I wasn't worried about Hydroxychloroquine, really. Now, methotrexate on the other hand, I was terrified of because of my brother's problems he had while taking it. When I finally relented and started it, I was surprised and happy because I've had very few side effects. It just goes to show you how individuals react so differently to things.
@RobertOgs-ik9hc I was started on Hydroxychloroquine and took it for 2 or 3 years before my doc finally convinced me to try the methotrexate in addition to the Hydroxychloroquine. I definitely know the Hydroxychloroquine helped, but I was still dealing with stiffness and pain in my feet and hands. That is why my doc kept pushing the methotrexate. I've had less stiffness and pain in my joints and I have a bit more energy too. So, if you are considering it definitely talk to your doc. All of that said, I still have rough days, especially when the weather is cold and rainy/snowy.
I was on hydroxychloroquine 200mg 2 tablets daily for 9 months straight for rheumatoid and developed a severe case of gastroperesis (stomach paralysis) malnutrition and massive weightloss (good but not healthy). I stopped taking it and the side effects eventually went away. I decided to eat to my blood type (B negative) which eliminated inflammatory foods especially chicken, eggs and corn that I ate everyday not knowing that my body was rejecting it. I asked my rheumatologist if I should try the diet 1st and he told me no it won't work. Well, HE WAS WRONG!!! It's been 8 years and feel amazing. 🙌😊
Wow, well done. I’ve had RA and taking Hydroxychloriquin for 14 months now. My blood type is 0 so do you know where I can find an RA diet for that? I get so confused by the diet suggestions
@@heatherthompson3670 Eliminate anything and everything with preservatives No corn syrup or cane sugar and no thing with hormones or antibiotics Was where I started and saved my life
@@heatherthompson3670 Look into the Modified AIP diet. The AIP stands for Auto-Immune Paleo. I had to have multiple discussions with my rheumatologist before she would prescribe HCQ. She said it wasn't strong enough for me because my anti-bodies were so high. BUT, when I follow the modified AIP diet and take the HCQ, my RA is controlled. I am currently trying to reintroduce certain foods. As for the blood type diet, most researchers say the book isn't based in science. I;m not saying that the diet isn't working Monique. What I read said that one of the diets was helpful because it eliminated a lot of the more troubling foods. I don't remember what blood type that was though. It wasn't A pos, because that is what I am.
I was on Hydroxychloroquine and developed itching. My rheumatologist had me switch to Chloroquine. Is there a major difference between the two? I've had trouble finding answers online.
Put me at risk with the fact that the doctors would not run the test on me that I needed To show that was what was wrong with me Yeah thanks Thank you all of you wonderful job I'm clapping for you all
Retinal changes??? How about permanent retinal damage, as in, blind spots in both eyes? Had I had any inkling that I might be one of the "few" who experience this, I would have refused to take it!
I took it for one month, developed a full body rash. It was helping me feel better, have Dermatomyositis, “they think”. I wish I could have continued to take it.
@@treshamassey804 Yes. I’ll try find it and get it to you. You also purchase Quercetin from any health food store as well. Hang on. I’m still searching. 👍🏻😉
@ Ok, here goes: Large pot The peel of three lemons and three grapefruits. 12 cups of water (most times I use tonic water, 1 and half 2 litre bottles). Tonic water has Quercetin in it. You can use just water or a combination of both. I use distilled water. Bring to a rolling boil Cover and simmer for 3 hours. Don’t remove the lid Let cool, still covered, for 2 hours You can put into containers/old jars and refrigerate.
@ Thank You! Wouldn’t it be wonderful if it works! My face peels like dandruff, burns like fire, and my muscles and joints hurt so bad I can barely move!
RED and processed meats are proinflammatory. Getting off sucrose is essential. Soluble fiber are anti-inflammatory. There are many anti-inflammatory compounds in colorful fruits and vegetables, and yes, I have scientific references. Eliminating sugar and avoiding blood sugar spikes is probably why keto and carnivore diets seem to work. However, on a whole plant, the whole food, a well-balanced diet, you get great anti-inflammatory results without increasing the risk of cancer from meat eating.
Why dampen t-cells in SLE when they are already dysfunctional, likened to the policemen being asleep on the job? PS there are a number of versions of hydroxychloroquine and different people respond to versions differently, so it's worthwhile changing version to see. I've been told if your lactose intolerant you need the Quinoric version, I have problems with Quinoric but not Zentiva or BlackRock.
I woke up with the curse of RA a year ago at 80 yrs of age.Haven’t a clue why.This RA Dr I got wanted me on this Hydroxy stuff that you took.When I found n out about the side affects with the eyes I refused , because I have severe dry eye , floaters and cataracts.I had retinal flashers .I said NO AGAIN.Iam going all natural. Thank you for sharing. surgery.This Dr said I could s
I wish all doctors were like you-taking time to explain with empathy for the patient.
Can you do a video on Sjogren’s and how it affects the lungs? And other organs?
I have Polymyositis and hydroxychloroquine has been a game changer for me!
I wasn't worried about Hydroxychloroquine, really. Now, methotrexate on the other hand, I was terrified of because of my brother's problems he had while taking it. When I finally relented and started it, I was surprised and happy because I've had very few side effects. It just goes to show you how individuals react so differently to things.
did you try the Hydroxychloroquine as well
@RobertOgs-ik9hc yep, I'm on both
@@KateAtkinsbalinorelle which do you think is better, my problem is still finger joints in the morning
@RobertOgs-ik9hc I was started on Hydroxychloroquine and took it for 2 or 3 years before my doc finally convinced me to try the methotrexate in addition to the Hydroxychloroquine. I definitely know the Hydroxychloroquine helped, but I was still dealing with stiffness and pain in my feet and hands. That is why my doc kept pushing the methotrexate. I've had less stiffness and pain in my joints and I have a bit more energy too. So, if you are considering it definitely talk to your doc. All of that said, I still have rough days, especially when the weather is cold and rainy/snowy.
Methotrexate has less side effects for me
Please do a diet regimen for RA
Search Modified AIP diet.
Look up Dr. Ken Berry. He has countless videos on autoimmune diseases
Very informative video; thank you!
thank you - I needed a 'second opinion'.. 😊
Thank you ! Very helpful ❤
Thanks for the clear explanation, very helpful
It’s hydroxychloroquine beneficial for those who have severe osteoarthritis?
I wish this had been answered …
She just put it out 6 days ago… perhaps she will see this …
I take it for this reason.
I was on hydroxychloroquine 200mg 2 tablets daily for 9 months straight for rheumatoid and developed a severe case of gastroperesis (stomach paralysis) malnutrition and massive weightloss (good but not healthy). I stopped taking it and the side effects eventually went away. I decided to eat to my blood type (B negative) which eliminated inflammatory foods especially chicken, eggs and corn that I ate everyday not knowing that my body was rejecting it. I asked my rheumatologist if I should try the diet 1st and he told me no it won't work. Well, HE WAS WRONG!!! It's been 8 years and feel amazing. 🙌😊
Wow, well done. I’ve had RA and taking Hydroxychloriquin for 14 months now. My blood type is 0 so do you know where I can find an RA diet for that? I get so confused by the diet suggestions
@@heatherthompson3670
Research eating to your bloodtype. There’s a book about it by Dr. D'Adamo
@@heatherthompson3670 try no carbs keto
@@heatherthompson3670
Eliminate anything and everything with preservatives
No corn syrup or cane sugar and no thing with hormones or antibiotics
Was where I started and saved my life
@@heatherthompson3670 Look into the Modified AIP diet. The AIP stands for Auto-Immune Paleo. I had to have multiple discussions with my rheumatologist before she would prescribe HCQ. She said it wasn't strong enough for me because my anti-bodies were so high. BUT, when I follow the modified AIP diet and take the HCQ, my RA is controlled. I am currently trying to reintroduce certain foods.
As for the blood type diet, most researchers say the book isn't based in science. I;m not saying that the diet isn't working Monique. What I read said that one of the diets was helpful because it eliminated a lot of the more troubling foods. I don't remember what blood type that was though. It wasn't A pos, because that is what I am.
I was on Hydroxychloroquine and developed itching. My rheumatologist had me switch to Chloroquine. Is there a major difference between the two? I've had trouble finding answers online.
Thank you doctor ❤ please Tell benefits of myfortic medicine ❤
what is that
Put me at risk with the fact that the doctors would not run the test on me that I needed To show that was what was wrong with me Yeah thanks Thank you all of you wonderful job I'm clapping for you all
Can you use it for PMR?
That's very good. Thanks
Can you do an episode on scarcidois ? My daughter just can’t seem to get a handle on her health, she hates steroids so on and on it goes,
Retinal changes??? How about permanent retinal damage, as in, blind spots in both eyes? Had I had any inkling that I might be one of the "few" who experience this, I would have refused to take it!
How long did it take for you to experience the changes?
How long were you on it before you started having problems with your eyes
@e.williams13 about 18 months
Doctor wants me to start Methotrexate for RA but i think i would rather try this as appears to have less side effects
Same. It took a bit of convincing for them to give me the HCQ.
Thank you
Where are you located. Need a doctor like you
I took it for one month, developed a full body rash. It was helping me feel better, have Dermatomyositis, “they think”. I wish I could have continued to take it.
You can make your own hydroxichloroquine. Perhaps the negative reaction was because it was a pharmaceutical? I don’t know. I’m not a doctor.
@ do you have a recipe
@@treshamassey804
Yes. I’ll try find it and get it to you. You also purchase Quercetin from any health food store as well. Hang on. I’m still searching. 👍🏻😉
@
Ok, here goes:
Large pot
The peel of three lemons and three grapefruits.
12 cups of water (most times I use tonic water, 1 and half 2 litre bottles). Tonic water has Quercetin in it. You can use just water or a combination of both. I use distilled water.
Bring to a rolling boil
Cover and simmer for 3 hours. Don’t remove the lid
Let cool, still covered, for 2 hours
You can put into containers/old jars and refrigerate.
@ Thank You! Wouldn’t it be wonderful if it works! My face peels like dandruff, burns like fire, and my muscles and joints hurt so bad I can barely move!
I have Sjogren’s and that medication cause me to have hearing loss & ringing in my ears 🤦🏽♀️ I will never take it again !!!
Maybe all switch to Carnivor diet...get off all sugars and starches?
Yes do it works very well
RED and processed meats are proinflammatory. Getting off sucrose is essential. Soluble fiber are anti-inflammatory. There are many anti-inflammatory compounds in colorful fruits and vegetables, and yes, I have scientific references. Eliminating sugar and avoiding blood sugar spikes is probably why keto and carnivore diets seem to work. However, on a whole plant, the whole food, a well-balanced diet, you get great anti-inflammatory results without increasing the risk of cancer from meat eating.
Look up Dr. Ken Berry. He has many studies on the benefits of Carnivore and keto diet
What is the benefit/ downside of using sulfasalazine versus hydroxychloroquine?
I thought the body shuts down autoimmune conditions during pregnancy to protect the fetus???
Why dampen t-cells in SLE when they are already dysfunctional, likened to the policemen being asleep on the job?
PS there are a number of versions of hydroxychloroquine and different people respond to versions differently, so it's worthwhile changing version to see. I've been told if your lactose intolerant you need the Quinoric version, I have problems with Quinoric but not Zentiva or BlackRock.
💎
Plaquinal ruined my retinas.
I woke up with the curse of RA a year ago at 80 yrs of age.Haven’t a clue why.This RA Dr I got wanted me on this Hydroxy stuff that you
took.When I found n out about the side affects with the eyes I refused , because I have severe dry eye , floaters and cataracts.I had retinal flashers .I said NO
AGAIN.Iam going all natural.
Thank you for sharing.
surgery.This Dr said I could s
Nope. I have MS
Research LDN Low dose Naltrexone for M.S
What happens if you cannot take this medication due to Long QT?
Can you use it for PMR?