky we're good friends, normally;) CU❤
Thanks for this great comment! I haven't heard of bio cotton pads. I'll check them out! Our mind can do very interesting things to the rest of our body. Glad you're doing well! I do my best to not have blockages either.
@@natehadlock my daily lil kefir drink haha
Love your personality!
I use the dog poop bag very good
@@elviacintron9732 Awesome, glad to hear it!
Thank you sir.. I would like to hear more ostomy humor
Very informative especially at the end
Nice play on words
Chicken bone! 😂 ❤ Great video! Thank you!
Thank YOU! The chicken bone video is out now. Hopefully it gives you some laughs 😂
@@natehadlock It did! 😂 Thanks for sharing!
Oh yeah! Who else is doing product reviews on the toilet? Haha seriously I’m just trying to help, so if you have any questions or suggestions, please leave a comment!
Lolol. I am!!!
Hi from Destin FL..
My Stella" is 5 years old..
@@carolannpacificadam1944 Hi there! Nice to meet you and Stella! The UOAA conference is in Orlando next year. You should check it out!
Loved your video.
@@nancyelizabethbrown-smith9774 Thanks for watching! Your comment means a lot!
Thank you I didn’t know about the belts.
You're welcome! I hope you find something that works great for you!
Chicken bone!!!!
Awesome video, Thank you for helping me out,
You're welcome! Hopefully I can help more in the future too. Thank you for watching!
Great video Nate!! Good points! Thanks for sharing my friend, fellow ostomate! ❣ Yes, please...chicken bone 🍗🍗
Thank you!! I'll get on the chicken bone story! lol
Wow, just straight aspiring
I appreciate it!
Chicken bone! Heck yeah!
These are some great tips and some things I hadn't heard before. I'm going to start keeping some grape juice on hand. I am a water drinker but have kept Sprite in the house as I was hospitalized for one blockage and I pray I never have to do that again. Now when I feel a start of a stomach ache I will drink a small Sprite. Don't know if it's as good as Coke, but so far I've been good. Thanks for sharing! Looking forward to more videos! 💜
Thank you! Sprite is great, I’ve just had some good experiences with grape juice too. Mixing them together is tasty as well lol. Water is always the way to go for a main drink though. One summer of intense heat, hard manual labor, and too much Mountain Dew lead to a terrible kidney stone episode for me. 😅
@@natehadlock Oh boy! That sounds painful!! 😯
I do not have an ostomy my mother-in-law had one. Years ago.
I have spastic bowel, celiac disease. I’ve been battling this since about 40 years old and I’m 63 now I come across the doctor here on UA-cam and his name is Dr. Berg.
He says to use this product called, TUDCA 500 mg with OX bile 125 mg. The brand name I use is called, nature Bell. This product comes in a capsule and you take between one and three with every meal specially if you eat a fatty meal! I find that I really only need one with each meal because I don’t eat much fat, but you have to adjust your eating habits, and you know as you go With this product. It gives the end of the digestion needed to digest food. I can no longer digest food properly because I no longer have a gallbladder! And if you don’t digest the food, not only is it extremely painful, but it causes a lot of problems in the final results, and throughout the whole process. Because you won’t if you’re not digesting your food, your body can’t absorb the nutrients! So this is great whether you have a gallbladder or not it aids in digesting your food. If you don’t get your food chewed up I don’t get mine chewed up very well and even when I do there’s always gonna be some that doesn’t break down some food that doesn’t break down and so does the trick, have no food. Whether or not you have a gallbladder is irrelevant, if your food is not breaking down or you’re not chewing it well enough this product is in breaking it down. So that goes for people who may be missing teeth can’t chew their food properly or whatever! So y’all might want to try this I buy mine on Walmart, but I believe that doctor Berg sells one of his own. He has a website. So go for price!
Also, I wanted to mention that I tried buying the product individually. It’s a little bit hard to find individually and getting the right milligrams but I find that the more the harder was on my system and that’s just my personal experience so buying this exact product I mentioned above is the perfect amount for me. Everybody needs to adjust their own. You can buy these products individually, go talk to Dr. Berg. He can help you figure out digestive issues.👍
I think eventually down the road probably by the time I’m 70 and seven more years I will be in the same situation as people who put out these videos just like your video here. I think it’s a matter of time for me because I’ve been battling this a long time, putting off ever having to have a stoma and colostomy. But now that I’m retired, my husband passed away, my adult child lives here. I don’t have the pressures that the younger people have trying to date go to the beach. Do all these things because I’m older. So that’s a plus for me.
And my main concern with ever having to have a stoma is bag explosion, and the fact that a bag could fill up constantly and just be a real pain for someone like me specially when I my memories, not that good and I tend to be a lot slower than I was 20 years ago. The last thing I want to be as a burden to my adult child who help me.😢
Also, I wanted to ask you a question Nate, why are so many young people having colostomies? Is are they all due to cancer? What’s causing this huge uptick in this condition I had never heard of anybody having this condition growing up.
Back in the 70s it was teeth. Everybody was getting their teeth pulled because they wanted straight teeth so they all got dentures. Then you got into the 80s, and the 80s were all about women were getting hysterectomy hysterectomy hysterectomy, hysterectomy! They wanted to do that with me and I told him no and thank God I never had it done because now I’ve went through menopause and I don’t have any of those problems .
Came into the 90s , and I really don’t remember what it was for the 90s rad offhand.
But then we started the 2000s and everybody was getting their gallbladder out being pushed by the doctors. All these things were pushed by the doctors! I had mine now I knew several friends had theirs out. My son‘s boss had it I mean it I can tell you I knew at least 30 people that had their out Back then I even know more now but they’re not taking out as much as they used to. Another one was the appendix everybody was having their appendix out. Oh, you don’t need it. It’s fine yes you do. You need every organ in your body, you need every organ in your body and if you don’t have it, then you’re gonna have issues that your body is not gonna be the way it was, you’re gonna have to take some supplements down the road or something to make up for it.
What people don’t realize is until they research what are my organs and organs and what are their functions and what do we need those for! And you’ll see your spleen hold blood you’ll see that your appendix gets rid of infection. You lead your lip notes. you need all these things that are in your body , your body is not gonna function properly
And that’s exactly what I’m hearing from all of these videos. I’m watching about people who have stomas and colostomies there’s things that triggered. You can’t just eat what you want so there’s always a downside so try to hold onto all of your organs for as long as you can always get third fourth opinions and hold onto your organs unless it’s a life or death situation! If it’s anything to do with the ovaries or uterus, you’re gonna go through menopause eventually make it through it just like I did menopause at age 54 all those bleeding issues all of this Annette and the doctors were trying to push it, and I wouldn’t do it and all of this is gone and when I get my check ups and ultrasounds which I’ve had everything is fine and dandy and normal. What happened? What happened to all of the endometriosis that I was having or they were claiming I was having on the side of my uterus? Did it just disappear when my period stop? Makes you wonder makes you wonder I’m so glad that I just didn’t believe everything. Doctor told me.👍
A lot of foods that everybody’s eating now are all fake. A lot of it fake the eggs half the eggs aren’t real and I encourage everybody to try to grow a garden. If you can eat healthy by organic don’t just buy things from the stores buy things from the farmers markets and other places , eat good whole food and all this processed engineered food because this is what we have in our store now and then they all government wants to put us on all plant diet? Heck heck no I like to have roast some burgers don’t want engineered burgers I want real burgers!😅
So a lot of our conditions, we have to look back into our family in our family history of health issues and at our diets because our insides wouldn’t be like they were if we weren’t putting food into it so we have to think about that. Me too that’s exactly what I’m thinking about . 🤔
FYI - Glade Ultra has a compact 3" air freshener that fits into any bag - takes no space at all!
I’ll go find it! Thank you!
Alright, it looks like I need to make a chicken bone story video! 🤣😵💫
Hey - question for you. I know you wear the Stealth Belt and like that and I have seen several others talk about that. I am looking into getting a stoma guard so I can have the dome give room to my stoma for if I want to lay on my stomach to get a massage and even for when driving the car to keep the seat belt from pushing on it. I see that Stealth Belt has a stoma guard accessory. Have you tried that one? Or any one? And what do you think of it? Thanks!
@@jenny_rice I’ve tried a stoma guard once. I didn’t do any activities that needed it, I just wanted to see what it was like. For actual protection, I’m sure it works well. I personally wasn’t a fan just because of my own obsession with needing to feel and check my bag a lot. It goes on your bag using Velcro that you stick to your bag first, so when it’s on, the guard gets in the way of me feeling things and when it’s off, the Velcro gets in the way of me feeling things. If I were to ever use one again, it would probably be a larger guard that is just attached to a separate belt. And sorry, I don’t know about using it to lay on your stomach. I’m not sure if the guard would end up just pressing into your abdomen or ostomy bag/wafer in a weird way. I should try the different options out again. It’s been years. It would definitely help with protection from a seatbelt! I guess you just have to try it and decide if it’s a nuisance or not the rest of the time you have it on.
I follow a woman on tiktok who wears one all the time. It doesn’t look enjoyable to me, but she loves it! Lol
Would you like me to find her account for you?
You are awesome down to earth
@@elviacintron9732 Thank you!
You cant plug a fan into a socket in a UK bathroom as there are no sockets! Have to do that in tge bedroom!
Thank you
Hi Nate,
Thanks for your videos. I have a ileostomy been there going on 3 years and the first year I CRIED cause I thought my life was over and then I started googling information about it and it bough me to UA-cam and I went from there. Her name is Becky yes I named it it 🤭🤭🤭 but anyways I was so depressed and I was like this is for the rest of life might as well live life to the fullest. So I’ve watching videos like yours and it gave me HOPE AND INSPIRATION and I also joined a group that’s called People Like Us Mates and it’s a really good support group we talk shit 😂😂 on there as well concerns, questions or just being there for someone that just got one ya know. But thank you so much for your videos I appreciate them so keep making them. Still to this day I need a good video just in case I go back into that dark place again. ❤❤❤❤❤❤
Luv KiaJ
Hi Kia and Becky! Your comment means a lot! I love that you have embraced ostomy life and are making the most of it. It's so important that all of us in this community keep finding each other and finding ways to lift each other up ❤ I'm happy that we're connected now and I hope that you can keep finding the good in this life!😀
I use dog pooh bags too!!
Can u recommend a good ostomate group, so I can meet some new ppl. Thanks!!
@@amandaqueen4739 Have you visited the UOAA’s website ostomy.org ? They have a support group finder on there that helps you find groups close to you. Otherwise, depending on your age, some friends/colleagues of mine and I are starting an online support group this fall for ages 18-45.
I’ve made most of my friends at the national UOAA conference. The next one is August of next year, down in Orlando.
@natehadlock thanks for the info. I'm 42yo and have had my ileostomy since 2022. I'll check out the site! Stay blessed!
Chicken bone. 😄
I wish I was able to be and look so happy like you… i have so many problems with my stoma and harnia that i’m depressed and crying oll time
@@sofiaalter5477 I'm so sorry you are having so many problems. Keep watching sites like this one, they help a lot. Also, can you find a GI doctor or ostomy nurse to help you? I pray that you will do better and find the help you need. 🙏❤️💐
Don't give up 🙏
@@sofiaalter5477 It might help to look for a local ostomy support group, too. Hang in there and don't dispare. 🙏🙏🙏for you!
I have a stoma for urine i have had it for 52 years
Tell us the doorknob story :D
Haha ok! I’ll add it to the chicken bone video 😊
Chicken bone!
@@hippitiedippitie It’s the newest video on my channel! Haha 🫣
@@natehadlock hahahaha whoops, my b! 🤦🏻♀️😂 Thank you!
Chicken bone
You forgot your crown 😂 chicken bone
I love that! Thanks for having fun with me. haha
Chicken bone 🫣
😂😅
chicken bone
@@user-yp4ed2jw5h That video is out now 😊
I forgot chicken bone (though scary??)
A little scary! LOL
@@natehadlock 😁
Chicken bones
@@nancyelizabethbrown-smith9774 That video is up now 😊
Thanks Nate!! Why I haven't looked in Amazon, I have no idea!! 😅 I just ordered 5 small bottles for $24.51...which if I did the math correctly comes to only $4.90 per bottle. Where 3 small bottles comes to $5.35 each at $16.04 for 3 bottles. I empty my bag atleast 6 to 8 times a day, therefore I need a lot...😂
Thanks so much Nate!! I needed this great news today!! Just got home from Gastroenterologist office where I was scheduled for a much needed EGD. Unfortunately the anesthesiologist could not access my chest port ( stuck me 3 times there ) lots of pain...no go!! Then him and a nurse tried to find a vein ... 4 more painful tries...with no luck!! I was on the table with that mouth piece in mouth and they decided it was a no go!! Really aggravating!! They said I will need to have it done at the hospital!! But...they didn't even set it up, nor give me paperwork so I can get it scheduled!! My surgeon has to do my colonoscopy at the hospital as well...not scheduled yet either!! My calprotectin is 303 and no one cares!! 😢😢
I’m glad you found a good deal! My bottles last me a really long time, because I only use them when I travel or visit friends houses. That appointment sounds so frustrating! I’m sorry for all the pain and inconvenience! Hopefully things will all get sorted soon and you’ll get the care you need.
@@natehadlock Thank you so much for your kind words! I needed them today!! 😁
Chicken bone
Chicken bone
Chicken bone
Coming soon 😉
Chicken bone
That video is out! Thanks!