EDS Hair: The dos and the don'ts when it starts falling out in clumps in the shower!
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- Опубліковано 6 жов 2024
- The rules, the levels of attack and what to do when you get iller and you suddenly find your hair falling out in clumps in the shower by the hand fulls or even worse; when it gets to that crinkly stage and starts crumpling to dust.
From ditching the SLS all the way through to using specialised made for you shampoo and rebonding chemicals; the dos and the don'ts of shampoo and conditioner. Plus some hints and tips for outside the shower too from an EDS and unstable mast cell perspective...with a couple of Aspie stim tips in there for goos measure...
Wipe out conditioning bar: www.surfgirlbe...
Function of beauty discount code:
5eaac8d69c98b....
I’m 23 (male, 6ft5) and just recently got diagnosed with hEDS. Always wondered why I had stretch marks on my abs as a teen (at least I had a cool nickname “white tiger” 🤣). I always had perfect hair growing up, until the last year or two. I only shampoo’d once a month and my hair was always silky smooth and perfect. Lately it’s been very dry and thinner. Whenever I shampoo etc it feels even worse after a two days. My eyebrows are thinner and my beard is very thin and hasn’t grown in on the sides (I think it’s because the hairs fall off brushing against my pillow as I sleep on my sides so I’ve been sleeping on my back).
I’ve just started taking Vitamin C, Zinc and will be getting Biotin. So hopefully these vitamins will help. *I’ve noticed that cutting out carbs and eating more red meat has helped A LOT* especially with joint pain and skin.
Any recommendations for specific shampoo/conditioner/moisturiser/lotion brands?
Definely on the biotin, I take that and a really decent multivitamin. It seems to help with the hEDS. So, Palmers Coconut butter shampoo and conditioner are good I’ve found if a little heavy, Umberto Gianni is ok, Burts Bees kids shampoo is quite good too. But for me, I’ve gone the whole hog and I use Function of Beauty who specially tailor make their shampoos and conditioners to what their customer needs. It’s not cheap though so really needs some serious consideration before you get into that as it gets shipped from America. If you do want to go down that road my discount code is www.functionofbeauty.com/images/clipboard.svg
Omg yes! You nailed it when you said you can pinpoint certain times or events in your life that caused your EDS to flair or get worse. Same here. I was only diagnosed last week, but I have EDS and MCAS and suuuuch bad hair loss. I was told by my primary care that I should "just stop bleaching my hair and you'll be fine." For reference, I only get highlights done about once every 4 months because I don't want to add more damage to it... And I've literally been losing a handful of hair every time I wash it, to the point where about half my hair is now gone. I'm so sorry you're dealing with all these health issues, and I wish you nothing but the best going forward. Thank you for posting about this and bringing awareness to it!
Thank you!! Recently diagnosed with hEDS and I’ve been struggling with and wondering about my hair and my nails my whole life. When I was diagnosed I started thinking, OMG! It’s the EDS! I mean hair and nails = collagen! But I never see any info about it anywhere (the correlation between these). My hair is extremely dry and brittle and fine and breaks easily and yes comes out in clumps in the shower every single time I wash or even Jist rinse it! I started using natural hair care products made by and for people of African decent and my hair is sooooooo much better! But I still struggle. It falls out, like you said disintegrates! I can’t grow it much longer than my shoulders. I’ve also always had extremely fragile nails. I can’t open anything with my nails. Even really easy to open things. They will bend backwards.
I’m so glad it helped you. That’s the whole point of me making these. I must get round to making some more. But being an EDSer, I’ve been ill.
Thanks for sharing your experience. I have EDS and hashimoto... I used to have beautiful hair but since 2019 I started to have hair issues and alopecia. Take care 💞
Can you explain more? As this is becoming a fear of mine with the amount of hair I've lost in a few months....
@@katreilly3094 sure, I don't lose a lot of hair but my hair has become very thinner and thinner. So I went to a dermatologist who told me I got Aga (androgenic alopecia)... But I want a second diagnose so I'm going to see another one. I take a lot of supplements: for hormones, intestins (I have inflammation),... I also have lipedema and hashimoto...
Can we talk more I was diagnosed recently and my hair is falling out which surprisingly I can handle all the pain and dislocations but not losing my hair.
It is really difficult. You have my sympathy. Often our hair is part of our identity and how we express it. So it coming out in clumps or drying and crumbling can really get to us xx
@@julietteelisabeth1734 exactly I don't really care about my shoes or clothes but my hair and nails more than I should. My nails have always been pretty bad tho. But my hair never went past my shoulder blades but was still thick and healthy now it's super thin and falls out everywhere with the littlest movements especially when I wash even in cold cool water. I keep switching shampoos but my scalp is showing.... My Drs aren't helping me when it comes to how I can make it better or something..... Clumps locks of hair.... I'm still learning about it as I was told for years It was in my head or I was attention seeking and only diagnosed in August of 2022
@@katreilly3094 huge hugs. Unlearning that rhetoric is really hard. But if you wouldn’t say that to a friend, don’t say it to yourself. Compassion is key
I love how you talk with your hands, you are so adorable. Fellow aspie here. Keep making content, this was very useful.
What is the hair product at 14:20? My hair I'd falling out and I'm looking for products that doesn't make my skin break out. (hEDS, 49, female. side note: I look 15 years younger. It is nice, but I'd rather not have hEDS and deal with looking middle aged).
Viola skin Argan and coconut oil x
43?!? Dude you look like you could goto college with me 😹 I'm 21. Had to comment again when you said that lol
In my point of view, long may it continue. Aspie me hates the idea of aging. But there are days I look in the mirror and it’s severely disappointing! Aging isn’t nice when when you’re autistic, so sometimes it’s good to have EDS too to slow it down!
I thought you were like late 20s OMG I know EDS affects this but I was still shocked lol
Yes the wonders of EDS, young faces, old hands! ☺️
I can’t bleach my hair either. My hair can’t take it. This may sound totally ignorant, but how do you get your hair lighter without bleaching it? Btw, I love your strawberry blonde color! It looks great with your skin tone.
Thank you! It was my natural colour when I was a child to teen before I had children, so it’s a good guess it would suit me 😉